When I Was Twenty

Posted on by Astrid

When I was twenty, I lived at the independence training home for disabled young adults in my parents’ city. I had had one particular assigned staff member for the first year that I lived there, but due to my challenging behavior, she refused to be my assigned staff any longer. I was fine with this, because I couldn’t get along with her anyway. Instead, the team coordinator became my assigned staff.

Over the next six months, we developed quite a strong bond. I started to feel like I could be myself with her. That was rather unusual, as I’d never felt like I could be myself with any outside person at all. I started to show her bits of my inner world, started to be vulnerable with her.

Then she went on vacation. When she came back, she informed me she could no longer be my assigned staff. I don’t remember her reasoning, but it was related to both her workload and our relationship.

I think back often to this staff now that my assigned staff at the care facility is leaving. It feels as though she’s rejecting me, just like the other one rejected me. After all, shortly after that staff could no longer be my assigned staff, I had to leave the training home.

I have been flooded with memories from when I was twenty again. I try to remember I’m 36 now, but attachment loss is still as difficult as it ever was.

In truth, I should have learned my lesson back then when I was still young: care staff are not there to stay. Don’t be vulnerable with them.

This post was written for Five Minute Friday, for which the prompt this week is “twenty”.

Heal

Posted on by Astrid

Today’s prompt for Five Minute Friday is “Heal”. I read several of the responses before writing mine. Some left me feeling all sorts of things, which I will try to articulate in the below freewrite.

Is it possible to heal from a hurt you can’t explain in words? Can something that you can’t describe in words, a memory that is just visceral, even be traumatic? I am referring to preverbal trauma, of course and, in theory, I know the answer: yes, it exists and yes, healing is possible.

However, in reality, how can I prevent my cognitive processes from constantly interfering with my experiences? Or should this be prevented at all? I mean, if I can rationalize that I’m now in 2022, living in the care facility and not in whatever danger my body thinks (feels?) it’s in anymore, does it even matter that I endured preverbal trauma?

After all, it’s a fact that I did: I was born prematurely, spent the first three months of my life in hospital and had several complicated surgeries before the age of five. The question is whether said possibly-traumatic events affected me and, if so, how to heal from them.

Grateful For the Right Care

Posted on by Astrid

Today’s prompt for Five Minute Friday (#FMF) is “Care”. Most writers, I’m assuming, are writing about how God takes care of them, how they should not be distracted by the cares of this world, how important it is to care for others and other spiritual meanings of the word “care”. I do find these important too, of course, but was particularly impressed with the timing of this prompt. After all, yesterday marked my two years being in the long-term care facility.

I cannot keep from thinking that God put the people and circumstances in my life that led to me being here now. He did, as He has a plan for all of us. However, since I didn’t become a Christian till late last year, before then it was easy to consider these circumstances, these people, all working together to get me the right care, just chance.

I want to use this space to give thanks for the blessing that is my being in long-term care, with my current support team and my current care plan. I also want to give thanks to all the people God put into my life who worked and in many cases continue to work so tirelessly to keep it this way. My support coordinator and support workers from when I lived with my husband. My psychiatric nurse practitioner at the time. The Center for Consultation and Expertise coordinator and the consultant she hired to help get me the right care. My staff at my old day center. My staff, the manager and behavior specialist here at the long-term care facility. The people in authority who decided whether to grant me long-term care funding at all and eventually decided to grant me the one-on-one I get now. Last but not least, my husband, who sticks by me through it all.

Looking back at all the time I’ve been busy fighting for the care I get now, I realize some of the events are nothing short of miraculous. I am so intensely grateful for this!

Disagree

Posted on by Astrid

Today’s prompt for Five Minute Friday (#FMF) is “disagree”. Initially, I was going to write a post about how (lack of) open disagreement with others was used against me. When my then psychologist diagnosed me with dependent personality disorder in 2016, she thought that my lack of open disagreement with many of her controversial opinions, proved I had this condition. It honestly to me proved that she was in authority even though she had no clue what she was doing.

I eventually deleted that draft and started over, but I still want to write along those lines.

In Christianity, we are often taught to not just respect, but obey authority. Children are expected to obey their parents in everything. Wives are expected to submit to their husbands.

As a survivor of childhood trauma as well as many abuses of power, I struggle with these commands.

That being said, the command to be obedient as a child and submissive as a wife, does come with its respective obligations on the part of the parents and husband. In Colossians 3:21, Paul writes for example: “Fathers, do not embitter your children, or they will become discouraged.” In other words, the Bible is not a reason for harsh treatment and abuses of power. Besides, of course the Bible does not say anything about people in modern-day, informal authority positions, such as the aforementioned psychologist.

Now, five years on, I am very happy that I eventually did stick up for myself and sought an independent second opinion on that diagnosis. Then I applied for long-term care. Now that I have the right people (loving, respectful people) around me, I no longer need to fear authority. I can respectfully disagree with people, whether Biblically I’m supposed to submit to them or not. I am still working on feeling confident in my role as a grown-up woman. God and His Word help me on this journey.

Okay, this post took me much longer than five minutes to write, as I had to look up what the Bible actually said and also because I got distracted several times. I hope that’s okay.

Finding God in the Middle

Posted on by Astrid

Today’s prompt for Five Minute Friday (#FMF) is “Middle”. I sat thinking about what I want to write for a bit. The prompt really resonates with me, but I wasn’t too sure why. Then I realized that, in all of my life, I struggle to find the middle.

In dialectical behavior therapy (DBT), I learned to practise finding the middle. The middle between emotional mind and rational mind, for example, is called Wise Mind. But there are other things that require the skill of dialectics.

For example, I struggle to reconcile my relatively high (sometimes even seen as very high) IQ with my low emotional level of functioning. I know rationally that, when staff leave the room, they aren’t on the North Pole, but emotionally it feels that way.

Then again, there is somehow a middle. I still am both highly intelligent and emotionally vulnerable, after all. If they were mutually exclusive, I wouldn’t be me. And I am me. And that’s okay.

DBT is partly based on Buddhist thinking. However, I do believe that God does call us Christians to find the middle ground too. Like Kate writes in her own contribution, God is there always: He was there in the past, He will be there in the future, but He is definitely also there in the middle, that is, the present.

This is also what DBT calls us to do: be present in the here and now. Mindfulness is one of the core skills of DBT and it doesn’t matter that the idea of it originated with Buddhist thinkers. In fact, when we as Christians pray and especially when we are still, we are present. God calls us to be present, to receive his grace in the Holy Spirit. DBT fans can call that Wise Mind all they want. I call it God’s speaking to me.

I’m Not Broken (And Neither Is Anyone Else)

Posted on by Astrid

A few days ago, I got a notification on WordPress that someone had liked a post of mine called “People Aren’t Broken”. It was probably on an old blog of mine and I can’t remember exactly what the post was about. From what I remember, it was written in response to a person being officially diagnosed as autistic and seeing this as a reason they weren’t “broken”.

Indeed, before my autism diagnosis in 2007, I always thought I was “broken”. Same once my autism diagnosis got taken away in 2016. I still had a personality disorder diagnosis (dependent personality disorder and borderline traits), but I believed strongly in the stigma attached to it. That wasn’t helped by the fact that my psychologist at the time used my diagnosis to “prove” that I was misusing care. I wasn’t.

Today, I found out people applying for benefits are completely screened by some kind of information gathering agency. It made me worry that the benefits authority or long-term care funding authority will do the same, even though I already have both.

It’s probably the same internalized ableism (discrimination against people with disabilities) speaking up that tells me that, if I don’t have a “legitimate” disability (like autism) that warrants me getting care, I’m just manipulative and attention-seeking and generally broken. I am not. And neither is anyone else. Including those who actually do have personality disorders.

This post was written for today’s Five Minute Friday, for which the prompt is “Broken”. Of course, I could have (should have?) written a more spiritual post and, from that perspective, everyone is in fact broken. What I mean with this post, though, is that there’s nothing that makes certain people broken based on disability or diagnosis.

Waiting for Sunrise #Write28Days

Posted on by Astrid

Welcome to day five in #Write28Days. Today’s prompt is “Sunrise”. It is also this week’s prompt for Five Minute Friday. I’ll try to freewrite for this post, although I won’t set a timer.

At first, the prompt didn’t speak to me. I have rarely in my life ever seen the sunrise, as I don’t usually get up before dawn. Besides, I am almost completely blind, so I am not able to appreciate its visual effects as much as others. To me, sunrise looks pretty much exactly like sunset. I know there’s a difference, but I can’t see it.

Then I saw that some fellow Five Minute Friday writers have used the sunrise prompt as a way to symbolize the coming of something good. According to Genesis, God created the sun to mark the day and the moon to mark the night. Indeed, a new morning is often appreciated as something positive. It symbolizes a new chance to make positive changes to our life or world.

Why, though, should we wait for that new dawn? We shouldn’t wait for Jesus to come back to make everything right. With God’s help, we can make positive changes to our life and world right now, even though it’s 8:30PM on a Friday in February and the sun has long set.

There are so many things I want to change about my life and world. Personally, I want to develop my distress tolerance. I want to lose weight. I want to deepen my faith. Politically, I want to educate myself on areas in which I experience privilege, such as race.

I don’t need to and shouldn’t be procrastinating on these things. I may not be able to accomplish them all at once. However, with God’s help, each and every second of every single day, I get to make a choice between love and judgment, ignorance and education, health and sickness, faith and despair. Right now, I am making a choice to trust God. Thanks to His grace, I trust I can make these other positive choices.

A Fresh Start in Jesus

Posted on by Astrid

Today’s Five Minute Friday prompt is “Fresh”. I couldn’t quite think of something to write on this topic at first. Then I read Kate’s original post.

She wrote that she took some fresh breaths of air before having to put on her face mask. Now I rarely wear a face mask, as I hardly ever go to public places. That being said, I definitely enjoy the fresh air. That’s why I went for three walks today despite my shoes getting damaged due to my having drop foot.

The word “fresh” also made me think of a fresh start in God. As regular readers of this blog know, I became a Christian only a little over a month ago. God gives me a fresh start.

I am constantly reminded of a metaphor my husband explained to me last week. He explained that, as humans, we are all on a train ride to hell, but Jesus stands outside to command everyone to get off the train and be saved. I like to imagine Jesus standing on a platform at every station.

Another metaphor is the team building exercise in which one person is supposed to fall backwards and trust the other people will catch them. That’s what faith is like. Maybe that proverbial train is moving, in fact. Ouch, how scary! I probably still have one foot on it.

God, thank you for your presence in my life. Thank you for your everlasting love for me. Please help me gain the confidence to jump off your proverbial train into your loving arms. Help me get a fresh start in the fresh air of your presence. In Jesus’ name, Amen.

More Time

Posted on by Astrid

Today’s Five Minute Friday (#FMF) prompt is “Time”. There are so many things I wish I would make more time for. Today, in five minutes (and I’m trying to do this in five minutes seriously), I am going to share about the things I want to make more time for in 2021.

First up, of course, is faith. I want to spend time each day praying and reading my Bible. I already read my Bible everyday so far in 2021, but sometimes it’s just five minutes before bed.

I have also created a faith-based journal in Day One, my diary app. In it, I want to write down my prayers as well as interesting Bible passages. I think consciously writing them down helps me devote more time to God.

Second is walking. I did a great job of this this past week, getting in over six hours of active zone minutes so far.

I also want to write more. I really aim to blog almost everyday. I would like to say everyday, but I can no longer make that work for 2021. But I can start now.

Then comes reading. I definitely want to read more. I am doing okay in this respect so far.

Lastly, self-care. I didn’t make a resolution about me time or essential oils this year, like in 2020, because I did well enough on it already. However, self-care also means taking good care of my body, and I could certainly improve on that.

By this I mean healthy eating, exercise other than walking, yoga, etc. I could definitely work on a healthier body.

That’s it. I did pretty well freewriting for five minutes flat and I was in fact already sort of done when the timer went off.

What do you hope to spend more time on in 2021?

Moving Beyond Shame

Posted on by Astrid

I’ve been struggling a lot lately. I feel shame over a lot of things. Then again, my husband said that shame is only useful for the one second you realize you should’ve done different. Then you need to move on.

I just read a part of Bobby Schuller’s book You Are Beloved in which he tells me that God’s love is the antidote to shame. Jesus, he says, did not act out of shame. Maybe he didn’t even feel it. He didn’t care about his reputation, inviting the lowest-status people of his time to eat with him. Schuller notes that eating with someone in Jesus’ time on Earth means seeing them as equals.

Jesus regarded people who didn’t believe they belonged, as equals. Of course, he is God, so we can never measure up to that, but we can rest assured that he loves us no matter what.

God, help me move beyond the feeling of shame towards an experience of peace. I know You love me for who I am. Please help me see this with all my heart. In Jesus’ name, Amen.

This post was written for Five Minute Friday, for which the prompt this week is “Beyond”. I didn’t set a timer, but I think I did a pretty good job of doing this piece in five minutes.