Gratitude List (August 7, 2020) #TToT

Happy Friday everyone! I still have a lot I want to write about, but it’s soaring hot here and my brain is melting. For this reason, I’m going with a relatively simple post and do a gratitude list. As always, I’m joining in with Ten Things of Thankful (#TToT).

1. Barbecues. My husband bought a mini barbecue last week and we had sausages on it on Saturday. To get some healthy food in us too, my husband served us both a full plate of cherry tomatoes. That was funny.

2. Ice cream. Lots of ice cream! Like I think I said last week, the freezer was still full of ice cream from my birthday and the previous time it was hot. Well, my staff bought even more and so we had ice cream for dessert or as an afternoon treat several days this past week.

3. New shoes. I ordered new walking boots on Monday and they arrived on Wednesday. They are a size bigger than the ones I had before, as those didn’t fit well anymore with my feet swelling. These are pretty cool.

4. Getting motivated to walk again. I signed up for Steptember, a sponsored walking/movement event in support of the cerebral palsy community. At first I wasn’t sure whether to sign up, as I can’t make it to 10K steps every single day of the event. However, my husband encouraged me. I can’t wait to start walking a lot again. Not now though, as it’s incredibly hot, like I said. By the way, I’m not sure there’s an English-language site where you can donate.

5. Liquorice. I bought a bag yesterday and had some tonight. Yes, I still had it unopened by then. Okay, full disclosure, I did also buy a bar of white chocolate and did eat that one, but oh well. Oh, how I loved the black liquorice!

6. Reading time. I actually finished a book this week that I’d started a long time ago. I loved sitting up late at night reading, as it was too hot to sleep.

7. My staff. I was feeling very much on edge for the first few days of the week. On Wednesday, I even had to take a lorazepam again to calm me down. However, all through it, my staff were so very supportive.

8. All the lovely comments I get on here. You all are so special. I’m also so happy to be motivated for writing a lot again this time around.

That’s it for now I guess. What are you grateful for?

Gratitude List (July 31, 2020) #TToT

It’s a hot Friday here and I have lots of things I could be writing about. I choose to do a positive post though and share my gratitude list for the past week or so. As always, I’m joining in with Ten Things of Thankful (#TToT).

1. Noodles. One of the day activities staff made those for us on Tuesday and one of the other clients helped her. He was so proud of himself! I loved the noodles with chicken and veggies and of course satay sauce. The staff had chosen the mild satay sauce rather than the spicy one, but I liked it anyway.

2. Going to the marketplace. On Wednesday, a day activities staff took me to the marketplace to get some fish for lunch. I also got a large waffle.

3. Day One. This is a journaling app for the iPhone (and Mac). I finally got the premium subscription to Day One and am loving making a daily habit out of journaling. Because I have the premium subscription, I can also E-mail my journal, so if I write something on an E-mail list, I can later send the same message to my journal easily.

4. My blog. It turned two on Saturday. Though I haven’t been as active lately with regards to reading other blogs and for this reason, didn’t get the engagement I’d like on my blog either, I still love it. I do need to make a note to myself to check whether comments are enabled on my posts before publishing them, because WordPress seems to have pulled the trick of disabling comments at random once again.

5. The weather. It’s been pretty good all week. Today it’s a little hot for my liking, but it’s still bearable.

6. AC in the living rooms. Some company came to install it on Monday or Tuesday. Some other clients, whose rooms get particularly hot, also got AC installed in their rooms.

7. Walking. I managed at least two walks each day. Some days I didn’t feel like going for walks, but I managed to kick myself in the butt anyway.

8. Having some energy back. I was really low on energy early in the week. One night, I even went to bed at like 8:30PM. Thankfully, I’m pretty alert now, though I can’t for the life of me remember when exactly some things happened, like you may be noticing.

9. Speaking to my husband on the phone. He’s so lovely! He said half-jokingly that he’d look at my blog to see the keychain I’d made for him, as he hasn’t seen me in real life since I made it. Then we got talking about whether he reads my blog and whether I write about him a lot.

10. Reading. I am loving reading foster care memoirs again.

What have you been grateful for lately?

Thankful Thursday (July 23, 2020): My Care Team

Hi everyone! How are you all doing on this warm Thursday evening? I’m doing a lot better than I was earlier this week. I could actually do an early gratitude list, as there’s more than one thing I’m grateful for. A simple list wouldn’t do justice to how huge these gratefuls are though. Let me share. I’m joining in with Thankful Thursday.

First, I still need to update you all on my appt with my nurse practitioner and CPN on Tuesday. It went better than I expected. The outcome is that my nurse practitioner is going to talk to the psychiatrist and see if he can find us a psychologist to do trauma therapy and work on our emotion regulation issues. I don’t remember all the details of the meeting, but at one point, I/someone in me blurted out that we’re in Facebook groups for dissociative disorders. I quickly added that really that’s none of my nurse practitioner’s business, but still we feel a lot of shame surrounding this.

Then on Tuesday evening, a discussion erupted on Twitter about the ISST-D’s guidelines for diagnosing and treating people with dissociative disorders. There’s this article from 2001 that’s still being used to weed out alleged fakers. It uses such things as being open about your DID or trauma to people other than a few close confidants, showing no obvious shame when talking about your trauma, being in support groups for DID, etc., as apparent proof that you’re fake. Now I must say I’m still conflicted about going the actual trauma/DID assessment route, but this did trigger us. However, my support staff are on my side.

We were still recovering from the shame about all this when we heard the main good news I was planning to share here. I got a higher care profile allocated to me by the long-term care funding authority. I still can’t quite believe it, but I’m so happy. The application hadn’t gone out till last week, but this afternoon, my staff got a call that it’d been approved. I’m still waiting on the letter in my government inbox confirming it, but this is really good news. I now have the highest care profile for blind people in the long-term care system.

I was feeling a bit disconnected when I heard the news. Like I said, I still can’t quite believe it, but it’s such amazing news. I’m so glad my staff were so perseverant that they actually applied for this.

Looking forward to hearing what you all are grateful for today.

Gratitude List (July 17, 2020) #TToT

It’s been a while since I last did a gratitude post. I’m feeling okay. Not good, not too bad either. However, gratitude will be helpful at any moment. As always, I’m joining in with Ten Things of Thankful (#TToT).

1. A good meeting with the cerebral palsy charity. We “met” online via Microsoft Teams last Saturday. It was nice to get to know some people in my area, as this was a provincial meeting. We’ll “meet” again online on September 5.

2. Paracetamol. I was in some pain over the week-end. Thankfully, some paracetamol did help.

3. Lorazepam. I took one last Saturday too, as I was feeling a bit overwhelmed and wanted to sleep well. I got an okay night’s sleep and haven’t needed to take more lorazepam since.

4. Jewelry-making. I didn’t do too much of it, but I did make a keychain for my sister-in-law today. For the rest of the week, I’ve just been looking at all the wonderful things I could do.

5. Physical therapy. This Wednesday, the facility’s physical therapist came by. We had asked her to after the meeting with the CP charity had made it clear that I have no reason to keep going on with pain if there are still options. The PT assessed me and concluded I have tension all over. She put tape around the inside of my right knee, because I overextend it otherwise. That’s helped some.

6. A weighted blanket. I had asked my staff a while ago to inquire about me getting a weighted blanket. The PT said she had one with balls in it on hand. I didn’t like that one, but we did set things in motion so that I can rent and maybe later buy a weighted blanket.

7. Blueberries and candy. I went to the local supermarket with a staff today to by candy, but also ended up buying blueberries. These are all eaten now. The candies aren’t yet.

8. My husband. I talked to him on the phone a few times this week. On Monday, I was quite upset because I feel I may be deteriorating. My husband reassured me that regardless, I am okay the way I am.

I can’t think of anything else and I realize some of these are really blessing-in-disguise type of gratefuls, but oh well.

What are you grateful for?

Gratitude List (June 20, 2020) #TToT

Hi everyone! How are you all doing? I’m a bit tired, but not ready to go to bed yet. Instead, I’m going to write a gratitude list again. As always, I’m joining in with Ten Things of Thankful (#TToT). Here goes.

1. Sunshine. The weather was really good over the past week. We had some light rain some days, but most days were sunny and warm.

2. An anti-allergy medication. I have bad eczema that itched like hell for some weeks. I finally went to the doctor on Wednesday and got an antihistamine called desloratadine. It didn’t help at all the first few days, or maybe without the medication the itch would’ve been even worse. In any case, now it does seem to help.

3. An antibiotic ointment. One spot, which the doctor initially thought was the result of an insect sting, got inflamed. Thankfully, with some Fucidin applied topically, the inflammation is a lot less now.

4. The night staff. A few nights ago, the itch was so bad and the inflamed spot so painful that I got really scared. I called for the night staff to apply some oily cream to the eczema. She did this, but I remained very scared. Somehow, I had gotten it in my head that I’d get sepsis from this. I pressed the call button again at around 2:30AM. The night staff was so kind and reassuring.

5. Alternatives to bread. I don’t really care for bread for lunch, at least not when topped with the ordinary kind of things you normally put on bread, such as cheese, peanut butter, etc. Thankfully, we had some lettuce left over from making burritos last week, so I had a salad for lunch one day. Another day, I had noodles.

6. Pancakes. Today, two staff came to our home on a voluntary basis just to bake us pancakes. They were so delicious!

7. Reaching my step goal. I reached over 12K steps (my goal being 10K) on three days this week. Today, I didn’t do so well, so I will still need to get some 5K steps tomorrow to break my weekly record of just under 65K steps.

8. The visiting rules at my care facility likely being relaxed as of next week Friday. The announcement will go onto the facility’s COVID-19 page on Monday.

9. My parents offering to visit me. I called my Mom last Sunday and, as we were discussing the visiting rules, my father asked if they could come too. I initially was a bit hesitant and I’m very nervous, but also excited. They will be visiting me next Friday.

Oh, and now I can’t think of a number 10, but whatever. I’m grateful for being able to express my gratitude. Consider that my tenth thankful. Besides, the number is just a suggestion.

What are you grateful for?

Lovin’ Lately (June 19, 2020)

Hi everyone and welcome to another edition of Lovin’ Lately, in which I share all the things I’ve been loving recently. I’m joining in with Friday Favorites.

Today was a pretty busy day. It was the Friday we have day activities (every other Friday is a day off). As such, I’ve been pretty active. This is why I didn’t sit down to write until now that it’s past 10PM. With no further ado, let me start.

1. Netflix. Last Saturday, in an impulse, I decided to get a Netflix subscription again. I always get the basic one, as I, being blind, don’t need HD video or multiple screens to watch on. I wanted to see the Netflix original documentary series Diagnosis. This is really fascinating!

2. My yoga mat. My husband brought it to me last week and I finally unfolded it this evening to get some working out done. I tried several yoga apps, but haven’t found one that I like yet. Then again, I love doing yoga just the way I like it. I mean, I’m pretty inflexible and don’t have much strength in my muscles at all, but if I don’t practise, it will remain this way. I tried a beginner’s yoga class with the app Down Dog, but couldn’t follow it without being able to see the video. Still, I loved the feel of working out.

3. Journaling prompt collections. I’ve probably mentioned half a dozen times already that I love to collect books of writing prompts, particularly those geared towards journaling. This week, I got a few good ones. The Goddess Journaling Workbook by Beatrix Minerva Linden is great. I already worked on some of the prompts over the past few days, as you can see. I however also love The Year of You by Hannah Braime.

4. A stuffed pillow. I got to borrow one from another client here at the care facility earlier this week and was totally in love with it. I kept stroking its soft side as I dozed off to sleep.

5. My Fitbit. This is by no means a new product, but I just want to mention it as a way to celebrate the huge step achievement I reached this week. So far this week, I got over 56K steps. This includes a short elliptical workout this evening. My Fitbit doesn’t count the yoga workout.

What products have you been lovin’ lately?

Gratitude List (June 12, 2020) #TToT

It’s Friday again. I’m still feeling pretty off. I have a lot on my mind, but rather than dwelling on it, I’m going to write a gratitude list. I’m joining in with Ten Things of Thankful (#TToT) again.

1. Bookshare. This is a service that provides accessible eBooks to people with print disabilities. It costs $50 per year and my husband just renewed my subscription. I love it! Not all books are available internationally, but enough are that I enjoy the service.

2. Smoothies. A staff gave me a smoothie maker on Monday. I already had a blender, but this one is a bit smaller and comes with its own screw-on drinking bottles. I have been loving making my own smoothies! Particularly, I loved one with apple, cinnamon, almond milk and oatmeal.

3. Tacos. Or Tortillas or whatever these particular ones are called. We made those at day activities yesterday. We filled them with lettuce, chicken and pesto. My husband commented that pesto isn’t supposed to go on a wrap, but whatever.

4. Crafting a bit. The same staff who brought the smoothie maker, came again today and did some crafting with me and another client. We made some type of cards for a staff who earned her carer diploma recently.

5. Lots of steps again. I reached 10K steps each day this week except for today.

6. My former support coordinator. I texted her yesterday, half assuming she had deleted my contact info and wasn’t sure who I was anymore. Not so though. She offered to call me and we spoke for a bit.

7. My current staff. They are absolutely taking my care needs seriously. One thing I found out through my former support coordinator is that they’re considering applying for a higher care profile for me. This has me feel all sorts of things that I can’t describe on my blog in case someone from the funding authorities reads it. Particularly, I was scared this would mean a whole new long-term care assessmment, which would mean a risk of losing my care. My support staff did reassure me though.

8. My community psychiatric nurse. I tried to call her through the mental health agency’s secretary this afternoon, but the secretary had their automated lunch-break message on long past 1PM. I E-mailed my CPN and thankfully she got from my message that I wanted a call despite my not actually having asked her for one. She helped me process some of my feelings.

This is it for now. What are you grateful for?

Lovin’ Lately (June 5, 2020)

It’s Friday, yay! Today I’m sharing another Lovin’ Lately list with you all. Want to know what I’ve loved lately?

1. My new iPhone. This one just has to be at the top, of course. I ordered it last Saturday and it arrived on Monday. On Tuesday, a staff member helped me set it up. Except for the pattern you need to scan with your old phone to make the old one send data to your new one, the whole set-up process was pretty easy. I did need a lot of help getting the screen protector and jelly case on the phone.

I got the new iPhone SE 2020. I can’t really compare how well this iPhone performs compared to my old one when I first had it. I mean, I use my new one much more than I did the old one back then, so it’s obvious the battery doesn’t last as long. However, I’m generally pretty impressed with how long I can use the new phone with the battery not getting below 50%. In addition, my new phone is a lot speedier than the old one. Not that I found my old one slow, but now that I have this one, I’m so happy.

Unfortunately, all bugs that I experienced with the old one, are still there. This means they’re software bugs. Just need to wait for iOS 14 to come out, I guess.

2. Twitter. I’ve been enjoying being on Twitter more over the past few days. I downloaded an app called Twitterrific that makes it pretty easy to use. Somehow, the app store highlights only one-star reviews and people claim it’s a scam. It does ask for money, but so far, the purchase seems entirely optional.

3. YouTube. As someone who’s never made any videos and doesn’t intend on it either, I tended to avoid YouTube because I can’t participate on it like I do with my blog. However, today I decided to check some book-related YouTubers (or BookTubers for short). I loved it!

4. Reading. I’ve not been reading much lately, but a few days ago, decided to read some autism-related non-fiction again. I’ve been loving some books detailing the autistic experience.

Then yesterday I was reading someone else’s #BlackLivesMatter TBR and impulsively bought a novel off it. I’m already at 57%. It’s Full Disclosure by Camryn Garrett. As someone who’s white, I don’t find that I read many books about black people and other racial minorities. Racial disparities just don’t speak to me. Then again, if I ever want racism to end, I’ll have to educate myself. This book also talks about queer stuff and the main character is HIV positive.

What have you been lovin’ lately?

Gratitude List (May 30, 2020) #TToT

Okay guys, I’m still feeling meh. I don’t know why, but it doesn’t really matter. I’m not inspired to write much of anything either, so what better thing to do than to write a gratitude list? I don’t promise I’ll be able to mention many things, but I’ll try my best.

1. Ice cream. Last week Thursday, another home that’s part of the care facility called for an ice cream truck to come by the facility. The ice cream truck owners had owned some type of merry-go-round or another fairground attraction before COVID-19 hit. Then they transferred to the ice cream business as away of making money. They advertise themselves on Facebook for being on-call if you have enough customers in a street. I love this idea and obviously the care facility has some 70+ clients plus staff as potential customers.

What’s extra cool is that the other home called the truck people again on Tuesday. Now if I don’t have an ice cream tummy, I don’t know.

2. Reaching my step goal. I reached 10K steps three days this past week and so far got over 55K steps this week. Tomorrow I’ll probably have a lie-in.

3. An extra staff. Due to day activities now being provided at the home, the home staff were able to cut their hours a bit, because there was a lot of overlap with the day activities staff. As a result, they’re now able to have an extra staff for a few hours on Saturday. This morning, the extra staff took me for a 25-minute walk.

4. Bathing. This is one from last week, but on Sunday I took a bath. It was good and very relaxing.

5. Gutenberg. You know, the project that aims to digitalize no-longer-copyrighted materials and make them available to the public. I discovered yesterday that my reader app, Voice Dream Reader, connects to it too. I was able to download Anne of Green Gables by L.M. Montgomery off there. I think I prefer reading eBooks to audiobooks anyway.

6. Buying a new iPhone. I have been wanting to buy the new iPhone SE 2020 forever. That is, I’ve been looking at the possibility of it being released for at least half a year before it was released. My current iPhone, the old SE model, still works, but its battery is empty really quickly. Today I ordered the new one.

Originally, I had wanted my husband to install it. Then when I was skyping with my sister and mother, my brother-in-law chimed in and said it’s really easy to migrate from one iPhone to another. Now I may want to install the phone myself as soon as I get it and there’s someone sighted to oversee it.

7. Hearing my niece on Skype. Like I said above, this afternoon I Skyped with my mother and sister. It was fun. I hadn’t even had Skype on my computer till then, but I like it. I heard my niece on the other end of the screen. She did get a little whiny eventually, probably because she was hungry.

8. Seeing my husband! I saved this one for last, as it’s the best. Last week, the no-visitors policy was lifted at my care facility, so I was able to see my husband. He visited me again today. Like I said before, we can’t really be physically close, but it’s okay. I love you, hubby!

That’s it for now. As always, I’m joining in with Ten Things of Thankful (#TToT).

What have you been grateful for lately?

Lovin’ Lately (May 29, 2020)

Today I feel a bit meh. It’s probably due to the fact that it’s a long week-end due to today being the Friday we don’t have day activities and Monday being second Pentecost here. I don’t like long week-ends. I’m too inactive then.

That being said, I did discover a few things I’m loving lately. Let me share. I’m doing this in the classic editor again, as somehow the block editor would automatically convert my stuff to a list when I didn’t want it to.

1. Podcasts. On Wednesday, I wrote that I’d been listening to a playlist on Spotify mostly as well as an audiobook on Scribd. That evening though, through another blogger, I was inspired to try out podcasts. Unlike audiobooks, I actually love these.

I particularly love listening to true crime podcasts. Seriously, I had no idea there’s so much evil in this world that there’s a whole category of podcasts dedicated to it. Parcast Network has a ton of interesting podcasts.

Aside from true crime, I decided to look at what else is on. I discovered Parcast has a podcast called Mythology too. It was awesome listening to the most recent episode.

2. Music. Well, I said this already on Wednesday, but the Pop Warm-Up 130 BPM playlist on Spotify is great. I’m truly loving dancing to it.

3. Essential oils and fragrances. On Wednesday, my essential oil diffuser somehow decided to bite the bullet. Its on/off switch is stuck, so I cannot get it working. I asked for a new one for my birthday. Still, my husband will be looking at this one to see if he can fix it.

This did get me looking at lots of new fragrances I may want to buy. I have a lot already, but you can never have enough of those.

4. Coffee. I gave my coffee cups to the staff a few days ago because I was having impulses to break them and injure myself with the shards. This morning though, I felt a little low and in need of some caffeine. I got one of my cups and made myself a Senseo coffee. It was lovely sitting in my recliner listening to the Mythology podcast while drinking some coffee.

5. Tomatoes. A staff who’s been on sick leave for half a year or so, returned today for a few hours. When she was still working at my home, we’d built this tradition of her bringing me snack tomatoes, which I kept in a tomato-shaped box I’d gotten from her. Today she continued the tradition. I loved it.

What are you lovin’ lately?

Linking up with Friday Favorites and the Lovin’ Life Linky.