#WeekendCoffeeShare (March 8, 2025)

Posted on by Astrid

Hi everyone on this International Women’s Day! I’m joining #WeekendCoffeeShare. It’s 7:30PM, so no more coffee for me. If you’d like a drink though, feel free to grab one and let’s chat.

If we were having coffee, first I’d talk about the weather. For most of the week, it’s been absolutely gorgeous! Today, we even reached 20°C. I know that this isn’t good news, in the sense that it’s way too warm for early March. I do care, but I also realize that I alone (or even all of the Netherlands alone) can’t stop or slow down climate change. For this reason, I’m enjoying the good weather while I can.

If we were having coffee, then I’d brag about all the physical activity I got in. Yesterday, I set a new record on my exercise minutes by exercising (mostly walking) for over three hours. I burned 600 active calories according to my Apple Watch.

Today, I didn’t walk as much, but still went for a few nice walks and I did ride the side-by-side bike. It’s an eBike and my staff had forgotten to check its battery level, so it quit working midway through our ride.

If we were having coffee, then I’d tell you that, on Thursday, my staff and I took a walk around the nearby lake. We also walked this route one day in late January and I remembered a little café along the way had the most delicious caramel pie. My partner looked at the menu on Wednesday and said the caramel pie wasn’t on it. Maybe it was the “pie of the week”. Thankfully, once at the café, my staff asked the waitress whether they still had the caramel pie and they did!

If we were having coffee, I’d tell you I am planning to create a trinket dish out of polymer clay soon. I ordered a cutter for it, which arrived on Monday. Unfortunately, my ceramic tile that I work on, is too small to cut out the shape on. However, one of my staff said she still had ceramic tiles somewhere and, thankfully, these were big enough. Haven’t gotten down to actually creating the trinket dish yet, because the weather’s just too beautiful.

If we were having coffee, I’d also share that, on Tuesday, a staff and I went for a walk around grounds again with the purpose of taking pictures of nature. There were mostly snowdrops and crocuses to be seen.



A few days later though, they’d mostly gone and the first daffodils could be spotted. No pics of those, as it was too sunny when I was out today.

If we were having coffee, I would conclude by saying this week overall was good. I had a few moments when I was in distress over the fact that there were quite a few temp workers, but the staff made sure always to assign me a regular staff. I realize it can’t always be this way and I’m okay with that, but I did tell my staff that my accepting a temp worker once out of necessity doesn’t make them a regular.

Poem: Always Eager

Posted on by Astrid

A very hungry caterpillar,
Never enough, always too much
I consume…

Insatiable I feel,
Always eager
For more…

Will I ever be content?
Feeel that my needs are met?
Or will I never…

Wrap myself in a cocoon,
And wait
Patiently…

For myself
To emerge
A beautiful butterfly…

This poem was written for dVerse’s Poetics, for which the prompt is “cycles of life”. I often use the metaphor of the very hungry caterpillar as a way to describe my perpetual criticism of the care system. In reality though, I think that, when my needs are met, I could evolve like a caterpillar transforming into a beautiful butterfly. Or maybe I’d turn into a moth, who knows?

Share Your World (March 3, 2025)

Posted on by Astrid

Hi everyone. Today, I’m joining in with Share Your World. I love the gratitude section at the bottom of Di’s original post. In fact, I may use it as a jumping point for another post later. For now though, let’s move on to Di’s questions.

1. Which of the following could you NOT do without?
Automatic washing machine, TV/cable, Microwave oven.
I don’t need any of these just for myself and don’t personally use any, although we have all three in the home. If I had to choose which of these to keep in my care home, it’d be the automatic washing machine. Not because I have to do my own laundry, but because the staff are busy enough with it now that they don’t have to do it by hand.

Life without a TV would be so relaxing, as the TV is blaring all day long in the living room that’s adjacent to my room and with the TV directly attached to the shared wall.

2. Which would be your priority of these:
a warm coat or a comfortable pair of shoes.
Comfortable pair of shoes. Simply because, without the right shoes, I just can’t be outside because it’d mean constantly falling.

3. Would you rather have a hot cup of tea/coffee or hot soup?
Hot coffee all the way! I don’t like the feel of soup in my mouth.

4. If you had the choice rather than necessity/cost effectiveness, would you rather rent a property, buy with a mortgage, or share with family/friends and split the cost?
I have no idea. My spouse and I currently own a house (with a mortgage) and it’s stressful with all that we have to do by ourselves (that is, just my spouse) in terms of renovations.

Then again, our rented house was stressful because we were dependent on the housing corporation. In fact, I’ve had more stressful situations with them than I’d like to share.

Sharing with family/friends would also be quite stressful though, as I can’t get along with my parents or sister.

Let’s just end this by saying I’d stay where I am.

Today’s Small Joys (March 2, 2025)

Posted on by Astrid

Hi everyone. I’m struggling intensely today. I often say that these days are the best for gratitude lists, but I don’t feel capable of doing an entire ten things of thankful. Instead, I’m going to list some small pleasures from today. I’m joining Sunny Sunday.

1. Coffee. My staff brought me an extra cup of coffee when waking me up.

2. Crunchy muesli. I treated myself today.

3. Earning some top commenter achievements on Reddit. Don’t ask me how.

4. Beautiful weather: it was quite sunny and mild with a daytime high of 10°C.

5. A delicious burger at McDonald’s.

6. A hug from my spouse. In fact, the entire visit was good. Having my spouse on my side genuinely helps.

This was easier than I thought. In fact, the E-mail newsletter I got this idea from, suggested listing only one to three things and I made it to six.

#WeekendCoffeeShare (March 1, 2025)

Posted on by Astrid

Hi everyone on this first day of March. I’m joining #WeekendCoffeeShare again. I’ve just had my last cup of coffee for the day, but if you’re quick, you may be able to enjoy a soft drink. We usually get chips with our soft drinks on weekends, but if I’m correct, the staff ordered meatballs. Let’s have a drink (and a snack) and let’s catch up.

If we were having coffee, first I’d talk about the weather. Most days, it was chilly but not rainy. We got the most rain on Thursday, but even then I managed to go out.

If we were having coffee, then I’d tell you that I did achieve the perfect month on my Apple Watch in February. My March challenge is incredibly easy: get in at least 3.63km of walking/running on at least fourteen days this month. I always thought the challenges were based on the previous month’s achievements, but I’m pretty sure I got a lot more steps in during February.

If we were having coffee, I’d report that I’ve been struggling again. This led to a number of arguments between me and the staff. Particularly, it frustrates me to no end that some staff are much more likely to react angrily to my irritability than others. As a result, I don’t accept gestures indicating they support me from these staff. Like, if you’ve first been telling me off, I won’t accept it when you offer me comfort. Unfortunately, my assigned staff claims this differing treatment is just how it is and she says it’s because I don’t accept the same treatment from everyone. This came across as if she was holding me responsible for the different approaches.

If we were having coffee, I’d also share that I’ve been frustrated with my day schedule and particularly the lack of clarity in it. I particularly don’t like the fact that, each time, I’ll have to choose an activity out of fifteen or so options. Thankfully, I was able to turn my frustration around today and decide that, on Monday, I’m going to the next town to buy groceries and, on Tuesday, I’m going to cook dinner for the home.

If we were having coffee, I’d share that part of my struggle is the extreme discrepancy between my intelligence and my emotional functioning. I’m said to function emotionally at a level comparable to a child under 18 months of age in most respects, but my IQ is above-average. Moreover, I happen to have an interest in psychology and social work. As a result, I, for example, know more about the theory of care and support than most of my staff, but I can’t apply it to my own situation and not just because I’m the client.

Like, when I’m in a good place mentally, I sometimes find myself pointing out ways staff are asking too much of me emotionally, but precisely because I can say so, I’m judged not to need the support I need.

If we were having coffee, I would however also share that I still experience moments of joy. For example, on Monday, a new student staff was being introduced to my activities and we created a unicorn (of course) out of polymer clay. This time, because the unicorn was rather fat and the staff had placed the front legs far apart, I chose to add a heart to its belly. I also decorated its back with rhinestones. Two pictures below, because my staff couldn’t capture both the heart and the rhinestones in one.


If we were having coffee, lastly I’d tell you that I struggle with self-criticism and this also leads me towards less creativity. I, however, overcame the feeling that I “should be better” sometime on Tuesday when I created a rather simple bracelet. It was just beads stringed onto elastic wire. However, looking at my comment about emotional development, I sincerely believe I did a pretty awesome job, since a toddler can’t do this at all.

Sorry for the rambly post. I’m still feeling hazy after another meltdown. By the way, no meatballs for our evening treat, as somehow they’d disappeared.

February 2025 In My Kitchen

Posted on by Astrid

Hi everyone! A while ago, I discovered Sherry’s In My Kitchen linky. As most of you know, I don’t have a kitchen, but of course my care home does. I’m using this opportunity to share some thoughts about the foods I’ve prepared and/or consumed lately. Do polymer clay-related musings count too, since polymer clay is cured in an oven? Just kidding (a bit).

Last week, like I think I shared, I visited the next town’s market and bought olives, fried chicken and peppers. I also bought arugula at the supermarket. My staff whipped up the most delicious salad out of these and some carrots that were in our fridge. I had some the next day as well. Sadly, I was under the impression that the staff had used up all peppers, only to be told yesterday that there were still peppers in the fridge. Those had by then gone bad.

I also bought blueberries and have been adding those to my muesli and quark that I eat for breakfast almost each day.

I’ve also been making smoothies lately. For example, a few weeks ago, we had lots of bananas that were on the ripe side, so we chose to whip up a smoothie with them. My current blender has only a 1 liter container, so at first I used to make only about four cups of smoothie and share them with my fellow residents who also stay up later.

Yesterday, a staff offered to help me prepare a smoothie for the entire home that we could use in place of our evening soft drink. Looking back, creating more smoothie than my container can hold is as simple as pouring the smoothie into cups then reloading the blender. The staff peeled and cored the apples and pears, something I think I could’ve helped with too, but oh well. I chose to add cinnamon, cardamom and clove, as well as soy milk as a liquid. The smoothie was absolutely delicious!

For the upcoming month, I’m really hoping to do more in the care home kitchen. Honestly, I feel I could easily be whipping up my own salads and do more in the smoothie-making process. I’ve also been looking at treats and even main meals to cook. I mean, I have the two-hour supported activity time slot in the afternoon and this often is currently spent on nothing more than a walk. I have been nagging my staff for a more structured activity schedule for months, but this seems to be rather difficult. One can always hope though.

Book Review: Camp Damascus by Chuck Tingle

Posted on by Astrid

Hi everyone. A few weeks ago, a person on Reddit was looking for books with queer, neurodivergent characters. Someone recommended Camp Damascus by Chuck Tingle. All I knew about the book before starting to read it, was that it’s horror about a gay conversion camp and that the main character is autistic. I’d hardly ever read horror, but somehow, the book appealed to me. Tonight, I finished it, so here’s my review.

Book Description

A searing and earnest horror debut about the demons the queer community faces in America, the price of keeping secrets, and finding the courage to burn it all down.

They’ll scare you straight to hell.

Welcome to Neverton, Montana: home to a God-fearing community with a heart of gold.

Nestled high up in the mountains is Camp Damascus, the self-proclaimed “most effective” gay conversion camp in the country. Here, a life free from sin awaits. But the secret behind that success is anything but holy.

My Review

The book started out quite weird. Honestly, I had no idea what was happening until midway through the book. That, at first, frustrated me. However, having finished the book, I now feel this unknowing fits in nicely with the plot.

Once I got beyond the first half, I started rooting for the main character and her friends. I really feared the book would have a horrible ending. I felt all kinds of feelings as I made my way through the second half and was chilled to the core whenever something bad happened to the main character or her friends. I also didn’t expect the ending. Honestly, I still have many questions now.

The main character, Rose, is autistic like I said. This isn’t a main focus of the book, but the presentation of her autism is a bit stereotypical. That’s not a big problem though.

I don’t really know what I think of this book. Its weird first half sticks with me, but at the same time, I’m pretty excited to read the author’s next book. As pretty much an intro to the horror genre for me, it’s really good. I hardly do Goodreads anymore, but if I had to rate this book, it’d get 4 out of 5 stars.

#WeekendCoffeeShare (February 22, 2025)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare once again. It’s almost 10:30PM here, so no coffee for me. Since this is a virtual get-together, you’re free to grab your own beverage of choice. Let’s have a drink and let’s chat.

If we were having coffee, first I’d talk about the weather. It’s been all over the place with freezing night-time temps and daytime highs hardly above freezing early in the week, then a daytime high of 16°C yesterday. Today the daytime high was 12°C, which is still quite warm for late February. Unfortunately, it was raining most of the day today.

If we were having coffee, then I’d share that this week was a mixed bag mental health-wise. I’ve mostly been quite tired, but the bloodwork I had done on Monday came back all clear. I wish there was something simple that could explain my daytime tiredness, but I’m pretty sure that if I pressure the doctor to do more testing, they’ll just say I shouldn’t give in to fatigue, as I was told the last few times (many years ago) that I complained of being too tired.

Yesterday was a good day, but today I felt a bit irritable and overloaded.

If we were having coffee, then I’d share that I spent a lot of time early in the week switching web browsers. Somehow, with the latest update, Edge for iOS is pretty much impossible to use for me. Whether this is an actual bug in its accessibility with VoiceOver or it’s just that things have been switched around like crazy and I’m not tech savvy enough for it anymore, I don’t know. I tried getting the freakin’ Copilot (Microsoft’s AI) that was constantly in my way to disappear, but it wouldn’t.

So I decided to leave Edge behind altogether and switch browsers, because I don’t like using one browser on my iPhone and another on PC. I finally settled on Chrome and, though I’m still figuring things out, mostly it works okay.

If we were having coffee, I’d then tell you that a (now former) staff came to say goodbye on Monday. I gave her the “bull in a china shop”, ie. the polymer clay elephant in a mug I’d created last week. She loves unicorns and elephants, but she already had a unicorn.

This time around, I didn’t get a proper description from the Be My Eyes app, because it judged the mug to be its body and the letter J (for the staff’s first name) to be its tail.

If we were having coffee, I’d then tell you all I had a good day yesterday. I walked a lot, but also visited the next town’s market. I had originally been uncertain as to whether I wanted fried fish (or shrimp really) because of it being quite a high-calorie, high-fat food. I eventually said “screw it!” and considered yesterday a total cheat day. I, after all, also had fried chicken for dinner. Granted, other than that I only had a salad.

If we were having coffee, then I’d share I do really need to lose weight though. I’m about 2kg overweight, which doesn’t seem like a lot given that I used to be 20kg heavier than I am now. However, the “screw it!” thoughts are pretty commonplace especially given the current state of the world. For example, my unhealthy voice is telling me it’s not a problem if I risk getting a heart attack ten years from now because, for all we know, the world may’ve gone up in smoke by then anyway. I, thankfully, do still have more tangible reasons to lose weight or at least not gain any. Like, I still want to be able to wear my favorite pants.

If we were having coffee, lastly I’d share that I am still going strong meeting my movement goal on my Apple Watch each day this month. I’m really hoping for the perfect month award. That being said, I’m not overcompensating for my having indulged in too many “cheat” foods. Not that I believe in cheat foods anyway, since there are no bad foods, just less healthy habits. And overexercising can be a less healthy habit too, as my dietitian reminded me on Wednesday. Not that I’ve ever truly done that, honestly. The bottom line though is that I’m not engaging in compulsive eating habits or exercise. I feel things might need to be a little more controlled, but I’m not sure how to do this.

Today’s Accomplishments (February 15, 2025)

Posted on by Astrid

Hi everyone. Over the past few weeks, all I seem to have done is hang out on social media, talk randomly with my staff and lie in bed. That isn’t entirely true, since I’m still managing to close all of my activity rings on my Apple Watch everyday this month. However, this month so far feels horribly unproductive. I think in part this may be my mindset, so to turn the tide, today I’m once again listing my accomplishments for the day.

1. Showered even though it wasn’t one of my designated shower days. Like I said in my post on spoon theory, showering costs me a lot of energy, so it’s actually quite an accomplishment that I did it on a day I wasn’t required to.

2. Went for an hour-long walk. This isn’t a huge achievement, as I walk most days, but still, I shouldn’t downplay it either.

3. Completed the friends quest with my partner on Duolingo with me having done only slightly less than my spouse. The quest was to complete 50 lessons with 90% accuracy. The accuracy isn’t the problem for me, as I’m doing intermediate English and early B2 is still quite easy. However, over the past few weeks I’d only done a lesson or two a day.

4. Created a “bull in a china shop”, as I call them, out of polymer clay. It’s an elephant that sits on top of a cup. I had been planning to make it for a few days, but always procrastinated on it even though it turned out I could finish the thing in half an hour. No picture yet, as it still needs to have its eyes painted.

5. Wrote a few thoughtful (if I can say so myself) comments on Reddit. I go there everyday now that Facebook is no longer safe, but I try to actually have something meaningful to say too.

6. Wrote this blog post. Does that count? Yes, if I say so, it does and it’s probably the greatest achievement of the day given I had hardly come on WP over the past few weeks.

Limerick: Rage

Posted on by Astrid

When I scream out of rage
Some staff won’t engage
Others let me cry
Until my bad mood passes by
Then I can turn the page

This was seriously my first attempt at a limerick in I think it must be more than 25 years. I don’t honestly think it’s funny, but at least I gave the challenge a go. This one’s for Esther Chilton’s prompt, which is “rage”.