The Wednesday HodgePodge (May 18, 2022)

Posted on by Astrid

Hi everyone. Joyce has prepared some fun questions for the Wednesday HodgePodge this week, so I’m joining in again. Here goes.

1. What’s something that makes you feel stressed? How do you cope?
Uhm, me, stressed? 😉 Seriously though, there are a lot of things that make me stressed. The most likely stressors for me are when my routine gets disrupted and when I get frustrated during a craft project or other activity that’s important to me.

As for how I cope, well, usually, uhm, I don’t. I do try to calm down by reminding myself that whatever’s going on isn’t the end of the world. However, most of the time I need someone else to sort out the problem I’m facing for me before I can calm down.

2. What’s a food you eat that evokes a memory? Explain.
I honestly don’t know, since I don’t eat most foods from my childhood anymore (or at least not in the form my parents used to cook them). I also don’t have many memories attached to foods I do currently eat. I mean, I clearly remember the licorice “pie” my staff and fellow patients at the psych hospital made for my wedding, but I haven’t eaten that brand of licorice in years.

3. This week’s Hodgepodge lands on National Visit Your Relatives Day. Will you celebrate by visiting a relative? If so is travel involved? Geographically, who is your nearest relative (not counting those living in your own house)?
I had no idea this holiday even existed, so no, I won’t be celebrating and no, I didn’t happen to visit a relative today anyway.

I am not sure whether in-laws count as relatives. If they don’t, my parents are my closest relatives geographically. They live a little over an hour’s drive and about 100km away. If in-laws count too, my sisters-in-law are probably my nearest relatives geographically. They are about an hour’s drive but only about 60km away. Both live in the same town but not in the same house.

4. What’s your most frequently used emoji? Do you make more phone calls, send more emails, or mainly text to communicate with friends and family?
My most frequently used emoji is the slightly smiling emoji followed by either the purple heart or the laughing emoji.

I mainly text to communicate with my husband, although we do talk on the phone nearly everyday too. With other family, well, I call or text them every once in a while but I wouldn’t say either is frequent. E-mail is used for discussion lists and contact with my staff mostly.

5. Tell us the story behind a favorite piece of furniture.
Okay, I’m going with the desk I have my computer and phone on right now. This one, my father bought for me on a marketplace site in like 2006. I think the person selling it was located in Fryslân in the north of the country, about a two-hour drive from my family home. The desk isn’t too large, but it cannot be taken apart. My father drove an older Nissan Micra, so a small car. The desk just about exactly fit inside the back of the car. Or actually, just about exactly didn’t fit. As a result, my father had to drive while the back of his car was open. This was quite an interesting ride. That being said, I’ll still have to ask my father how he got my tandem bike from their home to the psych hospital in Nijmegen, either in or on that same Nissan Micra or on a train.

6. Insert your own random thought here.
All this talk of relatives and family makes me want to talk to my sister. She’s expecting a baby. That is, unless she’s left me out of the loop, the baby’s still inside of her even though she’s past her due date. She said she’d probably let loose what she’ll be calling the child already. I’ve heard two names so far, one of which I like and one of which I, well, dislike quite a bit. I’m just hoping mother and baby will be well and that my sister can have a home birth, as that’s what she’s wished for all along. With her other daughter (she’s expecting a girl again), she did give birth at home but the child had to be taken to hospital a few hours later anyway.

All this is making me feel all sorts of feelings. In a sense, I wish I were closer to my family of origin, but I know they don’t agree with the choices I needed to make (ie. going into long-term care). My sister also lives about two hours and 180km away from me. It’s all rather sad really.

Gratitude List (April 23, 2022) #TToT

Posted on by Astrid

Hi everyone on this sunny but windy Saturday afternoon. I’m writing a gratitude post once again. As usual, I’m joining Ten Things of Thankful. Here are the things I’ve been grateful for lately.

1. I am grateful for some lovely colors I’ve been able to mix with the Fimo Professional true colors pack I got from my staff last week. I so far mixed a purplish red, a beautiful green and of course the sky blue I already may’ve posted about last week.

2. I am grateful for Chinese takeout food. We went to get Chinese food last Monday. Originally, I’d gotten a little upset about it, because the staff generally default to satay with noodles. However, I talked it over with my assigned staff and we decided to order chicken with pineapple and sweet and sour sauce too. One of my fellow clients was completely delighted.

3. I am grateful for a text conversation with my sister. She’s still doing well with her pregnancy (she’s nearly 37 weeks along), for which I’m grateful too.

4. I am grateful for the support from my staff. I’ve had a rough couple of days this week, but my staff pulled me through.

5. I am grateful I was able to go on the elliptical for the first time in a long while this week. I went on it for only five minutes or so, but that’s the way to get started.

6. I am grateful I am sometimes able to go for slightly longer walks than just a walk around the day center and for several walks during the day now too.

7. I am grateful I did better than expected at my physical therapy this week.

8. I am grateful my husband is supportive of me even when I’m struggling. I am grateful that my husband is trying to help me come up with solutions to the obstacles I face in life.

9. I am grateful I was able to show a temp staff worker and the intern my polymer clay collection yesterday.

10. I am grateful for soothing playlists of nature sounds and instrumental music on Spotify.

11. I am grateful for sunshine. Despite the fact that it’s chilly and windy, I like it that it’s quite sunny.

12. I am grateful that, despite Easter and all the “bad” food I had over the past couple of weeks, I’m still just plain overweight rather than obese. I am actually at the same weight I was two weeks ago. This is not an excuse to continue having “bad” treats, of course.

That was a better gratitude list than I expected. I initially struggled to get to ten and now I got to twelve, which should be another reason to be grateful, yay!

What are you grateful for?

Joy in February

Posted on by Astrid

Last month, I shared my one word for 2022: JOY. Today, I want to share an update on how I’ve been doing with this one word. I am joining the Word of the Year link-up, which I didn’t join in with last month (because I didn’t see it on time to join in), as well as Lisa’s One Word linky.

Overall, I’ve been doing pretty well remembering my word for the year and seeking joy in the ordinary moments. I didn’t experience any mind-blowingly delightful moments, but I did enjoy the everyday.

In particular, what I’m happy about, is that I found joy in the treats I could have every now and again now that I’m on a healthy food plan and don’t allow myself to indulge in whatever I please. Now that I have COVID, I’ve ditched the diet and am more or less allowing myself to eat what I want, but I’m still not overeating, thankfully. I mean, I have a bag of licorice on my table (under the guise of it helping with sore throat, which I don’t even have right now), which I could’ve eaten all in one sitting had I not been mindful. Instead, I am truly savoring each sweet.

I also enjoyed my creative hobbies quite a bit over the past month. Though in this respect, I still look to improve myself, I can still find joy in the mere act of creating. Earlier this week, I found intense joy in my first polymer clay color mixing experiment.

Because I sometimes struggle to find the energy to start “larger” activities such as polymer clay, I also asked my day activities staff about some easier to get started activities. She brought me a simple game with a board and insertable small pieces in different colors. I have been enjoying doing this activity with my staff or alone.

Lastly, I didn’t see my husband a lot over the past month, but I did enjoy speaking to him on the phone and texting him everyday. I obviously won’t say that seeing him less made me appreciate his visits more, as I wish we could have seen each other each week. However, it definitely was a lesson in enjoying the ordinary and delighting in the extraordinary.

Finally, both my husband and mother-in-law have been very sympathetic now that they know I have COVID. I am truly grateful for both of their thoughtful text messages. I also was positively surprised to get a call from my sister as soon as I posted about my positive COVID test on Facebook early Wednesday morning. You might think that the fact that I was surprised, means I view her negatively, as I assume most people expect their family to sympathize when they have COVID. While I admit this is in part true, I also think I shouldn’t take sympathy for granted.

Pocket Money Tales

Posted on by Astrid

Today’s topic for Throwback Thursday is chores and allowances. Let me share my experiences.

Regarding chores, I could easily be short and sweet: no, I did not have any. Neither did my sister. We were raised with the expectation that we’d leave the house as soon as we graduated high school, but we were hardly taught any of the skills of independence, much less expected to contribute to the household on a regular basis. My sister was occasionally expected to do the dishes once she was about twelve or so. Same probably for me, but my parents quickly decided I took too long, didn’t do it right or made too much of a fuss over it, probably all three.

My sister, who’s non-disabled, somehow managed the skills of independence by observing my parents anyway. I, being blind and multiply-disabled, did not. When I left for the independence training home right after high school, I had virtually no skills necessary for living independently. I am forever grateful I persevered and decided to take this step rather than moving out on my own right away.

Regarding allowances, or pocket money as it was known in our family, the situation was a little more interesting. I got my first pocket money at age seven. I got one guilder a week. A few months later, I’d turn eight and my father promised me I’d get two guilders a week provided I’d stop leaving the lights on in my bedroom when I wasn’t there. The reason being that, if I no longer left the lights on, he would save on electricity and could give me more pocket money. I doubt it’d seriously make a difference of one guilder a week, but I’m not entirely sure he hadn’t possibly calculated it somehow. That’s how he is, after all.

That brings me to my next pocket money story, some eight years later.
I originally couldn’t remember whether we already used euros at the time. Not that it matters for the morale of the story, but I saw the official documentation relevant to this story and now know we already had euros. I must’ve been sixteen and was rather angry because my sister got a higher allowance than I’d gotten at her age, so I now wanted more too. At first, my parents got all defensive, calling me selfish because I was playing the “not fair” card. Then, after both of us at calmed down, my father asked me to write a budget of things I’d need pocket money for. If it was within reason, I’d get what I’d asked for.

I had asked for €10 a week. I created a budget (that’s the “official documentation” I referred to above!) fitting all my personal expenses, including candy, jewelry, memberships to the children’s choir and the political party I was a member of at the time, into this budget. Ultimately, my budget showed I needed €555,60 a year. When my father saw it, he commented that I’d been far too careful to try to fit my budget into what I’d demanded. I particularly remember him saying he couldn’t believe I’d just spend €2,50 a week on candy, for example. And I must admit he was right. My father told me that €100 a month was a more reasonable allowance and so it happened that I got more than twice the amount of pocket money I’d originally fought for!

Were you taught about budgeting as a child?

#WeekendCoffeeShare (January 21, 2022)

Posted on by Astrid

Hi everyone on this late Friday evening. I’m joining #WeekendCoffeeShare, even though it’s a bit late for coffee here. I am going to grab a glass of water and some fruit in a bit, so if you’d like a soft drink or a glass of water too, you can have one. Let’s catch up.

If we were having coffee, first I’d moan about the cold weather some more. Boy, do I hate winter! Several staff have been trying to coax me into going on walks because it was supposed to be sunny and nice outside. Then I’d invariably reply: “It’s 3°C outside too, brrr.” Usually, the air would become cloudier soon enough and we’d get rain.

If we were having coffee, I’d share that, probably due to my lack of exercise, I didn’t lose weight over the past week even though I stuck to my healthy food plan pretty well. That is, I didn’t feel as though I was just eating carrots and lettuce all week, so maybe I accidentally sneaked in some extras I shouldn’t have had. For example, I am allowed 225ml of yogurt or 200ml of quark with some muesli for breakfast. On Wednesday, my staff poured half the 500ml can of quark into my bowl. Now quark contains only about 50 calories per 100ml, so that didn’t really make a huge difference on its own. However, given that I or my staff may’ve made other such slightly less healthy food choices over the week and I also hardly got my butt off the chair, this combined caused me to maintain. At least I didn’t gain any weight either.

If we were having coffee, I’d tell you that I went to the dentist on Wednesday. Thankfully, other than slightly inflamed gums, everything was fine. I was pretty sure I’d be diagnosed with gum disease and have to be seen by the oral hygienist. Apparently not so. I was sent on my way with instructions for better teeth-brushing and flossing and an appt with the prevention assistant in February.

If we were having coffee, I would share that I texted with my sister this evening. I can’t remember whether I shared before that she’s pregnant again. She’s expecting another girl in May. So far, all seems to be going as it should be. My (other) niece (other than the bump, I mean) is doing okay too. I mentioned in August that she was diagnosed with hip dysplasia. After surgery in September and a cast for several months, she’s now doing pretty well again.

If we were having coffee, lastly I’d share that my husband is off work with the flu. He tested negative for COVID, but thankfully he wasn’t so crazy as to go back into work as soon as he got the negative test result. Back in early 2020, before COVID was known outside of China, he did go to work as a truck driver while sick with the flu. I am glad he doesn’t have COVID, of course, but regardless I’m hoping he’ll feel better soon.

How have you been?

Generosity

Posted on by Astrid

Today’s prompt for #JusJoJan is “Generosity”. I don’t tend to think of myself as a particularly generous person. That would not only be arrogant, but it would be incorrect as well. Particularly as a child, I liked receiving more than I liked giving. I was a very jealous child, often envying my sister for what she got and I didn’t.

I remember one day, when my sister and her friends had been participating in the four-day walking event in my city. It was the last day of the event and I was allowed to walk with them for this occasion. At the finish line, a parent of one of my sister’s friends had lots of candy for my sister and her friends, but he had none for me. I had a full-on tantrum in the car home even though my sister and her friends ended up giving me more candy than they kept for themselves. It caused the oldest friend, a girl my age, to cry. I was ten at the time, so far too old for toddler tantrums like this. I feel intense shame about this incident as I look back, seeing that I should have known it wasn’t fair of me to expect candy since I hadn’t walked the entire event. Much less should I have tantrummed about it in the car.

Now that I’m an adult, I am a little less worried about material goods and a lot less jealous of others, but it still doesn’t come natural to me to give material things away. Thankfully, generosity comes in different ways and I do love expressing it in other ways. I love to create my own gifts for people. Yes, of course they are material too, but that feels different.

Still, I am often reminded of the Sesame Street episode in which Bert and Ernie have a cake and Ernie gives Bert the smaller slice. Bert teaches him that he’s supposed to offer Bert the larger slice first. Then Ernie asks: “So what would you do if you were to offer me the cake?” Then he replied he’d take the smaller slice and offer Ernie the larger slice. “But you have the smaller slice now, like you wanted!” Ernie objects. This is child logic and it is incorrect. It is not how we’re supposed to be generous. We are supposed to love others like ourselves. Others before ourselves, even.

I pray God leads me to a life of greater generosity. I know I am supposed to love others as myself and that includes giving generously of myself to others. Like I said yesterday, when I trust that God will provide for my needs, He will. As a follower of Christ, I have no need to worry. In the end, everything will work out okay.

How I Cope With Loneliness

Posted on by Astrid

Today in her Sunday Poser, Sadje asks us about loneliness. She describes the experience as the feeling she gets when her family or friends can’t celebrate something important (such as the seasonal holidays) with her. This is one aspect of loneliness indeed. I feel lonely, left out even, knowing that my sister will be celebrating St. Nicholas with my parents next week and I haven’t been invited. Okay, she has a child for whom this holiday is more meaningful than it should be for me as an adult. Still, I am reminded of the last year we celebrated St. Nicholas with my family, or rather, the first year we didn’t. That was because of me: I had been admitted to the mental hospital shortly before and my parents didn’t want the hassle of having to watch me while I was on leave, so at first they suggested they celebrate the occasion without me. That year, my sister refused and the celebration didn’t go forward at all. Now that my sister has a child, there’s no way she’s going to care about whether I’ll be included or not. In fact, I’m pretty sure she’d rather have me excluded.

Loneliness, however, can take other forms too. Like I mentioned last month, loneliness comes from within a lot of the time. That’s why you can feel lonely when you’re surrounded by people. I often felt this way in the high school cafeteria.

I find that what helps me cope with loneliness is to surround myself with positive influences, both in the form of people and activities. I mean, I could dwell on my family’s rejection of me, but I do have a loving husband and loving in-laws. I also have caring staff and nice fellow clients, some of whom I consider friends.

It also helps me to engage in fulfilling hobbies, such as writing, reading and crafts. Through my blog and Facebook groups, I feel a genuine sense of connection to the outside world. Reading helps me escape my problems, including my sense of isolation. Crafts distract me and help me feel that I can be productive in a way. All of these help me overcome my sense of loneliness.

How do you deal with loneliness?

#WeekendCoffeeShare (November 6, 2021)

Posted on by Astrid

Hi everyone on this gloomy fall day. I’m joining #WeekendCoffeeShare. Unlike most days when I write my coffee share post, I haven’t had my last cup of coffee yet. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that my GP appointment on Monday went okay. My magnesium got decreased in hopes of relieving me a little from my abdominal discomfort. It’s helping a tiny bit, but not enough for my liking.

If we were having coffee, I would tell you that I had an okay week otherwise. I’m struggling quite a bit with the disconnect between my intellect and my emotions. This is causing me to appear well-collected a lot of the time when in reality I feel extremely distressed. I discussed a few examples of this with my assigned staff and support coordinator today and they’re helping me improve these situations.

If we were having coffee, I would share that I finally gave in (or up) with respect to the adaptive footwear situation and had my husband order new walking shoes for me. After all, the old ones will probably have a large enough to get my socks wet hole in them within a week or two at most. I am so grateful my husband found almost the exact same shoes. They arrived in the post today. I am still hoping I will eventually get used to my orthopedic footwear, but it will need some further adjustments for that to happen first.

If we were having coffee, I would share that I am looking forward but also stressing about the national cerebral palsy day in three weeks’ time. I went to the event on my own three years ago, but this is quite hard this time. I can’t afford for a staff member to go with me to the entire event even with my one-on-one being covered by the care facility. After all, I have one-on-one only part of the day and would need to pay like €45 an hour for individual support for the rest of the day. I might go on my own after all, or I might skip the event, like I skipped the online regional meeting today. I was seriously planning on going to that one, but just couldn’t get myself to do it after all.

If we were having coffee, lastly I’d proudly announce that I’m going to be an aunt again in May. I’m pretty sure my sister is fine with me sharing this on my blog now that she’s past three months and all tests so far are fine. My sister’s other child, my niece, is also doing well. I shared a few months back that she was diagnosed with hip dysplasia. She had surgery in September and is currently wearing some type of cast. We are all hopeful that once this will be removed in a month or so and once she’s relearned to walk after that, she’ll be completely fine.

How have you been?

Thieves!

Posted on by Astrid

When I was little, my parents would store their sweets (usually licorice but sometimes other sweets too) on a shelf just within my and my sister’s reach in their pantry. I’m pretty sure they’d tried putting them in higher places but we’d just climb up stairs or other furniture to reach them.

Invariably, on Saturday and Sunday mornings, when my parents slept in, I’d lead my sister to the pantry and we’d steal some sweets. Yes, I am pretty sure I took the lead.

I obviously thought they were unaware. That is, until one day when I was five and had just learned to read. There it was, on the sweets shelf, a paper that read “BOEVEN” in large print. This is Dutch for “crooks” or “thieves”. My parents never actually confronted us about grabbing their candy except on this one playful occasion.

In reality though, I still wasn’t truly aware that my parents knew. In fact, I remember one day when I was about fifteen, my parents had left like eight hamburgers on a plate in the kitchen and I sneaked into it to eat one at a time. My parents never confronted me and it wasn’t until a few years ago that I realized they must’ve known. That is when the shame at having eaten this many hamburgers caught up with me.

This post was written for Friday Writings, for which the optional prompt this week is food. It is a an autobiographical piece.

#WeekendCoffeeShare (August 14, 2021)

Posted on by Astrid

Hi everyone on this beautiful Saturday! The weather is much better than I’d expected yesterday that it’d be. It’s partly cloudy but warm and dry. I like it.

Today, I’m joining #WeekendCoffeeShare again. I just had my afternoon coffee, as seems common when I write these posts. However, I’m pretty sure there’s still some coffee left. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d share that I finally went to Lobith last weekend. It was good being there. As I mentioned yesterday, we got pizza (takeout). Other than that, we just chillaxed. Is that even a word?

If we were having coffee, I’d share that I texted my sister on Monday. She’d called me last week because her daughter had been referred to the orthopedic doctor for a leg length difference (her left leg is shorter than her right leg). Apparently, my niece also used her left leg less than her right. My sister wanted to know about the reasons I wear (or should wear) an AFO. I explained about the fact that I had a brain bleed and it’s from that, without mentioning cerebral palsy of course as my parents never mentioned that to me even though I’m pretty sure that’s what it’s called.

As it turns out, my niece has mild hip dysplasia and will be seen by a child orthopedic specialist in Amsterdam someday. Please all pray that the wait won’t be too long. My niece is nearly two-years-old, so it’s pretty late for corrective wear or so I’ve been told.

If we were having coffee, I would tell you that I’ve been doing quite well over the past week. I have mostly felt able to cope with my current situation okay. On Thursday, a fellow client was screaming for almost an hour on end. She does this every once in a while, yet for the first time I didn’t have an impulse to run away. I did get a little threatening towards the client, but the staff were able to calm me down.

If we were having coffee, I’d tell you I have been rather crafty of late again. I didn’t finish many projects, but I did practise polymer clay a lot. I also did make a melt and pour soap and massage oil for my friend who lives a few care homes down the road from me. It was her birthday yesterday. I came by at around 10:30AM to give her her presents and was invited to sit down in her garden for coffee and apple crumble. This was really nice.

If we were having coffee, lastly I’d share that tomorrow, I’m going to Ikea with my one-on-one to buy some new furniture for my room. My dining/crafting table is rather wobbly on its legs, so I want a new one. I also want a new second chair for my staff. My staff currently sit on a very clunky office chair with armrests, which for this reason can’t be pushed under the table. I want one similar to my own chair. I’m pretty sure I’ll be successful at finding both a desk or table and a chair. I’m also going to look at a mini fridge, as you may remember I wanted to buy one for in my room too. I don’t intend on actually buying it at Ikea, but I want to take a look at what it’s like so that I know if I have the right picture in my mind. Then I want to order it online next month when I get some extra money with my benefits.

How have you been?