Gratitude List (February 27, 2022) #TToT

Posted on by Astrid

I’m late posting a gratitude list this week, but better late than never, so here goes. As usual, I’m joining in with Ten Things of Thankful.

1. I am grateful my seven fellow clients who had COVID, are all symptom-free now.

2. I am grateful the two others stayed negative.

3. I am grateful that, even though I’m not 100% symptom-free yet, I am not very sick with the virus either.

4. I am grateful for more licorice. A staff brought me some salmiac licorice this afternoon. I wouldn’t normally buy it for myself, but I did enjoy it this time.

5. I am grateful for raspberries. The same staff also brought me some of those. I am also grateful for other fruit, such as grapes and bananas.

6. I am grateful I have been able to indeed allow myself some much-needed rest over the weekend.

7. I am grateful I found an essential oil blend with sweet marjoram in it that I actually like. I’d used it in two other blends that I hated, but in both of those, I’d also used Roman chamomile. I don’t normally mind that – it’s not a favorite scent either, but it’s not disgusting -, but the combination was truly terrible.

8. I am grateful my music pillow still works after I got its cord stuck between the caster wheels of my chair. I was a bit scared I might damage my phone if I plugged the cord with possible invisible damage into it, but then I realized it isn’t connected to a power source.

9. I am grateful I didn’t gain any weight while snacking on lots of treats over the past couple of days. In fact, I lost about 0.5kg.

10. I am grateful for green tea. And for staff willing to bring me hot water early in the morning before my one-on-one comes on so that I can make the green tea. I do realize it costs them more time to put on their protective clothing etc., so I try not to request help outside of my assigned one-on-one support, but when I wake up at 7AM, it’s just too hard to wait till 8:30AM.

11. Bonus thankful: I am so intensely grateful to live in the Netherlands. I am not a political blogger and refuse to discuss world news really. Quite honestly, it scares me. However, I am so thankful that I live in a free and safe country.

What are you thankful for?

Allowed to Rest #SoCS

Posted on by Astrid

SoCS Badge 2019-2020

Like I’ve said multiple times over the past week, I’m self-isolating with COVID right now. Today is day four of my five-day mandatory quarantine. I have taken each day as an opportunity to stay in pajamas, because I didn’t feel like getting dressed now that I wasn’t allowed to leave my room anyway. That being said, taking my much-needed rest, has been more of a struggle.

Both on Wednesday and this morning, I was up in the middle of the night really, or early morning, depending on your perspective. On Wednesday, I was up by 3AM and couldn’t sleep. Today, I could stay in bed till 4AM. The other nights, I managed to sleep for at least ten hours, sometimes twelve.

It isn’t that I’m not tired, really. Or maybe I’m not, but it does feel kind of like I am. However, my brain won’t shut off. It’s like my body is exhausted and in need of rest, but my mind continues to tell it to carry on. It isn’t even my brain. Well, you know, my mind is in my brain too, but I mean, it isn’t that I’m not cognitively tired too. But I keep beating myself up over it.

Then again, if I can allow myself not to get dressed, why can’t I allow myself to lie in bed and sleep this whole thing off? I can’t force myself to sleep, of course, but I can try to get some rest. Instead, I’m writing this mindless blog post. Thanks for reading! I’m allowed to rest now. Or read what the rest of you have to say.

This post was written for Stream of Consciousness Saturday, For which the prompt today is “Rest”. I just realized that, in my second-last sentence, “you” is a better fit than “I”, but editing is against the rules. Oh well.

Joy in February

Posted on by Astrid

Last month, I shared my one word for 2022: JOY. Today, I want to share an update on how I’ve been doing with this one word. I am joining the Word of the Year link-up, which I didn’t join in with last month (because I didn’t see it on time to join in), as well as Lisa’s One Word linky.

Overall, I’ve been doing pretty well remembering my word for the year and seeking joy in the ordinary moments. I didn’t experience any mind-blowingly delightful moments, but I did enjoy the everyday.

In particular, what I’m happy about, is that I found joy in the treats I could have every now and again now that I’m on a healthy food plan and don’t allow myself to indulge in whatever I please. Now that I have COVID, I’ve ditched the diet and am more or less allowing myself to eat what I want, but I’m still not overeating, thankfully. I mean, I have a bag of licorice on my table (under the guise of it helping with sore throat, which I don’t even have right now), which I could’ve eaten all in one sitting had I not been mindful. Instead, I am truly savoring each sweet.

I also enjoyed my creative hobbies quite a bit over the past month. Though in this respect, I still look to improve myself, I can still find joy in the mere act of creating. Earlier this week, I found intense joy in my first polymer clay color mixing experiment.

Because I sometimes struggle to find the energy to start “larger” activities such as polymer clay, I also asked my day activities staff about some easier to get started activities. She brought me a simple game with a board and insertable small pieces in different colors. I have been enjoying doing this activity with my staff or alone.

Lastly, I didn’t see my husband a lot over the past month, but I did enjoy speaking to him on the phone and texting him everyday. I obviously won’t say that seeing him less made me appreciate his visits more, as I wish we could have seen each other each week. However, it definitely was a lesson in enjoying the ordinary and delighting in the extraordinary.

Finally, both my husband and mother-in-law have been very sympathetic now that they know I have COVID. I am truly grateful for both of their thoughtful text messages. I also was positively surprised to get a call from my sister as soon as I posted about my positive COVID test on Facebook early Wednesday morning. You might think that the fact that I was surprised, means I view her negatively, as I assume most people expect their family to sympathize when they have COVID. While I admit this is in part true, I also think I shouldn’t take sympathy for granted.

The COVID Chronicles, #2: Just a Bad Cold (In My Case)?

Posted on by Astrid

I didn’t write a blog post yesterday, because I was too tired. Other than that though, COVID seems to be treating me relatively well. On Wednesday and yesterday, I was horribly sneezy and, by yesterday evening, I started coughing and having a sore throat. That seems to be gone now though. I’m still a little sneezy and sniffy, but other than that, I feel okay. It’s still morning, of course, and my symptoms tend to worsen by mid-afternoon and into the evening.

Yesterday afternoon, I was going to have a lie down, but couldn’t really give in to the need for rest. I still have this weird thought, instilled in me since childhood, that, if you have a fever, you’re sick and if you don’t run a fever, you’re not sick. My staff took my temperature yesterday and I didn’t even have a slightly elevated temp.

Of course, I am lucky that I don’t have a fever. My sense of smell and taste are also mostly still normal. Or almost as normal as they would be with an ordinary case of the common cold anyway. Water did taste slightly bitter yesterday, which sucks, since I do of course need to stay hydrated. Now, it’s back to tasting okay. I can even have coffee and enjoy it, something my staff who had COVID recently said took a while for her. Overall, I’m pretty confident that, if I do get enough sleep, I’ll be symptom-free enough to get out of isolation by Monday when the five-day required quarantine is up.

As for my fellow clients, four out of the original five who contracted COVID last week, went back to the day center on Wednesday. The fifth one is still rather poorly. I’m praying he’ll make a speedy recovery too. One client, the one I had the nightmare about earlier, will be out of quarantine tomorrow or so I think. Another is supposed to be quarantining till Monday like me. Two are still negative. I’m praying they’ll stay that way.

The COVID Chronicles, #1: The Two Red Lines on the Reddest Day

Posted on by Astrid

Yesterday was February 22, 2022. In the European way of writing the date, it was a palindrome: 22-02-2022. Not only that, but we won’t get any more twos (or the same numbers at all, for that matter) in a date in our lifetime. The number two is red in my synesthetic perception. How ironic that, on this day, I got the two red lines on my COVID test. Oh well, I got the PCR test, not the self-administered lateral flow test, so no red lines at all, but you get the idea. Yes, you read that right: I’m positive for COVID now.

I had the PCR test at around 11AM. Before then, I was feeling mostly fine. Well, I wasn’t feeling 100%, but I hadn’t since Thursday and my two lateral flow tests had been negative. I trusted those, sort of. Then, I started having teary eyes, but both the staff and I attributed that to the test. I still had a headache, but no more severe than I’d had since Thursday.

By mid-afternoon, I was having trouble not sniffing a lot, but was still in denial. After all, the thought of my staff having to wear PPE, my inability to be in close physical contact and my need for five more days in self-isolation triggered me.

By 4PM, my assigned home staff came on. She had had COVID a week ago and we started joking that she wanted me in the positive camp. By this time, I was truly experiencing significant sniffiness, so if it wasn’t COVID, it certainly was a bad case of the common cold. I also had a bad headache and what I jokingly called COVID brain, ie. an inability to find words (I just had trouble finding the word “find”), etc. I think it’s an actual thing though.

The evening staff came by my room at 9:15PM, but I was too busy to notice she was wearing PPE. I finished what I was doing and turned to face her. She told me calmly that, sadly, I have COVID.

I didn’t sleep much at all last night despite taking paracetamol before bedtime. In fact, I awoke at 3:15AM and couldn’t get back to sleep. Despite this, I’m not feeling very fatigued as of yet. As such, I consider myself really lucky that I seem to be having a mild case of the virus.

An Interesting Nightmare

Posted on by Astrid

I had an interesting nightmare last night. It wasn’t even really a nightmare in the traditional sense of the word. I mean, no violence or monsters were involved. Then again, most of my nightmares don’t involve that kind of scenario.

In my dream, the last client to contract COVID in our care home, came into my room and went straight to my bed while I was lying in it. I tried to crawl to one end to keep my distance, because of course getting out of bed would mean getting stuck touching her. I eventually managed to press the call button, but no-one came. Finally, this client left, but I was utterly distressed and tried to press the call button again, but to no avail. I then went out of my room and to the living room, even though I’d decided to stay in my room while more than half of my fellow clients are positive for COVID. Then, one of the care assistants, a woman I’ve only met briefly once or twice, came to my room to have breakfast with me (apparently it was morning), but I asked for the morning staff. The care assistant explained that the staff was busy and she was having breakfast with me instead. Then I woke up.

The nightmarish aspect of the dream was, in part, the fact that a client with COVID came into my room and my bed. This to me signifies how scared I am of contracting the virus, even though I keep saying there’s no surefire way to prevent it anyway and I’m not scared of getting very ill. I am, however, quite honestly, pretty scared of the consequences of room-based self-isolation should I be positive. I mean, I’m now basically in room-based self-isolation too, but my staff don’t have to wear PPE other than surgical masks and they can still be within a five-feet distance. I’m not sure about holding my hand or holding me in an embrace, as I’ve been cautious and haven’t asked, but I know from the times I had to self-isolate with suspected COVID last year and in 2020 that those are big no-nos should I be positive. At least, my staff wouldn’t even get within a five-feet distance even while wearing PPE then.

Another aspect that was nightmarish to me, was the fact that the unfamiliar care assistant ended up helping me rather than my trusted staff. This to me signifies how I’m experiencing attachment to this staff, and she wasn’t even my assigned home support worker or another of my favorite staff. I guess this counts as a win!

Lastly, a nightmare aspect was the fact that the care assistant told me that the staff was busy. I am forever frustrated with staff being overworked and busy and at the same time, I’m trying to accommodate them as much as I can. For example, yesterday the staff (same one who was supposed to come in my dream) forgot to come by my room at 3:15PM when she had finished handover. At 3:45, fifteen minutes before my one-on-one time would start, I’d had enough and pressed the call button. I was really frustrated, thinking that I’d be left to my own resources now that over half of the clients have COVID. That would make sense, rationally speaking, since I’m not sick or whatever. Not that the other clients are very sick, but oh well. As it turned out, the staff had forgotten to show up because she hardly ever works late shifts. This, plus my nightmare, does show how easily I think that I’m being abandoned.

Sharing this post with Scott’s Daily Prompt from last Saturday on the topic of nightmares.

Sunday Ramble: Technology and the Future

Posted on by Astrid

Hi all. I’m feeling kind of off today. I’m not sure it’s all in my head or I’m suffering with the early symptoms of a mild case of COVID. I haven’t had another lateral flow test, as I don’t feel worse than I did yesterday – in fact, I feel slightly better. On Tuesday, I’ll have a PCR test, so unless I develop really telling symptoms, none of which I have so far, I’ll wait and see until then.

Anyway, for my blog post today, I’m answering E.M.’s Sunday Ramble questions. Her topic for this week is technology and the future. Here are her questions.

1. Are there any applications on your mobile device, tablets, etc. that you cannot live without? Feel free to ramble about them! Maybe we will learn new apps that will become important in our own lives.
I am going with the more unusual apps here, as I doubt I’ll be inspiring anyone else to download Facebook or a web browser (I use Edge even on my iPhone, by the way) if they haven’t already. Apps I truly love on my iPhone include the diary app Day One. I previously reviewed Diarium, another diary app, but have since gone back to using Day One mostly because it allows me to have multiple diaries.

Other apps include MyNoise, an app that allows users to select soundscapes, the task management app Microsoft To Do and Seeing AI, an app that describes images. It most recently guessed my age in a photo to be 44 though. 😒 Admittedly, I pulled a rather odd face in a forced attempt to smile. And just so you know, no, I’m not going to post the photo here. 🙂

2. Do you prefer Apple or Android?
Apple for sure! It is far more advanced with respect to accessibility for the blind.

3. Windows OS or MacOS?
Windows. I tried a Mac some years ago, thinking it’d be easy to use with my being an iPhone user already, but I couldn’t get used to it. The only advantage of MacOS is that it comes with a built-in screen reader, like iOS. For Windows, you have to buy (or get insurance to pay for) JAWS.

4. What do you wish that you would have placed in a time capsule 15+ years ago to have access to now?
I answered a similar question already on another blog a few weeks back: I’d bring back the disability-related story-sharing websites we had in the early 2000s, like Tell-Us-Your-Story.com. I also would’ve put Diaryland’s diaryrings into the time capsule, but then I’d have hacked the concept and applied it to today’s blogs. Webrings are cool! I think the concept still exists, but hardly anyone participates nowadays.

5. When you think of the what the world will look like 50 years from now, what does that future look like through your eyes? Go as sci-fi and/or fantasy as you would like and ramble on however you wish to ramble When you think of the what the world will look like 50 years from now, what does that future look like through your eyes? Go as sci-fi and/or fantasy as you would like and ramble on however you wish to ramble.
I have absolutely no idea. I did a post on this topic some six years ago on my old blog, but I mostly focused on what my life would be like when I was in my late seventies. I really hope that image description and the like will be very much improved, so that the blind will be able to “see” this way. There already are glasses, such as the Orcam or Envision Glasses, which will describe things a person is looking at. I haven’t tried those, but if they evolve more, and they likely will, I’d love to try those someday.

What do you wish you could’ve put into a time capsule to take with you from 15+ years ago?

#WeekendCoffeeShare (February 19, 2022)

Posted on by Astrid

Hi everyone on this gloomy Saturday evening. I’m joining #WeekendCoffeeShare today. I’m right between my dinner and my evening coffee and I cannot offer you a drink other than water right now, as my staff is busy and I don’t want to leave my room. I’ll get to that bit later. So, can I get you a drink of water? Otherwise you’ll have to wait until my staff returns. Anyway, let’s have a chat.

If we were having coffee (or water, in this case), I’d share that we’re quarantining right now, as four or five of my fellow clients are positive for COVID. Four are confirmed and the fifth one can’t be tested but is treated as having COVID too. I took a lateral flow test right after dinner this evening and so far I’m still negative, as are the four other clients supported by the same staff as me outside of my one-on-one hours.

This is the reason the staff are busy, with the staff who care for the COVID-positive clients having to wear PPE and the other staff having to remain out of these clients’ way. It is all rather chaotic.

If we were having coffee, I’d share some of my new clay creations with you too. Like I think I said yesterday, I finally created a cactus on Monday evening.

Polymer Clay Cactus

Then on Wednesday, I created my second-ever polymer clay cane. This one I did using a heart-shaped cutter for the image. I managed to do the reducing all by myself! Then I had my staff cut it into slices, which we then made into beads.

I also created several possible charms to go with these beads. One is a heart which I do kind of like. The other was a unicorn, but I threw that one away. I now only need to make more beads, because, even though I have more than just the four beads shown in the picture above, I don’t have enough for a necklace.

If we were having coffee, I’d share that, this afternoon, I have been experimenting with photo editing and meme making again. I didn’t have any success, of course. I mean, I found a photo editing app called Snapseed, which is relatively accessible with VoiceOver, but the one thing I wanted to do, ie. add text to an image, was not. That is, I couldn’t for the life of me figure out how to enter the text I wanted to add onto the image.

The result of all my experimenting is that now I have eight apps in my Photography folder on my iPhone rather than the four I used to have. And those four already seemed excessive, being that, besides the camera and default photos app, I only use one out of the two image recognition apps I have. Oh well.

If we were having coffee, I’d share about my nurse practitioner’s appointment on Thursday. I am so thankful we were still allowed to leave the home back then, because the appt was really productive. With respect to my new medication, the pregabalin, my nurse practitioner recommended I wait and see another two weeks before concluding it’s ineffective for my anxiety. We discussed my anxiety in a little more depth and also for the first time in a long while went into my diagnosis. He actually said he believes my diagnosis is DID (dissociative identity disorder) or at least some variation of it (ie. other specified dissociative disorder). I quickly talked over it saying it doesn’t really matter, as I know firstly he can’t diagnose me (but then again the psychiatrist can) and secondly I still haven’t had the extensive assessment required for a DID diagnosis in most places here in the Netherlands. That being said, it felt so good to be validated like this! My nurse practitioner also finally will make room for us to discuss my flashbacks at a later appt. He said the reason he didn’t go into it right then was the limited time left in our appt, but he’d definitely like to discuss it with me. That feels kind of weird, but in a good way.

If we were having coffee, lastly I’d share that I’m so glad the storms are finally over. Last Wednesday night, I hardly slept at all due to the high winds. Thankfully, last night and the night before that were better. My husband’s and my house did suffer some damage to the roof though. Hopefully insurance will be able to cover the cost of getting it repaired.

How have you been?

Gratitude List (February 18, 2022) #TToT

Posted on by Astrid

Hi all again. I am feeling in the mood for a gratitude post. It doesn’t mean I’m necessarily feeling upbeat – not too downcast either, thankfully. Oh wait, I hadn’t started my gratitude list yet. I’m just inspired to write one. As usual, I’m joining in with Ten Things of Thankful. Here goes.

1. I am grateful I’m negative for COVID so far. The virus finally reached my care home, as several clients tested positive yesterday. Thankfully though, my lateral flow test was negative yesterday and I’m not having symptoms suggestive of COVID at this point.

2. I am grateful for a great essential oil blend in my diffuser right now. I put lemon, tangerine, orange and spearmint in it and it smells truly delicious.

3. I am grateful for a good nurse practitioner’s appt yesterday. I was still allowed to leave the home yesterday to go to my appointment and it was really productive. My nurse practitioner validated my experience of dissociation and we were able to talk some about my anxiety too. We will discuss my flashbacks separately later.

4. I am grateful to be indoors. It’s storming outside and I’m so happy I don’t have to leave the home. Not that I’m allowed to now that the official positive PCR test results are in for my fellow clients, but oh well.

5. I am grateful for relatively cheap quark. I usually have that with my muesli for breakfast now, but yesterday used up the last few spoonfuls. However, a staff offered to buy new quark at her local supermarket. She got 1kg for €1,28. At the supermarket my care facility order from, they only have the 500g cans for €1,09. Not that I personally have to pay for my quark, but I don’t want the facility to have to pay €1,09 on a can I cannot even get three breakfasts out of.

6. I am grateful to have been able to be very crafty lately. I think I already mentioned creating the polymer clay narwhal last week. This week, I created another couple of things. Can you guess what this is supposed to be? About half my staff guessed it correctly and the others didn’t.

7. I am grateful for bananas, plums and grapes. Somehow, the staff had forgotten to order bananas last week, but thankfully, the care home next to mine was able to give us two on Wednesday. Yum! Then on my way home from my nurse practitioner’s appt yesterday, we stopped by the supermarket for some more fruit. We got plums and grapes. The plums were surprisingly sweet.

8. I am grateful for free audiobooks. Or one free audiobook, at least. I haven’t started listening to it yet, but the first book in one of Blake Pierce’s series is free even as an audiobook. I loved reading the first book in the Riley Paige Mystery series, even though I haven’t read any of his other books. This is the first installment in another series. Free stuff is always great and, now that iOS is giving me a headache working with my Braille display, I’d love to give audiobooks a try.

9. I am grateful for peach yogurt. It is the only type of fruit yogurt I really like and I’m so grateful we’ve been having it all week.

10. I am grateful to be alive. After writing my poem this afternoon, I’d just like to say this.

What are you grateful for?

Poem: The Monster

Posted on by Astrid

Sometimes
It screams
Loudly
Telling me
To give up once and for all

Other times
It whispers
Softly
Luring me
To take that final step

Sometimes
It seems silent
Just for a little while
But it always returns
The monster
Wanting me to die

This poem was written for Friday Writings #14, for which the optional prompt this week is to write about monsters. I am also joining dVerse’s Open Link. I’ve shared poetry about my depression and recurring suicidal ideation in both linkies before. I often refer to this state as “the monster”, so this theme came to mind when I read the Friday Writings prompt.