#WeekendCoffeeShare (April 18, 2021)

Hello everyone and welcome to my #WeekendCoffeeShare post for this week. I just had my afternoon coffee. I think there’s still some left, or you can have a tea, fizzy drink or water. We alsso have custard cupcakes if you want one. They’re delicious! Let’s have a drink and let’s catch up.

If we were having coffee, I’d ask you about your weather. Ours has been steadily improving over the past week. On Monday, we still had a bit of ice rain, but the rest of the week, it’s not rained much. Today, we have some sunshine and temperatures of about 16°C during the day. It’s still close to freezing at night though.

If we were having coffee, I would tell you that, on Wednesday, I had a good talk with my community psychiatric nurse. I was able to express some of my anxiety. Then again, Thursday night I ended up in a bit of a crisis again. I tried to reach my CPN on Friday. Unfortunately, by the time she called me at 5:30PM, there was little she could do for me.

Tomorrow, I’ll meet with my nurse practitioner again. I’m considering asking him about my medication, both my daily meds and my PRN tranquilizer. While the PRN med, the atypical antipsychotic quetiapine (Seroquel), works okay for reducing sensory overload, I’m experiencing increasing anxiety, particularly at night. I don’t blame the quetiapine, but I’d really like something to help with this.

If we were having coffee, I’d share that I had quite a scary experience yesterday. I was walking outside in the sunshine and suddenly completely blinded. Of course, it is only to be expected that I’ll eventually lose my light perception too, but it’s still scary. My staff interestingly did understand my panic about being blinded. Most people probably won’t, since to a sighted or even partially sighted person, I’m pretty much totally blind.

I also had a pretty nasty headache, so I’m wondering whether I might have experienced a spike in eye pressure. My staff is going to inquire about getting my eye pressure checked by an ophthalmologist. I’ve heard, after all, that glaucoma needs to be treated even in blind people.

This experience did motivate me to finally inquire about getting a pair of NoIR sunglasses again. I had them in the past, but cannot find them in my size at the most well-known low vision shop. My staff E-mailed the occupational therapist about it. For now, another staff gave me a pair of regular sunglasses.

If we were having coffee, I would tell you that I got a new roller tip for my white cane on Friday too. I now have a marshmallow tip, which I think works better than the large ball tip I used to have.

If we were having coffee, I’d share how happy I am with all the engagement on my blog. It’s truly heartwarming to see how many people are touched by my posts.

If we were having coffee, lastly I’d tell you that my husband and I went for a walk in the “wolf woods”, as he calls the woods between Raalte and the nearby theme park. A wolf was found in the theme park a few weeks ago. Thankfully, we didn’t spot it.

How have you been?

Outdoor Activities I Enjoy

The book 412 Journaling Exercises and Prompts for Personal Growth by Meredith Lane contains, in addition to a wealth of assorted journaling prompts, also a number of “list of twenty” prompts. One of these is outdoor activities you enjoy. Right now, the weather outside is frightful: cloudy, windy, rainy and even a bit snowy. It’s April though and the weather has to get better someday soon. For when it does, let me share some of my favorite outdoor activities.

1. Walking. This is a no-brainer to anyone who’s read some of my blog before. I love love love walking and will even go for some walks in light rain occasionally.

2. Sunbathing. Or rather, just sitting in the sun. I don’t really sunbathe that much, but I do love to sit in the sunshine sometimes.

3. Swinging. At the day center, there is a rocking lounger outside of the door of my pre-lockdown group. I’ve also heard there are sets of swings in front of some of the other homes. At my former day centers, I loved to sit on a swing outside and swing about.

4. Listening to birdsong. I really love to hear the birds sing and chirp when I’m walking or sitting outside. I have absolutely no birdsong recognition skill whatsoever, but the mere sound of the different birds is pure bliss.

5. Meeting people from other care homes. This is mostly due to lockdown, as I used to be able to speak to other clients at the day center. Now we have to meet outside. I love talking to my acquaintances from other homes.

6. Swimming. Mostly in the outdoor pool, that is. Oh, how I wish I would be allowed into them again. I’ve heard some outdoor swimming pools have opened to a limited number of swimmers, but then still I won’t be able to go yet. I don’t really like swimming in a lake as much.

7. Barbecueing. Oh, how I love all the barbecue meat. Truly, if you ask me, salads are just a necessary evil. No, not really, but I am a true carnivore when it comes to barbecueing.

8. Enjoying a picnic. Although I struggle not to make a mess when not seated at a table. I try to think that’s not a problem though.

9. Feeling the wind blow through my hair. I don’t really like windy weather like today, but I do love to feel a slight breeze on my face and through my hair.

10. Campfires. Mostly for the marshmallows, that is. I don’t particularly care for the smoky scent and feel of a campfire, but it definitely adds to a cozy atmosphere.

Okay, I’m not going to get to twenty, but this was definitely fun to try.

What are your favorite outdoor activities?

loopyloulaura

Also linking up with #SeniSal.

A Wonderful Wednesday

Hi everyone. This is going to be a quick post. I am really pleased with myself right now. Today is a great day. The sun shone, the birds sang and I broke my daily step record!

In the morning, my day activities staff took me to the marketplace. We got fried fish for lunch. We also wanted to get fried chicken, but the poultry guy didn’t have that today. I also got cookie crumbs (yes, they’re a real thing). They were €2 a bag but two bags for €3, so I treated myself and got two bags. One of them, I already consumed. Then we walked to the supermarket to see if they had fried chicken and they did!

I also went on a walk before going to the marketplace. We went there by car and I didn’t look at my Fitbit until we were back. I wasn’t expecting to have gotten in many steps, but already had nearly 5,000 steps.

Then in the afternoon, my mother-in-law visited me. We went on over an hour’s walk together. The sun was shining brightly and it was really warm, about 24°C. I truly loved the birdsong, the ability to walk and the sunshine!

In the evening, I went on two more walks with my one-on-one. I got in over 19,000 steps, so just yet, I did a little dance just to get to 20,000 steps. That’s double my daily step goal. I broke my daily step record, which was at just over 17,000 on December 18, 2020.

I also got in 173 active heartrate zone minutes. I wasn’t really exercising for nearly three hours today, but the minutes I got in the cardio zone, count twice.

I did worry a little about my heartrate not returning to normal nearly as fast as my mother-in-law’s. Then again, she is of average build, while I am, as much as I hate to admit it, still obese. I’m trying not to worry too much, since my resting heartrate is still within the normal range.

Overall, today was a wonderful day! Unfortunately, the temperature is supposed to drop to a high of like 13°C tomorrow. It’s not supposed to rain though, so I can still walk. That is, if my muscles don’t ache all over.

#WeekendCoffeeShare (March 27, 2021)

Welcome to another #WeekendCoffeeShare post. I just had my afternoon coffee about an hour ago and am going to have a soft drink in a bit. Of course, I can still make you a Senseo if you want. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that I’m just about as well as it gets with respect to my cold. I am still a tiny bit sniffy, but I don’t think it gets any better anytime soon. I didn’t go to Lobith this weekend, even though my husband had promised me pizza at our house if I did. After all, yesterday I still wasn’t convinced I was well enough. Instead, my husband is coming over tomorrow.

If we were having coffee, I would say that this past week has been great in the walking department. Like I said yesterday, I’ve been quite active. Today was an exception, as it was raining on and off all day so far. I hope to still get some steps in this evening.

If we were having coffee, I would talk some about the political saga that unfolded after last week’s general election. The current prime minister, Mark Rutte, won the election again, probably because people are used to him doing the corona-related press conferences. Before the election, he’d hinted at some restrictions being lifted for Easter. Of course, that was just a political game to win voters, as in the last press conference, only the curfew got moved from 9PM till 10PM.

Speaking of the lockdown, my husband predicts from what he’s read that most of the restrictions will remain until mid-June. I really hope he’s wrong, but at least we can still see each other (provided neither of us is under the weather).

If we were having coffee, I’d tell you I’ve been loving reading other blogs as well as writing my own blog posts. I’m not yet preparing for the #AtoZChallenge. Maybe I should, as it’s in less than a week.

I’ve also been in contact with WP support again. The reason is the news that the classic editor might be disappearing after all. I’m not sure WP support itself knows what it’s doing, as I get mixed messages. I’m trying to let it go for now though, as so far at least I can still blog.

If we were having coffee, lastly I’d share that we might get new staff here in my care home soon. I think I mentioned last week that a male staff was having a look around our home last week Saturday to see if he wanted to work here. Turns out he does. He’s been orienting here a few more times. He used to work in a home for people with intellectual disability who also have complex care needs due to behavior. I got the impression he didn’t like that anymore, so I feared I’d scare him away from wanting to work here. Turns out he’s going to work in both homes.

Then on Thursday, another prospective staff, also male, toured my care home. The manager informed me in advance that he was coming, which I liked. I’ll be curious to know if he decides to work here.

What’s been going on in your life?

Getting Active #WotW

Hi everyone. Today I’m joining in with Word of the Week. It’s been nearly a year since I last joined this linky, but today I’m inspired to. The idea is to sum up your week in a word or phrase. My phrase for this week is: getting active.

You see, last week I was still pretty badly under the weather. This week, though I’m not fully recovered, I’m getting back on track. Though I did walk most days last week, I didn’t get in any other exercise.

This week, so far, I reached my step goal of 10K steps a day each day. I am pretty motivated. Last week, my husband joked that I’d earn a Domino’s pizza for every five million steps I took. That’d take me about a year and a half if I reached my step goal each and every day. I don’t, of course, but I do meet the goal about three times a week on average. This week, five times, so far. I still marvel at the fact that, about three years ago, I merely dreamt about reaching my step goal a few days a week and considered it a sign of optimal physical health. This does show that, as much as I may think I’m deteriorating, at least with respect to physical activity, I’m not.

In addition to walking, I went on the elliptical both yesterday and today. I got in only about ten minutes each day, but that’s okay, considering I’m still not fully recovered from my cold. Yesterday, I listened to a Christian workout playlist. Today, I chose the Southern rock playlist I created some years back when I still went on the elliptical regularly. It was good to listen to my favorite song on that playlist, Jessico by the Kentucky Headhunters.

I also did some core training, ie. planking. I can do it for about ten seconds at a time, which isn’t much, but oh well. I know that if I continue to try, I’ll get better eventually.

Being able to be this physically active, truly boosts my confidence. I mean, I had to buy new clothes this past week and the jeans I ordered, seemed a bit tight at first. This caused me to feel rather self-conscious about being overweight. My staff though reassured me that jeans always fit tighter when you first buy them. Besides, though I’m overweight, at least I still have the exact same size I had about six years ago when I ordered my current favorite jeans, for which the new ones are a replacement. This means I’m not gaining weight.

Word of the Week linky

#WeekendCoffeeShare (March 19, 2021)

I am once again early at least for me with my #WeekendCoffeeShare post. It’s right between my dinner and my evening coffee now, but I can make you a Senseo coffee if you want it. Let’s have a drink and let’s catch up.

If we were having coffee, I would tell you that I’m still having a cold. It’s a lot better than it was last week, but I’m still sniffy. This morning, I had a bad cough, but that seems to be gone now.

I am so glad though that it’s not COVID. This afternoon, I was informed that another home within my care facility is in isolation due to a client having tested positive for COVID. This does worry me a bit, since that client must’ve contracted the virus after being fully vaccinated. The staff do try to reassure me though.

If we were having coffee, I’d share that, now that I’m feeling a lot better cold-wise, I picked up the walking habit again. I managed to reach my goal of 10K steps both yesterday and today.

I did fall on my knee today while walking. Thankfully, I just suffered a slight scrape to the skin.

If we were having coffee, I would tell you that yesterday marked one year since the day center closed due to lockdown. A staff and one of my fellow clients made cheesecake to celebrate. Yummy!

A photo of me in front of the cheesecake

If we were having coffee, I would share about some changes to my care. First, I have a new assigned staff. She isn’t new to me or the home, just new to being my primary support worker. My former assigned staff is in college getting her nursing degree and was a bit too busy to have me in addition to two other clients to be assigned to. I really like my new assigned staff.

However, I was briefly triggered too. After all, my new assigned staff is really involved with my care and I worried she might get too attached and then have to step back. I thought this might’ve happened to my old assigned staff, but they both reassured me this isn’t the case.

Also, my one-on-one got extended with half an hour each day as of today. This might not seem much, but it prevents me having to deal with too many staff changes. After all, in the old situation, I’d have day activities till 4PM, then have to rely on the regular evening shift for half an hour before my one-on-one comes on. Now I’ll have that half an hour covered by one-on-one too. I’ll still have some time without one-on-one in the evenings and on week-ends in the afternoon, but that’s totally okay.

If we were having coffee, lastly I would share that my husband plans on visiting me briefly tomorrow. That is, if my cold isn’t too bad. We’re planning on going to a fast food chain drive-through.

How are you all doing?

#WeekendCoffeeShare (March 12, 2021)

And this time I’m extremely early with my #WeekendCoffeeShare. This week was rather eventful, especially the last couple of days. I just had my afternoon coffee today. You can probably get a cup of coffee, tea or a soft drink from the staff, but I’m so glad this meeting is actually virtual.

After all, if we were having coffee, first I’d share that I’m in room-based isolation. I started having a sore throat yesterday, but wasn’t sure it was the fact that I’d just had a screaming fit or it was actually a symptom of illness. The staff on shift yesterday tried to reassure me. Today though, I woke up very sniffy. I warned the staff, but at first she wasn’t concerned this time either. After she talked to a colleague though, I had to be in room-based isolation. The staff are now wearing protective clothing when entering my room. I’m usually in my room anyway when not walking. For this reason, if I do have COVID, it’s unlikely the other clients will have caught it too, at least from me. The staff though, well, they’ve definitely been at risk.

Thankfully, one of my home’s staff is one of my facility’s appointed testers. She swabbed me right this morning and the test should be at the lab right now. Please all pray that it’ll come back negative.

As for how I’m feeling, well, I’m okay. I’m a little sick to my stomach in addition to the cold symptoms, but overall it’s manageable. I don’t have a fever and my oxygen saturation was normal too.

If we were having coffee, then I’d tell you that I didn’t have as good a walking week this week as I had last week. The reason is that, besides not being allowed out today, I wasn’t allowed outside of the home on Tuesday either. Another client had to be tested for COVID. Thankfully, his test came back negative. I heard this the next morning, but today the staff told me they’d been informed already Tuesday evening at 10PM. I asked the staff to wake me up if this happens with my test too (only if it’s negative).

If we were having coffee, I would share that I had a really productive appointment with my psychiatric nurse practitioner yesterday. The staff who’d seen the PTSD video with me last week, accompanied me. Together, we were able to explain my continuing issues with hypervigilance, flashbacks and emotional dysregulation. I was able to explain about some of my traumas, including traumatic experiences within the psychiatric system. My nurse practitioner was able to validate me from his own perspective as a former psych hospital nurse.

If we were having coffee, lastly I would share that I made a coconut-mango smoothie this morning. It didn’t taste as good as it could have and I’m not sure whether to blame my cold symptoms or the chunks of coconut that weren’t properly blended.

What’s been going on in your life?

Grateful for My Health

Hi everyone, how are you? Today, I want to write, but didn’t know at first what to write about. For this reason, I looked at the eBook Journaling with Lisa Shea, which is really a collection of eleven of her eBooks on journaling. In the one about gratitude, one of the prompts asks us what we’re most grateful for with respect to our health.

I often worry that I’m deteriorating. In truth, I may or may not be, but I have the health I have now. Here are some things I am grateful for about my health.

1. My mobility. I know, I know, I want it to be better. I wish I could walk with the stamina and speed that my husband can. Then again, he’s much taller and skinnier than I am and doesn’t have a physical disability. Considering this, I am so grateful I am able to walk over 10K steps most days. When I wrote a post on my old blog several years ago about what optimal health would mean to me, this was one of the things I listed.

2. My energy level. Generally, difficult as I may find it to see, this has improved much over the past several years. Ten years ago, I struggled greatly to even write one blog post a week. I also slept on average ten to twelve hours a night, sometimes more. Now, I rest for about an hour in the afternoon sometimes, but not always. I also don’t need the long nights I apparently needed some years ago.

3. My sleep. I said above that I need less sleep now than I needed some years ago. Part of the reason may be an improved sleep quality. Though my sleep is still disrupted a lot, it’s much less so than it used to be. I used to snore horribly. Either my husband got used to it or I snore a little less now. I think it’s the latter, as I rarely wake up gasping for air now.

4. My mood. I still experience meltdowns and emotional outbursts almost on a daily basis. However, it’s been months since I’ve been depressed. In general, I feel my mood is pretty good overall.

5. My skin health. Many people experience dry skin in the colder months and it isn’t helped by the need to wash your hands like all the time. I, indeed, do have dry and eczema-prone skin sometimes, but haven’t had a flare up of this since last summer. My hands feel remarkably smooth compared to others’.

6. My heart health. It could definitely be better, but it could also be a lot worse. My resting heartrate is within the normal range and so is my resting blood pressure. As regular readers may know, I had a scare related to possible hypertension last October. The doctor reassured me that it’s okay now.

Of course, there are still areas in which I could improve my health, but overall, I’m pretty content.

What are you grateful about with respect to your health?

My Random Musings
loopyloulaura

Also joining in with Grace and Gratitude. This linky really inspired me to write about gratitude.

#WeekendCoffeeShare (March 7, 2021)

Okay, I’m so very late with my #WeekendCoffeeShare post for this week. Sorry! I was in Lobith yesterday and, though I returned already before noon today, I really didn’t find the time to write. I have so many things I want to write about and yet none come out clearly onto the screen. So let me just ramble. There might still be coffee here or you can grab a soft drink. Let’s chat.

If we were having coffee, I would tell you that I’m still struggling with hypervigilance and emotional flashbacks. If anyone is familiar with complex PTSD, I’d love to know your tips for dealing with these. I mean, I’m constantly on high alert and on the edge of flight.

It doesn’t help that I have no idea what triggered me. I mean, could it still be the dentist’s appointment at the main institution last Tuesday? I’m pretty sure that’s not it. In any case, I’m trying to cope the best I can.

If we were having coffee, I’d share that, on Friday, I showed a staff a case video from the Center for Consultation and Expertise on a woman with severe (complex) PTSD. It helped clarify some of the issues I’m facing.

If we were having coffee, I’d share that I had a bit of a meltdown when I came back to the care facility from Lobith early this afternoon. I wasn’t happy about the student staff doing my one-on-one this evening. Thankfully though, the staff reassured me that the student or I could call for another staff if needed. It wasn’t needed ultimately.

If we were having coffee, I’d then try to lighten the mood by talking about the weather. It’s cold here for March, with tempts dropping below freezing at night. Still, it’s quite sunny. The weather forecast predicts rain for all of the upcoming week though.

If we were having coffee, I’d share about my husband’s great chicken wraps that he’d made me yesterday. They were especially great with tabasco sauce in them.

If we were having coffee, lastly, I would proudly announce that I got in over 10K steps five days in the past week and over 12K steps on three of those. Today and yesterday, I didn’t do so well, but I still got in over 5K steps each day. That’s what my husband says the scientific community has calculated as the real recommended minimum step count each day. My husband said the 10K mark was made up by the inventor of the activity tracker. Regardless, I did average over 10K steps over the past seven days. Unfortunately, my sister still beat me on Fitbit. Oh well.

What’s been going on in your life?

A Productive Wednesday Morning

I got up pretty early this morning at a little past seven o’clock. It wasn’t that I wanted to get up this early, but I just couldn’t go back to sleep. Having gotten up so early did cause me a bit of stress later on, as it’d mean I’d have to wait several hours before day activities started. Thankfully, I made it through.

At ten o’clock, my day activities staff came to my room. I had already had coffee with one of the morning staff, but was happy to have another cup.

Then we went for a walk. My knee still hurt, so I had to walk relatively slowly and got in only seven active heartrate zone minutes. I’m trying not to beat myself up about that.

On the way back to the facility, I asked my staff whether we could call a woman who lives in one of the other homes that afternoon. I used to hang out with this woman a lot when the day center still operated as before COVID. My staff suggested we check whether she was at the day center in her home’s assigned room or outside and she was. I had a socially distanced chat with her and her staff. It was good to see she was doing pretty well.

Then I returned to my home. I told my staff I wasn’t ready for resting yet and wanted to do something. She suggested we do some beading. I made the below keychain.

Purple, heart-shaped keychain

While we were working on the keychain, the physical therapist came by. She said that my knee pain is probably from my not wearing my shoes while indoors. My shoes have arch supports in them, which I do need when walking at all times apparently, not just outdoors. I struggle to wear my shoes when not going outside though, because I cannot tie or untie my laces independently and the shoes don’t feel comfortable when I’m sitting. The physical therapist made some suggestions, but I got majorly overwhelmed. She then went out of my room to discuss her suggestions with just my staff.

Then my staff and I went into the kitchen, where another staff was making hamburgers. I had two buns with a hamburger on them for lunch. I also had some bell pepper, tomatoes and cucumber slices, as well as a kiwifruit. It was delicious!

My lunch of hamburgers

Overall, I’m pretty pleased with how I coped this morning. I wasn’t expecting the morning to be this productive when I got up. This afternoon, I plan to relax a bit with my new essential oils in my diffuser. I’m really curious about the cardamom in particular.