Why I Write What I Write #OpenBook

“I write because I don’t know what I think until I read what I say.” – Flannery O’Connor

Yesterday, I read Stevie Turner’s post for the Open Book Blog Hop and the topic really struck a chord, as did the accompanying quote, which I copied above. The question Stevie poses for this week’s hop is why we write what we write.

I mostly write personal essays, journal entries and other works of autobiographical nonfiction. It may surprise you that I didn’t start out this way. As a child, I wrote fiction more than I wrote diaries. I wasn’t too imaginative, but I tried my best and my parents and teachers were pretty impressed. I always wanted to be a writer.

I started writing a regular diary when I was thirteen. About nine months later, I read Anne Frank’s diary and pretty quickly decided I wanted my diaries published when I’d grow up. That never happened and isn’t going to happen either, not even here, since my crazy ramblings of the time are none of my current day readers’ business. It was 2000 at the time, so online diaries already existed, but I was unaware of their existence.

I continued to write some fiction on a semi-regular basis and aspire to get at least some pieces of fiction published at some point until my late teens or early twenties. Now, I don’t have any aspirations for getting any fiction published.

As for why I write what I write, there are two main reasons. The first is to express myself. I revived this specific blog in 2018 in an attempt to allow myself to write more from the heart than I was permitting myself to do on my old blog.

As an offshoot from the wish to express myself comes the wish to find likeminded individuals. I blog in English because the English-language blogosphere on WordPress and Blogger is much larger and by extension more diverse than the Dutch one, which consists primarily of wannabe “influencers”. Through my writing, I aim to connect to people who share similar experiences to mine.

With respect to my fiction, this has always been the goal of my writing, really, too. My fiction always had very strong autobiographical components and I was looking to diversify young adult fiction. I am sometimes surprised at how well-represented people in minority positions, including multiple minorities, are in fiction nowadays. As a teen, my goal was to be part of that movement. I guess by merely writing openly about my experiences online, even though I’m no longer engaged in activism, I may be doing this.

Things That Made Me Smile (August 30, 2021) #WeeklySmile

Hi everyone on this beautiful Monday evening. I was feeling a bit down in the dumps earlier today. The reason is the fact that I had a vision screening by the blindness agency this morning. The result was more or less as I expected: I only have a tiny bit of light perception in the central visual field of my left eye. It however was a bit of a bummer too, in that I’d hoped to perform slightly better.

To cheer myself up, I thought I’d join The Weekly Smile and share how amazingly far assistive technology has come. It may not replace actual vision, but, combined with my imagination, it can go a long way.

What I mean by assistive tech specifically is VoiceOver Recognition, the iPhone’s built-in image description functionality that was released first in iOS 14 not even a year ago. Last month, I already mentioned that it can recognize some basic shapes and colors (such as my pink, heart-shaped polymer clay ornament.

on Wednesday though, my father-in-law posted a picture of a statue to the family’s WhatsApp group and asked us to guess who it was. Without VoiceOver Recognition or similar third-party apps, I would have lost out on the fun. VoiceOver Recognition though immediately described the image as a statue of a bear on a water fountain. I replied with this answer in the group and was asked to name the bear. A little Googling revealed that it was “Berend Botje” from the nursery rhyme by that name.

My husband told me that, from the picture, he hadn’t made out that the statue was of a bear. I ran the image through VoiceOver Recognition and Seeing AI, one of the more commonly-used third-party apps for image description, just now and neither recognized it as a bear specifically this time. However, the fact that I “won” my family’s very visual riddle despite being totally blind, definitely makes me smile.

I’m also joining in with #LifeThisWeek and #SeniSal.

#WeekendCoffeeShare (August 29, 2021)

Hi everyone, how are you? I’m a bit late joining #WeekendCoffeeShare, as it’s already Sunday. I just had my afternoon coffee and, like I said last week, my Senseo is with my husband now. Now I’m assuming he won’t use it much, as not only is he more of a freshly-brewed coffee person, but he’s trying to cut back on his caffeine intake. That’s his decision though. Let’s have a cup of coffee (or pretend to) and let’s catch up.

If we were having coffee, I’d share that I had a good week overall. The weather’s been okay. Not as warm as I’d like it and a little windy for my liking too, but at least it’s been mostly dry.

If we were having coffee, I would share that I decided not to join Steptember, the annual cerebral palsy fundraiser, this year. I participated last year, but the pressure of having to get in 10K steps each day (or as many as I could) and raise money, was a bit too much for me.

If we were having coffee, I’d also moan about my AFO. Yes, it’s been a while, but if you’d thought that no news is good news, you would be wrong. My AFO had been with the orthopedic instrument maker, whom I’ll call AFO guy, for a few weeks, but upon return, we found out that it’s still not working well in combination with my orthopedic shoes. Now AFO guy and shoe guy were both contacted by the physical therapist and it’s up to them to figure out how to solve the issue.

If we were having coffee, I’d also whine a little about my foot pain. The physical therapist hasn’t gotten back to me about that, so I’m not sure what’s causing it. Could be my shoes, since they’re really old (the non-adaptive ones I now wear). Please pray AFO guy and shoe guy will figure out the issue with my adaptive footwear soon.

If we were having coffee, I’d ask you to pray for my niece. I didn’t ask my sister permission to share her hip dysplasia diagnosis last time, which I think now is wrong, so I won’t be sharing any more details. However, she is definitely in need of continued prayers.

If we were having coffee, lastly I’d share that I’ve been really crafty over the past week again. I created some lovely polymer clay ornaments, as well as a hand cream and keychain for one of my fellow clients, who had his birthday on Wednesday. Yesterday, I encountered a lot of frustration with one of my Fimo Professional clays being very crumbly and hard. I eventually managed to restore it to health though.

How have you been?

Gratitude List (August 27, 2021) #TToT

Hi all! Can you believe August is almost over with already? I certainly can’t. Today I thought I’d do a gratitude list. I’m joining Ten Things of Thankful (#TToT), as well as Thankful Thursday (a day late) again.

1. I am grateful for French fries. On Sunday, the staff decided to get those delivered to the care home. Of course, I had a very spicy snack called mexicano with it.

2. I am grateful the volunteer handymen came over to my room on Monday to put together the new desk I bought at Ikea two weeks ago. At first, it was a little too high (the legs are adjustable in length), but the handymen had been struggling to get the legs to cooperate. For this reason, I was hesitant to ask them to adjust them. However, once they’d figured out how to work the mechanism, it was pretty easy. I am so grateful to have my new desk now.

3. I am grateful both my assigned day activities staff and home staff are back from vacation as of this week.

4. I am grateful my CPN is back from vacation. I am glad I had a good discussion with her on Wednesday.

5. I am grateful to be making progress in my creative endeavors. I am quite perfectionistic, so have thrown a few of my polymer clay pieces in the bin, but without failing, one doesn’t learn, right? I am also grateful for all the constructive feedback I receiv in Facebook groups.

6. I am grateful my polymer clay alphabet stamping set arrived. I had had it on my wishlist for a while, ordered it on Monday and it arrived yesterday. Unfortunately, a part of it was missing. One of my staff went after it and the store just replied that they’ll send the part that is missing.

7. I am grateful for summer fruit. My day activities staff, who lives near the supermarket my care facility normally buys from, was asked to get some stuff (buttermilk, I think, yikes!) on Thursday and she asked me what else I wanted her to buy now that she was going to go get groceries for us anyway. She bought peaches and strawberries and they were delicious!

8. I am grateful to be able to put a smile onto people’s face with my handmade gifts. Like I may have mentioned, my day activities staff got a present from me. So did a fellow client, who had his birthday on Wednesday. He had the hugest smile on his face when I gave him his hand cream.

9. I am grateful to live in a free, developed country. All the news about the Taliban having taken over Afghanistan makes me so grateful that I’m not and have never been in a war zone.

10. I am grateful the government are so far not putting the country into lockdown or tightening any measures despite COVID case numbers being on the rise again.

What are you grateful for?

Riding the Train

Back when I still lived on my own in 2007, I would frequently ride the train. Or go to the train station planning to go on a train somewhere but melt down once at the platform. Then, people would often call the police.

I shared my experiences of riding the train, or wanting to do so, as an autistic and blind person on a public transportation users forum in 2008. I shared pretty much every little detail up till my crisis on November 2, which happened at a train station too. The person who had asked me to share, then pointed out that it might be a little TMI, but that’s how I am.


This piece was written for the Six Sentence Story blog hop, for which the prompt this week is “Train”.

My Very First Polymer Clay Earrings

Oh my, I’m really losing my blogging mojo or so it seems. Thankfully, I’m finding other creative outlets, like polymer clay.

Yesterday, I was watching a YouTube video in which the creator made some polymer clay earrings with the image of daisies on them. I wanted to recreate those, but really was pretty much clueless.

Like her, I started out with blue (well, Fimo Soft #39, “peppermint”, the closest to blue polymer clay I have). I then added little yellow dots. I still don’t have white, so used porcelain for the petals. The YouTuber hadn’t created individual petals, so neither did I. Rather, I extruded a strand of clay to go around the little dots. That was hard enough. I didn’t flatten my slab, because I feared I’d distort the design if I did. I also really liked the texture in my design.

Unfortunately, when I baked these, they stuck to the tile and got a hole in them when I pulled them off. I threw them straight into the bin, so no pics of these.

Yesterday evening though, I did create some earring pieces that were more or less a success. I used purple as the background color this time and again, yellow dots and white strands to go around them for the daisies. This time, I tried to flatten my slab using my acrylic roller, but that didn’t create an even surface. Then, I ran my slab through the pasta machine, which of course distorted the design a little. Or a lot.

I decided to bake my earring pieces anyway. I had four of them and this morning, had my staff pick the best two to be glued to the earring posts. That worked surprisingly well considering I didn’t use super glue. I had to let them dry for about three to four hours and they look and feel pretty sturdy now.

Polymer Clay “Daisy” Earstuds

VoiceOver Recognition does say they look like boiled eggs rather than daisies. I guess it has a point.

For the photo, I attached them to a piece of blue cardstock. That will do okay as an earring card for keeping my earstuds safe while waiting for me to actually get my ears pierced.

What do you think of these?

Linking up with Party in Your PJ’s.

Crafty Endeavors #WotW

This week was a mixed bag emotionally. I haven’t been as motivated as I was before, but, like I said yesterday, haven’t been depressed either. I have also been quite crafty over the past week. In fact, I have been exploring more creative outlets in a single week than I’ve done in a long while. For this reason, I’m choosing “crafty endeavors” as my word of the week.

Early in the week, I created the polymer clay tricolor “rainbow” pendant I showed you on Wednesday. Like I said, at first it wouldn’t cure in the oven, but eventually it did.

I also created the multicolor, layered heart I posted yesterday. Since my mother-in-law brought me a packet of sanding papers, I have been trying to sand this one a little. I only used grits 120 and 400 to get rid of the worst unevenness, since with it being multilayered, I don’t know how to sand the top two layers.

On Wednesday, Thursday and Friday, I have been busy with soap and skincare product making. I made a lavender and clary sage massage oil. Unfortunately, I used up all my lavender essential oil, so I’ve put that on my wishlist to buy when I feel I am allowed to spend money again.

I also created a lavender and rose hand cream and melt and pour soap. In the soap, I used real dried lavender and rose petals.

Lavender and Rose Melt and Pour Soap

I found the recipe here and, though I felt the use of crushed almonds was a bit strange, I just skipped that step. I really liked the soap.

Then yesterday, I showed it in a melt and pour soap making group on Facebook and was told by all of the commenters that most dried herbs and flowers will mold in melt and pour soap. I seriously had no idea! In fact, just a few days earlier, I’d seen another blogger post a recipe for calendula soap. That one is the one herb that won’t mold, but this blogger also included lemongrass. I’ve also seen tons of recipes for melt and pour soap that do include all kinds of dried herbs and flowers, so my next question obviously is how to sift through all the information out there online. In any case, some of the commenters on Facebook said I’m now officially a soaper for having made the same mistake 99% of melt and pour soapers make.

Then on to polymer clay again. On Friday evening, I made a flower. Then I saw an interesting video on YouTube on making polymer clay earrings and wanted to try it. Unfortunately, one of the colors of Fimo I used was way too brittle for in my extruder, so I decided to mix up the two colors. I’d used blossom rose and porcelain. The shade I got was a very light pink which was lovely. Unfortunately, I only had a tiny bit of it.

This evening, I may try more polymer clay, as I haven’t baked the flower yet and want it baked by tomorrow, but I don’t want to run the oven for just one piece.

Overall, despite this week not feeling as good as the past few weeks, I’ve done really well.

How would you sum up your week?

Word of the Week linky

#WeekendCoffeeShare (August 20, 2021)

Hi everyone! Today is a mixed bag weather-wise. We’ve had some rain and some sunshine and the temperature rose to 20°C. It’s okay given that I’ve resigned to the idea that summer is over already.

Today I’m joining #WeekendCoffeeShare. Of course, being that it’s past 8PM, I’ve already had all my coffee for the day. My Senseo coffee maker’s loose parts are also in the dishwasher and I won’t be able to make you a Senseo anymore from now on. More on that later. The staff will probably make you one if you ask though.

If we were having coffee (or any other drink), I’d share that indeed, like I shared earlier, my mood seems to have deflated a little, but I can’t quite say I’m depressed or sad. I just feel a little less inspired and motivated and a little more irritable and anxious than I was over the past couple of weeks. It’s okay though. I’m pretty sure that even this little low won’t mean all my elation over the past month or so was for nothing.

If we were having coffee, I’d tell you that I’ve still managed to be quite creative over the past week. Early in the week and today, I did some polymer clay. I created the “rainbow” pendant I showed you all on Wednesday, as well as a pretty useless layered heart.

Layered, Multicolor Polymer Clay Heart

I say it is useless because it has neither a hole for a jumpring or ribbon in it, nor an eyepin attached. It is also too large for an earring. I might be able to make a brooch out of it someday.

I have also been doing some soap and skincare product making over the past few days.

If we were having coffee, I’d share that yesterday when making some soap, the microwave I normally use for melting my soap and other skincare ingredients, malfunctioned. This microwave used to be used by the sleeping shift, who had their room next to the entrance to my care home. However, they no longer use this, so the microwave won’t be replaced.

I’ve had a microwave for my room on my wishlist for several months, but was going to delay actually buying one for a while still. Until this one failed, that is. My husband tried talking me out of buying a microwave and that’s where the Senseo comes in. He said I don’t have space for a microwave in my room, but I will if I do away with the coffee maker. So he proposed he give me the microwave from Lobith, since he hardly uses it, and I give him my Senseo. I’m fine with that, since I rarely if ever actually use the Senseo. In fact, I just discovered that the unopened packet of coffee pods I had in my kitchen drawer had an expiration date of July 2020. I hereby apologize for having virtually poisoned all my Coffee Share guests with moldy coffee. The Senseo, I’m hoping, is still in pretty good condition.

How have you been?

My Worst Fear

This week, one of Mama Kat’s writing prompts is to share one of your fears. I have a lot of fears and phobias, to be honest. I probably would even meet the criteria for generalized anxiety disorder if it weren’t for my autism, which encompasses a lot of worry in itself already. In fact, when my former psychologist had removed my autism diagnosis, she at one point considered diagnosing me with GAD.

She ended up diagnosing me with dependent personality disorder though. And, as much as I used to fight this diagnosis, it fits in some important ways: being left all alone is probably one of my worst fears.

I obviously didn’t tick that box when filling out the screening questionnaires for my independent second opinion after said psychologist’s diagnosis. I also ticked the box for “very difficult” rather than “impossible” on the WHODAS (assessment of level of disability) question on being on your own for a few days. Obviously, that only got me assigned a lower number on level of disability, not a different diagnosis, but I wasn’t aware of this. Besides, my diagnostician was able to see through my not having ticked that one box, so, though she didn’t diagnose me with DPD, she did recommend I work on my self-confidence.

Whether it means I’m pathologically dependent or not, I don’t care though: I fear being left to my own resources. And to be honest, no amount of kicking me in the butt has helped with this so far. Neither have so many years of independence training and therapy. I guess I just need to live with it. And that’s okay at least as long as the authorities aren’t going to see this as a reason to revoke my access to long-term care.

I mean, it’s not just fear. I fear being left to my own resources because I legitimately have no clue how to live my life independently on a daily basis. I can, with a lot of difficulty, perform most activities of daily living, such as showering, brushing my teeth and getting dressed. I now mostly get help with these, because it costs me a ton of time and energy having to do them on my own. For those saying I used to do these things by myself, I would like to add that this came at a cost to my dental health and physical hygiene. But if I really had to, I probably could do all of this. However, where it comes to housework, I’m pretty much lost. I cannot prepare my own food. Like, when I lived on my own in 2007, I ate bread without toppings because I couldn’t put them onto my bread. I wouldn’t die doing this for a few days, of course, and there the “very difficult” answer on the WHODAS may be correct. But it would be my worst fear come true.

Mama’s Losin’ It

Polymer Clay Fantasy Tricolor “Rainbow” Pendant

I haven’t written a blog post or anything at all in the past few days. I haven’t been too inspired. It looks like my elated mood of the past few weeks is diminishing a little. That being said, I still find my creative juices haven’t dried up completely, far from it in fact. Over the past couple of days, I have finished several things. I don’t really call them “projects”, as they’re relatively simple, but that’s beside the point. One such crafty thing I finished is my polymer clay fantasy tricolor “rainbow” pendant.

Over the weekend, I had been looking at making polymer clay earrings. I am not yet good enough with plain slabs to make those, but one of the ideas I saw was a rainbow. I checked my colors and found that I have some clay at least remotely resembling each color except for indigo. I might be able to mix indigo myself, but then again making an actual, seven-color rainbow would use up so much clay and what if it was a massive fail? For this reason, I decided to make a tricolor “rainbow”.

Polymer Clay Fantasy Tricolor “Rainbow” Pendant

I also shied away from mixing my own colors, because I have none of the classic primaries. I mean, I do have a shade of red, yellow and blue, but I didn’t know what these shades would do together. So I asked my staff for feedback on colors that looked good together and that’s how I came up with the three colors of clay I used for the “rainbow”: Fimo Professional #6 (purple), Fimo Soft #42 (tangerine) and Fimo Soft #39 (peppermint).

I made the three layers of the “rainbow” using a half-round disc in my extruder. Oh, I haven’t even told you all yet that the same staff who brought me a pasta machine a few weeks back, brought me an extruder last Saturday. I’m so totally over the moon about it!

I also decided at the last minute to try to insert the eyepin. That way, I will be able to make a pendant out of this. With this particular piece, my staff did the actual inserting of the eye pin. However, I have been practising doing this myself and can now do this too.

I baked my piece on a tile yesterday. Unfortunately, since I’d used a glass oven dish lid to cover the piece, the first time it wouldn’t cure. The second time around, I decided not to cover my piece and it turned out pretty nice. It is slightly shiny at the back, but well, that’s okay. And best of all, the eye pin didn’t fall out!

What do you think of this piece?

Linking up with Party in Your PJ’s.