The Wednesday HodgePodge (November 1, 2023)

Posted on by Astrid

Hi everyone. It’s Wednesday once again, so I’m joining in with the Wednesday HodgePodge. Here we go.

1. Besides Thanksgiving (in the USA) what’s one thing you’re looking forward to in November?
Not sure really. November is the hardest month of the year for me. My spouse’s birthday is this month, but I won’t be going to our house in Lobith for the weekend. I’m pretty sure we’ll find a way to celebrate though and that’s what I’ll be looking forward to.

2. Do you like candles? Your favorite scent? How often do you burn a candle in your home?
No, I don’t. They’re not safe for me because of the flame. I used to love wax melts though. My favorite scents were sweet scents reminiscent of bakeries like those including vanilla, cinnamon and coconut.

3. What gadgets did you use today?
My laptop, iPhone and Apple Watch.

4. This question is a repeat from one asked in November of 2014, but I liked it so it’s coming round again. Many of you weren’t here in 2014. Okay, you can have fifty pounds of something (anything but money)…what will you choose? Also, since I mentioned it…what were you up to in November of 2014?
Fifty pounds of polymer clay LOL. Then I could make some giant unicorns. Seriously though, I have absolutely no idea what substance it would be useful to have fifty pounds of. Except maybe gold so that I could trade it in for money, but that’d be cheating.

As for where I was in November of 2014, I was in the psychiatric hospital in Wolfheze. If I remember correctly, the psychologist who ended up kicking me out of there in 2017 had just become my responsible clinician.

5. ‘Tis the season…what’s something you’re feeling especially grateful for today?
My mental health. It’s November and I’m struggling, but not nearly as badly as I was last year.

6. Insert your own random thought here.
As I shared yesterday that I hoped I wouldn’t have gained significantly at my weigh-in today, I owe you all the result: I lost 0.5kg.

The Wednesday HodgePodge (October 25, 2023)

Posted on by Astrid

Hi everyone. It’s been a while since I last posted. The past week has been hard, but I’m feeling better now. I’m joining in with the Wednesday HodgePodge once again. Here we go.

1. October 25th is International Artists Day…do you have a favorite artist? If so tell us who and why.
No, I don’t. I’m blind so can’t appreciate paintings or other means of visual art. As for sculptures, I haven’t touched enough to know much about them.

2. Would you describe yourself as artistic? Elaborate.
No, not really. I mean, I’m creative with words and I love to craft, but I don’t have the slightest idea of what makes a good piece of art.

3. What’s a skill, task, hobby, or job you’ve done so often you now have it ‘down to a fine art’?
I’m not sure what that expression means, but if it means you can do something very well or it takes little effort, nothing.

4. How often do you dine out? Fast food, fine dining, or somewhere in between? Tell us about a less than stellar restaurant experience you’ve had recently (or not so recently if that’s easier).
I rarely dine out these days, but my spouse and I get lunch out each week. I can’t remember any recent negative restaurant experiences. I mean, having iced coffee and cake at Starbucks about a month ago was a bit disappointing.

One experience I’d like to share though, has nothing to do with the restaurant, but with the person I went eating out with. In late August, my assigned staff for my old home invited me out for lunch to say goodbye because of my move. In advance, she mentioned nothing about who would pay, so I assumed we’d each pay our own food. This, I consider already thoughtful of me, since had she not been staff, I’d assumed that her inviting me and not mentioning costs would mean she’d pay. Recently though, my spouse got the monthly care home bill for additional costs such as laundry etc. And guess what? Judging from the amount, I’ve most likely paid for both of our lunches. I’m not going after it, but next time I’m going to make sure I understand up front what I’m going to pay for something special offered to me.

5. Do you celebrate Halloween? To what extent? Are there trick or treaters where you live?
No, I don’t celebrate Halloween. I do like it though. Maybe next year I’ll get some decorations, but this year I didn’t feel like I have the space for any temporary decorations. As you know, I live in an institution, so no trick-or-treaters here.

6. Insert your own random thought here.
I went swimming today. One of the staff stayed half an hour past the end of her shift to be able to support me. And yes, I did ask about having to pay for this myself, since in Raalte a client would have to pay individual support hours for this and the hourly fee is far higher than what a staff earns per hour. The staff told me I won’t need to pay. Swimming was great! There were six of us residents participating. Thankfully, the staff who supported me did ask that the music be turned off. Residents here take turns swimming, so it isn’t like I’ll be able to go each week, but I’ll most likely be able to go swimming another time.

The Wednesday HodgePodge (October 18, 2023)

Posted on by Astrid

Hi everyone. It’s Wednesday once again, so time for the Wednesday HodgePodge. Here goes.

1. What’s something small you tend to sweat even though you know you shouldn’t?
Hmmm, I tend to get nervous and frustrated about a lot of things that are probably minor to others, but to say they’re things I “shouldn’t” sweat, feels a bit invalidating. I mean, I could choose the situation where staff randomly switch up who is going to support me and as a result a staff I didn’t expect shows up in my room. This often feels minor to the staff, but honestly I think they don’t know what it’d be like to depend on an almost countless number of random staff for your everyday needs.

2. October 17th is National Pasta Day…do you like pasta? What’s your favorite? Cooked at home or eaten in your favorite Italian restaurant? How often do you make/eat pasta?
I love pasta. My favorite is either penne pesto or macaroni Bolognese. I know, in the U.S. it’s spaghetti Bolognese but even that isn’t originally Italian, as it’s a combo of Naples’ spaghetti and Bolognese sauce. The way I understand it, in Bologna they eat their recipe only with tagliatelle.

I enjoy my pasta mostly home-cooked. At my old care home, we’d get home-cooked meals on weekends, which was awesome. Here, we get meal delivery service meals each day, but I already agreed with one of the staff that I’ll be helping her cook macaroni Bolognese on the 28th.

3. Do you consider yourself a spontaneous person? Explain.
No, not at all. And usually when I try to do something spontaneously, it means I’ve forgotten something else and I end up majorly messing up.

4. Who are some of your heroes? Tell us why.
Do people who are no longer alive count? In that case, my paternal grandmother, of course. Some of the autistic activist pioneers, like Mel Baggs and Cal Montgomery too. I admire their work in standing up for their and all of our rights to an actually meaningful life.

5. Let’s wrap it up with something light…Taylor Swift…are you a fan? On a scale of 1-10 how much so? (1=who’s Taylor?, 10=a true Swiftie, seen her in concert more than once). If you’re a fan what’s your favorite T. Swift song?
Uhm, 2 I guess. I’ve heard of her. I’m not a fan, but it’s not about her. The thing is, I’m not a pop music fan at all. In fact, I rarely listen to music except for soothing instrumental music when trying to fall asleep. I honestly couldn’t name any of Taylor Swift’s songs if I had to.

6. Insert your own random thought here.
I want to give a shout out to the app Be My Eyes and its AI-based image description component Be My AI. Until this was introduced several weeks ago, all we blind people had were Seeing AI, Envision AI and some other apps that did rather generic image descriptions. Be My AI, on the other hand, does a rather detailed description of images. I can’t copy an image description here because for some stupid reason I can’t get it to write its descriptions in English, but let me just say it’s great.

The Wednesday HodgePodge (October 4, 2023)

Posted on by Astrid

Hi everyone. It’s been a few weeks since I participated, so I’m joining in with the Wednesday HodgePodge once again. Here goes.

1. What’s something that scares you?
Too many things to mention, although I’m not one to have many classic phobias. My main one is toxiphobia, a fear of poisons.

2. Do you care where the food you eat comes from? To what degree?
Not really, honestly. Not that I get a say in where my care home food comes from in terms of the supermarket they order from – it’s some type of countrywide supplier specifically for care agencies. However, it’s not like I’d care much even if I did have a say. I do care about having a say in the specific foods I get to eat, which thankfully I have. When it comes to organic or not and the country my food originally comes from, I honestly am too lazy and stingy to care even when I go to the brick-and-mortar supermarket in the next town.

3. What’s something you wish you’d spent more time doing when you were younger?
Be creative. I did love writing as a child and spent a good amount of time on that, but I definitely wish I’d spent more time on other creative outlets.

4. Let’s play autumn this or that….pumpkin spice or apple cider? Corn maze or haunted house? Horror film or Hallmark movie? Blanket or sweatshirt? Watch football or watch the World Series? Foliage-red, yellow or orange?
Pumpkin spice for sure. Corn maze, though I don’t care for it either (but I hate haunted houses). Neither on the movies, but a Hallmark one if I have to choose, since the reason I hate haunted houses is because I startle extremely easily and also I don’t want nightmares. Is the blanket supposed to go onto me in the same way as a sweatshirt? Then I’ll choose a sweatshirt because it’s easier to keep in place while I type. Neither on the sports thing. That is, I’ve never heard of the World Series but assume it’s sports-related too and I never watch sports. All three colors are beautiful.

5. This time last year where were you and what were you doing?
Such an intriguing question especially today. October 4, 2022 was my last full day in the care facility in Raalte. Most of my furniture was being moved to the intensive support home (my now old care home) that day, as Raalte’s transportation person was off on Wednesdays (something thankfully my staff did realize beforehand, unlike with the recent move). Can you imagine I lived in three different care homes over the past year?

6. Insert your own random thought here.
October 4, 2023. I’ve been living in my current care home for just over two weeks and am beginning to consciously or unconsciously erase my connection to the intensive support home. Honestly, I feel awful when a temp worker tells me he knows me from there. That being said, it’s not just because it could hardly get worse than there, that my current home feels like a better fit.

The Wednesday HodgePodge (September 6, 2023)

Posted on by Astrid

Hi everyone. I’m joining the Wednesday HodgePodge once again. Here goes.

1. It’s National Read A Book Day…whatcha’ reading? What’s a book you want to read?
Honestly, I’m not currently reading any book. That is, I’m paging through a few, among them a positive body image workbook and Find Your Path by Carrie Underwood. And of course a ton of journaling books. I can’t remember the last book I actually read. I thought I wanted to read Cathy Glass’ latest foster care memoir, only to find out it’s her penultimate book. That’s truly sad, as I love the author. It immediately caused me so much disappointment I don’t think I want to read this book after all.

2. Which is better…having high expectations or low expectations? Explain why.
I am probably in the minority here, but I think having low expectations is better. Still better yet is having no expectations at all, but to let things unfold as they will. I grew up with parents who put a lot of pressure on me under the guise of high expectations and this – among many other things – led to some emotional scars. I also feel that, if we have high expectations of others in life in general – so people other than those lower on the social ladder than us (like children) -, we often come across as demanding and critical.

3. Serenity is ________________________.
A feeling of calm and being in the present.

4. What’s the most interesting thing in your purse or pocket right now?
Uhm, I don’t have a purse and rarely have anything in my pockets.

5. What helps you calm down?
Ideally, lying under my weighted blanket with my stuffed lemur’s tail over me, my essential oil diffuser on and a calming Spotify playlist like this one playing on my music pillow. Or just lying under my weighted blanket, if my phone needs charging and I don’t have any essential oil blend in my diffuser at the moment.

6. Insert your own random thought here.
I have some awesome news: I have a moving date!!! On September 18, I will be moving to the new care home. I still know next to nothing about it, but I’ll follow my advice on question #2 and just let things unfold as they will.

The Wednesday HodgePodge (August 23, 2023)

Posted on by Astrid

Hi everyone. I’m joining the Wednesday HodgePodge once again. Here goes.

1. What’s your earliest memory?
My third birthday. My paternal grandma brought me a doll from Berlin and my father taught my sister and me the German word for “doll” (“Puppe”). My sister and I, of course, laughed really hard about this, as “Puppe” sounds just like the Dutch verb for “poo”. The doll, by the way, is named Roza, because my father also said Rosa (but then again, as a child I had no clue how to spell it) is a German name.

2. What’s something about you today that the old you would find surprising?
The fact that I live in an institution. Until I was about 25, living in an institution was my worst nightmare.

3. Do you like to fish? Are you a fish eater? Favorite fish (to eat)? Favorite way to prepare fish?
I’ve only been fishing once and found it intensely boring. Then again, I can’t see so that takes away what little fun I imagine there is to fishing.

I do like fish, but usually just the once with the not-too-distinct flavor. The only exception is tuna, which I love and would probably be my favorite fish to eat. When my sister turned vegetarian and showed my parents info about the unethical consequences of tuna eating, they for a while refused to buy it. I got really upset.

4. What’s your biggest first world problem?
I’m not sure whether my unsuitable care home counts as a first world problem. I guess it does, since most disabled people in developing countries don’t have a choice where they live at all. Neither do I at this point, in the sense that I know next to nothing about my future care home and am told that since I’m moving anyway it’d be pointless to give me more info. I have a post scheduled for tomorrow on this topic. In any case, I’m still fortunate in many ways I guess.

5. What one word would you use to describe your year thus far?
Chaos.

6. Insert your own random thought here.
I almost broke my record of active calories burned on my Apple Watch today. Honestly, I think relatively speaking I already broke it, since my last record dates from September of last year and I weighed 12kg more than I do now, so burned off more calories with the same physical exertion. I still need 20 exercise minutes to break my exercise record (which I set on the same day), but I won’t do that. Those 15 active calories I still need to burn for my movement record should be doable though. Today, unlike the time I set my old record, I did a variety of workouts: walking, swimming, the stationary bike and dancing.

The Wednesday HodgePodge (August 16, 2023)

Posted on by Astrid

Hi everyone. I haven’t participated in the Wednesday HodgePodge in a while. The reason is a comment Joyce, the organizer, made about Rikkie Kolle, the trans woman who won the Miss Netherlands competition last month. Trans rights are dear to my heart, so I felt the need to educate Joyce (respectfully, of course), even though I will probably not be able to convince her that trans women are women. After this, I didn’t feel I could in my right mind participate in the HodgePodge again, despite the fact that Joyce assured me that people from all walks of life are welcome. Then today I decided to check back and the first HodgePodge’er I stumbled upon happened to be Jewish. That’s a relief. So now I feel that I may be able to join in again, given that it’s indeed not just a place for conservative Christians.

1. What motivates you to work hard?
Nothing, honestly. I am not a hard worker. That being said, if I want to accomplish something, I thrive on setting myself deadlines.

2. It’s been said “Ignorance is bliss”…is it?
It depends. Where it comes to the state of this world, a healthy balance is needed. I mean, complete ignorance will lead people to mistreat the planet and each other even more than we already are, but being completely submerged in negative news, won’t solve anything either.

I think the same goes for our daily life. I mean, I watched a video on signs of dementia a few days ago and was shocked to find out I ticked more boxes than I thought I would. Now the doctor doing the video covered the complete spectrum from entirely healthy (which I know I’m not) to end-stage dementia. I am pretty sure I’m still at a stage where I can reverse any cognitive decline I might be experiencing. In this sense, ignorance could’ve felt like bliss, but it isn’t necessarily so.

3. Would you rather be stuck on a broken elevator or a broken ski lift? Explain. Have you ever actually been stuck on either? Of the common fears listed here what’s your #1: heights-enclosed spaces-snakes-public speaking-the dark-flying.
I’d probably choose an elevator, though neither seems appealing to me. Never experienced either. Out of the common fears, I’ll choose snakes as my number one because I’m very scared of venomous animals. I can handle a non-venomous snake without a problem though, have even had a small one around my neck.

4. What’s something you like about the town or city where you live?
The institution I live in (not my specific home, of course). The rest of the town is boring.

5. Life is too short to ___.
Waste it by endless worrying. Oh now how I wish I could stop doing it.

6. Insert your own random thought here.
I haven’t shared this with the HodgePodge crowd yet, but I am soon moving to another care home. My assigned staff actually mentioned September. I havent’been given an exact date yet and won’t find out till about two weeks in advance. Fingers crossed it won’t be like the end of September, because quite frankly I can’t wait.

The Wednesday HodgePodge (July 12, 2023)

Posted on by Astrid

Hi everyone. It’s time for the Wednesday HodgePodge once again. Here goes.

1. Is your life simple? Elaborate.
My life is both boringly simple and insanely chaotic at the same time and like you might’ve guessed, neither is in a good way. It is simple in part because it’s so chaotic. I mean, if I get a new-to-me staff member each day, I don’t get to try exciting activities with them that require me to explain a lot, such as crafting, because I cannot be sure I’ll ever see them again.

2. What simple pleasure are you currently enjoying?
I’ve been enjoying listening to calming music on my music pillow a lot.

3. Travel by plane or go on a cruise? walk or ride a bike? swim or ski? ocean or mountains?
I’ve never been on a cruise and don’t think it appeals to me, so I’ll choose traveling by plane. Walk for sure. Swim! Not that I’ve ever been skiing but I hate snow and the cold. Oh, that last one is hard, but I’ll pick the mountains.

4. What’s the last thing you bought online that you really loved?
I haven’t done a ton of online shopping lately, honestly, because package delivery to the institution is quite complicated and staff at my home have a policy of opening packages before they get to me to check for stuff they deem inappropriate. I solve the problem by getting my online orders delivered to my in-laws, but this means I can get my stuff here at most once a week when my spouse visits me.

Anyway, to answer the question, I think my AirPods Pro 2. I’ve had them for about six weeks now and they replaced the original AirPods Pro that I’d had for two years but that had started to develop an annoying high-pitched beep.

5. What’s your “back in my day we__________” story?
Even though I’m only 37, I am an oldie compared to most of my staff, who are in their early to mid twenties. As a result, most of my “back in my day” stories probably revolve around relatively small changes to technology. For example, my spouse and I met on a message board and most staff never used those.

Compared to the other residents though, I’m young, as all others are in their mid fifties to early sixties. I find I’m often confused when other residents talk about what life was like “back then”.

6. Insert your own random thought here.
I am still struggling. In fact, last Monday, I hit another low point. My mother-in-law E-mailed the behavior specialist once again, but she’s on vacation until the 31st. I’m pretty hopeless right now.

The Wednesday HodgePodge (June 28, 2023)

Posted on by Astrid

Hi everyone. I haven’t touched the blog in a few days once again. It’s for partly different reasons than last week this time though. The different reasons include the hustle and bustle of my birthday. It’s over though so today I’m back joining the Wednesday HodgePodge. Here goes.

1. What’s one thing you’re excited about in the coming month?
The last bit of my birthday celebrations when my mother-in-law visits me next week. We couldn’t visit my in-laws on Sunday. That is, technically we could, but since my mother-in-law was on call for the animal rescue service she volunteers for, it would have been quite boring for me.

2. What was your life like when you were ten years old?
It was a very difficult year. I turned ten on June 27, 1996. The day before my tenth birthday, I had my first out of what turned out to be only four sessions with a play therapist/educational psychologist. Given what I remember of those sessions, I wonder whether the therapist saw signs of autism back then. Either way, I’m pretty sure my parents decided after those four sessions that it was useless to continue. Fast forward to the end of my year of being ten, June of 1997, I had a psychological evaluation supervised by the same ed psych. This, and the recommendations that came out of it, led to my parents finally falling out with the school. Oh, how I wish I hadn’t been loyal to my parents back then…

3. What’s something from your childhood you still enjoy today?
Being creative, although not in the same ways. That is, I did love playing with play-doh (which one might say is somewhat related to polymer clay, even though real polymer clay artists will punch me in the stomach for saying it) as a young child. I loved drawing more though, something I obviously am no longer capable of. One thing I want to say though is that, even though I’m now totally blind, I still appreciate colors.

4. What state (that you haven’t been to) do you most want to visit? Tell us why.
I haven’t been to any U.S. states and honestly have no interest in visiting them anymore either. As for a country I’d like to visit that I haven’t been to: Sweden.

5. Do you like to drive? Tell us how you learned to drive.
Uhm, N/A. I don’t drive, as I’m blind. That being said, I doubt I could’ve learned had I not been blind, because my processing is about as screwed as can be.

6. Insert your own random thought here.
Today, I created a polymer clay flower pendant in just half an hour. I loved the entire process and it turned out quite good. In fact, the only thing I dislike about it is the fact that the eyepin’s direction is off.

I really need to be showing more of my creations on here, I think, as social media hardly work for me. I mean, I do try to use Instagram, although I wish it were more of a microblogging service with the pictures being optional. Then again, that’s what Twitter is supposed to be, but then again I despise Elon Musk. Oh well, the perfect social media platform doesn’t exist.

The Wednesday HodgePodge (June 14, 2023)

Posted on by Astrid

Hi everyone. It’s been a while since I last touched the blog. Honestly, I haven’t been feeling inspired. Today is no exception. I’m joining the Wednesday HodgePodge once again. Here goes.

1. What does productivity look like to you?
I honestly don’t really know. I don’t do to-do lists, but I do have goals. For example, I’d really like to blog at least three times a week.

2. What was your fondest (or one of your fondest) memory of High School?
Participating in the Model European Parliament debating contest, in which students pretend to be EU representatives. Especially because I was chosen by a student committee, not the teacher. The students were in the year above me, mind you. I don’t think my classmates would ever have picked me. Neither, it turned out, would the teacher responsible for the contest and he didn’t shy away from admitting that it was because of my blindness. That, he also admitted was the reason I didn’t make it beyond the provincial level. I don’t mind. Going to Arnhem for a week to debate the European Union’s most pressing issues (I was on the foreign affairs committee) was cool. So was partying at night and getting tipsy on two beers, the most alcohol I’ve ever had. And trying a few puffs of a joint. Which, since I didn’t smoke, did nothing. For which I’m intensely grateful, since I later found out about the mental health risks of cannabis.

3. What did you do the summer after High School?
Nothing in particular until I started at the blindness training center in late August.

4. June 14th is National Strawberry Shortcake Day…are you a fan, and if so will you celebrate? How do you make yours? Have you been strawberry picking? If so what do you do with all those berrries?
I have no idea what shortcake even tastes like, since it’s not a thing here in the Netherlands. I haven’t been strawberry picking recently either.

5. What’s something you always splurge on?
My latest crafty interest, so it’s been polymer clay for several years. I am quite embarrassed to admit that, ten years ago, during the year I started crafting, I probably spent at least €1000, if not more, on card making supplies. And this was a time when I couldn’t sensibly afford to spend €100 a month on things I didn’t need. Besides, I ended up throwing most of my supplies away after that year.

6. Insert your own random thought here.
I recently bought new AirPods. The old ones had an annoying beep in the right earbud, and since I had given up on the perfect noise canceling headphones, I decided to settle on AirPods instead. The good news is I actually figured out how to pair them with my PC.