Why Do I Need One-on-One Support? #31Days2021 #Blogtober21

Posted on by Astrid

Yay, it’s October and this means it’s time for Blogtober 2021. Last year, the prompts were based on song titles. This year, there are no prompts. However, Kate Motaung of Five Minute Friday also relaunched the 31-day writing challenge after a break last year and there are prompts for this year. The first prompt is “need”. We can do a five-minute freewrite, but I’m no good at sticking to five minutes or at not editing my writing.

Yesterday I had my care plan review. I was really concerned about my need for one-on-one support being reassessed later this year. Not that the care plan review would really matter for this or so I’m told, but now that we were all together (my home and day center staff, the behavior specialist and my mother-in-law), I wanted to raise the issue. It’s the behavior specialist’s job to write the reapplication paperwork and I questioned whether it sufficiently documented my need for one-on-one. To get things clear in my mind, I am going to write out why I need the support I need.

Firstly, I am blind and have a mild mobility impairment due to cerebral palsy. This, combined with my psychiatric illnesses, means I cannot move about outside the care home, or even outside of my room, independently much at all. This means that the staff need to be alerted when I leave my room looking for them, so that they can come out looking for me.

I am autistic. In my case, I get severely overloaded having to function in a group setting, such as at the day center. Even with noise-canceling headphones on, I still get distracted from trying to do things on my phone while there. Besides, if I do have functioning headphones, they will block out so much noise that I’m essentially cut off from my surroundings and can’t be alerted should something happen. This creates intense anxiety.

This anxiety also leads me to be unable to function on my own for long periods of time. I can, if I’m doing well, be left on my own in my room for up to about 30 minutes at a time. It doesn’t help that I know rationally that someone might be in the next room, because emotionally, if they’re out of earshot, they might as well be on the North Pole.

Autism also means I tend to fixate on routines. In my case, I tend to hyperfocus on the times my staff are going to leave me alone and this creates even more anxiety even when they’re still present. For this reason, staff need not stick to rigid rules of what time exactly they’re going to leave me, but rather to the order of activities.

If I’m left alone for prolonged periods of time, I can often feel incredibly unsafe and start to ruminate, which can easily escalate into self-destructive thoughts and actions. I may also run off in a fight-or-flight response.

I have complex PTSD, as well as dissociative symptoms. This means I can experience apparent age regressions. I get triggered very easily. Flashbacks, too, can lead to a fight-or-flight response.

Thankfully, now that I’m on the right medication, I don’t get as many flashbacks as before. However, I still do experience many serious behavioral issues that can be prevented or averted by the fact that I have one-on-one support most of the time.

I’m pretty sure a critical assessor would be countering that my one-on-one would not help me learn to cope with my anxiety. Thankfully, the goal of my long-term care plan is stabilization, not development. In other words, the original assessors for my long-term care funding did not feel I am trainable anymore. Otherwise, I would not have gotten approved for what is essentially lifelong care at all. The only thing is that my one-on-one care exceeds the care normally paid for by my long-term care profile. Oh well, let’s hope the assessor sees my need for it for at least another year.

Childhood Ambitions

Posted on by Astrid

Last week’s topic for Truthful Tuesday was what we as children wanted to become when we’d grow up. I already discussed this at length last year, so really didn’t feel like boring my readers with the same old stuff again. I mean, I didn’t end up becoming a professor, a psychologist or a published author, or for that matter any of the other things I wanted to be when I’d grow up. Then I saw the topic is being continued this week. That got me thinking. Maybe, if I look at it differently, I did fulfill some of those childhood ambitions.

For example, I may not be a published author yet. Well, I am, if you count that one short piece of writing published in an anthology back in 2015. But I hardly count that. What I do count, is my blog. Back in my childhood years, the Internet hardly existed, so if I wanted my diary published, like Anne Frank, I’d have to have it traditionally published. Well, thank goodness I don’t strive for that at all now. If I’m ever going to get anything published in print in the future, it will be something much better than those crazy diary entries. But I digress.

Another ambition I reached, is inspiring others, including professionals. As a young teen, I wanted to become a psychologist so that I could help improve care for children or people in general with complex care needs. Though I’m not even a peer support worker by qualification, I have given informal lectures to medical students and other professionals.

Thirdly, I have vastly expanded my knowledge of psychology, education and related topics. I may not actually be of value to anyone with this knowledge except in the ways I mentioned above. However, if you asked my parents what my ultimate passion was as a child, they’d invariably say “collecting knowledge”. I may not have graduated college or even come close. I may live in a long-term care facility for people with intellectual disability. I may not be as much of a nerd as I was when I was younger. However, I still definitely use my brains.

Other ways in which I contribute to the world that I couldn’t even imagine as a child, include my creative endeavors. I bring a smile to my fellow clients’ faces when I bring them handmade gifts. I also am much more empathetic and sensitive than I could’ve imagined I would be. That makes me much prouder than having achieved my high level high school graduation.

What childhood ambitions did you manage to fulfill?

Hope and Faith

Posted on by Astrid

Today, Sadje’s Sunday Poser is about your rock in the storm. Who or what keeps you going when the times are tough?

For now, I could – should, maybe – easily say it’s my faith. I became a Christian last year and feel very much comforted knowing that, in the end, it’ll be okay. Not in this life, mind you. Jesus never promised us that there would not be any obstacles in this earthly life for us. Quite the opposite, in fact. We will still physically die and the Bible doesn’t promise Christians any easier end to their earthly life than non-believers. But in the end, in the Kingdom of God, it will be okay.

However, like I said, I didn’t become a believer until last year. I did kind of believe in “something” for many years, but that didn’t quite amount to much. So what kept me going until I started following Christ?

I guess the answer is as simple as the one above, and somewhat related too: hope. I always kept hope alive that, in the end, things would be okay. Even in the darkest depths of my suicidal crisis in 2007, there must’ve been a reason I in fact called my support worker to say goodbye rather than just killing myself without informing anyone. I felt, deep down, that there was still a way out of my darkness, even if I didn’t know what it was right at that moment.

At the time, my rescuers were the crisis service people in my parents’ city, who proposed I get admitted to the mental hospital.

That being said, I’ve never really felt that specific people are my rock in the storm. I mean, of course I appreciate my husband supporting me through everything. However, as unlikely as it is, I always have at the back of my mind the possibility that I’ll lose him at some point. That’s a residual effect of my having had very little stability in my life.

However, hope has always kept me going. It is interesting in this respect that most people who superficially know me, see me as a pessimist. I might look at things from a negative angle most of the time, but when it ultimately comes to it, I always have hope.

To Clone a Cat

Posted on by Astrid

One of Mama Kat’s writing prompts for this week is an interesting but rather hypothetical one: if you could clone a favorite pet from your past, which one would you choose and why? Now I have absolutely no idea about the science behind cloning and zero interest in looking it up, but I’m assuming from the question it could be a now-deceased pet. As such, I’m assuming the real question is really about bringing back to life said animal.

I must admit here that I’m not that much of a pet lover. I’ve had cats pretty much my entire life, but I can never seem to truly tune into their needs. It could be that I’m not a cat person, but I don’t think I’m a dog person either.

The only pet I’ve had that I seemed to be somewhat attuned to, was Morse. My parents and I brought him home from the shelter when I was fifteen. He was a Norwegian forestcat crossbreed of about three to four months old when we got him.

We named him Morse after Inspector Morse from the TV series, because he immediately started investigating his surroundings when he got home with us. I remember wanting to name him Amor (Latin for “love”), because I was in grammar school. However, my father vetoed that, saying it sounded weird to call for “Amor” in the backyard.

Before we got Morse, we’d had Pluk. He was rather scared of me stepping on his tail accidentally because of not seeing him. Morse didn’t seem as scared.

Morse got sick with the cat flu right out of the shelter and always seemed to keep a weak respiratory system. He was very thin for a Norwegian forestcat crossbreed. Nonetheless, he made it to fifteen-years-old. During his last year of life, he declined both physically and cognitively, but my parents decided not to let him be put to sleep. He finally crossed the rainbow bridge on July 30, 2016. If I could revive any pet from the past, it’d certainly be Morse. I really loved his mischievous, adventurous and investigative nature.

If you could clone a favorite pet, who would it be and why?

Mama’s Losin’ It

Dropping Those Extra Pounds

Posted on by Astrid

One of Mama Kat’s writing prompts this week asks us what’s sabotaging us in dropping those extra pounds. I remember about six years ago responding to a similar prompt on my old blog. At the time, the prompt asked us specifically about those first five pounds. That would be somewhat fitting for today too, as my weight currently is about five pounds into the obese range.

It hasn’t always been that way. Back in 2015, losing five pounds wouldn’t even get my BMI under 30. In 2017, I had a BMI close to 35. I managed to turn that around and lose almost 10kg or 20lbs in six months, crossing the line back to just plain overweight for the first time in many years.

Now I’ve been back within the obese range for several years already, but my weight has been more or less stable for about two years now. I would really like to lose those first five pounds, but something’s sabotaging me. And that something isn’t binge eating anymore.

In fact, back in 2015, I admitted that the problem wasn’t most likely my emotional overeating either. I’m not sure that’s true, as I considered it a win that I hadn’t had a binge in a few weeks. Now, I haven’t had one in months.

However, I was probably right that it was more my habitual snacking and lack of exercise. Currently, I do try to get in enough exercise at least with my walking, but I still eat just a little too many cookies and chips.

The fact that I get in enough walking, probably keeps me stable, but I could be doing so much better if I just resisted the urge to have a cookie or two with each coffee break. Like my husband once said, if I removed just one cookie from my diet and didn’t make it up with anything else, I would have lost those first five pounds within six months to a year.

Mama’s Losin’ It

#IWSG: Success As a Writer

Posted on by Astrid

IWSG

It’s the first Wednesday of the month once again and this means it’s time for the Insecure Writer’s Support Group (#IWSG) to meet. I don’t really have much to share with respect to how well I did in the area of writing. I mean, I did okay, having written 21 blog posts over the month of August. I didn’t really broaden my writing horizons at all, but that’s okay. Other creative outlets (ie. polymer clay) have taken priority.

So, with no further ado, let’s get to this month’s question. This month, the optional question is how we define success as a writer.

As someone who has only had one short piece published so far, I can’t really define success by how well-accepted my works are in the area of publishing. At least not unless I want to consider myself a massive failure. This doesn’t mean I don’t define success by external standards though.

When I first started writing for an audience with my online diary in 2002, I hardly had that audience in mind at all. The service I used didn’t have a comment feature or stats, so there was no way of knowing who’d read my writings except if they’d E-mail me about them.

When I transferred to WordPress in 2007, I still didn’t care about or even pay attention to my stats. I was delighted when my blog posts got featured on a popular-in-my-niche blog, but that’s about it.

Then when I started what I refer to as “my old blog” on this blog in 2013, I did understand more about blogging and WordPress, so I did pay attention to how many comments I got. That’s usually how I defined success at the time. I also checked my stats more regularly, but still didn’t really know what they meant.

I still to this day usually define success by the engagement I get on my blog. Since starting this blog in 2018, it has been steadily improving.

I do try not to obsess over my stats though. I mean, back in the days of my old blog, I would hardly ever respond to people’s comments because those comments would distort my stats. I have learned since that it is not just morally expected but good for your engagement too to reply to each comment you receive.

Besides the number of comments I receive, I would like to add that it helps boost my sense of success as a writer to see that people are genuinely touched by or interested in my writings. I feel therefore that the content of comments also matters.

How do you define success as a writer?

Why I Write What I Write #OpenBook

Posted on by Astrid

“I write because I don’t know what I think until I read what I say.” – Flannery O’Connor

Yesterday, I read Stevie Turner’s post for the Open Book Blog Hop and the topic really struck a chord, as did the accompanying quote, which I copied above. The question Stevie poses for this week’s hop is why we write what we write.

I mostly write personal essays, journal entries and other works of autobiographical nonfiction. It may surprise you that I didn’t start out this way. As a child, I wrote fiction more than I wrote diaries. I wasn’t too imaginative, but I tried my best and my parents and teachers were pretty impressed. I always wanted to be a writer.

I started writing a regular diary when I was thirteen. About nine months later, I read Anne Frank’s diary and pretty quickly decided I wanted my diaries published when I’d grow up. That never happened and isn’t going to happen either, not even here, since my crazy ramblings of the time are none of my current day readers’ business. It was 2000 at the time, so online diaries already existed, but I was unaware of their existence.

I continued to write some fiction on a semi-regular basis and aspire to get at least some pieces of fiction published at some point until my late teens or early twenties. Now, I don’t have any aspirations for getting any fiction published.

As for why I write what I write, there are two main reasons. The first is to express myself. I revived this specific blog in 2018 in an attempt to allow myself to write more from the heart than I was permitting myself to do on my old blog.

As an offshoot from the wish to express myself comes the wish to find likeminded individuals. I blog in English because the English-language blogosphere on WordPress and Blogger is much larger and by extension more diverse than the Dutch one, which consists primarily of wannabe “influencers”. Through my writing, I aim to connect to people who share similar experiences to mine.

With respect to my fiction, this has always been the goal of my writing, really, too. My fiction always had very strong autobiographical components and I was looking to diversify young adult fiction. I am sometimes surprised at how well-represented people in minority positions, including multiple minorities, are in fiction nowadays. As a teen, my goal was to be part of that movement. I guess by merely writing openly about my experiences online, even though I’m no longer engaged in activism, I may be doing this.

My Worst Fear

Posted on by Astrid

This week, one of Mama Kat’s writing prompts is to share one of your fears. I have a lot of fears and phobias, to be honest. I probably would even meet the criteria for generalized anxiety disorder if it weren’t for my autism, which encompasses a lot of worry in itself already. In fact, when my former psychologist had removed my autism diagnosis, she at one point considered diagnosing me with GAD.

She ended up diagnosing me with dependent personality disorder though. And, as much as I used to fight this diagnosis, it fits in some important ways: being left all alone is probably one of my worst fears.

I obviously didn’t tick that box when filling out the screening questionnaires for my independent second opinion after said psychologist’s diagnosis. I also ticked the box for “very difficult” rather than “impossible” on the WHODAS (assessment of level of disability) question on being on your own for a few days. Obviously, that only got me assigned a lower number on level of disability, not a different diagnosis, but I wasn’t aware of this. Besides, my diagnostician was able to see through my not having ticked that one box, so, though she didn’t diagnose me with DPD, she did recommend I work on my self-confidence.

Whether it means I’m pathologically dependent or not, I don’t care though: I fear being left to my own resources. And to be honest, no amount of kicking me in the butt has helped with this so far. Neither have so many years of independence training and therapy. I guess I just need to live with it. And that’s okay at least as long as the authorities aren’t going to see this as a reason to revoke my access to long-term care.

I mean, it’s not just fear. I fear being left to my own resources because I legitimately have no clue how to live my life independently on a daily basis. I can, with a lot of difficulty, perform most activities of daily living, such as showering, brushing my teeth and getting dressed. I now mostly get help with these, because it costs me a ton of time and energy having to do them on my own. For those saying I used to do these things by myself, I would like to add that this came at a cost to my dental health and physical hygiene. But if I really had to, I probably could do all of this. However, where it comes to housework, I’m pretty much lost. I cannot prepare my own food. Like, when I lived on my own in 2007, I ate bread without toppings because I couldn’t put them onto my bread. I wouldn’t die doing this for a few days, of course, and there the “very difficult” answer on the WHODAS may be correct. But it would be my worst fear come true.

Mama’s Losin’ It

#IWSG: My Go-To Writing Book(s)

Posted on by Astrid

IWSG

Hi all! It’s the first Wednesday of the month and you know what that means? It’s time for the Insecure Writer’s Support Group (#IWSG) to meet. I have been doing really well in the writing department over the past month. In July, I published 30 blog posts, including some creative writing. I didn’t write everyday, at least not intentionally, but on the days I did write, I more than made up for this.

I have truly felt my creative juices flowing over the past month, not just with respect to writing, but crafting too. Whether this is due to my new psychiatric medication or not, I do not know. I can only hope that it will last for a long time still to come.

Now on to this month’s optional question. This month, we’re asked to write about our favorite writing craft books. Those books that, each time we open them, we learn something new or are inspired to write or try a new technique.

Well, I am not a big fan of writing “manuals” so to speak. I tried the book Diy Mfa and didn’t get beyond the first chapter. I prefer to just write and not be told how I should be doing it.

That being said, I do have a ton of go-to writing craft books. They are, however, collections of writing prompts. When I’m uninspired, I love to open one of those and see where the muse leads me. Most of these, of course, deal with journaling, as that’s my primary method of writing. Examples of books I love include The Year of You by Hannah Braeme, the eBook collection Journaling with Lisa Shea and 412 Journaling Exercises and Prompts for Personal Growth by Meredith Lane.

One series of books dealing with creative writing I love though is the Adventures in Writing series by Melissa Donovan. One of the books in the series is a collection of writing prompts. Another offers 101 more general writing exercises. The last one, Ready, Set, Write is more of a traditional “manual”. I like that one. I really think this series would be my go-to book series for inspiration that moves me out of my comfort zone.

My Ideal Home

Posted on by Astrid

I’ve been thinking since yesterday about the prompt I mentioned I found in Day One: What would your ideal home look like? And since I have nothing else I want to write about right now, I thought I’d paint a word picture of my ideal home. Of course, this post is going to describe the physical look of the house. Like I said yesterday, home is where I can be myself and that cannot mostly be achieved with material things.

I’m going to design my ideal home as I want my living space to be. I’m assuming in this case that, if it will be a home where I live with my husband, he’ll get his own space. I am also not going to bother with practicalities such as having to clean a large space, since, well, this is just a dream.

First, my house would have a bottom floor and a top floor. It might have an attic too for storing random bits and stuff, but I haven’t decided on that one yet. In my husband’s and my real homes, both back in the tiny village and in Lobith, I could not/cannot reach the attic, after all.

The bottom floor would have a living room with two very comfy, large couches. In addition, there’d be a recliner. There’d be a living room table just about big enough for drinking tea. There’d of course be a TV.

The living room would be attached to the dining room, where there’d be a dining table. We’d have an open kitchen, so it’d be in the dining room really. That way, if my husband is cooking and I’m in the living room or diner, we can still talk.

The kitchen would of course have an oven, a microwave, a dishwasher and a stove. If I get my way (and yes, I do, as this is my blog!), it’ll be an induction stove.

Then on to the top floor. That floor would have three separate bedrooms for me: one bedroom which I’d share with my husband, one sensory room and a craft room. Oh, I’d also need an office, but that’s as simple as a desk and a chair so could be crammed in with one of the other rooms.

The sensory room would of course have a water bed with its own internal music system. It would also have an essential oil diffuser. Other than that, there’d be lots of soft toys, and my yoga mat and fitness ball.

The craft room would have enough room for a table to work on and a chair, as well as lots of storage shelves. It would have its own microwave, fridge and sink to clean my hands.

Lastly, there’d be a bathroom. That one would have a bathtub that could be filled enough with warm water to cover my entire body (my care facility’s bathtub can’t). There’d also be a separate shower for when I don’t feel like having a bath. There’d obviously be a washbasin to brush my teeth at. I don’t think I’d want a second toilet here. Now of course I forgot to put a first one at the bottom floor, but oh well, I’m not an actual architect, am I?

That’s it I think. What would you want to include in your ideal home?