My Hopes for 2025

Posted on by Astrid

Hi everyone. It’s January 1 and I am absolutely not motivated to set resolutions or goals for the new year. In fact, I think calling them “hopes” like I usually do, isn’t doing the trick either. I’m too scared that voicing my hopes is tempting fate. However, I’m going to push through anyway and write them down.

1. Be more aware of my eating habits and eat more healthily. I am still within the agreed-upon weight range for my dietitian (or was when I last weighed myself, which admittedly was before Christmas), but barely so and I’d really like to lose some weight. More importantly though, I need to make sure I’m making healthier food choices.

2. Find a physical activity other than walking that I will be able to do regularly for a longer period of time. I tried swimming, but it’s rare that a staff who can meet my needs is assigned to me during the time the pool is open for me. I’m thinking of going to a gym.

3. Give movement therapy (Sherborne) a fair chance and make some progress on it. I do think I gave play therapy a good enough chance, especially since my first impression of the therapist was already quite bad and I went nine times or so. However, I really do think I need to step out of my comfort zone in movement therapy if I want to make it work.

4. Further taper my medication. This needs a caveat though, since I need to really be aware of whether decreasing my dosage is a wise decision and, if not, what the alternatives are.

5. Remain relatively stable mental health-wise. I have been doing okay over the past month or so and my staff say that certainly after my last med taper, I’ve been relatively stable. Like I said, I’d really like to taper my medication even further, but it’s a priority for me to stay within an acceptable range with respect to mental stability. Although I feel that meds are for me, not anyone else, I don’t want to become an unmanageable monster.

6. Work on self-improvement in the areas of communication, mindfulness and distress tolerance. This is a biggie, but I feel that I really need to work on better interpersonal skills.

7. Broaden and deepen my creativity. I may want to explore hobbies that I have tried before but thought unsuitable, such as jewelry-making. I also hope to develop my skills further in the hobbies I already pursue, such as polymer clay, smoothie making, etc. I hope to do more baking and cooking too.

8. Blog and write more regularly. I wrote 110 posts over 2024, which is a big disappointment for me. I hope I’ll be able to blog more often. I also hope to write more regularly in general.

9. Stay at this care home. I’m really hoping that I won’t make another stupid mistake and end up moving again, either because the powers-that-be think that I want to or because the staff consider me unmanageable.

What do you hope to achieve in 2025?

It’s October

Posted on by Astrid

Hi everyone. It’s October. Several years, I’ve at least tried to participate in blog challenges, such as #Blogtober and #Write31Days. I saw that #Blogtober is running again this year, but I’m not officially participating. Still, I’m challenging myself to blog more this month. I did okay’ish in September.

Generally speaking, I don’t like October. It’s not as bad as November, but it’s not a fun month. Unfortunately, this year so far is no exception.

The weather’s bad, so I didn’t walk today except to a staff’s car to drive to a DHL service point to pick up a slow juicer I’d ordered online on Sunday. It’s a Chinese brand, so I may at some point regret having bought it because of the risk of microplastics in my juice. In fact, I’m already putting a good juicer and blender (my blender is not Chinese but it’s a cheap one) on my wishlist should I decide juicing and smoothie making is a true keeper hobby for me. I’m not buying either until I’ve waited a few months to make up my mind though.

I did start off this month with a new course on Duolingo: intermediate English. So far, most of it is ridiculously easy. Then again, the option I selected on the start screen to determine my skill level made the app think I’m at the early B1 level in the CEFR classification system. My spouse said my writing skills are probably C1 level at least but I’m pretty sure I miss some B level vocabulary. Let’s hope the course will aid in teaching me that.

I Am Myself (For Real This Time!)

Posted on by Astrid

Hi everyone. I haven’t blogged in over a week and it’s not for lack of wanting to, but for lack of feeling like I belong anywhere within the blogosphere. I have myself to blame, having tried to fit in simultaneously with the traditional lifestyle blogger crowd, most of who are Christian, and the more open-minded if not secular community that is mostly on WordPress. I have always had to sacrifice part of myself in order to belong with the lifestyle crowd. That’s, of course, the essence of the Christian faith and one big reason I now seriously proclaim I’m no longer pretending to be a Christian. I’m not. I am spiritual, but I choose my own path.

I mean, I could of course quote Bobby Schuller, who is big on belonging before you “behave”. However, at the end of the day, he too condemns everyone who doesn’t ultimately “behave”. And I never “behaved”. For one thing, my first crush was a girl. For another, I didn’t live with my spouse for the first six years of our marriage and not ever since 2019 either. For yet another, we don’t have kids and that’s 100% by choice. In short, I refuse to be bound by the rigid standards of sexual and gender roles that traditional “family values” impose on me. I honestly don’t care about being a “good” woman in God’s eyes. I’m done with sacrificing part of me just so I belong. Maybe along the way I’ll discover who I “myself” even am.

March 2024 Reflections #WBOYC

Posted on by Astrid

Hi everyone. It’s the end of the month, so it’s time for my monthly reflections. As usual, I’m joining #WBOYC.

This month was really tough. I started it with second-degree burns all over my left upper leg because of a self-harm incident the night of February 29. Thankfully, the wounds have completely healed, though last Tuesday, a staff who doesn’t come here regularly and hence saw my leg for the first time since it had happened, was a bit shocked anyway.

I have now been on my lower dose of Abilify, my antipsychotic, for a full month too, since I started that on March 1. I told my support coordinator that, for now, I’d like to remain on this dose and not go down further, even though it’s definitely not an ideal dose. Honestly, right now, I’m pretty sure it’s the least ideal dose I could be on, as I’m still experiencing daytime sleepiness but also significantly increased irritability. However, I don’t want to go back to my old dosage, which was causing more sleepiness, and I fear I might become unmanageable on a lower dose. We will re-evaluate in a month. Let’s hope the increased irritability is temporary.

Like I mentioned a few times over the past month, there was this horrible compensatory system, by which every minute I’d come out of my unsupported time in distress would have to be compensated for. It has caused me intense distress and was eventually revoked. However, I’m nowhere near my old self. Then again, my “old self” was lying in bed far too much.

Today, I got more bad news: my support coordinator is leaving in mid-April. I don’t know the other support coordinator, who will temporarily be coordinating the care for both sides of the home until a new support coordinator has been found and trained, that well, but she sounds okay. I do feel relieved that I’m no longer solely dependent on my male assigned staff but have a female one too. Okay, she only works one or two days a week, but at least she’s there.

Over the past week, the only positive I can report is that I’ve been able to walk more and, as a result, close all of my activity rings on my Apple Watch each day.

I didn’t create that much out of polymer clay. Honestly, the only thing I can think of having created this past month is an orange unicorn that I didn’t even feel like photographing. I tried my hand at earrings once, but ended up incorrectly explaining to my staff how to drill the hole into them, so I threw those away.

I did cook macaroni for my fellow clients once. I also went to the day center’s tiny gym room, but that was stupid. It only had strength training equipment other than a broken stationary bike and the strength training equipment couldn’t be adjusted.

I did read a lot, mostly children’s books about unicorns. I started in the Unicorn Academy series, which I love but unfortunately isn’t on Bookshare. I’m still debating whether I want to actually buy more of the series. I also have been reading foster care memoirs.

I only posted eight blog posts (I think), including this one. I will, however, aim to participate in the #AtoZChallenge in April. I don’t have a theme, but will go with random reflections. And yes, I have a topic picked for the letter X, in case that’s going to cause me to quit yet again.

Ways In Which I Was Not a Typical Teenager

Posted on by Astrid

Hi everyone. Today’s Word of the Day Challenge is “Teenager”. This reminded me of a question a fellow blogger, I think it was Emilia from My Inner MishMash, once asked: in what ways we were not like a typical teenager.

This post could have been a lot shorter had I had to answer in which ways I was like a typical teenager. After all, I wasn’t like a typical teenager in any way. That doesn’t mean I didn’t try. Like, I pretended to be a Backstreet Boys fan even though I knew next to nothing about them and had hardly heard their music. I also pretended to have crushes on boys (and girls) even though I hardly knew them and quite frankly didn’t understand attraction.

I tried going to school proms the first few times in high school, but didn’t fit in at all. I also tried wearing what other girls my age wore. My mother asked my younger sister for advice when clothes shopping for me. However, somehow I always missed the mark. I couldn’t wear makeup nor was I interested in it.

With respect to interests, I have no idea what teenagers in the early 2000s were into. I did read what I assume was somewhat popular Dutch YA fiction, but had no friends so couldn’t discuss it with them.

With respect to socially appropriate behaviors, I was way off. Still am. I didn’t know how to take care of my personal hygiene, for example. I remember my sister gave me a deodorant as a birthday present when I turned fourteen, but I didn’t get the hint. Months later, when my teacher reminded me about hygiene because my classmates had been complaining, I still had no clue what an appropriate bathing and personal hygiene routine was.

Back in the day, most teenagers drank alcohol. I tried wine at home when I was fifteen (the legal age for alcohol consumption was sixteen at the time). When I was sixteen, I went out to a pub with a few classmates. I had two beers, the most alcohol I’ve ever had in a single sitting. Later that evening, a guy we were with from another school offered me and another girl in my class some pot, which we accepted. Since I hadn’t smoked beyond a whiff here and there, I probably didn’t inhale anything, as the stuff didn’t have any effect on me whatsoever.

Where it comes to Internet and social media usage, I was probably a rather naive teenager. I wrote posts like this one about my current rather than past life in my public online diary using my full name (I do think it’s still on this blog somewhere too). Not only did I not take my own privacy seriously, but I used teachers’ and other people’s full names when writing about them too. I’m so happy none have ever made a serious problem out of it and I also haven’t been the victim of online predators. That being said, I wasn’t one to make obscene comments, like some other people my age did back in the day using their full name. I would also panic when I accidentally clicked on something that might be unsuitable for minors.

In summary, in many ways, I was like a child in a teenage body. I still often feel like a child in an adult body, truthfully.

To Freewrite vs. Free to Write #JusJoJan

Posted on by Astrid

I started and restarted this post several times. I really want to broaden my horizons in the writing department. To write more, but also to write more outside of my comfort zone. In a way, I want to experience the freedom I experienced when crafting my independently-created unicorn in the writing process too.

But, as with my crafting, in the writing department, fear is holding me back. Specifically, the fear of failure. The fear of my posts not being read, not being appreciated, getting zero likes or comments. If I don’t get any engagement, why bother blogging, after all? I could just as easily keep a private journal in Day One.

Then again, even in Day One, I censor myself when writing. Even where no-one reads my writings except for possibly my future self, I’m constantly telling myself I’m a bad writer, constantly editing out mistakes or “inappropriate” wording. Yes, I even did this with my Morning Pages back when I did those several times over the past couple of years.

Is it, however, really that I’m looking to freewrite? Or is it more that I want to be free to write? What’s the difference? Well, this is a freewrite.

However, there are other ways in which I let my censor, as Julia Cameron calls it, dictate what I can and can’t write. So many in fact that I hardly write self-growth posts anymore because these don’t get much engagement, even though these are the posts I sometimes feel inspired to write. When I am free to write, I write what I feel inspired to write even when this isn’t a huge success by externally-determined standards like my stats. And who knows, maybe it will be a success someday.

This post was written for today’s #JusJoJan prompt, which is “writing”.

The Wednesday Hodgepodge (January 3, 2024)

Posted on by Astrid

Hi everyone. It’s Wednesday, so I’m back joining the Wednesday Hodgepodge. I love this week’s questions, even though I’m pretty sure most came along during the first Hodgepodge of 2023 too. Here goes.

1. Every January 1st since 1976 Lake Superior University has published a list of words they’d like to see banished from the Queen’s English. Words may be banished due to misuse, overuse or just general uselessness. Here are the words/phrases they’d like to see banished in 2024-
hack, impact, at the end of the day, rizz, slay, iconic, cringe worthy, obsessed, side hustle, wait for it
Which of these words/phrases would you most like to see banished from everyday speech and why? Are any of these a regular part of your speech? Is there a word not on the list that you’d like to add?
I don’t care for the term “side hustle”. Other than that, I don’t really think any of these words/phrases are particularly cringe worthy (pun intended). I do use “at the end of the day”, but not any others out of this list. That doesn’t mean I don’t misuse or overuse words a lot. Think “particularly” above.

2. What do you wish you’d done more of last year? Less of?
More of: writing, both on my blog and in my journal.
Less of: worrying.

3. A place you’d like to visit in this new year? Do you think you will?
I really don’t know. I have no travel plans and actually don’t care for vacations.

4. What are three words to sum up or describe your 2023?
Emotional, stressful, hopeful.

5. What advice would you like to give yourself as we begin a new year?
Be open to the possibilities that come your way.

6. Insert your own random thought here.
I have been trying out the WordPress block editor, because I wanted to participate in #Bloganuary. So far, it’s still quite the learning curve and I’m happy the classic editor is still available. In fact, I doubt I’ll move over to the block editor full-time anytime unless I’m forced to. However, I’m glad the two posts I wrote using the block editor haven’t been ruined (yet) or disappeared altogether, like happened to some I did several years ago.

My Hopes for 2024

Posted on by Astrid

Hi everyone. As regular readers of my blog know, I don’t do New Year’s resolutions, instead calling them “hopes”. This is just an excuse not to have to take responsibility, I guess, but oh well. I love writing them and looking back at them after a year to see how well I did. Last year, I did participate in #WBOYC, of course, but honestly I never looked at my hopes for 2023 when doing my monthly reflections. Oh well, maybe my first not-quite-resolution has to be to look back at this post when reflecting on the month. Here goes.

1. Get back on track with respect to healthy’ish eating. I did manage to get to a healthy BMI in 2023. That is, I’m pretty sure with all the New Year’s treats, including more “oliebollen” than I told my dietitian I liked, I’m now back across the line to overweight (I was only half a pound below that line last week). I know that with some cutting back on snacking, and it doesn’t even have to be drastic, I can lose the excessive pounds I gained over the holidays. More importantly though, for the remainder of the year, I’d like to maintain a relatively healthy diet. After all, sugary ttreats and high-fat foods are bad for you even if you’re at a healthy BMI.

2. Get back into a regular movement routine. Though I did excellent for the first half of 2023 and pretty well for most of the second half too, like I said yesterday, I wasn’t moving as much over the past month or two as I would’ve wanted to. This year, I obviously hope to meet my movement goal each day, but I’m not sure that will be a realistic goal, as it wasn’t in 2023 and that’s not just because of lack of motivation. I’d also really like to find another way of exercising besides walking, either swimming again or something else. I seem to remember we do have gym equipment somewhere on institution grounds, so maybe that’s an option.

3. Write more regularly. Last year really sucked in the blogging department. I really hope to change that and get back on track with blogging more often.

4. Broaden my horizons in the crafty department. I hardly touched on this yesterday, but the last couple of months were really positive in this respect. For one thing, I started creating figures, such as the gnome and Santa, without consulting YouTube tutorials. For another, on Saturday, I did something really cool: I crafted a unicorn completely independently! I did initially leave black streaks on the head from touching it while trying to attach the eyes, which the staff had to clean up with alcohol. Other than that, I did everything completely without supervision or help.

In 2024, I really hope to be more creative, try out more things on my own (without the expectation that I’ll lose my one-on-one) and generally have more fun claying and maybe doing other crafty things.

5. Explore other day activities. In 2023, I wanted to expand my horizons with respect to my day schedule, moving beyond 60 minutes at a time, beyond my room and beyond one-on-one. The first was a massive success, as I now have a great day schedule (which of course took me moving out of the home I lived in last year, but oh well). The second and third, I’m not 100% sure I want to achieve, actually. Rather, I’d like to explore meaningful activities, whether these can be done in my room or elsewhere, on my own, with my one-on-one or in a group.

6. Get settled into my current care home, generally. I really hope to get more comfortable here and start building up a trust-based relationship with some staff.

7. Improve in the mental health department. This, for me, means stabilizing with respect to my trauma-related symptoms. It also means getting closer to a proper med combo and dosage. In 2023, I didn’t change any of my meds or dosages, which was frustrating as I did notice some increase in possible side effects. I’ll have a meeting with the intellectual disability physician to discuss my meds on the 15th.

8. Continue to work on my relationships and supporting the people I love. Particularly, my marriage evolved in a positive way in 2023 and I would really love to keep it as strong as it is going forward.

What are your hopes for this year?

2023: The Year in Review

Posted on by Astrid

Hi everyone. It’s the last day of the year. I am dealing with a nasty cold and very much overloaded by the early fireworks. I really expected the institution town to be quiet, but it isn’t. Regardless, my sense of duty is stronger than my wish to crawl into bed with a PRN tranquilizer and that sense of duty tells me I need to review the past year. So here goes.

I started out 2023 cautiously optimistic. I mean, I admitted in my hopes for 2023 that my day schedule, though better than the one my then support coordinator had given me, was far from ideal. In the months that followed, it would turn out that “far from ideal” was really a euphemism and that the intensive support home wasn’t suitable for me. I know my staff there blame my critical attitude, but honestly my current day schedule is pretty much ideal and, moreover, at least my staff try to think in terms of validating my needs rather than fueling competition for care.

By late January, I had pretty much decided I didn’t feel I could live in the intensive support home long-term, but it took till mid-March for a meeting to formally make the decision to start moving plans again. Then I waited two months before hearing any steps had been taken, then another two before that awesome E-mail from my now assigned staff to my mother-in-law asking what color of paint I wanted on my wall.

In the meantime, I didn’t sit still, though sometimes it felt like it. I indeed wasn’t as active as I was during 2022. I participated in the April #AtoZChallenge on my blog, which was really my only active month this year.

I also helped set up swimming for the intensive support home. After all, the idea to ask the institution pool whether they had a time slot for me and a staff to try out swimming, came from me, and then it turned out this time slot wasn’t available just once, but each week.

For the most part though, over the spring and summer, I struggled. It didn’t help that my support staff came up with the conclusion that I got more one-on-one support than I was getting funding for. This led to regular arguments with my former staff about how to cut those hours once I moved.

When I actually moved and my hours had to be cut, the staff soon enough figured out that this wasn’t a viable situation. Thankfully, I got my hours back, first through my care agency and then through funding from the Care Office.

Once this had been sorted, my life significantly improved. For one thing, I was spending more time creating things out of polymer clay. I also explored other activities, such as baking.

In the health department, 2023 was a mixed bag. I did reach my goal of getting to a healthy BMI, but over the past couple of months I have been struggling to get in the movement needed to meet my activity goals. That is, I haven’t met my movement goals several times this past month. One reason is the weather and the fact that, now that I’m at my current care home, I cannot (yet) go swimming regularly. Another factor though may be the fact that I’ve lost weight and haven’t adjusted my movement goal accordingly. Still another factor may be laziness though.

Lastly, 2023 was the year I left Christianity for good. I mean, I’m still spiritual, but I don’t care for a God that condemns the vast majority of people to eternal suffering, many of whom simply for being themselves.

I Am My First Priority: Intentions for Focusing on My Quality of Life

Posted on by Astrid

Hi everyone. I paged through The Goddess Journaling Workbook again yesterday and saw the first prompt: “I am my first priority”. Okay, I did write about it already back in 2020, but I think I need to revisit it and set intentions for putting myself first. I know, we are often taught, especially in more conservative circles, that we need to put others first (or after Jesus, but ourselves last, in any case). Then some more leftist folks teach us about self-love as if it’s about essential oils and vegan smoothies. Which it could be, but this is not what I mean. Rather, self-love means being true to our own values over those imposed upon us by others. And that doesn’t need to be selfish.

Now of course I need to determine my values. I’ll narrow those down to what my major point is for being in care, ie. my main goal. This is quality of life. This may be obvious to most people who aren’t involved in the care system and it should be obvious to those who are too, but for many, the presumption of competence or the need to manage daily crisis behavior clouds their vision towards quality of life. In fact, I’ve even seen one care agency state that their aim is to “maintain and where possible promote” quality of life in their clients. Well, this is wording I’d expect to go with “independence”, not “quality of life”, since truthfully, quality of life can always be promoted.

So what does quality of life mean to me? It means that I decide what I spend my limited energy on. This doesn’t mean lazing around all day doing nothing and it doesn’t mean I won’t ever improve on my ADLs at all either. What it means is that I take the lead, focusing on my daily level of energy. I told one of my staff the other day that I would prefer if she doesn’t tell me to do something independently, but rather invites me by asking me whether I want to do it independently. In that case, she’s much more likely to get me to actually do it, as I don’t feel the pressure of her expectation, because I can say “No” if I don’t have the energy at that point.

It also means that I decide what activities to do during my allocated activity time. In my current care home, I have been sometimes not even consciously adapting to staff’s preferences for activities way more than I feel comfortable with. For instance, I’ve been taken on grocery shopping trips for the staff’s personal needs under the guise of an activity more than a few times. I eventually put a halt to that, saying I would only go if I too needed something from the supermarket. Another, even more frequent, example is my playing endless card or dice games because I’m assigned a new temp worker who comes across like they’re just here to pass the time. Yesterday, I was assigned one of those and had had it with dice and card games, so I thought, screw it, we’re making a smoothie. It turned out absolutely delicious!

It also means being intentional with my unsupported times. This means rather than mindless scrolling, doing actual reading, watching or listening online. I fully intend on blogging or at least journaling more often. If I can stop caring about my stats, maybe I can post here more often based on self-help journaling prompts. I didn’t collect those books for nothing, after all.

It means being constructive in my relations to my staff. It means being honest about my needs. For example, if a staff member (usually a new temp worker) causes me emotional flashbacks with something they do or say, rather than just telling them I feel in distress, I will hopefully be able to ask for a more trusted staff to intervene for a few minutes (which isn’t the same as demanding I be supported by all trusted staff).

Finally, I will also be constructive in contributing to my crisis signaling plan once it is revised at the new care home. My plan dates back to sometime in 2021 I believe and was immediately thrown out by my former support coordinator here because “it doesn’t work at this home”. What “works” here, however, doesn’t work for me, but that doesn’t mean my plan will be fully useable at my new care home. I will try to understand the staff’s perspective when updating the plan, but will still put myself first.