My Ideal Ways of Spending My Day

Hi everyone. I have been thinking about ways in which I would like to spend my days if I get to move to the main institution. Like I said yesterday, each client has their own day program, so they aren’t required to go to the day center by default. I also will keep my one-on-one support at least until December of 2023. In today’s post, I want to share my ideal ways of spending my days. These are things I might be able to implement should I remain here, but I’m dreaming big here and thinking of ways the institution could accommodate me too.

First, I would like to start my day in my room like I currently do. I don’t think I can handle eating breakfast in a group as of yet. That might change in the future. I would like to eat all my main meals in my room, but go to the living room for coffee breaks when I want to.

Ways I would like to spend my day, include crafting of course. I would really like to keep on doing my polymer clay work and maybe even sell it in the day center’s shop.

The day activities I am thinking the institution could help me meet my dreams with, are those related to sports and physical activity. I know the institution has a small swimming pool on grounds and I’d really like to use it. I’m not sure whether they might have exercise equipment too, like the type of equipment you’d find in a gym. If they do, I’d love to utilize that too.

The institution is in a rural estate area, so I’d love to go for walks on grounds. I’ll take my iPhone (by then, I might have a new one, who knows?) to take pictures of the beautiful nature.

I’ll hopefully at some point be able to take short walks on grounds on my own too. For that, I’ll need orientation and mobility training from the blindness agency, but I’m sure I can get that.

I may occasionally want to relax in a snoezelen® room. Then again, if I’m correct, I can keep my weighted blanket if I move within this care agency, so I might not even need a snoezelen® room.

I’ll probably also want to go to a day center every once in a while to socialize with other clients. The institution has three day centers I believe, but I’m pretty sure clients from the home I might go to won’t go to all three. That’s okay though, I’ll find out what suits me.

An Engaging Wednesday

Hi everyone. I originally wanted to title this post a “creative”, then “inspired” Wednesday. Both fit, in a way, but neither fully captures the essence of today. Not that “engaging” does, but I ran out of adjectives to think of. I spent the day crafting and watching personal growth YouTube videos and that’s what I want to talk about. Oh, I could just have written “A day spent crafting and watching YouTube videos” as my post title. Then again, that’s too long.

In the morning, I finished a YouTube video in which an enneagram geek talked about annoying things type Fours say and do, then watched another of her videos about things to know before dating an Eight. No, I’m not looking to find another lover. My husband is an Eight and I just thought it funny to learn about all the stupid mistakes I’d made all along. Of course, I could just listen to my husband (that’s the first tip!).

Re the other video, I may write a separate blog post listing all the ways in which I relate to all these annoying things Fours do and say. And yes, I related completely to all but one of them.

Then, when my day activities started, I had my morning coffee, then went for a short walk while it was still cool enough outside. My orthopedic shoes arrived yesterday and I can now actually walk on them without any pain. I won’t get my hopes up, because I have been saying all along that they won’t be ready until 2034 and that’s exactly when World War III is going to start according to a book by that title. I am too superstitious to admit publicly that my shoe problem is over yet.

After my walk, my staff and I drove to the supermarket for quark, which I eat for breakfast. We also both got ourselves a sausage roll for lunch and she treated me to ice cream cones. Of course, I just ate one today and she had one too, so the rest are in the freezer.

In the afternoon, I first used my alcohol inks that I’d bought at Action several weeks ago. I had finally managed to create earring pieces that didn’t have air bubbles in them and was going to add a little alcohol ink to them for some extra color. The pieces haven’t been turned into actual earrings yet.

Then in the evening, I crafted the last of the polymer clay beads I’ll need for the necklace I’m making for the person from the other care home. I’m probably going to put together the necklace tomorrow. Overall, it was a good day.

Things That Made Me Smile (July 11, 2022) #WeeklySmile

Hi everyone. I haven’t been blogging all weekend, because I didn’t feel inspired. I’m still struggling with the fact that my assigned staff is leaving. However, today I wanted to put a positive spin onto it and end our contact with good memories. You see, today she had her last one-on-one shift with me. Despite it of course being bittersweet, the day itself was so good I actually think it deserves a mention on Trent’s #WeeklySmile.

We started the day at 10:15 with two strong cups of coffee. This staff is one of the coffee drinkers among my staff and so she usually brings the full coffee pot to me rather than just pouring me a single cup. My morning cup had been rather weak, so I’m so grateful I was able to have two cups of strong, black coffee. (My soon-to-be former assigned staff drinks her coffee with milk, something I kept forgetting.)

After this, we went for a walk. I initially decided not to put on my jacket, but it was just a bit too chilly for my liking, so my staff ran back up the stairs to grab it for me.

After that, I had lunch. I didn’t indulge in anything special this time, as yesterday for her leave-taking party for the entire home the staff had already treated us all to French fries and snacks.

After she’d had her afternoon break, my staff and I drove to a playground in the village she lives in that we’ve been to before to jump on the trampoline. A few little kids were playing on the trampoline when I arrived, but they were thankfully happy to go play on the other playground equipment and let me jump on the trampoline for a while. I jumped for about ten minutes, but by then my feet hurt like crazy. My inner child parts had the greatest fun!

Then we drove by the supermarket, because I had to get dinner for this evening, as I’d skipped my meal delivery service meal for today. Apparently, they’d had nothing on the menu that I liked. I also got blueberries, stroopwafel cookies and licorice.

Then it was time for two more cups of strong coffee. I chatted some with my staff until it was time for her to go to write up her notes and be there for any other clients who might come home from the day center early at 3PM. She returned briefly at 3:30, as usual, to say goodbye. She said that even though this was her last one-on-one shift with me and Thursday will be her final shift working at my care facility, she’s sure to see me again. I hope she’s right. In any case, she’s after some thought decided to give me her E-mail address. This makes me feel much better about our goodbye than I’d been feeling last Friday, because it means I can still stay in touch with her when I feel like it.

Overall, the day was positive and I didn’t even cry when she left. I might on Thursday, but we’ll see.

Gratitude List (April 29, 2022) #TToT

Hi everyone. I am feeling a bit meh today. I don’t really feel like writing a gratitude list, but I do feel like writing something and I can’t think of anything else to write. For both of these reasons – to have something to write and to cheer myself up -, I am going to try to write a thankful list anyway. As usual, I’m joining in with Ten Things of Thankful (#TToT). Here goes.

1. I am grateful for pizza today. Yes, again. Another staff is leaving and she wanted to give us pizza or pasta from the local Italian restaurant as a goodbye present.

2. I am grateful I was able to give the staff who’s leaving her present. I didn’t end up making something for her myself and initially wanted to stay in my room while the other staff gave the presents to this staff, but I am grateful I decided to go and give her one of the gifts the other staff had bought on behalf of us clients.

3. I am grateful for quiet time to write. It’s now nearly 9PM and between 6PM and 7PM, a guy from the home next door was blasting his music on top volume. Even with noise canceling headphones (unfortunately still the ones I have on loan) on, I still could hear the music clearly. I’m so glad it’s quieted down now.

4. I am grateful for a good phone talk with my mother-in-law on Wednesday. I was able to tell her I’m going to discuss entering the process of finding another care home. To my surprise and gratitude, she fully supports me.

5. I am grateful for a nice phone call with my mother on her birthday yesterday. I obviously didn’t tell her I’ll be looking for another care home. We made some smalltalk and it was okay.

6. I am grateful for sleep. Despite feeling quite on edge lately due to a lot of issues, I am sleeping relatively well.

7. I am grateful to have been able to go to the day center for a considerable time twice this week.

8. I am grateful for funny stories to listen to on YouTube. There is a Dutch children’s book author called Jacques Vriens who read his own stories aloud on YouTube. There are also English-language YouTube channels for children’s stories, which I also love, but Jacques Vriens is a childhood favorite of mine.

9. I am grateful I was able to go onto the large trampoline on Wednesday. It was great fun!

10. I am grateful to be relatively financially secure. I won’t go into detail here, but I am just happy my husband and I can handle a little financial setback.

What are you grateful for?

Time Management in My Creative Process #AtoZChallenge

Hi everyone and welcome to day 20 in the #AtoZChallenge. Today for my letter T post, I have a topic related to my letter D and R posts. After all, I am going to write about time management as it applies to my creative work.

I don’t have any real obligations where it comes to my creative work. I mean, in my blogging, when I sign up for a challenge such as this one, it’s just to be able to give myself some greater goal. Similarly, I don’t take on any assignments in my polymer clay, so I am basically the only one setting my deadlines.

That doesn’t mean I don’t feel any pressure. I get a thrill out of knowing I’ve made a long streak of blogging on here or have been able to finish a big project “on time”. I also get stressed when I feel I’m not meeting my own goals.

I currently blog everyday and, over the past year or so, have maintained an average of at least three to four blog posts a week. I usually write my blog posts during my time I don’t have direct one-on-one support, so between 1:30 and 4PM on weekends or after 8PM each day.

One of my goals in the care facility is that I do something “useful” each day. This could be a creative activity such as polymer clay, but on days when I have appointments with mental health, those count as my “useful” activity of the day.

Given that I don’t keep track and my activity level fluctuates a great deal with my mood, I cannot say how much time on average I spend on my creative work during the week. Sometimes, I make something out of polymer clay everyday, while at other times, I am lucky if I manage one simple activity, such as mixing a predetermined color, a week.

I tend to feel useless when I’ve not accomplished much in a given week, in the sense that I haven’t finished any big projects. However, this is also related to my perfectionism. To put things into perspective, when I was still in the psych hospital, I struggled far more to get things done than I do now.

Gratitude List (April 16, 2022) #TToT

Hi all on this Saturday before Easter Sunday. I have no idea whether English-speaking people have a word for this Saturday. In Dutch, it’s called “silent Saturday”. I’m having a relatively good day. I thought I’d do a gratitude post once again. As usual, I’m joining in with Ten Things of Thankful. Here goes.

1. I am grateful for physical therapy. The physical therapist came by twice this week. Once for my back, which had been planned already. The second time, she came by for bad pain in my right calf. It had been going on for a few days, so really I could’ve told her the first time, but it wasn’t so bad then. Thankfully, after some massaging and a bit of exercising, the pain is almost completely gone now.

2. I am grateful for a good nurse practitioner’s appt on Monday. It was really validating.

3. I am grateful for some distractions from anxiety in the form of polymer clay color mixing. I created some really cool colors.

4. I am grateful my day activities staff ordered the true colors six-pack of Fimo Professional polymer clay, which includes a color mixing chart, as well as large packs of white, Indian red and brilliant blue Fimo Soft polymer clay. (With white, Indian red, brilliant blue and sunflower yellow, which I already had, you can create the colors from the recipes I bought.) The best part is, the day center actually pays for it!

5. I am grateful the Fimo Professional isn’t as crumbly as it was when I last used it. It was actually a bit on the soft side, but still useable.

6. I am grateful for a good Easter lunch yesterday (or should I say Good Friday lunch then?) at the day center.

7. I am grateful for sunshine today and most of the week. Only yesterday was a bit of a cold and cloudy day.

8. I am grateful my computer accepts USB sticks and external hard drives again for now. It for a long while would crash when I fed it a USB stick or hard drive through the USB port. Now, I was able to put both my external hard drive and a USB stick into the USB port without problems. Unfortunately, my wedding pictures aren’t on my external hard drive, like I’d hoped, but I was able to locate some old documents and transfer them into my OneDrive.

9. I am grateful for renewed energy. I decided to have a nap this afternoon and feel so refreshed.

10. I am grateful I won’t be kicked out of the care facility. I’m horribly scared of this again after some recent events, but my staff reassured me.

11. Bonus thankful: I am so grateful for Jesus! It is Easter tomorrow, so I can’t leave this post without mentioning Christ.

What are you grateful for?

Keeping My Craft Supplies Organized #AtoZChallenge

Hi everyone. For my letter K post in the #AtoZChallenge on creativity, I’m once again rather uninspired. This time, my various sources of inspiration didn’t offer any help either, so I had to be creative (no pun intended). Today, I am writing about keeping my supplies organized. I hope this is not going to get me stuck once I reach the letter O post, but oh well.

Back in the psych hospital, when I lived with my husband and in the early months in the care facility, I had all my supplies in a large, wheeled shopping bag. Then again, I only had soaping supplies at the time and I still had to go to the day center with my supplies if I wanted to do something crafty.

After a while, when COVID hit and the day center closed, I put my supplies in my kitchenette cupboard. I still have a few things in the shopping bag, I think, but I really need to clear it out.

About a year ago, staff were talking about wanting to get rid of a large storage case from the living room. I told them I may want to have it, so it got placed in my room. I can’t imagine what I’d do without it, as the thing is now packed full of all my craft supplies and other activity materials.

My craft storage

For my polymer clay specifically, I first had just a basket with a few packets of Fimo in it. Then, I bought a stash of Fimo on Facebook that came in a large tea organizer. I used that for a while for storing my polymer clay, but have now graduated to a large storage box with many compartments. I currently organize my polymer clay by color, but the box doesn’t have enough compartments to store each color in its own place. For this reason, I have, for example, the Fimo soft brilliant blue, pacific blue and peppermint in one conpartment. I did at one point still have one empty compartment, which I now use for the colors I’ve mixed myself.

My polymer clay storage box

I still have a lot of my polymer clay supplies in other places too. For example, the tea organizer now houses my cutters, at least, most of them.

In addition to the polymer clay box, I have several more boxes for jewelry-making supplies. I still have one largely-unused box, but already have a plan for it, as my day activities staff is going to order large quantities of my most-used polymer clay colors for me and those won’t fit in the other storage box compartments.

I guess I could easily say I hoard crafting supplies and, to be honest, I need to do some clearing out soon. Not of the polymer clay though, as I still use that. Thankfully, polymer clay also doesn’t really expire, so even if I were to get tired of it, there’s no reason I should be throwing it out.

Reasons I Think I Want to Stay in My Current Care Home

Last week, I was discussing my insecurity about living in my current care home with my assigned home staff. I still keep searching for another place to live, even though staff keep reassuring me that I don’t have to leave. Part of the reason for this is probably habit, in that I feel I ought to be looking for another place because that’s always been the case. However, my assigned staff also challenged me to write down a list of reasons I want to stay in my current care home and a list of reasons I may want to leave. Today, I’m going to share my list of reasons I think I want to stay. I’m pretty sure I won’t be sharing my list of reasons I may want to leave, as these are more like things I am hoping to find a solution to within my current care situation. Anyway, here are the reasons I probably want to stay in my current care home.

1. My one-on-one support. Of course, this is government-funded and may be transferable to another care facility, but I do like the fact that my current care team really think my care is important, in that staff shortages won’t easily mean my care will be cut.

2. The fact that I have gotten to know most of my staff. Of course, no-one can guarantee they’ll remain part of my team for the foreseeable future, but if I leave, the whole team will be new at least at first.

3. The fact that my staff help me with activities of daily living. This is a bit of an uncertain thing, as I sort of feel I ought to be able to do more of them independently.

4. The fact that I get day activities in the home and am the only one who does for now. Even though it may be possible to get day activities in my room at another care facility, I might not be the only one. I like the peace and quiet during the day as it is now.

5. The fact that fellow clients hardly make an appeal on me. Most leave me alone most of the time. This is a good thing, but I did put in my other list that I wish to interact with other clients somewhat more than I currently do.

6. My own room with my private bathroom, kitchenette and balcony. Thankfully, shared rooms are no longer in existence within disability services as far as I’m aware, but shared bathrooms definitely are.

7. The weighted blanket the care facility paid for me to sleep under. I mean, seriously, if I were to transfer to a different care agency, I’d lose that too.

8. The Internet access. Pretty much unrestricted, mind you. At least, I haven’t run into any sites that are blocked by the care facility’s WiFi. At least social media and games are allowed. I’m not particularly interested in anything adult content, so haven’t checked that. I can also use the Internet whenever I please, including at 3AM should I so desire (which I occasionally do). I am pretty sure some other care homes would be more restrictive about this.

Overall, looking over this list, I think that, while things aren’t perfect, my care home is pretty good. Actually, I am quite sure it’s pretty much the best I can get.

loopyloulaura

Joy in February

Last month, I shared my one word for 2022: JOY. Today, I want to share an update on how I’ve been doing with this one word. I am joining the Word of the Year link-up, which I didn’t join in with last month (because I didn’t see it on time to join in), as well as Lisa’s One Word linky.

Overall, I’ve been doing pretty well remembering my word for the year and seeking joy in the ordinary moments. I didn’t experience any mind-blowingly delightful moments, but I did enjoy the everyday.

In particular, what I’m happy about, is that I found joy in the treats I could have every now and again now that I’m on a healthy food plan and don’t allow myself to indulge in whatever I please. Now that I have COVID, I’ve ditched the diet and am more or less allowing myself to eat what I want, but I’m still not overeating, thankfully. I mean, I have a bag of licorice on my table (under the guise of it helping with sore throat, which I don’t even have right now), which I could’ve eaten all in one sitting had I not been mindful. Instead, I am truly savoring each sweet.

I also enjoyed my creative hobbies quite a bit over the past month. Though in this respect, I still look to improve myself, I can still find joy in the mere act of creating. Earlier this week, I found intense joy in my first polymer clay color mixing experiment.

Because I sometimes struggle to find the energy to start “larger” activities such as polymer clay, I also asked my day activities staff about some easier to get started activities. She brought me a simple game with a board and insertable small pieces in different colors. I have been enjoying doing this activity with my staff or alone.

Lastly, I didn’t see my husband a lot over the past month, but I did enjoy speaking to him on the phone and texting him everyday. I obviously won’t say that seeing him less made me appreciate his visits more, as I wish we could have seen each other each week. However, it definitely was a lesson in enjoying the ordinary and delighting in the extraordinary.

Finally, both my husband and mother-in-law have been very sympathetic now that they know I have COVID. I am truly grateful for both of their thoughtful text messages. I also was positively surprised to get a call from my sister as soon as I posted about my positive COVID test on Facebook early Wednesday morning. You might think that the fact that I was surprised, means I view her negatively, as I assume most people expect their family to sympathize when they have COVID. While I admit this is in part true, I also think I shouldn’t take sympathy for granted.

2021: The Year in Review

Each year at the end of the year, I look back at the past year and do a review. Today, I’m doing one for 2021.

At the beginning of the year, we were all cautiously optimistic about the vaccine being the ticket out of the coronavirus pandemic. It wasn’t. I got my first shot in early February and my second shot a month later. In early December, I had my (first) booster shot. I’m pretty sure more are still to come.

At the end of 2020, I first had my one-on-one support approved. It took some time to figure out how the staff should best fill in the allocated hours. Initially, the manager wanted my husband to be clear on when he was going to have me home with him, so that my one-on-one hours could be canceled then. This wasn’t doable for my husband or me, so finally it was agreed that my hours would be filled in regardless.

For most of 2021, we had day activities at the home due to the pandemic. Thankfully, by September, the day center opened and the clients were mostly back to their pre-pandemic groups. I, however, was not. Thanks to my one-on-one, I was provided day activities in the home and this continues to be the case so far. There has been talk of me starting in a small group, but this isn’t doable for me right now or within the foreseeable future.

For the first half of the year, I struggled a lot with the battle inside my head between wanting to live more independently and wanting even more support. This led to a climax in mid-June, when the manager told me that more support is really not possible. I was in a crisis for about two weeks. Then I started my new medication, topiramate, which calmed some of the inner conflict. It, of course, helped that I was reassured that, regardless of my attempts to push staff away, I was going to keep my allocated one-on-one support hours at least until the end of December. And of course now they have been approved until December 2023.

Over the summer, when my topiramate started to kick in, I was able to be more creative than I’d been in a long while. I started polymer clay once again and have been able to enjoy this hobby ever since. Like I mentioned when I wrote down my hopes for 2021, I didn’t intend on doing it all independently and that’s still not one of my hopes.

Looking back at my hopes, I did pretty well on them for this year. See, I think it helps that I don’t call them resolutions or goals, ha.

Overall, this year was a pretty good one for me personally. Even in terms of COVID, it’s been as good as possible, in that I haven’t contracted the virus and neither has anyone else in my home. One of my staff tested positive recently and originally we were supposed to all get tested today. After conferring with the care agency’s pandemic team, this got canceled though. I may still get a lateral flow test later today just to be sure. Let’s hope I won’t end the year with COVID.

How has your 2021 been?