The Wednesday HodgePodge (October 4, 2023)

Hi everyone. It’s been a few weeks since I participated, so I’m joining in with the Wednesday HodgePodge once again. Here goes.

1. What’s something that scares you?
Too many things to mention, although I’m not one to have many classic phobias. My main one is toxiphobia, a fear of poisons.

2. Do you care where the food you eat comes from? To what degree?
Not really, honestly. Not that I get a say in where my care home food comes from in terms of the supermarket they order from – it’s some type of countrywide supplier specifically for care agencies. However, it’s not like I’d care much even if I did have a say. I do care about having a say in the specific foods I get to eat, which thankfully I have. When it comes to organic or not and the country my food originally comes from, I honestly am too lazy and stingy to care even when I go to the brick-and-mortar supermarket in the next town.

3. What’s something you wish you’d spent more time doing when you were younger?
Be creative. I did love writing as a child and spent a good amount of time on that, but I definitely wish I’d spent more time on other creative outlets.

4. Let’s play autumn this or that….pumpkin spice or apple cider? Corn maze or haunted house? Horror film or Hallmark movie? Blanket or sweatshirt? Watch football or watch the World Series? Foliage-red, yellow or orange?
Pumpkin spice for sure. Corn maze, though I don’t care for it either (but I hate haunted houses). Neither on the movies, but a Hallmark one if I have to choose, since the reason I hate haunted houses is because I startle extremely easily and also I don’t want nightmares. Is the blanket supposed to go onto me in the same way as a sweatshirt? Then I’ll choose a sweatshirt because it’s easier to keep in place while I type. Neither on the sports thing. That is, I’ve never heard of the World Series but assume it’s sports-related too and I never watch sports. All three colors are beautiful.

5. This time last year where were you and what were you doing?
Such an intriguing question especially today. October 4, 2022 was my last full day in the care facility in Raalte. Most of my furniture was being moved to the intensive support home (my now old care home) that day, as Raalte’s transportation person was off on Wednesdays (something thankfully my staff did realize beforehand, unlike with the recent move). Can you imagine I lived in three different care homes over the past year?

6. Insert your own random thought here.
October 4, 2023. I’ve been living in my current care home for just over two weeks and am beginning to consciously or unconsciously erase my connection to the intensive support home. Honestly, I feel awful when a temp worker tells me he knows me from there. That being said, it’s not just because it could hardly get worse than there, that my current home feels like a better fit.

My (Second) Favorite September Memory

Hi everyone. I want to write, but honestly don’t feel like sharing about all the stressors of the last few days in my current care home. Instead, I decided to draw inspiration from Marsha’s 10 on the 10th post again and share one of my favorite September memories. My favorite of all time is of course my wedding date in 2011, but I’ve written tons of posts about that already I believe. So I’m going to share about my other favorite memory. This is only a favorite memory in hindsight, as it was intensely stressful back then. I refer, of course, to my moving into the care facility in Raalte on September 23, 2019.

I arrived in Raalte at around 1PM, which was a bit earlier than I’d agreed on I believe, but the staff who would be showing me round had just arrived. She showed me my room and let my spouse move my furniture into it. I remember we had some discussions about things that had to be agreed upon. My spouse clearly stated that I couldn’t manage my own meds, as I’d taken two med overdoses when living in our house. The staff had been kind enough to mark the door handles of my room and the living room with tape, so that I could recognize them by touch when wall-trailing.

I also got a short tour of the day center, that is, the group I’d be attending. I remember they had a hand-made banner with “Welcome, Astrid!” on it. The guy who came here in crisis last November also got a welcome banner, but I got nothing when I got here.

In the evening, when the other clients got home from the day center, we had dinner. After that, one of the staff said she was going for a walk with one of my fellow clients. I was tempted to ask whether I could join them, but can’t remember whether I did.

I remember feeling quite a bit in shock when first coming to this care home. I asked my spouse: “You don’t think it’s all stupid, do you?” I referred to the fact that the other residents were severely intellectually disabled. Maybe I’d also noticed the poo smell. This was one of the first things my spouse asked me about when I went to have a look around my current care home. Truthfully though, I don’t care about poo smell if I get proper care.

Memories of My Paternal Grandfather

Hi everyone. Today is National Grandparents’ Day in the United States. I heard of this a few days ago when looking for inspiration for my blog, but didn’t feel like writing about the topic at the time. Now, the subject returns in Marsha’s 10 on the 10th post. This is a meme in which Marsha asks ten questions related to a particular topic of the month. Rather than answer all ten, I’m going with one of them, which is to share a favorite memory involving your grandparent(s).

I have shared about my paternal grandmother a lot of times already. She was certainly my favorite grandparent. Today though, I’m going to share about my paternal grandfather.

My paternal grandparents divorced in 1973, years before I was born. They didn’t have much contact since, as all of their children were adults by that time. In fact, I can’t remember a birthday or holiday when they visited my family on the same day.

My paternal grandfather was a radio technician during his working life. He knew a lot about all sorts of science and tech things. Indeed, my parents tell me I acquired my first spoken word from him. As the story goes, my father and grandfather were discussing aviation and, at one point, either of them mentioned the word “aircraft industry”. I, then ten-months-old (seven months corrected for prematurity), parroted: “Aircraft industry.” This, my parents see as a sign of my being a genius. Most of my psychologists in my adult life have seen it as one of the early signs of autism.

My paternal grandfather was probably on the spectrum himself too (as is my father, though he doesn’t care about diagnoses). We had these traditions built into his visits with us. One of them was him always giving my sister and me ƒ5 each. At one point, when my father had probably decided we were too old for this, our grandfather put the coins in a very hard to open money-box with transparant sides, so that we could see our money but not reach it. I am pretty sure I had a tantrum over it.

My grandpa had a small motorized boat. Well, large enough to sleep in. My sister once went on a week-long sleepover on the boat with him. Mid-way through it, my parents and I visited them and we sailed IJsselmeer a bit. I was both scared and excited, as we could leave the boat when it was anchored and have a swim around.

I went to grammar school, the type of high-level high school I attended, in 1999. My grandfather had attended grammar school back in the 1930s, so he gave me some kind of a button with “grammar school 1” written on it.

By that time, age 75, my grandfather started thinking he was suffering from dementia. My father brushed it off, saying he probably thinks he has dementia when he doesn’t remember the most difficult of the Latin words he learned in grammar school. As it turned out, my grandpa was right after all, as he was diagnosed with pretty advanced dementia in late 2001, age 77. At this point, he needed to be placed in a nursing home. He died not even eighteen months later. Now that I know more about dementia, I know that the stage of not recognizing people and having no short-term memory whatsoever, is by far not the first stage of dementia. I realize now too that my paternal grandmother probably suffered from mid-stage dementia too, but died of another cause before entering the phase at which point my grandfather was diagnosed. It is truly tragic that my grandfather wasn’t taken seriously.

The Wednesday HodgePodge (August 23, 2023)

Hi everyone. I’m joining the Wednesday HodgePodge once again. Here goes.

1. What’s your earliest memory?
My third birthday. My paternal grandma brought me a doll from Berlin and my father taught my sister and me the German word for “doll” (“Puppe”). My sister and I, of course, laughed really hard about this, as “Puppe” sounds just like the Dutch verb for “poo”. The doll, by the way, is named Roza, because my father also said Rosa (but then again, as a child I had no clue how to spell it) is a German name.

2. What’s something about you today that the old you would find surprising?
The fact that I live in an institution. Until I was about 25, living in an institution was my worst nightmare.

3. Do you like to fish? Are you a fish eater? Favorite fish (to eat)? Favorite way to prepare fish?
I’ve only been fishing once and found it intensely boring. Then again, I can’t see so that takes away what little fun I imagine there is to fishing.

I do like fish, but usually just the once with the not-too-distinct flavor. The only exception is tuna, which I love and would probably be my favorite fish to eat. When my sister turned vegetarian and showed my parents info about the unethical consequences of tuna eating, they for a while refused to buy it. I got really upset.

4. What’s your biggest first world problem?
I’m not sure whether my unsuitable care home counts as a first world problem. I guess it does, since most disabled people in developing countries don’t have a choice where they live at all. Neither do I at this point, in the sense that I know next to nothing about my future care home and am told that since I’m moving anyway it’d be pointless to give me more info. I have a post scheduled for tomorrow on this topic. In any case, I’m still fortunate in many ways I guess.

5. What one word would you use to describe your year thus far?
Chaos.

6. Insert your own random thought here.
I almost broke my record of active calories burned on my Apple Watch today. Honestly, I think relatively speaking I already broke it, since my last record dates from September of last year and I weighed 12kg more than I do now, so burned off more calories with the same physical exertion. I still need 20 exercise minutes to break my exercise record (which I set on the same day), but I won’t do that. Those 15 active calories I still need to burn for my movement record should be doable though. Today, unlike the time I set my old record, I did a variety of workouts: walking, swimming, the stationary bike and dancing.

Dromaai: A Restaurant That Brings Me Nostalgia

One of today’s prompts for Mama Kat’s Writer’s Workshop is to share about a restaurant that makes you nostalgic. I immediately thought of the restaurant in Nijmegen my spouse and I nicknamed the “dromedary”.

Its real name is Dromaai, which is wordplay on the Dutch word for turnaround. On the menu are various dishes where letters have been switched up. For example, fish stew would be called “stish few”.

I discovered the restaurant while in the psych hospital in the spring of 2008 and ate there with my family a few times. Then, in December of that year, I invited my now spouse there.

My spouse and I would see each other several times a week while I was in the hospital, often around dinnertime, and there wasn’t any food for my spouse in the hospital, of course. As a result, we had to eat out. Dromaai became a regularly-visited restaurant. My favorite dish was marinaded turkey on a skewer. I usually chose pepper sauce with it rather than the recommended BBQ. You could choose between a side dish of rice, baked potatoes or fries. I usually chose fries, but I did like the potatoes too.

In 2011, my spouse convinced me to try to become a vegetarian, so my favorite dish became a vegetable wrap. I gave up the vegetarian lifestyle after only about nine months and came back to my turkey skewer.

We stopped going to Dromaai when I moved to the psych hospital in Wolfheze in 2013. That is, we still went there occasionally. One time, I remember one of the workers – I think he actually was the manager or something, but he also did waiter jobs – asking us whether we’d moved and if so, where. I vaguely replied that we’d moved to the Arnhem area. “Arnhem, blegh,” he replied with a laugh, because as those from the Netherlands will know Arnhem and Nijmegen are rivals.

The last time I went to Dromaai, I went with my sister after our day at Sanadome, a wellness resort in Nijmegen, in 2018. I looked all over the menu, but to my annoyance, they’d done away with the turkey skewer. I ordered mixed grill instead, but didn’t like it nearly as much.

As a side note, don’t ask me how my spouse and I got to nickname Dromaai, “Dromedary”. My spouse has a habit of taking wordplay to the extreme though. I think it’s funny, but I realize it isn’t as I type this down now.

Mama’s Losin’ It

Creating Glimmers

Today’s prompt for Friday Writings is “Glimmers”. A glimmer is the exact opposite of a trigger, something that brings you a sense of safety or joy.

Let me say that I often struggle with the fear of experiencing positive emotions, so even glimmers could be triggers in a way. I have yet to figure out why this is and what to do about it.

That is, one thing I do about it is to create positive experiences for my inner child parts that aren’t connected to the past. An example of this would be reading stories about unicorns. I don’t think my mother ever read me stories about unicorns as a young child, so unicorns bring out the playful inner child in me without the memories of my childhood attached. I can probably safely say that unicorns are a glimmer for me.

Another glimmer are my stuffed animals, but I honestly think the same applies that is the reason I love unicorns: they can’t be connected to my childhood. I currently have five stuffed animals on my bed, but the oldest one I’ve had for about four years.

I wonder why this is, honestly, given that my childhood, though not stellar, wasn’t horrifying either. Ah, who cares as long as I have my unicorn stories, unicorn polymer clay cutters, stuffed anymals, including several unicorns, etc.? Let me just live love laugh in unicorn land. If only it were this easy…

The Wednesday HodgePodge (June 28, 2023)

Hi everyone. I haven’t touched the blog in a few days once again. It’s for partly different reasons than last week this time though. The different reasons include the hustle and bustle of my birthday. It’s over though so today I’m back joining the Wednesday HodgePodge. Here goes.

1. What’s one thing you’re excited about in the coming month?
The last bit of my birthday celebrations when my mother-in-law visits me next week. We couldn’t visit my in-laws on Sunday. That is, technically we could, but since my mother-in-law was on call for the animal rescue service she volunteers for, it would have been quite boring for me.

2. What was your life like when you were ten years old?
It was a very difficult year. I turned ten on June 27, 1996. The day before my tenth birthday, I had my first out of what turned out to be only four sessions with a play therapist/educational psychologist. Given what I remember of those sessions, I wonder whether the therapist saw signs of autism back then. Either way, I’m pretty sure my parents decided after those four sessions that it was useless to continue. Fast forward to the end of my year of being ten, June of 1997, I had a psychological evaluation supervised by the same ed psych. This, and the recommendations that came out of it, led to my parents finally falling out with the school. Oh, how I wish I hadn’t been loyal to my parents back then…

3. What’s something from your childhood you still enjoy today?
Being creative, although not in the same ways. That is, I did love playing with play-doh (which one might say is somewhat related to polymer clay, even though real polymer clay artists will punch me in the stomach for saying it) as a young child. I loved drawing more though, something I obviously am no longer capable of. One thing I want to say though is that, even though I’m now totally blind, I still appreciate colors.

4. What state (that you haven’t been to) do you most want to visit? Tell us why.
I haven’t been to any U.S. states and honestly have no interest in visiting them anymore either. As for a country I’d like to visit that I haven’t been to: Sweden.

5. Do you like to drive? Tell us how you learned to drive.
Uhm, N/A. I don’t drive, as I’m blind. That being said, I doubt I could’ve learned had I not been blind, because my processing is about as screwed as can be.

6. Insert your own random thought here.
Today, I created a polymer clay flower pendant in just half an hour. I loved the entire process and it turned out quite good. In fact, the only thing I dislike about it is the fact that the eyepin’s direction is off.

I really need to be showing more of my creations on here, I think, as social media hardly work for me. I mean, I do try to use Instagram, although I wish it were more of a microblogging service with the pictures being optional. Then again, that’s what Twitter is supposed to be, but then again I despise Elon Musk. Oh well, the perfect social media platform doesn’t exist.

The Wednesday HodgePodge (June 14, 2023)

Hi everyone. It’s been a while since I last touched the blog. Honestly, I haven’t been feeling inspired. Today is no exception. I’m joining the Wednesday HodgePodge once again. Here goes.

1. What does productivity look like to you?
I honestly don’t really know. I don’t do to-do lists, but I do have goals. For example, I’d really like to blog at least three times a week.

2. What was your fondest (or one of your fondest) memory of High School?
Participating in the Model European Parliament debating contest, in which students pretend to be EU representatives. Especially because I was chosen by a student committee, not the teacher. The students were in the year above me, mind you. I don’t think my classmates would ever have picked me. Neither, it turned out, would the teacher responsible for the contest and he didn’t shy away from admitting that it was because of my blindness. That, he also admitted was the reason I didn’t make it beyond the provincial level. I don’t mind. Going to Arnhem for a week to debate the European Union’s most pressing issues (I was on the foreign affairs committee) was cool. So was partying at night and getting tipsy on two beers, the most alcohol I’ve ever had. And trying a few puffs of a joint. Which, since I didn’t smoke, did nothing. For which I’m intensely grateful, since I later found out about the mental health risks of cannabis.

3. What did you do the summer after High School?
Nothing in particular until I started at the blindness training center in late August.

4. June 14th is National Strawberry Shortcake Day…are you a fan, and if so will you celebrate? How do you make yours? Have you been strawberry picking? If so what do you do with all those berrries?
I have no idea what shortcake even tastes like, since it’s not a thing here in the Netherlands. I haven’t been strawberry picking recently either.

5. What’s something you always splurge on?
My latest crafty interest, so it’s been polymer clay for several years. I am quite embarrassed to admit that, ten years ago, during the year I started crafting, I probably spent at least €1000, if not more, on card making supplies. And this was a time when I couldn’t sensibly afford to spend €100 a month on things I didn’t need. Besides, I ended up throwing most of my supplies away after that year.

6. Insert your own random thought here.
I recently bought new AirPods. The old ones had an annoying beep in the right earbud, and since I had given up on the perfect noise canceling headphones, I decided to settle on AirPods instead. The good news is I actually figured out how to pair them with my PC.

Alarm Anxiety

I just came across an interesting concept when reading Pat’s Soapbox Thursday for today: alarm anxiety. Alarm anxiety is the fear of the alarm not going off or of not getting enough sleep before it does. When I read her description, immediately alarm bells (pun intended) went off in my head. This is what I dealt with throughout high school and into university.

When I was at secondary school, I’d compulsively check that my alarm was on. Since my alarm was at the other end of the room and I couldn’t visually check it due to being blind, I had to physically leave my bed to do so. And I’d do so at least thirty times a night. And worry that, by the time I’d finally fall asleep, if my alarm did go off, I’d still sleep through it because I hadn’t had enough sleep. This only happened once in my entire six years of secondary school.

I had other compulsions too, but these are too embarrassing to share here. In general, I’d spend hours engaging in my various rituals at night. I wouldn’t necessarily say I had OCD, as these obsessions and compulsions only affected me at night.

They got a lot worse when I lived independently and went to university. I had to check whether my front door was locked, all non-essential electronics unplugged, window open, heating off, alarm on and I’m pretty sure there’s something I’m forgetting right now. All of the things that needed to be checked, were for a reason, of course. For example, the heating needed to be off in case of a carbon monoxide leak (even though I didn’t have my own boiler) and the window needed to be open so that, if such a leak occurred, the chance of me getting poisoned would be lower.

I’d spend hours upon hours pacing through my apartment checking that these things were as I needed them to be. It was exhausting!

Thankfully, my compulsions left immediately when I was admitted to the psychiatric hospital. Either the fact that a staff member was on the ward at all times, comforted me, or the mere fact of my having been removed from my apartment and its specific triggers, caused me to be able to let go. And, of course, alarm anxiety was no longer a thing, as the staff would wake me. Besides, we weren’t required to be up by a certain time anyway.

My Life Story Isn’t Over Yet

Hi all. Today I’m joining Tranquil Thursday. This replaces Throwback Thursday while Lauren is dealing with her health issues. This week’s topic is (un)written aspects of our life story.

I am 36. On average, this means I’m about at midlife or slightly before there. This should mean about as much of my life story has been written already as the part that’s still unwritten. I struggle to see it this way though. In my mind, I’m perpetually in end-of-life mode.

Especially since moving to my current care home, I no longer make plans. I blame the chaotic situation here, but I’m not sure that’s all there is to it.

I do look back at a life that has been hard, but it definitely has had its positives. Meeting my husband and getting married is an absolutely amazing thing about my life.

As a teen and young adult, I always wanted to write and publish my autobiography. I obviously never did. It had as its working title “Some former preemies will go to university”, after the title of an article in the newspaper my parents read in 2004. The article was about giving preemies born at 24 weeks gestation a chance at active treatment. The neonatologist arguing for this said that some preemies will later go to university. In other words, they’ll prove their worthiness of having been treated actively.

As regular readers of this blog will know, I received active treatment as a preemie too, even though my parents weren’t completely sure I should. I did, indeed, at some point go to university. And failed miserably. But I did sort of prove my worth. Or did I?

My life story isn’t over yet. I might indeed someday be relatively successful at life, whatever that may be. Or I might deteriorate even further than I am now. Then again, everyone deteriorates in old age. And if you need to have had a college degree and worked for 40’ish years before that in order to prove your life is worth it, human values are rather distorted.