January 2023 Reflections #WBOYC

Posted on by Astrid

Hi everyone on this final day of January. Last year, I loved looking back on each month as it related to my word of the year. I didn’t choose a word of the year for 2023. Not sure why, but I just couldn’t find one. I however do like these monthly reviews, so I’ll continue them. The monthly word of the year linky has also changed to #WBOYC, which is an acronym for What’s Been On Your Calendar. I’m joining in with this linky today for my monthly reflections.

This month, I started out with mixed feelings of hope and fear for the coming year. Just before New Year’s, my assigned staff had introduced the piece of paper with agreements re my care on it, which was slightly disappointing to me because of it being easy to interpret in multiple ways. As the weeks proceded, I found out that, indeed, it didn’t do much to improve my care. In fact, I still live moment-to-moment, not because I can’t get through each moment due to my mental health, but because the staff and home in general are so unpredictable.

Several weeks ago, I decided I definitely want to find another care home. This, obviously, requires a talk with the behavior specialist and support coordinator, but, so far, my support coordinator hasn’t responded to requests to share when she is available. I have it in my head she’s decided to ignore me until I shut up about wanting to leave. After all, several staff have started to talk nonsense about baby steps towards adjustment, and I’m pretty sure they don’t mean the steps towards adjustment should come from the staff. Even though I do experience good enough days here and there, I won’t shut up though until structural changes mean good enough is going to be the norm, and I’m sure this isn’t going to be here.

In other news, I had three visits from my mother-in-law during the month of January. I also saw my husband almost each week – missed only one because I had a cold.

I started working with the book The Artist’s Way at the end of the month. I’ve only just started with Morning Pages and am taking the program at a slower pace than is recommended, partly because I’m a slow reader and partly because I need to modify the Artist’s Dates to suit my needs. For example, since I don’t handwrite my Morning Pages, I have no reason to give myself a sticker on the envelope each day I completed them, and I can’t use regular stickers anyway. However, I saw 3D unicorn stickers and want to buy those and stick one on my laptop for each day I complete my Morning Pages for a week. Of course, since they are sold online, I may need to have them delivered to my in-laws because my care home’s address isn’t always recognized by delivery people. I’ll get to that tomorrow.

I wasn’t as crafty as I’d like to have been, but did slightly expand my horizons where it came to polymer clay, in that yesterday I started on a unicorn in a lying-down position and today I tried to decorate my latest standard, sitting unicorn with Hotfix rhinestones.

I didn’t write as many blog posts as I’d hoped during January. Of course, there was #JusJoJan, but even when the prompts did speak to me, I often didn’t write. I am still considering participating in #Write28Days in February, but honestly haven’t written anything for it. Not that I had any of the previous years I took part either, but then I was more motivated.

I did for the umpteenth time revive my Instagram account. This time, I’m actually finding some joy in it, because I actually find that I can interact with some people on there.

In the health department, January was a true mixed bag. I did get moving sufficiently, particularly walking, but healthy eating was a huge struggle. Over the month, I maintained my weight, so still 3kg to lose for me to be at a healthy BMI.

Lastly, I did attend the cerebral palsy online meeting for the provinces of Gelderland and Utrecht this evening. It was good. There will be a live meeting in March, so I’m hoping to go there too.

A Few Pretty Intense Days

Posted on by Astrid

Hi everyone. It’s been a few days since I wrote on my blog and I didn’t even check my feed reader yesterday at all. The last few days have been rather intense emotionally.

First, on Sunday, my husband picked me up at 8:30AM to drive to my sister and her family, who live across the country. Little Wolke, my baby niece, was, well, a baby. She didn’t really interact at all. Neither at first did Janneke, my older niece, who will be three in September. My sister did explain that “auntie Astrid’s eyes don’t work” so that’s why I can’t look at her, but she was still shy. Once my sister had taken the polymer clay bear I’d created for Janneke and let her undo the wrapping, she was a little more engaging. I did feel bad that, when she said the bear wanted a kiss, I told her not to (since I keep hearing mixed things about the safety of polymer clay in this respect). I did worry for a while that maybe Janneke was a bit too young for the bear, but my sister said she doesn’t put things in her mouth anymore and my husband said she has to learn.

My brother-in-law kept my husband occupied with the same old stories and jokes he tells each time we see each other. Meanwhile, Janneke warmed up to me and started inviting me in to her play. Janneke had hip dysplasia, for which she needed surgery last September. She still remembers in a way or so I think, as all her dolls needed to go to the doctor and get fitted with a cast (or have the cast sawn off).

At one point, my sister did start talking about needing to get rid of her pregnancy pounds. I felt a little uncomfortable about that, as she’s quite thin and I am still overweight. Then she started telling me about her career plans.

Overall, I did notice that my sister only talked about herself (and her kids). This is okay with me, but it does remind me of my parents often telling professionals that I am only able to talk about myself. It makes me feel as though the reason I’m not allowed to talk about myself is not that it’s about myself, but the fact that I don’t live a “normal” life. In other words, the contents of what I tell my parents makes them uncomfortable more so than the fact that it’s about me. Either that or my sister is somehow a lot more reciprocal with my parents than with me.

I do think I like Janneke after all though. Last time I saw her was at my birthday almost a year ago. My sister prompted her to give me her present, but she said: “No auntie Astrid not nice.” I felt that was both cute and a tiny bit upsetting.

Thankfully, my husband was able to drop me off in Raalte again in the afternoon. I arrived here with half an hour to spare before we’d eat dinner, which was Chinese takeout.

Then yesterday, which was a bank holiday, I spent most of the morning in bed, because a temp worker was assigned my one-on-one shift and the two most recently employed staff, neither of whom I know well, were working the regular shift. The temp worker tried to get me to go out of bed at first, but she had no idea about the activities I normally do during the day and I didn’t have the energy to explain them to her. Overall, I felt really powerless and like I’d rather not have someone there at all. Thankfully, today we’re more or less back to normal.

Dropping Those Extra Pounds

Posted on by Astrid

One of Mama Kat’s writing prompts this week asks us what’s sabotaging us in dropping those extra pounds. I remember about six years ago responding to a similar prompt on my old blog. At the time, the prompt asked us specifically about those first five pounds. That would be somewhat fitting for today too, as my weight currently is about five pounds into the obese range.

It hasn’t always been that way. Back in 2015, losing five pounds wouldn’t even get my BMI under 30. In 2017, I had a BMI close to 35. I managed to turn that around and lose almost 10kg or 20lbs in six months, crossing the line back to just plain overweight for the first time in many years.

Now I’ve been back within the obese range for several years already, but my weight has been more or less stable for about two years now. I would really like to lose those first five pounds, but something’s sabotaging me. And that something isn’t binge eating anymore.

In fact, back in 2015, I admitted that the problem wasn’t most likely my emotional overeating either. I’m not sure that’s true, as I considered it a win that I hadn’t had a binge in a few weeks. Now, I haven’t had one in months.

However, I was probably right that it was more my habitual snacking and lack of exercise. Currently, I do try to get in enough exercise at least with my walking, but I still eat just a little too many cookies and chips.

The fact that I get in enough walking, probably keeps me stable, but I could be doing so much better if I just resisted the urge to have a cookie or two with each coffee break. Like my husband once said, if I removed just one cookie from my diet and didn’t make it up with anything else, I would have lost those first five pounds within six months to a year.

Mama’s Losin’ It

Things I’m Proud Of Myself For This Week

Posted on by Astrid

This week was a struggle in some ways, but it was also good. I have been dealing with a lot of fear of joy again. I also find it hard to take credit for things I do well in case it means people expect me to always do as well. To turn these negative convictions around and focus on the positive, I am listing some things I am proud of myself for this week. I am joining today’s Word of the Day Challenge, because the word happens to be “Proud”. Okay, that was what inspired me, so I need to give the creators of the challenge credit here. I am also joining in with #LifeThisWeek.

1. I am proud of the progress I am making with polymer clay. I have been practising making layered cookie cutter shapes and can now do them on pasta machine setting three at least with Fimo Professional pretty successfully. I am still learning with Fimo Soft, as that’s a bit too sticky for my liking.

2. I am proud of myself for having been relatively physically active despite some pain. I am not giving in to every little ache, but I’m not overdoing it either.

3. I am proud of myself for not having run away or become actually aggressive when a fellow client was screaming at full volume for like an hour last Thursday. I mean, like I mentioned before, I did become a little threatening, but I didn’t hurt her, the staff or myself.

4. I am proud of myself for having survived today’s trip to Ikea, with most things we needed being very hard to find or out of stock, without getting very distressed. I managed to get a dustbin as well as a desk, or rather, separate legs and a top. When we got to the storage department, we couldn’t find the desk top but there was another, very similar one in its place. I wasn’t sure we’d got the right one, but we asked the shopping assistant and it was the one we needed.

5. I am proud of myself for having lost the weight I’d gained last month again this month. I stepped onto the scales again this morning and am exactly 72kg now. Of course, my weight has been fluctuating anyway, but it’s not gone up significantly at least.

What are you proud of yourself for?

Gratitude List (July 30, 2021) #TToT

Posted on by Astrid

Hi all, happy Friday! I’m joining Ten Things of Thankful (#TToT) today with a gratitude post. Let’s get started.

1. I am so grateful my benefits arrived. Oh well, I spent a significant amount of money already on crafting supplies and my yearly premium subscription to Day One, a diary app. I have once again resolved not to make unnecessary expenses for at least a week. I am however grateful that, even if I do end up spending some money, I won’t go broke anytime within the foreseeable future.

2. I am grateful my staff try to find me things I need or want for free or at a heavily discounted price. For example, one staff was able to get a music pillow for just €1. Another staff gave me some cookie cutters and ziploc bags she didn’t use and her daughter’s old duvet cover. Oh, it feels off to say this right after I’ve told you about my spending my benefits money on crafting supplies.

3. I am grateful to retain my creative mojo. I have really been loving doing some crafts lately, particularly polymer clay and some jewelry-making too.

4. I am grateful that my creative juices flowing means I have something else to talk about online besides my disabilities and health conditions. I am truly loving perseverating on polymer clay in particular.

5. I am grateful for organized storage shelves. Okay, I think I decluttered them a month or so ago already, but with my new crafting supplies, I had to do it again. I’m really satisfied with the space I created without even too much throwing out.

6. I am grateful for pasta salad. My day activities staff and I made this for lunch on Tuesday and there was still some left on Wednesday.

7. I am grateful I haven’t gained any weight in the past week despite not walking as much and despite the pasta salad and other treats. In fact, I lost 200 grams.

8. I am grateful for a nice fill-in community psychiatric nurse. My regular CPN will be on vacation when I was originally next supposed to see her in two weeks, so the other one will fill in. She joined me and my regular CPN for our appointment on Wednesday and she seems nice.

9. I am grateful for a nice new student staff. She is already older, so it’s easier for me to trust her than the young interns.

10. I am grateful my husband is now fully vaccinated. He got his second shot yesterday and he seems to be doing okay.

What are you grateful for?

July 2021 Health and Wellness Update

Posted on by Astrid

Today, I’m not feeling too inspired to write. However, I said last month that I wanted to make health and wellness updates a monthly occurrence. Here goes.

Last month, I was worried about my kidney function. My nurse practitioner was since able to reassure me it was within the acceptable range. I since have stopped using the Water Reminder app, as it was being a bit of a nuisance having to fill out my fluid intake each time. However, I still make sure to drink plenty of water.

The fact that my kidney function is acceptable means I have been able to start the topiramate too. Thankfully, like I’ve said, I don’t experience any side effects.

I also found out last month that I don’t have a UTI. The doctor still isn’t sure what is causing my bladder pain. I for a while took the max dose of paracetamol plus naproxen twice daily. Thankfully, I have since been able to get the naproxen back to an as-needed prescription.

As of last Tuesday, my magnesium, which I’ve been taking for constipation for a few months now, has been upped. I myself thought I suffered with diarrhea, but my GP was able to see that it was a result of constipation really. I am really hoping this will work.

To be honest, with respect to lifestyle, I’m not too satisfied with how I’ve been doing over the past month. I am still struggling to make healthier breakfast and lunch choices. This week, I started having crackers for lunch, which I like far better than slices of bread. However, we didn’t have those until Wednesday and yesterday, we already had a special grill lunch.

I did make sure to eat some fruit at lunchtime each day as well as some slices of cucumber. Overall, combined with my relatively healthy choices from the meal delivery service menu, I did meet my five servings of fruit and veg each day.

I got weighed in again yesterday and, sadly, had gained 400 grams compared to last month. I am still within the acceptable to me weight range, but I do need to make sure I really watch my diet more carefully over the next month.

Exercise-wise, I’m not doing as well as I’d like to. I would really like to make it to 10K steps more regularly again. I do know the weather hasn’t been great, but I still have the elliptical and can dance in my room. I would also really like to make weight training a part of my routine again. That might take some more time though, as, well, I want so many things.

Overall, I feel okay about the things I can’t control, like the fact that my kidney function is within the acceptable range after all. However, I could really do better on things I can control, such as eating a healthier diet and exercising more.

June 2021 Health and Wellness Update

Posted on by Astrid

I am feeling kind of worried about my health lately. To get myself a more realistic picture of how I’m doing, I thought I’d do a health and wellness check-in. I am hoping I can make this a monthly habit.

Firstly, the reason I am worried is one abnormal result on the annual bloodwork I had done last week. I get an annual blood test for fasting glucose, cholesterol and other indicators of metabolic syndrome. This is because I take psychiatric medications that can influence this. Last year, my mental health agency ordered it, but this year, my care facility’s physician did. This means I could see my results in the patient portal for my GP surgery that same evening.

The good news is my fasting glucose, cholesterol and triglycerides were all within the normal range. The one thing that wasn’t, is an estimate of kidney function. It should be above 90 and was 81. Because it is an estimate, one abnormal blood test doesn’t say anything. I may need to be retested in a few months.

I looked up what to do about decreased kidney function, hoping to find that if I drank plenty of water, I could get it back to normal. I’m still not sure that’s the case. I mean, I try to drink at least two liters of fluid each day, but can’t figure out whether that should be enough. Other than that, I do try to watch my salt intake more closely. That’s pretty hard, of course – harder than drinking more water.

I do worry that I might not be able to tolerate the topiramate though, because if I remember correctly, that medication is eliminated through the kidneys. I’m not sure though and will leave this to the doctors to decide.

Like I said though, all my other results were within the normal range. My fasting blood glucose was 4.3. It should be between 4 and 6 and was 4.2 the last time, but I’m not drawing conclusions about it increasing as of yet.

Today, I did send off a urine sample for checking for a UTI, because I’ve been having lower abdominal pain. It came back alright. My staff will likely call for an appointment for me to see the doctor, as the pain is still pretty intense.

As for some good news though, I stepped onto the scale this morning and am back at my average weight for the past six months or so. My weight usually goes up or down a few pounds. I’m now 72.1kg, which means 2kg to lose for a BMI under 30. I am unlikely to reach that goal, but it’s okay.

As my husband reminded me when I told him about the abnormal blood result, small steps go a long way. I am already trying to cut back on my snacking on the weekend. I also make sure to eat enough veg and fruit. I mean, the meal delivery company isn’t great on putting veg in its pasta and rice dishes, which I eat most days. However, I make sure to eat some cucumber, tomatoes or raw bell pepper with each lunch. For the upcoming month, I’ve also selected some potato dishes from the meal menu, since they usually are richer in veg.

My husband also pointed out that I get enough physical activity. I could go on the elliptical more often, but my walking is pretty good already.

I did feel a little depressed when my husband told me that it’s obvious that I’m not as healthy as the average woman in her thirties. Then again, he reminded me that I turned the tide on my weight gain in 2018 and am healthier in some ways than I was before. Besides, a century ago I wouldn’t have lived past infancy. That put things into perspective.

Working On Us Prompt: If Disordered Eating Isn’t About Food or Weight

Posted on by Astrid

Today, I am once again joining in with the Working On Us Prompt. I hope the link works, as it once again gave me an error 404 when I tried to visit it. There are really two question prompts for this week’s Working On Us. I may post a separate post about the second question. The first asks what if eating disorders aren’t about food or weight? What are they about?

As a person with disordered eating tendencies, I can totally empathize with this question. I mean, yes, I am obese, but that in itself doesn’t qualify you for help with disordered eating other than a monthly kick in the ass from a dietitian. Well, that just isn’t enough for me.

Then again, I was told by my psychiatrist that I do not have an eating disorder, because the amount of food I eat during a “binge” isn’t big enough. Well, I understand. That doesn’t mean I don’t struggle with my relationship with food or weight.

Because that is really what disordered eating is all about: the relationship we have to food and our bodies. It isn’t about how much you eat, how much you weigh, or how often you exercise. It’s about the thoughts that go on in your mind.

For clarity’s sake: at the time that I was told I do not have an eating disorder, I was in the early stages of recovery from purging, which in itself does warrant an eating disorder not otherwise specified diagnosis. I was never fully bulimic, but I was coming close. That’s not my point though.

I struggle a lot with disordered thoughts about food and my weight. In fact, I think about food the majority of the time and those thoughts are not usually healthy.

Once, when I read a book about someone with an eating disorder, her psychiatrist suspected she was an alcoholic too. She administered a simple screening tool, which asked whether the girl had tried to cut back on alcohol, was getting annoyed or angry when people commented on her drinking, ever had alcohol first thing in the morning, and then there was another question. She answered “Yes” to three out of four questions. Well, I can answer yes to the three I remembered here when substituting alcohol with food. I occasionally overeat first thing in the morning, have very regularly and unsuccessfully tried to control my food intake, and I do get angry like all the freakin’ time when someone makes a comment about my food-related habits.

Yes, I knnow that to the outside observer, I appear like just an unmotivated, overindulgent fatass. What they don’t see are the inner battles I fight each and every day to deal with my disordered eating tendencies.