Things I Do Just for Fun #Blogtober20

Yesterday I didn’t write a post for #Blogtober20. Though I wrote a blog post, I didn’t post it to the linky or Facebook group. Today I’m hopping back onto the bandwagon and writing on today’s prompt, “Girls Just Want to Have Fun”. I’m going to share the things I do just for the fun of them.

1. Read chicklit. I am normally mostly into memoirs or young adult fiction about serious topics. When I just want to have fun, however, I read a romcom or other lighthearted women’s fiction. Most recently, I’ve been reading The Falling in Love Montage by Ciara Smyth.

2. Find jokes. I am subscribed to a funny E-mail list where the owner sends out daily jokes and comics. I cannot enjoy the comics, of course, but I love the jokes.

I also love to listen to my husband crack jokes. He and I both are a fan of wordplay.

I also love the kind of lists that describe what it’s like to live in a certain state or city. There at one point was one about Nijmegen, the city I went to university in. I related a lot to the things mentioned.

3. Dance. Well, walk in place to the beat of music. I love some playlists on Spotify of fast-paced dance and pop music. I cannot dance at all, but I love to move my body in the rhythm (or out of the rhythm, for that matter, as my sense of rhythm is poor) of the music.

4. Write and read funny blog posts. I particularly love memes and tags. I still need to participate in a couple of tags that I saw on other blogs and liked.

What do you do just for fun?

#Blogtober20

#IWSG: I’m a Hobbyist Writer

IWSG

Welcome to another meeting day of the Insecure Writer’s Support Group (#IWSG). I wish I could share that I’ve been doing well in the writing department. Well, in some ways I have, but I still haven’t written the story I intended to write for Chicken Soup for the Soul. I’m not even sure I will, as somehow it seems so insignificant right now that we’re not in lockdown anymore and I can see my husband again. When I had the COVID scare a little over two weeks ago, I did want to write, but couldn’t find the motivation really.

That being said, in other ways I did pretty well writing-wise. I decided to join #Blogtober20 at the last moment. Of course, I couldn’t join earlier, as I didn’t know about the challenge until last week. So far, I’m doing well, writing a post each day. I’m not always sticking to the prompts, but that isn’t required.

On to the monthly optional question. The question is whether you consider yourself a working writer and, if so, what it means. Or if you consider yourself a hobbyist or aspiring writer, what that means to you.

I obviously am a hobbyist writer. I cannot even say that I’m an aspiring writer, because I haven’t submitted a piece in years. In fact, the only piece I ever submitted was the one accepted into the anthology on typed communication by autistics in 2015.

I did at one point list my blog as my place of employment on Facebook. Now I don’t, because I don’t want my family to read it. Not that they most likely will, and of course they can still find me if they truly want to.

Being a hobbyist writer doesn’t mean I don’t have goals. I mean, I participate in #Blogtober20 and the goal for that challenge is to write a blog post each day of the month. I also during the rest of the year have somewhat of a rule that I need to post at least twice each week. I don’t have set days to publish a post, but if I haven’t written anything for a few days, it tends to feel awkward.

Being a hobbyist writer also doesn’t mean I don’t care how my writing is doing. I got really excited when, last week, I got lots of comments on a few posts. I also feel disappointed when I get only one or two comments on a post. I love seeing my stats go well. I don’t use Google Analytics anymore, because I was struggling with it and didn’t want to pay the money for having it on my WordPress.com blog. However, my WordPress stats do mean something to me.

Gratitude List (October 2, 2020) #TToT

I already published a post today, but I want to write more. I originally tried to write this post using the dreaded block editor, because I’ve heard it’s being forced onto WordPress bloggers more and more. I however for the life of me couldn’t properly link back to the Ten Things of Thankful (#TToT) page I’m joining in with. Here is my gratitude list, starting with…

1. The WordPress block editor not being fully forced onto me yet. On both PC and iOS, WP is trying to coerce me into using the block editor in all kinds of ways, but so far, I’ve found a workaround on both. I can only guess how long this is going to last, but I’ll keep using the classic editor at least for posts like this one for as long as possible.

After all, one issue I’ve found is that the block editor won’t let me write lists without converting them to HTML numbered lists, which seems to mean I can’t write multiple-paragraph list items like this one. I also greatly struggle with adding links, like I said. So, anyway, I’m grateful I can still use the classic editor.

2. A fries and snack vendor came by the facility on Sunday. It was a staff’s last shift before retirement, so she wanted to do something special. Another home had asked the snack vendor to visit us, so we decided to tag along. I had tons of fries and two snacks.

3. My mood being pretty good. Except when I was muddling with the block editor, that is. Overall, I feel pretty relaxed lately.

I am also so grateful that depression hasn’t sunk in as of yet. I often start feeling depressed by late September or early October. November is usually the worst. Let’s hope I can skip it this year.

4. Lots of engagement on my blog. I attribute this partly to #Blogtober20, but I’m also more able to interact with other bloggers and they engage with me in return.

5. Interesting journaling prompts. I got a subscription to Journey, a multi-platform diary app. I cannot really use the app, but I love to benefit from the prompts.

6. Relatively good weather. Yesterday was a pretty rainy day, but the rest of the week has been pretty much okay for fall.

7. My creative juices flowing. And my ability to handle failure if what I had in mind doesn’t turn out the way I imagined it. I mean, I’ve been trying to make my own air-dry modeling clay using baking soda, corn starch and water, but I probably used way too much water. I ordered new baking soda and will try again next week. This did give me an excuse to order new essential oils too, as those are sold at the same store.

That’s it for now. What have you been grateful for?

This Is Me: Beyond the Labels #Blogtober20

A few days ago, I discovered Blogtober, a month-long event aimed at bloggers writing a post everyday during the month. There are prompts for each day of the month. They’re based on song titles, but you can do whatever you want. You don’t even have to follow the prompts! The first prompt is “This Is Me”.

So, who am I? When introducing myself, I tend to focus heavily on my labels. I tend to say that I’m blind and autistic and that I have mild cerebral palsy. I tend to say that I live in a care facility. I tend to say that I don’t work, but do day activities at my facility. Then again, are these the things that define me?

I could also be focusing on my passions. I am a blogger. I love to read memoirs and young adult fiction. I love to make soap and other bath and body care products. I am interested in aromatherapy. I am passionate about mental health and disability rights.

These are more “me” than my disabilities, but they’re still labels. Who I am at the core is not a blind or autistic person, or a blogger even.

Still, it is hard to define myself beyond the labels. Here are, however, a few things I think make me me.


  • I am open to new experiences. For example, I love to discover new hobbies. I am also open-minded to differences in people’s identity.

  • I am passionate. When I have an idea in mind, I can truly focus on it for a while. This means I can really be enthusiastic, but it also means I tend to perseverate.

  • I am sensitive, both to emotions and to physical stimuli. This may or may not be a positive characteristic, depending on how much I can handle on a given day.

  • I am intelligent. This is often the first positive quality people mention about me and I tend to hate that. After all, my IQ was often used to show that I should be able to solve my problems in other areas. Now that I am in an environment that doesn’t judge people by their IQ – I live with people with severe to profound intellectual disability -, I tend to appreciate my intelligence somewhat more.

  • I am a go-getter. Some people would disagree, because I have very poor distress tolerance and because I haven’t achieved their goals for me. They see the fact that I’m in a care facility and not working as a sign that I’ve given up. I haven’t. I have just focused on my own true needs and desires.

What are some things that make you uniquely you?

#Blogtober20

#WeekendCoffeeShare (August 16, 2020)

It’s been several weeks since I last joined in with the #WeekendCoffeeShare community. I was thinking of doing a post earlier in the evening, but it was just too soaring hot in my room still. Now it’s past midnight, so technically Sunday and I’m joining in.

If we were having coffee, I would ask you how the weather is where you are, only to complain about the weather here. It’s been over 30°C here all week. Today was slightly cooler, but the humidity made it very exhausting. I’m almost hoping for some thunderstorms tonight. You know, I’m scared of them, but I really hate this heat.

If we were having coffee, I would tell you that my computer crashed on Monday. I guess it got hit with the heat too. It was fine again Tuesday after leaving it off for a night and is still fine now.

If we were having coffee, I would tell you that the woman who lives in the other home that’s part of my facility whom I often talk to, had her birthday on Thursday. I gifted her a keychain that I’d made and she loved it. She did feel a little uncomfortable when my staff asked her whether she’d like to have me visit sometime, but that’s because she needs time to process.

If we were having coffee, I would share that I made some delicious banana and strawberry milkshakes over the past few days.

If we were having coffee, I would tell you that I got a bargain on some peaches and blueberries at the local supermarket. They were three packages of fruit for €5. Blueberries are pretty expensive so I got a small package of those, but I got two large packages of peaches. They are the wild, flat kind of peaches and they’re delicious! I got them on Thursday. Though I ate all the blueberries that evening, I haven’t even emptied the first box of peaches yet.

If we were having coffee, I’d share that I talked to my nurse practitioner on Thursdday. I sent him some piece of writing I’d done for my staff about how I’m feeling. I left the link to my blog in my signature, which I’m not sure was the right thing to do. He said he’d been browsing around a bit. Of course, that made me feel uncomfortable, so I asked him whether he had some type of weird idea about me now. The main reason I asked is because he asked about the meaning of my blog URL, which of course refers to my seeing myself as multiple. I’m trying not to care, of course, and I won’t be censoring myself based on who might read my blog. I know this is a public blog so to be careful about my and especially others’ privacy.

If we were having coffee, I would tell you I have a ton of ideas for blog posts in my mind, but for whatever reason (the heat, maybe), I cannot quite concentrate enough to write them. I’m also thinking of finally starting up my journal writing prompts blog, which I registered with WordPress some months ago. I will post a formal announcement when/if this happens.

If we were having coffee, lastly I would tell you that my husband came by for a visit today. We’d originally planned for me to go to our house for a night, but my husband proposed we eat somewhere and go for a walk. We ended up getting a burger and milkshake at McDonald’s. The walk was short, as I didn’t want to walk in a forest because I had my sandals on and it was too hot and humid to walk anywhere else.

How have you been?

#IWSG: The Form Will Find Me?

IWSG

It’s the first Wednesday of the month and regular readers know what this means: it’s time for the Insecure Writer’s Support Group (#IWSG) posting day.

Well, let me say I’m pretty insecure indeed. I did pretty well on the blogging front this past month, but I always dream bigger than I actually live. I mean, I remember saying about four years ago that, within the next five years, I’d like to write my memoir and yet there’s not a single word down on the page. That plus I haven’t a clue where to start. Stories or pieces of non-fiction would flow so easily when I was younger. I have one work in progress that could’ve turned into a young adult novel if I’d just had the willpower to finish it. Not saying it’d be published – it certainly wouldn’t, as it’s rather unoriginal -, but well.

I keep remembering that Stephen King quote in DIY MFA about how you need to write 2000 words a day. I know, the author said this isn’t true, but I do need to write.

Thankfully, I do write. I got a premium subscription to Day One, a journaling app for iOS. Though I haven’t written in my journals everyday, I do find that the words come more easily already after a week of having it. As a result, I did write on my blog everyday for the past week. I really could use some guidance on how to transform my blogging practice into something more powerful.

Now on to the optional prompt question. It’s a quote that says that, although you may write in a certain genre, you don’t have to have that predetermined. Rather, the form or genre will find you once you write. I indeed must say I agree with this to some extent. Though I often set out to write in a specific form, my words don’t usually come out in that form eventually. Even if I do choose a genre in advance, my words often flow more easily when I let them rather than plan what I’m writing in advance.

Gratitude List (July 31, 2020) #TToT

It’s a hot Friday here and I have lots of things I could be writing about. I choose to do a positive post though and share my gratitude list for the past week or so. As always, I’m joining in with Ten Things of Thankful (#TToT).

1. Noodles. One of the day activities staff made those for us on Tuesday and one of the other clients helped her. He was so proud of himself! I loved the noodles with chicken and veggies and of course satay sauce. The staff had chosen the mild satay sauce rather than the spicy one, but I liked it anyway.

2. Going to the marketplace. On Wednesday, a day activities staff took me to the marketplace to get some fish for lunch. I also got a large waffle.

3. Day One. This is a journaling app for the iPhone (and Mac). I finally got the premium subscription to Day One and am loving making a daily habit out of journaling. Because I have the premium subscription, I can also E-mail my journal, so if I write something on an E-mail list, I can later send the same message to my journal easily.

4. My blog. It turned two on Saturday. Though I haven’t been as active lately with regards to reading other blogs and for this reason, didn’t get the engagement I’d like on my blog either, I still love it. I do need to make a note to myself to check whether comments are enabled on my posts before publishing them, because WordPress seems to have pulled the trick of disabling comments at random once again.

5. The weather. It’s been pretty good all week. Today it’s a little hot for my liking, but it’s still bearable.

6. AC in the living rooms. Some company came to install it on Monday or Tuesday. Some other clients, whose rooms get particularly hot, also got AC installed in their rooms.

7. Walking. I managed at least two walks each day. Some days I didn’t feel like going for walks, but I managed to kick myself in the butt anyway.

8. Having some energy back. I was really low on energy early in the week. One night, I even went to bed at like 8:30PM. Thankfully, I’m pretty alert now, though I can’t for the life of me remember when exactly some things happened, like you may be noticing.

9. Speaking to my husband on the phone. He’s so lovely! He said half-jokingly that he’d look at my blog to see the keychain I’d made for him, as he hasn’t seen me in real life since I made it. Then we got talking about whether he reads my blog and whether I write about him a lot.

10. Reading. I am loving reading foster care memoirs again.

What have you been grateful for lately?

A Productive Tuesday

Hi all, how are you doing? I didn’t write at all yesterday. That is, I wrote a lot in my new private journal. I finally got a subscription to the premium plan of Day One. Day One is an iPhone (and Mac) app for journaling. I discovered how to work it last April. Okay, I’ve had this app for years, but I didn’t know how to insert links, headings, etc. until then. However, even as I found out, I didn’t write a lot. I now do plan on writing in there everyday and have set a reminder to do so. I have three journals: one general one, one for chronicling my journey living as a multiple, and one for prompt-based journaling. I may copy some of those here, but the one I did today, isn’t really suited for this blog.

I also started reading fostering memoirs again. I bought Who Will Love Me Now? by Maggie Hartley. I’m loving it so far, although it’s a sad story.

I also got the littles a little picture book about emotions. I got that one off Bookshare. It’s called ABC of Feelings. I also still have a lot of free bedtime stories in my Apple Books and Kindle libraries.

This morning, I made yet another keychain. It’s for the friend at the other home that’s part of my facility I’ve mentioned before. She regularly gives me cards and, since she has a birthday in August, I thought I’d make her something.

This evening, I talked to a staff who doesn’t work here often. She told me she likes crocheting and I asked her to teach me. We did a little crocheting, but that didn’t really work for me. I then remembered I had a knitting loom too and we tried some loom knitting. I didn’t get far, but I got the first couple rounds done. She may bring a metal loom knitting needle tomorrow, as the one that came with the loom is made of plastic.

We also had a cooking activity this morning, but I didn’t participate in that. A staff made us noodles with chicken and veg. I loved it!

Oh, and I did go for three walks today. They weren’t very long walks, but it was good being outside.

Overall, the day has been relatively productive. I didn’t feel this way at first, because I didn’t feel inspired to blog. However, now that I got to write down all that I did, it’s quite a lot.

I Am Overwhelmed

Yesterday I sat in front of my computer for an hour or more typing up a blog post, only to erase it again because I couldn’t find the proper words to finish it. Today I’m trying again.

I am horribly overloaded. To be honest, even the mere thought of having to write a blog post, adds to that. So why do I do it? I guess this post won’t get many views or much engagement at all, so why bother? Then again, I may be able to get my rollercoaster of emotions to slow down a bit if I write stuff down.

Last Saturday, I attended an online meeting of CP Netherlands, the national charity for people with cerebral palsy and their parents. I wasn’t sure whether to attend, as I’m not 100% sure my mobility impairment is severe enough to count as CP. Of course, the other attendees advised me to get a referral to a rehabilitation physician to find out.

Of course, just self-understanding isn’t a reason to get assessed for CP as an adult. However, I’m noticing that my mobility gets somewhat worse and I experience more pain. This could be my being overweight, of course. I will also get orthoses soon to help with the position of my feet. This might help.

In the meeting and later in the CP Facebook group, I shared how all my past professionals said my issues weren’t due to the disability they were assessing for. For example, the occupational therapist from the blindness agency said that my difficulties weren’t due to blindness. The OT for the psych hospital said my motor ability was more or less fine. At least, I didn’t have significantly less strength in my left hand than my right. The neurologist consulted when I earlier complained of worsening mobility, said it wasn’t my hydrocephalus either or if it was, my issues were not severe enough to warrant risky surgery. I agree. However, ultimately, my psychologist concluded everything was fine and I was just being dependent.

I asked my staff to talk to the physician for my facility and maybe the physical therapist about my mobility impairment. I after all do experience worsening pain and what may be spasticity. I’ll hopefully hear back soon.

Then today I experienced terrible sadness. I was overwhelmed by some sounds other clients made in the living room, but felt bad going to my room. My assigned staff said maybe I expect too much of myself. I mean, I’m half convinced that I’m deteriorating, which my staff doesn’t see. Maybe I indeed need to take a break. Lower the bar on my step goal now that my broken Fitbit won’t notice anyway. Stop wanting to write a blog post everyday, or really more than one. Be content with just two or three 20-minute walks a day and relaxing the rest of the day. I’m not sure. This feels so much like giving up.

We Ordered Some Beads

I’m feeling pretty uninspired to write today. I’m still feeling upset about last Friday’s meeting with the nurse practitioner. I mean, I don’t want to claim to have a dissociative disorder, even though on this blog I do sort of claim this. At least, we claim to be multiple. I’m not sure we fully are, but we’re definitely not fully singlet either.

We sent an E-mail to my assigned support worker explaining our issues with the nurse practitioner’s comments. She might forward it to my other staff and maybe the behavior specialist too. The behavior specialist replied to her E-mail from last Friday that I could ask my nurse practitioner why he thinks ACT is proper therapy for me and why he doesn’t want me to do EMDR. Some of us were pretty upset at her reply too.

Today we were upset at not being able to do much with respect to day activities. It rained all day, so we could only take one walk. Other than that, we sat in the living room or in my room. At the end of the day, our crafty part came up with some ideas. We might try making some bead jewelry. It doesn’t have to be professional-looking, but it could be cool.

So I ordered some beads at a store called Creadream. I originally intended on ordering glass beads, but ended up going with plastic ones. They were cheaper and the store had a larger variety of shapes. I got some round beads, some cubes, some rectangles and even some butterflies. Some of the purple ones were on a discounted price, so only like €0.66 for 25 grams (about 45 beads I think it said).

I also ordered some wire and elastic, including memory wire. This is a type of metallic wire that is shaped like a coil that fits around your arm. It can be used for making bracelets. I forgot to order pliers to cut and bend the wire with, but I or my day activities staff might be able to find some later. I also forgot to order a beading needle.

I think the littles will definitely enjoy working with all the different shapes and colors. Of course, we can’t see the colors, but we have some memory of what they look like. We ordered mostly purple ones, like I said, but also some pink, green and I can’t remember what else.

Now I constantly feel shame when I refer to the littles or write in first person plural or the like. I know I can’t fully be myself with mental health professionals, because they aren’t my friends, but why can’t I be myselves on here? My CPN knows the address to this blog and has occasionally read it, but yeah.