#WeekendCoffeeShare (September 24, 2022)

Hi everyone on this rainy Saturday. How are you doing? Take a seat and have a drink, as I’m joining #WeekendCoffeeShare.

If we were having coffee, I would start out by sharing that last Monday was my and my husband’s eleventh wedding anniversary. We drove to Steenwijk, a town in the far north of my province, where we had lunch and went for a short walk. Then we drove to Blokzijl, a small town not far from there, where we had another walk around town and my husband took a photo of me with a large cannon.

Then we drove to Ikea in Zwolle, where my husband bought a few things, I looked for a new desk chair, and we had dinner. Unfortunately, they only serve the vegetarian version of the Swedish meatballs now, so I had chicken.

If we were having coffee, I would tell you I got a new pasta machine from one of the staff – the staff who always gives us clients everything she finds at thrift stores. This one works electronically or so she told me. I didn’t tell the staff that any pasta machine is hand-operated by default and a motor is optional. This one does have a motor. I did E-mail another staff to ask her to bring her tool kit one more time to remove the fenders for me.

If we were having coffee, I would share that the dietitian showed up unexpectedly for an appointment yesterday. The reason was the fact that I’d lost quite a bit of weight and had been compulsively exercising a lot over the past few weeks. Although the compulsive exercising seems to have reduced this week, I did need a bit of a reverse kick in the behind. You see, I have a history of disordered eating, bordering on bulimia, and although my main means of compensating used to be purging, this could definitely become a thing with over-exercise too. I do need to monitor this closely.

If we were having coffee, I would use the rest of this post to update you about the prospective new care home. I didn’t write a coffee share post last week, so those visiting from there might not know this, but the client in whose place I could come at the home at the main institution, moved out this Thursday. I had my first orientation visit with the prospective new home last Wednesday, am getting another on Monday and, if then I want to move, moving date has been set for October 5.

My first orientation visit went quite well. The clients are quite verbally capable, although of course they do “live in their own world”, as the support coordinator phrased it. The apartment – separate living room, bedroom and private bathroom – is quite large, although I couldn’t fully grasp its size because the client who was moving out had a lot of furniture. My husband did ask whether I would have to clean the apartment myself, but I assume not. I asked though just to be sure.

I love the fact that there are a lot of sports and recreational facilities on grounds, although the staff aren’t yet able to say how we could fit those into my day activities.

A great positive of the possible new home is that they cook their own meals everyday. Yay for no more meal delivery service junk!

My husband is coming to have a look around the home on Monday too, so he may be able to ask his questions too. I am quite excited but still a bit nervous.

How have you been?

#WeekendCoffeeShare (September 10, 2022)

Hi everyone. I’m joining #WeekendCoffeeShare today. I just had my afternoon coffee, but I’m pretty sure there’s still some left for you. Let’s have a cup of coffee and let’s chat.

If we were having coffee, I would start out by sharing I had quite an active week again. Today, I went for a 5.8km ride on the side-by-side bike again. We rode it faster than last time: 13.4km/hour. Still slowly judging by what I know is a normal bike riding speed, but then again a side-by-side bike is probably harder to ride.

If we were having coffee, I would share that I also finally gained some of my crafty mojo back. That is, I only did one polymer clay thing, but it worked out okay. I created a cat’s head charm. It still needs to go into the oven, so I can’t show you all yet.

If we were having coffee, I would tell you today is my oldest niece Janneke’s third birthday. I sent her a coloring book, some paint and a kids’ umbrella. I may try to video call my sister later to sing “Happy Birthday” to her too. In fact, I think I’m going to text my sister now to ask when she’s got time.

If we were having coffee, lastly I’d complain about the fact that Apple won’t release an iPhone 14 Mini. Then again, this makes the decision about what phone to buy once my current iPhone battery dies rather easy. After all, I wasn’t completely convinced I wanted the 14 Mini even if Apple were going to release it, but now I’m certain I’m going for the SE 2022. Not that that one appeals to me that much, but well, I’ve got to have something and I don’t want a regular 14. Not because of what the so-called experts say (they claim it’s not worth your money but I haven’t read the articles explaining why), but because it’s too large for my liking.

I do really hope iOS 16 is going to be relatively bug-free from the start though, as some of its new features sound cool. Not just that, but I badly want WatchOS 9 and you need iOS 16 for that. I’ll wait for one particular member of the VoiceOver forum to voice his opinion though. He’s claimed each year except the year iOS 12 got released that the new big iOS update was the worst one ever and usually he’s been right at least that updating right away isn’t wise.

How have you been?

A Rather Frustrating Monday

It’s past 10:30PM and I’m still wide awake. I just took a PRN quetiapine. My Apple Watch and the staff’s blood pressure cuff are telling me I should be super relaxed, in that my heartrate is 67 even when sitting upright. That’s rather low for me, but not worryingly low or so the staff say. Oh yes, I know normal resting heartrate is between 60 and 100, but mine is usually closer to 100. Oh well.

Today was quite intense, honestly. In the morning, the manager came by to talk to me about my meeting with the behavior specialist last week. She also, of course, told me a new staff would be starting his orienting shifts here and he’d start right this evening. Of course, like all new staff who’ve been hired over the past six months, the first part of the home he’s being introduced to is mine. Can you read my sarcasm? Well, it should be there. I’m rather annoyed at the fact that every new staff starts working on my side of the home rather than the other one. I know it’s probably because one of the clients on the other side gets really irritable when introduced to new staff. Well, maybe I need to show a little more of my irritable side.

Then, the temping agency housekeeper came to clean my room. She left my bathroom in a horribly wet state and left the tap on its hottest setting. Thankfully, that setting is not hot enough to actually cause burns, but it did hurt a little when I tried to wash my hands.

Once my day activities started, I went for a walk. My cardio fitness level was once again low, but it hardly bothers me anymore.

In the afternoon, my staff and I drove into town so I could buy a new pair of shorts for when I go on the elliptical or ride the side-by-side bike. The old pair pretty much falls off my butt. I also bought socks and some presents for my oldest niece, who will be three on Saturday.

In the evening, I went for a short walk with the new student staff, taking his camera and tripod with us to snap some pictures. I cannot yet show them, as I haven’t yet figured out which ones show what.

Then, I wanted to go on the side-by-side bike again, but got really frustrated trying to fasten the belts around my feet. They need to be really tight or my feet, particularly my spastic left foot, will fall off the pedals. That didn’t work out and I got really overloaded, so had a short meltdown.

Later in the evening, when I was alone, I started fretting about my health. That probably caused me to feel spacey. Now that I’ve processed all this in this post, I feel slightly better. It might be the quetiapine is working as well.

#WeekendCoffeeShare (September 3, 2022)

Hi all on this beautiful first Saturday of September. I for whatever reason keep typing “July” rather than “September”. Maybe that’s me wishful thinking. Anyway, here’s my post for this week’s #WeekendCoffeeShare. I just had my afternoon coffee, but the other clients are currently having theirs, so I bet there’s still some left for you. Let’s have a cup of coffee (or another drink, if you so prefer) and let’s catch up.

If we were having coffee, I’d start out by asking about your weather. Ours is beautiful. Today, we’re supposed to get daytime temps of up to 27°C. On Monday, the temperature’s even forecast to rise to 30°C. I guess my husband was wrong a few weeks ago when he predicted that it’d get only colder from that point on.

If we were having coffee, I’d tell you about all the physical activity I got in this past week. I got in a total of 330 exercise minutes according to my Apple Watch this week so far, exercise being anything at least the intensity of a brisk walk. I guess this means I can up my goal from 20 minutes to at least 30 a day. Then again, I badly want to reach it everyday.

If we were having coffee, I would use the rest of this post to share the details I promised you all in yesterday’s post about the potential new care home. You see, on Thursday at 2PM, the behavior specialist came by my room. The appt had already been planned or so I believe, because of the situation I shared a few weeks ago about an application having been put in for me to live at a senior citizens’ home for the visually impaired, a place I don’t consider suitable. I knew from my care facility’s manager that she understood this place doesn’t sound suitable indeed and also that she had heard that the people at the main institution for my current care agency, with whom I’d met at the end of July, were pretty enthusiastic about me. However, the manager didn’t expect to hear anything from them until next week.

Well, as it turned out, my behavior specialist had planned a meeting with the behavior specialist whom I’d met in July as soon as she could, which was last Thursday. It turns out I am number one on the waiting list for a home at the main institution. The home caters primarily to people with moderate to severe intellectual disability with a need for intensive support due to additional problems such as autism, attachment issues, etc. The level of intellectual disability is significantly less severe than in my current home, so I can actually make smalltalk with the other residents. The staff offer help with activities of daily living (personal care) where needed. Each resident has their own day program. This means that residents aren’t required to go to the day center by default. In fact, some of the residents go some of the time, others ride their bikes around institution grounds, while still others can’t leave the home unsupervised.

I told my husband about this home and he immediately replied that it sounds perfect. Well, I said, that isn’t possible, but it does sound pretty good indeed.

Of course, I am on the wait list, so there currently isn’t an available room, but the behavior specialist said they are working towards finding a new home for one of the current residents. She said it might go quickly but it might still take six months or so. Well, if you ask me, even if it’s going to take six months, that’s still super quickly. That’d honestly mean I’d have found a place within the year from saying I want to find a more suitable home.

I will get an extensive orientation, getting to look around at least twice before I decide whether I want to move to this home. I am both nervous and excited. Mostly quite excited though. I’d read up about this home before and wished I could live here and now my dream might come true.

How have you been?

#WeekendCoffeeShare (August 20, 2022)

Hi everyone. I’m joining #WeekendCoffeeShare today. Even though I was late having my last cup of coffee this evening, I’m even later writing this post, so sorry, no coffee left for you. We do have soft drinks though or you can have water or maybe I can make you a cup of tea. That being said, I’d advise against black tea, since it’s at least almost my bedtime by the time I finish this post. Oh wait, this is a worldwide gathering over virtual coffee or tea or whatever we like. Let’s have a drink and let’s catch up.

If we were having coffee, I’d start out by asking how your weather is. Ours has been good all week, with temperatures rising to 30°C on Tuesday and in the mid to upper twenties (Celsius) during the rest of the week. Some days, it was too hot and especially humid for walking, but other days, it was just the right temperature.

If we were having coffee, I would tell you I’ve been busy thinking of what to create for the fellow resident who has his birthday next Thursday. After all, originally I intended on creating a canvas with polymer clay cookie cutter shapes of a car and the letters of his name on it, but the cutters for the letters won’t work with polymer clay, because the inside parts of some letters are much shallower than the outline. I thought about buying different cutters, but my husband came up with the idea of glitter stickers. They had them at Hema, a department store here, or so he thought. Not at the one we were at today, so I ended up buying regular letter stickers. Thing is, these are much smaller than I’d intended. Besides, I’m not sure stickers will stick onto painted canvas. I’m probably just making a card with those stickers and then doing the polymer clay car in some other way.

If we were having coffee, I’d share that I’m quite discouraged where it comes to my possibly moving to another care home. I had a meeting with some people from the main institution for my care agency three weeks ago, but haven’t heard from them. Other than that, I found out yesterday that the only place the care consultant applied for me at is a senior citizens’ assisted living facility that happens to cater to the blind. In a way, I can see his point, in that my funding is based on blindness and, in this sense, an intellectual disability facility like my current one has to tweak stuff in order to accept me. That assisted living facility is probably the only place within an hour’s driving distance from Lobith that accepts blindness-based funding. Then again, other than them catering to the blind, I can see absolutely no reason why the place would be suitable. And honestly, them catering to the blind may in fact be a drawback, as it means I can’t use my blindness as an “excuse” to explain complicated difficulties of mine by, hence my needing to explain myself in detail. That really has caused me extreme problems of being overloaded in the past. I mean, it would be okay if the staff knew blindness and cerebral palsy and autism and emotional developmental dysfunction and all the issues that cause me to struggle greatly in real life, but as far as I’m concerned most of these don’t affect the elderly in particular.

If we were having coffee, I’d try to end on a positive note though by telling you I had a good time with my husband today. He was originally supposed to be here by 1PM, but got stuck in traffic and couldn’t be here till 2PM. He almost turned around, because we had a misunderstanding about it, but he eventually got here and then we drove to Enkhuizen. Enkhuizen is a town about 100km from Raalte, so halfway across the country. My husband wanted to have fish, but not here in the east, which was his excuse for driving there. Then we walked around the town center, going to Hema for those stickers I mentioned above. Then we drove back to Raalte, grabbing a McDonald’s on the way in Kampen. I had a Mexican style crispy chicken, which was huge and delicious but not overly spicy. We really want to be taking more day trips together.

How have you been?

#WeekendCoffeeShare (August 13, 2022)

Hi everyone. How are you doing? Want to join me for #WeekendCoffeeShare? I’ve had all my coffee for the day, but I’m soon grabbing a Dubbelfrisss (my favorite soft drink). Let’s have a drink and let’s catch up.

If we were having coffee, I would start out by asking how your weather is. Ours has been hot most of the week. Today, the weather institute officially recorded a heatwave, meaning five days in a row of daytime highs of at least 25°C, including three days of at least 30°C. Today, the temperature reached 32°C here. Tomorrow, it may even get a little hotter. The last officially-recorded heatwave was in 2020.

If we were having coffee, I would tell you the woman from the care home down the road from mine was very happy with the polymer clay necklace I gifted her for her birthday. I stayed for a while to have coffee and apple pie.

If we were having coffee, I would tell you that my orthopedic shoes still aren’t as they should be. I developed two small blisters on my feet after a short walk yesterday evening. Granted, I’d also taken a longer walk in the morning without much trouble, but blisters really shouldn’t happen anyway.

If we were having coffee, I’d complain about the care facility’s WiFi once again. Oh wait, yesterday, I showed gratitude for it, but today I’m complaining, because three days in a row it’s now gone out in the evening. I am currently redirecting my iPhone’s mobile data to my laptop because I was in the middle of typing this blog post when the stupid thing went down.

If we were having coffee, lastly I’d share that I did start on the green polymer clay unicorn I mentioned this afternoon after all. I’ve decided it’s going to make a great present for the student staff who’s leaving at the end of this month. I so far only made the surface it’s going to stand on, which is currently in the oven. It took me 45 minutes to create a slab for it that was relatively free of air bubbles. Not completely, but enough that there hopefully won’t be huge holes in the bottom of the thing. Not that they will be seen, if they are there, when the unicorn stands on its surface, but well.

How have you been?

An Engaging Wednesday

Hi everyone. I originally wanted to title this post a “creative”, then “inspired” Wednesday. Both fit, in a way, but neither fully captures the essence of today. Not that “engaging” does, but I ran out of adjectives to think of. I spent the day crafting and watching personal growth YouTube videos and that’s what I want to talk about. Oh, I could just have written “A day spent crafting and watching YouTube videos” as my post title. Then again, that’s too long.

In the morning, I finished a YouTube video in which an enneagram geek talked about annoying things type Fours say and do, then watched another of her videos about things to know before dating an Eight. No, I’m not looking to find another lover. My husband is an Eight and I just thought it funny to learn about all the stupid mistakes I’d made all along. Of course, I could just listen to my husband (that’s the first tip!).

Re the other video, I may write a separate blog post listing all the ways in which I relate to all these annoying things Fours do and say. And yes, I related completely to all but one of them.

Then, when my day activities started, I had my morning coffee, then went for a short walk while it was still cool enough outside. My orthopedic shoes arrived yesterday and I can now actually walk on them without any pain. I won’t get my hopes up, because I have been saying all along that they won’t be ready until 2034 and that’s exactly when World War III is going to start according to a book by that title. I am too superstitious to admit publicly that my shoe problem is over yet.

After my walk, my staff and I drove to the supermarket for quark, which I eat for breakfast. We also both got ourselves a sausage roll for lunch and she treated me to ice cream cones. Of course, I just ate one today and she had one too, so the rest are in the freezer.

In the afternoon, I first used my alcohol inks that I’d bought at Action several weeks ago. I had finally managed to create earring pieces that didn’t have air bubbles in them and was going to add a little alcohol ink to them for some extra color. The pieces haven’t been turned into actual earrings yet.

Then in the evening, I crafted the last of the polymer clay beads I’ll need for the necklace I’m making for the person from the other care home. I’m probably going to put together the necklace tomorrow. Overall, it was a good day.

#WeekendCoffeeShare (August 6, 2022)

Hi everyone on this first Saturday of August. Okay, that starting phrase gets boring, but who cares? Well, me, but I can’t think of any better way to start my post. I’m joining #WeekendCoffeeShare today. I’ve had five cups of coffee already today and it’s mid-afternoon. Want one too? I hope I haven’t used up the whole pot. Well, it’s a virtual coffee share. Let’s have a coffee and let’s chat.

If we were having coffee, I’d ask about your weather as usual. Ours has been mostly warm, sometimes hot. On Wednesday in particular, the daytime temperature rose to 31°C. Today, it’s only about 21°C. I even wore long sleeves this morning when going out for a walk.

If we were having coffee, I would share that I discovered a function I hadn’t previously known about existed in JAWS, my computer’s screen reader. When you press INSERT+4, INSERT being the designated JAWS key, JAWS displays a menu with special characters to select from, such as the euro sign, the degrees sign I used above, etc. Before I knew about this function, I’d do a Google search for something that’d pop up the character I wanted, copy/paste it into a text document and copy/paste from that document to my blog. However, if I wanted a character that wasn’t yet in the document, I’d need to do a search all over again. Besides, it’d mean having to open a separate app, in this case Notepad, and copy/pasting from there rather than selecting the character from the menu.

If we were having coffee, I’d share that, today, I started on 25mg rather than 27.5mg of aripiprazole (Abilify), my antipsychotic. So far, so good, but I’m not expecting any effects as of yet, as aripiprazole has a half life of 72 hours and the dosage decrease is so small anyway. This is my second decrease out of possibly twelve, each taking three months. That’s an incredibly slow taper, but it’s this way so that any possible changes in my mood and/or behavior can be observed over time.

If we were having coffee, I would tell you that I’ve been busy crafting this past week. Someone from a neighboring care home has her birthday next week and a fellow resident from my care home has his birthday on the 25th. I asked the woman who has her birthday next week what her favorite color is and she immediately understood why. “Ah, you know when I have my birthday!” she exclaimed. Of course, I didn’t reveal anything else. I am creating a necklace with all polymer clay beads for her. I did this for someone else, who had her birthday at the end of January, and back then it’d taken me weeks to create all the beads. Now, I was able to do half of them in one day. The other half is a little harder, because that color of clay is more difficult to work with.

For the man who’s having his birthday on the 25th, I bought a canvas, which I painted black this week and am going to decorate with polymer clay cookie cutter shapes once I’ve finished the necklace. I am doing his name and a car. Since the challenge theme for this month in the Dutch polymer clay Facebook group is mixed media, I’m also thinking of including some other technique, but I’m not yet sure what.

If we were having coffee, lastly I’d share that today, my husband went to get his new-to-him car, a Fiat Panda. He’s coming for a visit tomorrow. We originally thought of driving to some town or city in the area, but neither of us can think of an interesting one, so we may just go to Subway to have lunch.

How have you been?

#WeekendCoffeeShare (July 23, 2022)

Hello everyone on this fourth Saturday of July. I’m joining #WeekendCoffeeShare today. It’s been a few weeks. Let me share what’s been going on.

If we were having coffee, I’d ask how your weather is. We haven’t had an official heatwave here, as we had only three days of daytime high temps above 25°C. Then again, on Tuesday, the temperature reached 39°C. That’s not a record, for your information: the Netherlands’ official all-time heat record was reached three years ago and it was almost 41°C.

If we were having coffee, I would tell you that, on Monday, I took a trip into town with my staff. I had to get some toiletries and new baby wipes (which I use for cleaning my claying supplies). I also went into Action, a discount store, actually looking for origami paper. I didn’t find any, but did buy some clear stamps, a stamping pad, blank cards and alcohol ink. As it turns out, I will most likely only be able to use the alcohol ink for my clay, and I’m not 100% sure how, as it contains glitter. I mean, that may damage my pasta machine rollers, so I may need to only roll by hand when I’ve used this alcohol ink. I might find other uses for the other supplies. I was thinking of starting up simple card making again. Now my past self is laughing and telling me “No!” in a firm voice at the same time, but I’ve already decided not to invest any more money into it. If I can’t do this at all, that’s €4,95 wasted, but some people at the day center may still be able to use my supplies.

If we were having coffee, I’d share that I’ve been loving coming up with some ideas for my polymer clay. I’ve also been watching a lot of YouTube tutorials. I’m still not actually crafting much, but that will hopefully change soon, as I managed to blend three different intensities of the same color green that I intend to use for a unicorn. Let’s hope this unicorn turns out great!

If we were having coffee, I would share that I really need to mind my food plan again soon. I am still just overweight as opposed to obese, but I do need to watch out that my weight isn’t creeping back up. On Monday though, my sister and her family will be here for a belated birthday visit and we’re going to order pizza I think. That will be the fourth time in a month that I’m either eating at a restaurant or ordering takeout. After that, I’ll seriously watch my diet. I’m already trying to make sure I’m not having too many treats. For instance, yesterday I was hungry mid-afternoon and decided to have some carrots rather than going for my licorice. I think that counts for something.

If we were having coffee, I would resist the urge to rant about my appointment with my psychiatric nurse practitioner and the care facility’s behavior specialist on Tuesday. It was really frustrating, but I’m not ready to share the details. I would instead refill your cups and ask you how you are.

#WeekendCoffeeShare (July 2, 2022)

Hi everyone on this first Saturday of July. Wow, can you believe the first half of the year is over with already? I certainly can’t. I’m joining #WeekendCoffeeShare today. I just had my afternoon coffee, but the other residents are probably still having theirs. Let’s have a coffee and let’s catch up.

If we were having coffee, I’d start out by asking how you are. How’s your weather? Ours has been mixed. Right now, it’s about 23°C and partly cloudy, but we’ve had daytime temps as high as 29°C and as low as 19°C and a mix of sun and rain and thunderstorms.

If we were having coffee, I would share that this week was a mixed bag. I’ve been struggling quite a bit with all the new staff being introduced to me over the week. Now I hear you say what my staff have been saying too: isn’t that better than temp workers? Yes, it is and, thankfully, I didn’t have any temping staff all week. However, on some days, I had two staff introduced to me in a day and this generally meant at least one of them was orienting to my one-on-one shift. This means they’re with me literally all the time and this means I have two staff with me all the time, who are sometimes chatting among themselves about their kids or whatever (sometimes under the guise of the new staff telling me about themself). That cost me a lot of energy. By the middle of the week, I had thankfully been able to get it through to the staff that I don’t like this.

If we were having coffee, I would tell you that I’ve been struggling a bit with the discrepancy between my emotional development and my intelligence again. I have been reading up on emotional development as it relates to people with developmental disabilities and, though the theory makes perfect sense to me, this does actually create intense turmoil inside of me. This specifically relates to the situation in which staff confront me with my challenging behavior, trying to let me know it’s unacceptable. I am not even always rationally able to see their point, for example when it relates to the temp workers and new staff, but even when I am, it is sheer impossible for me to grasp it emotionally.

If we were having coffee, I would share that, on Monday, some evangelicals were handing out flowers near my neighborhood supermarket. As a progressive Christian, I agreed with a lot but not all of what the woman doing the evangelizing to me said, but I didn’t feel like challenging her. After she started challenging my staff’s Catholic beliefs and all of us noticed the conversation became awkward, I accepted the flowers and moved on. I do feel that this, odd as it may seem, came at the right time, being that it was my birthday and I’d just had a really hard appt with my nurse practitioner. At least yesterday, the flowers still looked quite good.

If we were having coffee, lastly I would tell you I’ve been very crafty lately. The creations I shared yesterday, I had finished late last week. This week, I’ve been experimenting with the plunger cutters I got from the new student staff on Wednesday, as well as with my extruder. I didn’t actually create anything using the extruder yet and I might’ve broken it already after all. Today, I did create a sort of Earth charm. I originally wanted to do the continents much like they are on the real planet, but that didn’t work out.

How have you been?