#WeekendCoffeeShare (July 24, 2021)

Hi everyone on this late Saturday evening. I’m joining #WeekendCoffeeShare even though it’s rather late for coffee here at nearly 9PM. Besides, I had green tea this evening. I can of course still make you a Senseo, although with the amount of coffee stains in and on my coffee maker I wouldn’t recommend it. So I guess a glass of water or a soft drink should suffice. I hope that’s alright. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d share that I’m so grateful the weather has been much milder over the past week than it was the week before. Of course, we here in Raalte weren’t personally affected by the floods either and damage control down in Limburg is still ongoing. However, the weather here has been truly beautiful.

If we were having coffee, I’d share that, thanks to the weather as well as my feet cooperating, I have been able to get in a lot of walking lately. I got in over 11K steps each day of the week so far.

I am still not sure I’ll sign up for Steptember, the annual fundraiser for the cerebral palsy charity this coming September. The aim is to raise funds while aiming for 10K steps each day, regardless of whether this is done while walking, wheeling, biking, etc. Last year, I did participate, but I didn’t really like the pressure I put onto myself by signing up.

If we were having coffee, I would tell you that I’ve been really crafty over the past week. I have been making some new bracelets. One of them, I sent to my mother. She received it in the post today and was happy with it.

I also picked up trying to do latch hooking again. This is a yarn craft for making rugs etc. I learned this at the blindness rehabilitation center back in 2005 and tried to pick it up again briefly in the psych hospital, but was too easily frustrated for it back then. So far, I am not 100% sure I understand the technique again yet, but I’m confident that ultimately I’ll learn.

If we were having coffee, I’d share that I’m truly grateful for all the comments on my blog over the past few days. It makes me feel so happy to see that others read and appreciate my writing.

If we were having coffee, lastly I would announce that tomorrow is my third blogiversary! That is, it’s the third anniversary of my having (re)started this blog. I say “re” because I used this domain (or the WordPress.com subdomain at least) back in 2011 too. I have been on WordPress for over fourteen years and have had an online diary ever since 2002. I still keep learning and growing everyday. I am so, so grateful that, contrary to what some “influencers” say, blogging isn’t dead at all. I hope it never dies.

How have you been?

Early Days Online

Yesterday, Rory asked whether we remember our first times online or with a computer in general. I certainly do. I may have shared some of these memories before, but just in case I haven’t, I’m going to dedicate a post to them.

I got my first computer at the age of eleven in January of 1998. That one didn’t have an Internet connection though. Its operating system, Windows 95 SP2 (which my father explained was like Windows 96), did support Internet Explorer, but my screen reader didn’t. That screen reader, Slimware Windows Bridge, was quite primitive. So was the Braille display, which I remember to be attached to my computer via the printer port. Though it did work with just Braille, without speech, if the speech unit in the Braille display malfunctioned, so did the entire thing.

In 2002, I got my second computer and my first JAWS version. For those who don’t know, JAWS is the most commonly-used screen reader today. This computer had Windows 98 installed on it and it did have Internet access.

My father at first was adamant that I use the Internet as much as I want, even though we had a dial-up connection back then (not the kind where you can’t phone and go online at the same time). He said that, if the bill got too expensive, we’d get broadband. Then when the bill did get to over €300 over the summer, it turned out broadband wasn’t available at our house. After a few months of my parents trying to restrict my Internet access and my trying to evade said restrictions, we eventually got cable.

I got my first online diary that fall of 2002. It was on DiaryLand if I remember correctly, though I often switched between DiaryLand, Diary-X, Teen Open Diary and whatever else was available. The only service I never actively used, was Xanga. I also had a Dutch online diary.

The worst mistake I made, looking back, was not taking care of other people’s privacy. I not only wrote out every argument I’d had with my parents in detail, but also referred to other people, such as my teachers, by their real names. One teacher in particular had a rather unusual last name and at one point was googling her name for genealogy purposes. Not surprisingly, she stumbled upon my Dutch diary. Though I (interestingly) had used a nickname there, she quickly found out it was me. She personally didn’t mind, but did caution me that others might.

What mistakes did you make in your early days online?

#IWSG: Quit Writing?

IWSG

Hi everyone. It’s the first Wednesday of the month and this means it’s time for the Insecure Writer’s Support Group (#IWSG) to meet again. I’m more than happy to report that I didn’t get booted for my flaky post last month.

I’m feeling quite motivated to write as of late. It’s still mostly regular posts on this blog, but that’s okay. I know, I know, I resolve each month to expand my writing horizons by doing more poetry and fiction writing. I’m also resolving this time to set some time aside for a daily freewriting session in the app Day One. My yearly subscription payment is due at the end of the month and I haven’t made use of it in a while, so now’s the time to get back into things.

Now on to this month’s optional question: what would make you quit writing? Seriously? I guess my death or the loss of my hand function, though if I lost the ability to type, I could possibly still dictate my writings. That being said, I’ve always said that loss of hand and particularly finger function would majorly impair my quality of life, since it’d not just mean an inability to type, but an inability to read Braille as well.

I have had times when I’ve taken a break from blogging and occasionally even writing in general. The longest I’ve gone without blogging since I got an Internet connection has been six months in like 2012. Since I started this blog nearly three years ago, not a week has gone by that I didn’t write at least one blog post.

Even before I had a blog, I had a diary and wrote tons of short stories and attempts at young adult novels. I honestly don’t think that, even if I ever were to stop blogging, I’d really stop writing for myself.

What would make you quit writing?

Today Is Tuesday, June 8

I really want to write, but I’m feeling pretty uninspired. I already looked through my collections of journaling prompts, of which I have many. However, even though a few prompts spoke to me, I just couldn’t get myself to put fingers to keyboard and actually write. Until now, that is. Instead of writing an actually meaningful post, I’m just going to freewrite.

Today I got my original Braille display, the one with the water damage, back. The technician also explained why this model can’t handle even a little water on it even though the old model, the one that got the cup of tea over it seven years ago, could. This model’s Braille cells are somehow covered, so if water enters them, there’s no way it’ll get out. He didn’t explain the point of creating cells like this, I mean, what would make them better than cells that haven’t been covered like the ones in the old model. I think it might even be an effort to make the Braille displays not last as long, but of course the technician wouldn’t say so.

In the afternoon, my mother-in-law visited me. We drove to a relatively nearby forest and went for a short walk. Then we had coffee and apple pie. We also drove by a supermarket, where I got blueberries and fruit gums. The fruit gums, I already consumed.

Both my mother-in-law and my husband have been asking me what I want for my birthday, which is on the 27th. I have asked my parents to order from a specific jewelry-making store which is local to them. For my husband and mother-in-law, I really don’t know what to ask for. I mean, I’ve been tempted to ask for the interactive cat my mother-in-law originally wanted to buy me last year. Then again, that thing is over a hundred euros.

In the evening, I did a little more walking and had coffee. I more than reached my water intake goal for the day. I use the Water Reminder app on my iPhone again. It’s a pretty good way of keeping track of my fluid intake, as it also allows me to track other beverages. And just so you know, yes, it actually takes away water when you drink alcohol. That makes me believe its calculation of amount of water in beverages is pretty accurate.

I also read my Bible again. I decided to pick it up in Genesis where I left off when starting to read Daniel on Sunday. I don’t expect to be reading all the boring Old Testament stuff, but for now I’m at least sticking to a Bible reading habit.

And a writing habit. See? I can really make myself create a blog post if I just want it badly enough. And I do, since WordPress is now keeping track of my blogging streaks. Yay me!

#IWSG: Breaking a Record!

IWSG

Hi all! It’s the first Wednesday of the month and this means it’s time for the Insecure Writer’s Support Group to meet. At the moment, my thoughts aren’t with writing really. However, I wanted to share my contribution to the #IWSG anyway.

Last month, I was a real writing ninja. I, of course, participated in the #AtoZChallenge. That did get a bit boring as the challenge proceeded, but I managed to finish it after all. I’m so glad I did, because it gave me real new motivation for keeping up the blogging habit.

Not only did I write the 26 posts for the challenge, but I actually wrote more posts in the month of April than I had in any month before since being a blogger. I published 41 posts this month. Seriously, in all the more than eighteen years I’ve been blogging, I didn’t publish this many posts in one single month!

Blogging aside, I also wrote quite a few other pieces. I have been journaling almost daily for a few weeks now. Sometimes, I just wrote a couple of sentences, but sometimes I wrote more. I have particularly loved expressing my gratitude in my journal. I’ve also loved writing responses to Day One’s daily prompts. Some of them weren’t too inspiring, but some definitely were.

For the upcoming month, I hope to be able to write daily again, be it on my blog or elsewhere. I’d love to make use of the many journaling prompt collections I have. I transferred some from my computer to my iPhone, so that they will be more readily available to me.

Now on to this month’s optional question: has any of your readers ever responded to your writing in a way that you didn’t expect? Well, not really. I mean, I get the occasional critical comment. For example, when I still blogged on my old blog, there was a person who commented on each of my posts mentioning my alters. Their comments invariably stereotyped people with dissociative identity disorder and told me that I was faking having alters and needed treatment for a personality disorder. Well, yes, those comments weren’t what I’d hoped for. Then again if I put myself out there like this, no doubt someone’s going to use it as a way to try to offend me. That’s how the Internet works.

Other than that, the most surprising comments I’ve got were compliments on my creative writing. I know that most people want to build each other up even if they don’t fully mean it, but still, it’s quite cool to get a compliment on a poem or piece of flash fiction. Similarly, having had my piece accepted into an anthology back in 2015, wasn’t what I’d expected at all. That one was creative nonfiction, but I honestly had written it in the span of like an hour or so and had been rather impulsive submitting it. I was so elated to have the piece accepted for publication.

How about you? Do people ever respond to your writing in a way that you haven’t expected?

#WeekendCoffeeShare (April 18, 2021)

Hello everyone and welcome to my #WeekendCoffeeShare post for this week. I just had my afternoon coffee. I think there’s still some left, or you can have a tea, fizzy drink or water. We alsso have custard cupcakes if you want one. They’re delicious! Let’s have a drink and let’s catch up.

If we were having coffee, I’d ask you about your weather. Ours has been steadily improving over the past week. On Monday, we still had a bit of ice rain, but the rest of the week, it’s not rained much. Today, we have some sunshine and temperatures of about 16°C during the day. It’s still close to freezing at night though.

If we were having coffee, I would tell you that, on Wednesday, I had a good talk with my community psychiatric nurse. I was able to express some of my anxiety. Then again, Thursday night I ended up in a bit of a crisis again. I tried to reach my CPN on Friday. Unfortunately, by the time she called me at 5:30PM, there was little she could do for me.

Tomorrow, I’ll meet with my nurse practitioner again. I’m considering asking him about my medication, both my daily meds and my PRN tranquilizer. While the PRN med, the atypical antipsychotic quetiapine (Seroquel), works okay for reducing sensory overload, I’m experiencing increasing anxiety, particularly at night. I don’t blame the quetiapine, but I’d really like something to help with this.

If we were having coffee, I’d share that I had quite a scary experience yesterday. I was walking outside in the sunshine and suddenly completely blinded. Of course, it is only to be expected that I’ll eventually lose my light perception too, but it’s still scary. My staff interestingly did understand my panic about being blinded. Most people probably won’t, since to a sighted or even partially sighted person, I’m pretty much totally blind.

I also had a pretty nasty headache, so I’m wondering whether I might have experienced a spike in eye pressure. My staff is going to inquire about getting my eye pressure checked by an ophthalmologist. I’ve heard, after all, that glaucoma needs to be treated even in blind people.

This experience did motivate me to finally inquire about getting a pair of NoIR sunglasses again. I had them in the past, but cannot find them in my size at the most well-known low vision shop. My staff E-mailed the occupational therapist about it. For now, another staff gave me a pair of regular sunglasses.

If we were having coffee, I would tell you that I got a new roller tip for my white cane on Friday too. I now have a marshmallow tip, which I think works better than the large ball tip I used to have.

If we were having coffee, I’d share how happy I am with all the engagement on my blog. It’s truly heartwarming to see how many people are touched by my posts.

If we were having coffee, lastly I’d tell you that my husband and I went for a walk in the “wolf woods”, as he calls the woods between Raalte and the nearby theme park. A wolf was found in the theme park a few weeks ago. Thankfully, we didn’t spot it.

How have you been?

#WeekendCoffeeShare (April 11, 2021)

Hi everyone on this cloudy and slightly rainy Sunday evening. I’m rather late writing my #WeekendCoffeeShare post this week. I’m having a rather hard time planning when to write, as I cannot concentrate on it when my one-on-one staff is with me and yet struggle to feel well enough to write when alone. I just finished my dinner, so no coffee for me as of yet (though with my parents, coffee after dinner was a ritual). If you’d like a Senseo though, I can make you one. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week was rather bad weather-wise. It’s been raining all week. On Monday and Tuesday, it even snowed a bit. It’s been near freezing cold too. How is your weather?

If we were having coffee, I’d share that this week, the physical therapist and orthopedic shoemaker came by to discuss my getting semi-orthopedic shoes. My current, store-bought shoes aren’t great for fitting my AFO in. They also have laces, which I can’t tie myself. I’ll hopefully hear next week what models they have available. I did try on a pair already, but this was just to get an idea of what I’d need.

Thankfully, the shoes will be fully covered by long-term care. This did lead to a bit of self-loathing, in that I feel like a burden for costing so much with my one-on-one, the weighted blanket and all the other costs and now this. I try to calm myself by thinking it wasn’t really my decision. Besides, I will most likely experience less pain when walking and be able to walk longer distances. Still, I can hear my inner critic say that I fake my mild cerebral palsy.

If we were having coffee, I’d share that, last Friday, I was in a crisis. I don’t even know what led to me starting to feel triggered. At some point though, I left my room at night. On my way to wherever, I bumped into something and swore. Then I decided I’m unforgivable anyway now and decided to self-harm. I’m okay physical wound-wise and the night staff eventually calmed me down. Still, I have been feeling really unsettled all weekend.

If we were having coffee, lastly I’d share how proud I am of myself for continuing to blog each day and sometimes more than once. Of course, I’m busy with the #AtoZChallenge, but I also managed several other blog posts. That’s pretty awesome if you ask me.

How has your week been?

#IWSG: Taking Risks in My Writing?

IWSG

It’s the first Wednesday of the month and that means it’s time for the Insecure Writer’s Support Group (#IWSG) to meet. It is April, which means it’s time for the #AtoZChallenge too. For this reason, I am writing a lot. Not that I didn’t write much in March. I wrote 29 blog posts, which I’m rather content with.

I also have been loving looking at writing prompts again. Not that I’ve dared to actually write based on them yet, at least not on the fiction/poetry ones. Okay, maybe it’s not so much that I am too scared, as I could of course be writing just for myself. Then again, I usually write with an audience in mind, so maybe I’m still scared to write even just for me. However, I also find that I take on a lot with my blogging, maybe too much. Yesterday, I was up till 11PM blogging because I had to write something for the letter E in my #AtoZChallenge series. I really hope I’ll find both the time and courage soon to write something more outside of my comfort zone.

This brings me to this month’s optional question. It is whether you’re a risk taker where it comes to your writing. This could mean tackling subjects or genres that are outside of your comfort zone, but also it could mean talking about controversial topics.

The short answer to this question is, no, not really. I used to take risks with my writing several years ago, when I still often shared my views on disability rights and autistic advocacy. Now I hardly ever cover these topics in my writing anymore.

I originally started my current blog as a way to actually take a risk by writing from the heart. I also chose my domain name to reflect the fact that my alter personalities could write too. They hardly ever do anymore.

That being said, I do put myself out there with my writing. As a personal blog writer, I am very open about myself online. Maybe that’s taking a risk in itself.

Do you take risks when writing?

#WeekendCoffeeShare (April 4, 2021)

Hi everyone on this chilly and cloudy Easter Sunday. I am rather late joining in with #WeekendCoffeeShare. The reason is that I’m participating in the #AtoZChallenge too and couldn’t find the time to publish another post until today. I just had my afternoon coffee and am going to have a soft drink in a bit, so if you’d like something to drink, that’d be great. Let’s grab a drink and let’s catch up.

If we were having coffee, I’d share how much fun I’m having with the #AtoZChallenge. It is a great way of connecting with new bloggers and challenging myself to write (almost) everyday. For those who don’t know, the challenge is to write posts using each letter of the alphabet on each day of April except Sundays. This is the reason I have time to write a blog post today. My theme is aromatherapy and natural wellness.

If we were having coffee, I would share that this week was rather eventful in general. On Monday, I was very much triggered. I have been having emotional flashbacks a lot, as well as paranoid thoughts about my former clinician reporting me for care fraud if she finds out I’m in long-term care. My staff try to reassure me that I’m not responsible for my care funding. After all, my staff, the manager and behavior specialist applied for me. I am still unsure though.

Anyway, on Monday, when I was particularly triggered, I did an exercise of hitting a pillow to symbolically kick my former clinician out of my life. It was truly empowering!

If we were having coffee, I would also share that, on Friday, I had a treatment review at the mental health agency. My nurse practitioner tried to tell me that I’m already actually processing my trauma with the steps I’m taking now, such as the exercise on Monday. This validated me. My community psychiatric nurse, however, wasn’t fully sure of her role in my treatment and wondered whether she could visit me less frequently. For now, we have decided against this in order to maintain weekly appointments with mental health, alternatingly with my nurse practitioner and CPN.

If we were having coffee, I’d tell you that I finally managed to go to Lobith over the weekend. My cold is still not fully gone, but it’s gone enough that I could see my husband. We had delicious Airfryer fries, turkey and peas for dinner yesterday, as well as pudding for dessert. This morning, we had breakfast in front of the television while watching Hour of Power. It was great!

How has your week been? And how’s your Easter weekend?

#WeekendCoffeeShare (March 27, 2021)

Welcome to another #WeekendCoffeeShare post. I just had my afternoon coffee about an hour ago and am going to have a soft drink in a bit. Of course, I can still make you a Senseo if you want. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that I’m just about as well as it gets with respect to my cold. I am still a tiny bit sniffy, but I don’t think it gets any better anytime soon. I didn’t go to Lobith this weekend, even though my husband had promised me pizza at our house if I did. After all, yesterday I still wasn’t convinced I was well enough. Instead, my husband is coming over tomorrow.

If we were having coffee, I would say that this past week has been great in the walking department. Like I said yesterday, I’ve been quite active. Today was an exception, as it was raining on and off all day so far. I hope to still get some steps in this evening.

If we were having coffee, I would talk some about the political saga that unfolded after last week’s general election. The current prime minister, Mark Rutte, won the election again, probably because people are used to him doing the corona-related press conferences. Before the election, he’d hinted at some restrictions being lifted for Easter. Of course, that was just a political game to win voters, as in the last press conference, only the curfew got moved from 9PM till 10PM.

Speaking of the lockdown, my husband predicts from what he’s read that most of the restrictions will remain until mid-June. I really hope he’s wrong, but at least we can still see each other (provided neither of us is under the weather).

If we were having coffee, I’d tell you I’ve been loving reading other blogs as well as writing my own blog posts. I’m not yet preparing for the #AtoZChallenge. Maybe I should, as it’s in less than a week.

I’ve also been in contact with WP support again. The reason is the news that the classic editor might be disappearing after all. I’m not sure WP support itself knows what it’s doing, as I get mixed messages. I’m trying to let it go for now though, as so far at least I can still blog.

If we were having coffee, lastly I’d share that we might get new staff here in my care home soon. I think I mentioned last week that a male staff was having a look around our home last week Saturday to see if he wanted to work here. Turns out he does. He’s been orienting here a few more times. He used to work in a home for people with intellectual disability who also have complex care needs due to behavior. I got the impression he didn’t like that anymore, so I feared I’d scare him away from wanting to work here. Turns out he’s going to work in both homes.

Then on Thursday, another prospective staff, also male, toured my care home. The manager informed me in advance that he was coming, which I liked. I’ll be curious to know if he decides to work here.

What’s been going on in your life?