My Ideal Ways of Spending My Day

Posted on by Astrid

Hi everyone. I have been thinking about ways in which I would like to spend my days if I get to move to the main institution. Like I said yesterday, each client has their own day program, so they aren’t required to go to the day center by default. I also will keep my one-on-one support at least until December of 2023. In today’s post, I want to share my ideal ways of spending my days. These are things I might be able to implement should I remain here, but I’m dreaming big here and thinking of ways the institution could accommodate me too.

First, I would like to start my day in my room like I currently do. I don’t think I can handle eating breakfast in a group as of yet. That might change in the future. I would like to eat all my main meals in my room, but go to the living room for coffee breaks when I want to.

Ways I would like to spend my day, include crafting of course. I would really like to keep on doing my polymer clay work and maybe even sell it in the day center’s shop.

The day activities I am thinking the institution could help me meet my dreams with, are those related to sports and physical activity. I know the institution has a small swimming pool on grounds and I’d really like to use it. I’m not sure whether they might have exercise equipment too, like the type of equipment you’d find in a gym. If they do, I’d love to utilize that too.

The institution is in a rural estate area, so I’d love to go for walks on grounds. I’ll take my iPhone (by then, I might have a new one, who knows?) to take pictures of the beautiful nature.

I’ll hopefully at some point be able to take short walks on grounds on my own too. For that, I’ll need orientation and mobility training from the blindness agency, but I’m sure I can get that.

I may occasionally want to relax in a snoezelen® room. Then again, if I’m correct, I can keep my weighted blanket if I move within this care agency, so I might not even need a snoezelen® room.

I’ll probably also want to go to a day center every once in a while to socialize with other clients. The institution has three day centers I believe, but I’m pretty sure clients from the home I might go to won’t go to all three. That’s okay though, I’ll find out what suits me.

First Week With My Apple Watch

Posted on by Astrid

Hi everyone. I’m not sure whether this post is going to be a tech post or a health post or both, as I want to write about my first impressions of using my Apple Watch. I’m putting it under the “Tech” category, but sharing some of my health stats just so it doesn’t get boring. Oh wait, maybe my health stats are boring too. Oh well.

I got my Apple Watch series 7 on Monday last week, but didn’t get to actually use it until Tuesday evening, because then I got its case and screen protector. I know many people don’t use anything to protect their Apple Watches, but I’m happy I got a sturdy case and a glass screen protector, because I’ve bumped my watch against a wall, chair or table too many times to count already.

I familiarized myself with the use of the Apple Watch with VoiceOver first by reading Apple’s own support page on the topic as well as listening to the relevant podcasts on AppleVis. It’s sad that the Apple Watch user guides on there are all podcasts and none are in text format, because I process information better through my Braille display. One thing both the Apple support site and AppleVis say, is that you need to swipe with two fingers rather than one in order to scroll. I have found this to be incorrect. Either that or I’m doing something wrong all along, but swiping with two fingers does something really weird for me.

I prefer to change most of my settings in my iPhone’s Watch app rather than on the Apple Watch itself, because I do find the screen of the Apple Watch a little hard to navigate. I have chosen the “California” clock face, which is really cool.

I also read most of my stats in the iPhone’s Health app rather than on the watch itself. The reason is the fact that, firstly, they are all in one place there and, secondly, the Health app is easier to navigate than the apps on my watch. I might need some getting used to with, for instance, the heartrate app on my watch.

Most people who have an Apple Watch or know about it, are probably familiar with the activity rings. I did know they exist prior to buying my watch, but didn’t know what they represent. Your Movement ring shows your calories burned during movement relative to your goal. My goal is set to 300, which is slightly higher than the Apple Watch suggested for me (based on the activity my iPhone had recorded, I guess) but still low. The Exercise ring shows your minutes doing exercise, which is any movement equivalent to or more intense than a brisk walk. My goal is set to 20 minutes. Your Standing ring shows the hours you’ve been standing upright and in some motion for at least one minute. My goal is set to 12. The Apple Watch can count steps, but does not display them on the screen unless you install a third-party app for that. It does send your step count to the iPhone’s Health app.

Each week, I believe, you get a report on how you did compared to your goal and a suggested new movement goal for the week. Yesterday, my suggested goal was the same as the one I’d set.

On Apple Watch series 7 (and some older models too, I believe), you can measure your cardio fitness level. This is done using an estimate of the maximum amount of oxygen your body can process during movement (VO2Max). This is estimated during each brisk walk or run outdoors. On Friday, I had my first estimated cardio fitness level result and my VO2max was 22.9. This is “low” or so the watch said and it doesn’t get lower than “low”. As it turned out, at 24, I’d cross the border to “below average”. I managed this once.

I do want to add here that I got in nearly three times as many exercise minutes compared to my goal three times this week. I also reached 200% of my movement goal yesterday, burning 600 active calories. I actually burned off over 2200 calories that day and I hadn’t even been on the elliptical. Yay me.

Goals I Have in the Area of My Creativity #AtoZChallenge

Posted on by Astrid

Hi everyone! Welcome to my letter G post in the #AtoZChallenge. Today, I want to talk about goals I have related to my creative process. Here goes.

First, I obviously want to improve my skill and learn new techniques. With respect to polymer clay, I would really like to learn to make jewelry, such as earrings or beaded projects. I would also love to improve my color mixing skills.

I also may want to learn macrame, although I’m not 100% sure about that yet, as there’s still so much I can learn with respect to polymer clay and I’ve discovered I may not have reached my full potential after all.

With respect to my writing, I want to learn to write poetry that doesn’t look like a teen on drugs wrote it. I would also like to learn more about fiction writing. Of course, practice makes perfect, so I’ll really need to write more.

Secondly, my goal is to share my projects, when appropriate, more than I do now. I may really want to work on creating an Instagram profile. Either that, or I should share my projects on this blog or my personal Facebook profile more often.

I would also someday like to exchange my knowledge and skills with other crafters or writers. Of course, I do so online already, in Facebook groups, but I’d love to join a writing or crafting club or something. I’m not sure I’ll ever fit in with the polymer clay guild, as I need too much support with my craft. However, maybe I’ll someday be able to join in with some crafting workshops either online or in real life. I heard the American Council of the Blind organizes them online. Not for polymer clay specifically, but for crafting in general.

Lastly, I hope to continue enjoying the polymer clay art. This may seem obvious, but it can be quite the challenge, because due to my combination of perfectionism and impatience, I often give up when I don’t move forward in a craft quickly enough for my liking. I also dabble in quite many hobbies at once. Now, I really need to stick to just a few.

Where I Think I’ll Be in a Year’s Time Based on My Current Daily Actions #Write28Days

Posted on by Astrid

Hi everyone. Welcome to day four in #Write28Days. Today’s optional word prompt, “nesting”, didn’t quite speak to me. I also wasn’t really inspired to write any sort of in-depth personal growth article. Rather, I picked up a collection of journaling prompts called The Self Exploration Journal and chose a prompt I hadn’t used on this blog before. It asks us to reflect on where, based on our current daily actions, we can expect to be in a year’s time.

Now I know that my future is in God’s hands, not mine. I have no way of knowing where I will be one year from now. That however doesn’t mean that I can’t take daily actions to hopefully live a healthier and more enriched life. Today, let me share some things I’m doing to take care of myself and some things in which I could still improve on and what I think these will mean for my future.

First, last month, I started on a healthier diet. It’s been a rocky road and I’m still struggling to find my balance on it. During the first week, I felt like I was just eating lettuce and carrots and was disappointed that I’d lost only 0.5kg. Now, I think I’ve found a better balance, but I might’ve swung slightly too far to the other side again. After all, this week, I had a sausage roll for lunch on Wednesday and a cheese roll today. I still am losing weight (or at least, I had a maintain this week). Based on my overall daily actions, I can expect to probably have lost a few kilograms next year, but I can’t expect to be anywhere close to a healthy BMI. Then again, that isn’t my goal.

Given that I hardly walk or exercise in other ways lately, I can’t expect my physical fitness level to improve. It’ll probably have declined by next year.

Mental health-wise, I can expect to still be in treatment and take my medication as prescribed, but I can also expect to still be quite vulnerable. Of course, I am always hoping that the next med tweak or change of treatment will be the thing that’s going to help me stabilize forever, but I have to be realistic: that’s not going to happen.

In the creative department, I can expect to experience ebbs and flows. I will probably have improved my polymer clay craft, having explored mixed media. I will likely still be a blogger, publishing several posts a week at least.

Given that, even though I look at other living places almost daily but haven’t actively decided I want to move, next year, I’ll likely still live in my current care facility. I’ll likely still be married to my husband too.

In summary, I can’t expect anything major to change for the better in the coming year but I am hopeful that I won’t make a turn for the worse either. I am hoping for slight improvements in the healthy eating and crafty departments. And, of course, I do really need to get my behind off the chair, but we’re talking current daily actions and that’s not happening right now.

My Hopes for 2022

Posted on by Astrid

Hi everyone and a very happy 2022 to you all. Today, like each year, I am sharing some things I hope to achieve in the coming year. I don’t usually call them goals, let alone resolutions. I mean, I used to have a ton of New Year’s resolutions when I was a teen, but these went out the window come Blue Monday. Not that I’d ever heard of that date at the time, but it was still what happened. So, hopes. Here are my hopes for 2022.

1. Get to a less stress-filled (I originally typed “less stress-free”), relatively healthy diet. I already eat relatively healthily at least if I look at my hopes for last year, in that I consistently eat two to three servings of fruit each day. I have also ditched the cookie with my morning coffee. My idea of experimenting with eating bread rather than crunchy muesli for breakfast, went out the window pretty soon and I’m not likely going to give it another try.

That being said, I could still improve on my lunches and make healthier snack choices. Besides, I would really like to stress less about food. For this reason, my staff got in touch with the dietitian, who is going to E-mail her a list of tips and recommendations based on my current food list this coming Tuesday.

2. Remain stable mentally. I am pretty stable mental health-wise already. I hope I will remain relatively sane as I adjust to my increased topiramate and later my decreased aripiprazole in particular. Of course, my aripiprazole taper might not be over with by the end of this year.

3. Keep writing consistently. I started a morning writing ritual today. Officially, I decided on Morning Pages, which dictates you have to write three pages. Then again, this is done by hand and I cannot do this anyway. I’ll be content if I can keep up the writing habit each morning even if I don’t make it to 750 words.

I did pretty great on my blogging over 2021, having written 303 posts over the year. I’d really like to write at least as many posts this year.

I would also like to broaden my horizons where it comes to my writing styles, writing more creatively.

4. Expand my creativity. Particularly, keep up with my creative hobbies. I did quite well on those over the past year too, having rediscovered polymer clay. I’d really like to improve my skill, but, like last year, don’t intend on doing the work all by myself.

I would especially like to discover some things to make myself rather than just copying from YouTube. Of course, I already select my own colors and do some things differently than in the tutorials, but I’d really like to expand on my creativity.

I will continue to do my own version of The Artist’s Way. I mean, I can’t take myself on artist’s dates completely solo because I can’t leave the house independently, but so what? My inner artist wants to be released just as much.

In line with the above, I’ll also experiment more with making my own essential oil blends and such rather than just copying recipes I find online.

5. Get back into the reading groove. This was a massive fail in 2021. One of my bookish resolutions for 2021 was to read 20 books. Well, I didn’t even reach half of that. See, I should’ve called them hopes rather than resolutions. Anyway, I’m not setting a number for myself right now, but I do hope to read some more than I did last year this year.

6. Socialize more, be it online or offline. COVID permitting, I’d like to go to the rescheduled Cerebral Palsy Day in April and to a regional Eye Cafe. This is a meeting of the Eye Association, which I joined in late November. I may also want to join the regional CP Cafe, which is held online on January 8. In addition, I’d really like to join online and hopefully at some point offline meetings related to my hobbies.

7. Deepen my faith. My faith really went in deep ebbs and flows over the past year and that’s not good. Thankfully, I didn’t lose my faith altogether. In fact, I signed up for an introductory course on Christian doctrine at BiblicalTraining.org last Thursday to get myself back in tune with what I believe. I really hope to be working on my relationship with God through Jesus Christ more this year.

What are your hopes for 2022?

Mama’s Losin’ It

Also linking up with #LifeThisWeek.

Childhood Ambitions

Posted on by Astrid

Last week’s topic for Truthful Tuesday was what we as children wanted to become when we’d grow up. I already discussed this at length last year, so really didn’t feel like boring my readers with the same old stuff again. I mean, I didn’t end up becoming a professor, a psychologist or a published author, or for that matter any of the other things I wanted to be when I’d grow up. Then I saw the topic is being continued this week. That got me thinking. Maybe, if I look at it differently, I did fulfill some of those childhood ambitions.

For example, I may not be a published author yet. Well, I am, if you count that one short piece of writing published in an anthology back in 2015. But I hardly count that. What I do count, is my blog. Back in my childhood years, the Internet hardly existed, so if I wanted my diary published, like Anne Frank, I’d have to have it traditionally published. Well, thank goodness I don’t strive for that at all now. If I’m ever going to get anything published in print in the future, it will be something much better than those crazy diary entries. But I digress.

Another ambition I reached, is inspiring others, including professionals. As a young teen, I wanted to become a psychologist so that I could help improve care for children or people in general with complex care needs. Though I’m not even a peer support worker by qualification, I have given informal lectures to medical students and other professionals.

Thirdly, I have vastly expanded my knowledge of psychology, education and related topics. I may not actually be of value to anyone with this knowledge except in the ways I mentioned above. However, if you asked my parents what my ultimate passion was as a child, they’d invariably say “collecting knowledge”. I may not have graduated college or even come close. I may live in a long-term care facility for people with intellectual disability. I may not be as much of a nerd as I was when I was younger. However, I still definitely use my brains.

Other ways in which I contribute to the world that I couldn’t even imagine as a child, include my creative endeavors. I bring a smile to my fellow clients’ faces when I bring them handmade gifts. I also am much more empathetic and sensitive than I could’ve imagined I would be. That makes me much prouder than having achieved my high level high school graduation.

What childhood ambitions did you manage to fulfill?

Mid-Year Reflections

Posted on by Astrid

Hi all. How can it be the middle of July already? It’s amazing how time flies. This week, one of Mama Kat’s Writer’s Workshop writing prompts is to look back at your new year’s resolutions for 2021. As I do each year, this year I called them hopes rather than resolutions as a way of lessening the pressure. As I look back though, I seem to be doing pretty well.

My first hope was to eat a somewhat healthier diet. Indeed, I am making sure to eat enough fruit and veg each day, unlike apparently during the last few months of 2020. I however still struggle to make healthier breakfast and lunch choices.

In the exercise department, I’ve not been as inventive as I’d hoped. I blame COVID, as, even though gyms reopened to the public a while back, I haven’t felt comfortable to go.

With respect to getting stable mentally, this is a work in progress. I’ve only actually noticed some seemingly significant improvement over the past month or so, after first falling deep into crisis in mid-June. I cannot say for sure the one-on-one support is helping me get mentally stable, but I do know for sure that I certainly don’t want to go back to the situation before the extra care hours were approved.

Faith-wise, I am still on my journey with God. I pray everyday, read the Bible everyday and am learning to put Jesus first. I am however still struggling. I really want to get baptized, but have no idea where to start, as I don’t currently even go to a physical church. More importantly though, I am still regularly tempted to think that, since God is in charge, I shouldn’t even bother with wanting to be saved.

On the leisurely side of things, I’m doing pretty amazing if I can say so myself. I have kept up a pretty good blogging routine and actually love jewelry-making and bath and body product making again. I am glad I didn’t resolve to be able to do these activities independently, as that’d be an unrealistic goal.

The only area I’m not that satisfied with myself about, is my reading. I did a separate post on bookish resolutions for 2021. I guess I should have called those hopes too, as to be honest, I haven’t really met a single of my goals as of yet.

How did you do on your new year’s resolutions so far?

Mama’s Losin’ It

A Perfect Health Day

Posted on by Astrid

I can’t remember when or why I bought the book 1000 Journal Prompts That Will Transform Your Health by Sophia Ley, but today, I felt myself drawn to it. In it, one of the prompts asks us to describe a perfect health day. Here goes.

I get up at 8:30AM. I start my day with prayer. This may not be a direct physical health habit, but it certainly helps me get in the right mindset for focusing my day on what’s right. I then get showered if it’s a day I do this or else I get a quick wash.

After I get dressed, I eat breakfast. I eat yogurt with a little crunchy muesli. This may not be the healthiest food choice physically, but it is something I definitely love and don’t really feel I want to give up on. I also eat some fruit.

After breakfast, I take a little break for writing in my journal and Bible reading. Then I go on the elliptical for 20 minutes. I’m assuming it’s a weekday. If it isn’t, I can go for my first walk instead, as my one-on-one will be there. In that case, I’ll go on the elliptical during the afternoon.

When my day activities staff arrives at 10:15AM, I have coffee. I don’t have a cookie with my morning coffee.

Then I go for a walk of about 25 to 30 minutes. After this, I usually will have some time left to do some of my crafting before my staff goes to help prepare lunch.

For lunch, I have two crackers or slices of bread with peanut butter or jelly. Again, these aren’t the healthiest food choices I can imagine, but way healthier than my current choices of lunch food on most days. I also have some slices of cucumber or some cherry tomatoes and a serving of fruit. I will have another serving of fruit in the evening.

After lunch, I will spend some time doing weight training and resistance band exercises. Then, when my staff returns from their lunch break, I’ll go for another 25-minute walk. Then I’ll have another cup of coffee, again with no biscuit.

I will spend the rest of the afternoon on my hobbies, such as blogging or reading. In the evening, I will go on two more walks with my one-on-one. In total, I will reach my goal of 10K steps.

I will have my evening meal from the meal delivery service as usual. For dessert, I will have a small serving of fruit yogurt.

In the evening, I will drink green tea rather than coffee. Throughout the day, I will also make sure I drink at least two liters of water. This means I will have a glass of water after each walk and with each meal, as well as with each medication round. I will obviously take my medications as prescribed. When it’s a perfect health day, I hope I won’t need my painkillers anymore, but that seems to be beyond my control.

I will brush my teeth twice a day, morning and evening. At 9:30PM, I will start to unwind for bed. I will say a prayer. Then, I will diffuse a relaxing essential oil blend and start a soothing sound track on Spotify. I will go to bed at around 10PM. I will probably fall asleep within half an hour and have a good quality of sleep.

Looking over this, some of these things seem relatively easy to include into my day. Some are harder. Of course, I didn’t take into account the possibility of a severely rainy day when I can hardly go for walks. I’ll have to think of alternative ways of getting active then.

My Declaration for My 36th Year of Life

Posted on by Astrid

Like I mentioned before, I turned 35 on Sunday. A few months back, I had downloaded a birthday journaling tool from the International Association for Journal Writing website. I didn’t really get to journal about any of the prompts in it, but one that stuck out to me is to write your declaration or decision for the upcoming year. It sounds a bit like an affirmation, but I’ll not just repeat it to myself. Rather, in this post, I’ll describe steps I can take to make my declration work.

First, my declaration is: “I will thrive, not just survive.” I will focus the 36th year of my life on improving the quality of my life in some major areas.

I have been debating whether in the long run, I want to stay in my current care home. I’m not yet completely sure, but my aim is to focus on getting as close to my ideal as I can get. However, it may take several more years to find me a more suitable care home, if we can find one at all. This means that I’ll need to focus on improving my quality of life with the resources I have available now.

To make this happen, I’m trying to focus on moving from anxiety and obsessiveness into some level of enjoyment, possibly even happiness. I took the first steps by writing down some things I may want to improve on during my day activities time. For example, I’d like to learn to do some more activities other than blogging and reading by myself, so that when staff leave, I am not completely left out. Today, I tried to work on a bracelet on my own and it worked.

This evening, some kind of staff supporter came round my care home to observe the staff as they care for several clients, including me. She recommended that, when staff leave me, they give me a soft toy to indicate I’m not alone. This also might ease my obsessign over the time they’re going to leave.

I also will be looking into starting some “bigger” project, like a course, again. I don’t think I’ll want to do Open University again, but maybe some hobby-related course.

I’m also thinking of acquiring a small fridge and simple microwave for in my room. That way, I will be able to make soap and body care products in my own room rather than in the overstimulating kitchen, so I should hopefully be able to do more by myself. Then, I’ll hopefully be more satisfied in my activities.

To sum it up, I will try to focus my attention away from ruminating about the past or future and onto enjoying the present. This is probably the hardest part. I am reminded of a Center for Consultation and Expertise case video about a young woman with lots of challenging behavior, for which the staff kept countless checklists of her behaviors etc. They were aiming to manage her behavior, but once they moved away from this and onto looking at how she can have a good day, the behavior also decreased. This might be the case for me too.

Five Daily Actions for Wellbeing

Posted on by Astrid

A long time ago, I read somewhere that doing five small things for your health and happiness each day, will get you started on a journey towards the bigger goals. Today, I came across a journaling prompt that explained that not all goals have to be big and asked what small goals you’re working on right now. I’m pretty sure I listed my five daily actions already before, but cannot find it right now. In any case, if this is a repeat, I’ll no doubt have changed something from when I did this before. Here are five daily actions I can take, and in many cases am already taking, to improve my health and happiness. Most of these are focused primarily on my mental and spiritual wellbeing, but the mind, body and soul are interconnected. This means that, ultimately, I’ll hopefully feel more physically healthy too.

1. Read the Bible. I am currently on a 142-day streak in the YouVersion Bible app. It’s not always easy to commit to reading my Bible, but I am motivated by both a wish to please God as well as my stats. I have found that I don’t do well reading the Bible in order and I have no intention of reading the entire Bible in a year. Instead, I started with a Bible reading plan and, when I finished it, started another. That way, I am not just reading the Bible as if it were a novel, but truly paying attention to its meaning. I just completed my thirteenth plan on YouVersion today.

Bible reading helps me feel connected to God. I really want to connect to other people on the app too, so that we can study together. That’s my goal for the upcoming month: find people to fellowship with.

2. Pray. This is something I really need to get woven into my routine. My husband prays the Lord’s Prayer each morning as he gets up and maybe I should do the same. I do pray almost everyday, but not at set times.

3. Journal. I have the Day One journaling app and really like it. Even so, I struggle to write in it each day, even though I have two reminders on a day: one for the daily prompt and one just to write. Last week, I resolved to write at least a few sentences each day, but I didn’t really follow through. I am pretty sure though that, when the A to Z Challenge of April is over, I’ll want to continue writing everyday. Since I’m not requiring myself to blog everyday then, it’d really help if I wrote in Day One everyday.

4. Be more mindful. This is a less measurable goal, but I can include some simple breathing or body scan exercises into each day. Not doing this at the moment, as some of them feel contrary to the Christian faith. Scratch that and insert another excuse that isn’t holding God responsible. Breathing exercises and body scans aren’t anti-Christian. I guess I just feel like this, like prayer, is something I struggle to find the discipline for. It also feels kind of scary, I guess, but I trust that will get better with practice.

5. Gratitude. Another less measurable goal, but I really want to be more appreciative in life. Now that I’m going to use Day One each day anyway as I journal, I could just add a simple gratitude list (or one grateful if I can’t make a list) each day too.

In addition, I would really like to improve on my expressing kindness and gratitude towards others. I will get to thank my staff and others for what they do more.

What are some daily practices that will enhance your wellbeing?

Joining in with the Wonderful Wednesday Blog Hop and Let’s Have Coffee.