Three Years Out Today!

Yay, I’m three years out of the looney bin today! In a way, I’ve come so far. I’ve genuinely tried living independently with my husband. I mean, each time I was in a crisis in 2017, I told the consulting psychiatrist seeing me in the hospital that I was fine going home. I asked for more help each time, which I was given. This little (or not so little) voice inside my mind still tells me those overdoses were manipulative and I should not have gotten the help I asked for. They were impulsive each time, but at the time of taking those pills, honestly I didn’t think: “If I do this and survive, I’ll ask for more help.” Truthfully, I didn’t think much at all.

Then in early 2018, I had a crisis at day activities. That was what started me on my journey of admitting I truly couldn’t – or wouldn’t, as this not-so-little voice tells me -, live independently. At first, when the Center for Consultation and Expertise consultant asked me what I wanted, I said I wanted to live close by a living facility so that I could walk over or call for support. On September 20, 2018, I eventually told my support coordinator that I’d really want to go into a living facility with 24-hour care. She then called the consultant, who was still willing to help us on this journey.

We filed the request for long-term care funding in December of 2018. It was denied on February 27, 2019 on pretty weird grounds. We appealed and our appeal was granted on June 4, 2019 on actually about as weird grounds. I mean, the Long-Term Care Act fails to recognize the implications of multiple disabilities, but how the appeal lawyer managed to find a workaround, still baffles me. I don’t care though, as unless the law changes, we won’t have to apply again.

And here I am, nearly eight months into living in the long-term care facility in Raalte. Still, this not-so-little voice nags me each time I try to open up about my needs. My mother’s voice speaks to me again. When I’d just landed in crisis in November of 2007, she called me to reprimand me about going into the psych hospital. “You can’t even wipe your butt without your support worker’s help,” she said. It wasn’t true then and it isn’t true now, but I feel ashamed each time I ask for help, particularly with personal care stuff.

I had a session with my CPN from mental health this afternoon. I do an eHealth module on self-image, so we got talking about that. I got to say that one of my main reasons for having a negative self-image, is that each time I think positively of myself, or validate myself, this not-so-little voice tells me again that I’m manipulative. This seems to be at the core of many of my issues and yet I cannot even say rationally that it is certainly not true.

Bookish (And Not So Bookish) Thoughts (May 7, 2020)

I haven’t felt inspired to write all day today. That’s weirdly sad. I mean, before I went on this writing spree at the end of March, I sometimes didn’t write for nearly a week and now I’m feeling disappointed at not having a topic to write about by morning. I did get my writing mojo back in late afternoon. I’m joining in with Bookish (And
Not So Bookish) Thoughts
. I think Christine of Bookishly Boisterous intended this as a meme anyway, so I can join in.

I finally finished Wonder by R.J. Palacio yesterday. I originally wanted to write a proper review, but can’t without it probably containing spoilers. So be warned.

Let me say this book had my feelings all over the place. I was triggered by Via’s feeling like everything was about Auggie. This resonates with how my sister felt about growing up with me. I felt tears of joy when reading Miranda’s part, because she showed such pure love to August. Then at the end, when everything is fine and everyone sticks up for August, I felt a pang of jealousy. I mean, my school was welcoming too, but mostly so they could pat themselves on the back for having accepted a blind student. I ended up giving the book a 4-star rating because of these mixed feelings.

Now I’m reading Wink by Rob Harrell. It’s a bit of a similar themed book, but so far not as evocative.

I also downloaded Rules for Being a Girl by Candace Bushnell and Katie Cotugno. I saw it on Rebecca of BookishlyRebecca’s Goodreads, which was linked to her blog. I’m probably going to link my Goodreads here too.

I’m also further digging into The Empath’s Survival Guide by Judith Orloff. I’m beginning to think I may be just a highly sensitive emotional mess, not an empath. However, it’s still an interesting read.

In other news, yesterday was a truly great day for my blog stats. Not that I care much about them, but then again sometimes I do. I am truly loving being able to interact with all my readers. I can’t believe how for years I rarely replied to comments. I believed at the time that my stats would be screwed if half the comments were mine. Well, whatever. I apparently cared more about my numbers then than about genuine connections, which is weird at best.

How is your (reading) life going?

#IWSG: Keep on Writing!

IWSG

Today is the first Wednesday of May and this means it’s another Insecure Writer’s Support Group (#IWSG) day. I didn’t really understand the optional question for this month, but I have enough to share without answering it.

You see, I finally did pretty well in the writing department! Firstly, I finally completed the #AtoZChallenge for the first time in four years. I loved it actually. Of course, occasionally it got a little boring and difficult at the same time, but overall it was quite a cool experience. I got to know a few bloggers I hadn’t known before or only four or five years ago when I did the #AtoZChallenge on my old blog. It’s so cool to see bloggers actually keep blogging year after year.

Secondly, I wrote a few poems. I actually had some more in my head that I haven’t written down yet and I may’ve forgotten. I find it pretty easy to come up with particularly syllabic poetry. Not wanting to brag, of course, since I honestly don’t want to claim my poems are any good. However, the words flow quite naturally.

Next time it’s open at dVerse, I might try my hand at a quadrille. I had no idea what one was and thought it had a lot of rules. Apparently not.

I also wrote my very first piece of flash fiction. Looking back, I should have explained a little more, as my piece left a lot to be filled in by the reader. That was on purpose, but it did make it a little weird maybe.

I look forward to keeping up the writing mojo in May. Of course, I know I’ll face writer’s block, lack of motivation or both someday, but I hope I’ll continue to be inspired and motivated for a long time to come.

Oatmeal

Hi readers, how are you? I’ve truly been very active lately. Today I initially didn’t feel that motivated to do much of anything, but I eventually managed to read a good amount. I also walked for 30 minutes, albeit divided between a 10-minute walk together with another client and a 20-minute walk with just the staff. And now I’m looking through my drafts folder to start a blog post for today.

Last week, lots of ideas were floating through my mind. I couldn’t actually follow through on most completely independently, so I discussed some with my day activities staff. I wanted to do a cooking activity again. For some reason, I got thinking about trying out oatmeal recipes. So I went about and googled some simple oatmeal recipes. I cannot seem to find the one I used right now.

What I Used


  • 4 cups almond milk.

  • 2 large bananas.

  • 2 cups oatmeal (it’s just sold as oatmeal here, not rolled oats or anything).

  • 1 teaspoon vanilla extract.
  • 1 teaspoon cinnamon.

  • Tiny pinch of salt (I didn’t think I’d like that, but it was in the recipe).

I had the staff mash the bananas with a fork. Then we threw all ingredients in a saucepan and brought it to a boil. Then turned the heat down and had it cook for a few minutes. I stirred constantly, so that the oats wouldn’t get crusty. After we removed the oatmeal from the stove, we added granola as a topping. That wasn’t in the recipe I used, but I thought I’d like it and we had lots of granola left over anyway.

My sister used to eat oatmeal for breakfast when she was little. I never quite liked it, but this was truly delicious! It was also very filling. I ate it for lunch and didn’t need anything else to feel full.

The staff gave some of the oatmeal without the topping to some clients who normally eat mashed bread porridge and they loved it too.

Next time, I’m going to try to make some overnight oats. I’m not going to let it sit in the fridge for an entire night, but most recipes I checked said two hours is generally enough.

Do you like oatmeal or other porridge?

Flash Fiction: The Invite

“I got invited,” Jack said.
“To what?” Amanda asked.
“To Clearview’s reunion. Rick invited me.”
“Okay,” Amanda said. “So are you going?”
“Of course!” Jack shouted.

Clearview Prep was Jack’s high school. It was the most prestigious high school in the city he grew up in. The city wasn’t large, but still, you were almost guaranteed access to top colleges in the state if you graduated from there.

“I thought you weren’t all that excited about school?” Amanda countered.
“I am now. I have a business. I have you. We have a baby on the way. Gotta show my peers that I’m at least as successful as they are.”

Amanda wasn’t sure what to think of it. Even though she was Jack’s wife and supposedly his biggest supporter, deep down she had her reservations. Not about loving him, but he could be a little arrogant. She liked him for it, but she wasn’t so sure his high school peers would. And then there was the other thing.

“What will you say about those fifteen months you…”
“Don’t talk about that,” Jack cut her short. “That’s in the past.”
“So is Clearview Prep,” Amanda said.

Jack knew. He knew that, if he were to revisit that bit of his past, he’d have to revisit the rest. Rick knew, but apart from him, no-one in his class knew why he’d left Clearview just a few months before graduation.


This piece of flash fiction was inspired by Sandman’s Writing Challenge #5.

When I Was Five

This week it’s 29 years ago that I spent a week in the children’s hospital with a collapsed trachea. It closed up on the night of April 28, 1991, the night after we’d celebrated my mother’s birthday, two months before my own fifth birthday. I was unquiet all night or so I’m told, getting up to go to the bathroom a dozen times. Eventually, my parents discovered what was going on and I was rushed to the hospital.

Thankfully, my trachea opened again within a day or two. I don’t know whether I had to be on a ventilator. In fact, I remember very little of these first few days. Then, on May 3, I had surgery to take out my tonsils and adenoids. That surgery had been scheduled for May 21 at another hospital anyway, but the children’s hospital could fit me in earlier now that I was there anyway.

After surgery, I had to stay in the hospital for another few days because I had a breathing tube inserted. That is, I’m not 100% sure the breathing tube was before or after surgery. I remember trying to talk through my tube, which was pretty much impossible.

This was probably also the time in hospital that my parents brought me their supermarket’s brand of peanut butter to eat, as I wouldn’t eat the premium brand the hospital had. Can you tell I was spoiled or autistic or both?

Finally, I got home on May 7. I was already a calendar freak, so I actually remember this without having been told.

As I write this, my inner five-year-old is trying to speak up, but she can’t. I don’t know whether this hospital stay was particularly traumatic for me, even though the going to the bathroom compulsively became a habit of mine in my teens. I may have made Lisel (that’s my inner five-year-old) up, because after all I remember this particular hospital stay so well.

I do think falling ill in early 1992, was more of an adverse childhood experience for Lisel (or me, if you think Lisel is made up). I remember I had some form of the flu, but in my own memory, it wasn’t entirely medically explained. My parents will probably say I’m trying to find clues that aren’t there so am making them up. I mean, they never talked about this experience when, in my teens, I was trying to remember when my negative mood started. They claim, as did I at the time, that it started when I was seven and having to learn Braille. In other words, I was going blind and I knew it but refused to accept it, so was becoming defiant to show a middle finger to the world. It’s easy to say it doesn’t matter. In a way, it doesn’t, but too often, I feel my parents are hiding the truth from me as a way of denying that I had significant mental health issues before the all-important age of seven. I mean, if my problems started at seven, I cannot possibly be autistic or have a dissociative disorder or anything originating in early childhood, right? Besides, I could have been old enough to be manipulative.

Am I being manipulative indeed? Or am I an early childhood trauma survivor? I don’t know and I’m not sure Lisel knows the answer.

Joining in with V.J.’s Weekly Challenge.

How COVID-19 Changed My Outlook on 2020

Yes, I’ve said it before, but can you believe it’s May already? Four months have passed since the beginning of 2020. Time flies when you’re having fun, they say. Well, time also flies (and drags at the same time) when in a pandemic. Today I’m joining in with Finish the Sentence Friday (which is open all week), for which the question this week is how the pandemic changed your word of the year.

In January, I chose the word Wellbeing as my word of the year for 2020. I was at the time already a bit angsty about it, as I was in a bit of a hypochondriac phase and thought that if I chose this word, I’d die this year or something. Some kind of reverse law of attraction.

Still, so far, my word is still pretty true. I am taking preventative measures to hopefully keep the coronavirus out of my body. Just yesterday, my staff started taking everyone’s temp twice daily with a no-contact thermometer. Since the virus hit the home below mine, I have been a little more scared. At the same time, I still often avoid thinking about the pandemic too much. Actually, I realize that, as the month of April continued, I included fewer and fewer references to the pandemic in my posts.

I had a few hopes for 2020 too. The first one was to keep my marriage strong. I felt I needed to learn to travel to my husband for this, as I thought ultimately living apart wouldn’t be very good for our marriage otherwise. While I still feel I need to learn to travel to him independently once the crisis is over, I have learned that our marriage can survive a time of not seeing each other. It’s hard, but it’s doable.

Honestly, I must say the pandemic has given me a clearer focus on what matters most. I try to appreciate my husband more. After all, he isn’t a given. One day one of us might catch the virus. Besides, we can’t see each other now and it isn’t altogether logical that a marriage survives this.

On my other goals, I did pretty well so far. I’m actually loving it. I don’t know whether the crisis is the reason I’m doing so well, but I’m pretty sure it’s one of the factors.

Gratitude List (May 2, 2020) #TToT

It’s been forever since I did a gratitude post. Right now I’m feeling a little frustrated with the fact that I am blind. I want to participate to the fullest in the social media thing, but it seems images are often required and I can’t do them. Other blind people apparently can, but I can’t. Anyway, to cheer myself up, I’m taking part in Ten Things of Thankful or #TToT. Here’s what I’ve been grateful for lately.

1. The beautiful weather last week. Okay, it’s been raining a lot this week, but last week-end, it was sunny and warm. I loved it!

2. Being able to take regular walks in spite of the bad weather this week. Somehow, my staff and I managed to find time inbetween rainstorms to go for some walks. Yesterday and today, I even took some late evening walks after most of the other clients were in bed.

3. Making plans for more activities I can do with my day activity staff. On Monday, we will be trying out a basic oatmeal recipe with banana. I remember my sister ate oatmeal for breakfast when she was little and I didn’t like it. I hope I like it with the banana added. I’ve also looked into overnight oats recipes. I definitely like that.

4. The orange puff pastry we ate with our coffee for King’s day on Monday.

5. Getting crunchy muesli for breakfast. It took the staff some time before we found the right one, the one with four kinds of nuts and crunchy muesli, not granola. Yes, I’m picky like that.

6. My teddy bear getting washed. I thought it’d gotten a hole in its fur, but it turned out to be just dirty. After I finish this blog post, I’m going to cuddle up with it in my bed.

7. My computer. I’m really enjoying using it. I know, I’ve had it for ten months already, but up till this week almost always chose my phone to do most things on. I’m now actually loving writing this post in good ol’ Notepad.

8. Having finished the #AtoZChallenge. I’m definitely proud of myself for actually getting it all done.

9. Keeping my writing mojo now that the challenge is over with. I don’t know for how long I’ll be motivated to keep writing, but we’ll see.

10. Being more alert in general. Okay, I think I may be a little overalert, but then again that’s a lot better than being tired and depressed.

What have you been thankful for lately?

Mother As Place of Attachment

It’s already been eighteen months since I last wrote about what I read in The Emotionally Absent Mother. Still, the book hasn’t just sat there. I struggled to move on from Mother As Source. The next section is titled Mother As Place of Attachment. Somehow, this is a really hard section. I don’t really know why. I mean, yes, part of the reason I struggle to move on in writing about this book, is that I do it publicly and what if my parents read this? Then again, I don’t really care. I’m in groups on Facebook for childhood emotional neglect and emotional abuse survivors too. Though the member list of private groups isn’t available to non-members, I’m pretty sure they know somehow. Honestly, regarding this, I care more about my husband’s opinion than my parents’.

But there’s something specifically about this section that is hard. I’m not even sure what. Maybe it’s just that I don’t have a lot of early memories of my mother. I attribute this to my father being the homemaker and primary caretaker in our household. But fathers can “mother” too.

The first question asked in the section on your mother as place of attachment, is to rate your sense of connectedness to your mother on a scale of 1 to 10. The next question is how your sense of connectedness evolved over the years.

Well, with my mother, I am generally at a 5. I don’t feel she “gets” me, but we do get along okay. Like I said when discussing mother as source, I don’t feel that I’m made of her, but she isn’t from another planet either. Or maybe she’s from Venus. I mean, we’re not constantly disconnected.

Over the years, my sense of connectedness to my mother has stayed the same. I never quite felt like we had a strong bond, but I didn’t feel totally alienated either.

My father is a different story. We had a strong connection, maybe around 8, when I was a child. Now we’re at a 3 at best. Like I said in my mother as source post, as a child, I saw my father as the embodiment of intelligence, success and well what other positive characteristics are there really? When I got to question his having sole ownership of the truth at around age 15, things started to change. Or did things change earlier on? I’m not sure.

Another question is about bodily contact. This is where I get to question whether the schism occurred earlier than age 15. When I was a young child, my father definitely did give both my sister and me lots of opportunities for bodily contact. I remember when my sister and I were little, my father would wrap us in a towel and drag us to our bedroom. He called this “swordfish” and my sister always asked for “sordsish”.

My mother says that, around age 7 or 8, I stopped wanting to sit in my parents’ lap. From then on, bodily contact like hugging or good-night kisses was very ritualistic. I remember around age 11, being forced to read a certain number of pages in Braille if I wanted a good-night kiss. This at the time felt very distressing. I haven’t studied emotional development except in the context of intellectual disability, so I have really no idea whether it’s normal to still want good-night kisses at that age. I guess not.

As a side note, I did initiate physical contact such as hand-holding with practically every adult until I was at least 12. In my psych eval report from age 11, the ed psych notes that I claim not to need a cane but grab her hand immediately anyway. That first bit was no doubt related to my difficult accepting my blindness, but I don’t think the second bit is fully. Even as an adult, I truly crave physical contact and am a bit indiscriminate in who can give it to me. I mean, I am pretty clear that no male staff can provide me with physical comfort (or help me with personal care). With regards to female staff though (and the entire current staff of my home is female), I do accept physical comfort. I honestly don’t know how my husband feels about this.

PoCoLo
Keep Calm and Carry On Linking Sunday