#WeekendCoffeeShare (February 18, 2023)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare today. It’s 5:35PM as I start writing this post. I probably won’t finish it until past seven, when I’ll have my last cup of coffee for the day. Care to join me? We also have pure green tea (so the kind without flavoring). We also probably have lemon-flavored green tea, but I don’t care for that. I did discover a new kind of green tea, Indian chai green, which I do love. It is loose-leaf tea, which I rarely have, but I think this one is quite good. I can brew you a cup of this too. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d ask about your weather, as I usually do. Ours has been mixed. Early in the week, we got some sunshine, but later, it’s been rainy. The daytime temperature usually rose to about 12°C.

If we were having coffee, I’d tell you that my mother-in-law, my assigned staff and my support coordinator were supposed to have a talk on Tuesday. I wasn’t invited and the goal of the meeting remained unclear to my mother-in-law until the last moment. Then, it was canceled because my support coordinator was off sick. My mother-in-law took the opportunity to make it clear that, if it’s up to me and her, the possibility of me moving out of this care home should be a serious topic of discussion at a rescheduled meeting. She also pointed out that she’d like the behavior specialist present. This meeting, all going well, has now been set for March 2. I’m not sure whether I’ll be allowed to attend too. I think I should, honestly.

If we were having coffee, I’d share that, instead of coming to the meeting, my mother-in-law paid me an extended visit. We drove to Apeldoorn, like we seem to do regularly, and had lunch. Then we went into several shops to buy some little presents for one of my mother-in-law’s coworkers at her volunteer job, who will be going into hospital soon. It was there that I discovered the Indian chai green tea. We also went into a supermarket so that I could buy rolled oats, raw nuts and some other things. I fully intended to make overnight oats with those rolled oats. I did try, but either used too much milk or did something else wrong, because there was a lot of milk that hadn’t been absorbed by the rolled oats.

If we were having coffee, I would share that I did end up crafting a Valentine’s Day present for my husband after all. It’s a polymer clay heart with an arrow in Premo cadmium red with a Fimo Effect metallic gold edge and the arrow is done in Premo white. I textured the back using a ball of tinfoil, which turned out rather ugly – uglier than it would’ve been with visible air bubbles, which texturing aims to prevent. Oh well, that means I learned something.

If we were having coffee, I’d tell you that I weighed myself on Thursday, as I do each week, and I lost another 0.6kg. I have only 2kg to lose to be at a healthy BMI. I am still slightly worried that some physical health condition is causing me to lose weight, because to be honest I’m not minding my diet much at all and I’m not exercising excessively either. However, I did notice that my Apple Watch estimates my cardio fitness level has increased. It’s still “low”, as it’s always been, but is slowly creeping towards “below-average”.

If we were having coffee, lastly I’d share that I didn’t walk as much as I’d have liked over the past week. I signed up for a challenge with other Apple Watch users in an app called Challenges. The challenge ran from Monday through Friday. I started out doing quite well on Monday, starting with a walk to visit the institution’s petting zoo, which is about a 45-minute walk total. My feet hurt terribly after it. During the rest of the week, I didn’t do so well. I ended up 48th out of 88, which I’m okay with all things considered. I’d have liked to be in the top half.

By the way, while at the petting zoo, I took a picture of the goats. I didn’t get to actually pet them.

How have you been?

Acrostic: Unicorns

Posted on by Astrid

Uniquely powerful,
naturally talented for magic,
imaginary, but so real,
created for my comfort.

On my journey to find joy,
right there beside me,
neighing happily,
shiny mane, silver hooves, sparkly horns…

I’ve always wanted to create a poem about unicorns. This was harder than I imagined it’d be, honestly. Of course, I usually write free verse, ie. jumbled thoughts randomly spread out over the page, or so it often is in my case. I wanted to do a specific poetry form this time, and even with an acrostic I could’ve gone with just random lines. Which these probably sound as to most more experienced poets, but oh well.

I’m including a picture of my latest polymer clay unicorn, which is just its head, as it’s a charm. The purple turned out much darker than the original color, but it’s still okay.

I’m joining dVerse and EarthWeal for their open link opportunities.

Alarm Anxiety

Posted on by Astrid

I just came across an interesting concept when reading Pat’s Soapbox Thursday for today: alarm anxiety. Alarm anxiety is the fear of the alarm not going off or of not getting enough sleep before it does. When I read her description, immediately alarm bells (pun intended) went off in my head. This is what I dealt with throughout high school and into university.

When I was at secondary school, I’d compulsively check that my alarm was on. Since my alarm was at the other end of the room and I couldn’t visually check it due to being blind, I had to physically leave my bed to do so. And I’d do so at least thirty times a night. And worry that, by the time I’d finally fall asleep, if my alarm did go off, I’d still sleep through it because I hadn’t had enough sleep. This only happened once in my entire six years of secondary school.

I had other compulsions too, but these are too embarrassing to share here. In general, I’d spend hours engaging in my various rituals at night. I wouldn’t necessarily say I had OCD, as these obsessions and compulsions only affected me at night.

They got a lot worse when I lived independently and went to university. I had to check whether my front door was locked, all non-essential electronics unplugged, window open, heating off, alarm on and I’m pretty sure there’s something I’m forgetting right now. All of the things that needed to be checked, were for a reason, of course. For example, the heating needed to be off in case of a carbon monoxide leak (even though I didn’t have my own boiler) and the window needed to be open so that, if such a leak occurred, the chance of me getting poisoned would be lower.

I’d spend hours upon hours pacing through my apartment checking that these things were as I needed them to be. It was exhausting!

Thankfully, my compulsions left immediately when I was admitted to the psychiatric hospital. Either the fact that a staff member was on the ward at all times, comforted me, or the mere fact of my having been removed from my apartment and its specific triggers, caused me to be able to let go. And, of course, alarm anxiety was no longer a thing, as the staff would wake me. Besides, we weren’t required to be up by a certain time anyway.

The Wednesday HodgePodge (February 15, 2023)

Posted on by Astrid

Hi everyone. I’m once again joining the Wednesday HodgePodge today. Here goes.

1. Pantone’s color of the year for 2023 is Viva Magenta. Etsy’s color(s) of the year are indigo and honeycomb. Your thoughts? Would we find any of these three shades in your home or wardrobe? Is there a room in your house that needs painting this year? Will you do it yourself or hire out?
I don’t care for magenta and have no idea what color honeycomb is. I do love indigo. I do have magenta as a polymer clay color, but use it for mixing my own colors. For instance, I’m pretty sure magenta was in the color recipe for creating indigo I once read (although I’ve never tried it yet).

I have no idea whether any room in my and my husband’s house in Lobith needs painting. If it does, I guess my husband will do it.

2. Something you had to do recently that could be described “as exciting as watching paint dry”?
Try to condition my blue agate polymer clay. Though it was Fimo Soft, it was quite hard and crumbly. Doing the conditioning is a very repetitive process, which can be exciting if it yields results, but this time, it hardly did. I eventually gave up and chose another color.

3. Who would you most like to sit beside on a 10-hour flight? Tell us why? Have you ever taken a 10-hour flight?
My husband, of course. If I get bored of him talking about his latest special interest, I can just tell him I’m minding my own business and he won’t be disappointed. Oh wait, you can’t use mobile devices on flights. However, I can sleep on flights. Also, my husband would be the one I’d least easily get bored of sitting next to for ten hours anyway. I’ve never been on that long a flight. My longest (and first) one was 3 1/2 hours from Amsterdam to Moscow in 2000.

4. What’s something you did growing up that would get you into trouble?
Argue with my younger sister, throw temper tantrums, have meltdowns that were perceived as temper tantrums, engage in self-injurious behavior, but also general autistic weirdness. I’d get in trouble almost on a daily basis.

5. According to Google the top searches in 2022 were- Wordle, election results, Betty White, Queen Elizabeth, Bob Saget, Ukraine, Mega Millions, Powerball numbers, Anne Heche, and Jeffrey Dahmer.

Hmmm…what does this say about us? How many of these words did you search last year? What would you guess was your most “googled” word/phrase/question?
I think it just says that we search for what’s in the news currently (mostly). I mean, Ukraine and Queen Elizabeth were and I guess the election results refer to some election somewhere (no idea where). I saw the Jeffrey Dahmer thing too and think it relates to a movie about him which came out last year. Never heard of any of the other things.

I didn’t Google any of these things myself but did click through to the Jeffrey Dahmer Wikipedia article when it was trending on there.

My most searched for phrase on Google, no idea. On YouTube, probably something like “polymer clay unicorn”.

6. Insert your own random thought here.
My husband and I went to Apeldoorn on Sunday. At Hema, which my husband claims is his favorite store, we saw alien-style cookie cutters. My husband suggested they may be useful for polymer clay, if a bit large. I said that if they’d come in a unicorn shape, I’d get them.

Then yesterday when we were on the phone, he told me my Valentine’s present hadn’t yet arrived. I didn’t even really expect one, but I told him his Valentine’s present would soon go into the oven, as I had indeed finally managed to craft something. He then went on to guess (jokingly) that I’d baked him unicorn cookies, a particular brand of cookies that aren’t unicorn-shaped at all but that we keep talking about since I got them in my Christmas hamper. He then told me that, if I’d make cookies with my Valentine’s present, they’d automatically turn into unicorn cookies. So my guess is he found me some unicorn-shaped cutters. How cool!

#WeekendCoffeeShare (February 11, 2023)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare today. As usual, I already had my last cup of coffee for the day, although I’m earlier writing my post than I was last week. I do have Dubbelfrisss, a slightly carbonated drink. The staff probably also have various kinds of soda. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d ask how your weather has been. Ours has been mostly sunny and not too cold. Today, the daytime temperature even climbed into the double digits and I wore my slightly less thick coat. Is there a word for that in English? In Dutch we call it a “tussenjas”, which literally translates to “in-between coat”.

If we were having coffee, I’d share that I’ve been doing lots of walking over the past week. I loved it! I probably didn’t manage as many steps this week as I did last week, but that’s okay.

On one of my walks across institution grounds today, the staff spotted butterflies and flowers painted on the path. I couldn’t resist the urge to take pictures.


If we were having coffee, I would also tell you that I took a trip to the next town to go to Action, a discount store. I originally intended on just buying T-shirts, but ended up buying a lot more, as usual when I visit that store.

If we were having coffee, I would tell you that my staff have been doing my hair several times this week. Today, my staff did a ponytail. On Thursday, the staff created two braids. I loved that look so much that I asked her to take a picture of me.

If we were having coffee, I’d share that I’ve been obsessing over creating my own breakfasts. I’ve been looking into making overnight oats and smoothie bowls. This afternoon, when I told the staff about the idea, we tossed around ideas and finally decided to create a basic smoothie that evening. It just had non-fat vanilla custard, milk and banana in it, but it was delicious.

If we were having coffee, lastly I’d announce that my support coordinator invited my mother-in-law and assigned staff to a meeting this coming Tuesday. I have no idea whether I’ve been invited too or what the goal for the meeting should be if I haven’t. I’m still pretty distrustful of this support coordinator and still feel this home isn’t suitable for me, even though the last couple of days have been okay. The reason that I still feel this home isn’t suitable is because it seems to be sheer luck when a day goes okay. I still wish to make it work, but I’ve pretty much lost hope that this home can truly provide what I need.

The Wednesday HodgePodge (February 8, 2023)

Posted on by Astrid

Hi everyone. I’m joining the Wednesday HodgePodge once again today. This week, it has a love theme, which had me a little confused about the date, since Valentine’s Day isn’t till next week. However, who cares? Here goes.

1. Something you’ve done recently that might be considered a labor of love?
I honestly can’t think of anything. I don’t really do much for others, truthfully, shameful as this is. I still haven’t even crafted anything for my husband for Valentine’s Day yet, even though I usually do something each year.

2. What’s one thing you love about being the age you are now?ab
I’m 36. This means, or so I think, still being young enough that my body isn’t completely betraying me yet (although due to my disabilities aging is starting to set in), but old enough to have at least some knowledge of who I am.

3. What do you value more: careful planning or the freedom to be spontaneous? Elaborate.
A little of both, I think. I mean, my days are fairly structured with my day schedule and I still think they aren’t structured enough. My desire for more clarity though isn’t because I don’t want to do anything sort of spontaneously, but because any transition is hard for me. And there still are many in my current day schedule.

4. A home cooked meal or a fancy restaurant? pink or red? watch the sunrise or watch the sunset? wine and cheese or champagne and chocolate?
Home-cooked meal, just because I can’t stand fancy restaurants due to the expectation of my table manners. Pink. Sunset. Chocolate (but skip the champagne please). In all honesty, none of the above particularly appeal to me.

5. What’s your definition of romance? Are you a romantic?
I have no idea about my personal definition of romance. It probably has to do with showing your significant other your love in a special, attuned-to-them way, or something. I’m not a romantic at all. I usually think up ways to show my love in a particularly special way to my husband, but in the planning, things often go horribly wrong so that I end up with nothing at all. As with my idea for a Valentine’s gift this year.

6. Insert your own random thought here.
I am struggling with too many ideas in my head for crafty projects and not enough of something I can’t quite pinpoint to actually make them happen. It could be the fact that my ideas are a chaotic mess and I have no sense of how to actually go from idea to plan to project. Of course, I blame my day schedule, but I’m pretty sure that’s not everything there is to it. Yes, the problem is in part that watching a YouTube tutorial on something takes time, something I do have in only hour-long segments with no guarantee that, when I start on something with one staff (say, watching a tutorial), I can actually follow it up with them too. I am not sure this is the entire problem though.

Crafting Lately: My Latest Polymer Clay Unicorn, Yay!

Posted on by Astrid

Hi everyone. Here I am today finally ready to show you all my latest polymer clay unicorn. It wasn’t the last one I started – that would be the one in a lying-down position. Then again, I decided to put the clay for that one back in the packet because I didn’t like how flat its belly had become while lying on my oven-safe mat. This, instead, is the blue unicorn I’ve been talking about for weeks.

I started out by using ultramarine blue Premo for its body and head. Then, I created the legs in the same color, but added metallic silver Fimo Effect for the hooves. I always forget whether I do the mane and tail first or the ears first. This time, I think I initially did its ears first but then decided to do the mane first. These are done in blue agate Fimo Effect, as is its tail. The horn is done in metallic silver once again. Finally, for the eyes, I chose black Fimo Professional. I decided against doing an add-on nose this time, instead asking my staff to create nostrils with a dotting tool.

Usually, I have the mane run all over the unicorn’s back till where I’ll start the tail, but I had too short of a mane for this one. This was a great thing after all, as it gave me a reason to add Hotfix rhinestones to the unicorn’s back. I am so lucky, because someone from the Dutch polymer clay Facebook group sent me some samples and there in fact were blue ones among them.

I baked the unicorn at 130°C for 60 minutes. Possibly because of this, the blue agate Fimo is slightly darker than its original color.

After baking, I had my staff help me paint white dots in the unicorn’s eyes, as I usually do to make them look more alive.

This unicorn is only a slight creative detour from what I usually do, but I loved the entire process. I also am so happy because I did most of the creating independently.

Things That Made Me Smile (February 6, 2023) #WeeklySmile

Posted on by Astrid

Hi everyone. I had a rather difficult first half of my day. Slept rather poorly because of some worries about my care situation and, while trying to talk through my thoughts with a staff, got even more frustrated. The evening isn’t going great either: lots of random staff switches and a fellow client who spiraled into crisis when I was in the living room. What better time then the present to focus on the positives? As one of my teachers once said, you can only be happy once in your entire life and that’s right now. For this reason, I’m joining Trent’s #WeeklySmile. Here goes.

This afternoon, the new student staff took me on a walk. First, we went to the cafeteria in the main office building to get a hot cocoa for me and latte macchiato for her.

Then, we walked some more, while chatting about random things. At one point, we got to talking about positive thinking and she told me to throw all my negative thinking onto the nearby highway to be run over by trucks. I told her an elaborate story about how my husband, who is a truck driver, would run over all my negative ideas on his way to Hoorn, which is his default route, and catch unicorns for me while there to fly all positivity my way. After all, the symbol for the city of Hoorn is the unicorn.

Then we started singing children’s songs. I sang (well, in my out-of-key way) the English version of “The Wheels on the Bus” to her, while she taught me some modern Dutch children’s songs. We also remembered an older one that I happen to have sung at a Kindergarten contest.

The rest of the day was stressful once again, but I cherish this moment.

#WeekendCoffeeShare (February 4, 2023)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare today, even though I’ve long had my last cup of coffee for the day. No soft drinks or vitamin water for me today either. In fact, I actually now realize I forgot to ask my one-on-one staff for chips this evening, which we usually get on Saturdays. Oh well, the scale will thank me (I hope). Let’s have a drink and let’s catch up.

If we were having coffee, first I’d confess that I still write “2022” rather than “2023” as the title of my coffee share posts and other dated posts regularly. I don’t think I did this for so long during previous years, but “2022” comes out so easily. Oh well.

If we were having coffee, I’d ask about your weather. Ours has been mixed. Early in the week, we had some rain, but later, we’ve had nice winter weather. Daytime temperatures have usually been at about 8°C.

If we were having coffee, I would tell you that, yesterday, I got in almost two hours of exercise according to my Apple Watch, most walking and a little dancing. “Dancing”, in my book, is usually just walking with some arm swaying to the tune of some upbeat music. I got in over 13K steps. Today, I got in nearly 11K steps too.

If we were having coffee, I would share that, like I said in my post on Wednesday, the home’s kitchen renovations are over with. On Thursday, the living room furniture got moved back to its proper place. I notice I was almost used to the temporary arrangement.

If we were having coffee, I would proudly announce that the theme for this month’s challenge in the Dutch polymer clay Facebook group is unicorns. It was chosen in part by me. I am looking forward to showing the blue unicorn that’s been waiting to be cured in the oven since Tuesday.

After all, like I said last week, someone from that group sent me some Hotfix rhinestones to try to decorate my clay sculptures with. When they arrived on Tuesday, I immediately tried them on the blue unicorn. I can’t wait to show her, the group and the world. Let’s hope the rhinestones won’t fall off.

If we were having coffee, lastly I would tell you that I had another nice visit from my mother-in-law on Tuesday. We went to Burger King to have lunch. Our food was lukewarm by the time it arrived, but that’s almost to be expected with burger chains these days. We also went to an arts and crafts store, but I decided not to buy anything, as I was rather overloaded already.

See, I did it: I created a coffee share post without complaining about my care home situation. It isn’t because it’s better. Well, today is a pretty good day for once. Let’s celebrate that and be thankful. But still all please pray I can get out of here.

Chasing Perfection? #SoCS

Posted on by Astrid

Whenever I think of how bad I feel about my current care home situation, I am reminded of two seemingly contradictory statements from my staff. One is that I think every place is horrible anyway. The other is that I had “gold in my hands” at my old home. These seem contradictory, but really aren’t. They are two sides of the same coin: I am thought of as chasing perfection.

There may be some truth to this idea indeed, but that doesn’t negate the fact that one can learn and this place is definitely bad. It isn’t like I just need to accept what I have now just because I can’t have it all. Besides, if people – the powers-that-be, such as the behavior specialists – just had been honest with me about the fact that, indeed, to live with people of higher IQ would mean more expectations and less support, I’d have declined to move. That was, after all, the comment I put at the bottom of my “housing profile”.

And it isn’t like I chase perfection everywhere. Or honestly that I thought, at the end of the day, that this place would be perfect. Yes, when I read the home’s profile on the website, I thought it’d be, but that leaflet is either outdated or simply incorrect. But when the behavior specialist for my old home explained some things about the home, I did realize it wasn’t perfect. Same when I visited here twice. But then again, perfection doesn’t exist. And I was willing to make some sacrifices to live on institution grounds and have fellow residents I could chat with. But not everything I had: all the daily structure, all the useful day activities, all the proper help with ADLs and, interestingly, behavioral regulation too. Because, despite the fact that this home is an intensive support home, which means the residents have significant challenging behavior, whereas my old home was a care-based home, I see more people managing huge wildfires of escalating behavior without realizing the proverbial cigarettes they’ve thrown onto the ground themself.

This post was inspired by today’s prompt for Stream of Consciousness Saturday: “perfection”. I am sorry for being repetitive yet again. This whole care home situation is getting old, but I wish that meant I’d actually adjusted to it. I’m not sure I ever will.