My Ideal Ways of Spending My Day

Hi everyone. I have been thinking about ways in which I would like to spend my days if I get to move to the main institution. Like I said yesterday, each client has their own day program, so they aren’t required to go to the day center by default. I also will keep my one-on-one support at least until December of 2023. In today’s post, I want to share my ideal ways of spending my days. These are things I might be able to implement should I remain here, but I’m dreaming big here and thinking of ways the institution could accommodate me too.

First, I would like to start my day in my room like I currently do. I don’t think I can handle eating breakfast in a group as of yet. That might change in the future. I would like to eat all my main meals in my room, but go to the living room for coffee breaks when I want to.

Ways I would like to spend my day, include crafting of course. I would really like to keep on doing my polymer clay work and maybe even sell it in the day center’s shop.

The day activities I am thinking the institution could help me meet my dreams with, are those related to sports and physical activity. I know the institution has a small swimming pool on grounds and I’d really like to use it. I’m not sure whether they might have exercise equipment too, like the type of equipment you’d find in a gym. If they do, I’d love to utilize that too.

The institution is in a rural estate area, so I’d love to go for walks on grounds. I’ll take my iPhone (by then, I might have a new one, who knows?) to take pictures of the beautiful nature.

I’ll hopefully at some point be able to take short walks on grounds on my own too. For that, I’ll need orientation and mobility training from the blindness agency, but I’m sure I can get that.

I may occasionally want to relax in a snoezelen® room. Then again, if I’m correct, I can keep my weighted blanket if I move within this care agency, so I might not even need a snoezelen® room.

I’ll probably also want to go to a day center every once in a while to socialize with other clients. The institution has three day centers I believe, but I’m pretty sure clients from the home I might go to won’t go to all three. That’s okay though, I’ll find out what suits me.

The Wednesday HodgePodge (August 31, 2022)

Okay guys, it’s Wednesday again and this means it’s time to join Joyce for the Wednesday HodgePodge. This week, several of Joyce’s questions are related to Labor Day, which is, what, this coming Monday? Time certainly flies. Here are Joyce’s questions.

1. Something you’ve labored over recently?
Nothing really. I don’t have any large projects I’m currently working on, even though I do need to start thinking about what to create for my husband in honor of our wedding anniversary on September 19. I’m in a crafting rut, honestly. I am, however, working hard on my physical fitness. Does that count?

2. How will you rest on Labor Day?
I probably won’t. It’s a regular Monday here in the Netherlands, so I do have my usual day activities. That being said, if I want to rest, I can do so every single day.

3. Margaret Mead is quoted as saying, “I learned the value of hard work by working hard.” Would you agree? Where and how did you learn the value of hard work?
I don’t think I agree. I worked quite hard in school and college, to the point of autistic burnout, but I wouldn’t necessarily say I value hard work all that much. If anything, by working this hard and subsequently suffering burnout, I learned the value of self-care and rest. Then again, I do realize I’m privileged in this respect, in that I got on disability benefits without any trouble as soon as I turned eighteen and sailed through every re-assessment without any difficulty too.

4. It’s National Eat Outside Day (August 31st). Will you? Do you enjoy dining “al fresco” or do you prefer indoor seating?
I had no idea it was eat outside day in the U.S. and it’s past my dinnertime now, so no, I didn’t. I don’t like eating outside anyway.

5. Somehow it’s the end of August. What was the best day of the month for you and tell us what made it so?
The best day of the month was probably the day my husband took me for a drive to Enkhuizen, 100km away, just for some fish. Either that or last Monday, the day I scored 200% on my Apple Watch’s Movement goal, 300% on my exercise goal (but somehow there’s no medal for that) and received reassuring news on my latest health scare. You see, over the weekend when I was in Lobith, my husband noted a large mole on my back and told me to see my doctor about it. Thankfully, it was nothing to worry about at this point and my staff suggested we keep the picture they took for reference should the mole change.

6. Insert your own random thought here.
Today was the last shift for last year’s student staff here. She treated us to French fries and snacks, strawberry cake and she gave me two bars of chocolate. And not just any chocolate, they were stroopwafel chocolate bars. Stroopwafels are my favorite type of cookies, so this is truly awesome. I gifted her a handmade bracelet. She did joke that, since I have money to buy myself an Apple Watch, I should’ve bought her a new phone. After all, her old iPhone was in horrible condition and I’d been nagging her to buy a new one for months, which she finally did a few weeks ago (well, a refurbished one, which I personally would never do). I think she’s happy with the bracelet though.

#WeekendCoffeeShare (August 20, 2022)

Hi everyone. I’m joining #WeekendCoffeeShare today. Even though I was late having my last cup of coffee this evening, I’m even later writing this post, so sorry, no coffee left for you. We do have soft drinks though or you can have water or maybe I can make you a cup of tea. That being said, I’d advise against black tea, since it’s at least almost my bedtime by the time I finish this post. Oh wait, this is a worldwide gathering over virtual coffee or tea or whatever we like. Let’s have a drink and let’s catch up.

If we were having coffee, I’d start out by asking how your weather is. Ours has been good all week, with temperatures rising to 30°C on Tuesday and in the mid to upper twenties (Celsius) during the rest of the week. Some days, it was too hot and especially humid for walking, but other days, it was just the right temperature.

If we were having coffee, I would tell you I’ve been busy thinking of what to create for the fellow resident who has his birthday next Thursday. After all, originally I intended on creating a canvas with polymer clay cookie cutter shapes of a car and the letters of his name on it, but the cutters for the letters won’t work with polymer clay, because the inside parts of some letters are much shallower than the outline. I thought about buying different cutters, but my husband came up with the idea of glitter stickers. They had them at Hema, a department store here, or so he thought. Not at the one we were at today, so I ended up buying regular letter stickers. Thing is, these are much smaller than I’d intended. Besides, I’m not sure stickers will stick onto painted canvas. I’m probably just making a card with those stickers and then doing the polymer clay car in some other way.

If we were having coffee, I’d share that I’m quite discouraged where it comes to my possibly moving to another care home. I had a meeting with some people from the main institution for my care agency three weeks ago, but haven’t heard from them. Other than that, I found out yesterday that the only place the care consultant applied for me at is a senior citizens’ assisted living facility that happens to cater to the blind. In a way, I can see his point, in that my funding is based on blindness and, in this sense, an intellectual disability facility like my current one has to tweak stuff in order to accept me. That assisted living facility is probably the only place within an hour’s driving distance from Lobith that accepts blindness-based funding. Then again, other than them catering to the blind, I can see absolutely no reason why the place would be suitable. And honestly, them catering to the blind may in fact be a drawback, as it means I can’t use my blindness as an “excuse” to explain complicated difficulties of mine by, hence my needing to explain myself in detail. That really has caused me extreme problems of being overloaded in the past. I mean, it would be okay if the staff knew blindness and cerebral palsy and autism and emotional developmental dysfunction and all the issues that cause me to struggle greatly in real life, but as far as I’m concerned most of these don’t affect the elderly in particular.

If we were having coffee, I’d try to end on a positive note though by telling you I had a good time with my husband today. He was originally supposed to be here by 1PM, but got stuck in traffic and couldn’t be here till 2PM. He almost turned around, because we had a misunderstanding about it, but he eventually got here and then we drove to Enkhuizen. Enkhuizen is a town about 100km from Raalte, so halfway across the country. My husband wanted to have fish, but not here in the east, which was his excuse for driving there. Then we walked around the town center, going to Hema for those stickers I mentioned above. Then we drove back to Raalte, grabbing a McDonald’s on the way in Kampen. I had a Mexican style crispy chicken, which was huge and delicious but not overly spicy. We really want to be taking more day trips together.

How have you been?

Unicorns, Of Course! #SoCS

Unicorns are my favorite mythical creatures. When I saw that this week’s prompt for Stream of Consciousness Saturday is “U” – to start your post with a word beginning with the letter “U” -, I of course had to go with “unicorn”.

Not that I know much about the origins or meanings of unicorns. I mean, I love reading chapter books about them, in which they are always described as having magical powers. For example, in the Branches Books early chapter book Bo’s Magical New Friend, a unicorn tries to help discover her friend’s power. In a chapter book for slightly more advanced readers, Twilight, Say Cheese! by Daisy Sunshine, a unicorn has trouble containing her power of invisibility.

In addition to books, I love stuffed unicorns. I have two. One is Sophie/Rainbow, who has two names because two of my blog readers independently came up with names for her. She is a white unicorn with rainbow-colored mane. The other is completely white and I call her Snowflake.

I also love crafting unicorns out of polymer clay, though I haven’t done it much lately because I haven’t found a way to prevent the thing it stands on from bending and/or developing air bubbles. I do really want to create another unicorn soon, but am too busy with the presents for various people to get to that one. I already have the colors I want to use for my next polymer clay unicorn though. It will be three different intensity levels of a bright green.

An Engaging Wednesday

Hi everyone. I originally wanted to title this post a “creative”, then “inspired” Wednesday. Both fit, in a way, but neither fully captures the essence of today. Not that “engaging” does, but I ran out of adjectives to think of. I spent the day crafting and watching personal growth YouTube videos and that’s what I want to talk about. Oh, I could just have written “A day spent crafting and watching YouTube videos” as my post title. Then again, that’s too long.

In the morning, I finished a YouTube video in which an enneagram geek talked about annoying things type Fours say and do, then watched another of her videos about things to know before dating an Eight. No, I’m not looking to find another lover. My husband is an Eight and I just thought it funny to learn about all the stupid mistakes I’d made all along. Of course, I could just listen to my husband (that’s the first tip!).

Re the other video, I may write a separate blog post listing all the ways in which I relate to all these annoying things Fours do and say. And yes, I related completely to all but one of them.

Then, when my day activities started, I had my morning coffee, then went for a short walk while it was still cool enough outside. My orthopedic shoes arrived yesterday and I can now actually walk on them without any pain. I won’t get my hopes up, because I have been saying all along that they won’t be ready until 2034 and that’s exactly when World War III is going to start according to a book by that title. I am too superstitious to admit publicly that my shoe problem is over yet.

After my walk, my staff and I drove to the supermarket for quark, which I eat for breakfast. We also both got ourselves a sausage roll for lunch and she treated me to ice cream cones. Of course, I just ate one today and she had one too, so the rest are in the freezer.

In the afternoon, I first used my alcohol inks that I’d bought at Action several weeks ago. I had finally managed to create earring pieces that didn’t have air bubbles in them and was going to add a little alcohol ink to them for some extra color. The pieces haven’t been turned into actual earrings yet.

Then in the evening, I crafted the last of the polymer clay beads I’ll need for the necklace I’m making for the person from the other care home. I’m probably going to put together the necklace tomorrow. Overall, it was a good day.

#WeekendCoffeeShare (August 6, 2022)

Hi everyone on this first Saturday of August. Okay, that starting phrase gets boring, but who cares? Well, me, but I can’t think of any better way to start my post. I’m joining #WeekendCoffeeShare today. I’ve had five cups of coffee already today and it’s mid-afternoon. Want one too? I hope I haven’t used up the whole pot. Well, it’s a virtual coffee share. Let’s have a coffee and let’s chat.

If we were having coffee, I’d ask about your weather as usual. Ours has been mostly warm, sometimes hot. On Wednesday in particular, the daytime temperature rose to 31°C. Today, it’s only about 21°C. I even wore long sleeves this morning when going out for a walk.

If we were having coffee, I would share that I discovered a function I hadn’t previously known about existed in JAWS, my computer’s screen reader. When you press INSERT+4, INSERT being the designated JAWS key, JAWS displays a menu with special characters to select from, such as the euro sign, the degrees sign I used above, etc. Before I knew about this function, I’d do a Google search for something that’d pop up the character I wanted, copy/paste it into a text document and copy/paste from that document to my blog. However, if I wanted a character that wasn’t yet in the document, I’d need to do a search all over again. Besides, it’d mean having to open a separate app, in this case Notepad, and copy/pasting from there rather than selecting the character from the menu.

If we were having coffee, I’d share that, today, I started on 25mg rather than 27.5mg of aripiprazole (Abilify), my antipsychotic. So far, so good, but I’m not expecting any effects as of yet, as aripiprazole has a half life of 72 hours and the dosage decrease is so small anyway. This is my second decrease out of possibly twelve, each taking three months. That’s an incredibly slow taper, but it’s this way so that any possible changes in my mood and/or behavior can be observed over time.

If we were having coffee, I would tell you that I’ve been busy crafting this past week. Someone from a neighboring care home has her birthday next week and a fellow resident from my care home has his birthday on the 25th. I asked the woman who has her birthday next week what her favorite color is and she immediately understood why. “Ah, you know when I have my birthday!” she exclaimed. Of course, I didn’t reveal anything else. I am creating a necklace with all polymer clay beads for her. I did this for someone else, who had her birthday at the end of January, and back then it’d taken me weeks to create all the beads. Now, I was able to do half of them in one day. The other half is a little harder, because that color of clay is more difficult to work with.

For the man who’s having his birthday on the 25th, I bought a canvas, which I painted black this week and am going to decorate with polymer clay cookie cutter shapes once I’ve finished the necklace. I am doing his name and a car. Since the challenge theme for this month in the Dutch polymer clay Facebook group is mixed media, I’m also thinking of including some other technique, but I’m not yet sure what.

If we were having coffee, lastly I’d share that today, my husband went to get his new-to-him car, a Fiat Panda. He’s coming for a visit tomorrow. We originally thought of driving to some town or city in the area, but neither of us can think of an interesting one, so we may just go to Subway to have lunch.

How have you been?

The Wednesday HodgePodge (August 3, 2022)

Hello all! It’s Wednesday again and I thought I’d join in with the Wednesday HodgePodge. Here goes.

1. Do you have a sister? Tell us something about her. If you don’t have a sister, tell us about a friend who has been like a sister. Or tell us about a sister-in-law if you have one who is extra special.
I have one sister. She is two years younger than me, although when we were kids, people always thought we were either twins or she was the older one. She always envied me because I got more attention from our parents than she got (though it was mostly negative attention). In terms of the roles often described in dysfunctional families, she was the lost child, while I was a strange mix of scapegoat and golden child.

Currently, she lives in the far northwest of the country, close by the sea, with her husband and two girls. She will be starting training to become a childcare worker soon.

2. Resister, assister, insister, persister…choose one and explain how it relates to you and your life lately.
All of them relate to me in some way. Well, maybe except for “assister”, in that I don’t really assist anyone myself, but rather am on the receiving end of assistance. As for “resister” and “persister”, they usually go hand in hand, in a kind of paradoxical way.

3. Share a favorite song, book, movie, or television program that features sisters.
A book that’s been turned into a movie comes to mind: My Sister’s Keeper by jodi Picoult. It was the first Picoult novel I read, before I knew killing off her characters was her way of writing (oh, sorry if that’s a spoiler, but the book and movie have both been out forever). In this book though, it made sense. In others, not so much.

4. August 3rd is national watermelon day…are you a fan? Do you like watermelon flavored candy? Besides eating the melon as is, do you have a good recipe made with watermelon?
I do like watermelon, but it’s not like I’m a huge fan. I’ve never had watermelon-flavored candy, so no opinions on that. I don’t really know a recipe with watermelon, but I still need to try it in my fruit infusion bottle. I did try a few pieces of a galia melon in it, but that didn’t taste good.

5. ‘Tis August…what are three things you’re looking forward to this month?
Crafting quite a bit. Several fellow clients at the care facility I know well have their birthdays this month and I want to create them a present. Seeing my husband’s new-to-him car, that he will be getting on Saturday. Maybe driving to some nearby town or city we haven’t been to yet with my husband.

6. Insert your own random thought here.
I am so glad that my crafty mojo seems to be returning in time for these fellow residents’ birthdays. Also, if you all have any idea what I could create for my husband’s and my wedding anniversary on September 19, I’d love to know. I bought a heart-shaped canvas that I can decorate with paint, polymer clay and/or other media, but I am truly out of ideas as to what exactly to do.

Joy in July

Hi everyone. It’s nearly the end of the month and this means it’s time for me to update you all on my word of the year. As usual, I’m joining the #WOTY linky, as well as Lisa’s One Word linky. My word of the year, as I’ve said before, is “JOY”.

Early in the month, I had a horrible setback, as I got the news that my now former assigned staff would be quitting her job at my care facility. This caused some major sadness and emotional turmoil in me, but after a while, I was able to channel it into something good by creating something for her – a polymer clay hedgehog. I enjoyed the creative process and the smile I brought to her face when I gave her the gift.

Overall, I did find that my joy or lack thereof was more than in the previous months tied to my material success, in the sense that, if I felt I was failing at a crafty endeavor, I didn’t enjoy it either. The same goes for my blog: I was ecstatic when reading all the positive comments to the poem I wrote last week, but didn’t enjoy writing when I had the idea that I wasn’t “successful” in my blogging.

Similarly, my joy is also more tied to material possessions than it used to be. For example, the day my former assigned staff left, I ordered a stuffed dolphin for comfort. While this did help me, maybe at other times I would’ve been able to seek joy without having to spend money. I am not saying spending money on comfort items is necessarily bad, but ultimately, they aren’t material things that will bring me joy.

Joyful experiences included a visit to the trampoline on the last day my now former assigned staff worked my one-on-one shift, eating out with my husband and a visit from my sister and her family. While they involved material things too, in the sense that we spent money on the dinner and my sister gave me some beautiful belated birthday gifts, the experiences themselves were truly great.

In some good news, I did do some Bible reading everyday again this week, while I’d hardly done any over the rest of the month. It is causing me a lot of emotions.

Overall, the month of July was filled with some high peaks but a lot of deep lows too. I must say though that, considering the impact of my staff leaving, I was expecting much worse. I really hope the month of August will be better.

#WeekendCoffeeShare (July 23, 2022)

Hello everyone on this fourth Saturday of July. I’m joining #WeekendCoffeeShare today. It’s been a few weeks. Let me share what’s been going on.

If we were having coffee, I’d ask how your weather is. We haven’t had an official heatwave here, as we had only three days of daytime high temps above 25°C. Then again, on Tuesday, the temperature reached 39°C. That’s not a record, for your information: the Netherlands’ official all-time heat record was reached three years ago and it was almost 41°C.

If we were having coffee, I would tell you that, on Monday, I took a trip into town with my staff. I had to get some toiletries and new baby wipes (which I use for cleaning my claying supplies). I also went into Action, a discount store, actually looking for origami paper. I didn’t find any, but did buy some clear stamps, a stamping pad, blank cards and alcohol ink. As it turns out, I will most likely only be able to use the alcohol ink for my clay, and I’m not 100% sure how, as it contains glitter. I mean, that may damage my pasta machine rollers, so I may need to only roll by hand when I’ve used this alcohol ink. I might find other uses for the other supplies. I was thinking of starting up simple card making again. Now my past self is laughing and telling me “No!” in a firm voice at the same time, but I’ve already decided not to invest any more money into it. If I can’t do this at all, that’s €4,95 wasted, but some people at the day center may still be able to use my supplies.

If we were having coffee, I’d share that I’ve been loving coming up with some ideas for my polymer clay. I’ve also been watching a lot of YouTube tutorials. I’m still not actually crafting much, but that will hopefully change soon, as I managed to blend three different intensities of the same color green that I intend to use for a unicorn. Let’s hope this unicorn turns out great!

If we were having coffee, I would share that I really need to mind my food plan again soon. I am still just overweight as opposed to obese, but I do need to watch out that my weight isn’t creeping back up. On Monday though, my sister and her family will be here for a belated birthday visit and we’re going to order pizza I think. That will be the fourth time in a month that I’m either eating at a restaurant or ordering takeout. After that, I’ll seriously watch my diet. I’m already trying to make sure I’m not having too many treats. For instance, yesterday I was hungry mid-afternoon and decided to have some carrots rather than going for my licorice. I think that counts for something.

If we were having coffee, I would resist the urge to rant about my appointment with my psychiatric nurse practitioner and the care facility’s behavior specialist on Tuesday. It was really frustrating, but I’m not ready to share the details. I would instead refill your cups and ask you how you are.

The Wednesday HodgePodge (July 20, 2022)

Hi everyone. I haven’t posted in a few days, because I was too tired from the heat. It’s still quite hot here, but I feel okay now. Today, I’m joining the Wednesday HodgePodge. Here goes.

1. Last time you drove more than 100 miles from your home? Where did you go?
I don’t drive, but I’m assuming riding in the passenger seat counts too. That being said, the last time my husband drove more than 100 miles with me in the car, was probably eight years ago when we went on a short vacation to the Black Forest in southern Germany. We drove in our Kia Rio, which we later found out deserves its acronym, “killed in action”, because shortly after that trip, the car crashed on the highway and my husband could just about move it onto the shoulder before it completely malfunctioned. We thought we had the problem fixed, but it developed the same problem that had caused it to crash back then again half a year later. Needless to say we sold that car. We’re thinking of going back to the Black Forest this September, but my husband has a really small car now, so he might want to replace that one first.

2. Something that drives you batty?
WordPress’ ever-increasing number of ads on free sites. I hope at least that, since I have a paid plan, they aren’t displaying on mine.

3. Do you feel like you’re “on track”? For what?
In my blogging life, I don’t feel as though I’m “on track”, but maybe that’s just my feeling. I mean, I really would’ve wanted to write at least as much this year as I did in 2021 and, up till the month of June, I was keeping up nicely. Now though, I’m not.

Similarly, I have a ton of craft projects waiting for me to finish them. Not that there’s a timeline for those to keep track of, but it does sort of feel as though I’m losing track anyway.

4. Your favorite car snack(s)?
Licorice and winegums (gummy candies).

5. Something you’ve done recently “on the fly”?
Nothing really. I plan most of my activities at least some time in advance. That being said, I do buy things impulsively at times. Does that count? In that case, going to Action (a budget store) in town and buying some random craft supplies last Monday. The trip into town was planned, and I had sort of planned to go to Action too, but I hadn’t planned to buy any of the things I ended up buying.

6. Insert your own random thought here.
Yesterday, I had a review with my nurse practitioner from mental health and the behavioral specialist from my care facility. I could rant about it here, but I’m not going to. Instead, I’m going to say that, after it, I finally concluded that, screw it, I’m ready to face whatever it takes to get real help for whatever it is I’m facing mental health-wise, be this trauma-related or a personality disorder or whatever.