#WeekendCoffeeShare (September 10, 2022)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare today. I just had my afternoon coffee, but I’m pretty sure there’s still some left for you. Let’s have a cup of coffee and let’s chat.

If we were having coffee, I would start out by sharing I had quite an active week again. Today, I went for a 5.8km ride on the side-by-side bike again. We rode it faster than last time: 13.4km/hour. Still slowly judging by what I know is a normal bike riding speed, but then again a side-by-side bike is probably harder to ride.

If we were having coffee, I would share that I also finally gained some of my crafty mojo back. That is, I only did one polymer clay thing, but it worked out okay. I created a cat’s head charm. It still needs to go into the oven, so I can’t show you all yet.

If we were having coffee, I would tell you today is my oldest niece Janneke’s third birthday. I sent her a coloring book, some paint and a kids’ umbrella. I may try to video call my sister later to sing “Happy Birthday” to her too. In fact, I think I’m going to text my sister now to ask when she’s got time.

If we were having coffee, lastly I’d complain about the fact that Apple won’t release an iPhone 14 Mini. Then again, this makes the decision about what phone to buy once my current iPhone battery dies rather easy. After all, I wasn’t completely convinced I wanted the 14 Mini even if Apple were going to release it, but now I’m certain I’m going for the SE 2022. Not that that one appeals to me that much, but well, I’ve got to have something and I don’t want a regular 14. Not because of what the so-called experts say (they claim it’s not worth your money but I haven’t read the articles explaining why), but because it’s too large for my liking.

I do really hope iOS 16 is going to be relatively bug-free from the start though, as some of its new features sound cool. Not just that, but I badly want WatchOS 9 and you need iOS 16 for that. I’ll wait for one particular member of the VoiceOver forum to voice his opinion though. He’s claimed each year except the year iOS 12 got released that the new big iOS update was the worst one ever and usually he’s been right at least that updating right away isn’t wise.

How have you been?

A Rather Frustrating Monday

Posted on by Astrid

It’s past 10:30PM and I’m still wide awake. I just took a PRN quetiapine. My Apple Watch and the staff’s blood pressure cuff are telling me I should be super relaxed, in that my heartrate is 67 even when sitting upright. That’s rather low for me, but not worryingly low or so the staff say. Oh yes, I know normal resting heartrate is between 60 and 100, but mine is usually closer to 100. Oh well.

Today was quite intense, honestly. In the morning, the manager came by to talk to me about my meeting with the behavior specialist last week. She also, of course, told me a new staff would be starting his orienting shifts here and he’d start right this evening. Of course, like all new staff who’ve been hired over the past six months, the first part of the home he’s being introduced to is mine. Can you read my sarcasm? Well, it should be there. I’m rather annoyed at the fact that every new staff starts working on my side of the home rather than the other one. I know it’s probably because one of the clients on the other side gets really irritable when introduced to new staff. Well, maybe I need to show a little more of my irritable side.

Then, the temping agency housekeeper came to clean my room. She left my bathroom in a horribly wet state and left the tap on its hottest setting. Thankfully, that setting is not hot enough to actually cause burns, but it did hurt a little when I tried to wash my hands.

Once my day activities started, I went for a walk. My cardio fitness level was once again low, but it hardly bothers me anymore.

In the afternoon, my staff and I drove into town so I could buy a new pair of shorts for when I go on the elliptical or ride the side-by-side bike. The old pair pretty much falls off my butt. I also bought socks and some presents for my oldest niece, who will be three on Saturday.

In the evening, I went for a short walk with the new student staff, taking his camera and tripod with us to snap some pictures. I cannot yet show them, as I haven’t yet figured out which ones show what.

Then, I wanted to go on the side-by-side bike again, but got really frustrated trying to fasten the belts around my feet. They need to be really tight or my feet, particularly my spastic left foot, will fall off the pedals. That didn’t work out and I got really overloaded, so had a short meltdown.

Later in the evening, when I was alone, I started fretting about my health. That probably caused me to feel spacey. Now that I’ve processed all this in this post, I feel slightly better. It might be the quetiapine is working as well.

Gratitude List (July 31, 2022) #TToT

Posted on by Astrid

Hi all on this last day of July! Today I’m joining Ten Things of Thankful (#TToT) for a gratitude list. I’m rather late to the party, but better late than never, huh? Here goes.

1. I am grateful for some good phone talks with the care facility’s behavior specialist this week. She gave me some useful advice on how to handle my frustration with respect to my recent care review with her and my nurse practitioner from mental health.

2. I am grateful my nurse practitioner gave the get-go for me to lower my antipsychotic again. Next week, I’ll be starting with the slightly decreased dose.

3. I am grateful for a nice visit from my sister and her family. I am so grateful Janneke, my oldest niece, was really friendly with me. I tried to show her how to make a play-doh unicorn, but she may still be a bit young for that and/or I wasn’t engaging enough.

4. I am grateful I got to hold Wolke, my youngest niece, who is just two-months-old.

5. I am grateful for the belated birthday gifts my sister and her family brought me. I got four sets of cutters and a set of texture sheets to use with my polymer clay.

6. I am grateful for a delicious salami pizza with added olives and red peppers. Yum! We ordered pizza (and fries for Janneke) last Monday when my sister and her family were here.

7. I am grateful for a good visit from my mother-in-law on Friday too. We went out to have lunch, which was delicious.

8. I am grateful for no mosquitoes last night or the night before. This hopefully means my anti-mosquito device, that I’d bought last Friday when in town with my mother-in-law, is working. Either that or none had been in my room at all. I don’t really care which, as long as the critters aren’t bothering me.

9. I am grateful my pasta machine isn’t broken after all. I had experienced it’d crumble several colors of polymer clay. Even after a deep clean session, it still did this, so I thought it must be broken. Thankfully, one of the most knowledgeable people in the Dutch polymer clay Facebook group took a look at a picture I’d taken and said it wasn’t broken. Apparently it’s the clay.

10. I am grateful the new pasta machine I impulsively ordered online when thinking the current one was broken, can be returned. I will probably ask my staff to drive me to the PostNL pick-up point tomorrow. When I have my refund, I’m going to order supplies I really do need from that same store I now ordered the pasta machine from.

What are you grateful for?

The Wednesday HodgePodge (June 8, 2022)

Posted on by Astrid

Hi all! Today I’m once again joining the Wednesday HodgePodge. Here goes.

1. “A daughter’s a daughter all her life, but a son’s a son til he takes a wife.” What say you? Elaborate.
In my personal life, the exact opposite is true, in that my parents were very clear that, once I was an adult (ie. once I’d turned eighteen), I had to fend for myself. My contact with them lessened even more once I got married. My husband, on the other hand, sees his parents almost on a weekly basis. I am honestly much closer with my in-laws now than with my own parents, to the point where I’ve appointed my mother-in-law as my informal representative should I become incapacitated.

2. Something you’ve seen recently that was “cuter than a June bug”?
Hmmm, I’m obviously supposed to say little Wolke, my baby niece, but to be honest I don’t really care for babies all that much. I don’t really like children in general, but I’m going with her older sister anyway. She will be three in September and talks up a storm already.

3. “You can’t buy happiness, but you can buy ice cream and that’s pretty much the same thing.” Agree or disagree? Last time you had a serving of happiness ice cream? Dish-cone-milkshake-sundae…which one do you choose?
Disagree with the saying. Though I do like ice cream on occasion, it’s not at all my favorite treat. I don’t actually really have a sweet tooth since recovering from my overeating. Give me chips instead.

As for my favorite ice cream, it’s probably a cone, although I like sundaes and milkshakes too. I can’t remember when I last had ice cream. A milkshake though, yes, I do remember, but it was far from good. We got it with a paper straw, as plastic straws are banned in the EU, and it was too thick to drink with that but too thin to eat with a spoon.

4. What is one way/area in which you’re currently “swimming against the tide”?
I don’t do social media much at all. I mean, I do still have a Facebook, Twitter and Instagram account, but I hardly ever use them.

5. Three things you’re looking forward to this summer?
My birthday at the end of this month. Other than that, I don’t really know. My husband and I originally thought of taking a few days out by train, since Lobith is close by the German border and Germany’s public transportation is nearly free during the summer months. However, he found out that trains are already so packed that the police had to come out to remove some of the people. Not my idea of a holiday.

6. Insert your own random thought here.
I have been obsessing over crafty stuff again. I am really looking forward to doing some polymer clay work again, but can’t decide what to make, honestly. Yesterday, I tried my hand at another pair of earrings, but the slab was a true lint magnet and I was too lazy to get alcohol to remove it. I wasn’t too inspired as to what to make out of the slab anyway. Any ideas?

A Few Pretty Intense Days

Posted on by Astrid

Hi everyone. It’s been a few days since I wrote on my blog and I didn’t even check my feed reader yesterday at all. The last few days have been rather intense emotionally.

First, on Sunday, my husband picked me up at 8:30AM to drive to my sister and her family, who live across the country. Little Wolke, my baby niece, was, well, a baby. She didn’t really interact at all. Neither at first did Janneke, my older niece, who will be three in September. My sister did explain that “auntie Astrid’s eyes don’t work” so that’s why I can’t look at her, but she was still shy. Once my sister had taken the polymer clay bear I’d created for Janneke and let her undo the wrapping, she was a little more engaging. I did feel bad that, when she said the bear wanted a kiss, I told her not to (since I keep hearing mixed things about the safety of polymer clay in this respect). I did worry for a while that maybe Janneke was a bit too young for the bear, but my sister said she doesn’t put things in her mouth anymore and my husband said she has to learn.

My brother-in-law kept my husband occupied with the same old stories and jokes he tells each time we see each other. Meanwhile, Janneke warmed up to me and started inviting me in to her play. Janneke had hip dysplasia, for which she needed surgery last September. She still remembers in a way or so I think, as all her dolls needed to go to the doctor and get fitted with a cast (or have the cast sawn off).

At one point, my sister did start talking about needing to get rid of her pregnancy pounds. I felt a little uncomfortable about that, as she’s quite thin and I am still overweight. Then she started telling me about her career plans.

Overall, I did notice that my sister only talked about herself (and her kids). This is okay with me, but it does remind me of my parents often telling professionals that I am only able to talk about myself. It makes me feel as though the reason I’m not allowed to talk about myself is not that it’s about myself, but the fact that I don’t live a “normal” life. In other words, the contents of what I tell my parents makes them uncomfortable more so than the fact that it’s about me. Either that or my sister is somehow a lot more reciprocal with my parents than with me.

I do think I like Janneke after all though. Last time I saw her was at my birthday almost a year ago. My sister prompted her to give me her present, but she said: “No auntie Astrid not nice.” I felt that was both cute and a tiny bit upsetting.

Thankfully, my husband was able to drop me off in Raalte again in the afternoon. I arrived here with half an hour to spare before we’d eat dinner, which was Chinese takeout.

Then yesterday, which was a bank holiday, I spent most of the morning in bed, because a temp worker was assigned my one-on-one shift and the two most recently employed staff, neither of whom I know well, were working the regular shift. The temp worker tried to get me to go out of bed at first, but she had no idea about the activities I normally do during the day and I didn’t have the energy to explain them to her. Overall, I felt really powerless and like I’d rather not have someone there at all. Thankfully, today we’re more or less back to normal.

#WeekendCoffeeShare (June 4, 2022)

Posted on by Astrid

Hi everyone on this warm but windy Saturday afternoon. It’s been a while since I joined #WeekendCoffeeShare, so I thought I’d participate once again. I’ve just had my afternoon coffee, but the other clients are still having theirs, so grab a cuppa if you want. I also have a delicious loose-leaf herbal tea that I swapped with my assigned staff for the lemon and mint flavored green tea that came in a box I’d acquired back in February when I had COVID. After all, back then the staff had taken the entire box to my room and only then realized that because of the risk of contamination, she couldn’t take it back to the kitchen. It contained four varieties of green tea: plain, lemon, orange and mint. I like plain and sometimes orange only, so now that I trust the box isn’t laden with viruses anymore, I gave the other two varieties to my staff. Anyway, the herbal tea contains cinnamon, lavender and I don’t know what else, but it’s truly lovely. Let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that this week was rather intense emotionally. On Monday, we welcomed a new resident to my care home. She’s quiet and doesn’t seem to need a lot of care, but the fact that she can walk independently and yet does have a profound intellectual disability, does create some of its own risks.

The door to the home now needs to be locked for her safety. She can’t work keys, so the key remains in the lock during the day for me to open it. (At night, it’s been out for years already for my safety.) This does create some inner turmoil in me, both because of the lack of clarity (either the door is locked or it is not, in my mind) and because of my feelings about the presumption of competence for me. I mean, I am an elopement risk too and some recent events in which I’ve been quite a possible danger to myself while running away, do make me feel weird. On the other hand, I really don’t want to go back to my time on the locked psych unit.

If we were having coffee, I would also share that, on Wednesday, my assigned home staff captured one of my child alters on video while playing with one of the new resident’s sensory toys. She later asked my permission to forward the video to the other staff and the behavior specialist. I at first said yes, then felt a little anxious but eventually decided to give my permission after all.

If we were having coffee, I’d tell you that I did finish all the presents for my sister and nieces on time for my visit to the family tomorrow. Besides the earrings I created for my sister and the mobile for little Wolke (that’s the baby’s name), I created a polymer clay bear for Janneke, my older niece.

Deciding when exactly we wanted to visit, was a bit of a hassle, since I’d forgotten my sister and her children of course need to sleep during the afternoon and I had more or less filled in for my husband that a morning visit wouldn’t be possible because of the long drive. Finally though, we agreed that we’d be at my sister’s by 11AM tomorrow and have lunch there. My husband insisted on picking me up here in Raalte tomorrow. Now that I think of it, I realize that it makes perfect sense, since he, unlike me, is a morning person. Oh well.

If we were having coffee, I would share that I went clothes shopping this morning with my staff. I bought three pants and two shirts and immediately wanted to put most of my old pants in a bag for the charity shop, because they’re way too wide. I didn’t in the end though, because I want to give it some more thought.

If we were having coffee, lastly I’d report that I’m now under 69kg, yay! I have now lost exactly 3kg since starting my healthier living journey back in January. Of course, that’s not much, but it’s better to go slow and keep losing than to go fast and then gain all the weight back because you’re tired of the healthy lifestyle after a while.

How have you been?

The Wednesday HodgePodge (May 25, 2022)

Posted on by Astrid

Hi everyone. How is it the last Wednesday of May already? I seriously can’t believe it. Anyway, I’m joining in with the Wednesday HoddgePodge again. Here goes.

1. It’s National Wine Day (May 25)…do you like wine? Red or white? Dry or sweet? Do you have a favorite? Have you ever been to California wine country? Or any other wine region? What’s a dish you make that calls for wine?
I can’t stand wine! One day, when one of our staff was retiring and had a little leaving party at my care home, somehow we had white and red wine (don’t ask me how we got it, as normally we aren’t allowed alcohol in the care home). Some staff convinced me to try a little of the white wine. I took a sip and blurted out: “Ew, this is gross.” Then they gave me the red wine. When I took another sip, I yelled: “Yuck, this is even worse!”

I don’t think I’ve ever been to any wine region. Not consciously at least and I don’t care to go there either.

2. What’s something you’ve whined about lately?
The staffing shortage in health care and particularly my care home. Literally half the team left within the past year or so and, this past Monday, the manager informed me that they may need to get temp workers to do my one-on-one shifts too rather than just the general shifts. I know rationally that the manager can’t help the staffing shortage, but emotionally, well, I feel rather overloaded.

3. Last time you were “wined and dined”? Tell us about it.
I honestly can’t remember. My husband and I haven’t been eating out since before COVID, I guess.

4. Three cheers for_____________________.
Care workers, of course. I know the workload is crazy. I can be a pain in the butt at times, but I do appreciate their work.

5. This will be the last Hodgepodge in the month of May. Somehow next Wednesday the calendar rolls into June. Before we go though, sum up your May in twelve words or less.
Eventful, an emotional rollercoaster ride.

6. Insert your own random thought here.
I have been busy with preparations for visiting my sister and her family so I can see my new niece. She was born last Thursday. As regular readers of this blog know, I created a sort of mobile for my baby niece. Here is the picture (I’m holding it in my hand because I had nothing to hang it onto).

I wanted to gift my sister something for her birthday (which was on May 13) too and saw she wanted a membership to a positive parenting website. I am positively surprised (no pun intended) that she’s interested in that approach, as it’s vastly different from our parents’. I didn’t end up buying the membership for her, but hope she does keep this mindset.

I also am happy to share that the handheld drill and drill bits I wanted for drilling holes in my polymer clay pieces for jumprings finally arrived. I had ordered them last Wednesday and the website said handling and shipping would take up to three business days. Apparently they took three business days before they started collecting my order. I need to drill the holes so that I can attach jumprings to pieces in order to make earrings. Since the gift I did buy for my sister, is a pair of earrings, I intend on making her another pair out of polymer clay just for fun.

I also intend on making one more unicorn, because my older niece also deserves a little present when her baby sister and mother both get something.

Gratitude List (May 20, 2022) #TToT

Posted on by Astrid

Hi everyone. I’m feeling all sorts of things today. To focus my attention on the positives, I am doing a gratitude post. As usual, I’m joining in with Ten Things of Thankful (#TToT). Here goes.

1. I am grateful my husband and I went barbecueing on Saturday. It was delicious!

2. I am grateful my hearing is still fine. I had a hearing test on Monday and am so happy it showed I can still hear pretty well.

3. I am grateful for clean water. Upon inspection, legionella was found in one of our water pipes. Again, for the second time in a year. I am grateful the cleaning crew was able to destroy the bacterium.

4. I am grateful for an opportunity to go swimming. Because the crew had to come out to clear our waterworks of legionella bacteria, we had to leave the home from 10AM till 4PM Tuesday. The other clients could stay at day activities, but I normally get my day activities in the home. We did set up my computer in an empty room at another home, but I really wanted to be gone. My staff offered to take me swimming. It was great fun!

5. I am grateful for a day in which I walked more than 10K steps. Tuesday was a truly amazing day with respect to physical activity.

6. I am grateful that, after the legionella was destroyed, the home didn’t smell of chlor or whatever they used to clear the waterworks.

7. I am grateful for warm weather. Not today, but the rest of the week, we had daytime temperatures of roughly 25°C.

8. I am grateful my husband’s truck’s trailer got fixed. It had been having problems with its brakes that could’ve led to it catching fire for weeks. Thankfully, each time, my husband stopped driving just in time. Last Wednesday, he texted me that it’s a miracle and the thing had been fixed.

9. I am grateful for crafty inspiration once again. I have truly been loving creating some things in polymer clay again. Unfortunately, because I used the day center’s oven today to try if that’d work better than the large care home one, it burned my project. It was just a small test case though.

10. I am grateful my sister gave birth to a healthy baby girl yesterday. She chose the name I dislike as the baby’s first name and, for the middle name, chose the name I like but spelled in a way I like a little less. I’ll get used to it though.

What are you grateful for?

#WeekendCoffeeShare (January 21, 2022)

Posted on by Astrid

Hi everyone on this late Friday evening. I’m joining #WeekendCoffeeShare, even though it’s a bit late for coffee here. I am going to grab a glass of water and some fruit in a bit, so if you’d like a soft drink or a glass of water too, you can have one. Let’s catch up.

If we were having coffee, first I’d moan about the cold weather some more. Boy, do I hate winter! Several staff have been trying to coax me into going on walks because it was supposed to be sunny and nice outside. Then I’d invariably reply: “It’s 3°C outside too, brrr.” Usually, the air would become cloudier soon enough and we’d get rain.

If we were having coffee, I’d share that, probably due to my lack of exercise, I didn’t lose weight over the past week even though I stuck to my healthy food plan pretty well. That is, I didn’t feel as though I was just eating carrots and lettuce all week, so maybe I accidentally sneaked in some extras I shouldn’t have had. For example, I am allowed 225ml of yogurt or 200ml of quark with some muesli for breakfast. On Wednesday, my staff poured half the 500ml can of quark into my bowl. Now quark contains only about 50 calories per 100ml, so that didn’t really make a huge difference on its own. However, given that I or my staff may’ve made other such slightly less healthy food choices over the week and I also hardly got my butt off the chair, this combined caused me to maintain. At least I didn’t gain any weight either.

If we were having coffee, I’d tell you that I went to the dentist on Wednesday. Thankfully, other than slightly inflamed gums, everything was fine. I was pretty sure I’d be diagnosed with gum disease and have to be seen by the oral hygienist. Apparently not so. I was sent on my way with instructions for better teeth-brushing and flossing and an appt with the prevention assistant in February.

If we were having coffee, I would share that I texted with my sister this evening. I can’t remember whether I shared before that she’s pregnant again. She’s expecting another girl in May. So far, all seems to be going as it should be. My (other) niece (other than the bump, I mean) is doing okay too. I mentioned in August that she was diagnosed with hip dysplasia. After surgery in September and a cast for several months, she’s now doing pretty well again.

If we were having coffee, lastly I’d share that my husband is off work with the flu. He tested negative for COVID, but thankfully he wasn’t so crazy as to go back into work as soon as he got the negative test result. Back in early 2020, before COVID was known outside of China, he did go to work as a truck driver while sick with the flu. I am glad he doesn’t have COVID, of course, but regardless I’m hoping he’ll feel better soon.

How have you been?

#WeekendCoffeeShare (November 6, 2021)

Posted on by Astrid

Hi everyone on this gloomy fall day. I’m joining #WeekendCoffeeShare. Unlike most days when I write my coffee share post, I haven’t had my last cup of coffee yet. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that my GP appointment on Monday went okay. My magnesium got decreased in hopes of relieving me a little from my abdominal discomfort. It’s helping a tiny bit, but not enough for my liking.

If we were having coffee, I would tell you that I had an okay week otherwise. I’m struggling quite a bit with the disconnect between my intellect and my emotions. This is causing me to appear well-collected a lot of the time when in reality I feel extremely distressed. I discussed a few examples of this with my assigned staff and support coordinator today and they’re helping me improve these situations.

If we were having coffee, I would share that I finally gave in (or up) with respect to the adaptive footwear situation and had my husband order new walking shoes for me. After all, the old ones will probably have a large enough to get my socks wet hole in them within a week or two at most. I am so grateful my husband found almost the exact same shoes. They arrived in the post today. I am still hoping I will eventually get used to my orthopedic footwear, but it will need some further adjustments for that to happen first.

If we were having coffee, I would share that I am looking forward but also stressing about the national cerebral palsy day in three weeks’ time. I went to the event on my own three years ago, but this is quite hard this time. I can’t afford for a staff member to go with me to the entire event even with my one-on-one being covered by the care facility. After all, I have one-on-one only part of the day and would need to pay like €45 an hour for individual support for the rest of the day. I might go on my own after all, or I might skip the event, like I skipped the online regional meeting today. I was seriously planning on going to that one, but just couldn’t get myself to do it after all.

If we were having coffee, lastly I’d proudly announce that I’m going to be an aunt again in May. I’m pretty sure my sister is fine with me sharing this on my blog now that she’s past three months and all tests so far are fine. My sister’s other child, my niece, is also doing well. I shared a few months back that she was diagnosed with hip dysplasia. She had surgery in September and is currently wearing some type of cast. We are all hopeful that once this will be removed in a month or so and once she’s relearned to walk after that, she’ll be completely fine.

How have you been?