Advice I’d Give My Younger Self

Posted on by Astrid

In today’s Sunday Poser, Sadje asks what advice you’d give your younger self. Like in her case, for me it would be different depending on my age.

For example, I could have advised my twelve-year-old self not to be so loyal to her parents’wish to have her go to mainstream grammar school. However, rebellion in a young adolescent is rarely seen as a positive thing and even much less taken seriously. Preteens are expected to be loyal to their parents.

Besides, as someone who had hardly any social contact outside of the home, I didn’t know what was “normal” other than what I saw in the house – which in hindsight was far from normal.

For this reason, I am not really sure what advice to give my childhood self other than to savor the few friendships she did have.

To my teenage self, I would give the advice of standing up for herself more but in a kind way. Then again, this is basically the advice I’d give any younger version of myself and even present-day me, but I have little idea of how to go about actually doing it. I mean, I feel like I’m a doormat that can be walked over and a bed of nails at the same time.

I wish I could give myself the advice not to let others make decisions for me, but the two times I sort of made the decision to move somewhere on my own initiative, both went horribly wrong: my move to the psych hospital in Wolfheze in 2013 and my move to my current care home. For this reason, I’m still unsure I can trust my own decision-making. In truth, of course, I was misinformed in the latter case and not given enough time to process the decision in the former, so it’s not entirely my fault.

I guess, after all, there’s one piece of advice I’d give my younger self. It’d be for my nineteen-year-old self in April of 2006, when my parents threatened to abandon me because I was delaying going to university for another year in order to prolong my training home stay. The advice I’d give her is to let them have their way and not allow the training home coordinator to mediate. This, after all, led to the training home being pressured to require me to live completely independently and go to university after completing the program, something I never even wanted.

I know it’d take immense courage for me at that age to be disloyal to my parents, but had I been completely honest about my needs back in 2006, I would most likely not have ended up in my current care home now and wouldn’t even have needed as much care as I do now.

A Child Called “Baby”

Posted on by Astrid

Today, Emilia of My Inner MishMash asks us about our name. How do you feel about it? Do you know where yours came from or why your parents picked it?

I probably shared this before. In fact, I did indeed write about this topic in 2019. I didn’t bother to actually look up the post until finishing this one though, so well, here’s the story again through a 2023 lens.

When I was born, my parents didn’t have a name picked for me yet. The reason is the fact that I was born three months prematurely. As a result, for a few hours, the name plate on my incubator read “Baby Van Woerkom”. According to my mother, my father was so displeased with this that he quickly came up with a name (or picked one from the names they’d been discussing among each other). And thus I was named Astrid.

Of course, my parents do have a story of why they named me Astrid. Apparently, I am named after Swedish author Astrid Lindgren. Similarly, my sister was named after Sigrid Undset.

I do like my name, sort of. I like its relative uniqueness. I don’t like the fact that it’s hard to pronounce in English, but I do like the fact that in English-language literature for this reason I hardly come across characters named Astrid. I avoid books when I know they have a character named Astrid in them.

I don’t have a middle name and yet, I always wanted one. As a teen, I’d pick random middle names that bore neither an etymological nor a linguistic similarity to “Astrid”, such as “Elena”. Now if I had to choose a middle name, I’d go with something that also has its origin in northern Europe but is relatively easy to spell and pronounce in Dutch and English, such as “Kirsten”. I liked that one back as a teen too but didn’t use it as often. The name “Kirsten” is Christian in nature though, while “Astrid” has Pagan connotations. However, I don’t really care. The combination might actually signify the importance of the Christ, as the name “Astrid” means something like “beautiful God”.

#WeekendCoffeeShare (December 10, 2022)

Posted on by Astrid

Hi everyone. How are you doing? I had my last cup of coffee for the day, but still I want to join in with #WeekendCoffeeShare. I guess you could get a Senseo if you want one, or a cup of tea, or soda. Or you could go for water like I will now. Let’s have a drink and let’s chat.

If we were having coffee, I’d ask you how your weather’s been. It’s been a month since I did a coffee share post and winter has well and truly arrived by now. Daytime temperatures hardly get above 0°C, although we don’t get very low night-time temperatures. Thankfully, despite the cold, I’ve been able to go on walks everyday, as it’s not been raining that much.

If we were having coffee, I would share that I finally reached breaking point here at the new care home last week and my mother-in-law called the home to get to speak to a higher-up, either the behavior specialist or the manager. She was told that I’d had a good day that day. While that was mostly true, it wasn’t about that day. My mother-in-law then contacted the mediator I had been in touch with too. She is independent and helps advocate for clients or family members but is paid for by the care agency.

After a week of playing phone tag, the mediator finally got in touch with the manager and was able to convince her to schedule a meeting between me, the mediator herself, a staff and the behavior specialist. This will most likely take place before Christmas, so the staff who will be attending won’t be my support coordinator, as she’s off on vacation till after then. I did ask that my mother-in-law be invited too, which the mediator initially didn’t feel would be appropriate. Her reasoning was that it’d be too many people attending and that she (mediator) would be there to support me already. However, the mediator is not able to realize how much I’m not able to process during a verbal conversation, so I stood my ground.

If we were having coffee, I would share that, earlier this week, one of the staff and I were able to create a new, more suitable to me day schedule. It was (unofficially) started today (while we’re waiting for the staff to type it out). The new schedule is organized around timeframes, like my day schedule at the old care home, but of course with the note that these are rough directions. I am quite satisfied with my first day using the new day schedule, but of course I do realize that it may only be 2 1/2 weeks before it will be trashed by my support coordinator.

If we were having coffee, I would tell you that I am loving spending time on my polymer clay again. I am not getting my hopes up yet, but, in my new day schedule, I have lots of opportunities for claying. I made use of them today and created my first actual unicorn! Granted, it doesn’t have a mane or tail yet, because with the particular tutorial I used, you had to bake the unicorn and then attach those parts and bake again. I am hoping to do that tomorrow. I however am completely excited about crafting again. Now all please pray my new day schedule works out and my support coordinator won’t trash it when she comes back.

If we were having coffee, lastly I’d tell you all that I got some lovely presents in the mail from my parents on Thursday. I got a lavender-filled unicorn soft toy that can be heated in the microwave. I also got three different kinds of candy: chocolate, licorice and so-called Dutch traditional candy, which was hard candy. I loved all of them. The online shop also sent a few random samples of a sugar soap, so-called immune boosting capsules and some kind of fruit and veggie powder that you need to put into water and drink. I threw these away. So far, I haven’t actually microwaved the unicorn, but I did hold it when trying to sleep.

The Wednesday HodgePodge (September 21, 2022)

Posted on by Astrid

Hi everyone. I haven’t blogged in several days. A lot is still on my mind, but I’m too all over the place to write it all down in a coherent way. Don’t worry, I’ll get to it, eventually. For right now, I’m joining in with the Wednesday HodgePodge. Here goes.

1. Volume 478. Sounds like a lot. Where were you in 1978? If you weren’t born where were you in 2008?
In 1978, my parents got married. I wasn’t born yet. As for 2008, I spent the entire year on the locked acute psychiatric unit. I got there in November of 2007 and left for the resocialization unit in March of 2009. This year was also the year I started officially dating Jeroen, whom I married in 2011.

2. Raise your hand if you remember records playing at a speed of 78 rpm? What’s a topic that when it comes up you “sound like a broken record”?
No, I don’t think I remember that. As for the second part of the question, anything that causes me stress or worry can get me talking like a broken record.

3. What’s the last thing you recorded in some way?
I rarely if ever make audio recordings. In fact, I did one once in my private diary app Day One just to see if it’d work. Can’t remember when though. Joyce supposes many will reply with something they’ve added to their DVR, but I have no idea what that even is. So yeah, like her, I’m going with something I wrote down and it’s my worries about the prospective new care home. I E-mailed them to my assigned home staff Monday night.

4. Thursday is the first day of fall (in the northern hemisphere). How do you feel about the changing seasons? Something you’re looking forward to this fall?
Fall is my least favorite season, so I don’t really like this change of the seasons. However, I do look forward to hopefully being able to capture some photos of the amazing fall colors. I’ve heard the main institution that I may move to in two weeks is surrounded by beautiful nature.

5. In what way (or ways) are you like the apple that didn’t “fall far from the tree”?
My mother half-jokingly says that I got all my negative traits from her and all my positive traits from my father. Indeed, I do share my mother’s short temper, but I also share her creative talent. In many other ways, we differ. For one thing, she hates to depend on others (except for my father). For this reason, she can’t stand those in the helping professions, including doctors. This is somewhat worrisome now that she’s in her late sixties and her health is declining. However, she considers me an attention-seeker for accepting care.

6. Insert your own random thought here.
I’m so nervous! In less than an hour, I will be headed to the main institution to have my first orientation visit with the prospective new care home. I am really hoping it is as good as people say it is. Please all pray this works out for me.

How I Was Disciplined As a Child

Posted on by Astrid

Hi everyone. Today’s topic for Throwback Thursday is “rules and discipline”. I am going to try to keep this post as non-triggering as possible, but if you endured childhood abuse, you might want to skip this post. Then again, maybe what I endured wasn’t abuse at all? Well, in that case actual survivors might want to skip it because it might come across as invalidating.

My parents rarely set clear rules when I was a child or teen. I can’t remember having curfews and, even at ten-years-old, I was allowed to stay awake in my room for as long as I wanted provided I didn’t wake anybody else.

In this sense, none of the provided questions in Maggie’s original post made much sense. I mean, I was often sent to my room as punishment, but I cannot remember what for. I also was never told how long to stay in my room, so I usually stayed for about an hour then slowly re-emerged.

My parents, both of them, also used corporal punishment. However, I get a feeling that they hit me more out of a sense of powerlessness than out of a righteous wish to set me straight. Unfortunately, corporal punishment didn’t stop when I got older. In fact, the last time I was hit, was when my parents more or less kicked me out of the house when I was nineteen. And then I don’t include the time my mother tried to slap away my hand from my hair to prevent me twirling it when I was 23 but I slapped her hand away.

My parents, like I said, didn’t have clear-cut rules, but they did have expectations about socially appropriate behavior. They had their own words for ridiculing me when I “misbehaved”.

The positive side of there not being many clear rules, was that my parents encouraged me to do things most other teens, and certainly disabled teens, would not have been allowed to. I was allowed on a four-week-long summer camp to Russia at age fourteen, being the youngest of the Dutch participants and the only one with a disability (the program officially catered towards the visually impaired). Then again, when I struggled socially in Russia and for this reason wasn’t allowed back the next year, my parents, especially my father, completely guilt-tripped me rather than showing me support.

I was mostly a rule-follower, insofar as there were rules at all. However, as a teen, I became secretive. I actually had my father drive me to a meeting of people with mental illness when I was seventeen, while I’d led him to believe it was a disability meeting (because one of the people there was in a wheelchair). I’m pretty sure he knew, but he never confronted me.

I don’t have children of my own, so I cannot say whether my upbringing influenced the way I discipline them. However, I did find I got easily triggered when I got the impression my sister and brother-in-law used corporal punishment on my older niece (this was before the younger one was born). Thankfully, they were able to reassure me that they didn’t.

A Courageous Choice

Posted on by Astrid

I was a shy, withdrawn teen who was loyal to my parents even though they didn’t have my best interest in mind. I mean, if they’d had their way, I’d have gone to university and lived on my own straight out of high school in 2005, even though I could barely take care of myself. That had been their attitude towards raising “responsible” children ever since I was a little girl: if I couldn’t – or in their opinion was too strong-willed to – learn a skill as a child, I’d learn it as an adult by myself. Or not. In any case, there was no safety net.

Though I do indeed feel that children benefit from learning by doing themselves, this was not how it worked in my family. I don’t blame my parents for not having the patience to teach me self-care skills, given that I got frustrated very easily, but I do hold them responsible for not having accepted the help they could have gotten. Though it might not have led to me becoming as independent as they’d want me to be, my current situation is about as far from that goal as can be. Then again, my parents hold me responsible for that. And I, in a sense, do too.

I was reminded of this situation when I read a journaling prompt that asked me to reflect on a courageous choice I made as a teen that’s still helping me today. I immediately thought of the choice to go into blindness training rather than straight to university once I’d graduated high school. Though this decision itself did not by far lead to the self-awareness I needed to try to get into long-term care, it was my first step into the care system. And, of course, as my parents predicted, I never fully got out.

Back in June of 2005, when I accepted the blindness training center psychologist’s offer to put me on the waiting list for the basic training program, I still had my head deep in the sand about my lack of independence skills. The psychologist did not. He suggested I go to a training home after finishing the program. He probably knew that, like many young people blind from birth, and especially those from families like mine who value academics over life skills, I wouldn’t be ready to move into independent living after a four-month, basic program. I wasn’t. I never would be. Till this day, I’m not sure whether this is my blindness or my autism or my mild cerebral palsy or what. I believe strongly that, with multiple disabilities, the whole is more than the sum of its parts. Thankfully, the authorities approving my long-term care funding, eventually agreed.

My 2022 Birthday Celebrations

Posted on by Astrid

In one of her Writer’s Workshop writing prompts for this week, Mama Kat asks us to share about something we celebrated recently. Of course, it was my birthday last Monday and I haven’t yet told you all everything about it, so here goes.

The celebrations started on Saturday with me arriving in Lobith by taxi at around noon. My husband gave me my first present after we’d had lunch. According to him, I’d been nagging him about the Cernit matt polymer clay varnish being sold out everywhere. Indeed, I had mentioned this to him (not exactly nagging, in my opinion), to which he’d replied with a challenge for me to find where it’d been allegedly sold out. I found out that a Bol.com (a Dutch site much like Amazon but more expensive) partner still had some in stock. He then asked me whether I wanted it for my birthday. I said yes. So that’s what I got. I got two 30ml pots of it, because according to my husband a Danish vendor had it in stock at half the Bol.com price including shipping.

At around 2:30PM, my parents arrived. They gave me strawberries that they’d bought from a street vendor across the German border. They also gave me German tea, which I ended up giving to my husband, since it was black tea and I only drink green tea and the occasional herbal tea. My main birthday gift was a huge box full of plastic cookie cutters to use with my polymer clay. There are 75 cutters in the box, ranging from animals to vehicles and from a few Christmas-themed and sports-themed ones to dinosaurs. The box also included cutters for all letters and numbers except for I (the box recommended cutting off a piece of the L for that). I also got a huge jar filled with beads that my parents bought at a thrift store. Lastly, I got a kit for making magnetic bracelets.

After we’d had coffee and apple pie, we chatted some. Then, it was time to leave for the restaurant my husband and I had picked out. The restaurant was called “De Revolutie” (“The Revolution”) and we’d somehow gotten the impression it was a Cuban-style restaurant. That had appealed to my husband and me, because my parents are leftists.

When we arrived, we soon figured out it was indeed hard to comprehend which revolution the restaurant was referring to. We’d hoped for pictures of Che Guevara, but there were none. I had already discovered that, what the restaurant had on the menu, definitely wasn’t Cuban cuisine, as most of its meals include beef and that’s hardly consumed in Cuba (or so Google tells me). I didn’t care though.

I chose shrimp in garlic oil as my appetizer, which was really good. My husband chose nachos and was given a huge bowl of them. I ate some of his. Then I went for a burger for my main course, while my husband chose a stew. His was a relatively small serving, while mine was quite large. I liked my burger, but had hoped for a spicier version.

After we’d finished our meal, my parents left and my husband and I drove back to our house in Lobith. The next day, we drove to my in-laws’ house, where only my mother-in-law was at the time. My mother-in-law gave me a clay extruder as a present, which I love but only figured out how to work today.

On Monday, my actual birthday, I didn’t do much out of the ordinary. I treated myself to a sausage roll for lunch, but that was it. I also tried to find ready-made cookie dough to make cookies from to give as a treat to my fellow residents. It turned out the supermarket was no longer selling this, so I went back on Tuesday to get ice cream after all.

I had decided this year that I don’t want a present from my staff, since technically you (or your family) pay for it yourself anyway. However, yesterday the new student staff brought me some plunger fondant cutters to use with my polymer clay. They weren’t even really intended as presents, but I appreciate them very much.

Mama’s Losin’ It

Joy in June

Posted on by Astrid

Hi all! Here I am with my monthly update on my 2022 word of the year: JOY. I am joining the Word of the Year linky and Lisa’s One Word linky.

Last year, the month of June was rather tumultuous. This year was no different at first. It started with the manager telling me that temp workers had to be put in place to work in my home more often than usual and this would mean I would get temping staff to work my one-on-one shifts too. I wasn’t amused and this caused me to be rather stubborn and strong-willed at first.

I can’t say that working with temp staff has gotten easier over the month. All I can hope for is that, by summer’s end, enough regular staff will have been hired.

Thankfully, there were a couple of extraordinarily fantastical experiences that helped me find joy this month. One was seeing my assigned staff’s pet hedgehog on the 13th. Of course, when picking my word, I intended to enjoy the ordinary. I do that, too.

That being said, I do need to practise being grateful in my heart with any blessings coming my way. My birthday celebrations this weekend show this: my parents gave me presents they’d gotten at the thrift store and, while I was genuinely happy with one of them, I wasn’t with the rest. Of course, I tried not to show it, but I need to work on cultivating a grateful heart even in this situation.

I remember, when I picked “joy” as my word of the year, being in doubt about possibly choosing a word such as “creative”. That, though, sounded too easy. Indeed, most joy I’ve found over the month of June has been with the creative process. Over the past several weeks, I’ve been genuinely enjoying the polymer clay craft in particular. I have a couple pieces that still need a few coats of glaze, but which then I’m eager to show you all.

With respect to finding daily notes or reminders of my word, in the form of quotes, Bible verses, etc., I haven’t been doing so well. I collected a few but then stopped. I might want to collect reminders of my word whenever I see them rather than focusing on one per day as a requirement.

Overall, the month ended better than it started. This may be because this weekend is my birthday weekend (tomorrow is my actual birthday). Then again, I think I said this in April and May too, so maybe the fact that I’m writing my monthly updates later in the month, makes me remember the joys of the last part of the month better, since they’re more recent.

How was your June?

#WeekendCoffeeShare (June 11, 2022)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare again today. Grab a cup of coffee, herbal tea or I could even make you strawberry infused water, since I bought some strawberries at the supermarket yesterday and I still have a water bottle with a fruit infusion thingy that I got for my birthday two years ago and hardly even ever use. I guess I’m going to make some for myself now, so be right back. Anyway, let’s have a drink and let’s catch up.

If we were having coffee, first I’d ask about your weather. Ours has been mixed this past week. Early in the week, it was quite chilly and rainy, but today we’re having sunny weather and daytime temperatures of up to 22°C. It’s a little windy, but still lovely!

If we were having coffee, I would share that the orthopedic shoemaker came by on Tuesday to do the final tweaking to my right semi-orthopedic shoe. It’s now fine or so it seems, but the left one, the one with the ankle-foot orthosis in it, is now giving me issues again. I don’t get blisters, but it does feel as though I’m getting slight pressure where the edge of the AFO touches my foot. To be honest, I am currently undecided as to which shoes I like better: my regular shoes or the semi-orthopedic shoes with the AFO. Neither is giving me the comfort I’d like and I’ve more or less lost my walking mojo altogether.

If we were having coffee, I would tell you that I’ve been experimenting with methods of trying to make the perfect polymer clay earrings all week. I haven’t found the perfect method yet, but today’s would-be earrings are at least better than Thursday’s, which were so curved that I threw them in the trash.

If we were having coffee, lastly I’d share that I’ve been making plans for my birthday with my parents, husband and mother-in-law. I initially invited my parents to the care facility, but, after talking it over with my husband, decided it’s better to invite them to Lobith. They will be there on the 25th (my birthday is on the 27th). My husband suggested we eat at a Cuban restaurant called “De Revolutie” (“The Revolution”). I love Latin American food, so that’s awesome. Besides, my parents are quite outspoken leftists, so I bet they can appreciate it.

Then the next day we’ll pay a visit to my mother-in-law (my father-in-law will be on vacation then). I haven’t yet decided whether to do anything special on the 27th itself. I actually have a nurse practitioner’s appt on that day and, since my appt this week got canceled too, I really don’t want to cancel. My staff suggested going out for lunch afterwards, so that’s an idea.

How have you been?

The Wednesday HodgePodge (June 8, 2022)

Posted on by Astrid

Hi all! Today I’m once again joining the Wednesday HodgePodge. Here goes.

1. “A daughter’s a daughter all her life, but a son’s a son til he takes a wife.” What say you? Elaborate.
In my personal life, the exact opposite is true, in that my parents were very clear that, once I was an adult (ie. once I’d turned eighteen), I had to fend for myself. My contact with them lessened even more once I got married. My husband, on the other hand, sees his parents almost on a weekly basis. I am honestly much closer with my in-laws now than with my own parents, to the point where I’ve appointed my mother-in-law as my informal representative should I become incapacitated.

2. Something you’ve seen recently that was “cuter than a June bug”?
Hmmm, I’m obviously supposed to say little Wolke, my baby niece, but to be honest I don’t really care for babies all that much. I don’t really like children in general, but I’m going with her older sister anyway. She will be three in September and talks up a storm already.

3. “You can’t buy happiness, but you can buy ice cream and that’s pretty much the same thing.” Agree or disagree? Last time you had a serving of happiness ice cream? Dish-cone-milkshake-sundae…which one do you choose?
Disagree with the saying. Though I do like ice cream on occasion, it’s not at all my favorite treat. I don’t actually really have a sweet tooth since recovering from my overeating. Give me chips instead.

As for my favorite ice cream, it’s probably a cone, although I like sundaes and milkshakes too. I can’t remember when I last had ice cream. A milkshake though, yes, I do remember, but it was far from good. We got it with a paper straw, as plastic straws are banned in the EU, and it was too thick to drink with that but too thin to eat with a spoon.

4. What is one way/area in which you’re currently “swimming against the tide”?
I don’t do social media much at all. I mean, I do still have a Facebook, Twitter and Instagram account, but I hardly ever use them.

5. Three things you’re looking forward to this summer?
My birthday at the end of this month. Other than that, I don’t really know. My husband and I originally thought of taking a few days out by train, since Lobith is close by the German border and Germany’s public transportation is nearly free during the summer months. However, he found out that trains are already so packed that the police had to come out to remove some of the people. Not my idea of a holiday.

6. Insert your own random thought here.
I have been obsessing over crafty stuff again. I am really looking forward to doing some polymer clay work again, but can’t decide what to make, honestly. Yesterday, I tried my hand at another pair of earrings, but the slab was a true lint magnet and I was too lazy to get alcohol to remove it. I wasn’t too inspired as to what to make out of the slab anyway. Any ideas?