Gratitude List (January 17, 2021)

It’s nearly 2AM and I can’t sleep. I woke up about two hours ago after only an hour or two of sleep. I’m kind of worried. To calm my mind, I decided to do a gratitude list. I can’t find the Ten Things of Thankful link-up, but that doesn’t keep me from being grateful.

1. I am grateful for my one-on-one support. I’ve been a bit stressed lately and thankfully, they help me manage it.

2. I am grateful for a financial positive. I won’t believe it till the money is actually in my bank account, but if I’m correct, I won’t have to pay a higher long-term care copay this year. This means my net paycheck will be higher than it was last year.

3. I am grateful that I felt comfortable ordering some new soaping supplies. I ordered almond oil, coconut oil, cocoa butter, shea butter, beeswax, Dead Sea salt and some water-soluble colorants for my soap and other bath and body products. I am hoping, once they arrive, to be able to make bath melts with the oils, butters and beeswax and bath salt with the Dead Sea salt.

4. I am grateful for heart-shaped candies. Last Monday, my staff had a team meeting and one of them brought these, then put the leftover candies in a box with my name on it. The other clients, after all, can’t eat hard candy.

5. I am grateful for cookies. Like I said yesterday, my one-on-one helped me bake those. They were really good.

6. I am grateful for Mexican bean wraps. My day activities staff and I made those for lunch on Wednesday and they were good.

7. I am grateful my bath bomb turned out pretty good. I will have to check whether I placed the image correctly in my last post, but oh well. I didn’t end up taking a bath last evening, but I might today or sometime next week.

8. I am grateful for a lot of Christian self-help books. I’m still struggling with my faith, but they definitely help me realize that I can’t and don’t need to be alone.

9. I am grateful for a nice phone conversation with my father. I was a little stressed about it at first, as I hadn’t spoken to him in a few months. However, it went really well.

10. I am grateful that I have the right to vote. I am not yet sure whom I’ll vote for, but I’m so glad I live in a democracy.

What are you grateful for?

#WeekendCoffeeShare (January 16, 2021)

Hi all on this grey Saturday. Today I’m joining in with #WeekendCoffeeShare. I just had my afternoon coffee about half an hour ago. If you want a Senseo though, I can make one for you. Let’s have coffee and let’s catch up.

If we were having coffee, first I’d ask you how your weather is. Ours is pretty cold, but the newspaper said it isn’t even really freezing. I guess I don’t really like winter if I consider this cold. Snow is forecasted for tonight, but I doubt it’ll even create a dusting of white. That’s fine by me as I don’t like snow.

If we were having coffee, I’d share that I guess I shouldn’t have said on Thursday that I am glad to live in a stable democracy. After all, the Dutch government collapsed on Friday. It’s totally justified though and no, it’s not about COVID. It’s about parents pretty much randomly being labeled as fraudulent childcare payment recipients and made to repay sometimes tens of thousands of euros that they didn’t have.

If we were having coffee, I would share that my father had his birthday yesterday. He considered the government collapse to be a welcome present, as he doesn’t support the rather conservative parties making up the government.

I phoned my father yesterday and he told me he’d also gotten some type of signal converter, so that he can read the status of his heating on his computer. I sent him a Kate Rusby CD, but it isn’t due to arrive until like the 25th.

If we were having coffee, I would share that I have been quite creative lately. I made a bath bomb on Thursday. I might take it with me into the bathtub later this evening.

My one-on-one staff also helped me bake cookies yesterday. Well, she did most of the prep, as the dough was too sticky for me to handle. That was a bit frustrating. The cookies were delicious though.

If we were having coffee, I would tell you that I had a long phone call with my husband yesterday. I am not going to go to our house this week-end, but I loved to hear his voice instead.

If we were having coffee, lastly I’d tell you that I’m hoping to get an AFO (ankle foot orthosis) for my left foot soon. The physical therapist already E-mailed the orthopedic equipment maker, but we haven’t heard back from him. Walking is still doable without the AFO, but when I go for long’ish (like twenty minute) walks, my foot drags. This is a little painful. It also causes my shoe to get damaged quite easily. In fact, even though the orthopedic shoemaker had already put some type of buffer thing on it, the shoe was almost beyond repair after three weeks. Anyway, I’m hoping the AFO gets here soon and will be helpful.

If not, my father mentioned that, back when I was little, the doctors had mentioned surgery to lengthen my calf muscle. That probably comes with its own risks though. Besides, as long as the pain and discomfort are manageable, I don’t think any doctor would want to operate on me just to save me buying a new pair of shoes every month.

What’s been going on in your life lately?

An Intense Monday

I’m not really sure what I want to write today. I started writing this blog post several times, only to delete it again halfway through. I intended on doing a food diary, then realized I wasn’t intending on sharing it here. (I did write a food log in Day One, my diary app, for today.) I then tried to do a more general health and wellness log, only to realize these don’t make sense if I don’t do them regularly. Then I started writing a post about today.

Today was, indeed, rather intense. Not really because of the food journal. I did okay on that one and it helped me make some healthy choices without becoming obsessive about it.

In the morning, a staff made a phone call to the assistive tech company. Yeah, my Braille display is once again broken, for the fifth or so time in eighteen months. I can still work around all the stuck dots, but I really want it repaired.

Then in the afternoon, I had an appt with my nurse practitioner. I can’t remember exactly what we talked about. I mean, yes, he shared about the bus metaphor. This is a metaphor in which a person is like a bus driver and all their thoughts etc. are passengers on the bus. I had already commented last time that my bus has multiple drivers, in that, if I hear a voice commanding me to do something, that voice (ie. alter) can take over the wheel too. Now I am hesitant to use words like “alter”, because I know my nurse practitioner doesn’t believe I have a dissociative disorder. This is my blog though so I can do with it what I want.

Today we somehow got talking about this metaphor in relation to emotions. Sometimes, you see, I get an emotion or urge or whatever and have no clue why. Honestly I can’t remember how this relates to the bus metaphor, but oh well. Oh yes, I told my nurse practitioner that Astrid is the bus with all its passengers and drivers. The body, then, is the bus.

Later, in the evening, we had an emotional reaction to a minor situation. After I calmed down, I talked it over with the staff who’d seen me have the reaction and it turned out I had no memory of it. I can now sort of see how I probably had that reaction, but I still can’t remember it as my own reaction.

This makes me feel kind of freaked out. I know that amnesia is part of dissociation, but didn’t we agree that I don’t have a dissociative disorder? Besides, whenever I do claim to have an undiagnosed dissociative disorder, it’s OSDD1B, which means having alters without significant amnesia.

I knew from previous experiences that I do experience what’s called emotional amnesia, where I can remember something but not the feels that go with it. The incident of amnesia that got my former psychologist, back in 2010, to suspect DID, was, in fact, emotional amnesia only. I know this because I claimed that I’d not remembered what went on in our session, but I clearly must’ve remembered something as otherwise I wouldn’t have known to tell her.

I know I don’t need a diagnosis right now. I can function okay’ish most of the time. Or can I? After all, when I’m functioning, I can’t remember that sometimes I am not and when I’m in severe distress, I can’t remember what it’s like to function normally. Or maybe I can, on some level. This is all so confusing.

Gratitude List (December 12, 2020)

Hi all on this rainy Saturday. I am feeling so grateful for a lot of things right now. Let me share! I was going to be linking up with Ten Things of Thankful, but then I saw the linky isn’t up this week. This isn’t holding me back though.

1. I am grateful for the staff who supported me through my crisis on Sunday.

2. I am grateful for my physical health. This should always be something I’m grateful for, but I’m specifically listing it today.

3. I am grateful a fellow client who had cold symptoms tested negative for COVID. I was very worried already when I found out he was in isolation yesterday. The staff weren’t notified of his negative test results until mid-afternoon today.

4. I am so grateful the above means we aren’t in isolation at our care home as of yet. This means that my appointments with mental health for the coming weeks can go forward (unless I or a fellow client develops symptoms suggestive of COVID, of course).

5. I am grateful for my husband, as always. We have been talking more than we used to over the past week and that’s truly a blessing.

6. I am grateful to be able to read the Bible on my phone. I now have a six-day streak on YouVersion and am hoping to get to my first perfect week tomorrow.

7. I am grateful to have found and consistently listened to First United Methodist Church of Austin’s sermons.

8. I am grateful there still was a meal I liked in the freezer this evening. I am a rather picky eater and I didn’t like what I had for dinner this evening. Then I microwaved another meal we had in the freezer, but the rice got all weird from microwaving it straight from the freezer or something. I feel pretty bad for having thrown out two meals to finally accept a third one, but well, I can’t change it now. All I can do is try to train myself to be a less picky eater in the future.

9. I am grateful for paracetamol. My feet cramped a little (well, a lot) this evening, but thankfully the pain is pretty mild now that I took some paracetamol.

10. I am grateful for the sounds of nature CD I listened to in the sensory room this evening.

So what are you grateful for?

Fighting the Depression Demon

I was in yet another crisis yesterday. When the extra staff was about to leave, I crashed and started crying. The staff felt somehow obliged to stay and, when she finally left, another staff tried to comfort me. I cried for like three hours.

Then today it seemed to start all over again. I decided to call my husband, who told me to push the depressive thoughts away. I was going to say I feel like a selfish monster for having even unconsciously made the staff stay yesterday, but my husband said that I need to push away those thoughts too.

My husband kept repeating that I’m not a monster and I need to stop those thoughts now. He said that these thoughts are destructive. I find it hard to understand, but maybe on some level I do. I mean, I feel that I’m wicked and that’s why I’m depressed and that’s why I ask for more and more help and that’s why people leave me and that’s why I’m depressed. I can see now that this is a vicious cycle. I’m not sure it isn’t true, but I remember from the little cognitive behavior therapy I took years ago that really it doesn’t matter. It’s non-functional. Or destructive even. And that’s what matters.

My husband tried to remind me that God loves me. I kept getting stuck on technicalities such as the fact that I wasn’t baptized. At first he told me: “So then get baptized if it helps you.” I can’t see how I could be baptized in this time of social distancing.

Then my husband started to tell me that I am at a crossroads and can take one step towards despair or one step towards hope each second. Maybe even if I don’t get baptized at this point, because well I can’t, I can take a number of baby steps towards hope. Towards God.

Lord, please help me take every second as it comes. Please help me choose each second to take that one step, even if it’s a snail’s step (or crawl, whatever snails do), closer to You.

Lord, thank you for bringing my husband into my life. Thank you for speaking through him and reminding me to live positively. In Jesus’ name, Amen.

Now I’m totally clueless about the supposed format of prayers, so I have no idea whether this was a proper one. I trust God hears me whether my prayer was written properly though.

An Okay Day

I once again want to write, but am not too inspired to write anything more than a diary entry. That’s okay though. After all, when I first created this blog, I intended it to be my personal space to share my feelings and thoughts.

Today was a relatively good day. It was better than yesterday at least. Yesterday evening, I landed in a bit of a crisis. The extra staff who had been having dinner with me in my room, said that, while I’d do stuff on the computer, she’d be back “in a while”. That confused me and my first response was to elope. Thankfully, the staff foudn me pretty soon, as it was freezing cold outside.

I talked some to her about my needs and wants re extra support and what they’d do with me. She suggested I get a daily or weekly calendar that has activities on it for me to do with the staff. She also understood that her being unclear about when she’d be back, was confusing for me.

Thankfully, today, I feel okay. I went for a walk in the morning. Then at 2PM, my mother-in-law came by. We had a cup of coffee in my room and then went for a walk. I got in over 13K steps total today, even though in the evening, it was raining so I couldn’t go for another walk.

My mother-in-law offered to buy me an interactive stuffed cat. It’s not really a toy, as it can’t be handled harshly, so isn’t suited for young children. It was specifically developed for adults with dementia. The cat makes soothing sounds, purrs and moves a little when stroked, meows, etc. It obviously has an on/off switch. I am not sure how crazy this would be, as it’s obviously not a real pet. However, I think I’d really like it. I seem to remember at day activities there was an interactive dog, but I’m not sure that one was the same sort of thing as the cat my mother-in-law is thinking of buying.

The evening was okay. I played some card games of mau-mau with the extra staff. I also helped her make coffee or tea for my fellow clients. That is, I told her which cups everyone uses and whether they drink coffee or tea. I actually enjoyed myself a little being in the communal room.

I started reading Hatch, the second book in Kenneth Oppel’s alien invasion trilogy, which came out last Tuesday. So far, I am totally rooting for the main characters. I mean, I hardly even care whether the aliens wipe out all of humankind if they leave our heroes alone. That may be a bit weird, but I at least know it isn’t real.

Today Is Sunday, November 29

I was originally planning on writing a #WeekendCoffeeShare post, but then discovered that the linky isn’t up this week. That’s okay, since I didn’t really know what to write for it anyway. However, now I’m left with a blank screen and yet with the intention of writing an entry today.

Today was a mostly good day. I lay in bed until nearly 10AM this morning. I had been awake last night for a pretty long while pondering faith.

When I got up, I got dressed and then ate breakfast. We usually have boiled eggs on week-ends, but had eaten them all yesterday. I just had one slice of bread with peanut butter.

Then my husband called. I was in a bit of a low mood, so he recommended I get some sunshine on my face. The sun was shining beautifully here this morning. I had a walk outside.

Then I had lunch – two bowls of tomato soup. I spent the first part of the afternoon napping. After having coffee at around 2:30PM, the evening shift arrived. She took me for a walk right after handover.

I was a bit stressed about possibly needing to eat in the dining room again, but the evening staff informed the extra staff, who came at 4:30, that I would have dinner in my room. It was pretty good, although the meal company’s definition of “vegetable rice” is rice with a few tiny chunks of carrot thrown in.

I went for a walk again in the evening. At one point, I somehow tripped over my own feet and fell. I’m okay though – just a tiny scrape on my knee.

I did break my step record again this week. In fact, I reached my daily goal of 10K steps everyday this week except for Friday. Unfortunately, my sister, who is my only friend on Fitbit, got in even more steps.

When the staff were having their own meal, I listened to yet another church podcast. First United Methodist Church of Baton Rouge didn’t have their service online yet, so I chose First United Methodist Church of Austin, TX. The sermon’s theme was believing in hope. It was a very touching sermon that included several references to Holocaust victims believing in hope back then in spite of it being nowhere in sight. Of course, this year of pandemic is nothing compared to World War II, but this means we are even more required to keep hope.

After I had my evening coffee and soft drink with chips, I did get a little nervous when I found out a staff I don’t really know that well has the extra shift tomorrow evening. I’m trying to remember to stay in the present though and not to worry about things that may come.

Gratitude List (November 28, 2020) #TToT

Hello everyone. Like I mentioned yesterday, I have not been more grateful than I am now in a long while. Part of the reason is my recent depression, but part is also my increased attitude of gratitude. For this reason, I am trying to make posting about gratitude a weekly habit again. As always, I am linking up with Ten Things of Thankful (#TToT).

1. Quiet dinners in my room. Last week and early in the week, I was very stressed out about needing to eat in the communal room with the other clients. This has been a stressor for me for a long while already. I was given the opportunity to eat in my room if I didn’t cope in the communal room, but was struggling to say I didn’t cope on time. For this reason, me and the staff decided I for now will always have dinner in my room. Yesterday, a staff noted that I eat much slower now.

2. Extra staff. I may’ve mentioned this before, but there is now an extra staff member to support me in the evenings. I am not yet sure how they will cover this financially, but we’ll see. Today, I thought there wouldn’t be an extra staffer, but thankfully there was.

3. Podcasts. I’ve mainly been listening to church services. I am so grateful for my podcast app that enables me to listen to church services from all over the world. Oh and of course also other podcasts, like the Parcast Network originals.

4. The YouVersion Bible app. I have only a three-day streak so far, because I missed one day of Bible reading on Wednesday. I am determined to make this streak much longer though. Right now, I’m on day six of a seven-day devotional on forgiveness.

5. Soaping supplies. My day activities staff ordered 3kg each of white and clear soap base as well as a few micas (powdered colorants). She already ordered them early last week, but they finally arrived last Thursday. In addition, my husband brought my Christmas tree soap mold. I am really looking forward to soaping again.

6. Cake decorating. In addition to the extra staff in the evenings, there’s an extra staff in the morning on week-ends. The one who had this shift today, asked me earlier in the week whether I’d like to decorate cupcakes with her today. We ended up using regular slices of cake, not cupcakes, because these are easier to decorate. I loved it.

7. Beautiful skies and sunsets. I regret not having taken a photo of the pink sky we had on Monday. I didn’t really see it, but did see some and loved the staff’s description. Also, on Sunday, I saw the sunset. This was really cool.

8. Eating lunch in the car. My husband came by this afternoon to take me out to lunch. Since all restaurants and such are closed due to COVID, we drove to a Subway drive-through. We each had a chicken teriyaki wrap. It was delicious!

9. Homemade wraps. Okay, they weren’t as good as the Subway chicken teriyaki one, but they were good too. We made wraps with chicken and lettuce on Monday and, because we had some wraps still left over, made some more with minced meat and beans on Thursday.

10. Good talks with my husband. He keeps me interested with his knowledge of theology in particular.

What have you been grateful for lately?

A Profound Appt with My CPN

Yesterday I had another appt with my community psychiatric nurse (CPN). At first, we went into how I’m doing at the moment. Then my CPN scheduled some appts for me with my nurse practitioner. Last Monday, after all, he and the behavior specialist from my care facility had finally come to the conclusion that I need to do some work on stabilizing myselves and developing inner cooperation before I can do EMDR or another form of trauma therapy. At first, the secretary said the first appt she had available was late December. It turned out to be December 17, so that’s pretty early considering how long I’ve been waiting already.

Then we got to discuss some issues relating to my diagnosis or the lack thereof. These were mostly theoretical, since I have no idea what my current diagnosis is and I really don’t care. I mean, the most recent treatment guidelines here in the Netherlands for complex dissociative disorders, aren’t suited to me (or most plurals, honestly), so I have no reason to want such a diagnosis. All I want is help in getting the inner turmoil under control.

Then I somehow got to mention my former psychiatrist’s comment when first considering assessing me for DID/OSDD in the summer of 2018. She held both of my hands and said: “You have just one body.” Then she went on to explain that, while she was holding our hands, none of us could put our fingers in our ears and pretend not to listen.

We then repeated this exercise. A staff always attends our appts with mental health with us. She now held both our hands and said that we can stay at the care facility. Someone asked cautiously: “Even if I need more help than I get now?” She then reassured us that yes, even if we need more help, we can stay here.

Then the staff asked our CPN what she’s supposed to do when we openly switch, as we had the day before. My CPN seemed not to know, so I suggested she do not elicit it, but do not fight it when it happens either. After all, when she insists that “Astrid” come back, this may create some trouble since “Astrid” is either everyone or no-one at all.

I really hope our nurse practitioner isn’t going to insist people only talk to “Astrid”, as the current guidelines on DID/OSDD seem to suggest as far as I know. I mean, we are okay all listening to the body’s name and won’t sign our names on E-mails or the like when it’s not appropriate, but one of our main issues is that there is no host who somehow “owns” the others. As such, the daily living parts or apparently normal parts or whatever don’t have access to every bit of information needed to cooperate.

Gratitude List (November 21, 2020) #TToT

It’s been forever since I last did a gratitude list. I just checked and it’s been five weeks. These weeks have been incredibly hard. I am really struggling to stay positive. I am going to try to come up with some gratefuls anyway. As usual, I’m joining in with #TToT. I’m typing this post on my iPhone, which I hardly ever do nowadays, so sorry for any typing glitches.

1. My husband! Even with our not living together and only talking on the phone most days, he tells me many times a day that he loves me. I am struggling to feel such a powerful emotion due to my current state of depression, but I’m trying to love him back.

2. My faith. My husband, who I always thought was a strong atheist since leaving theology school, has taken a renewed interest in Christianity and this has encouraged me. Today, he recommended a book called You Are Beloved. I am a very progressive believer, but I’ll definitely give this book a try.

3. My staff. They have been so kind to me despite my challenging behavior.

4. My community psychiatric nurse. She has been very helpful.

5. Pizza. Okay, on to the superficial stuff. My husband and I ordered a delicious pizza today. No, not from Domino’s and I must say this one is better!

6. Cheesecake. Two of my fellow clients had their birthdays this past week and another client got to help the staff make cheesecake.

7. Homemade noodles. That same client made those for us on Monday. He used minced meat instead of chicken, but still it was so delicious.

8. Lots of walking. So far this week, I nearly surpassed my step record from last week. I didn’t get in as many minutes in active heartrate zones, but that’s okay.

9. The ability to write and blog. I am not writing as much as I’d like, but at least I’m still writing.

10. A good night’s sleep last night. And yay for no nightmares that I can remember!

What have you been grateful for?