April and May 2023 Reflections #WBOYC

Posted on by Astrid

Hi everyone. In April, I didn’t get to post my monthly reflections because I was too busy with the #AtoZChallenge. Today, for this reason, I’m doing reflections for both April and May. I’m linking up with What’s Been On Your Calendar? (#WBOYC).

Honestly, I don’t remember much of the month of April. It was a really busy month in a way with me participating in the #AtoZChallenge on my blog, which I badly wanted to complete despite struggling with my mental health. In other ways though, it was a boring month, in that I hardly got to do anything creative. I also felt like I had to train new staff almost on a daily basis. By this I mean the fact that, almost every day, the least familiar staff member would be assigned to me and they’d be left with just the instruction to follow my day schedule.

I did work on an activity list detailing steps for each activity I usually do, but this unfortunately didn’t bring me closer to actually exploring creative activities with not-so-familiar staff.

In late April, my mother-in-law sent the behavior specialist an E-mail expressing my distress with the unfamiliar staff situation, as well as with the fact that no-one had told me anything about any progress re finding me a more suitable care home. During the month of May, I’ve had some meetings on this topic, but nothing has been decided yet and I’m pretty skeptical anything will be decided anytime soon. That is, unless the powers-that-be decide no place can be found for me.

Thankfully, I did have the #AtoZChallenge to inspire me. I did, for this reason, write 31 posts.

The month of May was a mixed bag in many respects. It was better than April had been on the care front. This did help me feel better, but it wasn’t like I could actually bring my many ideas for activities into action.

In early May, I went clothes shopping with my support coordinator and assigned staff. That same day, another staff also took me to a nearby lake to go for a walk and take some pictures.


I did over the month of May in particular develop some renewed interests, for example in essential oils. I also still want to buy a new blender, so that I can make smoothies again. However, I haven’t yet decided on one specifically.

I went to my spouse’s and my house in Lobith at least twice during the months of April and May. Honestly, my marriage is stronger than ever and I’m so happy about it!

All this being said, in general I very much feel as though my life has been “on hold” over the past few months. Though I did often feel quite inspired, I didn’t know how to put these ideas into action. I can’t completely blame the care home, but the fact that no matter what the staff here do to improve my situation I’ll never trust them not to mess up again, does contribute.

In the health department, I did significantly improve, at least on those measures I know. I lost weight and currently weigh 57.4kg, which is within the healthy range for my height of 1.53m. I also for the first time today got a cardio fitness level of 25 on my Apple Watch, which is in the “below-average” range (until a few months ago, I was consistently in the “low” range). Next month or in July, I’m due to get my annual bloodwork done and I’m kind of worried about that, particularly my kidney function of course. I do overall feel quite healthy though.

Trying to Live a Balanced Life

Posted on by Astrid

This week’s topic for Tranquil Thursday is balance. Maggie’s first question is about work/life balance. Since I don’t work and never have, I can’t speak to that. However, it made me think of the ways in which I need to create a balanced life in general.

I don’t currently have formal day activities. Of course, I have four hour-long activity slots a day, but I can spend them pretty much however I please and sometimes (most times, actually) I feel so uncomfortable with the staff assigned to me that we can’t do more than play a simple card game. I do feel I need to find a balance in my life between being active and passive.

Active, in this sense, does not necessarily mean exercising, although that too needs to happen. I probably don’t need to worry about being extremely sedentary. I fell pretty badly yesterday and still I managed to meet my movement goal on my Apple Watch today. Okay, my goal is just set to 300 active calories, but that’s so that it’s within easy reach even on bad days like today.

What I do mean by being more active is engaging more in stimulating activities such as crafting, food prep such as smoothie making, etc. I also intend to be more active where it comes to actually learning about these topics. I mean, I love copying recipes and experimenting just a tiny bit, but it’d be great if I knew about the science behind them. For this reason, I just downloaded a book off Bookshare on the fragrance aspects of essential oils. How great would it be if I could create my own blends rather than relying on some shady subscription website.

This doesn’t mean I need to be active mentally or physically all day. It’s about balance, after all. I also need to rest. But currently, I feel my life is a bit too much “on hold” for my liking.

Another way in which I need to find balance, which Maggie didn’t ask about, is health. Last week, I agreed with the dietitian on a weight range I need to stay in to maintain a healthy (or near-healthy) BMI and not go overboard with my weight loss. As long as I stay within this range, I am in control of my eating habits. I do need to make sure I don’t slip back into my bulimic tendencies though. I will see the dietitian again in mid-June and will ask her to continue check-ins with me, although they don’t need to be monthly anymore I think. Over the past few weeks, I gained a little weight, but I’m still within the agreed upon range, though I do notice I’m having “cheat” foods more regularly than I’m probably supposed to.

Another question Maggie asked is about your life pie. This is a drawing of a pie divided into six slices for each area of life. You then put dots in each slice to see how well you do in each area and connect them to see which area is relatively unfulfilled. This is a visual exercise, of course, which I can’t do, but it did make me think. My life is most fulfilled in the area of exercise and least, unless you count work (but that’s by societal standards only), in the areas of friends and play. That last one might surprise my staff, as I play card games on a daily basis. However, what I mean by this is truly being creative.

Activities I’ve Enjoyed Lately

Posted on by Astrid

Hi everyone. I’m feeling a bit uninspired, but I feel in the mood for a positive post. Not because I feel particularly good – not very bad either though. I’m going to share some activities I’ve enjoyed lately. Here goes.

1. Yoga. Well, yoga without the fluff. I have been doing physical therapy for a few weeks now to help with my back pain. Though initially it was my enthusiasm for yoga (which the physical therapist casually mentioned) that got the therapist to think I might benefit from it, I soon found out that all the breathwork and need to feel present in my body was rather overwhelming. Instead, last Monday, we just did the exercises and that’s it.

2. Jumping on the trampoline. Today, the physical therapist had managed to borrow a side-by-side bike, so we were able to ride it to the large trampoline on the other end of institution grounds. I initially struggled a bit, but this was mostly due to my staff and the physical therapist trying to support me whilst on the trampoline. Once I started to jump on my own, it went really well.

3. Diffusing essential oils. It’s too bad the site I discovered with literally thousands of blends on it, is probably kind of shady, since you need to pay to get access to the blends (after a week’s trial period). Not that I create new blends everyday, of course, but I just love looking at everything. I did just put one of today’s featured blends into my diffuser tonight. Not sure yet what I think of the smell, but then again it usually takes a while for the scents to properly blend.

4. Playing dice games, particularly Yahtzee. I might try to introduce my staff to some new games soon.

5. Polymer clay, of course. Today, I put the unicorn I mentioned on Monday into the oven. No picture yet, but I did finally photograph the polymer clay ladybug and octopus I created several weeks ago. Here’s the ladybug. I did the main parts using black Fimo, used Premo in the color cadmium red for its scale or wings or whatever the dots are on, and used white Premo for its eyes.

Polymer Clay Ladybug

6. Listening to podcasts. I have been searching for podcasts I might enjoy. For some years, I subscribed mainly to true crime and Christian podcasts, but I’m no longer a believer and true crime honestly doesn’t really speak to me either. Now, I mostly listen to podcasts on healing from trauma, the enneagram and related topics. I also found several on neurodiversity. I particularly loved the SquarePeg podcast.

In addition to these, I love listening to bedtime stories for kids on both podcasts and YouTube. I might someday try sleep stories for adults too, but don’t really see a reason for it as of yet, other than the fact that I’m an adult, that is.

7. Creative writing. This is something I really need to do more often, be it on the blog or in my Day One journal on my iPhone. I really enjoy trying my hand at writing based on prompts or trying different styles of writing. I am not a good creative writer at all, but practice makes perfect, right?

I am linking this post to #WWandPics.

Hello Monday (May 22, 2023)

Posted on by Astrid

Hi everyone. It’s been nearly a week since I touched the blog. Honestly, the week has been less than stellar, but the weekend was lovely. Let me share. I’m joining Hello Monday.

On Friday evening, I finally decided that, screw it, whether I’d get a staff whom I can trust to help me with my polymer clay or not, I wanted to clay. I put my clay box on the chair we don’t normally use, which did mean having to put several things that had been placed on top of the box on the floor. “Why is everything on the floor?” the staff asked me when entering my room. I replied that I wanted to create a polymer clay unicorn. “You do you,” the staff replied.

At first, she seemed rather uninterested and barely did the things I asked her up front to help me with. Eventually though, she did warm up to the idea of us working on a unicorn and she did give me feedback. The unicorn we created – and which I finished on Saturday morning with another staff – is the first one that has wings. It still needs to go in the oven and I intend to add glitter to the wings too.

On Saturday, I finished the unicorn, went for a walk and played a game of dice with a fellow resident here at the care home. Then, my spouse arrived to pick me up to drive to our house in Lobith. On the way there, we went into the carwash (€15 for a mediocre washing!) and got takeout Chinese food.

We had a relaxing evening at home. At around 10PM, my spouse suggested we go for a drive, as the car needed to be moved out of the street. After all, the town fair would be starting on Sunday and there’d be a procession going through our street. I forgot my passport, so we needed to stay in the Netherlands (Lobith is close by the German border). At one point, my spouse suggested we go to Burger King for ice cream, but it was closed. Next question: “Do we drive to Duiven to go to McDonald’s or go home to sleep?” I chose to go to McDonald’s. We each had a McFlurry. I had the Twix one with caramel sauce, which was lovely.

On Sunday, with the car out of the way, we could have a lie-in. I slept in until about 9:30AM.

Several weeks ago, I’d bought white jeans with my staff. I wore them for the first time on Sunday and at breakfast, they had coffee stains in them already. It looked rather gross (I’ll spare you my spouse’s description). For this reason, we decided to go clothes shopping yet again. We, like usual, went to Apeldoorn. I bought darker beige jeans.

We also stopped by Holland & Barrett, a wellness store, to look at nothing in particular. We left with six bottles of essential oils though. Initially, when looking at them, my spouse said: “Just tell me what you want, I’m not going to name them all, as they have everything.” I asked for clary sage. After looking for about ten minutes, my spouse at first concluded they didn’t have clary sage, then started naming some oils: “Clary sage, nutmeg, …” I said: “Clary sage, that’s the one I’m looking for!” I also got vanilla and jasmine oils. Don’t tell me these are usually either absolutes or oleoresins, not essential oils, I know. I am not sure about the quality of Holland & Barrett’s oils, but I don’t use them for any therapeutic benefits anyway. We also got a blend of roses and a blend of wildflowers just because one of my oils was one plus one free and the other was second at half price. Lastly, my spouse got rosemary.

We also obviously stopped by Backwerk to have lunch. I got a sausage roll.

In the evening, I started looking all over the Internet for blends to try with my new oils. Of course, I had had clary sage before, so only vanilla and jasmine were new, but I love all the possibilities. I created a blend in my diffuser this morning: equal amounts clary sage, vanilla, sandalwood and frankincense. This evening, I joked to my spouse that the blend made me high, because it’s so very calming. I love it though!

Hello Monday (April 3, 2023)

Posted on by Astrid

Hello everyone. I’m joining Hello Monday again this evening. Let me share about my weekend.

On Saturday, my assigned staff supported me for part of the morning. We made a melt and pour soap in the shape of a heart. Sadly, I don’t have a picture and I gave it to my husband. I added gold-colored mica powder to the soap and lavender and ylang ylang essential oils.

I also created an essential oil blend for in my diffuser. I used pink grapefruit, bergamot and ylang ylang essential oils in this blend.

I did ask my assigned staff to inquire about my orthopedic shoes. This has been an issue for at least two years: I started out with supportive insoles, then an ankle foot orthosis either with or without semi-orthopedic shoes and finally now orthopedic shoes, but they still don’t fit. The shoemaker is frustrated, wondering when they’ll finally be good enough. Well, when they fit. Honestly, I am skeptical about the method they used to create an image of my feet: not using putty for a “mold” but using an iPad to create digital images, a method they’d used on a client of my care agency for the first time. My guess is this method requires some level of understanding I don’t possess but am assumed to possess based on my expressive language. Anyway, I don’t care how much of a bother I am, but I’m not accepting the reality as it is now, ie. my needing to buy new regular shoes every two months due to them being damaged from the way I walk. If they can’t fit me for orthopedic shoes, they’ve got to find a way to fix my shoe issue some other way.

Saturday was a good day overall. I was supported by two staff – my assigned staff and another – I get along with very well during the morning shift and my day schedule wasn’t disrupted. For the evening shift, three out of four staff were staff I don’t really get along with and I ended up being supported by two of them. I didn’t mind though, as my day schedule wasn’t disrupted and I did get to do some activities I enjoy.

On Sunday, my husband came by for a visit and we drove to Apeldoorn to have lunch at Backwerk once again. I had a tuna baguette. Then we went into several shops, because I wanted to buy some new spring/summer clothes. Sorry, no pictures once again. I bought a blue, flowery skirt and three simple tops in black, white and blue.

Sunday evening was a bit hard. It started out well with the staff explaining to me who would be supporting me throughout the shift. This was repeated several times. Then, at 6PM, unexpectedly a staff who wasn’t supposed to come and whom I don’t get along with, showed up. I had a meltdown and eventually, after a bit of an explanation from the other staff and trying an activity for a few minutes, I chose alone time over time with him.

I also spent my weekend working on the #AtoZChallenge, of course. I don’t generally prepare my posts in advance, so I have lots of work to do on the day itself. I also discovered Reddit last week. That is, I had an account back in like 2008, but they changed things up a lot so that’s no longer valid. I love browsing Reddit now and commenting where I can. I haven’t created a post yet.

Overall, my weekend was mostly good with some negativity due to the unexpected staff change. For those not aware, I am autistic, so it isn’t just that I don’t get along with some staff, but if they’d told me in advance, I could have been prepared.

Six of the Most Important Objects I Own

Posted on by Astrid

Hi everyone. I’m feeling like writing, but am a little lost for words, so I looked through my various collections of journaling prompts. One of them was to list some of the most important objects in your life and to share how you got them. Here goes.

1. My iPhone. I first got an iPhone in the summer of 2017. Back then, I was clueless as to whether I would be able to do much with it. However, it turned out I only needed six out of the ten allocated lessons from the blindness agency computer trainer. I have had my current iPhone, an SE 2nd generation, since June of 2020 and am pretty sure I’m going to try to keep it functioning until the 15 series comes out in the fall, because the regular 14 isn’t really an improvement over the 13 and the 14 Pro is too expensive.

2. My Apple Watch. I got my Apple Watch Series 7 at the end of August, barely a month before the Series 8 was released. I don’t really do many techy things with it. Like, I don’t use it to make phone calls or check my mail, but I really love its fitness-related features.

3. My computer. Oh my, I’m really mostly listing modern technologies here. As those who’ve read my blog recently, will know, I got my current computer a few weeks ago. I mostly use it for browsing the Internet, blogging, reading Kindle books and it’s a little easier than my iPhone for YouTube too. Other things, such as mail, reading other books, writing in my journal, etc., I do on my iPhone. Then again, I’m so happy to still have both.

4. My music pillow. Okay, it’s somewhat of a piece of technology too, but not as advanced as a computer or smartphone. A music pillow, for those who don’t know, is a regular pillow with a small speaker integrated in it and in this case a cable that you can connect to a music player or in my case my iPhone. I listen to music on my music pillow almost every night as I fall asleep.

5. My box of essential oils. Oh wait, since I own 33 different essential oils, do each of these count as separate objects? Oh well, I say they don’t. I wrote a stream-of-consciousness post on the box several years ago (although I’m not sure I had the exact same box then). I could’ve chosen my diffuser, but without oils, it would be useless. I love to create blends of essential oils for in my diffuser, but I also love to add essential oils to soap and homemade bath and body care products.

6. My soft toy of the moment. The one I sleep with, changes often, but the lemur is still popular. Since the orangutan is my latest addition, it’s currently among my favorites.

I now, as I finish this post, realize I’ve been rather materialistic. I mean, I could have mentioned my wedding ring or the framed picture on my wall that I got from the staff and clients at my old care home. I’m not saying these don’t have value to me. Like, I wear my wedding ring day and night. However, the way I subconsciously at least interpreted the question, was “important” as meaning “useful”. They’re not the same, of course.

What are some of the most important objects in your life?

#WeekendCoffeeShare (March 11, 2023)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare today. I’m very early by my standards, having just had my afternoon coffee. I probably won’t finish this post till early evening though, since it’s nearly 3PM and I’m allowed another activity hour at 3:30. The coffee maker broke down last week. Then we got a new one yesterday – a really fancy one that can work with beans -, but it broke down today. Thankfully, the Senseo coffee maker still works. Let’s have a drink and let’s catch up.

If we were having coffee, I’d first ask about your weather. We got snow this week. Like actual snow that remained on the ground. Yesterday was cold and snowy and icy. The rest of the week was mostly cloudy with some rain. Today is okay. We even got a little sunshine and the temperature climbed to 7°C.

If we were having coffee, I would tell you that I finally decided to contact an independent client supporter re my care situation on Tuesday. These are not affiliated with the care agency, but can help clients with their care plan or finding the right care. The person I spoke to on the phone, asked me a few questions and then would forward my info to a client supporter for my area. This person called me on Friday and we’ll have a phone appt on Wednesday. Unfortunately, somehow, her E-mail confirming the appt and giving me her details didn’t reach me, so I’m going to call her on Monday to let her know.

If we were having coffee, I’d let you all know I’ve decided a whole lot needs to happen if I want to actually stay at my current care home. After all, like I didn’t yet say in my previous coffee share post as I didn’t know back then but have written about since on the blog, the meeting between the behavior specialist, my assigned staff, mother-in-law and possibly me got canceled again on March 2 and has now been set for this coming Tuesday. Apparently, my support coordinator won’t be attending. However, since my last mentioning that I saw some potential for it to work out here and now, I’ve had a few really hard conversations with my assigned staff. These conversations made me feel as though there’s little or no room for improvement. In one of our last ones on my care situation, in which I’d pointed this out, she suggested I go back to living with my husband. This would have been an understandable question from someone who has no clue about my care needs. I’m in fact half expecting this question from the client supporter too. However, my assigned staff should know better. The fact that she – one of the staff who’s most accommodating to my needs – asked this question, to me underlines the fact that this care home’s staff are either clueless or careless about my needs, possibly both. I mean, she meant well and didn’t mean to push me. She said that, while living with my husband would no doubt be hard, so is living here for me. Her reasoning also was that, if she were to marry someone, she’d do so with the intention of living with them. Well, our intention for marriage was to prove to each other that we want to remain a couple for life, nothing more, nothing less.

If we were having coffee, I’d share that once again my exercising has declined over the past week. I in part blame the weather. However, yesterday I took up the courage and went up to another client’s room to ask her and her staff whether I could go on her stationary bike. Turns out it’s not her stationary bike at all, but the home’s. I went on the bike for only eight minutes (and four seconds, to be exact 😉). Today, I did go for two longer walks, totaling 73 exercise minutes on my Apple Watch.

If we were having coffee, lastly I’d tell you I’ve picked up soap making again. My soaps aren’t great so far. I made a simple butterfly soap on Thursday fragranced with lemon and pink grapefruit essential oils. Yesterday, I made another butterfly with lavender and ylang ylang essential oils, but decided to add some mica powder too as a colorant. However, I had no idea yet how to add micas to melt and pour soap, so messed it up quite a bit by adding way too much mica and also adding it to a white rather than clear soap base, among other things. I guess one never stops learning.

How have you been?

My Bedtime Routine

Posted on by Astrid

Hi everyone. I’m feeling a little stressed out and, as it is past 9PM as I’m starting to write this post, I thought I’d share about my bedtime routine in order to get myself comfy and relaxed for bed.

Usually, the staff come by my room at around 9:45PM to help me get ready for bed, like get into my pajamas and brush my teeth. I usually leave my socks on, as I’ll often want to stay up a little longer. The evening shift here at my current care home ends at 10:30PM, so the staff usually say goodbye then too and turn off my light. In the care home I may move to on October 5, the evening shift ends at 10PM, so I may want to move my bedtime back a little.

I can go into bed by myself, but sometimes I want the staff to stand by while I go into bed. I will pull off my socks. Then, I’ll grab my iPhone if it’s sufficiently charged and select a Spotify playlist to play on my music pillow. The music pillow is connected to my iPhone via its lightning port (and a lightning-to-audio converter). I love the Harp Lullabies playlist, the Guitar Lullabies playlist or some albums by Robbins Island Music Group or Dan Gibson’s Solitudes. I most commonly set the sleep timer for an hour.

I sometimes will have an essential oil blend in my diffuser too. Some aren’t very suited to sleeping, but I know of a number of relaxing essential oil blends, four of which I shared before.

I have a weighted blanket, which I pull up over me almost till my chin. I also will grab ahold of one of my soft toys. Sometimes, I’ll lay the tail of the lemur over my chest, while at other times, I’ll hold the dolphin or unicorn.

Sometimes, I need to shift my sleeping position. I can sleep in every position except on my right side, but my preference will vary. Once I’ve found a comfortable position, I’ll likely doze off pretty quickly.

The night staff does come by at around 11:30PM to check on me. This is mostly to prevent me sitting up all night without anyone noticing. I can also press the call button if I can’t sleep, but of course other than try to comfort me, there is little the night staff can do. That being said, I sleep a lot better now that I have the weighted blanket, music pillow and essential oil diffuser than before I had all these.

loopyloulaura

Sensory Experiences That Influence My Creativity #AtoZChallenge

Posted on by Astrid

Hi everyone. Today is day 19 in the #AtoZChallenge and it’s time for my letter S post. I was initially feeling a bit uninspired, so looked to The Year of You for Creatives again. In it were several prompts about sounds and sights influencing your creative work. I decided to expand on the prompts and write about sensory experiences in general.

Most times, I prefer to work on my polymer clay in relative silence. That is, I do speak with my staff, but only about the polymer clay project we’re working on. I also don’t have music on in the background. To be honest, I haven’t even actually tried it. It may be relaxing.

I sometimes do have an essential oil blend in my diffuser. Smells can inspire me, as they give off a relaxing or energizing vibe, which I can then translate into the colors I use for my polymer clay projects.

I also find that I’m inspired by sights. I mean, I cannot actually see colors anymore, but imagining a particular color in my mind’s eye does inspire me.

When I write, I do occasionally have music or a soundscape on in the background and I often have an essential oil blend in my diffuser. Right now, I have a playlist of rainforest sounds on Spotify on. My oil diffuser currently diffuses a blend of bergamot, orange, spearmint and ylang ylang essential oils.

I find that music, soundscapes, colors and smells inspire my writing, particularly my poetry and freewrites. I have a journal in the diary app Day One specifically for freewrites and I love to write stream-of-consciousness style based on a snippet from a song or a sound. I haven’t yet included the songs themselves into my journal, as that works only with Apple Music and I don’t use that.

What sensory experiences inspire your creativity?

Bath and Body Care Product Making #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to day two in the #AtoZChallenge. Today, I want to go into one of the creative pursuits I’ve been keeping the longest, even though I no longer really do it much anymore: bath and body care product making.

I started bath and body care product making in 2016 when in the psychiatric hospital. At first, I made all kinds of products, including body lotions. That, I wasn’t too good at, since it requires using both water and oil and specific techniques, including heating the water and keeping it at a certain temperature (70°C if I’m correct) for a while before adding the water to the oil tiny bits at a time. It also requires the use of an emulsifier, since water and oil won’t combine together without one.

Later, I decided to make just body butters, which include just oils, butters and possibly beeswax or another wax if you want to create a vegan alternative.

I created a few body scrubs using sugar or ground coffee, but didn’t like those. Other exfoliants, like jojoba pellets, are extremely expensive. Of course, most store-bought body scrubs use nano beads, but these are bad for the environment. Not that I’ve ever found them sold anywhere anyway.

Since moving to the care facility in 2019, where we have a bathtub, I have also occasionally made bath bombs. A bath bomb is made with two parts sodium bicarbonate (baking soda) and one part citric acid (this is what makes the bath bomb fizz). Some people add cornstarch, but I’ve learned this will get moldy easily and I don’t personally see the advantage. Since both baking soda and citric acid are dry ingredients, you’ll need a spray bottle of demineralized water to help the ingredients stick together. Then you will of course need to add a colorant, fragrance oil and possibly other additives such as Epsom salt, almond oil, etc. The hardest part I’ve found was molding the bath bomb neatly. Of course, I chose a heart-shaped mold, not just a simple ball or egg.

Eventually, I discovered that the main aspect I like about bath and body care product making, is the fact that you can add essential oils or essential oil blends to your products for a nice smell and possibly therapeutic effects (if that’s what you believe in). In 2021, I did my entire #AtoZChallenge on essential oils and aromatherapy, so check back there for information on specific oils.