#WeekendCoffeeShare (September 2, 2023)

Posted on by Astrid

Hi everyone on this first Saturday of September. I’m joining #WeekendCoffeeShare, even though it’s waaay too late for me to have coffee. That is, I don’t usually feel the energizing effects that strongly, but I am sure the staff won’t let me have a cup of coffee anymore. Or anything to drink except for water, truthfully. So let’s have a glass of water and let’s catch up.

If we were having coffee (or a glass of water, but I always start my paragraphs like this and even my saying that is a cliché), first I’d share about the weather. We’ve had rain, clouds, some sunshine and daytime temperatures usually around 20°C. Today, the daytime high was 23°C and next week, we might even get temperatures as high as 28°C.

If we were having coffee, next I’d tell you about my movement. I haven’t been exercising as much this past week as I did last week and today I saw in my trends in the fitness app that my exercise has decreased. Of course it has, you’d say, if I haven’t been exercising as much this week as last week, but the trends compare the past 90 days to the past 365 days. I try not to care, even though I did sign up for a month-long challenge in the Challenges app for September.

Yesterday, when on a walk with my assigned staff, we compared data, since she also has an Apple Watch. I’m glad my cardio fitness level wasn’t much lower than hers. I mean, I would’ve felt bad for her if both of ours were low, but mine is in the below-average range.

If we were having coffee, I’d tell you that, on Thursday, my assigned staff and I went out to have lunch together. She’s off on vacation for the rest of September and I’ll (most likely) move this month, so we won’t see each other again. We both had a large salad, mine one with chicken, of course. We both also had a heavenly caramel coffee.

Today, I decided to gift my assigned staff the blue polymer clay unicorn with Hotfix rhinestones on it. I remember creating my very first unicorn here at the institution with her. I originally hadn’t intended on giving my polymer clay creations away, like I had done when moving out of the care home in Raalte, but then again if I take them with me to the new care home they will probably break during transport. I’ve seen a little too many staff come and go here to have a piece for everyone, but I have something for the ones I see most often.

If we were having coffee, I’d share that I’ve been collecting books of journaling prompts once again. Amazon.nl now allows customers to pay for Kindle books with their bank account, for which I’m extremely grateful. Until last Monday, you could only pay for digital products with a credit card, which I don’t have, so I only downloaded free Kindle books. Now you still need a credit card for other digital products, but eBooks are an exception. And, of course, the first book I bought was a collection of journaling prompts. I also bought a collection of essential oil diffuser recipes. Each book cost under €3. I do need to make sure I won’t spend my money compulsively, as a search for “journaling prompts” in the Kindle store returns over 3,000 books. Then again, a lot are free at one point. For this reason, I acquired three new books of journaling prompts over the past few days, only one of which I paid for.

Lastly, if we were having coffee, I’d ask you all to cheer on my oldest niece as she starts school on Monday. She will be four on the 10th. I need to pop into the toy store tomorrow to buy her a present, as ordering something online won’t get it here on time for me to send it on to her.

How have you been?

Youth: Issues Specific to Intellectually or Developmentally Disabled Children #AtoZChallenge

Posted on by Astrid

Hi everyone. Phew, we’re almost done with the #AtoZChallenge. For my letter Y post, I thought I’d talk about issues specific to youth with intellectual and developmental disabilities.

Children, disabled or not, by definition, are still growing and developing towards their full potential. As a result, most developmentally and intellectually disabled children and young people will not qualify for long-term care. They are, instead, served under the Youth Act, which falls under the local government. This means that their parents or carers will need to reapply for care at least every year.

Most children with intellectual or developmental disabilities will go to school. Like I mentioned before, those with milder disabilities, due to “suited education”, are forced to go into mainstream classes. This particularly applies to autistic or otherwise neurodivergent children with an average or above-average IQ, but when doing research for this post, I found out that children with a mild intellectual disability (IQ 55-70) won’t qualify for special ed unless they have additional needs too.

Children with moderate to severe intellectual disabilities and those with mild intellectual disabilities and additional issues will usually go into special education. Usually, these schools have different educational levels depending on the severity of the child’s disability. I heard that some schools allow pupils in the highest level to take part in the lowest level regular school, called practice education, part-time. Practice education has only recently become part of the regular, diploma-earning educational system; until I think last year or the year before, pupils in these schools would just earn a certificate.

The most profoundly disabled children, who are deemed “unteachable”, will go to day centers for children and adolescents with intellectual disabilities. Some of these day centers do have a “school prep” group too.

I feel very strongly that “suited education” and the Youth Act leave behind a lot of children with intellectual and developmental disabilities. I mean, the government wants to cut the youth care budget even more and, though I understand this given the fact that one in seven children nowadays receives a form of youth services, this should not affect children with genuine intellectual and developmental disabilities. Like myself twenty to thirty years ago, though in my case being left behind was due to my parents’ denial.

The Wednesday HodgePodge (August 17, 2022)

Posted on by Astrid

Hi everyone. I’m joining the Wednesday HodgePodge again. Here are Joyce’s questions.

1. August is National Back To School Month…how does that make you feel? Share a back-to-school memory.
I don’t really feel much regarding back-to-school time, as I’m not in school anymore (it’s been 17 years since I graduated high school) and my nieces are too young to be in school. I’m so glad to be out of school though.

A back-to-school memory? My first day at the school for the blind I spent fourth till sixth grade at. We went to church to mark the beginning of the school year, as it was a Christian school. I found it all very strange, having never been to a church before, since my parents are atheists. I’m pretty sure I fell asleep during the service though.

2. Something you’ve learned in “the school of life”?
People who get paid to have any sort of relationship with you, won’t stick around for you, so you have no reason to stay for them either. Yes, I’m referring to my wish to transfer to another care facility here.

3. Three words to describe your current mood.
Unquiet, determined, sad.

4. A summer food you’ve eaten too much of/are tired of? A summer food you haven’t had enough of?
There isn’t any summer food I’m really tired of, though today I turned down another ice cream cone because I’d had three in the past week already. A summer food I haven’t had enough of? Summer fruit!

5. What small stuff do you sweat that you know you shouldn’t?
I tend to get very easily frustrated, so quite a lot, but lately I’ve also tried to solve small problems more rather than just not caring. An example are air bubbles in my clay. The reason that I do try to solve the problem now, is that I know how to (to an extent) rather than just having to wait for my pieces to be cured and then deciding whether they go in the trash or are just about good enough to be displayed. It’s a tricky balancing act of trying not to sweat the small stuff but also trying not to be careless.

6. Insert your own random thought here.
Yesterday, we had daytime temperatures of 30°C. It isn’t expected to get this hot again anytime this year. My husband, not surprisingly, started the Christmas prep WhatsApp group with his family. He always does in mid-August. I, too, before we got to discuss this, started reading a winter-themed chapter book.

My First Crush

Posted on by Astrid

Hi everyone. Today’s topic for Throwback Thursday is first crushes. Let me share.

My first crush was a boy called MJ (that is, he had a double first name). I think he was a year younger than me. I was ten at the time and in the fifth grade at the school for the blind. Back then, we would always say we were like 90% in love with the other one. I don’t know where the percentages came from or if kids in other schools used them too. I certainly remember telling MJ that I had a crush on him and at that point, several kids in his class pushed me to kiss him. I gave him a quick kiss on the cheek but till this day feel intense shame about it.

I don’t remember feeling heartbreak when that “relationship” ended. It only lasted for a couple of weeks anyway. I do know that MJ passed away when I was in high school, something I didn’t find out about until many years later.

My second crush was a girl named Layla and I’m not even sure I’m spelling that right. I was fourteen at the time and had only met her once. She was in the grade below me at secondary school. At the time, I was still about as clueless about love as I’d been at age ten. After that first encounter, I never met Layla again and so I never told her I had a crush on her.

For years, I’d have fleeting crushes on various girls and boys who paid me attention, but I never told them. I never quite fantasized about having a husband (or wife, since same-sex marriage is legal here) when I’d grow up. In fact, when my now husband told me he was in love with me, I wasn’t so sure whether to reciprocate it. I did like him, but did my feelings go beyond mere friendship plus a little puppy love because he was paying me attention? In the end, it didn’t really matter, as our relationship and now our marriage is a happy one.

Learning to Swim

Posted on by Astrid

Today’s topic for Throwback Thursday is “learning to swim”. There are no specific questions, but we are allowed to interpret the topic as we see fit. Here goes.

I got my first swimming lessons at the special school for the visually impaired I attended from first up to third grade. I, however, was very scared of the water and particularly of the deeper end. I vividly remember my teacher taking me to the deep end and my anxiously asking her if she could stand there. She was quite tall, but even so, she couldn’t. That scared me intensely.

According to my parents, my teachers were just overprotective, so my parents put me in swimming lessons at the pool close by their home. I didn’t need to start at the really shallow end, as I had had some swimming experience already, but could start at the 90cm deep second pool. Within a week, I was moved to the 110cm deep third pool, even though I think I protested.

It took me several more years before I earned my first swimming diploma. This first diploma at the time required students to be able to do breaststroke and backstroke, to swim one pool length with loose-fitting clothing, to tread water, etc., but it did not require students to swim underwater.

By the time I got my diploma, I had transferred to another school for the blind, where I had once again been put into the relatively shallow pool. I proudly showed my teachers my swimming diploma that I’d earned at home and was reluctantly transferred to the deep end.

From earning my first swimming diploma to my second, it took me only about eight months. The second diploma required students to swim 7m underwater. There was no way I could see whether I’d passed the 7m mark, so I had to guess. According to my parents, I swam about 11m.

After that, I had swimming lessons for the next three years that I was at various schools for the blind, but I never earned any more diplomas or certificates. The reason was, once again, the fact that my fear started to act up. After all, I wouldn’t swim under a mat. My parents, however, were okay with it this time. After all, my sister never moved beyond her second swimming diploma either.

I now can swim in a pool or lake. When my parents took me and my sister on vacation to Vlieland, I would also sometimes swim in the North Sea. I doubt I’d be able to save myself should I get underwater unintendedly though.

Childhood Creative Endeavors #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter C post in the #AtoZChallenge. Today, I initially wanted to write about cardmaking, but I don’t feel like that now. Instead, I’m going to talk about my creative endeavors as a child.

As a young child, I had a bit of useable vision that allowed me to use colors sort of appropriately (that is, as appropriately as a sighted child my age could). I loved learning about the names of unusual colors. I remember, in particular, learning that the sixth color of the rainbow is indigo, which I was fascinated by.

I could do some basic drawing too. In Kindergarten, I went to mainstream school with hardly any accommodations. I remember having to color inside the lines of a piece of paper, giving each little shape within the drawing a different color and not leaving any white. When, several years later, I looked at it, I saw considerable white. I have no idea how I compared to the other kids though.

By the age of eight, I’d lost the ability to tell most shades of green and blue apart, but I continued to love drawing until I was about age twelve. Then, I realized I’d lost so much vision that it’d make no sense. Even so, before then, my drawings up till that age remained comparable to a Kindergartner’s in quality.

When I went to special education, I was taught other creative activities. I remember making at least a dozen origami frogs in second grade. However, my teacher did at one point write on my report card that she wished she were two teachers so that she could teach together. In other words, I required so much attention that she’d really need to split herself in half to be able to teach the class too.

My parents bought a pottery kiln when I was about eleven, so I also tried my hand at ceramics. I wasn’t too good at it, leaving fingerprints on my work all the time, but at least I enjoyed the process.

Writing also was a lifelong passion of mine. I can’t, in fact, remember a time when I didn’t enjoy writing. At first, I’d make up stories to go along with my drawings. As a tween and teen, I wrote stories that were somewhat or very much related to my real life. My greatest achievement is a work in progress, a young adult novel by the working title of “The Black Queen” about a teen whose mother has multiple sclerosis. This story, though it had autobiographical elements, was inspired by a conversation I overheard about a classmate.

Did you love creative activities as a child?

Report Cards and Progress Reports

Posted on by Astrid

Today’s topic for Throwback Thursday is report cards and progress reports. I am going to write mostly about traditional report cards in school, not the many psychological reports I had written about me during my childhood and adolescence.

Looking back, I was a good student academically, but it didn’t show on my report cards during elementary school. I attended special education and my teachers didn’t really believe I was more than just average intellectually. In fact, when I had a nationally standardized test in the sixth grade, the school’s principal called my parents in utter disbelief to tell them I had gotten a very high score. My father was like, duh, I told you so.

My behavior did get reported on. Though I had severe social and emotional challenges, I always got average ratings on those things that mattered to the teachers. I remember one day feeling disappointed when my rating on “correct behavior” had been lowered from the previous report card even though as far as I knew I hadn’t made mistakes about addressing the teachers formally.

In high school, I did get actual grades. Not letters here in the Netherlands, but numbers between one (worst) and ten (perfect). In my first year at grammar school, I got a lot of tens. These did get my classmates envious, so sometimes I’d argue for a lower grade. For instance, I had a ten on a drawing theory test and I hadn’t done any of the other drawing assignments because, well, I’m blind. Initially, I got a ten on my report card because that was the only grade I had. My classmates protested and my father and I agreed. Then the grade got lowered to an eight, reflecting the fact that I’d gotten a ten on that test and a six (barely passing) on drawing in general just for participating in the class.

Once in my third year, I was rebelling and hardly studying at all, so I did earn a few ones. One time, in my fifth year in high school (eleventh grade), I got a one in French for not doing an assignment because I’d had to do it with a partner and I hadn’t been able to find a partner, because I’d felt too anxious to ask anyone.

I wasn’t really punished harshly for failing grades or rewarded for good grades, but I did know I was expected to excel. Often, my parents made me do extra work, particularly before I was mainstreamed at grammar school.

My best subjects in elementary school were math and geography. In high school, those changed to languages, because high school math requires much more non-verbal intelligence and insight, something I don’t have. My best grade on my final high school exam was in English.

Now, as an adult, I do have an English-language blog, but I don’t think I learned to blog in high school. After all, despite the fact that grammar school is the highest level high school, I really wasn’t all that good at English after graduation. Other than English, I don’t use anything I learned in school really. I mean, during my year in special ed secondary school, textile arts was my worst subject and now I like to do macrame. Go figure.

Too Many Toys

Posted on by Astrid

Today’s topic for Throwback Thursday is toys and pastimes. The first question Maggie asks in her post is: “Did you have a lot of toys?” The short answer would be that yes, I was privileged to have quite many toys, but I must say I wasn’t so spoiled that I always got the latest trendy toy.

I probably shared this story before, but I played with toys quite a lot until I was at least eleven. By that time, my parents and teachers were looking into options for secondary schools and their opinions couldn’t have been any different: while my parents wanted me to go to mainstream grammar school, my teachers felt special education at their low-level secondary school for the blind, preferably residential, was in my best interest. My mother one day took me for a “mother-daughter walk” explaining the school’s stance and said that the reason they felt I needed residential special ed, was my behavior. That, in turn, she attributed to my having too many toys. The logic, I never quite understood, but it must’ve been something like my being so spoiled that I somehow felt entitled to display challenging behavior.

She went on to explain that, at the residential school, I would only be allowed one doll and one soft toy. She had given me a Barbie doll for my birthday earlier that summer, but told me she regretted it as soon as she received the school’s report. Needless to say, I always felt weird about playing with dolls from that age on, even though I continued to play with toys and dolls and everything until I was at least fifteen.

Fast forward some ten to fifteen years. When I was in my mid-twenties and diagnosed with dissociative identity disorder, I felt it might help my littles (child alters) if we had toys again. I first bought a box of old Barbies for €70 on a marketplace site. That wasn’t a wise decision as, though the box did arrive, the Barbie dolls were in such bad condition I eventually threw them away. I then decided to buy a couple of new ones at a toy store, but the littles hardly played with them. They prefer soft toys.

Speaking of which, one of Maggie’s questions is whether you still have any toys from your childhood. I don’t, as they’re probably all at my parents’. However, I do still have my stuffed whale Wally, whom I got when I left the NICU at three-months-old. I still sometimes sleep with it.

Wally

Did you have many toys growing up?

Lifelong Learning

Posted on by Astrid

I discovered 10 on the 10th last month, but didn’t feel like joining in at the time. Yesterday, a new edition went live and the topic is lifelong learning in honor of back-to-school season. I’m joining in today, as I loved the questions. Here goes.

1. How old were you when you started school? Did you attend pre-kinder and/or kinder or go straight into first grade?
I started in preschool at age three and in Kindergarten at age four. Here in the Netherlands, Kindergarten takes two years, although the first year (when children are four) wasn’t mandatory back in my day. It is now.

2. Were you a good student? What was your favorite subject?
In terms of academic performance, I was above-average in most subjects once I was properly educated. I added that last bit because, at my first special education school for the visually impaired, where I attended first till third grade, I was a little behind in reading and writing due to several factors. These included poor teaching and the fact that I didn’t start learning Braille till second grade, so had to pretty much start over learning to read and write then.

In terms of behavior, I did okay. I am autistic (undiagnosed at the time), so I did have my challenges, but I wasn’t the type to stir up trouble in school on purpose.

My favorite subject was math for most of elementary school and my first year in secondary school. Then, once I was mainstreamed at a high level high school and math became one of my hardest subjects, I started to like languages more. At the end of secondary school, my favorite subject was English.

3. As a child, did you take music lessons? Or play a sport? Do you still play an instrument now?
No, not at all! Contrary to the stereotype of blind people, I’m not musically-talented at all. Neither am I good at sports. I did attend a children’s choir for some years though, but mostly just hummed along.

4. Did you attend any kind of training or classes beyond high school? If so, what did you study? Did you wind up working in a profession or job for which those classes or training prepared you?
I went to college for one year to study applied psychology and to university for two months to study linguistics. I did get my foundation (first year certificate) in applied psychology, but didn’t get any credits in the linguistics program. Oh, I did take some classes at Open University (psychology once again) in 2009. I don’t need any education for what I do now (day activities for the disabled).

5. Have you taken any personal growth or adult education classes for fun? During the year that was Covid, did you home school, learn a new app to work from home, teach yourself to do something you might have paid someone else to do for you?
Uhm, not really. I am mostly self-taught where it comes to crafts and stuff. I would really like to take some classes in maybe crafting or writing someday, but not sure.

6. What would you like to learn how to do that you don’t know how to do already?
Right now, obviously I’d like to learn more crafting techniques, particularly polymer clay.

7. Name something that you learned easily. Then name something that was a struggle for you to learn to do.
As a child, reading print came easily to me. I taught myself to read at about age five. Reading Braille, on the other hand, was a struggle, mostly because I didn’t accept the fact that I was going blind.

8. What’s the last thing you remember learning? What kind of learner are you: visual, auditory, hands-on/kinesthetic, verbal, logical/mathematical?
The last thing I learned was moving a polymer clay slab from the work surface without distorting its shape (too much). I am probably a mix of a kinetic/hands-on and a verbal learner. I don’t do well with spoken instructions though. Rather, I need to read them.

9. Hard to teach an old dog new tricks, school of hard knocks, pass with flying colors, learn by heart, burn the midnight oil, pull an all-nighter, play hooky – which of these expression best fits your life lately? Why?
Pull an all-nighter, I guess. I’m often up late hyperfocusing on my latest obsession (currently polymer clay) and learning new things about it.

10. What is something you’ve learned from past mistakes?
To follow my own plan rather than relying on what others want me to do. As regular readers may know, I suffered autistic burnout in 2007 when at university trying to live on my own. This was what my parents wanted me to do. I ended up in the psych hospital only to be kicked out 9 1/2 years later almost with no after care even though I had hardly improved, only because I’d met my husband and my psychologist figured that if I was married I should be able to live with him. I didn’t cope and thankfully successfully fought for long-term care. This has been the best decision of my life.

What have you been learning recently?

Final Exams

Posted on by Astrid

Today, this year’s high schoolers should have heard whether they passed or failed their final exams for graduation. This inspired me to use one of Mama Kat’s writing prompts for this week, which is to write a post on the word “final”.

It’s been sixteen years since I graduated from high school. At the time, mobile phones were already in use, but they weren’t as popular as they are now and smartphones didn’t exist. Nonetheless, we were instructed not to text each other that we’d passed. After all, those who had failed would be called first and then those who had passed their exams would be called in alphabetical order. Texting each other would ruin the surprise effect. All of us would receive a call between 12:00 and 1:00PM. Since my last name starts with a W, I knew that I’d either be called at five past twelve if I’d failed, or at close to one o’clock if I’d passed.

Even though I had gotten pretty good grades on my school-based tests, which would make up half of my final grade, I had no idea how I’d done on the final exams. You could check your answers with a grading sheet available online once the exams were over. I didn’t do this with most subjects, I think. I did it with English though.

I at the time had an 8.1 out of 10 GPA in English. An 8.5 would be a nine. Though six is enough to pass, I badly wanted the nine. This meant I’d have to have an 8.9 on my final exam. When I checked, I found out that, most likely, I would not reach this. It however also depended on how strictly they were grading. After all, if most students scored lower than expected, they’d use a less strict grading system. If the grading folk were less strict than expected, I could get my desired 8.9.

Once the day we would be called arrived, I sat by my home phone from 11:30 until I was being called. I got called shortly before one o’clock: passed!

We were expected to be at school that afternoon to look at our grades. I had a surprisingly high grade on my geography final. That one had been adapted by my teacher and I’d taken it orally due to my blindness making the regular final inaccessible. As it turned out, the independent review teacher who had sat in on my final too, had been so incredibly impressed with my (quite mediocre) performance that he’d upped my grade. This made me feel guilty, but thankfully none of my fellow students knew.

As for English: the grading folk weren’t so kind this time. I passed with an 8.8, so got an eight out of ten GPA in English.

I, in fact, only got sevens and eights in all subjects, seven eights and eight sevens. This just about meant I wouldn’t be able to get accepted into selection-based college programs. Then again, I wasn’t intending on studying medicine or the like. In fact, now I’m more than grateful that I don’t need my high school diploma for anything anymore. I don’t even know where it is, nor do I care.

Mama’s Losin’ It