#WeekendCoffeeShare (June 6, 2026)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare again. I just had my evening coffee and will probably take a break from writing this post to have my soft drink and chips at 8PM. Feel free to grab a cup of your favorite beverage and let’s chat.

If we were having coffee, first I’d talk about the weather. It’s been less hot and more humid than it used to be. The daytime temperatures this week were often around 18°C and it’s been rainy. We also had quite a few thunderstorms. I’m not liking the rain and still sweating as it’s still warmer than I’d like (is this perimenopause hitting?), but I tell myself this weather’s more normal climate-wise.

If we were having coffee, I’d share that I reached a perfect month with respect to my movement ring on my Apple Watch in May. So far, I’m still meeting my goal each day, though it’s been challenging with the rain. I didn’t complete my monthly challenge for May, by the way.

If we were having coffee, I’d share that I’m still struggling with my care situation and whether it’ll actually work here or not. The behavior specialist did reassure me that they can’t kick me out even if it turns out this place can’t provide the care I need.

I was worried about being kicked out after I had several more incidents in which staff used excessive force and I was quite blunt that I won’t have to put up with it. The meeting with the care confidante has been scheduled for the 16th. The substitute behavior specialist will be gone by then and the regular one will have the meeting with us. She can be a bit, well, challenging. This caused me to feel scared that, if I put my foot down that I won’t have to deal with force unless absolutely necessary to prevent/avert serious problems, she’s going to turn it into a battle around care refusal. I had this experience before. Let’s hope the meeting goes as well as possible.

If we were having coffee, I’d share that I did have some positive experiences this past week. On Monday, my staff and I decided to take pictures on our walk on grounds. I ran them through the image description tool built into JAWS and it was really good.





On Thursday, the same staff offered to help me create a soft pastel drawing using one of my unicorn templates. I hung it onto my bathroom door, but unfortunately it crinkled when I opened the door too many times, so I removed the drawing. I did snap a picture though.

If we were having coffee, I’d share that I cooked dinner twice this week. On Wednesday, I cooked minced meat, rice and vegetables for just myself. I didn’t really enjoy it, because I’d gotten it in my head that the mince was infected with prion-borne disease. My wife, who is a vegan, isn’t the right person to comfort me in this respect (though she did try), but she is the right person to advise me on how to cut back on animal products and eat more healthfully in general.

I decided to cook a vegetarian pasta dish this Saturday. On Wednesday, I had to make a grocery list for it and I decided kind of impulsively to cook the dish for my side of the home. I cooked orzo with spinach and tomatoes. I initially thought I wouldn’t like it (don’t ask me why I picked it then), but I did and so did my fellow residents!

I just ran the photo of this dish through the image description tool and I’m not as content with the description this time.

If we were having coffee, lastly I’d share that the final meeting with the divorce mediator will be on Tuesday. I’m struggling quite a bit with the reality of my wife and I divorcing. I mean, I try to tell myself we’ll remain best friends, but I can’t just shut down my anxious attachment style.

Besides, the behavior specialist does seriously wonder whether I’m in the right care home. I did tell her that, if it turns out it’s in my best interest to move again, I don’t want to be handed over like a parcel, like I was when I left Raalte and when I came here. This does have me consider several factors involved in potential new care homes, including the distance from my best friend. Like, if the most appropriate care home for me is across the country, does this mean I’ll be all alone there? It’s all quite complicated and stressful.

Creativity: How I Have Evolved As a Creative Over the Years #AtoZChallenge

Posted on by Astrid

Hi everyone. It’s late once again as I get to my letter C post. I don’t tend to think up my topics in advance. Same with this one. It actually popped up in my mind several minutes ago and here I am writing about my creative journey. Okay, I did my entire #AtoZChallenge of 2022 on creativity so am pretty sure I covered this topic already, but let’s do a repeat in that case.

I am not very imaginative. Like I said on Monday, I most likely have aphantasia. This combined with blindness and my other disabilities doesn’t make me all that great of an artist. And yet, I love to create!

In childhood, I’d often draw dresses and other fashion items, pretending I was a fashion designer. I lost the vision needed to draw around age 12 and, even though my drawing teacher found me paper that would create raised lines when drawing on it, I also hardly drew anything beyond stick figures in boxes from then on. Don’t ask me about their meaning – yes, I know they meant something, but for the life of me I can’t remember what.

I didn’t craft or create art again until my mid-twenties. Then I started card making. Over the next five years followed at least a dozen other crafts. And now, I’m stuck on polymer clay, although to be honest I don’t use the medium nearly as often as I used to.

Creativity can, of course, also involve the written word. I wrote stories from a young age on. I started out writing fiction and the occasional poem. Now, I almost exclusively write blog posts.

I must admit, as I think back on my creative journey, that my level of imaginativeness has probably declined over the years and I didn’t always experience aphantasia. Not that I ever had a rich inner world. Well, that is, I have and always had a strong inner monologue (or inner cacaphony, in fact) and could probably describe an inner world in words, but I couldn’t visually imagine it at all.

I think this lack of imaginativeness is the reason I write personal blog posts mostly and craft mostly realistic figures or things from tutorials. I mean, of course a unicorn isn’t real, but I almost literally copied my style of unicorns from a tutorial. Realizing this makes me feel really sad.

The Wednesday HodgePodge (June 28, 2023)

Posted on by Astrid

Hi everyone. I haven’t touched the blog in a few days once again. It’s for partly different reasons than last week this time though. The different reasons include the hustle and bustle of my birthday. It’s over though so today I’m back joining the Wednesday HodgePodge. Here goes.

1. What’s one thing you’re excited about in the coming month?
The last bit of my birthday celebrations when my mother-in-law visits me next week. We couldn’t visit my in-laws on Sunday. That is, technically we could, but since my mother-in-law was on call for the animal rescue service she volunteers for, it would have been quite boring for me.

2. What was your life like when you were ten years old?
It was a very difficult year. I turned ten on June 27, 1996. The day before my tenth birthday, I had my first out of what turned out to be only four sessions with a play therapist/educational psychologist. Given what I remember of those sessions, I wonder whether the therapist saw signs of autism back then. Either way, I’m pretty sure my parents decided after those four sessions that it was useless to continue. Fast forward to the end of my year of being ten, June of 1997, I had a psychological evaluation supervised by the same ed psych. This, and the recommendations that came out of it, led to my parents finally falling out with the school. Oh, how I wish I hadn’t been loyal to my parents back then…

3. What’s something from your childhood you still enjoy today?
Being creative, although not in the same ways. That is, I did love playing with play-doh (which one might say is somewhat related to polymer clay, even though real polymer clay artists will punch me in the stomach for saying it) as a young child. I loved drawing more though, something I obviously am no longer capable of. One thing I want to say though is that, even though I’m now totally blind, I still appreciate colors.

4. What state (that you haven’t been to) do you most want to visit? Tell us why.
I haven’t been to any U.S. states and honestly have no interest in visiting them anymore either. As for a country I’d like to visit that I haven’t been to: Sweden.

5. Do you like to drive? Tell us how you learned to drive.
Uhm, N/A. I don’t drive, as I’m blind. That being said, I doubt I could’ve learned had I not been blind, because my processing is about as screwed as can be.

6. Insert your own random thought here.
Today, I created a polymer clay flower pendant in just half an hour. I loved the entire process and it turned out quite good. In fact, the only thing I dislike about it is the fact that the eyepin’s direction is off.

I really need to be showing more of my creations on here, I think, as social media hardly work for me. I mean, I do try to use Instagram, although I wish it were more of a microblogging service with the pictures being optional. Then again, that’s what Twitter is supposed to be, but then again I despise Elon Musk. Oh well, the perfect social media platform doesn’t exist.

The Wednesday HodgePodge (March 22, 2023)

Posted on by Astrid

Hi everyone. I’m joining in with the Wednesday HodgePodge once again. Here goes.

1. Did you celebrate St. Patrick’s Day in some way? If so tell us how. Are you a fan of corned beef? Cabbage? The color green?
No, I didn’t celebrate St. Patrick’s Day. I am not a big fan of cabbage or corned beef, but it’s not like I hate them either. I do love the color green.

2. March 22nd is National Goof Off Day…will you celebrate? Your favorite way to goof off? Last time you had a whole day to spend “goofing off”?
I don’t work and can officially choose my own activities within my day schedule, although a lot of staff will suggest them for me. In this sense, I can “goof off” as much as I like, although it doesn’t often feel like it. My favorite ways to “goof off” would be reading, watching YouTube videos and chilling out with an essential oil diffuser on. By the way, crafting is also a favorite way to spend my time, but since I need support with that, I often don’t feel as playful about it as the expression “goofing off” reminds me of.

3. Something on your to-do list that has been there more than a month? Will this be the month you finally cross it off?
I don’t have a to-do list, honestly.

4. In your opinion, what emotion is the most beneficial? Which one is the least useful?
The most beneficial emotion, to me, is joy. Okay, yes, I copied that from Joyce but I completely agree. I had it as my word of the year last year. The least useful emotion, to me, is bitterness.

5. What was your favorite thing to do as a kid? Elaborate.
Many different things. I enjoyed playing with PlayMobil® until I was at least thirteen. I also loved sitting on the swings in my garden. However, I was also quite nerdy, enjoying geography and drawing maps by hand (obviously not detailed at all due to my severe visual impairment and my poor spatial awareness). My favorite map to draw was that of Italy.

6. Insert your own random thought here.
Just a thought: for those of you who don’t need care, can you imagine what it’d feel like if, each day, five or so different support people, often random strangers, showed up in your home claiming to want to do an activity with you? How about if they felt entitled to ask you personal questions to “get to know you” without disclosing much about themselves (after all, they’re “professionals”). What if, after six months, you’d seen literally over a hundred of them, if not several hundreds? How would it make you feel? I just asked a staff, who is a temp worker here but has supported me about ten times now so I’m supposed to “know” him, this question, after I got very irritated with another temp worker (who’s supported me about five times). The more familiar temp worker seriously replied that he wouldn’t mind who got into his home as long as they’d do the activity with him. I guess this means needing care is too far out of his realm of experience to understand the question.

Childhood Creative Endeavors #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter C post in the #AtoZChallenge. Today, I initially wanted to write about cardmaking, but I don’t feel like that now. Instead, I’m going to talk about my creative endeavors as a child.

As a young child, I had a bit of useable vision that allowed me to use colors sort of appropriately (that is, as appropriately as a sighted child my age could). I loved learning about the names of unusual colors. I remember, in particular, learning that the sixth color of the rainbow is indigo, which I was fascinated by.

I could do some basic drawing too. In Kindergarten, I went to mainstream school with hardly any accommodations. I remember having to color inside the lines of a piece of paper, giving each little shape within the drawing a different color and not leaving any white. When, several years later, I looked at it, I saw considerable white. I have no idea how I compared to the other kids though.

By the age of eight, I’d lost the ability to tell most shades of green and blue apart, but I continued to love drawing until I was about age twelve. Then, I realized I’d lost so much vision that it’d make no sense. Even so, before then, my drawings up till that age remained comparable to a Kindergartner’s in quality.

When I went to special education, I was taught other creative activities. I remember making at least a dozen origami frogs in second grade. However, my teacher did at one point write on my report card that she wished she were two teachers so that she could teach together. In other words, I required so much attention that she’d really need to split herself in half to be able to teach the class too.

My parents bought a pottery kiln when I was about eleven, so I also tried my hand at ceramics. I wasn’t too good at it, leaving fingerprints on my work all the time, but at least I enjoyed the process.

Writing also was a lifelong passion of mine. I can’t, in fact, remember a time when I didn’t enjoy writing. At first, I’d make up stories to go along with my drawings. As a tween and teen, I wrote stories that were somewhat or very much related to my real life. My greatest achievement is a work in progress, a young adult novel by the working title of “The Black Queen” about a teen whose mother has multiple sclerosis. This story, though it had autobiographical elements, was inspired by a conversation I overheard about a classmate.

Did you love creative activities as a child?