My Bedtime Routine

Posted on by Astrid

Hi everyone. I’m feeling a little stressed out and, as it is past 9PM as I’m starting to write this post, I thought I’d share about my bedtime routine in order to get myself comfy and relaxed for bed.

Usually, the staff come by my room at around 9:45PM to help me get ready for bed, like get into my pajamas and brush my teeth. I usually leave my socks on, as I’ll often want to stay up a little longer. The evening shift here at my current care home ends at 10:30PM, so the staff usually say goodbye then too and turn off my light. In the care home I may move to on October 5, the evening shift ends at 10PM, so I may want to move my bedtime back a little.

I can go into bed by myself, but sometimes I want the staff to stand by while I go into bed. I will pull off my socks. Then, I’ll grab my iPhone if it’s sufficiently charged and select a Spotify playlist to play on my music pillow. The music pillow is connected to my iPhone via its lightning port (and a lightning-to-audio converter). I love the Harp Lullabies playlist, the Guitar Lullabies playlist or some albums by Robbins Island Music Group or Dan Gibson’s Solitudes. I most commonly set the sleep timer for an hour.

I sometimes will have an essential oil blend in my diffuser too. Some aren’t very suited to sleeping, but I know of a number of relaxing essential oil blends, four of which I shared before.

I have a weighted blanket, which I pull up over me almost till my chin. I also will grab ahold of one of my soft toys. Sometimes, I’ll lay the tail of the lemur over my chest, while at other times, I’ll hold the dolphin or unicorn.

Sometimes, I need to shift my sleeping position. I can sleep in every position except on my right side, but my preference will vary. Once I’ve found a comfortable position, I’ll likely doze off pretty quickly.

The night staff does come by at around 11:30PM to check on me. This is mostly to prevent me sitting up all night without anyone noticing. I can also press the call button if I can’t sleep, but of course other than try to comfort me, there is little the night staff can do. That being said, I sleep a lot better now that I have the weighted blanket, music pillow and essential oil diffuser than before I had all these.

loopyloulaura

My Safe Space

Posted on by Astrid

A few months ago, my former behavior specialist introduced a kind of visualization exercise to me called something like “A safe space” It doesn’t necessarily involve just visualizations though. Rather, the idea is to imagine your safe space, real or imaginary, in as much detail as you can. For today’s blog post, I’m going to describe mine.

I am in a kind of artificial forest surrounded by trees. The ground, however, is smooth, so that I can walk on it. When I want to rest, I can sit on a soft, cushioned bench in the forest. It feels like moss, but smoother and velveter. I can pull a weighted blanket over me when I want to fully relax. Of course, it’s always comfortably warm here.

I smell the scent of various plants and trees in the forest, such as lavender, sweet orange, pine, etc. They vary with the time of day or week and with the seasons, creating ever-changing combinations of aromas.

There are, of course, unicorns in the forest. The unicorns have all kinds of colors and sparkly or shimmery or glow-in-the-dark mane, creating a beautiful sight. Since my safe space is imaginary, I can see well enough to actually perceive these colors and sparkles and everything. When I feel like it, I can ride one of the unicorns. I can also cuddle with the colts and fillies. The unicorns comfort me.

There’s water in my safe space too. It has all the pros of a swimming pool (the cleanliness, smooth surface to stand on at the shallow end, etc.) but is still natural in a way. There are dolphins in the water that I can do dolphin therapy with.

I hear calm harp music and birdsong in the background when I’m in my safe space. Sometimes, the birdsong is replaced by dolphin sounds.

All combined, the unicorns and dolphins with the music, scents, and comfortable feel of the weighted blanket, will calm me.

Of course, aside from the real dolphins and the unicorns, everything I have in my imaginary safe space, I either have in my real room at the care facility or could somehow create elsewhere. I mean, I have a weighted blanket, an essential oil diffuser, a music pillow and a Spotify account to create the soothing music. The staff also offered to take me swimming once in a while again and I could obviously find a real forest (though that does not have the smooth ground to stand on). I can still imagine many colors in my mind, so this visualization exercise may help me create the colorful experience of the unicorns I described above. In truth, though merely imagining a safe space isn’t necessarily going to make me feel any calmer, it does get me closer to realizing the things I have right here in order to create it.

loopyloulaura

Reasons I Think I Want to Stay in My Current Care Home

Posted on by Astrid

Last week, I was discussing my insecurity about living in my current care home with my assigned home staff. I still keep searching for another place to live, even though staff keep reassuring me that I don’t have to leave. Part of the reason for this is probably habit, in that I feel I ought to be looking for another place because that’s always been the case. However, my assigned staff also challenged me to write down a list of reasons I want to stay in my current care home and a list of reasons I may want to leave. Today, I’m going to share my list of reasons I think I want to stay. I’m pretty sure I won’t be sharing my list of reasons I may want to leave, as these are more like things I am hoping to find a solution to within my current care situation. Anyway, here are the reasons I probably want to stay in my current care home.

1. My one-on-one support. Of course, this is government-funded and may be transferable to another care facility, but I do like the fact that my current care team really think my care is important, in that staff shortages won’t easily mean my care will be cut.

2. The fact that I have gotten to know most of my staff. Of course, no-one can guarantee they’ll remain part of my team for the foreseeable future, but if I leave, the whole team will be new at least at first.

3. The fact that my staff help me with activities of daily living. This is a bit of an uncertain thing, as I sort of feel I ought to be able to do more of them independently.

4. The fact that I get day activities in the home and am the only one who does for now. Even though it may be possible to get day activities in my room at another care facility, I might not be the only one. I like the peace and quiet during the day as it is now.

5. The fact that fellow clients hardly make an appeal on me. Most leave me alone most of the time. This is a good thing, but I did put in my other list that I wish to interact with other clients somewhat more than I currently do.

6. My own room with my private bathroom, kitchenette and balcony. Thankfully, shared rooms are no longer in existence within disability services as far as I’m aware, but shared bathrooms definitely are.

7. The weighted blanket the care facility paid for me to sleep under. I mean, seriously, if I were to transfer to a different care agency, I’d lose that too.

8. The Internet access. Pretty much unrestricted, mind you. At least, I haven’t run into any sites that are blocked by the care facility’s WiFi. At least social media and games are allowed. I’m not particularly interested in anything adult content, so haven’t checked that. I can also use the Internet whenever I please, including at 3AM should I so desire (which I occasionally do). I am pretty sure some other care homes would be more restrictive about this.

Overall, looking over this list, I think that, while things aren’t perfect, my care home is pretty good. Actually, I am quite sure it’s pretty much the best I can get.

loopyloulaura

The Wednesday HodgePodge (March 23, 2022)

Posted on by Astrid

It’s Wednesday and I’m joining the Wednesday HodgePodge again. In honor of daylight saving time, I think, the questions this week revolve around the topic of “time”. Here goes.

1. What’s something you never seem to have enough time for?
Blogging. I usually write my blog posts at the end of the day, because I need enough alone time to be able to compose a blog post and I don’t have long chunks of alone time during the day. That being said, the issue probably isn’t that I don’t have enough time, but that I don’t allow myself enough time to start on a blog post if I don’t have time to finish it within that chunk of alone time. Right now, I changed that by starting my blog post in the staff’s lunch break and now I’m finishing it between day activities and my evening one-on-one coming on.

2. If you could turn back time and relive just one day in your life, which day would you choose and why?
This is such an interesting question. Like Joyce, I believe there already is a perfect timekeeper of the universe, ie. God, and to interrupt His timekeeping would not just be impossible, but if it were possible, would lead to disastrous results. That being said, in the hypothetical event that turning back time and reliving one day of my life would not alter the rest of it, I would choose the day of my wedding in 2011.

3. Something you enjoy making that takes a long time to prepare/cook?
I’m assuming we’re talking just food here, since there’s a reference to cooking. For me, cooking even relatively “simple” meals takes up a lot of time. When I still cooked independently, it used to take me at least 90 minutes to prepare and cook a standard macaroni, for example. After all, I needed to do a lot of organizing before I could even get started and I’m a slow cook too. For this reason, I don’t think there’s anything I really enjoy making that would take other people a lot of time to prepare or cook. In fact, now that I get help on the rare occasion that I do cook, I still prefer to make relatively simple meals. The pilaf I cooked last week was really the most time-consuming dish I’ve cooked so far since moving into the care facility.

4. A time recently where you needed/gave yourself a ‘time out’? How do you do that?
I don’t like resting during the day, even though I need to at times. When I had COVID last month, I really had to force myself to lie in bed. Taking time-outs usually involves resting in bed with my weighted blanket over me and my stuffed animals near me, listening to soothing instrumental music through my music pillow and with an essential oil blend in my diffuser.

5. Something you’ve done recently that you’d describe as a ‘good time’?
Yesterday, my mother-in-law came by for a visit. We went for a walk and a coffee and pie in a nearby town. The pies were too sweet for our liking, but the coffee was okay and at least we had a good time enjoying each other’s company.

6. Insert your own random thought here.
This coming Saturday, if I don’t get a cold from one of the several staff who have been working here with cold symptoms (they tested negative for COVID, of course), I’ll be taking a ParaTransit taxi to my and my husband’s house in Lobith. If I do get a cold, I will most likely stay at the care facility and will certainly not take the taxi. Though all mandatory COVID-related restrictions and requirements were lifted today, I still don’t want to infect anyone. Let’s just hope I won’t get a cold, as I’m really looking forward to spending time in Lobith again.

Gratitude List (January 28, 2022) #TToT

Posted on by Astrid

Hi everyone. I have been doing my gratitude posts on Saturday lately, but today I feel in the mood for one and I don’t care that it’s Friday. Since the Ten Things of Thankful (#TToT) linky is live already, I’m joining in with it. Here goes.

1. I am grateful for Chinese takeout on Sunday. It was delicious! Originally, the staff had been planning on cooking noodles herself, but then due to another staff contracting COVID, shifts got moved around. The staff who would be cooking the noodles, had ordered shoarma to go with the noodles, which was a combination neihter me nor the staff who was now going to cook liked. In the end, we decided to put the shoarma in the freezer and get Chinese takeout.

2. I am grateful my husband, who got ill with the flu last week, is better again. He tested negative for COVID, thankfully, and was able to return to work on Tuesday.

3. I am grateful a fellow client, who went into hospital earlier in the week, was able to come home again.

4. I am grateful for fried fish for lunch on Tuesday. Originally, I felt bad about doing something that wasn’t on my food plan twice in one week, but I thoroughly enjoyed it anyway. In addition, thankfully, the dietitian reassured me that this is completely within reason.

5. I am grateful I lost 1kg over the past week and have only 0.2kg to lose to cross the border from obese to overweight. I am also grateful that the dietitian isn’t expecting me to lose weight quickly. Furthermore, once I am in the overweight category, the main goal is to prevent weight gain really.

6. I am grateful for the support of my assigned staff. Last Wednesday night, I hardly slept at all and I sent her an E-mail in the middle of the night. The next morning, even though she hadn’t read my E-mail yet, she woke me up despite actually not being my staff for that morning. We had a very good talk.

7. I am grateful for the support of my nurse practitioner. He doesn’t really know what will help me in the way of medication or whatever yet, now that we’ve more or less concluded that the topiramate isn’t as effective as we’d hoped. However, he’s enlisting the help of the psychiatrist.

8. I am grateful I finished my first handmade polymer clay necklace in time to give it to a fellow client in the care home downstairs from mine for her birthday today. It took me over a month of hard work, but I am so proud of myself for finishing it! I am also grateful she was very happy with it.

9. I am grateful for an extra weighted blanket when I feel very anxious. I always use a blanket filled with sand-like granules when sleeping, but when I feel very anxious, I can add a ball-filled blanket on top of it for extra deep pressure.

10. I am grateful I was able to solve at least one of the problems the most recent iOS update was causing with VoiceOver on my iPhone. Since updating, VoiceOver’s speech prefaced every character I typed by “Underscore”. This turned out to be due to a setting that had been switched by the update or something. Unfortunately, some problems, like Braille display sluggishness, persist.

What have you been grateful for?

Describing My Favorite Place

Posted on by Astrid

For her first writing prompt, Ebar asks us to describe our favorite place using all five senses. I was thinking of sharing something about my favorite place in the entire world just yesterday. As someone who doesn’t feel she belongs anywhere, the concept of a favorite place is hard to comprehend. However, right now, my favorite place in the entire world is where I am at this very moment: my room in the care home. Below, let me describe it using my five senses.

I can see the light being on. Though I cannot usually see the colored LEDs on my essential oil diffuser due to being blind, I know they are there and appreciate them. I can see through the windows. Well, not right now as it’s dark outside and the curtains are drawn, but during the day, I can.

I can listen to the sound of soothing music on my music pillow, or to my text-to-speech software on my computer or iPhone through my headphones. I can also sometimes hear the door behind which the laundry and trash cans are stored slam shut right below my room. I don’t like that sound, but the staff are looking into the technical people doing something about the door being made less loud. I can hear the sounds of other clients and staff elsewhere in the home. I may not always like those sounds either, but they are the sounds of my room. I was almost going to say they are the sounds of home, but calling my room “home” just feels like it’s a step too far as of yet.

I can feel the fabric of the chair I’m sitting on. I can feel the characteristic floor my feet touch. When I’m in my bed, I can feel the comfort of my weighted blanket and my stuffed animals.

I can smell the scent of whichever essential oil blend I choose to put into my diffuser when I want to. Lastly, I can taste the meal delivery service meals in my mouth. I can select from their menu and, though the meals aren’t great and there’s a particular lack of variety, some are quite delicious. I’m going to pretend we have lasagne for the sake of this post.

What’s your favorite place like?

Appreciating the Five Senses

Posted on by Astrid

In Journaling with Lisa Shea, Lisa asks in one of her journaling prompts on gratitude to name our favorite sense and describe in detail what we appreciate about it. I couldn’t possibly pick one sense, so instead, I’m going to describe what I appreciate about each of my five senses. Yes, five, since I am including sight. Here goes.

Sight

First of all, I obviously appreciate the fact that I could once see colors. I am no longer able to see those, but thanks to my sight and my imagination, I am still able to perceive them synesthetically in my mind’s eye.

I also still appreciate the tiny bit of light perception I still have left. Thanks to it, I can see the sunshine, though I can no longer perceive the beauty of a sunrise or sunset.

Hearing

I appreciate my sense of hearing, because it allows me to listen to music. I love all kinds of music, from upbeat songs to dance to, to quiet instrumentals.

My hearing also allows me to hear the sounds of nature, both in real life and as soundscapes on my phone. I particularly love water sounds, such as streams and waves (not rain!), as well as birdsong.

Touch

I’ve covered most of the reasons I appreciate my sense of touch when I wrote about my hands. However, other than my hands, I also love the sense of touch on the rest of my body. I am a true lover of deep pressure, which is why I have a weighted blanket.

I realize now I should’ve included a separate heading for the vestibular sense. However, it is mostly the sense of touch I appreciate about it when I am on a swing or waterbed or the like.

Smell

Well, do I really need to explain? I’m going to mention essential oils of course! When another blogger asked us which sense we’d let go of if we had to choose one, after taste (which I’ll get to in a bit), most people said smell, but I said hearing. After all, I really can’t imagine having to let go of my beloved essential oil scents.

Taste

The reason most people chose taste to let go of first, is that in essence what we perceive as taste is mostly smell. However, for the sake of this post, I am going to assume that my food tasting is an actual sense of its own. I really appreciate it, though to be fair I’m more of a food texture lover. In terms of both taste and texture, I am undersensitive, in that I need a lot of stimulation to feel satisfied. This is one reason I can’t stand mash. But I love tasting good, spicy food.

What do you appreciate most about your senses?

Linking up with #LifeThisWeek.

Things That Made Me Smile (March 22, 2021) #WeeklySmile

Posted on by Astrid

Hi all on this lovely Monday! I am so excited to have discovered the Weekly Smile. This is, as the name suggests, a weekly blog event in which participants share what made them smile. Having discovered this meme itself is a reason to smile. I love being positive! Let me share what else made me smile.

First up is my new assigned staff’s kindness. Like I said in my #WeekendCoffeeShare post on Friday, I have a new assigned staff. She is calm, kind and very dedicated to her job. I initially worried she might get too attached and then have to withdraw as my assigned staff. She reassured me though that she maintains her professionalism.

Yesterday, I was feeling a bit triggered. The student staff, with whom I am not fully comfortable yet, had been my one-on-one for the evening. In addition, a male staff may get to work in my home soon. He seems kind enough, but still, it’s an adjustment. All this led me to feeling a bit stressed out when I was going to bed. Thankfully, my new assigned staff comforted me.

After the staff had taken me to bed, I pressed the call button a few times for the staff to come back, but she didn’t mind. She has this little rhyme she tells me each time she puts me to bed. It goes something like this:
Sleep well,
Head on the pillow,
Ass in the straw,
Then Astrid sleeps soon.

This time, the staff adjusted the rhyme to address not just me, but all of the voices (alters) inside my head. That definitely made me smile.

Second is my sensory room experience that I was able to create in my own bedroom. First, I found a calming essential oil blend to put in my diffuser. Then, I found the album on Spotify that I used to have in the CD player in the day center’s sensory room. It is called Songbird Symphony. Lastly, I crawled under my weighted blanket and had my staff cover me with the ball-filled blanket that came with the sensory bed from our makeshift sensory room. In total, I had at least 20kg of weighted blankets on top of me. This probably isn’t healthy for actual sleeping, so I threw off the ball blanket before actually drifting off to sleep. However, the feeling before this was so peaceful. It reminded me of Temple Grandin’s “hug machine”. Reading about that introduced to me the comforting effect of deep pressure years before I felt able to explore my own sensory experiences. Now, I totally appreciate my care staff, physical therapist and the manager for having helped me find my sensory comfort.

What made you smile this past week?

Creating a Sensory Room Experience in My Own Bedroom

Posted on by Astrid

It’s been a year since the day center closed. For the most part, it was a good thing for me. I, after all, was often overwhelmed in my day activities group. One thing I miss about the day center though, is the sensory or snoezelen® room. Today, I am sharing how I recreated a sensory room experience in my own bedroom. Since I am blind, I skipped the visual aspect mostly, but I’ll add some ideas for it regardless. That way, you can create a sensory environment for yourself.

Sound

In the day center sensory room, we have a really cool speaker system that’s attached to the bed. It isn’t likely that advanced, so with some speakers at the right position, you may be able to recreate it. I don’t own wireless speakers. However, I found that I can recreate similar effects with earbuds or headphones. I would recommend earbuds for better positioning, but since I don’t have wireless ones, I use my wireless headphones anyway.

I mentioned before that I use an app called MyNoise. This app has over 120 soundscapes and you can customize each individual sound to your own hearing. There are nature soundscapes, but also white noise, Buddhist-like and SciFi soundscapes. I prefer the nature ones.

Like I said, I don’t own wireless speakers, though I might want to invest in some at some point. My phone or computer speakers work okay when listening to music though. There are many calming playlists on Spotify and undoubtedly other music apps too. The ones I love most are Harp Music for Sleeping, Peaceful Guitar and Peaceful Piano. There are also a number of nature sound playlists.

I at one point wanted a music pillow. I may still buy one at some point, but I haven’t yet found one that’s big enough to be used as a sleeping pillow and also works with Bluetooth.

Smell

One thing that my bedroom has and the snoezelen® room didn’t, is an aromatherapy diffuser. I have posted many times about my love for it. Mine cost €40, but they start at as cheap as €15. Essential oils can be a bit expensive depending on the quality you choose. I am obsessed with creating my own blends, so I really like to have a large collection of essential oils. However, if all you want is a nice smell, fragrance oils are also great.

Touch

In the day center sensory room, we had a specially designed waterbed. That felt good, but my own bed is also a pretty good substitute. I usually turn up the head side of the bed slightly.

A thing that’s a true blessing for my senses though, is my weighted blanket. These come in different forms. Some are filled with plastic balls. Mine is filled with sachets filled with granules. It’s a rather expensive blanket at over €500. Thankfully though, my care facility paid for it. With the company we used, you can borrow the blanket on a try-out basis for two weeks for just postage. That helped me make sure it was the right one for me. Mine weighs 12kg, which is relatively heavy considering my body weight of 70kg, but I actually love it this way.

I put a flannel duvet cover over my weighted blanket in winter. When it’s really cold or I need some extra softness for sensory reasons, I use a fleece blanket too.

In addition, I have various soft toys. My favorite is an ordinary stuffed bear. However, I also have a 1.60m large stuffed bear that I got from my mother-in-law for my birthday last year. This one was probably quite expensive. Another of my favorite soft toys, is my sensory cat. This stuffed cat can be microwaved and then gives off heat and a lavender scent.

Sight

Like I said, I am blind with the exception of a tiny bit of light perception. I for this reason don’t benefit from visual stimuli. That being said, I do know a bit about making your room visually appealing to the senses.

My essential oil diffuser works as a night light too. It can be set to seven different colors and I believe also two intensity levels.

Of course, you may want to use your sensory room experience for more than just sleeping. I’m pretty sure in my care home’s makeshift sensory room, the staff put up some form of Christmas lights for the visual effect.

In addition, there are many different visual projection systems. My care facility owns the Qwiek.

Conclusion

I really love my makeshift sensory room in my own bedroom. Generally speaking, creating a true sensory room requires a lot of money. I am so glad though that I could buy some equipment myself or ask for it as a gift. That way, I was able to skip the unnecessary for me expensive things and find things I truly would use. I am very glad that my facility paid for the weighted blanket.

loopyloulaura

Lovin’ Lately (October 9, 2020) #Blogtober20

Posted on by Astrid

Okay, I’m once again pretty late writing a post. I’m seriously uninspired today. The #Blogtober20 prompt for today, “Imagine”, didn’t evoke anything in me. Since the prompts are optional, I could of course do a gratitude list or lovin’ lately post. That at first didn’t feel good with the challenge, as I wanted to write originally for the challenge, but so what? Sharing my likes and loves might bring you joy! Today, let me share the things that I’ve loved lately and that bring me joy.

1. The weighted blanket. I already mentioned it a few times this past week but yesterday, it was decided that I can keep it. My care facility is paying for it. I am very happy about this.

2. Yet more essential oils. On Tuesday, some new oils arrived, including cinnamon, clove, lemon and orange. I now have over 20 different oils and can make a lot of lovely blends. Right now, I’m diffusing a Christmassy blend of cinnamon, patchouli, clove, orange and ylang ylang. I am completely in love with the most recent additions to my oil collection!

3. Soap making. I love to make melt and pour soap. On Monday, a staff asked me to make one for a relative of hers. I got down to making it on Tuesday right away. She had requested rose fragrance, so I decided to also try out my red mica colorant. Because you only need a tiny amount of it, I decided to make two soaps: one for the relative and one for the staff herself. The butterfly is for the relative and the square one for the staff. In case it isn’t readable, the square one has “100% hand made” written on it.

4. Free and cheap books. I cannot remember who it was, but a fellow #Blogtober20 participant shared some tips on getting free or cheap books legally a few days ago. One of them was BookBub. It’s a U.S.-based (and maybe UK-based too) site that collects book deals from the main book retailers, such as Amazon, Apple Books, Kobo, etc. It sends out a daily E-mail with that day’s deals. Through BookBub, I found quite a few interesting books.

Of course, since I’m in the Netherlands, I got an error once trying to download a free book from Amazon.com. However, I looked it up on Amazon.nl and it was free there too. The first one I got is a cozy mystery called Killer Cupcakes by Leighann Dobbs. It’s the first in a series, but if I’m correct, the books can be read as standalones too.

5. Products from The Body Shop. I must say I haven’t bought any yet, but I’ve been oohing and aahing at their advent calendar and their pumpkin vanilla product line too. I’m pretty sure I’m going to buy the pumpkin vanilla hand cream if it isn’t sold out already.

What things brought you joy lately?

#Blogtober20