Hello Monday (April 3, 2023)

Posted on by Astrid

Hello everyone. I’m joining Hello Monday again this evening. Let me share about my weekend.

On Saturday, my assigned staff supported me for part of the morning. We made a melt and pour soap in the shape of a heart. Sadly, I don’t have a picture and I gave it to my husband. I added gold-colored mica powder to the soap and lavender and ylang ylang essential oils.

I also created an essential oil blend for in my diffuser. I used pink grapefruit, bergamot and ylang ylang essential oils in this blend.

I did ask my assigned staff to inquire about my orthopedic shoes. This has been an issue for at least two years: I started out with supportive insoles, then an ankle foot orthosis either with or without semi-orthopedic shoes and finally now orthopedic shoes, but they still don’t fit. The shoemaker is frustrated, wondering when they’ll finally be good enough. Well, when they fit. Honestly, I am skeptical about the method they used to create an image of my feet: not using putty for a “mold” but using an iPad to create digital images, a method they’d used on a client of my care agency for the first time. My guess is this method requires some level of understanding I don’t possess but am assumed to possess based on my expressive language. Anyway, I don’t care how much of a bother I am, but I’m not accepting the reality as it is now, ie. my needing to buy new regular shoes every two months due to them being damaged from the way I walk. If they can’t fit me for orthopedic shoes, they’ve got to find a way to fix my shoe issue some other way.

Saturday was a good day overall. I was supported by two staff – my assigned staff and another – I get along with very well during the morning shift and my day schedule wasn’t disrupted. For the evening shift, three out of four staff were staff I don’t really get along with and I ended up being supported by two of them. I didn’t mind though, as my day schedule wasn’t disrupted and I did get to do some activities I enjoy.

On Sunday, my husband came by for a visit and we drove to Apeldoorn to have lunch at Backwerk once again. I had a tuna baguette. Then we went into several shops, because I wanted to buy some new spring/summer clothes. Sorry, no pictures once again. I bought a blue, flowery skirt and three simple tops in black, white and blue.

Sunday evening was a bit hard. It started out well with the staff explaining to me who would be supporting me throughout the shift. This was repeated several times. Then, at 6PM, unexpectedly a staff who wasn’t supposed to come and whom I don’t get along with, showed up. I had a meltdown and eventually, after a bit of an explanation from the other staff and trying an activity for a few minutes, I chose alone time over time with him.

I also spent my weekend working on the #AtoZChallenge, of course. I don’t generally prepare my posts in advance, so I have lots of work to do on the day itself. I also discovered Reddit last week. That is, I had an account back in like 2008, but they changed things up a lot so that’s no longer valid. I love browsing Reddit now and commenting where I can. I haven’t created a post yet.

Overall, my weekend was mostly good with some negativity due to the unexpected staff change. For those not aware, I am autistic, so it isn’t just that I don’t get along with some staff, but if they’d told me in advance, I could have been prepared.

March 2023 Reflections #WBOYC

Posted on by Astrid

Hi everyone. It’s the last day of the month and this means I’m reflecting back on this month’s happenings. I’m joining What’s Been On Your Calendar? (#WBOYC). Here goes.

This month would have started with my having the meeting on my care on March 2, but it got postponed yet again for the third time. I did get a visit from my mother-in-law instead and we took a walk through a nice park. Here are a couple of pictures my mother-in-law took with her phone of a remembrance stone we saw there.



The next Sunday, my husband and I drove to Ikea in Zwolle, where I bought a stuffed orang-utan. I so far didn’t show it on the blog yet, so what better day to do this than today?

On the other Sundays, my husband and I drove to Apeldoorn to have lunch at Backwerk. We did try visiting another lunch cafe once at the recommendation of one of my staff, but literally all tables were dirty.

On March 17, I finally had the meeting on my care. The positive aspect was that the powers-that-be will be looking for another, hopefully more suitable care home for me. The negative aspect is the fact that, in the meantime, nothing will change. This had me spiral out of control quite a bit, which my staff feel frustrated with.

Last week, it led to a bit of a disagreement between me and my assigned staff, because she got frustrated with my negativity. The way she worded it, even if my day schedule doesn’t get disrupted and I’m supported by regular staff for the entire shift, I still find a reason to complain. I countered that this hadn’t happened in months. Even this morning, with three out of four staff being regular employees, the fourth staff supported me for most of the shift.

In the health department, I did pretty well. I finally saw the dietitian last week and we concluded I no longer need to lose weight. Not that weight loss ever was a priority for me, more like a welcome side effect of my healthier-for-me lifestyle. The fact that I’d lost weight rather rapidly over the past five months, meant I had to up my calorie intake to prevent further weight loss. I did gain a bit of weight in the first week on my new food plan, but then again I did eat fries once in that week and a large burger another day. I’m not stressing about the weight gain at all.

In other health news, my cardio fitness level according to my Apple Watch has declined slightly and is in the “low” range again, though just barely. My heart rate recovery, on the other hand, is steadily improving.

All this being said, I’m trying to embrace my body as it is and appreciate my health for what it is.

In the blogging department, I did quite poorly, having written only eleven posts including this one. I am not sure how I’m going to do with the April A to Z Challenge given this reality, but I trust I can do it.

February 2023 Reflections #WBOYC

Posted on by Astrid

Hi everyone. It’s the last day of the month and this means I’m reflecting back on the month that was. Like last month, I’m joining What’s Been On Your Calendar? (or #WBOYC for short).

The month of February, overall, was slightly better than the month of January. This was reflected in nineteen (including this one) blog posts in 28 days, compared to only thirteen in 31 days last month. However, it wasn’t “good” by any means.

On the 14th, we were supposed to have a meeting about my care, but this was postponed because my support coordinator was off sick. It has now been set for this coming Thursday but my assigned support staff told me it may need to be postponed again.

The last few weeks were okay care-wise and there were even a few days when I received optimal care by this home’s standards. On Friday, I told my assigned staff I might not want to leave this home after all, which she translated to my having decided I don’t want to leave. On Monday I tried talking to her about improvements that would make my life better here, but this led nowhere. Now I’m pretty sure that, since any attempt on my part to talk about improving my care situation leads to “but you can’t expect continuous one-on-one” before I’ve even stated my wishes, I’ve pretty much lost trust in everyone for good. And just so you know, this wasn’t my first attempt to talk about improving my care.

Craft-wise, I didn’t do as well as I’d hoped. I gave up on The Artist’s Way after barely a week and I didn’t expand on my creativity as much as I’d have liked. I was, however, invited to help decide on the monthly theme in the Dutch polymer clay Facebook group, which became “Unicorns” of course. Like I more or less expected, I was the only one contributing, but oh well. At least for once I could participate.

I did read a lot more than I’d expected in the past month. I have been reading more diversely too. This is related to the fact that I had a discussion with my husband a few weeks ago about queer identity.

Also due to said discussion, I decided to finally abandon Christianity. I’ve been struggling with my faith ever since becoming a Jesus follower at the end of 2020 and part of the reason is my queer identity. And just because I’m happily married to a man, doesn’t mean I need to disown that. I could, of course, still call myself a progressive Christ follower, but who would I be kidding then? If the God of the Bible exists, I’m going to be condemned whether I follow Him half-heartedly or not at all.

In the health department, I’ve been doing pretty well. My cardio fitness level is improving and is almost at below-average level rather than low. I also lost 2kg over the month and only need to lose just over 1kg to be at a healthy BMI. I haven’t heard what the institution nurse said yesterday about the cream not working for the burning sensation on my back.

Lastly, I bought a new computer last week, which I’ve now been using for a few days. I’d been dreading Windows 11 for years due to my fear of the unknown I guess, but it works quite similar to Windows 10.

January 2023 Reflections #WBOYC

Posted on by Astrid

Hi everyone on this final day of January. Last year, I loved looking back on each month as it related to my word of the year. I didn’t choose a word of the year for 2023. Not sure why, but I just couldn’t find one. I however do like these monthly reviews, so I’ll continue them. The monthly word of the year linky has also changed to #WBOYC, which is an acronym for What’s Been On Your Calendar. I’m joining in with this linky today for my monthly reflections.

This month, I started out with mixed feelings of hope and fear for the coming year. Just before New Year’s, my assigned staff had introduced the piece of paper with agreements re my care on it, which was slightly disappointing to me because of it being easy to interpret in multiple ways. As the weeks proceded, I found out that, indeed, it didn’t do much to improve my care. In fact, I still live moment-to-moment, not because I can’t get through each moment due to my mental health, but because the staff and home in general are so unpredictable.

Several weeks ago, I decided I definitely want to find another care home. This, obviously, requires a talk with the behavior specialist and support coordinator, but, so far, my support coordinator hasn’t responded to requests to share when she is available. I have it in my head she’s decided to ignore me until I shut up about wanting to leave. After all, several staff have started to talk nonsense about baby steps towards adjustment, and I’m pretty sure they don’t mean the steps towards adjustment should come from the staff. Even though I do experience good enough days here and there, I won’t shut up though until structural changes mean good enough is going to be the norm, and I’m sure this isn’t going to be here.

In other news, I had three visits from my mother-in-law during the month of January. I also saw my husband almost each week – missed only one because I had a cold.

I started working with the book The Artist’s Way at the end of the month. I’ve only just started with Morning Pages and am taking the program at a slower pace than is recommended, partly because I’m a slow reader and partly because I need to modify the Artist’s Dates to suit my needs. For example, since I don’t handwrite my Morning Pages, I have no reason to give myself a sticker on the envelope each day I completed them, and I can’t use regular stickers anyway. However, I saw 3D unicorn stickers and want to buy those and stick one on my laptop for each day I complete my Morning Pages for a week. Of course, since they are sold online, I may need to have them delivered to my in-laws because my care home’s address isn’t always recognized by delivery people. I’ll get to that tomorrow.

I wasn’t as crafty as I’d like to have been, but did slightly expand my horizons where it came to polymer clay, in that yesterday I started on a unicorn in a lying-down position and today I tried to decorate my latest standard, sitting unicorn with Hotfix rhinestones.

I didn’t write as many blog posts as I’d hoped during January. Of course, there was #JusJoJan, but even when the prompts did speak to me, I often didn’t write. I am still considering participating in #Write28Days in February, but honestly haven’t written anything for it. Not that I had any of the previous years I took part either, but then I was more motivated.

I did for the umpteenth time revive my Instagram account. This time, I’m actually finding some joy in it, because I actually find that I can interact with some people on there.

In the health department, January was a true mixed bag. I did get moving sufficiently, particularly walking, but healthy eating was a huge struggle. Over the month, I maintained my weight, so still 3kg to lose for me to be at a healthy BMI.

Lastly, I did attend the cerebral palsy online meeting for the provinces of Gelderland and Utrecht this evening. It was good. There will be a live meeting in March, so I’m hoping to go there too.

Re(dis)covering My Creative Self

Posted on by Astrid

Today I crafted a dachshund out of polymer clay. I haven’t put it into the oven yet, as I still want to create other things before baking them all together. I sometimes feel a rush to create, create, create as who knows when this will end? In two weeks’ time, my support coordinator will be back and may decide to put my old day schedule back in place, in which I had only one tiny moment when I could possibly choose to work with clay, inbetween my morning coffee, a long walk and my lunch.

I am taking baby steps towards becoming my creative self again. This blog post is part of the process, as writing too is part of creativity. I notice my writing suffered significantly due to the chaos that was (and may become again) my support at my current care home. I know I’ll still have lots of time to write if my support coordinator puts my old day schedule back in place, but time isn’t the only factor. Inspiration is, too. And when all I do is try to survive from moment to moment – the staff’s terminology for the times they step in to support me -, I am not able to be creative at all.

I am really trying to look at these few weeks as an opportunity to re(dis)cover myself as a creative person, not just as a disturbed, manipulative yet oh so intelligent person, like most of the staff see me. My hope is that the staff who see me as primarily oh so intelligent yet disturbed and manipulative, will soon realize that, with the right support, not only will those “disturbed” behaviors lessen, but I will be able to show them my artistic side. If not, I am hoping that, soon enough, the staff who do get me will be able to convince my support coordinator and those who agree with her that this is not the right place for me. They have seen a glimpse into what I can be like when I am properly supported and I am cautiously optimistic that they can help me maintain this sense of myself, regardless of what happens when the support coordinator returns from her time off.

TGIF: October

Posted on by Astrid

Hi all. It’s the last day of September (duh!) and I haven’t written enough posts this month. That is, if I want to aim for 300 posts in 2022, I’ll need to have written 225 now. I’m not sure that’s entirely true, since both October and December have 31 days and September has only 30, but oh well.

In any case, today’s optional theme for Paula’s TGIF is “October”. Paula asks us what our plans are for the month.

Of course, October’s main theme for me is moving to the main institution care home and settling in there. Today, I packed my first box. I also told all fellow residents I’m close to. The one in my own home at first hardly reacted, but now seems to understand to some degree. The woman in the care home down the road became a little emotional. I gave her a matching necklace and bracelet. The guy in the care home next to mine, the one with the chickens, reacted understandingly when I explained that the people in my new home are of a higher intellectual level. “So more like you and me?” he inquired. Yes, like that. I gave him the polymer clay sun, because he’s usually in a sunny mood. He gave me an egg he’d collected from one of his chickens this morning.

I already have two visits from my family planned in the first week of my stay at the new home. On October 8, my sister and her family will be coming by and my mother-in-law will visit me on October 11.

Besides settling into the new home, October will be a busy blogging month. I am participating in the 31-day writing challenge once again, although I won’t even attempt to do a landing page this time around. I usually just sign up for the prompts and to have some reason to blog everyday, even though I haven’t completed the challenge in years. There is of course also Blogtober, for which there are prompts this year too. I am not sure what I’ll do with those. All this to say, my cares about not having written enough during September, are really not all that important. Besides, no-one is going to come after me if I don’t write 300 posts in 2022.

Joy in July

Posted on by Astrid

Hi everyone. It’s nearly the end of the month and this means it’s time for me to update you all on my word of the year. As usual, I’m joining the #WOTY linky, as well as Lisa’s One Word linky. My word of the year, as I’ve said before, is “JOY”.

Early in the month, I had a horrible setback, as I got the news that my now former assigned staff would be quitting her job at my care facility. This caused some major sadness and emotional turmoil in me, but after a while, I was able to channel it into something good by creating something for her – a polymer clay hedgehog. I enjoyed the creative process and the smile I brought to her face when I gave her the gift.

Overall, I did find that my joy or lack thereof was more than in the previous months tied to my material success, in the sense that, if I felt I was failing at a crafty endeavor, I didn’t enjoy it either. The same goes for my blog: I was ecstatic when reading all the positive comments to the poem I wrote last week, but didn’t enjoy writing when I had the idea that I wasn’t “successful” in my blogging.

Similarly, my joy is also more tied to material possessions than it used to be. For example, the day my former assigned staff left, I ordered a stuffed dolphin for comfort. While this did help me, maybe at other times I would’ve been able to seek joy without having to spend money. I am not saying spending money on comfort items is necessarily bad, but ultimately, they aren’t material things that will bring me joy.

Joyful experiences included a visit to the trampoline on the last day my now former assigned staff worked my one-on-one shift, eating out with my husband and a visit from my sister and her family. While they involved material things too, in the sense that we spent money on the dinner and my sister gave me some beautiful belated birthday gifts, the experiences themselves were truly great.

In some good news, I did do some Bible reading everyday again this week, while I’d hardly done any over the rest of the month. It is causing me a lot of emotions.

Overall, the month of July was filled with some high peaks but a lot of deep lows too. I must say though that, considering the impact of my staff leaving, I was expecting much worse. I really hope the month of August will be better.

The Wednesday HodgePodge (July 20, 2022)

Posted on by Astrid

Hi everyone. I haven’t posted in a few days, because I was too tired from the heat. It’s still quite hot here, but I feel okay now. Today, I’m joining the Wednesday HodgePodge. Here goes.

1. Last time you drove more than 100 miles from your home? Where did you go?
I don’t drive, but I’m assuming riding in the passenger seat counts too. That being said, the last time my husband drove more than 100 miles with me in the car, was probably eight years ago when we went on a short vacation to the Black Forest in southern Germany. We drove in our Kia Rio, which we later found out deserves its acronym, “killed in action”, because shortly after that trip, the car crashed on the highway and my husband could just about move it onto the shoulder before it completely malfunctioned. We thought we had the problem fixed, but it developed the same problem that had caused it to crash back then again half a year later. Needless to say we sold that car. We’re thinking of going back to the Black Forest this September, but my husband has a really small car now, so he might want to replace that one first.

2. Something that drives you batty?
WordPress’ ever-increasing number of ads on free sites. I hope at least that, since I have a paid plan, they aren’t displaying on mine.

3. Do you feel like you’re “on track”? For what?
In my blogging life, I don’t feel as though I’m “on track”, but maybe that’s just my feeling. I mean, I really would’ve wanted to write at least as much this year as I did in 2021 and, up till the month of June, I was keeping up nicely. Now though, I’m not.

Similarly, I have a ton of craft projects waiting for me to finish them. Not that there’s a timeline for those to keep track of, but it does sort of feel as though I’m losing track anyway.

4. Your favorite car snack(s)?
Licorice and winegums (gummy candies).

5. Something you’ve done recently “on the fly”?
Nothing really. I plan most of my activities at least some time in advance. That being said, I do buy things impulsively at times. Does that count? In that case, going to Action (a budget store) in town and buying some random craft supplies last Monday. The trip into town was planned, and I had sort of planned to go to Action too, but I hadn’t planned to buy any of the things I ended up buying.

6. Insert your own random thought here.
Yesterday, I had a review with my nurse practitioner from mental health and the behavioral specialist from my care facility. I could rant about it here, but I’m not going to. Instead, I’m going to say that, after it, I finally concluded that, screw it, I’m ready to face whatever it takes to get real help for whatever it is I’m facing mental health-wise, be this trauma-related or a personality disorder or whatever.

Things That Have Changed Since I Started Blogging

Posted on by Astrid

One of Mama Kat’s writing prompts for this week is to share what’s changed since you started blogging. My current blog turns four next month and not much has changed over those years. However, I’ve been blogging on WordPress for over fifteen years and a lot changed in those years.

Back in the day, blogging was still the main sort of social media. I think Facebook might’ve existed and Twitter certainly did, but neither was as popular a means of connecting with other people online as they’d become over the next couple of years. Don’t even get me started on Instagram, on which I uploaded five photos tops since getting an account in 2017. I just don’t get it. Not that I ever really “got” Twitter or Facebook. Give me my blog please.

Back in the early days of my blogging journey, I wrote mostly about my own life, but this quickly changed to blogging about disability advocacy. I participated in an annual event called Blogging Against Disablism Day on May 1 and would connect to many of the bloggers I met there throughout the rest of the year. Many would follow me on Twitter, Tumblr (which again I didn’t really get), etc. I loved being part of a community working towards the greater good!

I stopped blogging on that blog in 2011 or 2012. In August of 2013, I started Blogging Astrid, the blog I usually now refer to as my “old blog”. I started it on Blogger but moved to WordPress in November. This is when I started to interact with the Writer’s Workshop community and learned about link parties. For a while, I blogged more for my stats than for self-expression or the greater good. Getting tired of that was a big reason I moved on to my current blog, which had as its original aim that I could write from the heart. As had been the case in the very early days of my original blog and even before, when my original blog was still an online diary.

Until I started this blog, I didn’t really know there was a community specific to WordPress.com and that it’s still alive and kickin’, despite the folks at Automattic trying to kill it off by making WordPress less and less attractive particularly to new customers. Then again, maybe blogging is dying after all. I try to realize people have said that for at least a decade and I still can find a pretty large circle of people to interact with in the blogosphere. They aren’t usually the same I’ve known since 2007, but that’s totally okay.

Mama’s Losin’ It

Gratitude List (May 13, 2022) #TToT

Posted on by Astrid

Hi everyone! What a week, what a day it’s been. I really feel like writing, but my head is buzzing, so I thought for a bit of cheer and calm, I’d do a gratitude post. As usual, I’m joining in with Ten Things of Thankful. Here goes.

1. I am grateful my staff were able to get the staffing schedule figured out and actually without temp workers needing to step in. The reality was, the temping agency didn’t have anyone available, so the regular staff ended up overworking, but this was a huge positive for me as it meant no unfamiliar faces.

2. I am grateful that a new staff was finally hired to work here. She did come from another home that’s part of my care facility, so they might now have a staffing shortage, but oh well, that’s not my problem. Until this staff came here, a lot of potential staff were given a look around my home but decided eventually not to want to work here.

3. I am grateful for delicious home-cooked chicken and rice yesterday. I actually cooked it with my day activities staff.

4. I am grateful for the smile on one of my fellow clients’ faces when I offered him a serving of the chicken and rice too. He is the only one in my care home who can eat rice without choking, so the staff, when cooking, never cook rice. I’m so happy he was pleased.

5. I am grateful for Sadje’s comment on my last blog post. I thought WordPress was acting up, since I wasn’t getting any comments. It might still be, but at least someone is able and willing to comment.

6. I am grateful for a visit from my mother-in-law on Tuesday. I am grateful we had a good talk with my assigned home staff. After that, we went to Rijssen, a town about a 30-minute drive from Raalte, to go for a walk and have coffee.

7. I am grateful I was able to mostly stick to my healthier eating plan over the past week. The only exception was the sausage roll I ordered in Rijssen. It not only was unhealthy, but came out of the microwave or so it seemed, so it definitely didn’t score an eight out of ten on how much I wanted to eat it. That’s the rule my dietitian gave me for treats: if they don’t score an eight or above on how eager I am to eat them, I might consider skipping them.

8. I am grateful that I did lose 0.4kg when I stepped onto the scale today as compared to last week.

9. I am grateful my semi-orthopedic shoes arrived back from the orthopedic shoemaker. The last time I sent them back, I had a blister on my right heel after only ten minutes of walking on them. Now I haven’t walked longer than that at a time on the shoes, but so far, so good.

10. I am grateful I got an E-mail from the store I bought the headphones that stopped working after two weeks at, saying they’ll give me my money back. I don’t have it in my bank account yet, but they said it could take up to five business days.

11. I did order new headphones and am grateful they work so far. They are a fifth of the price of the non-working ones, but still I am hoping they keep working.

12. I am grateful for paracetamol. I had to take it several times this past week for toothache or headache, but thankfully it worked.

What are you grateful for?