#WeekendCoffeeShare (January 21, 2022)

Hi everyone on this late Friday evening. I’m joining #WeekendCoffeeShare, even though it’s a bit late for coffee here. I am going to grab a glass of water and some fruit in a bit, so if you’d like a soft drink or a glass of water too, you can have one. Let’s catch up.

If we were having coffee, first I’d moan about the cold weather some more. Boy, do I hate winter! Several staff have been trying to coax me into going on walks because it was supposed to be sunny and nice outside. Then I’d invariably reply: “It’s 3°C outside too, brrr.” Usually, the air would become cloudier soon enough and we’d get rain.

If we were having coffee, I’d share that, probably due to my lack of exercise, I didn’t lose weight over the past week even though I stuck to my healthy food plan pretty well. That is, I didn’t feel as though I was just eating carrots and lettuce all week, so maybe I accidentally sneaked in some extras I shouldn’t have had. For example, I am allowed 225ml of yogurt or 200ml of quark with some muesli for breakfast. On Wednesday, my staff poured half the 500ml can of quark into my bowl. Now quark contains only about 50 calories per 100ml, so that didn’t really make a huge difference on its own. However, given that I or my staff may’ve made other such slightly less healthy food choices over the week and I also hardly got my butt off the chair, this combined caused me to maintain. At least I didn’t gain any weight either.

If we were having coffee, I’d tell you that I went to the dentist on Wednesday. Thankfully, other than slightly inflamed gums, everything was fine. I was pretty sure I’d be diagnosed with gum disease and have to be seen by the oral hygienist. Apparently not so. I was sent on my way with instructions for better teeth-brushing and flossing and an appt with the prevention assistant in February.

If we were having coffee, I would share that I texted with my sister this evening. I can’t remember whether I shared before that she’s pregnant again. She’s expecting another girl in May. So far, all seems to be going as it should be. My (other) niece (other than the bump, I mean) is doing okay too. I mentioned in August that she was diagnosed with hip dysplasia. After surgery in September and a cast for several months, she’s now doing pretty well again.

If we were having coffee, lastly I’d share that my husband is off work with the flu. He tested negative for COVID, but thankfully he wasn’t so crazy as to go back into work as soon as he got the negative test result. Back in early 2020, before COVID was known outside of China, he did go to work as a truck driver while sick with the flu. I am glad he doesn’t have COVID, of course, but regardless I’m hoping he’ll feel better soon.

How have you been?

#WeekendCoffeeShare (January 14, 2022)

Hi everyone on this Friday afternoon. I’m joining #WeekendCoffeeShare. I just had a glass of water and am going to have another one in half an hour or so. Maybe I’m going to ask for a Senseo or treat myself to a Dubbelfrisss, my favorite soft drink. I’m afraid we don’t have the diet variety though. Can I pour you a drink? Let’s have a cup of something and let’s chat.

If we were having coffee, first I’d share that it’s not as cold as it was last week, but it’s still too cold for my liking. Daytime temps rose to about 7°C most of this week. I did go on one longer walk yesterday, to the supermarket to buy a card for my father. He’ll celebrate his 73rd birthday tomorrow. We also bought some veggies. Oh, and a croissant, because I felt like treating myself. I had just one for lunch instead of bread though. I just looked up how many calories are in one croissant and that’s about as much as in two slices of bread without toppings. Of course, bread contains less fat and sugar and more fiber, but so what?

If we were having coffee, I would go on to share about my dietitian’s appt this morning. It went pretty well. She didn’t admonish me for not wanting to lose the 13kg I need to lose to be at a healthy BMI. I do want to lose the 1.5kg I need to lose to no longer be obese though. More importantly, I want to eat relatively healthily and hopefully quiet the inner conflict about food.

The dietitian gave me some recommendations for healthy meal choices for breakfast and lunch. For example, she said I can have salad for lunch with croutons and a little chicken, tuna or salmon (that last one I don’t really like) occasionally rather than bread. I do need to make sure the staff take care of portion sizes, of course, because I’m pretty sure they’d otherwise throw the entire can of tuna into my salad. For breakfast, I am still allowed yoghurt with muesli, just not the crunchy kind. And thankfully, the muesli doesn’t need to be plain, it can include nuts or raisins or the like.

I did share my disappointment with her at only having lost 0.5kg over the past week when I stepped on the scale yesterday. The dietitian said that this is a pretty great result though.

If we were having coffee, lastly I would tell you I got my benefits payment slip last Monday and am grateful to report I will still get enough money that I can still spend some on fun things like polymer clay supplies or the like. I don’t know whether I shared this in my coffee share posts before, but my long-term care copay will automatically be withheld from my benefits. The copay is income-dependent and, because I’m married, my husband’s income is counted too. Then again, because I’m married, I do get to pay the so-called “low” copay because the government does take into account the responsibility I have for contributing to his household expenses too.

The copay is calculated based on our combined income from two years back, so 2020 for this year. Because my husband earned more money in 2020 than in 2019 and had a lot of tax deductibles in 2019, I was expecting a higher copay by at least €100 a month, but fearing it might be as much as €200 a month. Then again, I was hoping my benefits would also be raised a little. Long story short, my net income was cut by €82 a month. That’s a lot. I realize some people won’t be able to handle this, particularly people on benefits. I am so intensely grateful that I am relatively well off.

How have you been?

#WeekendCoffeeShare (January 7, 2022)

Hi everyone on this first Friday of January, 2022. Today, I’m joining #WeekendCoffeeShare. I’m right between my dinner and my evening coffee, but if you’d like a drink, I’m sure my staff can make you a Senseo or a cup of tea, pour you a glass of juice or offer you a soft drink. Let’s catch up.

If we were having coffee, I’d start off by saying that the weather is all over the place right now. Sometimes, it’s raining or even snowing, while at other times, the sun is shining. It’s too cold for a walk though, so I’ve stayed indoors all day and most of the week. Last night, despite the heating being on and all windows being closed, I was feeling quite cold. Okay, I can feel cold in the middle of summer sometimes. That’s just me, I guess.

If we were having coffee, I’d also share about my new food plan. Like I shared before, my hope is to get to a healthier, less stress-inducing diet this year. The dietitian got back to my staff on Tuesday with a healthy food plan. It’s a standard basic food plan I’m sure, as for instance it allowed for an artificial sweetener in my coffee even though I’ve been drinking my coffee black for years.

I have been trying to stick to the food plan ever since. On Wednesday, I did have my crunchy muesli for breakfast, because my staff had already prepared it. Oh, I said this was something I wasn’t willing to give up, but I’m trying after all. Yesterday and today, I had two slices of bread with jam on them.

So far, it’s going okay, but I do find that I’m struggling to eat a variety of foods, as out of the healthy food choices, I only like a few things. Today, as an alternative to the bread with jam for lunch, I tried a toasted cheese and bell pepper sandwich. After all, the dietitian said that toasted sandwiches are a healthy choice as long as you don’t load them with more than one slice of cheese, ham or the like. You can, however, add veggies to taste.

If we were having coffee, I would share that, speaking of the food plan, I do look forward to getting chips this evening. I am so happy I am still allowed these on weekends.

If we were having coffee, I would tell you that I haven’t been too inspired on the crafty front lately. On Wednesday though, I did create a polymer clay dolphin charm. I used the Fimo soft color blue ice quartz for the body of the dolphin, white for its belly and black for its eyes.

Polymer Clay Dolphin Charm

If we were having coffee, lastly I would share that I did do a fair bit of reading lately. I started the latest Maggie Hartley foster care memoir, which came out as an eBook yesterday, right then. I’m now at 54% already. It doesn’t look like I’m going to finish any of the other books still on my currently-reading shelf on Goodreads though, but that’s okay.

How have you been?

#WeekendCoffeeShare (December 18, 2021)

Hi everyone on this cloudy Saturday afternoon. It’s been a few weeks since I joined in with #WeekendCoffeeShare, so I thought I’d link up again. As I’m starting this post, I haven’t yet had my afternoon coffee. I’m going to take a break for that when I finish this paragraph, so if you’d like a cup yourself, I can get you one too. We have an assortment of cookies and may still have a few mini Mars candy bars left too. Let’s have a cup of coffee and let’s talk.

If we were having coffee, first I’d tell you I had a good talk with the behavior specialist on Monday. We discussed a few things, including my desire to be made aware of the contents of the paperwork that went to the authorities deciding on my one-on-one. Those visiting just for the Coffee Share won’t know this, but it got approved for two more years to come, yay! However, I’d still like to know what was said about me, just because it’s about me.

We also discussed my food issues, for which a referral has finally been made to the dietitian. I really hope the dietitian can help me get some clarity on what (not) to eat during the day, because currently every opportunity to eat is an opportunity for inner conflict and chaos. Finally, we discussed my wish for a physical day planner using Braille-labeled activity cards to choose from.

If we were having coffee, I’d tell you that the blindness agency came by on Thursday to lend us a Braille label writer and several pairs of colored NoIR filter glasses (special sunglasses for those with low vision). I will be trying out the sunglasses over the coming weeks and will be using the label writer to type up the aforementioned activity cards.

If we were having coffee, I’d moan about my adaptive footwear again. Shoe Guy finally decided my orthopedic shoes aren’t fitting and can’t be made fitting, so he’s going to make me new ones all over again. He finally brought back my new walking shoes, that my husband bought me a few months ago. Now though, my left arch support insole got a bump in it that I can’t get out of it. Bottom line: I still can’t walk comfortably! Ugh!

If we were having coffee, I’d end on a positive note by telling you about all the creative work I’ve been doing over the past couple of days. I made some lovely polymer clay charms on Thursday based on tutorials I saw on YouTube. Can you guess what the below charm is supposed to be? Facebook’s automatic alt text guessed it correctly!

I also made a Christmas tree and snowman out of polymer clay. This evening, I’m going to add both to a larger mixed media Christmas ornament. Lastly, I finally decided to save my scrap clay rather than throw it away. I made some randomly-colored beads out of it yesterday.

How have you been?

#WeekendCoffeeShare (November 28, 2021)

Hi everyone on this Sunday afternoon. It’s a little less rainy today than it was yesterday, but it’s still cold outside. Today, I’m joining #WeekendCoffeeShare again. As I type this, I am right between my lunch and my afternoon coffee. I can probably offer you a coffee before I finish this post, ha. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week was better than the previous one. Like I said yesterday, my appointment with my nurse practitioner went pretty well and we were able to get to some agreements that will hopefully lead to better treatment for me. For example, I’d struggled to convey in an E-mail how I was struggling two weeks prior and he had asked me to wait for our appt to discuss the matter. That hadn’t sat well with me, so now we agreed that next time he’ll try to call me to further assess the situation.

We also agreed that he would try not to stop me or change the subject if I’m struggling or getting emotional while trying to communicate something. I gave as an example one time when I felt unable to speak and he, possibly not wanting to push me, said: “We don’t have to discuss anything if you don’t want to.” Overall, I feel slightly optimistic about my treatment going forward and I consider that a major win given the desperate state I was in last week.

If we were having coffee, I’d also share that I got some insight into the near-hallucinatory, dysregulated states I occasionally go into at night. My nurse practitioner thinks they might be related to the phase between being fully awake and being asleep. Unfortunately, there’s little to nothing to be done about them, but it feels comforting to know I’m not really “losing my mind”. It also seems, from this idea, unlikely that I’m going to experience these states during the day and really “going crazy”.

If we were having coffee, I’d tell you that, unfortunately, I did experience nightmares last night. It’s probably to do with the flashbacks and memories I experienced yesterday. I am so grateful though that the nightmares aren’t affecting me too much now that I’m awake.

If we were having coffee, I’d tell you that, thankfully, I’ve also been a little more active lately than I was before. Like I mentioned yesterday, I made a polymer clay unicorn on Thursday. My husband wants to have it. I’ve also been reading more lately. I won’t at all reach my reading goal for the year or even come close to how many books I read last year, but at least I finished another book.

If we were having coffee, lastly I’d ramble a bit about how scared I am because of the rapid rise in COVID cases here in the Netherlands. Today, we’re entering an evening lockdown. Stay-at-home orders have also been extended to recommending people work from home unless it’s not possible, like during the first lockdown in March of last year. I’m scared this will mean the day center closes again. More so though, I’m scared of contracting the virus or even a cold and needing to quarantine in my room. Let’s hope I won’t.

How have you been?

#WeekendCoffeeShare (November 21, 2021)

Hi everyone. Today is a rather mixed Sunday weather-wise. We had sunshine almost all morning and early afternoon, but now we’re having clouds and rain. I’m joining #WeekendCoffeeShare today. I just had a late afternoon coffee (I normally have them at around 2:15PM and it’s almost 3:30 now). I am likely to skip my soft drink, which I normally have at around 3:30, and have some water again when my one-on-one comes on at four o’clock. If you’d like a drink, you’re welcome to grab a soft drink or water or get a Senseo in the kitchen. Let’s catch up.

I already shared on Friday that this week was a rather meh one. So, if we were having coffee, I’d try to focus on other things. I’d share that I’ve been trying to pick up the polymer clay craft again. Yesterday, I finished three labels with “Bedankt” (Dutch for “Thanks”) on them for the three staff who are leaving soon. I still need to cure them in the oven and add glitter glue for decoration. I’m probably going to do that this evening.

I will still need to make real presents for each of the three staff, because I don’t think just a simple label, even if it’s hand-made, is enough. One of the staff is leaving at the end of this month. The other two aren’t leaving till the end of December, so I still have time for those.

If we were having coffee, I would share that I’ve been oohing and aahing at some polymer clay supplies I want to get for Christmas or St. Nicholas (December 5). You need to actually pay for your own St. Nicholas presents, but I agreed with my assigned staff that she could spend around €15 on them and I’d send her a wishlist which she could pick something from, so that I’d still feel a sense of surprise. We do get a small Christmas hamper from the day center, so I told my day activities staff she might talk to my assigned home staff about ordering from the same company as to save on shipping. Some things on my wishlist include cutters, pushmolds and texture sheets.

If we were having coffee, I’d tell you I bought a new essential oil diffuser. I couldn’t seem to clean the other one properly anymore, so all scents were starting to smell the same. I made a note in my Reminders app to clean this one each month, but with how often I’m currently using it, I’ll probably make that every other week. The new one has a remote and two mist settings for normal and strong mist.

If we were having coffee, lastly I’d share that my husband came by to take me out to lunch this afternoon. We’d talked about going to a particular snack and dine place we’d been to two years ago and I’d looked forward to it all week. It was really good back then. Now, not really. The burger we ordered was okay’ish. Not very bad, but not good either. In addition, we had to wait forever to place our order and the staffer really was quite curt. This time, we were asked for our CoronaCheck code, but not our ID, as is required. Oh well.

How have you been?

#WeekendCoffeeShare (November 6, 2021)

Hi everyone on this gloomy fall day. I’m joining #WeekendCoffeeShare. Unlike most days when I write my coffee share post, I haven’t had my last cup of coffee yet. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that my GP appointment on Monday went okay. My magnesium got decreased in hopes of relieving me a little from my abdominal discomfort. It’s helping a tiny bit, but not enough for my liking.

If we were having coffee, I would tell you that I had an okay week otherwise. I’m struggling quite a bit with the disconnect between my intellect and my emotions. This is causing me to appear well-collected a lot of the time when in reality I feel extremely distressed. I discussed a few examples of this with my assigned staff and support coordinator today and they’re helping me improve these situations.

If we were having coffee, I would share that I finally gave in (or up) with respect to the adaptive footwear situation and had my husband order new walking shoes for me. After all, the old ones will probably have a large enough to get my socks wet hole in them within a week or two at most. I am so grateful my husband found almost the exact same shoes. They arrived in the post today. I am still hoping I will eventually get used to my orthopedic footwear, but it will need some further adjustments for that to happen first.

If we were having coffee, I would share that I am looking forward but also stressing about the national cerebral palsy day in three weeks’ time. I went to the event on my own three years ago, but this is quite hard this time. I can’t afford for a staff member to go with me to the entire event even with my one-on-one being covered by the care facility. After all, I have one-on-one only part of the day and would need to pay like €45 an hour for individual support for the rest of the day. I might go on my own after all, or I might skip the event, like I skipped the online regional meeting today. I was seriously planning on going to that one, but just couldn’t get myself to do it after all.

If we were having coffee, lastly I’d proudly announce that I’m going to be an aunt again in May. I’m pretty sure my sister is fine with me sharing this on my blog now that she’s past three months and all tests so far are fine. My sister’s other child, my niece, is also doing well. I shared a few months back that she was diagnosed with hip dysplasia. She had surgery in September and is currently wearing some type of cast. We are all hopeful that once this will be removed in a month or so and once she’s relearned to walk after that, she’ll be completely fine.

How have you been?

#WeekendCoffeeShare (October 30, 2021)

Hi everyone. It’s almost 8PM here so I already had my last cup of coffee. Still, I’m joining #WeekendCoffeeShare. Or Weekend Soft Drink Share for me maybe, although I didn’t have a soft drink this evening either. Instead, I decided to have water with my chips. We have Pringles, the original flavor, so if you’d like some, here you go. Let’s have a drink and a snack and let’s catch up.

If we were having coffee, I’d share that, like I said yesterday, the weather was good most of the week. Partly cloudy, partly sunny with maximum temperatures between 13°C and even a rare 18°C on Thursday. Today though, it was raining most of the day. By early evening though, the rain stopped for a bit.

If we were having coffee, I’d tell you that, yesterday, I got in over 14K steps thanks to the great weather. Today, I only managed about 6K steps, but I did get in over 250 steps an hour during seven out of the nine hours between 9AM and 6PM. I consider that quite an achievement!

If we were having coffee, I would ask you all to pray for wisdom for both me and my GP with respect to our upcoming appointment regarding my abdominal discomfort. Like I said yesterday, I am grateful my X-ray was normal, but my discomfort is all but gone.

If we were having coffee, I would share that I ended up not pursuing the issue I mentioned yesterday with the €90 software I bought via PayPal from some shady vendor. I did reach the vendor, but he claimed the problem I was experiencing wasn’t on their side, so there’s no way I’ll get my money back. Oh well, I hadn’t had my hopes up too high.

If we were having coffee, I’d share that I finally did start crafting again. The project my staff saw that she brought the supplies in for today, was a polymer clay owl crafted around a metal ring. She also brought a finished owl she’d borrowed from the storekeeper who had inspired her, so that I had an idea what it should look like. It looked very different from how I’d expected it to look. I started working on the project today.

If we were having coffee, lastly I would tell you that my assigned staff, the one who was on sick leave but is slowly recovering, came to the care home for a few hours again today. Remember how I said a few weeks ago that I worried that I caused her burnout by sucking up her energy? Well, she went out of her way to reassure me that I didn’t make her sick.

She also cooked a meal for dinner with another client. It was a potato, leek and mince casserole. At first, I wasn’t sure I’d like it, but I did.

How have you been?

#WeekendCoffeeShare (October 24, 2021)

Hi everyone. It’s really sunny out this Sunday afternoon! How about you join me for #WeekendCoffeeShare. I had quite a lot of coffee so far today, as I went out to McDonald’s (well, through the drive-through) with my husband for lunch and had coffee there. It was better than the coffee I had at Subway last week. Then when I came back to the care facility, I had a cup of coffee again. If you’d like a cup of it too, I’m pretty sure there’s still some left, as my staff said her colleague had just made a fresh pot. Let’s have a cup of coffee and let’s catch up.

If we were having coffee, I’d almost invite you to the balcony. It’s sunny, after all, but quite cold. Besides, the balcony is covered in fallen leaves. So I guess we’ll sit indoors after all.

If we were having coffee, I’d share that I managed to get in 12.5K steps yesterday. That’s a huge win, as I had thought my physical condition was declining slightly. Apparently not.

I also went on the elliptical for half an hour on Friday and am planning to go onto it for another 30 minutes later this evening.

If we were having coffee, I would tell you that all this is slightly comforting in light of my probable IBS symptoms and the upcoming abdominal X-ray. I mean, if it’s something very serious, I guess I’d have other symptoms, such as unexpected weight loss or declining physical fitness. Please all still pray for me that the X-rays will show something easily treatable.

If we were having coffee, I would share that my husband bought a new car. Well, he’s going to exchange it for our current Volkswagen Golf on Wednesday. It’s a Daihatsu Cuore, a very small car. His VW is still in relatively good shape, but both of us wanted a cheaper car with respect to gas usage, insurance and tax. With the deal he got, my husband says he’ll have saved enough on these to cover the cost of buying the Cuore within the year. I must say I feel a lot better about this car than I felt back when my husband bought the VW.

If we were having coffee, lastly I would share that I woke up after a nightmare early this morning. It wasn’t yet time for my one-on-one to arrive, so the morning staff helped me put on my music pillow and settle back to bed. I thankfully slept well for about an hour and a half after that. I am really hoping this means that the topiramate is working. I mean, my nightmares aren’t your standard scary dreams and as far as I’m aware, topiramate doesn’t suppress REM sleep altogether, but it does seem to make it easier to let go of anxiety-inducing dreams.

How have you been?

#WeekendCoffeeShare (October 17, 2021)

Hi everyone. I’m rather late joining #WeekendCoffeeShare this week and I’m afraid there’s no coffee left. You can help yourself to a soft drink or a glass of water though. I also have chips in my cupboard. After yesterday’s crying fit over there only being the wrong flavor left, I decided to buy some myself. I did ask the staff to put them into a cupboard which they only have the keys to, but I’m pretty sure they’ll love to open it for you. Let’s have a drink and a handful of chips and let’s catch up.

If we were having coffee (or a soft drink and chips), I’d share that this week is still quite meh. Early in the week, I was feeling a little more optimistic at the prospect of starting my increased dosage of topiramate soon. I started it on Friday and so far, unfortunately, no change. I am grateful though for no side effects either.

Over the weekend, I’ve really been struggling. I landed in a bit of a crisis earlier this evening, but thankfully pulled myself out of it. I did E-mail my nurse practitioner and CPN at mental health to let them know I’m worried about deteriorating. My husband said I’m not, but the fact that I keep increasing my meds, tells me otherwise

If we were having coffee, I’d moan about my orthopedic footwear after all. The shoes squeak and, though I’m still not in terrible pain, I cannot walk for more than twenty minutes on them without them feeling horribly uncomfortable. Mostly my left foot, the foot on which I wear the AFO, starts to drag. I haven’t heard back from the physical therapist, but am pretty sure she’ll just say I need to push through.

If we were having coffee, I would show you all the soap I made for my assigned staff, the one who’s on sick leave. I heard last Thursday that she’ll remain off work until the middle of November or so due to among other things her needing to use up all her days off for the year or they’ll disappear.

Like I said yesterday, the soap contains vetiver, lavandin and clary sage essential oils. I decided to use a white soap base and no colorants, because I felt the scents would speak for themselves.

If we were having coffee, lastly I would share that my husband came by today. We drove to Subway for lunch. I dutifully wanted to get out my CoronaCheck app, but my husband told me to wait. As he expected, they didn’t ask us for it. The taco beef wrap I chose, was rather boring and I’m pretty sure the mince they put in it was vegetarian rather than beef. Oh well, now at least I know what not to choose next time.

How have you been?