Gratitude List (April 26, 2024) #TToT

Posted on by Astrid

Hi everyone. How have you been? I’m participating in Ten Things of Thankful with a gratitude post once again. It’s been a while. I however have quite a few thankfuls to share, I think, so let’s go.

1. I’m grateful for homemade pizza. My spouse, mother-in-law and I made it together at my in-laws’ house (my father-in-law wasn’t there) last Saturday after the CP conference.

2. I’m grateful for a side-by-side bike ride on Sunday. I was assigned an extremely tall staff member for my one-on-one and, for those not aware, I am short myself. This makes walking with him quite a challenge, as we haven’t yet figured out a way for him to guide me that doesn’t cause me pain. However, I came up with the idea of biking instead.

3. I am grateful for the fact that my attempt at making overnight oats on Monday turned out to be a success! Last time I made them, I added way too much milk.

4. I am grateful because, on Tuesday, I was able to cook köfte for my fellow residents and staff. It took me quite some time, but that’s not a problem.

5. I am grateful for French fries on Wednesday. Oh, I’m making more than half of this list about food, but okay.

6. I am grateful for an opportunity to go swimming yesterday. I had gone swimming twice last week, once with my own home’s residents and once with a small group. I hadn’t expected to be able to join the small group this week again and swimming for my home was canceled because most residents were on the annual trip. However, I was able to join the small group anyway.

7. I am grateful for a trip to the institution museum this afternoon. It’s a really small museum, but it was interesting to learn about the history of the institution. Plus, we got free mini pancakes! Oh wait, that’s another food-related thankful…

8. I’m grateful for a day without rain today. We had rain most of the week and, though I could go on walks everyday inbetween showers, I couldn’t go out nearly as much as I’d have liked. Today though was a rain-free day and we even had a bit of sunshine.

9. I am grateful for an appointment with the nurse practitioner who works at my local GP practice re my decreasing mobility. I’ll have a physical therapy appt soon too but I’d really like to know what’s causing my mobility impairment (CP or something else) and whether a decrease in mobility is to be expected or what can be done about it.

10. Last but not least, I am so grateful I seem to be slowly crawling out of the pit of depression I was in.

Saying Goodbye to Mental Health Services

Posted on by Astrid

Hi everyone. October 10 is World Mental Health Day. In honor of this, many bloggers are writing about mental health this week. As a person with serious mental health challenges, I think I need to offer up my contribution too. However, mine will be a bit different, in that just last Tuesday I had my for now final appointment with a professional from a mental health service.

I did not usually share details of my less than stellar experiences with my psychiatric nurse practitioner on the blog, but let me say that my appointments, except for those concerning medication, over the past three years, have for the most part been useless. Maybe my expectations of an assertive community treatment team were too high. For those who don’t know, an assertive community treatment team is an outreach-based team that treats the most severely mentally ill, usually care-avoidant patients. As a result, a lot of the care they do is more like support and steering towards services than actual therapy. They do have a psychologist on the team, but the majority of clinicians are actually community psychiatric nurses.

Back when I got kicked out of the psych hospital in 2017, I did need such a team, as I needed lots of support in my daily life. However, once I’d moved into long-term care, maybe an assertive community treatment team wasn’t the most logical choice of treatment teams. And yet that’s where I ended up.

Not to say it’s all my or my referring agency’s fault. My nurse practitioner did flat out refuse to refer me anywhere else even when he should have realized he couldn’t provide the kind of treatment I needed. He also claimed we were doing “trauma treatment” by merely talking over my mental health struggles, which happen to be trauma-related, occasionally. In my opinion, it was neither specifically trauma-focused nor treatment.

Now I know that my staff and the behavior specialist at the care home are probably as capable as my mental health professionals were at helping me deal with my everyday instability. Neither can provide trauma-focused therapy, while both can provide a listening ear (my staff at my old care home at least often better than my nurse practitioner, in fact).

I did, of course, start my topiramate and pregabalin while in treatment with my now former mental health team. This I do credit the team’s psychiatrist hugely for. I don’t honestly think an intellectual disability physician would’ve been able to come up with this idea and I’m not sure a consulting psychiatrist would’ve gotten the idea either. Then again, now that I’m on a stable dose of both meds and only wanting to slowly decrease my aripiprazole, my agency’s intellectual disability physician can manage that.

All this combined got me to conclude that I don’t think I want mental health services anymore. If I or any of my current professionals ever change our minds, I can always get referred back to a mental health agency.

Gratitude List (July 31, 2022) #TToT

Posted on by Astrid

Hi all on this last day of July! Today I’m joining Ten Things of Thankful (#TToT) for a gratitude list. I’m rather late to the party, but better late than never, huh? Here goes.

1. I am grateful for some good phone talks with the care facility’s behavior specialist this week. She gave me some useful advice on how to handle my frustration with respect to my recent care review with her and my nurse practitioner from mental health.

2. I am grateful my nurse practitioner gave the get-go for me to lower my antipsychotic again. Next week, I’ll be starting with the slightly decreased dose.

3. I am grateful for a nice visit from my sister and her family. I am so grateful Janneke, my oldest niece, was really friendly with me. I tried to show her how to make a play-doh unicorn, but she may still be a bit young for that and/or I wasn’t engaging enough.

4. I am grateful I got to hold Wolke, my youngest niece, who is just two-months-old.

5. I am grateful for the belated birthday gifts my sister and her family brought me. I got four sets of cutters and a set of texture sheets to use with my polymer clay.

6. I am grateful for a delicious salami pizza with added olives and red peppers. Yum! We ordered pizza (and fries for Janneke) last Monday when my sister and her family were here.

7. I am grateful for a good visit from my mother-in-law on Friday too. We went out to have lunch, which was delicious.

8. I am grateful for no mosquitoes last night or the night before. This hopefully means my anti-mosquito device, that I’d bought last Friday when in town with my mother-in-law, is working. Either that or none had been in my room at all. I don’t really care which, as long as the critters aren’t bothering me.

9. I am grateful my pasta machine isn’t broken after all. I had experienced it’d crumble several colors of polymer clay. Even after a deep clean session, it still did this, so I thought it must be broken. Thankfully, one of the most knowledgeable people in the Dutch polymer clay Facebook group took a look at a picture I’d taken and said it wasn’t broken. Apparently it’s the clay.

10. I am grateful the new pasta machine I impulsively ordered online when thinking the current one was broken, can be returned. I will probably ask my staff to drive me to the PostNL pick-up point tomorrow. When I have my refund, I’m going to order supplies I really do need from that same store I now ordered the pasta machine from.

What are you grateful for?

#WeekendCoffeeShare (July 23, 2022)

Posted on by Astrid

Hello everyone on this fourth Saturday of July. I’m joining #WeekendCoffeeShare today. It’s been a few weeks. Let me share what’s been going on.

If we were having coffee, I’d ask how your weather is. We haven’t had an official heatwave here, as we had only three days of daytime high temps above 25°C. Then again, on Tuesday, the temperature reached 39°C. That’s not a record, for your information: the Netherlands’ official all-time heat record was reached three years ago and it was almost 41°C.

If we were having coffee, I would tell you that, on Monday, I took a trip into town with my staff. I had to get some toiletries and new baby wipes (which I use for cleaning my claying supplies). I also went into Action, a discount store, actually looking for origami paper. I didn’t find any, but did buy some clear stamps, a stamping pad, blank cards and alcohol ink. As it turns out, I will most likely only be able to use the alcohol ink for my clay, and I’m not 100% sure how, as it contains glitter. I mean, that may damage my pasta machine rollers, so I may need to only roll by hand when I’ve used this alcohol ink. I might find other uses for the other supplies. I was thinking of starting up simple card making again. Now my past self is laughing and telling me “No!” in a firm voice at the same time, but I’ve already decided not to invest any more money into it. If I can’t do this at all, that’s €4,95 wasted, but some people at the day center may still be able to use my supplies.

If we were having coffee, I’d share that I’ve been loving coming up with some ideas for my polymer clay. I’ve also been watching a lot of YouTube tutorials. I’m still not actually crafting much, but that will hopefully change soon, as I managed to blend three different intensities of the same color green that I intend to use for a unicorn. Let’s hope this unicorn turns out great!

If we were having coffee, I would share that I really need to mind my food plan again soon. I am still just overweight as opposed to obese, but I do need to watch out that my weight isn’t creeping back up. On Monday though, my sister and her family will be here for a belated birthday visit and we’re going to order pizza I think. That will be the fourth time in a month that I’m either eating at a restaurant or ordering takeout. After that, I’ll seriously watch my diet. I’m already trying to make sure I’m not having too many treats. For instance, yesterday I was hungry mid-afternoon and decided to have some carrots rather than going for my licorice. I think that counts for something.

If we were having coffee, I would resist the urge to rant about my appointment with my psychiatric nurse practitioner and the care facility’s behavior specialist on Tuesday. It was really frustrating, but I’m not ready to share the details. I would instead refill your cups and ask you how you are.

The Wednesday HodgePodge (July 20, 2022)

Posted on by Astrid

Hi everyone. I haven’t posted in a few days, because I was too tired from the heat. It’s still quite hot here, but I feel okay now. Today, I’m joining the Wednesday HodgePodge. Here goes.

1. Last time you drove more than 100 miles from your home? Where did you go?
I don’t drive, but I’m assuming riding in the passenger seat counts too. That being said, the last time my husband drove more than 100 miles with me in the car, was probably eight years ago when we went on a short vacation to the Black Forest in southern Germany. We drove in our Kia Rio, which we later found out deserves its acronym, “killed in action”, because shortly after that trip, the car crashed on the highway and my husband could just about move it onto the shoulder before it completely malfunctioned. We thought we had the problem fixed, but it developed the same problem that had caused it to crash back then again half a year later. Needless to say we sold that car. We’re thinking of going back to the Black Forest this September, but my husband has a really small car now, so he might want to replace that one first.

2. Something that drives you batty?
WordPress’ ever-increasing number of ads on free sites. I hope at least that, since I have a paid plan, they aren’t displaying on mine.

3. Do you feel like you’re “on track”? For what?
In my blogging life, I don’t feel as though I’m “on track”, but maybe that’s just my feeling. I mean, I really would’ve wanted to write at least as much this year as I did in 2021 and, up till the month of June, I was keeping up nicely. Now though, I’m not.

Similarly, I have a ton of craft projects waiting for me to finish them. Not that there’s a timeline for those to keep track of, but it does sort of feel as though I’m losing track anyway.

4. Your favorite car snack(s)?
Licorice and winegums (gummy candies).

5. Something you’ve done recently “on the fly”?
Nothing really. I plan most of my activities at least some time in advance. That being said, I do buy things impulsively at times. Does that count? In that case, going to Action (a budget store) in town and buying some random craft supplies last Monday. The trip into town was planned, and I had sort of planned to go to Action too, but I hadn’t planned to buy any of the things I ended up buying.

6. Insert your own random thought here.
Yesterday, I had a review with my nurse practitioner from mental health and the behavioral specialist from my care facility. I could rant about it here, but I’m not going to. Instead, I’m going to say that, after it, I finally concluded that, screw it, I’m ready to face whatever it takes to get real help for whatever it is I’m facing mental health-wise, be this trauma-related or a personality disorder or whatever.

Gratitude List (May 6, 2022) #TToT

Posted on by Astrid

Hi everyone on this first Friday of May. My husband and I always count the days from May 4 till May 8 as special days. May 6 is only special because Pim Fortuyn, a Dutch politician, was murdered on this day in 2002. Not really a cause to celebrate. Nonetheless, I’m doing a gratitude list today anyway. As usual, I’m linking up with Ten Things of Thankful (#TToT). Here goes.

1. I am grateful for a good talk with the behavior specialist on Tuesday. She was really understanding of my wish to eventually find a more suitable care home.

2. I am grateful I finally had a face-to-face meeting with my community psychiatric nurse again after several months. She’d been off work for a while and, before that, I had COVID and had to talk to her on the phone. I am so glad she’s back!

3. I am grateful my nurse practitioner called me on Tuesday, after I’d E-mailed him on Monday evening because I’d been in crisis. We will soon be planning a meeting with the behavior specialist too so that my nurse practitioner can get a more complete picture of my mental health.

4. I am grateful my husband’s car didn’t need replacing or repairing after all. The financial setback I mentioned last week, was related to his car. It made a weird sound, which could be the oil level, but could be a lot of other things, likely to be very expensive to repair. My husband was considering trading in the car if it wasn’t the oil level. Thankfully, that’s what it turned out to be.

5. I am grateful the store I bought the headphones at (the ones that stopped working after two weeks) finally sent off the headphones to the manufacturer. It took my staff making a phone call on Monday for them to send them out and another phone call for them to confirm they’d actually been sent out, but now I’m hoping they’ll be fixed soon.

6. I am grateful I am still allowed to borrow the headphones the Care Lab loaned us before I even originally ordered the ones that stopped working. You normally get to only keep products on loan for like a month or so, but the staff said they’d contact the Care Lab.

7. I am grateful I was allowed to go into the nearby care home’s garden to photograph their tulips yesterday. They are beautiful! I had been wanting to photograph them all week, but hadn’t been able to find the right time of day either sunshine-wise or with respect to being able to ask the staff whether I could enter their garden.

8. I am grateful for home-cooked macaroni this evening. It was delicious! Yesterday, I also had some leftover macaroni that we still had in the freezer from the last time we’d cooked it.

9. I am grateful for some crafty inspiration again. I finally did a little crafting today.

10. I am also grateful I finally seem to be in a reading groove again. I have truly been enjoying my young adult novel, Thrive. This is the final installment in the Overthrow trilogy and it’s been out for a year already, but because its prequel was a bit disappointing, I didn’t get to reading this one.

What have you been grateful for lately?

Sharing this post with Flower of the Day too because of the tulip picture.

#WeekendCoffeeShare (April 24, 2022)

Posted on by Astrid

Hi everyone on this last Sunday afternoon of April. Can you believe that we’ll be in May this time next week already? I certainly can’t. The weather’s okay: sunny and about 16°C. I can’t wait for higher temperatures though. Anyway, I’m joining #WeekendCoffeeShare today. I haven’t had my afternoon coffee yet, but am likely going to take a break while writing this post to have it. You can have a cup as well. The staff are also trying to get me to try some type of drink that sounds much like what Americans call Kool-Aid: a powdered substance (sugar-free or so I’m told) that you add to cold water and that then creates the flavor of juice. I’m pretty sure I’d prefer plain water though. Anyway, we have this stuff in the apple-flavored variety, so if you’d like a drink of that, get yourself one. Let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that this week, I’ve been experiencing quite the rollercoaster ride of emotions. Due to a number of triggers, I got to doubt once again whether I want to stay in my current care home forever and, on Thursday, I more or less decided that I at least want to discuss the possibility of looking for another place. I have no idea whether a voluntary move is even possible and it’s certainly not something I’m looking to decide on quickly. My assigned home staff E-mailed the behavior specialist and manager to see if they can discuss the possibilities and process with me.

If we were having coffee, I’d share that I also experienced quite a bit of emotional dysregulation recently. I am having some major flashbacks and identity confusion. It looks like a new factive alter (an alter based on a real, outside person) may have formed recently.

If we were having coffee, I’d tell you that tomorrow, I’ll finally be discussing lowering my antipsychotic dosage with my nurse practitioner. I’ll most likely take the first step sometime in early May. Even though I’m not feeling at my best right now, I want to move forward with it.

If we were having coffee, I would share that I did enjoy doing some polymer clay work recently. Mostly, I just mixed colors. Like I said before, last week, I got the Fimo Professional true colors six-pack, which comes with a mixing chart, from the day center. I love it! My mother has her birthday on Thursday and I’m fully intending on making her a tulip out of polymer clay with all colors I mixed myself.

If we were having coffee, lastly I’d share that I went to Lobith yesterday. It was good being with my husband once again. We got Domino’s pizza and had orange tompouces (a Dutch-specific pastry) in honor of King’s Day on Wednesday. This morning, my husband went out to the local bakery to buy us croissants. Yum!

How have you been?

Gratitude List (April 16, 2022) #TToT

Posted on by Astrid

Hi all on this Saturday before Easter Sunday. I have no idea whether English-speaking people have a word for this Saturday. In Dutch, it’s called “silent Saturday”. I’m having a relatively good day. I thought I’d do a gratitude post once again. As usual, I’m joining in with Ten Things of Thankful. Here goes.

1. I am grateful for physical therapy. The physical therapist came by twice this week. Once for my back, which had been planned already. The second time, she came by for bad pain in my right calf. It had been going on for a few days, so really I could’ve told her the first time, but it wasn’t so bad then. Thankfully, after some massaging and a bit of exercising, the pain is almost completely gone now.

2. I am grateful for a good nurse practitioner’s appt on Monday. It was really validating.

3. I am grateful for some distractions from anxiety in the form of polymer clay color mixing. I created some really cool colors.

4. I am grateful my day activities staff ordered the true colors six-pack of Fimo Professional polymer clay, which includes a color mixing chart, as well as large packs of white, Indian red and brilliant blue Fimo Soft polymer clay. (With white, Indian red, brilliant blue and sunflower yellow, which I already had, you can create the colors from the recipes I bought.) The best part is, the day center actually pays for it!

5. I am grateful the Fimo Professional isn’t as crumbly as it was when I last used it. It was actually a bit on the soft side, but still useable.

6. I am grateful for a good Easter lunch yesterday (or should I say Good Friday lunch then?) at the day center.

7. I am grateful for sunshine today and most of the week. Only yesterday was a bit of a cold and cloudy day.

8. I am grateful my computer accepts USB sticks and external hard drives again for now. It for a long while would crash when I fed it a USB stick or hard drive through the USB port. Now, I was able to put both my external hard drive and a USB stick into the USB port without problems. Unfortunately, my wedding pictures aren’t on my external hard drive, like I’d hoped, but I was able to locate some old documents and transfer them into my OneDrive.

9. I am grateful for renewed energy. I decided to have a nap this afternoon and feel so refreshed.

10. I am grateful I won’t be kicked out of the care facility. I’m horribly scared of this again after some recent events, but my staff reassured me.

11. Bonus thankful: I am so grateful for Jesus! It is Easter tomorrow, so I can’t leave this post without mentioning Christ.

What are you grateful for?

#WeekendCoffeeShare (March 18, 2022)

Posted on by Astrid

Hi everyone. I’ve been neglecting my blog a bit as other creative passions take over. I really need to remedy that. Today, I’m once again late writing a post, as it’s nearly 9PM. At least I’m writing something. I’m joining in with #WeekendCoffeeShare. As you can imagine, it’s rather late for coffee for my liking, but I bet we still got soft drinks in the fridge. I allowed myself a Dubbelfrisss this evening. I normally skip them, as they’re not 100% sugar-free and I’d rather have an extra piece of candy than this. Today though, I gave myself permission for both some licorice and the Dubbelfrisss. Anyway, Dubbelfrisss is only slightly carbonated, but we might have coke too or even alcohol-free beer (alcohol isn’t allowed here). Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that I had a good appt with my psychiatric nurse practitioner on Monday. Last week Friday, I had had a panic attack. It was related to the war in Ukraine and fear of what might happen, which I realized at my appt is different from a flashback to a traumatic experience I really did go through in the past. Not that it really mattered in that moment, as the feeling was just as overwhelming.

I also linked the panic attack to the staff who had triggered me and, since this staff is new, I felt really anxious about the whole situation of allowing him to work with me one-on-one. Thankfully, once it got to this point, we were able to talk through the issue and let it go that way. And indeed, this staff’s first time working one-on-one with me went pretty well if you ask me.

If we were having coffee, I’d tell you that, on Wednesday, I cooked the best chicken pilav! I did most of the cutting of the vegetables myself (the chicken was pre-cut) and also most of the cooking. We had my favorite rice with the pilav too!

Chicken Pilav

If we were having coffee, I’d also tell you that I’ve been taking more flower photos. I finally started actually snapping the pictures myself most of the time rather than letting my staff do most of the actual photographing. Of course, my staff still have to tell me where to point the camera. It’s cool that I can make use of my knowledge of photography, gathered from photography blogs of course, to help the staff figure out ways to help me take better pictures.

I’ve also been running a few of my photos through a plant identification app called PictureThis. The one below is a Chaenomeles Japonica.

Chaenomeles Japonica

If we were having coffee, lastly I’d tell you that yesterday, I decided semi-impulsively to go to Action to try to find macrame cords. Obviously, experienced macrame artists would say I should get high-quality cords, but I’m just trying to get a hang on the knots. The lark’s head knot, square knot and spiral knot are relatively doable after some practice, but I keep getting stuck on the half hitch knot (and don’t even get me started on its variations). I mean, when I saw a beginner tutorial with pictures, it sounded a lot easier than I thought it should be. That tutorial was doing the half hitch knot with just two cords, which all other tutorials show isn’t possible. I’m pretty sure I spent some significant time tying just plain ordinary “old bitch knots”, as my husband would likely call them.

With respect to my shopping spree at Action, I also ended up buying a lot of felt stickers that I now don’t know what to use them for, a new organizing box that I may not even be able to use yet, deodorant, butterscotch candies and probably more. I spent less than €10, but that’s also because my staff paid for the macrame cord and the felt stickers from day center budget.

How have you been?

#WeekendCoffeeShare (February 19, 2022)

Posted on by Astrid

Hi everyone on this gloomy Saturday evening. I’m joining #WeekendCoffeeShare today. I’m right between my dinner and my evening coffee and I cannot offer you a drink other than water right now, as my staff is busy and I don’t want to leave my room. I’ll get to that bit later. So, can I get you a drink of water? Otherwise you’ll have to wait until my staff returns. Anyway, let’s have a chat.

If we were having coffee (or water, in this case), I’d share that we’re quarantining right now, as four or five of my fellow clients are positive for COVID. Four are confirmed and the fifth one can’t be tested but is treated as having COVID too. I took a lateral flow test right after dinner this evening and so far I’m still negative, as are the four other clients supported by the same staff as me outside of my one-on-one hours.

This is the reason the staff are busy, with the staff who care for the COVID-positive clients having to wear PPE and the other staff having to remain out of these clients’ way. It is all rather chaotic.

If we were having coffee, I’d share some of my new clay creations with you too. Like I think I said yesterday, I finally created a cactus on Monday evening.

Polymer Clay Cactus

Then on Wednesday, I created my second-ever polymer clay cane. This one I did using a heart-shaped cutter for the image. I managed to do the reducing all by myself! Then I had my staff cut it into slices, which we then made into beads.

I also created several possible charms to go with these beads. One is a heart which I do kind of like. The other was a unicorn, but I threw that one away. I now only need to make more beads, because, even though I have more than just the four beads shown in the picture above, I don’t have enough for a necklace.

If we were having coffee, I’d share that, this afternoon, I have been experimenting with photo editing and meme making again. I didn’t have any success, of course. I mean, I found a photo editing app called Snapseed, which is relatively accessible with VoiceOver, but the one thing I wanted to do, ie. add text to an image, was not. That is, I couldn’t for the life of me figure out how to enter the text I wanted to add onto the image.

The result of all my experimenting is that now I have eight apps in my Photography folder on my iPhone rather than the four I used to have. And those four already seemed excessive, being that, besides the camera and default photos app, I only use one out of the two image recognition apps I have. Oh well.

If we were having coffee, I’d share about my nurse practitioner’s appointment on Thursday. I am so thankful we were still allowed to leave the home back then, because the appt was really productive. With respect to my new medication, the pregabalin, my nurse practitioner recommended I wait and see another two weeks before concluding it’s ineffective for my anxiety. We discussed my anxiety in a little more depth and also for the first time in a long while went into my diagnosis. He actually said he believes my diagnosis is DID (dissociative identity disorder) or at least some variation of it (ie. other specified dissociative disorder). I quickly talked over it saying it doesn’t really matter, as I know firstly he can’t diagnose me (but then again the psychiatrist can) and secondly I still haven’t had the extensive assessment required for a DID diagnosis in most places here in the Netherlands. That being said, it felt so good to be validated like this! My nurse practitioner also finally will make room for us to discuss my flashbacks at a later appt. He said the reason he didn’t go into it right then was the limited time left in our appt, but he’d definitely like to discuss it with me. That feels kind of weird, but in a good way.

If we were having coffee, lastly I’d share that I’m so glad the storms are finally over. Last Wednesday night, I hardly slept at all due to the high winds. Thankfully, last night and the night before that were better. My husband’s and my house did suffer some damage to the roof though. Hopefully insurance will be able to cover the cost of getting it repaired.

How have you been?