July 2023 Reflections #WBOYC

Posted on by Astrid

Hi everyone. It’s the last day of the month and this means it’s time for my monthly reflections. As usual, I’m joining in with What’s Been on Your Calendar? (or #WBOYC for short).

This month was a toughie once again. All I had to keep me going was an E-mail from the behavior specialist at the end of June saying that they were still investigating a possible new home for me, so I hadn’t been forgotten. This didn’t do much to perk me up, honestly. At the beginning of the second week of the month, my mother-in-law E-mailed her to request extra supports. We had been discussing her asking the behavior specialist to come round to talk to me every once in a while to keep me from spiraling further into crisis before, and in fact my mother-in-law had requested it before, but that message had not been responded to. This time around, it turned out the behavior specialist was on vacation till the end of the month. I’m pretty sure given her work schedule, she should be back tomorrow, but even though our E-mail was sent pretty early in her leave, I’m skeptical that she’ll respond then.

Of course, I did find out on the 23rd that a new home has been found for me. Like I mentioned last week, the way I found out about it was rather weird and I don’t know anything about the home other than what my care agency has on its website about it. A moving date hasn’t been set either as far as I’m aware and I won’t be informed till about two weeks in advance. My assigned staff asked me today whether I keep wondering when I’ll be moving. Yep, of course.

In other news, my support coordinator did leave the agency a few weeks ago. I can’t say I miss her, as I can talk to my new one much more easily. Still, I’m glad I’m leaving this place in the hopefully not too distant future.

I haven’t really been crafting much over this past month. The only thing I finished, in fact, is a bracelet with the glass beads I got from my mother-in-law for my birthday. Today, I did finally get round to claying once again. And got my hands all blue from handling alcohol inks without gloves.

I also didn’t walk as much as I did last month over this past month. I honestly don’t really care though.

Since iOS 16.6 resolved the Braille display bug that caused me to be unable to read books on my iPhone, I have been reading more over the past week. I also finally bought a blender, so yay for smoothies!

Here’s hoping August will be a better month than the past few months have been.

Looking After My Health

Posted on by Astrid

Hi all. Today’s question for Sunday Poser is how well we look after ourselves, health-wise. Sadje observes that most regular bloggers are over age 50. Honestly, I wonder how they do it, if they also lead an active lifestyle in other respects. But this may be a question for another time.

I really struggle with being health-conscious, as I am quite the impulsive type. Thankfully, I never smoked other than the odd whiff and I don’t care for alcoholic beverages either. Food though is a different story. I’m recovering from disordered eating. In my case, it mostly involved overeating and some purging.

Six years ago, when I had just been kicked out of the psychiatric hospital, I weighed 80kg and could barely walk for fifteen minutes at a time. I am 1.53m in height, so this means I had a BMI of nearly 35, or obesity stage II. My spouse recommended I lose weight for my health. I did, although at the time I only had it in mind to lose the 10kg I was in the obese range. However, I never maintained a weight within the overweight, let alone healthy, BMI range until sometime in 2022. My food addiction was just too strong.

Now, thankfully, I’ve been at a healthy BMI for several months. I was talking to my spouse this afternoon and we were discussing my recent clothing shopping sprees. My spouse said I look after my appearance better, but admitted it was hard back several years ago. I started talking about my being “quite chubby,” only to be corrected by my spouse with “No, you were fat.” That’s what I thought too, so it didn’t come across as offensive at all, but I wanted to downplay things a bit in case my obesity wasn’t as bad and I was making a big deal out of nothing.

Back to ways in which I look after my health. I try to eat enough fruit and veg each day, but this is somewhat of a struggle here at the institution. I also walk at least 30 minutes at the bare minimum everyday. I haven’t had a day gone by since owning my Apple Watch that I didn’t meet my stand goal. Of course, this requires me to only move for a minute each hour, but at least I’m not sitting on my butt for hours on end.

I do take multiple medications. Five, in fact, and that means I’m officially classified as having polypharmacy. This means that I’m at increased risk of health issues due to the number of meds I take. Thankfully, I do get bloodwork done regularly to check for things like kidney function, fasting blood glucose, triglycerides, etc. Only my kidney function has been off, but it hasn’t decreased over the past year and is still within the mildly decreased range (my egfr is 68, if you’d like to know).

I did get a kind of wake up call a few days ago when I found out someone I met at the blindness training center in 2005 passed away recently at the age of 51. We had a lot in common, including obesity, mental health problems and psych medications, etc. I know, I’m no longer obese, but it’s not like my body has magically forgotten the twelve years or so it spent being overweight.

Thankfully, even though I cannot undo the bad choices I made in the past, I can decide to be more health-conscious from now on. Will it make sure that I live till age 83 like my maternal grandma or 94 like my paternal one? No.

There’s no need to blame ourselves for our health issues. I mean, some folks like to call cancer, cardiovascular disease etc., “illnesses of affluence”. This might be so on a societal level, but it’s sick (no pun intended) to blame the individual for falling ill or dying young. I would love to live to age 83 or 94, but it’s only partly within my control.

#WeekendCoffeeShare (July 29, 2023)

Posted on by Astrid

Hi everyone. It’s been a while since I last joined in with #WeekendCoffeeShare, so I thought I’d write a post for it. I just had my evening coffee, as is usual when I sit down to write these posts. I may still grab a cup of green tea later though, since, like I mentioned yesterday, I started using the Water Reminder app again. If you’d like a drink, cold or hot, join me and let’s chat.

If we were having coffee, I’d first share about the weather. It hasn’t been summerlike, honestly. Rather rainy and the daytime temperatures barely got above 20°C. It isn’t supposed to get any better soon.

If we were having coffee, then I’d repeat myself by shouting off the rooftops for all of the Coffee Share crowd to hear that YAY, I AM MOVING!!! Of course, as those who read my post from Monday will know, I hardly know any details about my new care home and a moving date hasn’t been set. However, the bits of information I do gather, make me feel like this could be quite positive. I mean, it’s not likely my dream home or anything, but then again that was supposed to be this one, only that dream turned into a nightmare.

If we were having coffee, I’d tell you that I’ve been spending more time among my fellow residents lately. It’s not really my choice, truthfully. In part, it’s because I look for familiar faces in the communal room when I get assigned the umpteenth new temp worker. Then when I do get a familiar staff, they often ask me to join the group too. This morning, my one-on-one for the moment sincerely claimed another resident had asked me to come play a game of dice, but I’m not 100% sure it’s true with all the times the staff are initiating it. For those who don’t know, me being in the communal room, unless I’m indeed playing a game with the aforementioned fellow resident, usually means me sitting around doing nothing while the staff chat among themselves or scroll on their phones, thereby my not doing any meaningful activity. Besides, I usually get overwhelmed very easily, but the staff expect me to be able to tell them rather than them picking up on my signs. Today, I was extremely overloaded for over an hour after spending not even twenty minutes in the living room. With the fact that I’m moving, I’m not sure whether the staff want me to practice functioning in the group more so that they can lessen my one-on-one, as that wouldn’t benefit them at all. However, I don’t see any other reason for them to initiate me being in the group so often.

If we were having coffee, then I would tell you I closed all my rings on my Apple Watch every single day this week so far. That’s quite an accomplishment lately, as in late June, I broke my 300-odd day streak of meeting my movement goal and I once again didn’t meet it last week. I honestly have been rather unmotivated in the exercise department recently. This week though, I logged more workouts – mostly walking – than last week.

If we were having coffee, lastly I’d share that I’ve generally been really uninspired over the past couple of weeks. I did make some simple smoothies with my new blender earlier this week, but other than that, I hardly did anything creative. I can only hope I can change this sooner rather than later.

Lovin’ Lately (July 28, 2023)

Posted on by Astrid

Hi everyone. It’s time for me to share some of the things I discovered or bought recently that I’ve loved once again. I’m joining Friday Favorites.

1. iOS 16.6. Well, honestly, nothing’s new, but at least a long-standing accessibility bug that had been annoying me for months finally got resolved. Since iOS 16.5, which came out in early May I believe, for whatever reason, the panning buttons on my Braille display, which allow me to scroll, froze in all book-related apps after the first page, allowing me to read only one page and then have to turn VoiceOver off and back on. This made reading on my iPhone basically impossible. So, no shiny new features but yay, I can read again!

2. Books. This brings me to my second favorite thing. Since I can finally read on my iPhone again, I have been doing so a lot. I am currently reading Silenced, Rosie Lewis’ latest foster care memoir.

3. My new blender. I finally took the plunge and ordered a blender off Bol.com last week. I have only made two smoothies with it so far, but it’s good nonetheless. It is a power blender, but not by a high-end brand, because I just don’t have the money for that. Being able to read on my iPhone again, also meant being able to use the collections of smoothie recipes I have on there again.

4. The Water Reminder app for my iPhone. I have had it on my phone several times, but it’s probably Chinese and I at one point deleted all the Chinese-owned apps off my phone for fear of being spied on. Then again, my old headphones that I used with my computer, were a Chinese brand too, so what’s the point? Today, when I looked at the Water Reminder app, I discovered that there are far more drink types you can add than I previously thought. I was looking for “smoothie”, and yay, it’s in there.

5. The Celtic Relaxation Music playlist by SWake on Spotify. I discovered it while searching for Celtic instrumental music playlists. Though Spotify’s own Celtic Instrumental playlist is good too, this one is better.

What have you been lovin’ lately?

Dromaai: A Restaurant That Brings Me Nostalgia

Posted on by Astrid

One of today’s prompts for Mama Kat’s Writer’s Workshop is to share about a restaurant that makes you nostalgic. I immediately thought of the restaurant in Nijmegen my spouse and I nicknamed the “dromedary”.

Its real name is Dromaai, which is wordplay on the Dutch word for turnaround. On the menu are various dishes where letters have been switched up. For example, fish stew would be called “stish few”.

I discovered the restaurant while in the psych hospital in the spring of 2008 and ate there with my family a few times. Then, in December of that year, I invited my now spouse there.

My spouse and I would see each other several times a week while I was in the hospital, often around dinnertime, and there wasn’t any food for my spouse in the hospital, of course. As a result, we had to eat out. Dromaai became a regularly-visited restaurant. My favorite dish was marinaded turkey on a skewer. I usually chose pepper sauce with it rather than the recommended BBQ. You could choose between a side dish of rice, baked potatoes or fries. I usually chose fries, but I did like the potatoes too.

In 2011, my spouse convinced me to try to become a vegetarian, so my favorite dish became a vegetable wrap. I gave up the vegetarian lifestyle after only about nine months and came back to my turkey skewer.

We stopped going to Dromaai when I moved to the psych hospital in Wolfheze in 2013. That is, we still went there occasionally. One time, I remember one of the workers – I think he actually was the manager or something, but he also did waiter jobs – asking us whether we’d moved and if so, where. I vaguely replied that we’d moved to the Arnhem area. “Arnhem, blegh,” he replied with a laugh, because as those from the Netherlands will know Arnhem and Nijmegen are rivals.

The last time I went to Dromaai, I went with my sister after our day at Sanadome, a wellness resort in Nijmegen, in 2018. I looked all over the menu, but to my annoyance, they’d done away with the turkey skewer. I ordered mixed grill instead, but didn’t like it nearly as much.

As a side note, don’t ask me how my spouse and I got to nickname Dromaai, “Dromedary”. My spouse has a habit of taking wordplay to the extreme though. I think it’s funny, but I realize it isn’t as I type this down now.

Mama’s Losin’ It

Hello Monday (July 24, 2023)

Posted on by Astrid

Hi everyone. I’m joining Hello Monday for a weekend recap. The weekend was a true mixed bag, but those who know how much I’ve been struggling please do read on till the end for some exciting news.

Saturday was a truly crappy day. I got a total stranger as my one-on-one for the morning. This is not unusual, but the crappiness started as soon as I voiced my discomfort with her being a total stranger. Rather than try to comfort me, she was like: “What about if I leave you alone till coffee time?” Coffee time is at 11AM and it was just past 10AM. I said no, because despite what the staff here seem to think my one-on-one isn’t a mere suggestion. Fifteen minutes later, she was like: “I haven’t had breakfast yet. I need to grab some food, see you at coffee time, okay?” I went to the communal room, where my assigned staff happened to be, who set this straight with my would-be one-on-one. After that, we played some card games, had coffee and then she quickly decided to swap places with another staff. He’s not a stranger. Not someone I get along with, but at least I know what to expect of him (which is very little, to be honest).

In the evening, there was a staff shortage until 6PM and of course I was asked to come to the communal room to unburden the staff (his literal words). Then I got a staff I barely knew once again and only could play card games once again.

Sunday was better. I did get an unfamiliar one-on-one in the morning, but at least my spouse came by for a visit. We once again drove to Apeldoorn for lunch at Backwerk and hopped into Holland and Barrett for some essential oils. My spouse got a discount card even though we rarely shop there.

In the evening, my new support coordinator – did I share my old one left the agency a few weeks ago? – was my one-on-one for an hour. We went for a walk and discussed some aspects of my care, both unaware of the E-mail landing in my inbox at 7PM. My mother-in-law had forwarded it to me. It was originally sent to her at 11AM that morning. The subject line read something like: Painting Astrid’s new room.

The E-mail started with something like: “I am [name], support coordinator for Astrid’s new care home, [home].” The person writing the E-mail then went on to tell my mother-in-law that, when moving, a client can have one wall in their room painted in a desired color, and which color would I like?

I had heard my assigned staff mention this home among the possible homes considered for me, but I had absolutely no idea I had been accepted into it. I don’t know anything about the home other than what the care agency’s website says, which isn’t to be trusted due to the fact that they make things look better than they are. However, it isn’t really like I care. Any small improvement over the care I receive here is greatly appreciated.

Today, I confirmed with my support coordinator that I am indeed moving to this home. When the move will be, is not yet known for sure, but I’ll find out about two weeks in advance and be able to take a look around a few days before the actual move.

And for those who are wondering, I chose lilac as the color for my wall.

Creating Glimmers

Posted on by Astrid

Today’s prompt for Friday Writings is “Glimmers”. A glimmer is the exact opposite of a trigger, something that brings you a sense of safety or joy.

Let me say that I often struggle with the fear of experiencing positive emotions, so even glimmers could be triggers in a way. I have yet to figure out why this is and what to do about it.

That is, one thing I do about it is to create positive experiences for my inner child parts that aren’t connected to the past. An example of this would be reading stories about unicorns. I don’t think my mother ever read me stories about unicorns as a young child, so unicorns bring out the playful inner child in me without the memories of my childhood attached. I can probably safely say that unicorns are a glimmer for me.

Another glimmer are my stuffed animals, but I honestly think the same applies that is the reason I love unicorns: they can’t be connected to my childhood. I currently have five stuffed animals on my bed, but the oldest one I’ve had for about four years.

I wonder why this is, honestly, given that my childhood, though not stellar, wasn’t horrifying either. Ah, who cares as long as I have my unicorn stories, unicorn polymer clay cutters, stuffed anymals, including several unicorns, etc.? Let me just live love laugh in unicorn land. If only it were this easy…

Gratitude List (July 20, 2023)

Posted on by Astrid

Hi everyone. I’m feeling like I have really been neglecting my blog. The truth is I’ve been struggling a lot, more so even than I used to. However, today I’m feeling pretty good so I’m taking the opportunity for a gratitude post. Here goes.

1. I am grateful for a fellow resident’s birthday celebration on Monday. Just after handover at 3PM, we all sat in the living room and sang “Happy Birthday” for him. We had fries and a snack for dinner too. Unfortunately, another resident did have a severe anger outburst right after we did the singing and was disruptive for the rest of the evening even when in his room.

2. I am grateful that, though on Tuesday I got the least familiar to the group staff assigned to me for my one-on-one, she was not the least familiar to me.

3. I am grateful for a comforting visit from my mother-in-law on Tuesday. It was good to be able to vent to her.

4. I am grateful for a delicious caramel ice cream bowl that my mother-in-law treated me to on her visit. Okay, my dress once again had ice cream and caramel sauce all over it, but oh well, it can be washed.

5. I am grateful for a satisfying dietitian’s appt on Wednesday. She was really content with my weight (which remains within the agreed-upon range) and my eating and exercising habits. For those who don’t know, I have a history of disordered eating, bordering on bulimia, so I particularly need to make sure my eating and exercising don’t become compulsive (in addition to not engaging in purging behaviors, of course).

6. I am grateful my assigned staff supported me for part of the morning shift on Wednesday despite there being a temp worker too. Granted, the temp worker is quite familiar with the group, but I’d more or less been told that I’d still be assigned the temp worker by default unless there are literally four regular employees.

7. I am grateful for a great experience swimming yesterday. I went into the pool with just a staff and no other residents. This particular staff has this really cool way of getting my playful inner child out, so we sang songs, jumped up and down and had lots of fun.

8. I am grateful my assigned staff agreed to contact the behavior specialist once she’s back from vacation to set up a meeting to discuss possibly finding me help in overcoming my sense of basic mistrust. It’s been getting progressively worse and is affecting my life here at the care home but also my marriage.

9. I am grateful I was allowed to borrow a fellow resident’s side-by-side bike this afternoon. It was a nice change from walking.

10. I am grateful for my spouse, who sticks by me even though I’m being quite difficult. We’ve had a few arguments and I’ve crossed my spouse’s limits a few times. I now realize this is probably my anxious attachment style getting in the way of our healthy communication. For this reason, I’m all the happier to still be going on together.

What have you been grateful for lately?

Lovin’ Lately (July 14, 2023)

Posted on by Astrid

Hi everyone. It’s been forever, probably years, since I shared a compilation of my favorite things. With my birthday just over two weeks ago and all the lovely presents I got, I thought it’s about time. I also discovered some other lovely things. Here goes. I am joining in with Friday Favorites.

1. Lots of polymer clay. Plus some lovely cutters to use with it. I got twelve small, one-ounce blocks of Fimo from my spouse, as well as four two-ounce blocks of Premo and a large block of white Premo. I already opened the Premo in the color 18k gold. Unfortunately, the pieces I created using it, were ruined in the oven.

From my parents, I got a box full of 24 small packets of a budget brand of polymer clay. I also got several cutters. One of them was a unicorn and I’ve really been loving creating pendants using it. Here is the first one, done using the budget brand polymer clay. I was convinced I’d used lilac clay, but it’s clearly blue and that’s not because the clay changed color in the oven. Apparently my staff with whom I did the pendant is slightly color blind.

2. Beads. I got some lovely glass beads from my mother-in-law. Some of them are in the shape of animals, such as butterflies, pigs and ladybugs. My spouse uses the ladybug emoji as a nickname (nick-emoji?) for me, so these are extra fitting.

3. Podcasts. Because as of iOS 16.5, my Braille display freezes when using book apps, including the default iPhone one, I’ve had to find other ways to occupy myself. I started looking at podcasts. A favorite is the Enneagram & Coffee podcast. I especially loved the episode on attachment theory and the Enneagram, which I listened to just a day or two after writing my post on attachment issues last Sunday. I was right to think most Enneagram type Fours lean towards anxious attachment. So do I.

4. My new nightgowns. I bought them at Hema, a department store my spouse and I visit almost each week we’re in Apeldoorn, a few weeks ago. Both of them are so comfy and they look good too.

5. White chocolate peanut rocks. Not sure if these exist in the English-speaking world too, but peanut rocks are basically chunks of chocolate filled with peanuts. They usually come in dark and milk chocolate varieties, but I’d never seen them in white chocolate form. Until last week, that is. Since my favorite type of chocolate is white chocolate (and yes, I know chocoholics say white chocolate isn’t real chocolate), I just had to buy them. And oh boy, are they delish!

What have you been lovin’ lately?

Physical Discomfort

Posted on by Astrid

I have been experiencing a lot of nausea lately and a bit of a decreased appetite. At first, I attributed the nausea to stress, then norovirus which was making its rounds here at the home. I was really sick with diarrhea and vomiting for only a few hours though, so it’s not even certain I had the virus.

If I have to be true to myself, I’ve been feeling a little unwell for a couple of weeks already. However, it’s really hard for me to tell when I even feel physically unwell and, if so, whether it’s “just” being a little off or it’s something I might need to see my GP for. For this reason, I usually keep going with physical discomfort for months. And even though alertness to my physical wellbeing is one of my care goals, my staff expect me to be able to signal to them when I’m having symptoms (and even when I do, it takes forever for them to take action).

Today, I did ask my staff to call the GP surgery tomorrow to inquire about my kidney function. It’s been decreased for at least a year and, even though I’ve had regular blood tests, I haven’t seen or been told of the results since the summer of 2022.

And guess what? Nausea and decreased appetite are a possible kidney disease symptom. So is itchiness, which I’ve had very badly for months. I don’t mind either symptom as much, in the sense that despite the decreased appetite I’m still eating well and I could continue putting cetomacrogol cream on my skin forever if the itch is nothing to worry about. But I want to make sure my kidney function hasn’t gone significantly further down.

And if it has – and honestly, even if it hasn’t -, I want a consultation with a psychiatrist to discuss tapering my psychiatric medications. I know, the ones that could cause kidney failure are the last ones I started – topiramate and pregabalin -, but I doubt either is very effective. Besides, I just don’t want to keep adding on to my med pile and, if my kidneys show further damage, I’ll need to go on meds for that too.

Let’s hope the staff don’t forget to actually call the GP tomorrow.