Report Cards and Progress Reports

Posted on by Astrid

Today’s topic for Throwback Thursday is report cards and progress reports. I am going to write mostly about traditional report cards in school, not the many psychological reports I had written about me during my childhood and adolescence.

Looking back, I was a good student academically, but it didn’t show on my report cards during elementary school. I attended special education and my teachers didn’t really believe I was more than just average intellectually. In fact, when I had a nationally standardized test in the sixth grade, the school’s principal called my parents in utter disbelief to tell them I had gotten a very high score. My father was like, duh, I told you so.

My behavior did get reported on. Though I had severe social and emotional challenges, I always got average ratings on those things that mattered to the teachers. I remember one day feeling disappointed when my rating on “correct behavior” had been lowered from the previous report card even though as far as I knew I hadn’t made mistakes about addressing the teachers formally.

In high school, I did get actual grades. Not letters here in the Netherlands, but numbers between one (worst) and ten (perfect). In my first year at grammar school, I got a lot of tens. These did get my classmates envious, so sometimes I’d argue for a lower grade. For instance, I had a ten on a drawing theory test and I hadn’t done any of the other drawing assignments because, well, I’m blind. Initially, I got a ten on my report card because that was the only grade I had. My classmates protested and my father and I agreed. Then the grade got lowered to an eight, reflecting the fact that I’d gotten a ten on that test and a six (barely passing) on drawing in general just for participating in the class.

Once in my third year, I was rebelling and hardly studying at all, so I did earn a few ones. One time, in my fifth year in high school (eleventh grade), I got a one in French for not doing an assignment because I’d had to do it with a partner and I hadn’t been able to find a partner, because I’d felt too anxious to ask anyone.

I wasn’t really punished harshly for failing grades or rewarded for good grades, but I did know I was expected to excel. Often, my parents made me do extra work, particularly before I was mainstreamed at grammar school.

My best subjects in elementary school were math and geography. In high school, those changed to languages, because high school math requires much more non-verbal intelligence and insight, something I don’t have. My best grade on my final high school exam was in English.

Now, as an adult, I do have an English-language blog, but I don’t think I learned to blog in high school. After all, despite the fact that grammar school is the highest level high school, I really wasn’t all that good at English after graduation. Other than English, I don’t use anything I learned in school really. I mean, during my year in special ed secondary school, textile arts was my worst subject and now I like to do macrame. Go figure.

Five Things I Take for Granted #5Things

Posted on by Astrid

Yesterday, DrTanya’s topic for the #5Things challenge was things you (sometimes) take for granted. I realize I take a lot of things for granted that I really shouldn’t. Here are just five.

1. My intelligence. I don’t take it as much for granted as I used to when in school, but i still feel that I pretty much consider my high IQ a given. Not only that, but I usually find that I’m surprised when others aren’t as intellectually capable as I am. Of course, I don’t mean my fellow clients at the care facility. In fact, they have taught me quite a lesson in humility.

2. My access to medical care. I don’t take my access to long-term care for granted, because that was a fight, but my basic health insurance coverage, I certainly do take for granted. Of course, it is mandatory here in the Netherlands and even those who don’t pay their premiums can’t be refused insurance for at least six months while the insurance company tries to sort things out with them.

3. A roof over my head. I’ve never been without shelter, although in a sense I’ve often felt “homeless”. In the psychiatric hospital, I knew several ppatients who had no home other than the hospital and who were regularly suspended from the ward into the homeless shelter. In this sense, it is really surprising that I never even considered this would happen to me, since I too for several years had no home other than the hospital. I think this signals how secure I felt, in a sense, at the ward I resided at back then.

4. Electricity. I never had to pay my own electricity bills, at least not directly. I mean, even when my husband and I lived together, my husband paid the electricity bills. As a result, I’m hardly aware of how much energy really costs. My husband did tell me how well we did compared to other households and we were always relatively frugal. Even so, it all seems a bit abstract to me.

5. Access to a computer. I don’t take Internet access for granted, but access to a computer, I certainly do. Even in my early days at the locked psychiatric ward, I had my laptop with me and there was no way anyone could take it from me, regardless of what the rules said about only certain electronics being permitted. Thankfully, my nursing staff did understand.

What things do you take for granted?

I Am Not Alone: Reflections on Being Different As an Enneagram Four

Posted on by Astrid

I have been watching videos about the Enneagram recently. One I watched, talked about the differences between a 5w4 (Enneagram type Five with a strong Four wing) and 4w5. One of the distinctions the YouTuber made was that Fours tend to take pride in their being different, while Fives try to hide their difference. That kind of hit a nerve with me.

I always saw myself as so uniquely different from others that it’s almost impossible to be true. Not just in the “You are unique, just like everybody else” type of sense. In fact, I always thought that I belonged to just a little too many minority groups to be real. I thought that there must not be anyone else in the entire world who could relate to my combination of minority statuses.

At the time, I was about fourteen and just identified as blind and possibly queer. Well, I know quite a lot of blind people who are part of the LGBTQ+ community now.

Then came being autistic, having dissociative identity disorder, my childfree status, etc. My fourteen-year-old self would certainly have believed no-one in the entire world would belong to all of these groups. Well, quite truthfully, I’ve met several people who belong to most if not all of these minority groups. That’s the great thing about the Internet.

About ten years ago, I read something on Tumblr that should’ve struck a chord with me, but didn’t. I read that, if you are white, but belong to a hundred minority groups, you are still white. Of course, the point was to prove that white privilege isn’t negated by other minority statuses. I at the time started writing a list of ways in which I was privileged, but didn’t realize these are also ways in which I am part of the majority. Ways in which I belong to the human mainstream.

Instead, I still focused my attention, aside from that one blog post and acknowledging when I’d reacted out of privilege in safe spaces, on ways in which I’m different from the mainstream. And still I somehow couldn’t believe there were people who genuinely belonged to at least as many minority groups as I did. I still somehow saw myself as the most special person in the world.

Isn’t that a bit grandiose, narcissistic even? In fact, feeling that only a select group of “special” people will understand me, is the only legitimate narcissistic personality disorder trait I have.

The truth is, everyone is special and everyone is unique and everyone has some parts of themselves that ar ordinary at the same time. At the core, no-one is fundamentally different from everyone else. And isn’t that a wonderful thing to realize? After all, it means that, at the core, we all have something in common which connects us to each other. That of course doesn’t mean I need to associate with all seven (eight?) billion people in the world. It just means that there will always be someone out there who can relate to me. Just like there is no-one exactly like me (God created us all individually for a reason, after all), I am not radically different from anyone else (we were all created equal, after all).

Reasons I Think I Want to Stay in My Current Care Home

Posted on by Astrid

Last week, I was discussing my insecurity about living in my current care home with my assigned home staff. I still keep searching for another place to live, even though staff keep reassuring me that I don’t have to leave. Part of the reason for this is probably habit, in that I feel I ought to be looking for another place because that’s always been the case. However, my assigned staff also challenged me to write down a list of reasons I want to stay in my current care home and a list of reasons I may want to leave. Today, I’m going to share my list of reasons I think I want to stay. I’m pretty sure I won’t be sharing my list of reasons I may want to leave, as these are more like things I am hoping to find a solution to within my current care situation. Anyway, here are the reasons I probably want to stay in my current care home.

1. My one-on-one support. Of course, this is government-funded and may be transferable to another care facility, but I do like the fact that my current care team really think my care is important, in that staff shortages won’t easily mean my care will be cut.

2. The fact that I have gotten to know most of my staff. Of course, no-one can guarantee they’ll remain part of my team for the foreseeable future, but if I leave, the whole team will be new at least at first.

3. The fact that my staff help me with activities of daily living. This is a bit of an uncertain thing, as I sort of feel I ought to be able to do more of them independently.

4. The fact that I get day activities in the home and am the only one who does for now. Even though it may be possible to get day activities in my room at another care facility, I might not be the only one. I like the peace and quiet during the day as it is now.

5. The fact that fellow clients hardly make an appeal on me. Most leave me alone most of the time. This is a good thing, but I did put in my other list that I wish to interact with other clients somewhat more than I currently do.

6. My own room with my private bathroom, kitchenette and balcony. Thankfully, shared rooms are no longer in existence within disability services as far as I’m aware, but shared bathrooms definitely are.

7. The weighted blanket the care facility paid for me to sleep under. I mean, seriously, if I were to transfer to a different care agency, I’d lose that too.

8. The Internet access. Pretty much unrestricted, mind you. At least, I haven’t run into any sites that are blocked by the care facility’s WiFi. At least social media and games are allowed. I’m not particularly interested in anything adult content, so haven’t checked that. I can also use the Internet whenever I please, including at 3AM should I so desire (which I occasionally do). I am pretty sure some other care homes would be more restrictive about this.

Overall, looking over this list, I think that, while things aren’t perfect, my care home is pretty good. Actually, I am quite sure it’s pretty much the best I can get.

loopyloulaura

A Letter to Myself Five Years Ago

Posted on by Astrid

Today, I stumbled upon a journaling prompt that asked me to write a letter to myself five years ago. I’m pretty sure I’ve done something similar to this at least a couple of times before. In fact, when I searched this blog for letters, I saw that I’d written A letter explaining my life at the time in early 2020, a letter to my younger self in general in October of 2018 and even a letter from my (then) future self in 2019.

Those who know the timeline of my life, of course, will not be surprised that I am going to pick this prompt anyway, as the “five years ago” part of the prompt is particularly significant. After all, it was weeks before I’d be kicked out of the mental hospital. I am not going to bore you with a timeline of the past five years in this letter. Instead, I’m trying to provide some new insights.

Raalte, March 27, 2022

Dear Astrid,

It is tempting to start this letter with a cliché, such as, “How are you?” However, I know how you are. You are struggling greatly with self-doubt and uncertainty. Fear of abandonment and attachment loss. You’d rather avoid taking the next step in your life, leaving the familiar behind to step into unfamiliar territory. Even though you’d rather not admit it, your psychologist is right that you’re scared of needing to become independent.

I want to let you know I understand. Independence is scary. The unfamiliar, leaving the psychiatric institution to go live with your husband, is even scarier. I understand you’d rather stay with unsupportive people you know, ie. in the psych hospital, than live with a supportive person, ie. your husband, under circumstances you don’t know.

And, to be honest, if I had a choice back when I was you, I’d not have chosen to live with my husband. The thing is, you don’t have a choice. Not yet. But you will, at some point.

Please, for my sake, hold on for a bit. Do what your psychologist tells you, but also stand up for your right to proper day activities and community support. It will be hard, living in the community with your husband. But things will get easier.

I am writing from a care facility. In 2019, I was approved for long-term care based on blindness. I also have extra one-on-one support. Please don’t tell your psychologist all of this, as she’s going to time travel right ahead to me and make sure my funding gets taken away. This is just between you and me, so that you know things will improve. I know they will get worse first, but please do hold on.

Looking to you, I do see that you struggle to let go of the familiar, even when it isn’t good for you. I sometimes think I face the opposite issue, chasing perfection rather than being content with what I have now. It’s a true balancing act.

I also want to let you know that, as much as you’d like to make your own choices, being allowed to make those choices also can be a burden. The fact that, now, I am free to stay in the care facility for as long as I want or leave when I want, is quite scary, I must admit. In that sense, your psychologist was probably right about my dependent personality disorder features.

I wish I could tell you that your attachment issues would be over by now. They aren’t. I’m still struggling with them, worse even than I was when I was you. However, I do have a supportive mental health treatment team now,for which I’m forever grateful.

In summary, please do believe in yourself. You have every right to feel that you need more support than your psychologist says you need. You just won’t get it yet. Eventually though, you will.

With love,

Your future self

Gratitude List (March 25, 2022) #TToT

Posted on by Astrid

It’s the last weekend of March. I didn’t realize it until I read it in this week’s Ten Things of Thankful. Yay, I’m joining in again with a gratitude post! Here goes.

1. I am grateful for daylight until nearly 7PM in the evening. Make that 8PM come this Sunday, as we’re entering daylight saving time. Yay!

2. I am grateful for a field of daisies near the day center. I am grateful I was able to take a few photos of them and I didn’t fall over when sitting on my knees to snap the pics.

Daisy

3. I am grateful I didn’t lose interest in polymer clay altogether. I made a unicorn again today and thoroughly enjoyed it. I also worked on another, larger polymer clay project yesterday.

4. I am grateful the weather permitted me to go outside without a jacket on several days this week.

5. I am grateful for a delicious microwave omelette on Wednesday. I didn’t use cooking oil or butter to microwave the egg, so according to the dietitian, it’s as healthy as a boild egg. I also added chopped onion and bell pepper.

Microwave Omelette

6. I am grateful for birdsong. I got awoken by a bird at 6AM several mornings this week. Though I wasn’t particularly thrilled about that, I do appreciate the sound of birds singing in general.

7. I am grateful it was pay day on Wednesday. I had a whole list of things I wanted to buy in my mind that I had told myself to wait for until pay day at least. So far, I’ve only ordered one thing off the list and that’s something I’ll need for a staff’s birthday next week. Sadly, I haven’t received it yet and have no way of tracking it down.

8. I am grateful I was able to get through a few intense days full of emotional, visual and bodily flashbacks thanks to the support of some trusted staff. I am grateful these few staff are still there and, though no-one can predict the future, they don’t intend on leaving.

9. I am grateful for my PRN quetiapine. It helped me calm down on Tuesday, when I was having a particularly rough evening.

10. I am grateful for my journaling app, Day One. I picked it up again and finally figured out how to use tags properly in it. I also transferred a template from Diarium, the other journaling app I’d been using. One of the good points of Diarium is that it has its templates available in other languages than English, but other than that, I think I prefer Day One after all. I am really hoping I can make journaling a habit again.

What have you been grateful for?

Joy in March

Posted on by Astrid

Hi all. It’s time to reflect on my one word for this year again. I am joining the Word of the Year linky, as well as Lisa’s One Word linky. As those who’ve visited me in January or February will know, my word for this year is JOY.

I had quite a few moments of pure joy this past month. Being able to go outside without a jacket for the first time this year, for example. I loved the beautiful weather! I also loved being able to take beautiful flower photos, especially when I could snap them myself.

In the creative area, I’ve struggled to find pure joy. I mean, I’ve been frustrated by a need to be productive rather than merely enjoy my creative process. As such, I’ve often been tempted to get discouraged and, as a result, give up too quickly. This is the case with my macrame, of course, but also with my polymer clay. When I felt I couldn’t take my work to the next level, I would rather easily let it go completely instead of enjoying the craft.

An area in which I’ve done really well with respect to finding joy, is food. Two weeks ago, the dietitian had me and my staff do a mindful eating exercise. We were given a slice of a tangerine in a bowl and first had to merely look at it while pretending we were astronauts stranded on a faraway planet. Then, we could touch it, smell it, lay it on our lips and finally take a tiny bite. All the while, we had to rate how edible we considered this food, given that this was alien food so we had no idea what it was. Once we had taken the tiny bite, we were supposed to wait for how long it’d take for the taste to completely leave our mouths.

The point of the exercise is, of course, that, as a recovering bulimic, I am still tempted to eat, say, a bag of candies all one after the other without even tasting them. The idea of this exercise is to counter this by actually being aware of every little bite or piece of candy and its feel, taste, etc. I have since been quite able to implement this when having treats.

I also have been able to enjoy my marriage more. I am less plagued by thoughts that my husband will leave me than I was some months and certainly years ago. I try to truly, fully focus on my husband when we talk on the phone in the evening. It’s still hard, because I either am losing my hearing or my headphones are failing. Thankfully, I’m going to Lobith again tomorrow, so will be visiting my husband in real life again. It’s been a while!

How have you been doing with your word for 2022?

Yet Another Goodbye

Posted on by Astrid

One of Mama Kat’s Writer’s Workshop prompts this week is to show your readers your most recent photo and to let it inspire your blog post. This might not be an easy prompt for other people to be doing without cheating, but I rarely take random pictures. As such, I do have a clear story behind my most recent picture.

This picture shows a necklace I made this morning for a staff who’s leaving. Yes, yet another staff is leaving my care home. It’s the fifth or so within the past four or five months. At least as many people have looked around at my home to see if they might want to work here, but none do. Thankfully though, my care home has managed to attract a few new staff from internships and the other care homes that are part of my care facility. Overall, it all still makes me intensely sad.

This staff who’s leaving now had only been working here for six months, but I did kind of trust her already. Some staff say this means I can build trust in new staff too, seeing that I could develop a kind of attachment to this staff within six months. The reality is though, I don’t think I want to build trust in another staff, knowing that the reality of the current employment climate is they can leave when they feel like it and no-one can guarantee me they won’t leave within a certain timeframe. After all, originally this staff planned on working here for at least several years too.

I did feel kind of like I had to make something for this staff, so I made this necklace. The round-looking beads are actually hearts. The story behind the beads is also interesting: another staff found them while clearing out a fellow client’s cupboard and had no idea whose they are. They most likely aren’t hers or at least she isn’t able to use them because the holes in the beads are far too narrow. Ultimately, the staff decided to give them to me. I at one point thought I might be able to use them for macrame, but the holes are far too narrow for that too.

The staff who is leaving is the staff who got me Indonesian takeaway food, the best Asian food I’d ever had, last week. She said that, on Monday, when it’s her last shift here, she’s bringing me another meal. I think that’s really kind of her.

Mama’s Losin’ It

The Wednesday HodgePodge (March 23, 2022)

Posted on by Astrid

It’s Wednesday and I’m joining the Wednesday HodgePodge again. In honor of daylight saving time, I think, the questions this week revolve around the topic of “time”. Here goes.

1. What’s something you never seem to have enough time for?
Blogging. I usually write my blog posts at the end of the day, because I need enough alone time to be able to compose a blog post and I don’t have long chunks of alone time during the day. That being said, the issue probably isn’t that I don’t have enough time, but that I don’t allow myself enough time to start on a blog post if I don’t have time to finish it within that chunk of alone time. Right now, I changed that by starting my blog post in the staff’s lunch break and now I’m finishing it between day activities and my evening one-on-one coming on.

2. If you could turn back time and relive just one day in your life, which day would you choose and why?
This is such an interesting question. Like Joyce, I believe there already is a perfect timekeeper of the universe, ie. God, and to interrupt His timekeeping would not just be impossible, but if it were possible, would lead to disastrous results. That being said, in the hypothetical event that turning back time and reliving one day of my life would not alter the rest of it, I would choose the day of my wedding in 2011.

3. Something you enjoy making that takes a long time to prepare/cook?
I’m assuming we’re talking just food here, since there’s a reference to cooking. For me, cooking even relatively “simple” meals takes up a lot of time. When I still cooked independently, it used to take me at least 90 minutes to prepare and cook a standard macaroni, for example. After all, I needed to do a lot of organizing before I could even get started and I’m a slow cook too. For this reason, I don’t think there’s anything I really enjoy making that would take other people a lot of time to prepare or cook. In fact, now that I get help on the rare occasion that I do cook, I still prefer to make relatively simple meals. The pilaf I cooked last week was really the most time-consuming dish I’ve cooked so far since moving into the care facility.

4. A time recently where you needed/gave yourself a ‘time out’? How do you do that?
I don’t like resting during the day, even though I need to at times. When I had COVID last month, I really had to force myself to lie in bed. Taking time-outs usually involves resting in bed with my weighted blanket over me and my stuffed animals near me, listening to soothing instrumental music through my music pillow and with an essential oil blend in my diffuser.

5. Something you’ve done recently that you’d describe as a ‘good time’?
Yesterday, my mother-in-law came by for a visit. We went for a walk and a coffee and pie in a nearby town. The pies were too sweet for our liking, but the coffee was okay and at least we had a good time enjoying each other’s company.

6. Insert your own random thought here.
This coming Saturday, if I don’t get a cold from one of the several staff who have been working here with cold symptoms (they tested negative for COVID, of course), I’ll be taking a ParaTransit taxi to my and my husband’s house in Lobith. If I do get a cold, I will most likely stay at the care facility and will certainly not take the taxi. Though all mandatory COVID-related restrictions and requirements were lifted today, I still don’t want to infect anyone. Let’s just hope I won’t get a cold, as I’m really looking forward to spending time in Lobith again.

Ten Things I Love About Spring

Posted on by Astrid

Hi everyone. It’s the first day of spring, so what better day than today to share my favorite things about spring? Granted, I didn’t come up with this idea myself, but found it in a list of journaling prompts. Here goes.

1. The flowers. Yesterday, I came across a spring snowflake (Leucojum vernum). I love the many other spring flowers, including daffodils, hyacinths, crocuses, etc.

Spring Snowflake

2. The sunshine. When it’s sunny on a spring day, it’s not so sunny that I will get very easily sunburned. Not that I get sunburned easily anyway, and I do make sure to use a facial cream with sunscreen when going out in spring too. However, I really like the spring sunshine more than winter’s or summer’s sunshine.

3. The temperatures. This week, we get really great spring weather, with temperatures rising to about 18°C. I love this. It usually gets like this even more often in April and May and may even get warmer, which I like more. My ideal daytime temperature is about 22°C.

4. The birdsong. I really love to hear the birds sing in spring! I of course can listen to birdsong on Spotify too, but the real thing is much better.

5. My mood usually being better. I know that spring fatigue is a form of seasonal affective disorder, but I don’t suffer from it. In fact, my mood tends to improve in spring.

6. The smells. Of course, this is related to the flowers, as most spring-related scents are floral. I really love the smell of hyacinths in particular.

7. The fact that sunset is still early enough that I can go outside close to it to take pictures. I recently learned that taking pictures outdoors at midday will make the pictures look bad due to overexposure to sunlight, so I instead decided to go out to take pictures closer to sunset. (Sunrise, as regular readers of my blog will know, is way too early for my liking even in the middle of winter.) Now that it’s early spring, the sun sets at around 6:45PM, but when daylight saving time sets in this Sunday, that will be an hour later. In the middle of summer, I won’t be able to go out close to sunset because my one-on-one will have left, but in spring, I will still be able to.

8. Daylight saving time. This means longer days (for me). I already talked about the advantages of it for photography, but it also means I can have the curtains open longer and get daylight in.

9. Baby animals being born. And the cows at the nearby farm being released from their barn. It’s awesoome to watch farm animals in spring.

10. Extra money in May. For whatever weird reason, people on disability benefits, like those in regular employment, get holiday pay. This is deposited into my bank account in May. I usually have something in mind to spend it on (other than a vacation) months in advance. This year, I’m still undecided, but I really look forward to it.

What are your favorite things about spring?