What If I Lose My Care?

Posted on by Astrid

Today’s prompt for the Weekly Prompts Wednesday Challenge is fear. More specifically, the organizers ask us to consider whether we ever worry about the “what if’s” of a situation without looking at the positive present. Fear, for me, takes many forms, including post-traumatic stress, in which I relive the past. However, it also includes worrying about the future indeed.

Specifically, I worry about losing my support. Of course, this is a realistic worry in a sense, in that my one-on-one support has only been approved until sometime in late 2023. However, right now it’s only May 2022 and a lot could happen between now and then.

This worry also takes unrealistic forms. For example, sometimes I’m convinced that the psychologist from the psychiatric hospital who diagnosed me with dependent personality disorder to “prove” that I was misusing care, will find out that I’m in long-term care and will report me for care fraud. If she does and if the authorities follow along with her allegation, I will not just lose my one-on-one, but all my long-term care and will essentially be required to move back into independent living with my husband.

In a sense, the fact that this “what if” is my worst fear, does prove sort of that I do have dependent traits. However, dependent personality disorder or dependency in general is not the same as misusing care. After all, I never disputed my psychologist’s claim that I wished to be cared for. What I disputed, is her claim that this wish is unfounded, in that I don’t really need this care.

In a similar fashion, recently I’ve had “what if’s” in my head about moving to another care home. What if the staff there expect me to be much more independent than I am right now? In a sense, one reason I want to move to another care home is to have a better quality of life, a broader perspective. This may include greater independence. But I don’t want to be forced into it.

I am reminded of a question on a personality test I had to fill out for my autism re-assessment back in 2017. The agree/disagree statement went something like this: “Being left behind alone is my worst fear.” I didn’t know how to answer it back then, as I thought at the time that being in serious pain would be worse, so I ticked the “Disagree” box. Then again, at the time, I hadn’t experienced significant time being left to my own resources in at least nine years. Now, I would certainly tick the “Agree” box even though I know it was a red flag for dependent personality disorder. I don’t care.

What if I lose all my care and am left to my own resources? During the same assessment, I had to answer a question about how difficult it would be to stay on my own for a couple of days. I ticked the “Very difficult” box, not the “Impossible” box that I would have ticked now. Then again, if my husband had stocked up on food and I had my computer and phone with me, would it literally be impossible? Hmmm, well… emotionally, yes, it would be.

Learning to Swim

Posted on by Astrid

Today’s topic for Throwback Thursday is “learning to swim”. There are no specific questions, but we are allowed to interpret the topic as we see fit. Here goes.

I got my first swimming lessons at the special school for the visually impaired I attended from first up to third grade. I, however, was very scared of the water and particularly of the deeper end. I vividly remember my teacher taking me to the deep end and my anxiously asking her if she could stand there. She was quite tall, but even so, she couldn’t. That scared me intensely.

According to my parents, my teachers were just overprotective, so my parents put me in swimming lessons at the pool close by their home. I didn’t need to start at the really shallow end, as I had had some swimming experience already, but could start at the 90cm deep second pool. Within a week, I was moved to the 110cm deep third pool, even though I think I protested.

It took me several more years before I earned my first swimming diploma. This first diploma at the time required students to be able to do breaststroke and backstroke, to swim one pool length with loose-fitting clothing, to tread water, etc., but it did not require students to swim underwater.

By the time I got my diploma, I had transferred to another school for the blind, where I had once again been put into the relatively shallow pool. I proudly showed my teachers my swimming diploma that I’d earned at home and was reluctantly transferred to the deep end.

From earning my first swimming diploma to my second, it took me only about eight months. The second diploma required students to swim 7m underwater. There was no way I could see whether I’d passed the 7m mark, so I had to guess. According to my parents, I swam about 11m.

After that, I had swimming lessons for the next three years that I was at various schools for the blind, but I never earned any more diplomas or certificates. The reason was, once again, the fact that my fear started to act up. After all, I wouldn’t swim under a mat. My parents, however, were okay with it this time. After all, my sister never moved beyond her second swimming diploma either.

I now can swim in a pool or lake. When my parents took me and my sister on vacation to Vlieland, I would also sometimes swim in the North Sea. I doubt I’d be able to save myself should I get underwater unintendedly though.

Dealing with Anxious Attachment and Attachment Loss

Posted on by Astrid

Okay, I’m probably giving up on the 31-day writing challenge. I love the prompts, but right now, they just don’t seem to inspire me. I’m not feeling well at all right now. Haven’t for about a week or more. Like I shared in my post on Sunday, I have been feeling triggered by my staff being on sick leave. It’s not just that, of course. The change of seasons with all its triggers to my time in crisis back in 2007, doesn’t help either. The emotional flashbacks are so bad I’m considering asking my nurse practitioner to temporarily up my topiramate. For now though, I’ll write a little about attachment loss and abandonment issues.

When I was first diagnosed with complex PTSD and dissociative identity disorder in 2010, part of the consultation that led to this diagnosis involved an attachment styles questionnaire. I scored highest on the anxious/preoccupied attachment style. This means that I tend to depend heavily on others. I struggle to admit this, but it is true.

As such, I fear attachment loss or abandonment a lot. Most anxiously attached people tend to seek another relationship right away when one ends. I don’t have any exes, since my husband was also my first boyfriend, but I do notice it in other areas. For example, now that my assigned staff is on sick leave, I’ve already been thinking about who will become my assigned staff if she ends up not returning. Which, in fact, is something I cannot get out of my head for whatever reason.

Anxiously attached people also tend to cling to dysfunctional attachment figures far too long. Again, I don’t experience this in my marriage, but I did experience it in the psych hospital. I had an assigned staff who was rather adamant that I become more independent than I could be, but I accepted her as an authority for far too long. Same with my psychologist.

I, thankfully, left that place. However, I do find that something I read while researching attachment loss for this post, makes a lot of sense: the idea that leaving a relationship on paper doesn’t mean being emotionally detached from that attachment figure. Again, not my marriage, but with respect to my care situation, yes, that’s so me! I still experience vivid dreams (not necessarily nightmares!) about the psych hospital. I also still look up things about my former care agencies, thinking maybe I should go back. I still find myself being influenced by what my past care providers said about me, no matter how harmful and wrong. This may be one reason I don’t generally meet the avoidance criterion of classic PTSD, but am rather the opposite: I find myself drawn to things that trigger me. Now if only I could find a way to truly let go of the emotional baggage I’m carrying with me.

My Worst Fear

Posted on by Astrid

This week, one of Mama Kat’s writing prompts is to share one of your fears. I have a lot of fears and phobias, to be honest. I probably would even meet the criteria for generalized anxiety disorder if it weren’t for my autism, which encompasses a lot of worry in itself already. In fact, when my former psychologist had removed my autism diagnosis, she at one point considered diagnosing me with GAD.

She ended up diagnosing me with dependent personality disorder though. And, as much as I used to fight this diagnosis, it fits in some important ways: being left all alone is probably one of my worst fears.

I obviously didn’t tick that box when filling out the screening questionnaires for my independent second opinion after said psychologist’s diagnosis. I also ticked the box for “very difficult” rather than “impossible” on the WHODAS (assessment of level of disability) question on being on your own for a few days. Obviously, that only got me assigned a lower number on level of disability, not a different diagnosis, but I wasn’t aware of this. Besides, my diagnostician was able to see through my not having ticked that one box, so, though she didn’t diagnose me with DPD, she did recommend I work on my self-confidence.

Whether it means I’m pathologically dependent or not, I don’t care though: I fear being left to my own resources. And to be honest, no amount of kicking me in the butt has helped with this so far. Neither have so many years of independence training and therapy. I guess I just need to live with it. And that’s okay at least as long as the authorities aren’t going to see this as a reason to revoke my access to long-term care.

I mean, it’s not just fear. I fear being left to my own resources because I legitimately have no clue how to live my life independently on a daily basis. I can, with a lot of difficulty, perform most activities of daily living, such as showering, brushing my teeth and getting dressed. I now mostly get help with these, because it costs me a ton of time and energy having to do them on my own. For those saying I used to do these things by myself, I would like to add that this came at a cost to my dental health and physical hygiene. But if I really had to, I probably could do all of this. However, where it comes to housework, I’m pretty much lost. I cannot prepare my own food. Like, when I lived on my own in 2007, I ate bread without toppings because I couldn’t put them onto my bread. I wouldn’t die doing this for a few days, of course, and there the “very difficult” answer on the WHODAS may be correct. But it would be my worst fear come true.

Mama’s Losin’ It

Fear Turned to Hope for the Second Coming of Christ

Posted on by Astrid

I have been making a daily habit of Bible reading for the past ten days and hope to continue this habit for a long time still. Sometimes, I squeeze in five minutes of reading just before bed, while on other days, I spend far more time reading the Word.

A few days ago, the daily story (something like a short sermon) on YouVersion was on Christ’s second coming.

“Therefore keep watch, because you do not know on what day your Lord will come. But understand this: If the owner of the house had known at what time of night the thief was coming, he would have kept watch and would not have let his house be broken into. So you also must be ready, because the Son of Man will come at an hour when you do not expect him.” (Matthew 24:42-44 NIV)

The speaker said that this Bible passage had always instilled fear in her as a child, because she didn’t want to be caught with her hand in the cookie jar when Jesus would return. I understand now even as an adult. Indeed, some strict pastors in the past used to go to cinemas and tell believers that they ought not watch worldly movies, for what if Christ returned now?

Then again, God knows us better than we know ourselves. We do not need to hide anything from Him. In fact, this is not possible. He also knows our hearts. This does mean we need to make sure we train our minds to think more helpful thoughts.

The speaker then went on to say that this passage currently inspires hope in her. I relate this to what my husband told me a few days ago: that the people of the Old Testament found their hope in the coming of Jesus. Jesus was their light even before he’d come to the Earth.

Indeed, we as believers can trust that everything will be okay in the end. Christ may not have come back yet, but he will.

Last year, when I hadn’t become a true believer yet, I predicted that everything would be okay in 2021. I based this on the fact that mentally ill people would qualify for long-term care by then, so I would be allowed to go into a care facility then. I already moved here in September of 2019, but I didn’t know at the time that I’d still have to fight a huge battle against my inner demons.

Of course, if Christ comes back in 2021, I fear he might find me in one of my bad moments, but I do hope he’ll make everything okay for me. And I hope so whenever he returns.

I’m linking up with Let’s Have Coffee.

If I Have a Good Day…: Ramblings on Fear of Joy

Posted on by Astrid

Today is a slightly better day than yesterday. I actually managed to make a soap for a staff and also go on walks. I even reached my daily step goal! In addition, I have been exploring my faith.

Still, fear of joy is haunting me. Until a few years ago, I never knew it was a thing. That is, I had read about it on a fellow trauma survivor’s website. That was many years ago already, but I never quite understood what it meant. I never realized I experience it. And yet I do.

I think this fear is intertwined with my core belief that, if people truly knew me, they’d abandon me. It is the exact opposite, in a way, and yet it’s similar too. I mean, if people abandon me regardless, why bother trying my best?

Deep down, I feel that people are going to abandon me if they find out how wicked I am. I also, conversely, feel that people are going to abandon me if they think I can cope fine on my own. And these different views are not mutually exclusive. After all, my psychologist at the mental hospital thought I was bad and manipulative, and yet she also thought I would cope fine on my own.

My belief that people don’t see the real me, the wicked, attention-seeking, manipulative me, makes me want to disappear. It makes me feel ashamed of my needs. But it also causes intense anger, because at the core maybe I want to prove myself right.

On the other hand, my belief that people don’t see my genuine need and think I can cope fine on my own, leads to actual care-seeking behavior. It’s not the same as attention-seeking, but maybe in my current context of a care facility, it’s worse.

I have a sense that both of these beliefs cause me to fear joy. On Sunday, I felt abandoned by the staff. Then on Monday, I was trying to “prove” that I’m more needy and hence more wicked than my staff believe. Today though, I’m feeling slightly better, but this scares me. It scares me because I’m convinced I’ll be expected to cope on my own if I’m managing.

Maybe that psychologist was right after all that I have dependency issues. I worry the staff will agree at some point and this in fact reinforces care-seeking behaviors. Which, of course, is counterproductive.

Ten Scary Yet Fascinating Story Elements

Posted on by Astrid

Today’s Top Ten Tuesday (#TTT) book meme is a Halloween freebie. Here in the Netherlands, Halloween is becoming more popular than it used to be, but it’s still celebrated not nearly as much as in the United States.

I don’t really care for ghost stories or the like. I just can’t be fazed by them. That being said, there are a number of story topics I find scary. Yet most of these I also find fascinating.

1. Murderers. It’s interesting in this respect that I don’t often read thrillers or crime fiction, as I do love crime podcasts. I find it fascinating to understand what makes murderers tick, but I also find it pretty scary.

2. Epidemics. Okay, I haven’t read any book about an epidemic so far, except for an educational historical children’s book about the bubonic plague. That being said, I find it fascinating and scary at the same time when I come across books with this topic. I recently heard about a book by Dutch thriller author Tomas Ross about a fictional pandemic. The book was originally published in 1987 and was set in 1996. The book was recently republished because Ross’s pandemic bore interesting similarities to COVID-19.

3. Strange neurological diseases. I used to be fascinated by Oliver Sacks’s books, but still found them a little scary. The same goes for Lisa Genova’s Inside the O’Briens (see my review). That one really got me worried even though I have no reason to think I might develop Huntington’s Disease. Also, I remember once watching a documentary on a disease called fatal familial insomnia. It’d almost be funny to say I had trouble sleeping afterwards.

4. Medical stuff that doesn’t go well. I am fascinated by intriguing medical stories, but they also scare me, particularly when something goes wrong.

5. Poison. I find it generally fascinating to learn about how poisons work, but still I find it incredibly scary when someone in a story is poisoned even when they survive.

6. Dictatorships. This is one reason I have a love-hate relationship with dystopian novels. I loved Brave New World but still haven’t gotten down to reading 1984 and don’t think I ever will.

7. Insects. And snakes. And other dangerous animals. When I had a Netflix subscription, I loved watching 72 Dangerous Animals and the like. I am also still looking forward to reading Hatch, the sequel to Kenneth Oppel’s Bloom. Still, the topic does scare me.

8. Locked institutions such as prisons, insane asylums, etc. Particularly if strange/creepy things happen there. Like, I still want to read The Institute by Stephen King, but I’m not sure it might be too scary.

9. Cults. These are really scary and yet fascinating in a similar way that dictatorships are.

10. Nuclear weapons. Okay, I haven’t read any books on this topic, but I find the topic very frightening (of course) but also fascinating. I remember listening to Dutch historian Maarten van Rossem’s audio lecture on the atomic bomb some years ago and finding it so intriguing to know exactly what time the bomb exploded over Hiroshima.

What “scary” topics do you find fascinating in books or other media?

Friendly Fill-Ins Week #119

Posted on by Astrid

Today, I’m wanting to write but am feeling terribly uninspired. A lot of thoughts float through my mind, but none are clear enough to capture on the page. I’m noticing how I’m not as active in my writing endeavors as I was when I started this blog. I hope this doesn’t mean the blog turns as inactive as my other one.

Anyway, to get me to write about something, I’m participating in the Friendly Fill-Ins again. The questions are:


  1. ______________________ brings out the best in me.

  2. ______________________ makes me grumpier than Grumpy Cat.

  3. If money grew on trees, I would _________.

  4. I have a fear of _________.

1. Laughter brings out the best in me. My husband and I have a lot of inside jokes that we together laugh about. This truly helps me feel a connection to him. I also love laughing with other people, as laughter definitely helps me forget my inner turmoil.

2. The coming of fall makes me grumper than Grumpy Cat. Yeah, I know, it’s part of the cycle of life, but I just hate the gloomy fall weather, rain and darkness.

3. If money grew on trees, I’d wish I coud climb them. I’d love to climb trees once again anyway, but with my neither terribly youthful nor athletic body, I’m pretty sure I can’t. That being said, maybe the money would fall off the trees like apples. That would be awesome.

4. I have a fear of too many things. Abandonment, criticism, being left alone. These are my more abstract fears. Other fears are primarily focused on my health, such as a phobia of poison. This phobia isso bad that I wouldn’t get onto the balcony of my husband’s and my old home because there was a poisonous plant there.

How about you? What brings out the best in you?

Share Your World (August 13, 2018)

Posted on by Astrid

Oh wow, now that I’m taking off with this new’ish blogging adventure, I keep discovering new challenges to participate in. I had seen posts titled Share Your World on other blogs, but never took the time to actually read those posts, so I never found out about the challenge. I did read one today and wow, what an amazing challenge. The idea is that Cee, the challenge organizer, provides four questions which you then answer on your blog (or in the comments on her blog). This week, the questions are very inspiring. Here goes.

A class you wish you would have taken?
Too many to mention. When I was planning for college in high school, I was thinking of studying something in the humanities field, such as Dutch, English or history. I ultimately officially (as in, for yearbook purposes) settled on English, but never actually took an English college class. Several years later, I studied linguistics instead – for two months. I still wish I would’ve taken the language acquisition class I dropped out of after only a week.

I also wish I’d actually finished more psychology classes. I started on five or six of them at Open University, but only actually finished two.

And then there are the countless creative writing courses I’ve looked at on school sites but never took. Oh and I would reallly like to learn more about social work someday. Oh and alternative medicine. Oh and … you get the idea.

Are you scared of heights?
No. I remember crossing a hanging foot bridge with my husband one day several years ago, unaware that he was afraid of heights. I felt mostly scared because he was and I had to depend on him to keep me safe.

Are you a good cook? If so, do you consider yourself a chef?
No, not at all. I could probably cook a simple pasta if I really had to, but I haven’t actually cooked a meal in years.

What did you appreciate or what made you smile this past week? Feel free to use a quote, a photo, a story, or even a combination.
I try to appreciate something everyday. That being said, what comes to mind now is my husband bringing me a delicious bakery sausage roll all the way from a town about 70 miles away where he’d had to drive to in his truck. This happened on Thursday or Friday and I didn’t even include it in my gratitude list.