Truthful Tuesday: This or That

Posted on by Astrid

Good evening all. I am finding that I struggle to keep the motivation and inspiration for so-called quality content. That doesn’t matter, as it’s my blog and I don’t write for my stats. That can’t keep me from being slightly frustrated by it though.

Today I’m participating once again in Truthful Tuesday. The questions this time are a series of rather lighthearted this-or-that choices. I like that! After all, we just heard here in the Netherlands that we’re in lockdown at least until February 9 and curfews or other harsher measures are being discussed. Still, I am so lucky to live here.

Anyway, here goes. I’ll explain some where I can.

1. Coffee or Hot Tea?
Coffee! I do like hot tea on occasion, but only green tea without lemon or other yucky additives.

2. Soda or Iced Tea?
I’m assuming that soda is always carbonated, so then I’d say iced tea. I prefer non-carbonated soft drinks though.

3. House or Condo?
House just because that’s what my husband and I have at the moment. I don’t mind living in a condo though.

4. Pie or Cobbler?
Pie! I had honestly never heard of cobbler and the first translation Google came up with had nothing to do with food. However, the second one made it pretty clear to me I prefer pie. In fact, I can’t stand cobbler.

5. Cornbread or Biscuits (The US kind)?
Cornbread. I have no idea what U.S. biscuits taste like, but I do like cornbread.

6. Computer or Smart Phone?
I honestly can’t do without either. Does that sound weird? I mean, of course I can do without them, but if I want to accomplish everything I do on a daily basis, I certainly need both.

7. Hotel or Camping?
Hotel for sure. As a child, I often went camping with my family, but it got harder the more sight I lost. Now I don’t really think I can do it.

8. Swimming Pool or Ocean?
Swimming pool. I can swim in a lake or the ocean, but I don’t like it nearly as much as I like swimming in a pool.

9. TV Shows or Movies?
TV shows. I don’t have the attention span to follow a movie.

10. iOS (iPhone/iPad) or Android (Samsung, LG, et. al.)
Definitely iOS. It’s far more accessible for blind people than Android, although Android developers are making progress too. I started using a smartphone before Android could be used by not so tech savvy blind people. Though I might be able to make the transition to Android now, I just won’t.

If I Could Turn Back Time… #Blogtober20

Posted on by Astrid

Today’s prompt for #Blogtober20 is “If I Could Turn Back Time”. I think we all would do some things in our past differently if we could. I certainly would.

I mean, when I was in the psych hospital from 2007-2017, I regretted almost every step I took or didn’t take. My last psychologist was right in a way that so many places to live had passed that I’d turned down. I had turned down a shelted living place for the mentally ill, a workhome for autistics, a training home for autistics, etc. They were not suitable places for me and I completely understand I decided not to take the step. However, I particularly completely regret the step I did take to move to that last psych ward in 2013. Most of the places I’d turned down, seemed more suitable in hindsight than that last unit.

Still, now that I’m in a suitable place, I can see why the things happened the way they did and I made the choices I made. None of the places offered to me back in those early years in the psych hospital were as suitable as my current care facility is.

For the most part, this boils down to them being psychiatric living and/or treatment facilities rather than those serving people with developmental disability. You see, here in the Netherlands, autism is seen as a psychiatric condition if you have an IQ above 85. And in case it isn’t clear, the care approaches of psychiatry and developmental disability differ significantly. In particular, all psychiatric facilities are aimed at people developing their independence, or as they call it “rehabilitation”. I find this particularly unsuitable an approach to me.

Looking back, I maybe should have accepted the very first placement offered to me: a treatment unit and independence training home for autistics. Maybe the staff would’ve recognized my needs there. Or maybe not. Maybe I should’ve gone to the workhome. At the workhome for autistics, the staff did understand I needed more support than they could offer. They tried to help me and my staff find another place for me but came up with a facility for people with intellectual disability. The staff at the psych unit at the time were very understanding of my needs, but they still felt an intellectual disability place wouldn’t be suitable. You all know that I beg to differ.

To make a long story short, I’ve had quite a few regrets, but in the end, my life is good the way it is now. And that’s what counts!

#Blogtober20

Freewrite on My Transition Into Long-Term Care

Posted on by Astrid

Yikes, in less then a week, I’ll be in the care facility in Raalte. It’s exciting, but of course it is also scary. I have been planning on writing more about the transition. In fact, I have Mari L. McCarthy’s 22-day transitions journaling course. I had it already before I moved in with my husband, but never quite used it then. I’m not sure I’ll use every prompt this time either. The day 1 prompt is to freewrite on your hopes and fears and such re the transition. Here goes.

I’m really excited to go into long-term care. I’ve been looking forward to it for almost a year. However, now that it comes close, I’m second guessing myself.

I mean, am I not happy with the situation as it is now? The honest answer is “No”, but does that relate to the situation or to me? As a fellow patient on the locked ward once said, you take you everywhere. As such, I need to be really clear that I’m not just depressed because I suffer with a mental illness. I need to separate what is my depression that just is from what is my unhappiness with living semi-independently.

Besides, am I truly unhappy? My husband said this time in my life was perhaps the happiest for me, judging by his observation, since he first met me in 2007. Then I must counter it’s perhaps the least unhappy time period in my life.

I really hope I’ll be able to have a happier life living in long-term care. I know I often feel very depressed when alone and that’s not a time my husband sees me. The times I have no-one to rely on, will most likely lessen a lot, but having my own room means I’ll still be able to have alone time.

I fear, however, that I’ll be understimulated in long-term care. One of the things the behavior specialist from the blindness agency wrote in her report on me from observing me at day activities, is that the activities are not challenging. I do simple puzzles, construction play and such. If that’s all I’ll be required to do at my new day activities, I’m sure I’ll get bored. Part of me says that we’ll find a way to deal with this and that I need to be content to get the care I need. Another part says that I shouldn’t stop desiring stimulating activities just because I am in long-term care.

I also fear that going into long-term care will be a slippery slope. My father’s voice is in my mind, saying I manipulate the world into giving me care. If he is right, going into long-term care will just make me lose skills, become more dependent and ultimately need a lot of one-on-one support. It may lead to backlash from the care facility, causing me to get kicked out again.

I will, of course, also be missing my husband. I can deal with it, but it’s sad. I’m scared that he’ll grow tired of visiting me every week because of the long drive (nearly 90 minutes one way). I don’t want to lose my husband. I said, when originally falling apart in 2018, that I would choose him over long-term care if I had to. I don’t really need to choose, as we’ll still be seeing each other, but what if I do? Will it be too late to choose him? I hope not.

Confessions of a New Mummy