Autonomy: Learning That I Can Do Things and That My Opinions Matter #AtoZChallenge

Posted on by Astrid

Hi everyone. Today is April 1 so this means the #AtoZChallenge is starting. I haven’t prepared any posts in advance, but since I am going to write on healing past hurts, the concept of autonomy spoke to me for my letter A post. Autonomy is the ability to be self-reliant and independent, both physically and emotionally. It starts to develop in toddlerhood.

As I learned about emotional development as it relates to developmental disability (I discussed this in 2023), I realized in many ways I’m not there yet. I struggle with even basic decisions like what clothes I want to wear.

When I was 30, I was told I have dependent personality disorder. This disorder is characterized by passivity and the inability to make decisions independently, as well as a pervasive need to be taken care of. It is often related to lack of encouragement of autonomy in childhood.

I don’t have many memories of my early childhood, but I do know I wasn’t given a lot of autonomy when I was older. It’s not that my parents didn’t try, but as soon as I got frustrated, they gave up. They genuinely believed they were giving me autonomy and that I was just too stubborn to want to be independent. For this reason, they claimed and to this day still claim it’s my choice to be in the care system.

My psychologist back in 2016, the one who diagnosed me with dependent personality disorder, sided with them. She said I did have the assertiveness to stand up for myself, but wasn’t doing things I was (thought to be) capable of. That’s not what dependent personality disorder is though: lack of confidence in one’s own physical capabilities is but one criterion out of eight. And please note: it’s specified that the reason someone isn’t doing something, is in fact lack of confidence, not lack of skill or motivation. In other words, unwillingness to do things independently that you can do, is not dependent personality disorder, but care misuse.

And for clarity’s sake: I am not and never was misusing care. However, that’s exactly what my psychologist thought I was and according to which presumption she treated me by kicking me out of the mental hospital with virtually no support. She once again didn’t encourage me to develop autonomy. Refusing to help someone who clearly asks for help, contrary to the current idea in mental health services, may be politically useful, but it is not autonomy-supportive.

I am only now, now that I’m nearly forty, learning that I in fact was conditioned by both my parents and the psychiatric hospital to disregard my own opinions. Yes, being able to do things independently, is one aspect of autonomy, but so is the ability to make your own choices. One can hardly exist without the other.

IQ Is Just a Number

Posted on by Astrid

Hi everyone. Today, Sadje asks in her Sunday Poser whether we’ve ever taken an online IQ test. I have, exactly once. I was about eighteen at the time and randomly looking at tests online. I can’t remember the source of the IQ test and I didn’t pay to get the so-called full report, but the thing said I had an IQ of 118.

Like I’ve said a few times, I also got IQ tests as part of various psychological evaluations many times throughout my childhood. The one that is most prominent in my life right now, is the only one in which I was actually given a literal score: 154. The educational psychologist even called me gifted based on it.

I have mentioned many times how this score is probably way above my actual IQ. For starters, I’d had the exact same test a year prior and had memorized most of the questions. Additionally, contrary to common belief and contrary to my care plan I believe, it wasn’t a total IQ score. When testing the IQ of blind people, usually only the verbal part of the IQ scale is administered. There is a non-verbal intelligence test for visually impaired children that the psychologist prior to the one saying I have an IQ of 154 did administer. Unfortunately, she didn’t give any concrete scores and in fact stopped the test midway through because I got so frustrated. As a result, I have no way of proving that my performance IQ is a lot lower than my verbal IQ. But I’m pretty sure it is.

Sadje at one point points out that intelligence isn’t just knowledge, but also the ability to use one’s knowledge sensibly. Particularly with respect to verbal IQ vs. performance IQ, this makes sense. Verbal IQ is mostly related to academic ability and general knowledge. Performance IQ, on the other hand, requires actual insight and practical skill.

Of course, as someone with a (probably) much higher verbal than performance IQ, I can only relate to how this burdens me. I am horribly overestimated because of my eloquent speech. I imagine the opposite might be true for people with a split in IQ scores the other way around.

Lastly, I want to point out that even within a verbal IQ test (and I assume within the performance one too), people can have spiky profiles. My strength is and always has been in arithmetic. Other relatively strong areas at least at one point used to include Number sequences (a test of memory) and Similarities. My biggest weakness is the part called Comprehension, in which you need to answer questions about social or practical situations. I also often scored below-average on the vocabulary subtest.

The IQ test that pointed to my verbal IQ being 154, was administered in 1999. I had my last IQ test in 2017 and it showed my IQ to be roughly 119. With that version of the test, the strict verbal/performance distinction had been abandoned, but it is safe to say this was my verbal IQ. Even though I’m pretty sure I did decline cognitively between 1999 and 2017, I’m adamant that 154 score is utter nonsense.

With respect to Sadje’s point that intelligence isn’t just knowledge, I’m proof that she’s right. I am still said to have an above-average IQ, but I can’t do the most basic self-care tasks without supervision.

IQ Tests and Final Exams and Psychological Assessments, Oh My!

Posted on by Astrid

Hi all! Today, Esther’s weekly writing prompt is “tests”. Oh my! This made me think of so many things. IQ tests: I’ve had half a dozen or more during my life. Final exams: so glad they’re over with and it’s been twenty years since I graduated high school. Psychological assessments: I still have a love-hate relationship with those. And that goes for tests in general, I guess.

After all, as a child, I didn’t mind taking IQ tests. When I was twelve, I got the infamous Wechsler IQ test, well, the verbal part of it, since I’m blind and the performance part isn’t accessible. I got a score of 154, which, according to the psychologist, indicated giftedness. I’m pretty sure there were all sorts of things wrong with that assessment though.

When I was 30, I got another IQ test, Wechsler again but the adult version and now they removed the clear distinction between verbal and performance IQ so the report just said I got “parts” of the test. My overall IQ score had dropped to 119 I believe. That’s still above-average and I’m pretty sure that’s correct. However, I wish there were a performance IQ test for blind people, because I am pretty sure that’d show where my real limits are. Not that I’m proud of being disabled, but I am and if it could be proven on a test, that’d be much better than an ever-changing psychiatric diagnosis.

Final exams. Like I said, I’m glad it’s been twenty years since I graduated high school. My final exams were quite frustrating, as not only was I horribly nervous, but my computer crashed once in the middle of the test. I graduated from what in the UK is called grammar school and honestly I have no clue how I did it. I mean, well, I know, sort of: the same way I “passed” my IQ tests, ie. being a pretty above-average memorizer. Too bad that a good memory and decent academic skills don’t get me far in life. It takes more than test-taking abilities to be successful, after all.

Therapy, Counseling and Coaching for Mental Health and Personal Growth #AtoZChallenge

Posted on by Astrid

Hi everyone. Today for my letter T post in the #AtoZChallenge, I want to talk about therapy and other forms of support when you’re dealing with mental health problems and/or when you want to grow as a person.

Generally speaking, therapy isn’t for personal growth, although as a person you may grow when overcoming mental health problems. What I mean by this, is that your therapist isn’t just a sounding board and they aren’t your friend. If you’re feeling pretty good overall, formal therapy at least here in the Netherlands isn’t what you should be looking for. After all, therapy is aimed at helping you, in as little time as possible, to overcome your mental health problems. Here in the Netherlands, in fact, there’s a limit on the number of psychotherapy sessions you can get covered by health insurance. Of course, you could pay out of pocket for more, but if you’re reasonably well-adjusted, why should you?

Coaching and counseling are much more affordable and accessible because anyone can call themselves a counselor or coach. This also means that you’ll find coaches or counselors who align with almost any spiritual or psychological teaching. There are Enneagram coaches, for example, even though the Enneagram is actually nonsense. Did I, a person who frequently writes about herself as an Enneagram type 4, just say that? Yes, I did.

There are, of course, also coaches or counselors who do work within the framework of science-based psychology and education. For example, many people call themselves ADHD coaches and they do (I assume) have some knowledge of the current ideas surrounding ADHD.

Psychotherapy is, here in the Netherlands, often heavily protocol-based depending on your diagnosis or main problem. This is also what I’ve often found frustrating. Like, when I was diagnosed with borderline personality disorder, my psychologist wanted to do schema-focused therapy, but the modes and all that didn’t fit in with my experience of being plural.

At other times, therapy didn’t suit me because, while I sort of understood the theory, I wasn’t able to apply it in practice. This is why I eventually stopped doing dialectical behavior therapy.

I personally don’t do well with therapies that are merely focused on skill-building or that are primarily verbal (talk therapy). I have had the most success with art and movement therapies. I currently do movement therapy based on the Sherborne method. This is a sensory and attachment-based therapy approach. For example, today my therapist brought a multisensory tool called CRDL. When both of us touched the tool with one hand and touched each other’s hands or arms, the CRDL made different calming sounds. This is helping me regulate far better than any DBT skill helped me.

Questionnaires and Personality Tests for Self-Improvement and Diagnosis #AtoZChallenge

Posted on by Astrid

Hi everyone. For my letter Q post in the #AtoZChallenge, I’d like to talk about personality tests and questionnaires. How valid are self-report questionnaires for personal growth? Do they have any validity in diagnosis?

The short answer to these questions is that it depends. After all, many people especially those with some knowledge of the thing being tested, will answer in such a way that they’ll get the results they want or expect. Even people who don’t know how the test works, may distort their answers because they think the test works in a certain way or because they think others want them to answer in a certain way. Or sometimes even because they don’t understand the questions.

For example, when I was eleven, I was tested with this weird sentence completion test that included open-ended questions. An example I remember clearly was the psychologist asking me “When I can’t sleep, I…”. I replied “I’ll try to sleep”. I had absolutely no idea what to say, not because I thought the psychologist wanted a particular answer but because the question was far too open-ended. Similarly, my lack of emotional awareness at the time often made me choose the middle option on rating scales. This was judged to be manipulativeness, but it wasn’t.

Like I shared before, many personality tests include a “liar scale” or validity subtest. An example on the Big Five test I got in college is “I always feel equally good”. I honestly answered with “strongly disagree” and totally thought it’d make me score high on neuroticism. Instead, that particular question and others I answered honestly got me to score above-average on the validity scale. That isn’t to say I didn’t score high on neuroticism though.

I don’t personally think it matters that many self-report questionnaires can lead to a strong confirmation bias, especially if you’re using the test for personal development only. That is, if you want to hear that you’re great, you will always be able to find validation for that. Whether lying on self-report questionnaires will help you on your journey, is another thing, but if you aren’t consciously manipulating the test, chances are there’s some truth to the result anyway. I don’t recommend relying on a test alone to determine anything about yourself, but to also always do your own research. Similarly, in clinical settings, while self-report questionnaires are somewhat useful, professionals also need to rely on observations.

Behind My Anger #SoCS

Posted on by Astrid

SoCS Badge 2019-2020

Many people think I’m angry a lot. It was written in my reports from psychologists as early as age 8 and maybe even younger. I do sound angry sometimes, but behind that anger are many other emotions. I mean, I rarely feel genuinely angry, but I express many strong emotions as rage, irritability or other forms of anger.

I don’t blame other people for not seeing it. I see anger a lot when others claim there isn’t any. But it’s hard for me to look beyond (my perceptions of) people’s surface expressions. When it feels as though an angry person stands in front of me, or worse yet, behind me, I shrink inwardly, but react outwardly. This is really hard for others to comprehend, but I have the same feelings as everybody else. So do you, even if it appears I only see anger. We all need to look beyond what seems to be in front of us.

This post was written for Stream of Consciousness Saturday, for which the prompt today is “in front” and/or “behind”. Linda’s also doing #JusJoJan again, which stands for Just Jot It! January. I will write a post when the prompt appeals to me, but I do really hope to be blogging regularly this month (and the rest of 2025).

How I Coped With Losing My “Job”

Posted on by Astrid

Hi everyone. This week, one of the prompts for Writer’s Workshop is to write an essay titled “How I coped with losing my job”. I don’t do well writing fictional essays and have never had a “real” job, in the sense of a paid position or even volunteer work. I did, however, once “lose my job”, in that I got told the day center I went to couldn’t keep me there anymore.

This happened sometime in January of 2018 at my first day center with my current care agency. They had had me there for eight months, in two different groups, but when I was struggling to cope at the second group, they could no longer serve me or so they said.

I felt really distressed about this. The most frustrating aspect was the fact that they blamed me for no longer being suited to the center, while in reality, three new clients had been accepted into my group and no additional staff had been hired. I remember the reason they said it was me being the problem, not the new clients, was the fact that I’d been having meltdowns shortly before they arrived. Now I know that any anticipated change will cause me distress and that doesn’t mean I’m just a problem client. However, in hindsight, I’m pretty sure they wanted me gone sooner rather than later all along, for the simple reason that I don’t have an intellectual disability.

Thankfully, I wasn’t told to leave on the spot, but got time to find a new place. I initially had no clue how to, but did remember that, in 2010, I had been helped by the Center for Consultation and Expertise (CCE). I told the staff that I wanted to involve them again.

This was a bit of a hassle, as my community psychiatric nurse from the mental health agency said I’m far too high-functioning for the CCE. I applied nonetheless and got an orientation meeting in May of 2018.

In the end, I didn’t need the CCE for finding a new day center, but the consultation was what led me to accept that living independently with my partner wasn’t working and I needed long-term care.

I did feel intensely frustrated, like I said, at being “fired” from this day center. However, in the end, I don’t blame the staff, who were just powerless in the face of my challenging behavior. I think the manager, who didn’t look beyond my psychiatric diagnoses, is partly responsible. So was the psychologist from the psychiatric hospital, who more or less made the manager accept me on partly false premises.

I Am (Not!) 154

Posted on by Astrid

Hi all. Today’s topic for Friday Faithfuls is IQ testing. This topic is very dear to my heart, as IQ tests have often been used and even more often misused to determine my entire life path.

When I was twelve, I had an IQ test administered to me. It was the verbal half of the Wechsler intelligence scale for children (the performance half can’t be administered to me because of my blindness). On this verbal IQ test, I got an overall score of 154. According to the educational psychologist writing the report, this is a sign of giftedness.

There were several problems with this assigned IQ score. For one thing, like I said, it’s just a verbal IQ score. The year prior, another ed psych had tried an intelligence test for visually impaired children which utilizes non-verbal components, but had given up on the test midway through because I got too frustrated. This ed psych had also administered the verbal half of the Wechsler scale, but her report doesn’t give an IQ number.

Another thing, which you might figure out from my previous paragraph, is the possibility of a retest effect, since I took the exact same test twice in a year. The ed psych that labeled me with an IQ of 154 did try to find out whether this had actually happened. He asked me whether I had been told when taking the test the last time which answers were correct and which weren’t. I had, in fact, with some, and besides, my father had given me extensive advice on how to answer some questions even more cleverly than I had done. However, I knew the purpose of this assessment: to get the green light for me to go into mainstream, high level secondary education rather than special ed for the blind. I wasn’t at the time really sure whether that’s what I wanted, but my parents did and I, being twelve, didn’t question their authority. So I said “no” and the ed psych concluded there was no retest effect.

I don’t doubt that I have an above-average verbal IQ. But 154, in my opinion, is probably too high. Besides, verbal intelligence is what you need to succeed in traditional schoolwork. What you need to succeed in life, is more related to performance IQ, if you ask me.

Even now though, nearly a quarter of a century later, the number 154 pops up here and there and everywhere with regards to me. Professionals keep assigning new dates to the original IQ score, calling it a total rather than verbal IQ, and making more nonsense out of these ever-intriguing three digits.

I have tried to talk to the behavior specialist about this. What I really want is to be re-evaluated. Not just with respect to (verbal) IQ, but with respect to other things too. She for now only agreed to write a note by the IQ score of 154 saying that it dates back 25 years.

You’d assume that, in intellectual disability services, it wouldn’t matter whether your IQ is 100 or 150, since it means no intellectual disability regardless. However, several of my current staff have admitted being wowed at my IQ score before they got to know me. I hate that the most, being reduced to being 154.

The Wednesday HodgePodge (November 1, 2023)

Posted on by Astrid

Hi everyone. It’s Wednesday once again, so I’m joining in with the Wednesday HodgePodge. Here we go.

1. Besides Thanksgiving (in the USA) what’s one thing you’re looking forward to in November?
Not sure really. November is the hardest month of the year for me. My spouse’s birthday is this month, but I won’t be going to our house in Lobith for the weekend. I’m pretty sure we’ll find a way to celebrate though and that’s what I’ll be looking forward to.

2. Do you like candles? Your favorite scent? How often do you burn a candle in your home?
No, I don’t. They’re not safe for me because of the flame. I used to love wax melts though. My favorite scents were sweet scents reminiscent of bakeries like those including vanilla, cinnamon and coconut.

3. What gadgets did you use today?
My laptop, iPhone and Apple Watch.

4. This question is a repeat from one asked in November of 2014, but I liked it so it’s coming round again. Many of you weren’t here in 2014. Okay, you can have fifty pounds of something (anything but money)…what will you choose? Also, since I mentioned it…what were you up to in November of 2014?
Fifty pounds of polymer clay LOL. Then I could make some giant unicorns. Seriously though, I have absolutely no idea what substance it would be useful to have fifty pounds of. Except maybe gold so that I could trade it in for money, but that’d be cheating.

As for where I was in November of 2014, I was in the psychiatric hospital in Wolfheze. If I remember correctly, the psychologist who ended up kicking me out of there in 2017 had just become my responsible clinician.

5. ‘Tis the season…what’s something you’re feeling especially grateful for today?
My mental health. It’s November and I’m struggling, but not nearly as badly as I was last year.

6. Insert your own random thought here.
As I shared yesterday that I hoped I wouldn’t have gained significantly at my weigh-in today, I owe you all the result: I lost 0.5kg.

Don’t Leave Me Alone! #SoCS

Posted on by Astrid

I am one of those autistic people who doesn’t like to be left alone. That is, I do need a significant amount of alone time, but it has to be on my terms. That might seem weird or normal, I don’t even know. I mean, I’m used to it being seen as weird here at the care home. Staff see it as a sign that I crave attention somehow. Which, even if it were true, well, attention is a normal human need.

I am not sure where I’m headed with this post, but I often feel like a fake autistic for feeling like I don’t want or need to be left alone when I’m in distress. Probably because my former psychologist at the psychiatric hospital used it as a reason to diagnose me with dependent personality disorder. Which I might have after all, I’m not sure. Then again, the treatment for that isn’t to leave someone to their own resources just like that.

I often have this statement in my head: “Don’t leave me alone!” It is cried out, in my head, by a child’s voice. I am pretty sure it is from a book and in Dutch, it sounds different, but I’m writing it like this here for the purposes of this post. Don’t leave me alone. Never leave me alone. Well, people always will. That’s life.

This post was written for Stream of Consciousness Saturday for this week. The prompt is “left alone”.