A Rather Frustrating Monday

It’s past 10:30PM and I’m still wide awake. I just took a PRN quetiapine. My Apple Watch and the staff’s blood pressure cuff are telling me I should be super relaxed, in that my heartrate is 67 even when sitting upright. That’s rather low for me, but not worryingly low or so the staff say. Oh yes, I know normal resting heartrate is between 60 and 100, but mine is usually closer to 100. Oh well.

Today was quite intense, honestly. In the morning, the manager came by to talk to me about my meeting with the behavior specialist last week. She also, of course, told me a new staff would be starting his orienting shifts here and he’d start right this evening. Of course, like all new staff who’ve been hired over the past six months, the first part of the home he’s being introduced to is mine. Can you read my sarcasm? Well, it should be there. I’m rather annoyed at the fact that every new staff starts working on my side of the home rather than the other one. I know it’s probably because one of the clients on the other side gets really irritable when introduced to new staff. Well, maybe I need to show a little more of my irritable side.

Then, the temping agency housekeeper came to clean my room. She left my bathroom in a horribly wet state and left the tap on its hottest setting. Thankfully, that setting is not hot enough to actually cause burns, but it did hurt a little when I tried to wash my hands.

Once my day activities started, I went for a walk. My cardio fitness level was once again low, but it hardly bothers me anymore.

In the afternoon, my staff and I drove into town so I could buy a new pair of shorts for when I go on the elliptical or ride the side-by-side bike. The old pair pretty much falls off my butt. I also bought socks and some presents for my oldest niece, who will be three on Saturday.

In the evening, I went for a short walk with the new student staff, taking his camera and tripod with us to snap some pictures. I cannot yet show them, as I haven’t yet figured out which ones show what.

Then, I wanted to go on the side-by-side bike again, but got really frustrated trying to fasten the belts around my feet. They need to be really tight or my feet, particularly my spastic left foot, will fall off the pedals. That didn’t work out and I got really overloaded, so had a short meltdown.

Later in the evening, when I was alone, I started fretting about my health. That probably caused me to feel spacey. Now that I’ve processed all this in this post, I feel slightly better. It might be the quetiapine is working as well.

A Good Enough Tuesday

Today is November 2. It’s a Tuesday. A good enough Tuesday, mind you. I didn’t dwell too much on it being the anniversary of my crisis in 2007.

I didn’t really get stressed out about the prime minister delivering another press conference, one in which he’d be announcing new COVID-related restrictions, either. If I’m correct, the press conference is happening right now or has just finished. When I passed by the living room, where the television is, I heard the prime minister say something about “strongly recommending” us to social distance again. Well, whatever. If it’s just a “strong recommendation”, it’s a suggestion, so no-one will do it. Masks are similarly “strongly recommended”.

I didn’t do too much today. Had my blood pressure taken this morning, which was within the normal range (112 over 77) even though I had already been up for a bit. I normally ask that staff check my blood pressure first thing in the morning, because it’s usually up a little when I’ve been active. Not this time though.

I also went to Action, a budget store, to buy some Christmas decorations. I won’t be putting them up till early December, but I wanted to be early buying them to make sure I still had a wide selection to choose from.

I have been wanting to craft too, but that will have to wait till tomorrow. After all, then one of my more creative one-on-one staff will be there for my day activities shift. I will finish the polymer clay owl I’ve been working on.

I did struggle a bit with attachment issues and emotional flashbacks today, but both were manageable. Overall, like I said, it was a good enough day. And that’s totally okay.

#WeekendCoffeeShare (October 25, 2020)

It’s already late Sunday evening. I was up real early today, but still didn’t get to blog so far. Today, I’m joining in with #WeekendCoffeeShare. We may still have some coffee, although our official evening coffee break has passed. Otherwise, I can offer you green tea or water. Let’s have a drink and let’s catch up.

If we were having coffee, I would share that last week, I bought a new Fitbit Inspire 2. It’s pretty cool to be able to track not just my steps and distance walked, but also my minutes in active heart rate zones. I got more than twice the required number of minutes this week.

That being said, I’m already looking at someday buying myself an Apple Watch. I discovered just a few days after I’d purchased the Fitbit, that there’s a new Apple Watch SE that’s significantly cheaper (or should I say less expensive?) than the regular one. I’m really hoping I’ll be able to buy that one someday.

If we were having coffee, I would share that I had a health check on Tuesday. Like I said, it showed that my blood pressure was somewhat high and of course I’m significantly overweight.

I did find out on Friday that my blood pressure is actually pretty normal when resting, ie. just after waking up. It was 115 over 75 then, but rose to 129 over 91 after I had showered and gotten dressed. I have no clue of the significance of this, but my staff E-mailed my GP about it, as the nurse from the health check-up had recommended.

If we were having coffee, I would tell you how frustrated I was when discussing my health check with my husband. He wanted me to go on a diet. I want that too, but it’s hard for me to follow through especially long-term and the staff refuse to enforce a healthy lifestyle.

After a sleepless night and some frustrated discussions with my staff, they talked to the behavior specialist. She recommended we make a food plan together, my staff and me. Then all of us know what I’m supposed to eat and not eat and the staff can redirect me when I want to overeat. So far, it’s going okay’ish. That is, the staff have still occasionally offered me food I’m not supposed to eat at that moment and then I struggled to refuse it. I did eventually talk to the staff about it and try to make up for my bad choices later on. I’ve not yet had a moment when I requested food I wasn’t supposed to eat, which according to my food plan would require the staff to tell me it’s not wise and to offer an alternative.

If we were having coffee, I would tell you that my husband came by for a quick visit today to take me on a walk. That was fun.

If we were having coffee, I’d tell you I finally updated my iPhone to iOS 14. I hadn’t expected iOS 14.1, which came out a few days ago, to solve any of the many accessibility bugs the original iOS 14 had come with. After all, the release notes didn’t mention VoiceOver at all. To be sure, I asked on a Dutch VoiceOver users group about it and got a reply from the most critical iPhone user on the list saying that the update had fixed most of the bugs. Practically all other list members had already updated, claiming that most bugs can be circumvened. I didn’t want to take the risk, but I do believe this particular member. So far, it’s all pretty good. I am having a play around with VoiceOver recognition, which describes images. It’s pretty cool so far.

What have you been up to?

Health Check

Yesterday, I had a physical health check-up at the mental health agency. Because of the risks psychiatric medications cause for your health, they are required to do this every year. Oh well, the nurse told me not to expect another check-up until sometime in 2022.

I had to have bloodwork done to check for vitamin levels, cholesterol, glucose, etc. Everything was within the normal range except for my white blood cell count, which was slightly elevated. That’s probably because I had a cold about four weeks ago. At first, I was tempted to say “No” when the nurse asked whether I’d had a cold because of the coronavirus scare that’d cause. It turned out it explained my high white blood cell count though.

There were also two things that were low, which might indicate anemia. My hemoglobin though was normal and I’m not very tired lately. This is probably nothing to worry about.

Thankfully, my cholesterol, blood sugar, etc. were all normal. I know I run a risk of developing type 2 diabetes because of my weight. The nurse didn’t make a big point about my being obese though. She did chehck my blood pressure. My diastolic blood pressure was 93, which is considered hypertensive. My systolic blood pressure was also a bit high, namely 132, but that wasn’t too worrisome.

The nurse recommended we measure my blood pressure a couple of times over the next few days. It was 126 over 99 this morning. The latter number really worried me.

Right now, I feel pretty awful. My husband is also worried. He asked me to really “lose weight and relax”. I told him that both is not likely possible, but I’d try to at least lose weight. He asked me what options the care facility has to force me to go on a diet. Not many, I think. In fact, the staff are less worried than I am. I am likely mostly myself responsible for restricting my diet.

After I explained my and my husband’s concerns to my assigned staff, she did agree to E-mail the dietitian and behavior specialist to see if I can be put on a diet. Then again, if I nag for food, they say they’re more or less required to give in as I’m a voluntary admission. I don’t think that’s entirely true especially with the new Care and Force Act, but I think the staff feel less able to resist someone verbally pestering them for food versus someone who screams for it without actually asking, as they are non-verbal. After all, at least one of my fellow clients is on a diet and the staff flat out refuse to give her food she isn’t supposed to eat.

I feel really torn. On the one hand, I want to believe the nurse from the health check that losing weight shouldn’t be an absolute top priority, because, well, I don’t want to give up chips and sausages on week-ends. On the other hand, I absolutely don’t want to have to add yet another medication to my regimen. I originally said I wanted to avoid blood thinners at all cost. Then I found out blood thinners aren’t the same as blood pressure medication. Still, I want to avoid needing to add a blood pressure medication too, especially since, once on any medication, it’s hard to get off.

Of course, I want to avoid getting a heart attack or other cardiovascular disease for as long as possible. This means I really need to go on a diet. I’ll start with eating bread instead of cereal for breakfast. It’s hard, but I’m going to do it.