Dissociation and the Dissociative (Freeze-Based) Trauma Response #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter D post in the #AtoZChallenge. Today, I want to talk about dissociation and the dissociative (freeze-based) trauma response.

Readers who’ve followed my blog for years or who’ve read my “About” page, know that I used to have a diagnosis of dissociative identity disorder (DID). Dissociation exists on a continuum from everyday daydreaming on to full-on, polyfragmented DID. I am somewhere in the middle.

First, what is dissociation? Dissociation is a disconnect between the usually integrated functions of identity, perception, thinking and memory. There are basically five different forms of dissociation:


  • Amnesia (memory problems), which can range from brief moments of “spacing out” to years of “lost time” in your personal life history. It can also be full-on lack of memory but also lack of emotional memory. I, for example, often experience the thing where I act as though I have no memory of doing or experiencing something, but do remember it at the back of my mind.

  • Depersonalization, which refers to the phenomenon of not feeling real. Parts of your body may feel numb without a medical explanation. It can also refer to the experience of “watching yourself”.

  • Derealization: the phenomenon of feeling like the world around you is unreal. I experience this on a regular basis, when it feels as though I’m interacting with the world through an invisible wall.

  • Identity confusion. This one has always baffled me and for a long time I thought this is actually normal. I mean, I have no clue who I am, but doesn’t everyone at my age? And even at nearly forty, I struggle to realize that no, in fact most people don’t experience this.

  • Identity alteration. This, at its most severe, refers to the experience of having “multiple personalities”. It can, however, also refer to distinct patterns of behavior, thinking and perception that “do not feel like you”, even if these distinct personality states do not have their own names, ages, etc.

Pete Walker refers to dissociation as the freeze-based trauma response. I’ve always struggled with this, because I rarely literally freeze. I, however, do often “space out”, watching myself from a distance. I also experience the existence of several distinct personality states. Now that I’m older, they are no longer as separate as they used to be when I was in my teens and twenties. However, the identity confusion is still very real, like I said. In fact, I believe it’s a lot worse now than it used to be when my “pieces” still were more separate.

Codependent (Fawn-Based) Trauma Responses #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter C post in the #AtoZChallenge. Last year during this challenge, I discussed codependency for my letter C post. Today, I want to talk about the same topic, but specifically as it relates to people who experienced complex trauma.

You are probably familiar with the fight or flight response when it comes to fear. However, there are several other ways people can respond to perceived threats. One of them is fawning. This has always been a confusing term for me, particularly because I’m a non-native speaker of English and there is no proper translation of this word in Dutch as far as I’m aware.

Fawning, if I’m correct, in the context of trauma means being overly compliant with the wishes of other people and being unable to protest. It’s similar to people-pleasing, for which I haven’t found a proper Dutch translation either by the way.

Pete Walker, the author through whom I know of the fawn-based trauma response, has an entire chapter on this topic in his book on complex PTSD. I just opened the book to the chapter on fawning and oh my did it hit hard! Walker starts out by explaining how he learned that he himself gravitates towards a fawn response when he apologized to a chair for bumping into it. I have done that too.

However, it’s harder for me when I find myself apologizing to people, because too often my apology gets seen as being insincere when I truly have a reason to apologize. That makes sense, especially because I can also show a fight-based response when triggered.

The thing for me is that I overadapt until I can no longer take it anymore and then I have an aggressive meltdown. This sometimes makes me doubt I actually fawn at all. It doesn’t help that my parents from a young age on ingrained the thought that I am selfish into my psyche. I can indeed be self-centered, but that’s not the same.

I am still unsure whether I am a primarily fawning trauma survivor rather than a fight type. However, reading Walker’s chapter makes me realize I’m probably closer to the fawn end of the fight-fawn continuum than many people, including myself, believe. I, after all, experience a deep-seated lack of understanding and even deeper lack of appreciation of myself. Walker calls this self-abandonment and self-abnegation. I wonder whether, because my most outwardly noticeable reaction when triggered is fight, I have been conditioned to see myself as primarily a fight-based type.

Birth: The Effects of a Complicated Start in Life #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter B post in the #AtoZChallenge. I’m doing this challenge on healing past hurts. Today, I want to go far into my past: I want to talk about the effects of a complicated birth.

As regular readers know, I was born prematurely and spent the first three months of my life in hospital. Of course, I have no conscious memories of this time, but that doesn’t mean my complicated start in life didn’t have an impact. There is evidence that many people who were born prematurely or otherwise had a difficult start to life, experience attachment problems into adulthood. Now of course I didn’t have the most positive childhood either and there is no way of knowing whether I would still have attachment issues had my parents been well-attuned to me. Of course, this is also a difficult question, since my parents experienced their own trauma having me prematurely.

The thing remains though, a child who was born prematurely, spends time in a clinical setting that they should’ve spent literally inside their mother’s body. There are attempts to lessen the burden this has on children (and parents). For example, kangarooing, in which a baby experiences skin-to-skin contact with their parents, is encouraged as soon as it is possible. However, for preemies and other NICU graduates who are now adults, this may not have been the case. Many older NICU graduates hardly saw or heard their parents for the first few weeks to months of their life. My parents, thankfully, lived in the same city I was in the neonatal unit in, so they were able to visit often.

One thing that haunts me though, and I’ve mentioned this several times, is the effect my being medically complex from birth on left on my parents’ attachment to me. Like I said, whether I would’ve experienced attachment issues had my parents not mistreated me as a child, is a difficult question because one of the reasons they treated me so poorly is their difficulty coping with my being disabled. My father quite literally asked the doctor whether it’d make sense to keep me alive after I’d had a brain bleed a few weeks after birth.

It’s telling, in my opinion, that when you look up “birth trauma” online, what comes up most frequently is not the effects a child’s own start in life could’ve had on them, but the effects of complicated childbirth on parents. And like I said, one goes hand-in-hand with the other.

Autonomy: Learning That I Can Do Things and That My Opinions Matter #AtoZChallenge

Posted on by Astrid

Hi everyone. Today is April 1 so this means the #AtoZChallenge is starting. I haven’t prepared any posts in advance, but since I am going to write on healing past hurts, the concept of autonomy spoke to me for my letter A post. Autonomy is the ability to be self-reliant and independent, both physically and emotionally. It starts to develop in toddlerhood.

As I learned about emotional development as it relates to developmental disability (I discussed this in 2023), I realized in many ways I’m not there yet. I struggle with even basic decisions like what clothes I want to wear.

When I was 30, I was told I have dependent personality disorder. This disorder is characterized by passivity and the inability to make decisions independently, as well as a pervasive need to be taken care of. It is often related to lack of encouragement of autonomy in childhood.

I don’t have many memories of my early childhood, but I do know I wasn’t given a lot of autonomy when I was older. It’s not that my parents didn’t try, but as soon as I got frustrated, they gave up. They genuinely believed they were giving me autonomy and that I was just too stubborn to want to be independent. For this reason, they claimed and to this day still claim it’s my choice to be in the care system.

My psychologist back in 2016, the one who diagnosed me with dependent personality disorder, sided with them. She said I did have the assertiveness to stand up for myself, but wasn’t doing things I was (thought to be) capable of. That’s not what dependent personality disorder is though: lack of confidence in one’s own physical capabilities is but one criterion out of eight. And please note: it’s specified that the reason someone isn’t doing something, is in fact lack of confidence, not lack of skill or motivation. In other words, unwillingness to do things independently that you can do, is not dependent personality disorder, but care misuse.

And for clarity’s sake: I am not and never was misusing care. However, that’s exactly what my psychologist thought I was and according to which presumption she treated me by kicking me out of the mental hospital with virtually no support. She once again didn’t encourage me to develop autonomy. Refusing to help someone who clearly asks for help, contrary to the current idea in mental health services, may be politically useful, but it is not autonomy-supportive.

I am only now, now that I’m nearly forty, learning that I in fact was conditioned by both my parents and the psychiatric hospital to disregard my own opinions. Yes, being able to do things independently, is one aspect of autonomy, but so is the ability to make your own choices. One can hardly exist without the other.

March 2026 In Review

Posted on by Astrid

Hi everyone. It’s the last day of the month and that means I’m joining Natalie for her monthly wrap-up. March was a tough month. As I say this, I hear a little voice in my head saying I’ll never be happy anyway as I’m so negative. One of my staff on Sunday said I have nothing to complain about because I get regular support workers and my day schedule is followed. I still wonder how much of my dissatisfaction is indeed due to circumstances that can be changed, such as my day schedule, how much is due to the inherent nature of my being multiply-disabled and living in long-term care and how much is my attitude.

In any case, early in the month I heard that my activity-based day schedule would be taking effect on April 1. That’s tomorrow. Unfortunately, on the same day, the staff’s hours are going to change and this, even though the literal hours they are in the home won’t be cut, means my support will be cut a little. We’ll see how that goes.

I tried to adapt to the new support hours already and this was incredibly hard. I also tried to myself follow a schedule with more meaningful activities. This was partly successful, especially with staff who are already able to help me get more meaningful activities done. For example, last week, one of the staff helped me create a unicorn-themed card for a former fellow resident from the intensive support home, who had her birthday that day.

Thankfully, one staff, with whom until then I’d only been doing dice games and going for walks, herself took the initiative to ask a colleague to orient her to the polymer clay activity.

I have been cooking and baking more than I used to. For example, I baked so-called “healthy” brownies that I fully intended on handing out at the monthly local brain injury meet-up. They weren’t all that good though.

Later, I found out I had a Trojan on my computer that came with the recipe manager app I used to download random recipes off Facebook into, including this “healthy” brownie recipe.

Before I found out I had malware on my computer, I had been obsessing over the idea of cooking vegetarian curries. Most of the recipes, I got off English-language food websites like BBC Good Food, so I’m not sure I’ll be able to use them. After all, though my English is quite good, my staff’s might not be.

Last Saturday, I cooked a delicious cauliflower, tomato and chickpea curry. This recipe was in Dutch, by the way.

Now that I look over this post, I wonder what made the month so tough, given that I once again did more meaningful activities than I used to. I do believe part of the problem is the fact that I’m still not adequately supported when I’m struggling. I mean, highs and lows are to be expected even when you’re having the proverbial time of your life. When people expect me to have a positive outlook because “I have nothing to complain about”, that is horribly invalidating. Life in the care system isn’t great and it isn’t meant to be. I don’t expect to ever rate my days higher than a seven out of ten, but when staff do have this expectation of me, it’s incredibly frustrating. I’m hoping something can be done about this.

Of course, this was also the month I finally realized I’ll never have an okay relationship with my parents. It’s tough realizing I never experienced a proper bond with my parents and even tougher to know that no-one can replace it. However, I do think I’m more capable than I used to believe. I’m not sure how I feel about that.

I’m Participating in the #AtoZChallenge Again After All

Posted on by Astrid

Hi everyone. A few weeks ago, I wrote my intended theme reveal for the #AtoZChallenge. I had been unsure of my theme for a while and also unsure of whether I even wanted a theme. I finally decided on doing the challenge on gender and sexual diversity, published my theme reveal and then remembered to ask one of the hosts whether it meant my blog should be marked as having adult content. I got the response to do so just to be safe. That somehow put me off and I decided to delete my theme reveal post (thankfully I hadn’t put it into the Google document yet). I hope the fact that I’ve disclosed being queer on here a few times, doesn’t automatically mean my blog has adult content.

Fast forward to last Friday and I had the phone call with my mother I mentioned in my post that day. That got me thinking I want to write to process my feelings. So here I am thinking of doing my challenge on healing past hurts. I have not prepared any posts yet, so I’m not sure where this is headed, but I think it will be part journal/personal musing, part mental health awareness. Wish me luck!

IQ Is Just a Number

Posted on by Astrid

Hi everyone. Today, Sadje asks in her Sunday Poser whether we’ve ever taken an online IQ test. I have, exactly once. I was about eighteen at the time and randomly looking at tests online. I can’t remember the source of the IQ test and I didn’t pay to get the so-called full report, but the thing said I had an IQ of 118.

Like I’ve said a few times, I also got IQ tests as part of various psychological evaluations many times throughout my childhood. The one that is most prominent in my life right now, is the only one in which I was actually given a literal score: 154. The educational psychologist even called me gifted based on it.

I have mentioned many times how this score is probably way above my actual IQ. For starters, I’d had the exact same test a year prior and had memorized most of the questions. Additionally, contrary to common belief and contrary to my care plan I believe, it wasn’t a total IQ score. When testing the IQ of blind people, usually only the verbal part of the IQ scale is administered. There is a non-verbal intelligence test for visually impaired children that the psychologist prior to the one saying I have an IQ of 154 did administer. Unfortunately, she didn’t give any concrete scores and in fact stopped the test midway through because I got so frustrated. As a result, I have no way of proving that my performance IQ is a lot lower than my verbal IQ. But I’m pretty sure it is.

Sadje at one point points out that intelligence isn’t just knowledge, but also the ability to use one’s knowledge sensibly. Particularly with respect to verbal IQ vs. performance IQ, this makes sense. Verbal IQ is mostly related to academic ability and general knowledge. Performance IQ, on the other hand, requires actual insight and practical skill.

Of course, as someone with a (probably) much higher verbal than performance IQ, I can only relate to how this burdens me. I am horribly overestimated because of my eloquent speech. I imagine the opposite might be true for people with a split in IQ scores the other way around.

Lastly, I want to point out that even within a verbal IQ test (and I assume within the performance one too), people can have spiky profiles. My strength is and always has been in arithmetic. Other relatively strong areas at least at one point used to include Number sequences (a test of memory) and Similarities. My biggest weakness is the part called Comprehension, in which you need to answer questions about social or practical situations. I also often scored below-average on the vocabulary subtest.

The IQ test that pointed to my verbal IQ being 154, was administered in 1999. I had my last IQ test in 2017 and it showed my IQ to be roughly 119. With that version of the test, the strict verbal/performance distinction had been abandoned, but it is safe to say this was my verbal IQ. Even though I’m pretty sure I did decline cognitively between 1999 and 2017, I’m adamant that 154 score is utter nonsense.

With respect to Sadje’s point that intelligence isn’t just knowledge, I’m proof that she’s right. I am still said to have an above-average IQ, but I can’t do the most basic self-care tasks without supervision.

Chosen Family #WotW

Posted on by Astrid

Hi everyone. Today, I’m joining in with Anne’s Word of the Week linky, as well as Natalie’s #WeekendCoffeeShare. My word of the week (or rather, phrase, as it usually is), is “chosen family”.

First, as I usually do when writing my weekend coffee shares, I’d like to write about the weather. Over the weekend, it was good: relatively warm and somewhat sunny too. I even sat in the sun for a bit on Sunday. However, most of this week brought cooler temperatures and rain. Today, the daytime high was 9°C. That’s considered normal for this time of year, which I honestly believe is crazy but oh well.

Now here’s why my phrase of the week is “chosen family”: several things this week made me realize my wife is more like family than my birth family. Yes, even now that we’re officially in the divorce process.

You see, we had our first meeting with the divorce mediator and financial advisor on Tuesday. I won’t go into detail as to what we’ve been discussing, but it looks like we’re both going to be okay and we’ll find a way together to make this work. We’ll have our next meeting on April 14.

On Saturday, I was at our house too. I got strange queries in Chrome so had run a full virus scan two weeks ago and it’d found a threat. I initially brushed it off, but finally told my best friend/wife. She was a bit stressed, because I had not paid attention to the full implications of this and for example changed my passwords. I didn’t know what the malware might’ve done, so went to our house on Saturday so that she could check it over. It looks like no actual damage was done, thankfully. In case I’ve mentioned the name of the recipe manager I used though (I’m pretty sure I touted it as the perfect app) and anyone’s installed it too: that was the source of the malware. No more Chrome extensions for me.

Today, my mother texted me to check on me. I, stupidly enough, called her. We’ve been in very limited contact for years now due to her attitudes towards my childhood trauma. After I got more of the same shit, among which comments insinuating that I should move closer to my family because my friendship with my best friend may not be forever, I had had enough. I don’t know yet what will happen in the long run, but for now I’m genuinely done with my family of origin. My best friend feels more like family than my parents do and yes, I’m aware that our friendship might dissolve over time. Then again, no relationship is forever.

Three Wishes, Revisited

Posted on by Astrid

Hi all. Last Tuesday, I saw the Writer’s Workshop prompts for this week. Several of them spoke to me but I somehow didn’t give myself the time to actually write on them. Today, I’m finally back on the blog and I’m choosing the prompt in which you’re granted three wishes. I did a post on this topic already in 2020. Let’s see how things have changed over the years. What would I wish for now?

1. Unlimited door-to-door transportation. I listed ParaTransit access as a wish in 2020, but now that I’m actually using it for things other than getting to my wife, I realize that it’s not that having unlimited kilometers would solve my problems getting to places. I’d also need the driver to actually drop me off at the place I want to go to. Transportation, after all, is one of the reasons I don’t go to cerebral palsy meetings as often as I’d like, because they’re often organized at restaurants, which taxis can’t reach.

2. My ideal room/apartment within a care facility. In 2020, I wanted to be closer to my wife, but if I have my transportation desires covered anyway, that’s no longer a necessity. My ideal place wouldn’t be much larger than my current room, but it would have a private bathroom and its own kitchen, in which I could prepare my own food with assistance. It would also not be as close to communal areas as my current room is, because well one of my main problems right now is overload from all the sounds coming from the living room.

Looking back, I can’t believe I didn’t list more care hours as a wish in 2020, being that I didn’t have my one-on-one at the time. I do now and of course I wish for it to stay the same.

3. Improved physical and mental health. Don’t we all wish for optimal health? I listed it in 2020 too, as my first wish in fact. Since then, my physical health has improved in some ways and declined in others. For example, I’ve lost significant amounts of weight that I indeed needed to lose and as a result, no longer have high blood pressure. I can also walk for longer. On the other hand, my tremors have gotten significantly worse and I believe my cognitive functioning has declined a bit too.

My mental health, I think, is better than it was in early 2020. I hope it improves more though.

Now that I compare my wishes to the ones I listed in 2020, I see an interesting trend, in that despite better quality of life, my wishes are still largely the same. No, that’s not entirely true: they’re bolder, in fact. I wonder what this means.

Meaningful Activities #WotW

Posted on by Astrid

Hi all! No Weekend Coffee Share (at least, Natalie isn’t hosting) this week again. I love Anne’s Word of the Week linky for summarizing my week too. Maybe when Natalie hosts her coffee share again, I’ll do a combination of the two. That is, if I can figure out a word or phrase to sum up my week. This week’s phrase is “meaningful activities”.

This week was truly a good one overall. I’ll start with my spontaneous baking activity on Saturday. My staff and I had gone on a walk, but we didn’t want to stare at the wall for the rest of my long activity time slot, so she proposed we do a baking activity. I proposed to make caramel blondies, for which I’d bought the ingredients a few weeks ago already to use with another staff, who however wouldn’t say when we could make them. The blondies were extremely filling but good. Next time, I’m going to cut down on sugar a bit and add some white chocolate on top. I served the blondies to my fellow residents in the evening. One of them asked for days after that, when she learned that I had some left over, for more “Astrid cookies”.


On Monday, my staff and I went to the institution townhouse for coffee. We didn’t have our wallets with us, so we couldn’t buy any of the treats they offered (the coffee is free). However, one of the people behind the counter offered us a brownie that wasn’t good enough to be sold to share. My staff had only a small piece and I had most of it. It was delicious! I had planned to eat the last of the blondies that day, but had two and besides, I was completely stuffed already. I decided to offer them to the two fellow residents who aren’t at the day center during the day either.

On Tuesday, the same staff was supporting me in the afternoon again and, of course, we reasoned we had to go back to the townhouse with our wallets to buy something this time. We didn’t fancy another brownie, but we did have a look at some of the handmade items on sale. My staff bought some tea and I bought a bag of rocky road chocolates. No photo in the townhouse, but I did take an interesting photo of the bag on my nightstand.

Then on Wednesday, like I shared that day already, I crafted a polymer clay dice for a staff who was leaving. Today, I also have been claying, because one of the staff who’s been here forever but with whom I’ve never done a clay project, wanted to learn. It felt good being able to do this activity even though it was in the morning and I was a little cranky.

On Thursday, the staff and I rode the side-by-side bike to Twello to buy some things. I bought raisins, pumpkin seeds, sunflower seeds and corn waffles. We also needed a new mixing bowl, since I’d found out earlier that the one we used to have had a large tear in it. The staff offered to pay for it with the home’s debit card, which sounded reasonable, since it was the home’s bowl that tore. Not that I have a mixing bowl, but well.

Yesterday saw another trip to Twello to go to the market. When we were at the townhouse on Tuesday, one of the institution managers was telling us that he’s going to campaign for the upcoming local election at the market on Friday. I didn’t see him at the market, but I did get to talk to two other parties’ campaigners, both of who gave me some seeds to plant. I’m having to think on where to plant them, as my little yard has no flowerbeds.

Overall, this week was truly filled with meaningful activities. Since my new day schedule will (hopefully) take effect on April 1 and I’ll then be having two weekly cooking or baking activities, I’ve been looking at things to make then too. My wife inspired me to look into vegetarian dinners. Not that I’m a vegetarian or ever plan to be, given that meal delivery service meals suck even more without the meat than they do when it’s included. However, when I prepare the meals myself, I’d love to look at ways of adding flavor without meat or poultry. The idea is that usually I won’t have to cook for the entire home, so I can experiment without considering my fellow residents’ preferences.