#WeekendCoffeeShare (June 4, 2022)

Posted on by Astrid

Hi everyone on this warm but windy Saturday afternoon. It’s been a while since I joined #WeekendCoffeeShare, so I thought I’d participate once again. I’ve just had my afternoon coffee, but the other clients are still having theirs, so grab a cuppa if you want. I also have a delicious loose-leaf herbal tea that I swapped with my assigned staff for the lemon and mint flavored green tea that came in a box I’d acquired back in February when I had COVID. After all, back then the staff had taken the entire box to my room and only then realized that because of the risk of contamination, she couldn’t take it back to the kitchen. It contained four varieties of green tea: plain, lemon, orange and mint. I like plain and sometimes orange only, so now that I trust the box isn’t laden with viruses anymore, I gave the other two varieties to my staff. Anyway, the herbal tea contains cinnamon, lavender and I don’t know what else, but it’s truly lovely. Let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that this week was rather intense emotionally. On Monday, we welcomed a new resident to my care home. She’s quiet and doesn’t seem to need a lot of care, but the fact that she can walk independently and yet does have a profound intellectual disability, does create some of its own risks.

The door to the home now needs to be locked for her safety. She can’t work keys, so the key remains in the lock during the day for me to open it. (At night, it’s been out for years already for my safety.) This does create some inner turmoil in me, both because of the lack of clarity (either the door is locked or it is not, in my mind) and because of my feelings about the presumption of competence for me. I mean, I am an elopement risk too and some recent events in which I’ve been quite a possible danger to myself while running away, do make me feel weird. On the other hand, I really don’t want to go back to my time on the locked psych unit.

If we were having coffee, I would also share that, on Wednesday, my assigned home staff captured one of my child alters on video while playing with one of the new resident’s sensory toys. She later asked my permission to forward the video to the other staff and the behavior specialist. I at first said yes, then felt a little anxious but eventually decided to give my permission after all.

If we were having coffee, I’d tell you that I did finish all the presents for my sister and nieces on time for my visit to the family tomorrow. Besides the earrings I created for my sister and the mobile for little Wolke (that’s the baby’s name), I created a polymer clay bear for Janneke, my older niece.

Deciding when exactly we wanted to visit, was a bit of a hassle, since I’d forgotten my sister and her children of course need to sleep during the afternoon and I had more or less filled in for my husband that a morning visit wouldn’t be possible because of the long drive. Finally though, we agreed that we’d be at my sister’s by 11AM tomorrow and have lunch there. My husband insisted on picking me up here in Raalte tomorrow. Now that I think of it, I realize that it makes perfect sense, since he, unlike me, is a morning person. Oh well.

If we were having coffee, I would share that I went clothes shopping this morning with my staff. I bought three pants and two shirts and immediately wanted to put most of my old pants in a bag for the charity shop, because they’re way too wide. I didn’t in the end though, because I want to give it some more thought.

If we were having coffee, lastly I’d report that I’m now under 69kg, yay! I have now lost exactly 3kg since starting my healthier living journey back in January. Of course, that’s not much, but it’s better to go slow and keep losing than to go fast and then gain all the weight back because you’re tired of the healthy lifestyle after a while.

How have you been?

#WeekendCoffeeShare (May 7, 2022)

Posted on by Astrid

Hi everyone on this Saturday evening. It’s rather late for coffee in my corner of the world, but I’m joining #WeekendCoffeeShare anyway. I don’t know whether we still have soft drinks in the fridge, as I don’t really care for them. My dietitian said that, if I don’t rate a treat at least an eight out of ten on how much I love it, I really should question whether it’s worth taking in the calories for it. Since soft drinks, including diet Dubbelfrisss, are extras, and I don’t rate them an eight out of ten at all, I’d much prefer water. That being said, if you’d like a soft drink, you’re more than welcome to go over to the staff or look in the fridge yourself. Let’s have a drink and let’s catch up.

If we were having coffee, I’d ask about your weather. Ours is good. We’ve had lots of sunshine, warm temperatures and almost no rain. In fact, I found myself pretty happy that we got a tiny bit of a drizzle this morning. Nature needs it (but then again it needs far more).

If we were having coffee, I’d share that this week started out rather rough, but has improved significantly as it progressed. I had some good meetings this week and we set out on the path of finding me a more suitable care home. For this purpose, the behavior specialist gave me some open-ended questions to think about for a “care home profile”. The answers I, my staff and the behavior specialist come up with will then be sent out to the care consultants within my care agency to hopefully find me a more suitable home.

If we were having coffee, I’d proudly tell you that I did quite a bit of walking this past week. I was finally able to go for a few 30-minute walks. They were exhausting, but I did it and I didn’t even use the elevator to go back up to the care home after the walks. Here’s hoping my physical fitness level is finally returning to some semblance of normal after the winter of me sitting on my ass and contracting COVID to top it off.

If we were having coffee, I’d tell you that, on Thursday, my one-on-one staff asked me whether I’d like to go to her home in the countryside to see her goats and their lambs. I loved it! Here are some pictures of me with the goats.



If we were having coffee, I’d tell you that, early this evening, I was startled because all doors in the entire home suddenly slammed shut. This normally happens when the smoke alarm goes off, but there was no smoke nor was there a smoke alarm going off. As it turned out, there was some power outage somewhere within the system. They’re currently working on solving it.

If we were having coffee, I’d share that I bought Cernit translucent polymer clay and am totally in love with a lot of tutorials that use it. I also looked up tutorials on how to use micas on polymer clay, since I still have some left from my soaping days. I can’t wait to start actually crafting again.

That being said, if we were having coffee, I’d tell you I’ve been struggling with wanting to do more than I can handle emotionally or physically lately. I’ve also been struggling with the staff overestimating my capabilities. It’s all rather frustrating when I want to be independent and productive but can really not cope.

If we were having coffee, lastly I would however say that I still find escapism in reading, listening to music, blogging and watching YouTube videos even if I don’t get to actually make the things I see.

How have you been?

#WeekendCoffeeShare (April 24, 2022)

Posted on by Astrid

Hi everyone on this last Sunday afternoon of April. Can you believe that we’ll be in May this time next week already? I certainly can’t. The weather’s okay: sunny and about 16°C. I can’t wait for higher temperatures though. Anyway, I’m joining #WeekendCoffeeShare today. I haven’t had my afternoon coffee yet, but am likely going to take a break while writing this post to have it. You can have a cup as well. The staff are also trying to get me to try some type of drink that sounds much like what Americans call Kool-Aid: a powdered substance (sugar-free or so I’m told) that you add to cold water and that then creates the flavor of juice. I’m pretty sure I’d prefer plain water though. Anyway, we have this stuff in the apple-flavored variety, so if you’d like a drink of that, get yourself one. Let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that this week, I’ve been experiencing quite the rollercoaster ride of emotions. Due to a number of triggers, I got to doubt once again whether I want to stay in my current care home forever and, on Thursday, I more or less decided that I at least want to discuss the possibility of looking for another place. I have no idea whether a voluntary move is even possible and it’s certainly not something I’m looking to decide on quickly. My assigned home staff E-mailed the behavior specialist and manager to see if they can discuss the possibilities and process with me.

If we were having coffee, I’d share that I also experienced quite a bit of emotional dysregulation recently. I am having some major flashbacks and identity confusion. It looks like a new factive alter (an alter based on a real, outside person) may have formed recently.

If we were having coffee, I’d tell you that tomorrow, I’ll finally be discussing lowering my antipsychotic dosage with my nurse practitioner. I’ll most likely take the first step sometime in early May. Even though I’m not feeling at my best right now, I want to move forward with it.

If we were having coffee, I would share that I did enjoy doing some polymer clay work recently. Mostly, I just mixed colors. Like I said before, last week, I got the Fimo Professional true colors six-pack, which comes with a mixing chart, from the day center. I love it! My mother has her birthday on Thursday and I’m fully intending on making her a tulip out of polymer clay with all colors I mixed myself.

If we were having coffee, lastly I’d share that I went to Lobith yesterday. It was good being with my husband once again. We got Domino’s pizza and had orange tompouces (a Dutch-specific pastry) in honor of King’s Day on Wednesday. This morning, my husband went out to the local bakery to buy us croissants. Yum!

How have you been?

#WeekendCoffeeShare (April 10, 2022)

Posted on by Astrid

Hi everyone! I’m joining #WeekendCoffeeShare today. I just had a soft drink and a glass of water, but if you’d like a cup of coffee or tea, I’m pretty sure my staff can make you one too. Let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that a fellow client passed away on Wednesday. He had had COVID back in February, like most of us, but he didn’t fully recover. This client had been hospitalized several times during December and January because of seizures, but these finally seemed to be well under control. Unfortunately, COVID was the last straw. He had been on a feeding pump ever since he’d had COVID, but because he became increasingly uncomfortable and unresponsive, the doctor and staff decided to discontinue his feedings on Monday. I last saw him alive Monday evening. He actually lifted up his body, smiled and squealed with delight upon hearing my voice. I made the conscious decision, having already been informed that he’d be dying soon, to keep this memory as my last memory of him while alive.

If we were having coffee, I’d share that I finally managed to craft another butterfly with the silicone mold I’d gotten for Christmas last December. I badly wanted to create a butterfly to go with the fellow client’s coffin, but wasn’t sure whether I could use the mold. However, other tutorials seemed even more complicated, so I eventually decided to give it a try. I did the wings in Fimo Effect color blue ice quartz. The body is pacific blue and the antennae are black.

If we were having coffee, I would also tell you that I have finally given in to the polymer clay color mixing thing and bought a precision kitchen scale. That plus a collection of 60 Fimo soft color recipes. Of course, I haven’t tried Fimo professional yet, but if I have to believe my staff, the colors I’ve mixed so far turn out gorgeous despite not being done with the true primary colors.

If we were having coffee, I’d tell you about the nationwide cerebral palsy day I went to yesterday. Of course, because the ParaTransit taxi had arrived at 8AM and we didn’t have to pick up any other passengers along the way, I was in Apeldoorn, where the day would be held, by 9AM. Thankfully, I had called my mother-in-law when I entered the taxi and she’d made sure to be there on time too.

The day started with a live-streamed lecture by Erik Scherder, a neuroscientist from Amsterdam. The message was quite similar to the one he’d conveyed in 2018 when I’d attended the cerebral palsy day too: that exerting yourself physically is needed to stimulate your overall neurological wellbeing. In 2018, the lecture had mostly been geared towards (young) adults, while yesterday it was more focused on children and their parents.

I attended two workshops during the day. One was on aging with cerebral palsy, mostly geared towards those age 40+, so I was a little outside of the scope, but I could relate (sad as it may be) to some of the increasing discomfort that older adults with CP face. The other was a yoga class.

As regular readers of my blog might know, I am not 100% sure I even have cerebral palsy, in that my parents never told me and, by the time I was an adult, things got so overshadowed with other diagnoses it’s unclear. For this reason, I felt validated knowing that I appeared not to be the most mildly affected person, strange as this may seem. In fact, during the yoga class, we had to loosen up our muscles and my mother-in-law told me to loosen up. Someone else half-joked: “That’s about the hardest thing to tell a spastic.” That made me feel good.

How have you been?

#WeekendCoffeeShare (April 2, 2022)

Posted on by Astrid

Hi everyone on this cold Saturday evening. I am joining #WeekendCoffeeShare today. I’m afraid I just have water or maybe the staff has put some soft drinks in the fridge by now. My favorite soft drink, Dubbelfrisss, wasn’t cold when I had my evening drink about an hour ago. Anyway, let’s have a chat.

If we were having coffee, I’d tell you that I finally have been crafting again today after a week of just watching crafty videos and doing nothing creative at all. That is, I’ve been blogging, which counts too, of course, but I haven’t touched my polymer clay or jewelry-making supplies or macrame cords or anything.

Today, I finally did a couple of pieces for the mobile for the baby my sister is expecting. I also finished the polymer clay hedgehog I’d started on about a month ago. At first, I was disappointed, because I’d used up all of a particular color for its body and now it was nowhere to be found, so I couldn’t do the ears in the same color. Turns out real hedgehogs also have slightly differently colored ears than their bodies. Besides, I never really meant to be doing a fully realistic sculpture anyway (I can’t).

If we were having coffee, I’d share that the rest of the week was quite meh. I’ve been having tons of plans in my head, but no ability to actually put them into action. Today, I also experienced a ton of flashbacks and internal chaos. Seriously, the discrepancy between my intellectual ability and my emotional immaturity is really getting at me. I find that I can intellectually think of a lot of things that emotionally I cannot handle at all. I’m not sure if this makes sense.

If we were having coffee, I’d tell you that I may want to research an autism support method by Colette de Bruin. My assigned home support staff pointed it out to me and said she’s pretty much using the method on me already, but I may benefit from learning about it myself.

If we were having coffee, I’d share that I am very happy with the latest iOS update. I finally was able to do some reading again on my iPhone yesterday, since the update fixed a bug that caused my Braille display to become pretty unresponsive. I usually read with just my Braille display, as I don’t like VoiceOver’s synthetic speech for that.

If we were having coffee, lastly I’d tell you that I have a quiet weekend, because my husband isn’t coming over and I have no other plans. Next week though is going to be busy, especially the weekend. I am going to the nationwide cerebral palsy day with my mother-in-law. I will be attending a workshop on aging with CP in the morning, which I am really looking forward to. In the afternoon, I’ll be attending a yoga class. I may not be able to write a coffee share post then, especially since I’m also supposed to stay up-to-date with the #AtoZChallenge. I’ll be certain to write about it though.

How have you been?

Yet Another Goodbye

Posted on by Astrid

One of Mama Kat’s Writer’s Workshop prompts this week is to show your readers your most recent photo and to let it inspire your blog post. This might not be an easy prompt for other people to be doing without cheating, but I rarely take random pictures. As such, I do have a clear story behind my most recent picture.

This picture shows a necklace I made this morning for a staff who’s leaving. Yes, yet another staff is leaving my care home. It’s the fifth or so within the past four or five months. At least as many people have looked around at my home to see if they might want to work here, but none do. Thankfully though, my care home has managed to attract a few new staff from internships and the other care homes that are part of my care facility. Overall, it all still makes me intensely sad.

This staff who’s leaving now had only been working here for six months, but I did kind of trust her already. Some staff say this means I can build trust in new staff too, seeing that I could develop a kind of attachment to this staff within six months. The reality is though, I don’t think I want to build trust in another staff, knowing that the reality of the current employment climate is they can leave when they feel like it and no-one can guarantee me they won’t leave within a certain timeframe. After all, originally this staff planned on working here for at least several years too.

I did feel kind of like I had to make something for this staff, so I made this necklace. The round-looking beads are actually hearts. The story behind the beads is also interesting: another staff found them while clearing out a fellow client’s cupboard and had no idea whose they are. They most likely aren’t hers or at least she isn’t able to use them because the holes in the beads are far too narrow. Ultimately, the staff decided to give them to me. I at one point thought I might be able to use them for macrame, but the holes are far too narrow for that too.

The staff who is leaving is the staff who got me Indonesian takeaway food, the best Asian food I’d ever had, last week. She said that, on Monday, when it’s her last shift here, she’s bringing me another meal. I think that’s really kind of her.

Mama’s Losin’ It

#WeekendCoffeeShare (March 18, 2022)

Posted on by Astrid

Hi everyone. I’ve been neglecting my blog a bit as other creative passions take over. I really need to remedy that. Today, I’m once again late writing a post, as it’s nearly 9PM. At least I’m writing something. I’m joining in with #WeekendCoffeeShare. As you can imagine, it’s rather late for coffee for my liking, but I bet we still got soft drinks in the fridge. I allowed myself a Dubbelfrisss this evening. I normally skip them, as they’re not 100% sugar-free and I’d rather have an extra piece of candy than this. Today though, I gave myself permission for both some licorice and the Dubbelfrisss. Anyway, Dubbelfrisss is only slightly carbonated, but we might have coke too or even alcohol-free beer (alcohol isn’t allowed here). Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that I had a good appt with my psychiatric nurse practitioner on Monday. Last week Friday, I had had a panic attack. It was related to the war in Ukraine and fear of what might happen, which I realized at my appt is different from a flashback to a traumatic experience I really did go through in the past. Not that it really mattered in that moment, as the feeling was just as overwhelming.

I also linked the panic attack to the staff who had triggered me and, since this staff is new, I felt really anxious about the whole situation of allowing him to work with me one-on-one. Thankfully, once it got to this point, we were able to talk through the issue and let it go that way. And indeed, this staff’s first time working one-on-one with me went pretty well if you ask me.

If we were having coffee, I’d tell you that, on Wednesday, I cooked the best chicken pilav! I did most of the cutting of the vegetables myself (the chicken was pre-cut) and also most of the cooking. We had my favorite rice with the pilav too!

Chicken Pilav

If we were having coffee, I’d also tell you that I’ve been taking more flower photos. I finally started actually snapping the pictures myself most of the time rather than letting my staff do most of the actual photographing. Of course, my staff still have to tell me where to point the camera. It’s cool that I can make use of my knowledge of photography, gathered from photography blogs of course, to help the staff figure out ways to help me take better pictures.

I’ve also been running a few of my photos through a plant identification app called PictureThis. The one below is a Chaenomeles Japonica.

Chaenomeles Japonica

If we were having coffee, lastly I’d tell you that yesterday, I decided semi-impulsively to go to Action to try to find macrame cords. Obviously, experienced macrame artists would say I should get high-quality cords, but I’m just trying to get a hang on the knots. The lark’s head knot, square knot and spiral knot are relatively doable after some practice, but I keep getting stuck on the half hitch knot (and don’t even get me started on its variations). I mean, when I saw a beginner tutorial with pictures, it sounded a lot easier than I thought it should be. That tutorial was doing the half hitch knot with just two cords, which all other tutorials show isn’t possible. I’m pretty sure I spent some significant time tying just plain ordinary “old bitch knots”, as my husband would likely call them.

With respect to my shopping spree at Action, I also ended up buying a lot of felt stickers that I now don’t know what to use them for, a new organizing box that I may not even be able to use yet, deodorant, butterscotch candies and probably more. I spent less than €10, but that’s also because my staff paid for the macrame cord and the felt stickers from day center budget.

How have you been?

A Sunday With the Theme of Self-Esteem

Posted on by Astrid

Hi all. The past 24 hours have truly been a mixed bag of emotions. I started obsessing over wanting to start another new craft. Yes, another! Somehow, I decided on macrame and got all obsessed about learning its techniques before even having any cords. Then I decided to ask in a Facebook group whether you need to be coordinated in both hands in order to be able to do macrame. The first commenter basically said not only that, but you also most likely won’t be able to feel your way around the knots.

This was late last night, past midnight actually. I went to bed feeling awful about myself. After all, the reason I wanted a new craft is not that there’s nothing more to learn about polymer clay, but that I’m somehow convinced that I’ve reached my full potential.

By morning, I found that other people had been more encouraging of me trying macrame or even card making. You know, remember I’d said I tried that back in 2013? These people said so what if my work doesn’t look good, if I enjoyed the craft. That’s not entirely my kind of attitude, since I do want to be able to share what I make here or on my personal Facebook page at least without feeling like I have to be ashamed of myself.

I have been trying to work on some polymer clay projects in progress again later today by sanding some beads and charms. It felt kind of okay. I also watched some more YouTube videos on polymer clay, but they made me feel like I’ll be taking forever to understand the concepts. Then again, this is even more the case if I start another craft entirely. Guess I’ll just stick with polymer clay and try to be more patient with myself.

As a side note, one person did say that, if I can tie my shoelaces, I can do macrame. That kind of discouraged me at first, since I can’t tie my shoes. Make that couldn’t. At least, after three tries, I was successful at tying my shoelaces while my shoes were in front of me on the table. Then I tried several more times, more or less successfully. I don’t think I want to really be able to tie my own shoes, but it was an interesting boost to my self-confidence.

#WeekendCoffeeShare (March 11, 2022)

Posted on by Astrid

Hi everyone on this late Friday evening. It’s too late for coffee for my liking, but I’m joining #WeekendCoffeeShare regardless. I’m pretty sure there are still some soft drinks in the fridge, so if you’d like a drink, you can have one of those. Or you can just have water. Let’s have a drink and let’s catch up.

If we were having coffee, I’d ask you about your weather. The weather here has been truly beautiful all week. Yesterday, the temperature rose to about 16°C. Today, it was slightly cooler, but still about 14°C and mostly sunny. Over the weekend, we’re supposed to get slightly cloudier weather and we may get rain on Monday and Tuesday. Oh well, I guess that’s a welcome change for the farmers.

If we were having coffee, I’d tell you all about the new creative projects I’ve been busy with lately. First, early in the week, I finished yet another polymer clay unicorn. This one, for those who can’t see, is teal with purple legs, tail, mane and ears. The purple color is the color I’d been mixing myself a few weeks ago. Its horn is Pacific blue and the unicorn stands on a heart-shaped surface of the same color as its horn.

I’ve also been creating a mobile for my sister’s new baby. The baby isn’t due until May, but I don’t want to put myself under pressure.

Finally, I’ve had a bunch of ideas in my head. I got a lot of rings similar to the one I put my polymer clay owl on. One is for the mobile, but I want to use one for an Easter bunny too and maybe I can think of others too. I also thought of combining a slice of wood from a tree with polymer clay and my staff gave me a slice. I really look forward to crafting with all of this material!

If we were having coffee, I’d tell you that I’ve also been loving experimenting with photography and photo editing. Of course, my staff does most of the work in this case, but I tell them what I want them to do and I suggest ways of improving the pictures based on the tips I get on photography blogs. For example, when I took Wednesday’s flower pic, I didn’t realize it might look burned out due to excess sunlight. Then when I went out to take some more pictures on Thursday, I made sure to take them later in the day and to make shade with my body while my staff took the picture.

At the suggestion of one of my staff, I also downloaded an app that is really cool for collage making and such.

If we were having coffee, I’d share that I had a haircut this morning. I had my hair cut in layers, so that my wavy hair comes out even more than it normally does.

If we were having coffee, lastly I’d tell you that the dietitian came by this morning too. We did an exercise in mindful eating. It was really quite interesting. We got a slice of a tangerine and had to listen to a story and, midway through, we had to look at the slice (my staff at least) and describe it without saying what it was. Then we could feel it, smell it, lay it on our lips and finally take a tiny bite, all the while describing the sensations without mentioning what we were eating. We then chewed onto the tiny bite as long as we could and then, once we’d swallowed it, had to wait until the taste disappeared. The idea is that, if I want a treat, such as a piece of licorice, I can do the same (well, except for taking tiny bites) and not take another one until the taste has truly left my mouth. I have been trying with licorice, but not been successful yet.

How have you been?

A Walk on Wednesday

Posted on by Astrid

Hi all on this beautiful Wednesday. It was sunny all day and the temperature reached 13°C in the afternoon. For this reason, I decided to go for a nice walk again. I’m still not fully recovered from COVID, but I was able to walk for about 15 minutes without feeling very tired. I really enjoyed my walk!

I took my phone with me on my walk, so that I could hopefully snap a picture of some flowers in bloom. I was really surprised when my staff said that the daffodils were in bloom in a garden we passed by. I mean, I’d been of the impression that they don’t blossom until sometime in mid-April at the earliest. I did feel a little self-conscious, taking a picture of some random person’s flowers, but oh well, we weren’t taking the flowers away.

Like I may’ve said before, VoiceOver Recognition no longer automatically describes images when I tap on them. However, contrary to what I used to think, image recognition isn’t completely gone; it was just moved to being its own separate function. This does allow for more detail to be added into the descriptions. In this case, VoiceOver clearly recognized that there are daffodils in this picture both on the lower right and lower left side of the image. I love this!

I’m linking this post with Cee’s Flower of the Day.