What’s Up (May 2020)

Today, I discovered What’s Up Wednesday and thought I’d join in. What’s Up Wednesday is a monthly linky in which bloggers recap their past month. Here goes.

What I Ate

I don’t meal plan, as here at the care facility, we get meals delivered. I didn’t have the greatest meals this past week. Last week Wednesday, I had a fish curry that had fish bones in it. I ate part of it nonetheless, but eventually got annoyed and left the rest. My husband told me that this was unacceptable indeed. My staff sent out a complaint.

Then on Friday, I had vegetable rice only. Vegetable rice is just rice with a tiny bit of veg in it. I had no meat or meat substitute in my meal at all.

Thankfully though, over the past few days, the food was okay.

Then yesterday, my day activities staff and I put hamburgers on some type of grill for lunch. It was delicious!

What I’m Reminiscing About

I haven’t had the best month with respect to my mood. For this reason, a lot of memories have come up. I have been discussing some in my sessions with my community psychiatric nurse and also writing about them on here.

What I’m Loving

Being able to see my husband again! Due to the coronavirus lockdown, my care facility had a no-visitors policy for the past two months. Thankfully though, the policy was lifted last week. My husband and I still can’t have physical contact or even be within a five-feet distance, but it’s okay. I’m just so glad to meet my husband in real life again.

What I’ve Been Up To

I’ve been doing a lot of walking over this past month. The weather is really good. We had one rainy day, last Sunday, but overall it’s been really sunny and warm outside.

I’ve also been blogging a lot over the past month. I’m so glad to keep up the productive spirit!

What I’m Dreading

Nothing really. I did have a rough few weeks and was dreading a crisis happening again. Today is a pretty good day though. The tech guys installed the door sensor that will alert the night staff if I elope again today.

What I’m Excited About

Seeing my husband again this Saturday!

I’m also excited about getting Italian takeaway this Sunday. I’m probably going to get a tuna pizza.

What We’re Doing This Weekend

It’s a holiday weekend here in the Netherlands because of Pentecost. For this reason, we’re getting lots of extra treats at the care facility. Other than that and seeing my husband, I don’t have much planned.

What I’m Watching

Nothing to be honest. I’ve been thinking about getting a Netflix subscription again, but haven’t gotten down to it.

What I’m Reading

Nothing at the moment, but I did finish two books this past month: Wonder by R.J. Palacio and Wink by Rob Harrell. I reviewed that last one earlier this month.

What I’m Listening To

I’m mostly listening to the Pop Warm-UP 130 BPM playlist on Spotify. I actually love the upbeat, fast-paced tunes to “dance” to.

I also got myself a ScribD subscription, though I unsubscribed again after a few weeks. I listened to Anne of Green Gables as an audiobook on there. I must say I don’t think I see the benefit of audiobooks.

What I’m Working On

My birthday wishlist! I asked my husband to help me install a new iPhone that I’m goign to buy. I haven’t bought it yet, but am looking forward to doing so in a few weeks.

I’ve been looking at a sensory supplies store again for birthday gifts to ask my in-laws, parents and sister. I think I want a Jinglin’ ball. This is a soft ball that makes a sound when rolled. The adaptive supplies store for the blind also sells ringing balls, but these are too hard for safe playing with my fellow clients.

What I’m Wearing

Orange Dress

I have had this orange dress for a few years already, but hardly ever wore it before going into the care facility, because I can’t fasten the ribbon. I am loving it though. I also asked my staff to do my hair for this picture.

What I’m Looking Forward To Next Month

My birthday, obviously! It isn’t till the 27th of June, so we’ll have another What’s Up Wednesday before that, but oh well.

What Else Is Up

I think that about covered it.

Choosing Love #SoCS

Choosing love is important. Choosing that one person you would want to be with. Or choosing more than one if that’s your thing. Many lovers value their partner above themself. I’m not sure I do and that often makes me feel bad about myself.

I mean, I always say that Jeroen is the most cherished, best, loveliest person in the world. Then he replies that it’s me. Sometimes we go on to joke that it’s our cat Barry.

Yet, whenever I say I love Jeroen more than myself, I think: “So why did I choose to go into the care facility?”

I was fully expecting my husband to say the same when he visited me for the first time in over two months, since visiting had been prohibited until now due to coronavirus lockdown. I fully expected him to come and tell me he didn’t want to be my husband anymore. And yet he didn’t! I’m so happy that, even though I chose my own happiness over his, he chose love!

Written for this week’s Stream of Consciousness or #SoCS, for which the prompt today is “ch”. Also writing this using the new block editor.

Looking Forward To…

Today’s Five Minute Friday prompt is “forward”. Let me share what I look forward to.

I look forward to seeing my husband tomorrow. The visiting rules for nursing homes were relaxed in prime minister Rutte’s latest speech on Tuesday. The new regulations wouldn’t take effect till next Monday, but my care facility decided to allow visitors from this Thursday, the day of Christ’s ascension and hence a bank holiday, on.

There are still strict guidelines. Visitors cannot touch clients or even be within five feet distance. We’re not allowed to travel in the car with our visitors or go to public places such as shops or snack vendors.

My husband was a little disappointed at the strict guidelines, and I wholeheartedly agree. Of course, I want to hug him too. After all, we haven’t seen each other in real life in over two months. Too bad we can’t at this point. However, it’s better than nothing.

I look forward to hopefully spending some good time with him. Hopefully, of course, the rules will be relaxed even more soon. That’s still unknown though. As far as I know, our care facility is already less strict than what Rutte said, as he said only one person per client can visit. Our facility allows two at a time. Not that I need that, as my parents or in-laws are a long way from visiting me, but oh well.

Wow, I actually finished writing this in five minutes flat. Thanks so much for reading.

Normal

This past Friday, the prompt for Five Minute Friday was “normal”. I didn’t have anything to write on the topic then, but I do now. Here goes.

Today I listened to a meditation on Insight Timer. The teacher said your observing self is like the sky (or heavens), while your thoughts, feelings etc. are like the weather. No matter how bad the weather gets, the sky remains the same. It can withstand even the darkest thunderclouds.

This is maybe how we need to look at ourselves in this time of COVID-19. We are told to adjust to the “new normal”. Even though our “intelligent” lockdown or stay at home order ended last week, I still cannot have visitors at the care facility and just found out the day center won’t reopen till October. I’m not sure how I feel about this. Well, about the day center. I know how I feel about the no-visitors policy, but that one might change this week.

Like Kate, the FMF hostess, I somehow settled in. I actually love being at the home for day activities and don’t mind not seeing people from other homes that much. I miss my husband, but I’m adjusting to that too.

This is where the meditation comes in again. I mean, no matter how hard life gets, I’ll manage. My thoughts may be dark, my feelings bleak, but I will ultimately be able to keep going.

Stuck at Home Book Tag

I found the Stuck at Home Book Tag over at CrankyAutistic’s blog. I wasn’t really tagged, but I felt it was a fun tag so stole it. It was created by Ellyn. I’m not su re I’m doing these book covers right. I got them from Goodreads but, as regular readers know, I’m blind so not able to judge them.

1. What Are You Currently Reading?
Wink
I just finished Wonder by R.J. Palacio. Now a bit stuck, but the most recent book I’ve picked up is Wink by Rob Harrell.

2. What’s Your Favorite Can’t Leave The House Activity?
Blogging! I’ve truly been active writing lately. I also love reading, of course, as well as listening to music.

3. A Book You’ve Been Meaning to Read Forever?
Fangirl
That for sure has to be Fangirl by Rainbow Rowell. I recently discovered it was available on Bookshare, but I’ve literally had it on my TBR list for years.

4. An Intimidating Book on Your TBR?
The Institute
That still would be The Institute by Stephen King.

5. Top Three Books on Your TBR
I don’t really know. I’m generally a mood reader, so I read whatever strikes my fancy at a given point. As a result, I usually read multiple books at once. I honestly don’t know what three books I would want to read now that I haven’t started on yet.

6. Recommend a Short Book
Most of the books I read are not too long. Then again, I don’t really know what counts as short.

7. Recommend a Long Book
Well, the longest fiction book I’ve read that I can remember is Handle with Care by Jodi Picoult, but I’m not sure that counts as long. Other than that, how about you read the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5)? Yes, I actually own a copy of it.

8. Something You’d Love to Do While Stuck at Home?
Exercise more. I really need to get on the elliptical more often and also should be doing yoga. Oh, are these things I’d love to do or things I’d need to do? Maybe both.

9. What Book Do You Plan on Reading Next?
Rules for Being a Girl
I just recently downloaded Rules for Being a Girl by Candace Bushnell and Katie Cotugno off Bookshare and think I’ll read that next. At least, after I’ve finished reading Wink, Heroine by Mindy McGinnis and the other books still in progress and listening to Matilda by Roald Dahl.

I won’t tag anyone, but if you’d like to do this tag, I’d love you to.

#WeekendCoffeeShare (April 5, 2020)

I more or less abandoned the What Day Is It Anyway? posts when A-to-Z started, but I wanted to write a check-in anyway. I am joining in with #WeekendCoffeeShare, although it’s a bit late for coffee. I did have a cup of decaf about an hour ago. I also just had a nice orange-pineapple-guava drink. I am not a big fan of fizzy drinks, but thankfully usually we have some non-fizzy soft drinks or juice in the fridge for week-ends.

If we were having coffee, I would ask you all how you’ve been doing on your third week of lockdown. I had a pretty good week. It was better than last week. Last week, after all, I landed in some crises due to missing my husband and all the change that is brought on by this COVID-19 thing.

If we were having coffee, I would share that on Monday, my home’s manager came to talk to me. I was scared at first. Thankfully, she came to reassure me that I won’t be kicked out of the facility for having challenging behavior. That was quite a relief to me.

If we were having coffee, I would share that I made delicious crispy chicken with the staff intern at day activities on Tuesday. I made them with dorito chips for the crisp. I think I’d prefer them with slightly more spicy doritos, but I had intentionally picked the cheese-flavored ones, as I normally don’t like the paprika or chili-flavored ones.

If we were having coffee, I would share that I didn’t do as well on my step goal as I did last week, but I still managed to get to 10K steps once and reached over 8K steps on three other days.

If we were having coffee, I would share that I struggled a bit with health anxiety at the end of the week. Like I mentioned in passing in one of my A-to-Z posts, I’ve been convinced for years that, once I’d find a suitable living place, I would get a serious illness and die. This caused me to feel some intense anxiety when I had some health symptoms. Thankfully, I was able to talk it through with my staff.

If we were having coffee, I would tell you that I would originally have had a phone appt with my community psychiatric nurse from mental health last Friday. I waited for twenty minutes for her to call and then decided to call the secretary. Turns out my CPN was off sick and the secretary had forgotten to tell me. Thankfully, I didn’t have a face-to-face appointment.

Because I was struggling a bit, my staff arranged for me to have a phone check-in with the facility’s behavior specialist. She was pretty good at calming my nerves. She reminded me to look at today only. I won’t die today and I won’t be leaving the facility today. That was helpful.

If we were having coffee, I would share that I’d been trying to record a video and then take a picture of myself for my husband. I reasoned he may like to see me now that he can’t come here. We don’t normally video call or anything, so he hadn’t seen my face in a month or so. Unfortunately, the picture I took showed my eyes and nose only. I wonder how other totally blind people learn to take pictures. Anyway, I finally had my staff take a picture of me. In this picture, I’m holding my stuffed panda. I often cuddle it when I miss my husband, because the panda is the largest soft toy I own. No, my husband isn’t fat like the panda, LOL.

How have you been?

What Day Is It Anyway? (March 31, 2020) #WDIIA

Okay, I assume Linda intended #WDIIA to be a daily feature and not only did I skip last Wednesday and Thursday, but I skipped the week-end and yesterday too. I’m still making use of the feature while it exists, as though I don’t exactly have to remind myself what day it is each day, a reminder every now and again can’t hurt.

I slept in till 9:15AM this morning. This isn’t unusual for a week-end and my staff said it was okay despite it not being a week-end. After all, day activities are still provided at the home.

I seem to have lost my exercise mojo a bit. Though I did walk three times today, I took “only” 8.5K steps and don’t feel motivated to go on the elliptical to reach the 10K mark. I haven’t been on the elliptical since Saturday. My sister did compliment me on having beat her husband on Fitbit last week though.

At least I haven’t lost my blogging mojo as of yet. Like I said yesterday, I don’t usually schedule posts in advance but I did tomorrow’s post for the #AtoZChallenge. I feel pretty motivated to write.

Someone from the adaptive tech company, or I assume their carrier service, came to collect my Braille display today. It has a few broken cells. I originally intended on waiting for it to be fixed till this COVID-19 crisis is over, but then last week the company sent out an E-mail detailing their continued service during the crisis. They don’t repair tech in the customer’s home anymore, but they still do collect and return. They also provided me with a replacement Braille display while they’re fixing mine. I doubt it can be reliably fixed though, as this was the second time some cells broke and I’ve only had it for nine months.

This evening, the prime minister held another press conference regarding the coronavirus crisis and its management. Schools are out till April 28 at least and the “intelligent” lockdown will remain in effect. This means, I assume, that the day center will remain closed until April 28 at least too. I don’t mind, as I actually rather like it this way. The staff noticed this too and they might find a way for me to retreat into my room if needed once the day center reopens.

How has your day been?

What Day Is It Anyway? (March 27, 2020) #WDIIA

I’m once again doing a #WDIIA post. I skipped them on Wednesday and yesterday, because I didn’t feel like writing the same old shit again and again. Today I was seriously confused about what day it is. The staff awoke me at around 8:30AM and said I had to shower. I normally shower on Mondays, Wednesdays and Fridays if I have no outside obligations such as visiting my husband. Obviously right now I don’t. On the other days, I do a quick wash. Now I seriously thought it was either Thursday or Saturday, but it’s Friday, yay!

I must say I awoke some 30 minutes before that from a really horrible nightmare. In the nightmare, I somehow left the facility to visit my husband and then couldn’t come back because of the lockdown. It ended with my husband being angry with me for wanting to go back to the facility at all.

The nightmare was somehwat realistic, in that indeed the new visiting rules that have been put in place for care facilities say that, if family take a client home, they cannot return to the facility until this COVID-19 lockdown thing is over. Family or others cannot visit the facility either unless in exceptional circumstances such as if a client is terminally ill. Obviously this means I won’t see my husband for another while still to come.

It’s the “working” Friday, so we did get day actiivities at home today. This meant, as it has consistently for the last while, that I did go outside twice for walks. I went for another long walk in the evening. As such, I reached 10K steps again. I looked up how I compare to my sister, since we’re Fitbit friends, and I took nearly 1.5 times her steps over the past seven days.

It’s now past 9PM. It’s the weekend now, so we had chips and soda this evening. Tomorrow morning, I’m going to have bread with a boiled egg on it for Breakfast. We get boiled eggs delivered to us by a former staff here who has her own chickens. I assumed she wouldn’t be allowed to come now that the facility is in lockdown, but maybe she puts the eggs at our doorstep and then leaves. So at least that tradition can continue for now.

How was your day?

What Day Is It Anyway? (March 23, 2020) #WDIIA

Well, this thing called What Day Is It Anyway? (#WDIIA) is presumably a daily feature during the COVID-19 crisis. However, I won’t promise I’ll make it a daily feature. I’d like to participate when I can though, as I must admit I lose track of the days too.

Today is Monday, March 23. I awoke at 8:29AM according to my Fitbit activity tracker. I got showered, brushed my teeth and got dressed. I then had nice yoghurt with crunchy muesli with nuts for breakfast. I bought it with the staff on Saturday.

Then I went back to my room for a bit, until it was time to have coffee in the living room, which is our day room now that the day center is closed. The day activities staff are still figuring out how to best help all clients in the seven homes that are part of the facility.

I went for two walks during the day, one in the morning and another in the afternoon. Then after dinner I went on the elliptical. Then finally while prime minister Rutte was delivering a press conference on the COVID-19 situation, I took another long walk. I reached nearly 12000 steps today.

As such, I didn’t hear myself what the prime minister had to say. I later heard on the news that people found gathering in even small groups can be fined up to €400 per person. It’s up to each city’s mayor though to take appropriate safety measures. Shops can (and probably should) have strict limitations on the number of people entering at a time. All events and festivals have been canceled until June 1. The prime minister will give out further details about school closures next week. But the good news is… no complete lockdown for now! Though the prime minister did say that people should really go outside alone if they’re outside at all, I doubt I’ll be fined for taking walks outdoors with just one staff. I hope not at least, as walks are true stress-relievers for me in normal times already and this time is definitely more stressful than normal.

Then again, I’m not sure I’m affected more by this situation than most others, or maybe even less. I am constantly on edge, but that’s my normal. That’s what living life with (C-)PTSD and BPD traits is like everyday. My distress level simply is never at a one and this time is no exception. Though obviously the lack of routine is distressing, I must honestly say it’s really more the usual things that cause me overwhelm.

Welcome to Another Day #SoCS

Welcome to another day. What day is it anyway? I have to check my iPhone to be sure. It’s Saturday, March 21, 2020. Here I almost wrote it’s March 20. Where does time go?

It’s the first week of whatever this self-isolation thing is called here in the Netherlands. It’s not a complete lockdown, but there’s not much we can do anyway. I went to the supermarket today, only realizing later on that if I’m allowed to go there and be relatively close to other customers, I should be allowed to see my husband too. Or is that flawed logic? I mean, no-one is really keeping the five feet distance that’s recommended.

I miss my husband. It dawned upon me last Thursday that if I do fall seriously ill with COVID-19, my husband won’t even be allowed to see me. I know, I’m in good immunological health, so I most likely will just get some nasty flulike symptoms, but still. It sucks not being able to be close to my husband.

Then a voice in my head said: “But you chose to leave him.” I didn’t leave him, as in divorce or abandon him. We’re still married and planning on staying so for life. But I did go into long-term care when I wasn’t literally dying living with him. I was struggling to keep up, but I did have food to eat and could, for the most part, get ahold of something when I was hungry.

I bought a bag of liquorice and ate it almost in one sitting today. Then I had a terrible stomachache. I don’t know why I decided to eat all the liquorice. I guess some part of me is feeling rather awful.

Yesterday, a little (inner child, for those not familiar with dissociative identity disorder) wrote to an E-mail list. I don’t know what she wrote and haven’t checked the responses.

Generally, we feel pretty calm, but I guess there are parts of me who are severely triggered by something about this COVID-19 crisis. Other parts are just bemused. It’s a strange world we live in indeed.

I’m linking up with #SoCS, for which the prompt today is “Welcome”.