The Wednesday HodgePodge (October 25, 2023)

Posted on by Astrid

Hi everyone. It’s been a while since I last posted. The past week has been hard, but I’m feeling better now. I’m joining in with the Wednesday HodgePodge once again. Here we go.

1. October 25th is International Artists Day…do you have a favorite artist? If so tell us who and why.
No, I don’t. I’m blind so can’t appreciate paintings or other means of visual art. As for sculptures, I haven’t touched enough to know much about them.

2. Would you describe yourself as artistic? Elaborate.
No, not really. I mean, I’m creative with words and I love to craft, but I don’t have the slightest idea of what makes a good piece of art.

3. What’s a skill, task, hobby, or job you’ve done so often you now have it ‘down to a fine art’?
I’m not sure what that expression means, but if it means you can do something very well or it takes little effort, nothing.

4. How often do you dine out? Fast food, fine dining, or somewhere in between? Tell us about a less than stellar restaurant experience you’ve had recently (or not so recently if that’s easier).
I rarely dine out these days, but my spouse and I get lunch out each week. I can’t remember any recent negative restaurant experiences. I mean, having iced coffee and cake at Starbucks about a month ago was a bit disappointing.

One experience I’d like to share though, has nothing to do with the restaurant, but with the person I went eating out with. In late August, my assigned staff for my old home invited me out for lunch to say goodbye because of my move. In advance, she mentioned nothing about who would pay, so I assumed we’d each pay our own food. This, I consider already thoughtful of me, since had she not been staff, I’d assumed that her inviting me and not mentioning costs would mean she’d pay. Recently though, my spouse got the monthly care home bill for additional costs such as laundry etc. And guess what? Judging from the amount, I’ve most likely paid for both of our lunches. I’m not going after it, but next time I’m going to make sure I understand up front what I’m going to pay for something special offered to me.

5. Do you celebrate Halloween? To what extent? Are there trick or treaters where you live?
No, I don’t celebrate Halloween. I do like it though. Maybe next year I’ll get some decorations, but this year I didn’t feel like I have the space for any temporary decorations. As you know, I live in an institution, so no trick-or-treaters here.

6. Insert your own random thought here.
I went swimming today. One of the staff stayed half an hour past the end of her shift to be able to support me. And yes, I did ask about having to pay for this myself, since in Raalte a client would have to pay individual support hours for this and the hourly fee is far higher than what a staff earns per hour. The staff told me I won’t need to pay. Swimming was great! There were six of us residents participating. Thankfully, the staff who supported me did ask that the music be turned off. Residents here take turns swimming, so it isn’t like I’ll be able to go each week, but I’ll most likely be able to go swimming another time.

#WeekendCoffeeShare (September 16, 2023)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare today. I just had my afternoon coffee, but will probably not finish this post in one go, as I have an activity moment again in half an hour. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. We’ve had pretty nice late summer weather here with temps rising to between 20°C and 25°C during the day. Next week, we’re supposed to get rain and then I’m pretty sure it’s over with the warm weather, although October can occasionally bring days when the temperature reaches 20°C too. I love telling tales of the day, about five or six years ago, when we had a daytime high of 27°C here in mid-October.

If we were having coffee, then I’d talk about my walking and other exercise. I went swimming on Wednesday. It’ll probably have been the last time for now, as I’m moving to the new care home on Monday, although the swimming instructor did say my new home’s clients go swimming too.

I went on the stationary bike yesterday. Other than that, my physical activity has been hit and miss. Some days, I got in over 10K steps, while on other days, I hardly walked at all.

If we were having coffee, I would however share that, on one of my walks, last Tuesday, I visited the institution petting zoo and took some lovely pictures. The first picture shows the petting zoo’s cat, Macho, on a stack of hay.

There also is a large aviary with parakeets in it. Here are two photos of the birds in their cage.


If we were having coffee, finally I’d tell you all about my visit to my new care home. I went there with a staff and my mother-in-law. Since this staff has been pushing me towards independence more than I can handle lately and since she’ll be doing handover too, I was disappointed that she’d be attending the visit too. After all, that’d mean I wouldn’t be able to talk to my new staff about my needs without her overhearing.

When we got to the home, we were greeted by the man who will be my new assigned staff, same one who’d been talking to my mother-in-law about the color paint on my wall. I had thought he’d be my support coordinator but apparently not. I don’t know who my support coordinator will be yet. Not a problem, since in general you have more day-to-day contact with your assigned staff than your support coordinator. When still outside, I heard a loud singing of “Happy Birthday!”. This turned out to come from the neighboring home though, as no-one had a birthday this day.

We were led into the living room, where a number of residents and another staff were having coffee. I initially thought there were two staff, since one of the residents talked in an almost identical voice and said almost the same things as the staff. This turned out to be echolalia though.

The residents in this home are more significantly intellectually disabled than those at my current home. Most can speak a little though. Like, one told me I had a pretty golden ring. When I told my spouse about this, I was reminded of my preference last year for a home with people with mild intellectual disability. Yeah, I replied, but I didn’t know back then what I had to give up to live with people with whom I can have a conversation.

Overall, the staff seemed much nicer than those at my current care home. For one thing, both staff introduced themselves, while back when I went to look around here last year only the staff who would be giving me the tour told me their name.

I was led to my room, which is the closest to the living room. This has disadvantages, in that I may be able to hear living room sounds more, but it has a huge advantage in that I will be able to find it much more easily than my current room. The wall is a nice baby pink according to my mother-in-law. I wasn’t able to get a real impression of my room without my furniture in it yet, but that’s not a problem.

When shown around, I did make it clear what my needs are re help with my activities of daily living and that I’m not ready to grow yet, since that will take me being stable first. The staff who was with me didn’t comment, thankfully. Overall, I feel less stressed about moving to the new home now that I’ve met my new fellow residents and staff.

I have yet to pack my clothes. Other than that, everything is in boxes now and ready to be moved. I’m ready for a new chapter in my life!

Gratitude List (July 20, 2023)

Posted on by Astrid

Hi everyone. I’m feeling like I have really been neglecting my blog. The truth is I’ve been struggling a lot, more so even than I used to. However, today I’m feeling pretty good so I’m taking the opportunity for a gratitude post. Here goes.

1. I am grateful for a fellow resident’s birthday celebration on Monday. Just after handover at 3PM, we all sat in the living room and sang “Happy Birthday” for him. We had fries and a snack for dinner too. Unfortunately, another resident did have a severe anger outburst right after we did the singing and was disruptive for the rest of the evening even when in his room.

2. I am grateful that, though on Tuesday I got the least familiar to the group staff assigned to me for my one-on-one, she was not the least familiar to me.

3. I am grateful for a comforting visit from my mother-in-law on Tuesday. It was good to be able to vent to her.

4. I am grateful for a delicious caramel ice cream bowl that my mother-in-law treated me to on her visit. Okay, my dress once again had ice cream and caramel sauce all over it, but oh well, it can be washed.

5. I am grateful for a satisfying dietitian’s appt on Wednesday. She was really content with my weight (which remains within the agreed-upon range) and my eating and exercising habits. For those who don’t know, I have a history of disordered eating, bordering on bulimia, so I particularly need to make sure my eating and exercising don’t become compulsive (in addition to not engaging in purging behaviors, of course).

6. I am grateful my assigned staff supported me for part of the morning shift on Wednesday despite there being a temp worker too. Granted, the temp worker is quite familiar with the group, but I’d more or less been told that I’d still be assigned the temp worker by default unless there are literally four regular employees.

7. I am grateful for a great experience swimming yesterday. I went into the pool with just a staff and no other residents. This particular staff has this really cool way of getting my playful inner child out, so we sang songs, jumped up and down and had lots of fun.

8. I am grateful my assigned staff agreed to contact the behavior specialist once she’s back from vacation to set up a meeting to discuss possibly finding me help in overcoming my sense of basic mistrust. It’s been getting progressively worse and is affecting my life here at the care home but also my marriage.

9. I am grateful I was allowed to borrow a fellow resident’s side-by-side bike this afternoon. It was a nice change from walking.

10. I am grateful for my spouse, who sticks by me even though I’m being quite difficult. We’ve had a few arguments and I’ve crossed my spouse’s limits a few times. I now realize this is probably my anxious attachment style getting in the way of our healthy communication. For this reason, I’m all the happier to still be going on together.

What have you been grateful for lately?

The Wednesday HodgePodge (June 7, 2023)

Posted on by Astrid

Hi everyone. I’m joining the Wednesday HodgePodge again. It’s been a while. Here goes.

1. Tell me something you remember (or if you’re not there yet, something you look forward to) about being 35.
I turned 35 in June of 2021. Honestly, it was one of the best years of my life so far, even though I didn’t see it at the time. It was the first year I had one-on-one and I started exploring polymer clay that summer, shortly after turning 35. I am pretty sure I made some of my best unicorns that year. At the end of 2021, I remember saying here on the blog that I had the best support I could hope for and now it was time to find the best med combo for me, referring to my wish to taper my antipsychotic. Honestly, looking back, I should’ve stayed in my comfort zone and not made the decision to want to move care homes (also when I was still 35, in April of 2022). Hindsight is 20/20.

2. Last time you “burned the candle at both ends”?
I rarely get up very early. My usual time to wake up is 8AM regardless of the time I went to sleep. That being said, if 8AM is considered early enough to count, I regularly “burn the candle at both ends, as I regularly stay up way past midnight. I remember once going to sleep at past 3AM and getting up before 8AM to get in my stand hours on my Apple Watch. I got 21 stand hours that day.

3. Are you someone with the “gift of gab”? Elaborate (which shouldn’t be a problem if you answered yes teehee).
I had to Google that expression. As for my answer, well, it depends. Sometimes I can talk up a storm, but sometimes I cannot articulate my basic needs.

4. Do you request a special meal on your birthday, and if so tell us what that meal is? Do you want the same kind of cake year after year or will any flavor work? Do you want cake at all? Growing up were birthdays a big deal in your house? Are they a big deal now?
I don’t really get to pick a special meal on my birthday now, although back in the psych hospital we could. Instead, I usually go out for dinner with my spouse and my parents on my birthdays. My spouse and I pick a restaurant. This year, we haven’t chosen one yet even though my birthday is on the 27th.

I don’t care for cake, honestly. My mother’s apple pie is good. So is homemade cheesecake. Other than that, I prefer a large waffle or something like that.

Birthdays were definitely a big deal growing up. That being said, I always managed to ruin mine as well as my sister’s with a meltdown or two. Now, though I like my birthday a little because of the presents, it’s more stress than fun.

5. “Age is just a number.”… agree or disagree? Tell us why.
I completely agree with Joyce’s answer to this question. I can feel all kinds of different ages, but it isn’t like I actually am an eight-year-old.

6. Insert your own random thought here.
I went swimming, yay! One of the student staff has a project on leisure activities for a client and she chose me. During our discussion, we talked about swimming. She initially wanted to go to the nearby lake, but I don’t really like that. It was actually my idea to call the institution pool to ask if there was a possibility for me to go swimming there just once. And there was. It was magical! And the best news is, it’s not just for once. Our home now has a spot to go swimming there each week.

My Ideal Ways of Spending My Day

Posted on by Astrid

Hi everyone. I have been thinking about ways in which I would like to spend my days if I get to move to the main institution. Like I said yesterday, each client has their own day program, so they aren’t required to go to the day center by default. I also will keep my one-on-one support at least until December of 2023. In today’s post, I want to share my ideal ways of spending my days. These are things I might be able to implement should I remain here, but I’m dreaming big here and thinking of ways the institution could accommodate me too.

First, I would like to start my day in my room like I currently do. I don’t think I can handle eating breakfast in a group as of yet. That might change in the future. I would like to eat all my main meals in my room, but go to the living room for coffee breaks when I want to.

Ways I would like to spend my day, include crafting of course. I would really like to keep on doing my polymer clay work and maybe even sell it in the day center’s shop.

The day activities I am thinking the institution could help me meet my dreams with, are those related to sports and physical activity. I know the institution has a small swimming pool on grounds and I’d really like to use it. I’m not sure whether they might have exercise equipment too, like the type of equipment you’d find in a gym. If they do, I’d love to utilize that too.

The institution is in a rural estate area, so I’d love to go for walks on grounds. I’ll take my iPhone (by then, I might have a new one, who knows?) to take pictures of the beautiful nature.

I’ll hopefully at some point be able to take short walks on grounds on my own too. For that, I’ll need orientation and mobility training from the blindness agency, but I’m sure I can get that.

I may occasionally want to relax in a snoezelen® room. Then again, if I’m correct, I can keep my weighted blanket if I move within this care agency, so I might not even need a snoezelen® room.

I’ll probably also want to go to a day center every once in a while to socialize with other clients. The institution has three day centers I believe, but I’m pretty sure clients from the home I might go to won’t go to all three. That’s okay though, I’ll find out what suits me.

Gratitude List (May 20, 2022) #TToT

Posted on by Astrid

Hi everyone. I’m feeling all sorts of things today. To focus my attention on the positives, I am doing a gratitude post. As usual, I’m joining in with Ten Things of Thankful (#TToT). Here goes.

1. I am grateful my husband and I went barbecueing on Saturday. It was delicious!

2. I am grateful my hearing is still fine. I had a hearing test on Monday and am so happy it showed I can still hear pretty well.

3. I am grateful for clean water. Upon inspection, legionella was found in one of our water pipes. Again, for the second time in a year. I am grateful the cleaning crew was able to destroy the bacterium.

4. I am grateful for an opportunity to go swimming. Because the crew had to come out to clear our waterworks of legionella bacteria, we had to leave the home from 10AM till 4PM Tuesday. The other clients could stay at day activities, but I normally get my day activities in the home. We did set up my computer in an empty room at another home, but I really wanted to be gone. My staff offered to take me swimming. It was great fun!

5. I am grateful for a day in which I walked more than 10K steps. Tuesday was a truly amazing day with respect to physical activity.

6. I am grateful that, after the legionella was destroyed, the home didn’t smell of chlor or whatever they used to clear the waterworks.

7. I am grateful for warm weather. Not today, but the rest of the week, we had daytime temperatures of roughly 25°C.

8. I am grateful my husband’s truck’s trailer got fixed. It had been having problems with its brakes that could’ve led to it catching fire for weeks. Thankfully, each time, my husband stopped driving just in time. Last Wednesday, he texted me that it’s a miracle and the thing had been fixed.

9. I am grateful for crafty inspiration once again. I have truly been loving creating some things in polymer clay again. Unfortunately, because I used the day center’s oven today to try if that’d work better than the large care home one, it burned my project. It was just a small test case though.

10. I am grateful my sister gave birth to a healthy baby girl yesterday. She chose the name I dislike as the baby’s first name and, for the middle name, chose the name I like but spelled in a way I like a little less. I’ll get used to it though.

What are you grateful for?

Learning to Swim

Posted on by Astrid

Today’s topic for Throwback Thursday is “learning to swim”. There are no specific questions, but we are allowed to interpret the topic as we see fit. Here goes.

I got my first swimming lessons at the special school for the visually impaired I attended from first up to third grade. I, however, was very scared of the water and particularly of the deeper end. I vividly remember my teacher taking me to the deep end and my anxiously asking her if she could stand there. She was quite tall, but even so, she couldn’t. That scared me intensely.

According to my parents, my teachers were just overprotective, so my parents put me in swimming lessons at the pool close by their home. I didn’t need to start at the really shallow end, as I had had some swimming experience already, but could start at the 90cm deep second pool. Within a week, I was moved to the 110cm deep third pool, even though I think I protested.

It took me several more years before I earned my first swimming diploma. This first diploma at the time required students to be able to do breaststroke and backstroke, to swim one pool length with loose-fitting clothing, to tread water, etc., but it did not require students to swim underwater.

By the time I got my diploma, I had transferred to another school for the blind, where I had once again been put into the relatively shallow pool. I proudly showed my teachers my swimming diploma that I’d earned at home and was reluctantly transferred to the deep end.

From earning my first swimming diploma to my second, it took me only about eight months. The second diploma required students to swim 7m underwater. There was no way I could see whether I’d passed the 7m mark, so I had to guess. According to my parents, I swam about 11m.

After that, I had swimming lessons for the next three years that I was at various schools for the blind, but I never earned any more diplomas or certificates. The reason was, once again, the fact that my fear started to act up. After all, I wouldn’t swim under a mat. My parents, however, were okay with it this time. After all, my sister never moved beyond her second swimming diploma either.

I now can swim in a pool or lake. When my parents took me and my sister on vacation to Vlieland, I would also sometimes swim in the North Sea. I doubt I’d be able to save myself should I get underwater unintendedly though.

Outdoor Activities I Enjoy

Posted on by Astrid

The book 412 Journaling Exercises and Prompts for Personal Growth by Meredith Lane contains, in addition to a wealth of assorted journaling prompts, also a number of “list of twenty” prompts. One of these is outdoor activities you enjoy. Right now, the weather outside is frightful: cloudy, windy, rainy and even a bit snowy. It’s April though and the weather has to get better someday soon. For when it does, let me share some of my favorite outdoor activities.

1. Walking. This is a no-brainer to anyone who’s read some of my blog before. I love love love walking and will even go for some walks in light rain occasionally.

2. Sunbathing. Or rather, just sitting in the sun. I don’t really sunbathe that much, but I do love to sit in the sunshine sometimes.

3. Swinging. At the day center, there is a rocking lounger outside of the door of my pre-lockdown group. I’ve also heard there are sets of swings in front of some of the other homes. At my former day centers, I loved to sit on a swing outside and swing about.

4. Listening to birdsong. I really love to hear the birds sing and chirp when I’m walking or sitting outside. I have absolutely no birdsong recognition skill whatsoever, but the mere sound of the different birds is pure bliss.

5. Meeting people from other care homes. This is mostly due to lockdown, as I used to be able to speak to other clients at the day center. Now we have to meet outside. I love talking to my acquaintances from other homes.

6. Swimming. Mostly in the outdoor pool, that is. Oh, how I wish I would be allowed into them again. I’ve heard some outdoor swimming pools have opened to a limited number of swimmers, but then still I won’t be able to go yet. I don’t really like swimming in a lake as much.

7. Barbecueing. Oh, how I love all the barbecue meat. Truly, if you ask me, salads are just a necessary evil. No, not really, but I am a true carnivore when it comes to barbecueing.

8. Enjoying a picnic. Although I struggle not to make a mess when not seated at a table. I try to think that’s not a problem though.

9. Feeling the wind blow through my hair. I don’t really like windy weather like today, but I do love to feel a slight breeze on my face and through my hair.

10. Campfires. Mostly for the marshmallows, that is. I don’t particularly care for the smoky scent and feel of a campfire, but it definitely adds to a cozy atmosphere.

Okay, I’m not going to get to twenty, but this was definitely fun to try.

What are your favorite outdoor activities?

loopyloulaura

Also linking up with #SeniSal.

#WeekendCoffeeShare (May 25, 2019)

Posted on by Astrid

And yet again, I did not write for almost an entire week. Fortunately, this time it isn’t because my depression is worse. It’s still there, mind you, but it’s not worse than it was a week ago. I don’t really know why I couldn’t find the mojo to write again. To get back into the swing of things, I’m joining in with #WeekendCoffeeShare. So grab a cup of coffee and let’s catch up. That is, I’d rather have a glass of ice-cold water right now, but if you’d like a coffee, that’s fine with me too.

This week has been a bit boring but also exciting. This week was when I was supposed to get news regarding my care situation. I still can’t disclose details. That will hopefully change soon, as I did get some news and may know for sure where I’m at this coming Tuesday. For those who don’t know, I’m in the process of applying for long-term care. Please all pray and send positive vibes my way.

On Wednesday, I normally struggle at day activities, because it’s the busiest day and we have a cooking activity then. I tend to want to be in control then and struggle trying not to be bossy. This Wednesday though, I did pretty well. I was even able to help with the cooking itself.

I’ve been fairly active as far as exercise is concerned. I went swimming with my day activities group on Tuesday. I nailed my step goal (10,000 steps) on Wednesday and nearly on Thursday too. I also finally got back into the swing of going on the elliptical regularly. As such, I got over four hours of exercise this past week.

My husbband invited me out for dinner at a chicken restaurant this evening. I love love love chicken and this place didn’t disappoint. It was an hour’s drive from our home, but my husband doesn’t mind driving.

Tomorrow, I’m probably going to have a relaxing day. We might visit my in-laws, as we usually do on Saturday but didn’t today. Other than that, I’m just hoping my day will go by okay.

My Favorite Ways of Staying Active

Posted on by Astrid

Today, I am joining in with the RagTag Daily Prompt for Thursday. It is “Exercise“. I am a pretty sedentary person, but nonetheless, I love getting moving every once in a while. Here are my favorite ways of staying active both physically and mentally.

1. Walking. My absolute favorite way of physical exercise has to be walking. Due to my disabilities, I am not safe leaving the house on my own for a walk, but I do enjoy walks with my support staff or other people. As regular readers of this blog know, I go for a long walk each Monday at day activities. This week, unfortunately, it started to pour when we’d just been out of the door for five minutes, so we had to return. Both today and yesterday though, I went for an hour-long walk with my support coordinator.

2. Swimming. My second most favorite way of exercising physically has to be swimming. We do it at day activities every other Tuesday. My Fitbit activity tracker is water-proof, so it tracks my swimming activity too.

3. Going on gym equipment. I have an elliptical at home, which I really need to use more often. I manage twice a week on average, but sometimes I don’t go for over a week.

I also discussed with my support worker getting myself a gym membership. There’s a gym in the nearby city that has services for people who suffered brain injury. I’d love to go there.

4. Yoga. I used to take yoga lessons at the institution in Nijmegen many years ago, but I quit eventually. Then I tried to practise on my own. My husband eventually borrowed my yoga mat for his own exercise, then threw it out because it’d disintegrated. I just ordered myself anew one, which should arrive tomorrow. I tried to do yoga on my bed today, but that wasn’t really ideal.

5. Horseback riding. This isn’t particularly exercise-y if you ask me, since we just step around. However, it is an activity that I commit to once a week and that keeps me healthy – or so I’d like to think.

What are your favorite ways of staying healthy?