Gratitude List (May 13, 2022) #TToT

Hi everyone! What a week, what a day it’s been. I really feel like writing, but my head is buzzing, so I thought for a bit of cheer and calm, I’d do a gratitude post. As usual, I’m joining in with Ten Things of Thankful. Here goes.

1. I am grateful my staff were able to get the staffing schedule figured out and actually without temp workers needing to step in. The reality was, the temping agency didn’t have anyone available, so the regular staff ended up overworking, but this was a huge positive for me as it meant no unfamiliar faces.

2. I am grateful that a new staff was finally hired to work here. She did come from another home that’s part of my care facility, so they might now have a staffing shortage, but oh well, that’s not my problem. Until this staff came here, a lot of potential staff were given a look around my home but decided eventually not to want to work here.

3. I am grateful for delicious home-cooked chicken and rice yesterday. I actually cooked it with my day activities staff.

4. I am grateful for the smile on one of my fellow clients’ faces when I offered him a serving of the chicken and rice too. He is the only one in my care home who can eat rice without choking, so the staff, when cooking, never cook rice. I’m so happy he was pleased.

5. I am grateful for Sadje’s comment on my last blog post. I thought WordPress was acting up, since I wasn’t getting any comments. It might still be, but at least someone is able and willing to comment.

6. I am grateful for a visit from my mother-in-law on Tuesday. I am grateful we had a good talk with my assigned home staff. After that, we went to Rijssen, a town about a 30-minute drive from Raalte, to go for a walk and have coffee.

7. I am grateful I was able to mostly stick to my healthier eating plan over the past week. The only exception was the sausage roll I ordered in Rijssen. It not only was unhealthy, but came out of the microwave or so it seemed, so it definitely didn’t score an eight out of ten on how much I wanted to eat it. That’s the rule my dietitian gave me for treats: if they don’t score an eight or above on how eager I am to eat them, I might consider skipping them.

8. I am grateful that I did lose 0.4kg when I stepped onto the scale today as compared to last week.

9. I am grateful my semi-orthopedic shoes arrived back from the orthopedic shoemaker. The last time I sent them back, I had a blister on my right heel after only ten minutes of walking on them. Now I haven’t walked longer than that at a time on the shoes, but so far, so good.

10. I am grateful I got an E-mail from the store I bought the headphones that stopped working after two weeks at, saying they’ll give me my money back. I don’t have it in my bank account yet, but they said it could take up to five business days.

11. I did order new headphones and am grateful they work so far. They are a fifth of the price of the non-working ones, but still I am hoping they keep working.

12. I am grateful for paracetamol. I had to take it several times this past week for toothache or headache, but thankfully it worked.

What are you grateful for?

A Sunday With the Theme of Self-Esteem

Hi all. The past 24 hours have truly been a mixed bag of emotions. I started obsessing over wanting to start another new craft. Yes, another! Somehow, I decided on macrame and got all obsessed about learning its techniques before even having any cords. Then I decided to ask in a Facebook group whether you need to be coordinated in both hands in order to be able to do macrame. The first commenter basically said not only that, but you also most likely won’t be able to feel your way around the knots.

This was late last night, past midnight actually. I went to bed feeling awful about myself. After all, the reason I wanted a new craft is not that there’s nothing more to learn about polymer clay, but that I’m somehow convinced that I’ve reached my full potential.

By morning, I found that other people had been more encouraging of me trying macrame or even card making. You know, remember I’d said I tried that back in 2013? These people said so what if my work doesn’t look good, if I enjoyed the craft. That’s not entirely my kind of attitude, since I do want to be able to share what I make here or on my personal Facebook page at least without feeling like I have to be ashamed of myself.

I have been trying to work on some polymer clay projects in progress again later today by sanding some beads and charms. It felt kind of okay. I also watched some more YouTube videos on polymer clay, but they made me feel like I’ll be taking forever to understand the concepts. Then again, this is even more the case if I start another craft entirely. Guess I’ll just stick with polymer clay and try to be more patient with myself.

As a side note, one person did say that, if I can tie my shoelaces, I can do macrame. That kind of discouraged me at first, since I can’t tie my shoes. Make that couldn’t. At least, after three tries, I was successful at tying my shoelaces while my shoes were in front of me on the table. Then I tried several more times, more or less successfully. I don’t think I want to really be able to tie my own shoes, but it was an interesting boost to my self-confidence.

Gratitude List (February 12, 2022) #TToT

Hi again all. I want to post a gratitude list again. Actually, I sort of did one yesterday too by sharing the material things I’d loved. Then though, Ten Things of Thankful was not yet online (or rather, the wrong linky was). Since I like to link my posts up there, I waited till today to write my actual gratitude list. Oh wait, that makes me look spammy, I guess, but oh well. Let me share some things other than chalk pastels and tuna I’ve been grateful for.

1. Seeing my husband. I am in Lobith right now and am so grateful to be with my husband again. I couldn’t see him last week due to the storm and haven’t been in Lobith since Christmas, so it’s especially good.

2. Pizza. Oh, that’s a material thing, but who cares? We ordered Domino’s this evening and, despite the fact that their menu has shifted to include more vegan and gluten-free options and fewer regular pizzas, my pizza (spicy chicken meat lover’s with extra chicken) was delicious! I initially typed a long rant about how Domino’s has gone too far with their “healthy” trendiness by doing the vegan and GF (which I doubt is genuinely 100% GF) thing at the expense of meat lovers, but I deleted it. I’m just grateful they still had at least something spiced with chicken.

3. My husban’ds Valentine’s Day present for me. I got 2 sets of polymer clay: one with 12 25g blocks of Fimo soft and the other with 6 42g blocks Fimo kids. I haven’t used Fimo kids before, so have to determine whether it’s not too soft for my liking.

4. Decent sleep most nights. Either the pregabalin is starting to work (although I haven’t noticed an improvement in my anxiety level yet) or I am for another reason better able to sleep. I had only one bad night this past week.

5. Eggs. Until a few months ago, a former staff from my care home and her husband would give us a tray of eggs from their own chickens each week. Sadly, the husband died and the chickens had to leave their house, which meant no more eggs for us. However, usually, we now order eggs from the supermarket. I recently found out we now even have an electric, talking egg boiler. Well, I had a boiled egg on my bread this morning.

6. Sunshine. It’s cold outside. Okay, I say that all the time, but the temperatures dropped to below freezing point last night. However, it’s also been quite sunny out. I love looking out of my window to see the sunshine.

7. Longer daylight. This may be related to the last one, but not necessarily so. I love the fact that the days are getting longer. As my husband said, we’re heading towards summer! 🤣

8. Weight loss. I already mentioned this afternoon that I crossed the line from obese to just overweight this week. My dietitian says the Dutch Food Center doesn’t even say you really need to lose weight if you’re in this category.

9. My shoes having returned from the orthopedic shoemaker. Not the orthopedic footwear, mind you. That’s the never-ending story if you ask me. However, for now, I have useable shoes again.

10. My PC. I am so grateful my PC still works. My iPhone, after all, more or less stopped cooperating with my Braille display altogether with the latest iOS upgrade, which should actually have fixed the very problem it now seems to have made worse. Thankfully though, I have a functioning PC with the latest JAWS (my screen reader), on which I can do most things I want to do. I just tried accessing the WordPress.com app to check my notifications, but for some reason, that won’t work still. I’m just grateful I can write E-mails and blog posts on my PC.

What are you grateful for?

#WeekendCoffeeShare (December 18, 2021)

Hi everyone on this cloudy Saturday afternoon. It’s been a few weeks since I joined in with #WeekendCoffeeShare, so I thought I’d link up again. As I’m starting this post, I haven’t yet had my afternoon coffee. I’m going to take a break for that when I finish this paragraph, so if you’d like a cup yourself, I can get you one too. We have an assortment of cookies and may still have a few mini Mars candy bars left too. Let’s have a cup of coffee and let’s talk.

If we were having coffee, first I’d tell you I had a good talk with the behavior specialist on Monday. We discussed a few things, including my desire to be made aware of the contents of the paperwork that went to the authorities deciding on my one-on-one. Those visiting just for the Coffee Share won’t know this, but it got approved for two more years to come, yay! However, I’d still like to know what was said about me, just because it’s about me.

We also discussed my food issues, for which a referral has finally been made to the dietitian. I really hope the dietitian can help me get some clarity on what (not) to eat during the day, because currently every opportunity to eat is an opportunity for inner conflict and chaos. Finally, we discussed my wish for a physical day planner using Braille-labeled activity cards to choose from.

If we were having coffee, I’d tell you that the blindness agency came by on Thursday to lend us a Braille label writer and several pairs of colored NoIR filter glasses (special sunglasses for those with low vision). I will be trying out the sunglasses over the coming weeks and will be using the label writer to type up the aforementioned activity cards.

If we were having coffee, I’d moan about my adaptive footwear again. Shoe Guy finally decided my orthopedic shoes aren’t fitting and can’t be made fitting, so he’s going to make me new ones all over again. He finally brought back my new walking shoes, that my husband bought me a few months ago. Now though, my left arch support insole got a bump in it that I can’t get out of it. Bottom line: I still can’t walk comfortably! Ugh!

If we were having coffee, I’d end on a positive note by telling you about all the creative work I’ve been doing over the past couple of days. I made some lovely polymer clay charms on Thursday based on tutorials I saw on YouTube. Can you guess what the below charm is supposed to be? Facebook’s automatic alt text guessed it correctly!

I also made a Christmas tree and snowman out of polymer clay. This evening, I’m going to add both to a larger mixed media Christmas ornament. Lastly, I finally decided to save my scrap clay rather than throw it away. I made some randomly-colored beads out of it yesterday.

How have you been?

#WeekendCoffeeShare (November 6, 2021)

Hi everyone on this gloomy fall day. I’m joining #WeekendCoffeeShare. Unlike most days when I write my coffee share post, I haven’t had my last cup of coffee yet. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that my GP appointment on Monday went okay. My magnesium got decreased in hopes of relieving me a little from my abdominal discomfort. It’s helping a tiny bit, but not enough for my liking.

If we were having coffee, I would tell you that I had an okay week otherwise. I’m struggling quite a bit with the disconnect between my intellect and my emotions. This is causing me to appear well-collected a lot of the time when in reality I feel extremely distressed. I discussed a few examples of this with my assigned staff and support coordinator today and they’re helping me improve these situations.

If we were having coffee, I would share that I finally gave in (or up) with respect to the adaptive footwear situation and had my husband order new walking shoes for me. After all, the old ones will probably have a large enough to get my socks wet hole in them within a week or two at most. I am so grateful my husband found almost the exact same shoes. They arrived in the post today. I am still hoping I will eventually get used to my orthopedic footwear, but it will need some further adjustments for that to happen first.

If we were having coffee, I would share that I am looking forward but also stressing about the national cerebral palsy day in three weeks’ time. I went to the event on my own three years ago, but this is quite hard this time. I can’t afford for a staff member to go with me to the entire event even with my one-on-one being covered by the care facility. After all, I have one-on-one only part of the day and would need to pay like €45 an hour for individual support for the rest of the day. I might go on my own after all, or I might skip the event, like I skipped the online regional meeting today. I was seriously planning on going to that one, but just couldn’t get myself to do it after all.

If we were having coffee, lastly I’d proudly announce that I’m going to be an aunt again in May. I’m pretty sure my sister is fine with me sharing this on my blog now that she’s past three months and all tests so far are fine. My sister’s other child, my niece, is also doing well. I shared a few months back that she was diagnosed with hip dysplasia. She had surgery in September and is currently wearing some type of cast. We are all hopeful that once this will be removed in a month or so and once she’s relearned to walk after that, she’ll be completely fine.

How have you been?

#WeekendCoffeeShare (October 17, 2021)

Hi everyone. I’m rather late joining #WeekendCoffeeShare this week and I’m afraid there’s no coffee left. You can help yourself to a soft drink or a glass of water though. I also have chips in my cupboard. After yesterday’s crying fit over there only being the wrong flavor left, I decided to buy some myself. I did ask the staff to put them into a cupboard which they only have the keys to, but I’m pretty sure they’ll love to open it for you. Let’s have a drink and a handful of chips and let’s catch up.

If we were having coffee (or a soft drink and chips), I’d share that this week is still quite meh. Early in the week, I was feeling a little more optimistic at the prospect of starting my increased dosage of topiramate soon. I started it on Friday and so far, unfortunately, no change. I am grateful though for no side effects either.

Over the weekend, I’ve really been struggling. I landed in a bit of a crisis earlier this evening, but thankfully pulled myself out of it. I did E-mail my nurse practitioner and CPN at mental health to let them know I’m worried about deteriorating. My husband said I’m not, but the fact that I keep increasing my meds, tells me otherwise

If we were having coffee, I’d moan about my orthopedic footwear after all. The shoes squeak and, though I’m still not in terrible pain, I cannot walk for more than twenty minutes on them without them feeling horribly uncomfortable. Mostly my left foot, the foot on which I wear the AFO, starts to drag. I haven’t heard back from the physical therapist, but am pretty sure she’ll just say I need to push through.

If we were having coffee, I would show you all the soap I made for my assigned staff, the one who’s on sick leave. I heard last Thursday that she’ll remain off work until the middle of November or so due to among other things her needing to use up all her days off for the year or they’ll disappear.

Like I said yesterday, the soap contains vetiver, lavandin and clary sage essential oils. I decided to use a white soap base and no colorants, because I felt the scents would speak for themselves.

If we were having coffee, lastly I would share that my husband came by today. We drove to Subway for lunch. I dutifully wanted to get out my CoronaCheck app, but my husband told me to wait. As he expected, they didn’t ask us for it. The taco beef wrap I chose, was rather boring and I’m pretty sure the mince they put in it was vegetarian rather than beef. Oh well, now at least I know what not to choose next time.

How have you been?

#WeekendCoffeeShare (October 9, 2021)

Hi everyone on this sunny Saturday. Well, it’s not sunny anymore, as the sun has just set, but it was sunny all afternoon. Today I’m joining #WeekendCoffeeShare again. I’m in Lobith and I usually have tea in the evenings here, but if you’d like a cup of coffee, I’m sure my husband can make you one too.

If we were having coffee, I’d share that this week was all quite meh. I’ve said this a couple of times already over the past week. It’s all just one endless stream of sadness, triggers and the resulting flashbacks.

I’m pretty sure I’ve decided I’m going to ask my nurse practitioner to up my topiramate on Monday. I hope this means I won’t have to wait for my next weekly med refill on Saturday to get the upped dose. Of course I know meds won’t solve everything, but I can’t think of anything else right now.

If we were having coffee, I would share that I did find some inspiration in the soaping and essential oil departments again. Yesterday, I even managed to make a simple butterfly melt and pour soap.

If we were having coffee, I would tell you that I also managed to get in more steps this week than last week and that’s not counting tomorrow yet. Okay, last week was quite a bad week in the walking department, but oh well, let’s be thankful for the little things.

If we were having coffee, I would tell you that my orthopedic footwear finally returned from whoever (Shoe or AFO Guy) was working on it earlier this week. It finally seems to be okay now. Not great, but okay. I have at least been able to walk some 25 minutes on the footwear without too much pain and am pretty sure it needs getting used to as well.

If we were having coffee, I would repeat how grateful I am for all the lovely comments on my blog. Like I mentioned last week, I’m participating in #Blogtober21, though my only goal right now is to publish a blog post everyday. I’m no longer going with prompts. Today, I almost wouldn’t have written a post, as I’m with my husband in Lobith like I said and this usually means I can’t concentrate. However, I didn’t want to break my streak.

If we were having coffee, lastly I would share my husband cooked me a delicious rice and meatballs meal this eveningn. Neither of us was full after it, so we ended up ordering something else afterwards. However, the meal was very tasty!

How have you been?

#WeekendCoffeeShare (September 11, 2021)

Hi everyone. It’s long past my last coffee break of the day, but I’m still joining #WeekendCoffeeShare. Fancy a soft drink or a glass of water? I’m off to bed after I finish this post, but I think we can still have a catch-up.

If we were having coffee (or water or a soft drink, but you get the idea), I’d share that the weather was good for most of the week. On Wednesday and Thursday, the temperature rose to around 27°C. That’s pretty awesome for September, isn’t it? It was also sunny most of the time. We got some slight thundering Thursday and Friday, but thankfully nothing too bad.

If we were having coffee, I’d proudly announce that, thanks to the good weather and my feet cooperating, I was able to get in a lot of steps over the week. I so far got in nearly 75K steps and that’s not including Sunday yet.

If we were having coffee, I would tell you that Shoe Guy finally took my orthopedic shoes to his work station with him. He saw pretty quickly that, not only is the combo with the ankle foot orthosis (AFO) giving me problems, but the shoes are also both far too wide. Let’s pray he’s going to get both issues fixed soon and that’s the end of the footwear saga.

If we were having coffee, I’d share that the day center reopened on Monday after eighteen months of being more or less closed due to COVID. I, thankfully, get day activities in the home. In fact, during the time of COVID, my one-on-one was combined with another client’s care, but I now have my very own day activities shift from 10:15AM till 3PM. I was kind of scared that this’d mean I had taken a staffer away from my old group, but apparently not.

I am allowed and more or less expected to visit my old group for a little while each morning, thankfully with my one-on-one accompanying me. However, last Thursday, I was busy preparing my niece’s birthday present, so I asked if I could switch my visit to the afternoon. That was totally okay. My fellow clients at the day center do definitely appreciate me visiting. That makes me feel so grateful.

If we were having coffee, I’d share that I’ve been busy with my husband’s wedding anniversary present today. That’s the secret project I mentioned yesterday, but I won’t disclose what it is exactly until my husband has received it himself next week. He did jokingly nag me a little, but I won’t spoil it to him either.

If we were having coffee, lastly I would tell you that, no, I haven’t lived under a rock all day, ignoring the fact that it’s the anniversary of 9/11. Okay, I did mention it in my other post today, only to blather on about myself. However, it could be me, but the news seems incredibly quiet about it too here. I don’t watch television or read newspapers, only scrolling through so-called “important” news on my iPhone’s home screen. I’ve seen announcements of the deaths of Peruvian terrorist leader Abimael Guzmán and Dutch former train hijacker Junus Ririmasse. There’s also another protest against Dutch pandemic management measures today. The only news article mentioning 9/11 I’ve seen today, is about some cartoon on politician Sigrid Kaag. I cannot see the actual cartoon, of course.

I do feel a little off having seemed to ignore the world’s major crisis of my teens. Then again, I’d rather live under a rock than get depressed by the world’s events.

How have you been?

#WeekendCoffeeShare (August 29, 2021)

Hi everyone, how are you? I’m a bit late joining #WeekendCoffeeShare, as it’s already Sunday. I just had my afternoon coffee and, like I said last week, my Senseo is with my husband now. Now I’m assuming he won’t use it much, as not only is he more of a freshly-brewed coffee person, but he’s trying to cut back on his caffeine intake. That’s his decision though. Let’s have a cup of coffee (or pretend to) and let’s catch up.

If we were having coffee, I’d share that I had a good week overall. The weather’s been okay. Not as warm as I’d like it and a little windy for my liking too, but at least it’s been mostly dry.

If we were having coffee, I would share that I decided not to join Steptember, the annual cerebral palsy fundraiser, this year. I participated last year, but the pressure of having to get in 10K steps each day (or as many as I could) and raise money, was a bit too much for me.

If we were having coffee, I’d also moan about my AFO. Yes, it’s been a while, but if you’d thought that no news is good news, you would be wrong. My AFO had been with the orthopedic instrument maker, whom I’ll call AFO guy, for a few weeks, but upon return, we found out that it’s still not working well in combination with my orthopedic shoes. Now AFO guy and shoe guy were both contacted by the physical therapist and it’s up to them to figure out how to solve the issue.

If we were having coffee, I’d also whine a little about my foot pain. The physical therapist hasn’t gotten back to me about that, so I’m not sure what’s causing it. Could be my shoes, since they’re really old (the non-adaptive ones I now wear). Please pray AFO guy and shoe guy will figure out the issue with my adaptive footwear soon.

If we were having coffee, I’d ask you to pray for my niece. I didn’t ask my sister permission to share her hip dysplasia diagnosis last time, which I think now is wrong, so I won’t be sharing any more details. However, she is definitely in need of continued prayers.

If we were having coffee, lastly I’d share that I’ve been really crafty over the past week again. I created some lovely polymer clay ornaments, as well as a hand cream and keychain for one of my fellow clients, who had his birthday on Wednesday. Yesterday, I encountered a lot of frustration with one of my Fimo Professional clays being very crumbly and hard. I eventually managed to restore it to health though.

How have you been?

#WeekendCoffeeShare (April 11, 2021)

Hi everyone on this cloudy and slightly rainy Sunday evening. I’m rather late writing my #WeekendCoffeeShare post this week. I’m having a rather hard time planning when to write, as I cannot concentrate on it when my one-on-one staff is with me and yet struggle to feel well enough to write when alone. I just finished my dinner, so no coffee for me as of yet (though with my parents, coffee after dinner was a ritual). If you’d like a Senseo though, I can make you one. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week was rather bad weather-wise. It’s been raining all week. On Monday and Tuesday, it even snowed a bit. It’s been near freezing cold too. How is your weather?

If we were having coffee, I’d share that this week, the physical therapist and orthopedic shoemaker came by to discuss my getting semi-orthopedic shoes. My current, store-bought shoes aren’t great for fitting my AFO in. They also have laces, which I can’t tie myself. I’ll hopefully hear next week what models they have available. I did try on a pair already, but this was just to get an idea of what I’d need.

Thankfully, the shoes will be fully covered by long-term care. This did lead to a bit of self-loathing, in that I feel like a burden for costing so much with my one-on-one, the weighted blanket and all the other costs and now this. I try to calm myself by thinking it wasn’t really my decision. Besides, I will most likely experience less pain when walking and be able to walk longer distances. Still, I can hear my inner critic say that I fake my mild cerebral palsy.

If we were having coffee, I’d share that, last Friday, I was in a crisis. I don’t even know what led to me starting to feel triggered. At some point though, I left my room at night. On my way to wherever, I bumped into something and swore. Then I decided I’m unforgivable anyway now and decided to self-harm. I’m okay physical wound-wise and the night staff eventually calmed me down. Still, I have been feeling really unsettled all weekend.

If we were having coffee, lastly I’d share how proud I am of myself for continuing to blog each day and sometimes more than once. Of course, I’m busy with the #AtoZChallenge, but I also managed several other blog posts. That’s pretty awesome if you ask me.

How has your week been?