Share Your World (July 3, 2023) #SYW

Hi everyone. Today I’m joining Share Your World. The questions for this week are so intriguing. Let’s go.

1. Do you own your own home, rent, or something else?
It’s complicated. While my spouse and I are homeowners, I don’t live in our home. Instead, I live in an institution. We actually went to the solicitor to sign the contract to our house in Lobith in the same week I moved into my old care home.

2. What is your favorite “go to” food when you’re feeling under par?
Licorice. I love indulging in it whenever I’m in need of a pick-me-up, but also when I’m feeling under the weather.

3. Do you indulge in retail therapy?
Absolutely, but for me, online window shopping is almost as comforting as actually spending money when I’m in a bad mood. Currently, I’m loving looking at clay cutters, jewelry-making supplies and other crafty stuff, but I’m restraining myself from buying any until my mother-in-law has visited me, because she might bring me some of the things I could’ve bought otherwise.

4. How many pairs of shoes do you own?
Four pairs of walking shoes, three of which are so damaged they really shouldn’t be worn anymore but I still wear them because I don’t want to buy a new pair of walking shoes every month. My orthopedic shoes. Two pairs of gym shoes. My horseback riding shoes. Does that make eight?

Gratitude:
Take pride in the person you are, you are unique.
I agree 100%. How could I not, as an Enneagram type 4?

The Wednesday HodgePodge (June 28, 2023)

Hi everyone. I haven’t touched the blog in a few days once again. It’s for partly different reasons than last week this time though. The different reasons include the hustle and bustle of my birthday. It’s over though so today I’m back joining the Wednesday HodgePodge. Here goes.

1. What’s one thing you’re excited about in the coming month?
The last bit of my birthday celebrations when my mother-in-law visits me next week. We couldn’t visit my in-laws on Sunday. That is, technically we could, but since my mother-in-law was on call for the animal rescue service she volunteers for, it would have been quite boring for me.

2. What was your life like when you were ten years old?
It was a very difficult year. I turned ten on June 27, 1996. The day before my tenth birthday, I had my first out of what turned out to be only four sessions with a play therapist/educational psychologist. Given what I remember of those sessions, I wonder whether the therapist saw signs of autism back then. Either way, I’m pretty sure my parents decided after those four sessions that it was useless to continue. Fast forward to the end of my year of being ten, June of 1997, I had a psychological evaluation supervised by the same ed psych. This, and the recommendations that came out of it, led to my parents finally falling out with the school. Oh, how I wish I hadn’t been loyal to my parents back then…

3. What’s something from your childhood you still enjoy today?
Being creative, although not in the same ways. That is, I did love playing with play-doh (which one might say is somewhat related to polymer clay, even though real polymer clay artists will punch me in the stomach for saying it) as a young child. I loved drawing more though, something I obviously am no longer capable of. One thing I want to say though is that, even though I’m now totally blind, I still appreciate colors.

4. What state (that you haven’t been to) do you most want to visit? Tell us why.
I haven’t been to any U.S. states and honestly have no interest in visiting them anymore either. As for a country I’d like to visit that I haven’t been to: Sweden.

5. Do you like to drive? Tell us how you learned to drive.
Uhm, N/A. I don’t drive, as I’m blind. That being said, I doubt I could’ve learned had I not been blind, because my processing is about as screwed as can be.

6. Insert your own random thought here.
Today, I created a polymer clay flower pendant in just half an hour. I loved the entire process and it turned out quite good. In fact, the only thing I dislike about it is the fact that the eyepin’s direction is off.

I really need to be showing more of my creations on here, I think, as social media hardly work for me. I mean, I do try to use Instagram, although I wish it were more of a microblogging service with the pictures being optional. Then again, that’s what Twitter is supposed to be, but then again I despise Elon Musk. Oh well, the perfect social media platform doesn’t exist.

#WeekendCoffeeShare (June 23, 2023)

Hi everyone. I’ve once again been feeling really unmotivated to blog. I didn’t even bother with the Wednesday HodgePodge this week. Today though, I want to write. I’m joining the #WeekendCoffeeShare linky. It’s been a while. I already had my last cup of coffee for the day, but we all need to stay hydrated, so if join me for a glass of water, that’ll be fab.

If we were having coffee (or water, but I always start my paragraphs this way), I’d start out by sharing about the weather. Ours has been mostly sunny and warm with daytime temperatures of about 27°C. On Tuesday we had a thunderstorm here and on Thursday it rained continuously all evening. My spouse loves thunderstorms, but Lobith didn’t get any.

If we were having coffee, I’d tell you I have been struggling quite badly lately. The staff here seem to have decided to consistently send the least familiar to me staff member they have on board to do my one-on-one, even when that staff isn’t the least familiar with the other clients. I am of course the one labeled manipulative when I get irritable at the unfamiliar staff. I originally wrote a long rant about this situation, but deleted it because really it doesn’t help anyone.

If we were having coffee, I’d share that, due to these difficult circumstances, I’ve been feeling rather depressed and not as motivated to do much of anything. I keep playing dice games on my phone in an app called Dice World. I also play dice with most staff.

If we were having coffee, I’d share that my sister and her family are coming to Lobith tomorrow for an early birthday celebration for me. I will be in Lobith by about 11AM, though my sister won’t be there till 3PM or so. Unfortunately, on Sunday, my mother-in-law has to be on call for the animal rescue service she does volunteer work for, so we won’t be going there.

On Tuesday, which is my actual birthday, we invited my parents to come to Apeldoorn. We’ll hang out in a park close by where I grew up and then in the evening we’ll have dinner at a Thai restaurant.

I finally decided today that I do want to celebrate my birthday at the institution after all. I’m going to make cheesecake on Monday and we’re going to have French fries and a snack for dinner then.

If we were having coffee, lastly I’d tell you that I finally used my alcohol inks on a polymer clay project. I made earrings, of course. They’re a bit thick and I later found out my particular brand of alcohol inks isn’t very light-resistant, so the color will probably fade rather easily over time. At least now I know I can use my alcohol inks.

Also, I may get my ears pierced someday. I had my ears pierced in 2001, but wore large silver earrings right after the thingies they shoot into your ears when they pierce them. Thing is, I’m allergic to nickel and silver often contains that, so I got bad inflammation and eventually decided to let the holes close up. Now though I really want to be able to wear earrings again. My assigned staff offered to take me, so that’d be really cool.

How have you been?

Hello Monday (May 8, 2023)

Hi everyone. My weekend was quite good, if a little hectic. I thought I’d share about it. I am linking up with Hello Monday.

On Saturday, I had a temp worker who was here for the first time as my one-on-one staff for most of the morning shift. Thankfully, I got along with him okay. This did mean I didn’t feel comfortable going on a walk, let alone working with clay or other crafty things. I did play a game of Yahtzee with a fellow resident in the morning. My weighted blanket was also finally put in the washing machine. I was a little worried that putting it in the dryer would damage it, but the staff told me he knew what he was doing. Thankfully, once I got back from Lobith on Sunday, I found out it was still intact.

In the afternoon, I got a new temp worker once again, but thankfully my spouse was here almost as soon as the evening shift started, so I didn’t have to deal with the temp worker long. We drove to my spouse’s and my house in Lobith, picking up groceries and Domino’s pizza along the way. I had the hot and spicy pizza with pepperoni, bell peppers, onions and jalapeños.

Because I hadn’t been walking all day on Saturday, I decided to do some dancing in the evening. Otherwise, I wouldn’t have reached my movement goal on my Apple Watch and I didn’t want to cheat by lowering it yet again (and I certainly didn’t want to break my 250-odd day streak).

On Sunday, we visited my in-laws for a bit. My mother-in-law and I went for a 40-minute walk through the village. In the evening, when I once again had a temp worker, but thankfully a somewhat familiar one, I went for two more 40-minute walks. Then, because I could, I danced some more. I finally doubled my movement goal on my Apple Watch for the first time in half a year.

Yesterday evening, I had a bit of an issue with my sister. I invited her to my birthday at the end of June, thinking that if I invited her now she would have plenty of time to make sure she actually could make it on one of the days my spouse and I are available. She got upset, because her and my youngest niece’s birthdays are first (this Saturday and on the 19th, respectively). She tried to ask me whether we would come over for her birthday too, which on the surface seems reasonable. However, being that she has both this weekend and the weekend after that planned pretty full with other family and, besides, we don’t do last-minute planning for trips that are this long (my sister and her family live over two hours away), I decided against it. According to my sister, the way it “works” in our family is everyone knows when our birthdays are and is welcome to come by, so it wasn’t like she should have invited me. Being the people pleaser that I am, I actually almost let her persuade me to allow her to ask her in-laws, whom I barely know, to pick me up when they would be visiting them on the 18th. Thankfully, my spouse intervened and told me that would be really unwise, since what if I have a meltdown either on the trip or when with my sister’s family? Finally, thankfully, it turned out she wasn’t really expecting us, but was just upset that I’d mentioned my birthday this close to hers. I can see her point.

Yesterday, as a side note, was my partner’s and my fifteenth anniversary of being a couple. I really feel pleased that we decided to “call it a relationship”back on May 7, 2008. We’ve overcome quite a few hurdles in those fifteen years, but I’m so happy that we’re stronger than ever together!

The Wednesday HodgePodge (April 26, 2023)

Hi everyone. It’s been a few weeks since I joined in with this meme, but today’s questions for the Wednesday HodgePodge appeal to me. Here goes.

1. April 26th is National Audubon Day, honoring John James Audubon, the French-American ornithologist, naturalist, and painter known for his detailed study and illustration of birds in their natural habitats. Do you have a bird feeder? Any birds in your home decor? Have you ever owned a pet bird? What’s your favorite bird?
I am pretty sure there’s a bird feeder on my terrace, but I didn’t place it there. It was here from before I moved to my current care home and I don’t place bird food in it either.

I don’t have any birds in my home decor, though I do like birds. I’ve never owned a bird as a pet, though one of my fellow residents does currently.

My favorite bird? My first thought goes to the blackbird. I am not really sure why though, as truthfully black isn’t even my favorite color anymore (and I have no idea whether blackbirds are actually black). I do like its sound though.

2. What’s something you took to “like a duck to water”?
Blogging for sure.

3. Empty nest, nest egg, proud as a peacock, free as a bird, birds of a feather flock together, or the early bird catches the worm…choose one and tell us how it currently applies to your life.
I’ll go with “empty nest”, even though none of these expressions really apply to me. I mean, I had to Google “nest egg”, but that’s unrelated to my life too. As a childfree person, I don’t think “empty nest” applies to me either, as I never even had eggs or young in the nest, but oh well. I do feel lonely and bored with not living with my family.

4. Pumpkin seeds, sunflower seeds, flax seeds, chia seeds, sesame seeds, poppy seeds…your favorite seed and a favorite food or dish made with that seed or topped with that seed? Have you tried all the seeds on the list? Any you don’t care for?
Yes, tried all of them and love them all. My favorite are chia seeds and I use them in my overnight oats as well as in my smoothies. I also used to always buy poppy seed bread when I lived at the independence training home (basically regular bread with poppy seeds on its crust).

5. Something in the past week that made you “happy as a lark”?
Nothing really. I have been quite depressed lately, but the visits from my mother-in-law yesterday and my husband on Sunday were a welcome distraction.

6. Insert your own random thought here.
I’m off to try out the giant trampoline here at the institution in about half an hour. That hasn’t yet made me happy, but it’s definitely something I’m looking forward to. The physical therapist has to go with me to see how I do it, but he’s hoping it will help me loosen up my muscles in my back.

March 2023 Reflections #WBOYC

Hi everyone. It’s the last day of the month and this means I’m reflecting back on this month’s happenings. I’m joining What’s Been On Your Calendar? (#WBOYC). Here goes.

This month would have started with my having the meeting on my care on March 2, but it got postponed yet again for the third time. I did get a visit from my mother-in-law instead and we took a walk through a nice park. Here are a couple of pictures my mother-in-law took with her phone of a remembrance stone we saw there.



The next Sunday, my husband and I drove to Ikea in Zwolle, where I bought a stuffed orang-utan. I so far didn’t show it on the blog yet, so what better day to do this than today?

On the other Sundays, my husband and I drove to Apeldoorn to have lunch at Backwerk. We did try visiting another lunch cafe once at the recommendation of one of my staff, but literally all tables were dirty.

On March 17, I finally had the meeting on my care. The positive aspect was that the powers-that-be will be looking for another, hopefully more suitable care home for me. The negative aspect is the fact that, in the meantime, nothing will change. This had me spiral out of control quite a bit, which my staff feel frustrated with.

Last week, it led to a bit of a disagreement between me and my assigned staff, because she got frustrated with my negativity. The way she worded it, even if my day schedule doesn’t get disrupted and I’m supported by regular staff for the entire shift, I still find a reason to complain. I countered that this hadn’t happened in months. Even this morning, with three out of four staff being regular employees, the fourth staff supported me for most of the shift.

In the health department, I did pretty well. I finally saw the dietitian last week and we concluded I no longer need to lose weight. Not that weight loss ever was a priority for me, more like a welcome side effect of my healthier-for-me lifestyle. The fact that I’d lost weight rather rapidly over the past five months, meant I had to up my calorie intake to prevent further weight loss. I did gain a bit of weight in the first week on my new food plan, but then again I did eat fries once in that week and a large burger another day. I’m not stressing about the weight gain at all.

In other health news, my cardio fitness level according to my Apple Watch has declined slightly and is in the “low” range again, though just barely. My heart rate recovery, on the other hand, is steadily improving.

All this being said, I’m trying to embrace my body as it is and appreciate my health for what it is.

In the blogging department, I did quite poorly, having written only eleven posts including this one. I am not sure how I’m going to do with the April A to Z Challenge given this reality, but I trust I can do it.

Gratitude List (March 3, 2023)

Hi everyone. I’m feeling a bit gloomy today, so I’m trying to cheer myself up with a gratitude list. As always, I’m joining Ten Things of Thankful (#TToT). I’m also joining Thankful Thursday, although it being Friday, I’m of course a day late. Better late than never, I guess. Here are my thankfuls.

1. I am grateful for my new laptop. My husband installed Windows and JAWS, my screen reader, on it last Saturday and brought the laptop here on Sunday. So far, I’ve not run into many problems.

2. I am grateful for my unicorn cookie/clay cutters. Like I mentioned a few times, these are a Valentine’s Day present from my husband. I haven’t used them yet, but I think I do like them.

3. I am grateful for some renewed creative inspiration. Too bad this doesn’t really translate into action yet. Here’s hoping it will. I’ve been thinking of restarting soap making again, for example.

4. I am grateful to be back in the reading groove.

5. I am grateful for sleep. Although early in the week, I didn’t sleep all that well, last night and the night before, I did meet my goal of getting eight hours of sleep according to my Apple Watch.

6. I am grateful for improving physical fitness and more walking.

7. I am grateful my orthopedic shoes are back from the umpteenth adjustment. Let’s hope they’re actually right now. So far, at least, I have been able to go for a short walk on them.

8. I am grateful for another nice visit from my mother-in-law yesterday. Normally, she visits on Tuesdays every other week, but we were supposed to have the meeting about my care situation yesterday. The meeting was canceled, but thankfully my mother-in-law visited me anyway.

9. I am grateful for French fries for lunch yesterday with my mother-in-law. And fried chicken. And a little salad. It was delicious!

10. I am grateful for a relatively quiet past few days in the care home I live in with respect to hardly any out-of-control fellow residents. Well, I heard one screaming just when my staff was leaving me after dinner, but it seems calm again.

11. On that note, I am grateful I got through my latest crisis, which involved self-harm, without sustaining major damage. I usually don’t suffer major physical wounds, but I know with my most used self-harm method, it could happen any day.

What are you grateful for?

TGIF: Optimal Care?

It’s Friday and this means Paula Light is rambling on in her TGIF post. I don’t join in each week, but today, I’d like to.

Today, I received optimal care as per my current care home’s standards. That is, my day schedule wasn’t disrupted and I had one staff member for the entire shift both morning and evening. My assigned staff says this means I’m lucky. I considered myself lucky this morning indeed, since one of the regular staff was my one-on-one staff while two temp workers were supporting the other clients. My staff for the day explained that one of the temp workers knew the other clients pretty well and he’d never worked with me, so it was decided that he’d do his shift supporting them. This, indeed, does make me feel fortunate.

However, with respect to the day schedule, I still feel that it could be better. And I don’t mean with me receiving quantitively more support. I mean that I’d like longer support times and fewer but longer times without support. I also probably want to work towards going to a day center.

I’m probably going to insist I’ll attend the meeting with the behavior specialist, support coordinator, my assigned staff and my mother-in-law next week. In my opinion, given how it’s been going over the past couple of weeks – better than before -, I’m not dead set on leaving this home as of yet. However, I do need to make sure that there’s going to be at least some room for improvement on the part of my care home. Judging from my staff’s comments, I’m pretty sure there isn’t and in fact they want me to adjust to less and less suitable for me care.

#WeekendCoffeeShare (February 18, 2023)

Hi everyone. I’m joining #WeekendCoffeeShare today. It’s 5:35PM as I start writing this post. I probably won’t finish it until past seven, when I’ll have my last cup of coffee for the day. Care to join me? We also have pure green tea (so the kind without flavoring). We also probably have lemon-flavored green tea, but I don’t care for that. I did discover a new kind of green tea, Indian chai green, which I do love. It is loose-leaf tea, which I rarely have, but I think this one is quite good. I can brew you a cup of this too. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d ask about your weather, as I usually do. Ours has been mixed. Early in the week, we got some sunshine, but later, it’s been rainy. The daytime temperature usually rose to about 12°C.

If we were having coffee, I’d tell you that my mother-in-law, my assigned staff and my support coordinator were supposed to have a talk on Tuesday. I wasn’t invited and the goal of the meeting remained unclear to my mother-in-law until the last moment. Then, it was canceled because my support coordinator was off sick. My mother-in-law took the opportunity to make it clear that, if it’s up to me and her, the possibility of me moving out of this care home should be a serious topic of discussion at a rescheduled meeting. She also pointed out that she’d like the behavior specialist present. This meeting, all going well, has now been set for March 2. I’m not sure whether I’ll be allowed to attend too. I think I should, honestly.

If we were having coffee, I’d share that, instead of coming to the meeting, my mother-in-law paid me an extended visit. We drove to Apeldoorn, like we seem to do regularly, and had lunch. Then we went into several shops to buy some little presents for one of my mother-in-law’s coworkers at her volunteer job, who will be going into hospital soon. It was there that I discovered the Indian chai green tea. We also went into a supermarket so that I could buy rolled oats, raw nuts and some other things. I fully intended to make overnight oats with those rolled oats. I did try, but either used too much milk or did something else wrong, because there was a lot of milk that hadn’t been absorbed by the rolled oats.

If we were having coffee, I would share that I did end up crafting a Valentine’s Day present for my husband after all. It’s a polymer clay heart with an arrow in Premo cadmium red with a Fimo Effect metallic gold edge and the arrow is done in Premo white. I textured the back using a ball of tinfoil, which turned out rather ugly – uglier than it would’ve been with visible air bubbles, which texturing aims to prevent. Oh well, that means I learned something.

If we were having coffee, I’d tell you that I weighed myself on Thursday, as I do each week, and I lost another 0.6kg. I have only 2kg to lose to be at a healthy BMI. I am still slightly worried that some physical health condition is causing me to lose weight, because to be honest I’m not minding my diet much at all and I’m not exercising excessively either. However, I did notice that my Apple Watch estimates my cardio fitness level has increased. It’s still “low”, as it’s always been, but is slowly creeping towards “below-average”.

If we were having coffee, lastly I’d share that I didn’t walk as much as I’d have liked over the past week. I signed up for a challenge with other Apple Watch users in an app called Challenges. The challenge ran from Monday through Friday. I started out doing quite well on Monday, starting with a walk to visit the institution’s petting zoo, which is about a 45-minute walk total. My feet hurt terribly after it. During the rest of the week, I didn’t do so well. I ended up 48th out of 88, which I’m okay with all things considered. I’d have liked to be in the top half.

By the way, while at the petting zoo, I took a picture of the goats. I didn’t get to actually pet them.

How have you been?

#WeekendCoffeeShare (February 11, 2023)

Hi everyone. I’m joining #WeekendCoffeeShare today. As usual, I already had my last cup of coffee for the day, although I’m earlier writing my post than I was last week. I do have Dubbelfrisss, a slightly carbonated drink. The staff probably also have various kinds of soda. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d ask how your weather has been. Ours has been mostly sunny and not too cold. Today, the daytime temperature even climbed into the double digits and I wore my slightly less thick coat. Is there a word for that in English? In Dutch we call it a “tussenjas”, which literally translates to “in-between coat”.

If we were having coffee, I’d share that I’ve been doing lots of walking over the past week. I loved it! I probably didn’t manage as many steps this week as I did last week, but that’s okay.

On one of my walks across institution grounds today, the staff spotted butterflies and flowers painted on the path. I couldn’t resist the urge to take pictures.


If we were having coffee, I would also tell you that I took a trip to the next town to go to Action, a discount store. I originally intended on just buying T-shirts, but ended up buying a lot more, as usual when I visit that store.

If we were having coffee, I would tell you that my staff have been doing my hair several times this week. Today, my staff did a ponytail. On Thursday, the staff created two braids. I loved that look so much that I asked her to take a picture of me.

If we were having coffee, I’d share that I’ve been obsessing over creating my own breakfasts. I’ve been looking into making overnight oats and smoothie bowls. This afternoon, when I told the staff about the idea, we tossed around ideas and finally decided to create a basic smoothie that evening. It just had non-fat vanilla custard, milk and banana in it, but it was delicious.

If we were having coffee, lastly I’d announce that my support coordinator invited my mother-in-law and assigned staff to a meeting this coming Tuesday. I have no idea whether I’ve been invited too or what the goal for the meeting should be if I haven’t. I’m still pretty distrustful of this support coordinator and still feel this home isn’t suitable for me, even though the last couple of days have been okay. The reason that I still feel this home isn’t suitable is because it seems to be sheer luck when a day goes okay. I still wish to make it work, but I’ve pretty much lost hope that this home can truly provide what I need.