Not the End

Posted on by Astrid

My mind is exploding with chaos. So many thoughts, feelings, wishes, voices, dreams and visions float through it. It is so overloaded I am tempted to give up. Through the chaos, I can hear the monster speak. “Give in,” it lures, “go to the clouds.” I can almost picture the heavenly realm, the place the monster is trying to get me to go to, in my mind’s eye. I cry out: “No!” I am bombarded yet I stand. I won’t give up. This is not the end.

This piece was written for yesterday’s Prosery. The idea of this challenge is to use a given line of poetry in a piece of prose. The line we were asked to use is: “I am bombarded yet I stand.”

In the above piece, I try to capture what it is like to be overloaded with depressive and suicidal thoughts. Yet, I also aim to make it clear that I am fighting back. After all, this is not the end.

#WeekendCoffeeShare (November 6, 2021)

Posted on by Astrid

Hi everyone on this gloomy fall day. I’m joining #WeekendCoffeeShare. Unlike most days when I write my coffee share post, I haven’t had my last cup of coffee yet. Let’s have a drink and let’s catch up.

If we were having coffee, I’d say that my GP appointment on Monday went okay. My magnesium got decreased in hopes of relieving me a little from my abdominal discomfort. It’s helping a tiny bit, but not enough for my liking.

If we were having coffee, I would tell you that I had an okay week otherwise. I’m struggling quite a bit with the disconnect between my intellect and my emotions. This is causing me to appear well-collected a lot of the time when in reality I feel extremely distressed. I discussed a few examples of this with my assigned staff and support coordinator today and they’re helping me improve these situations.

If we were having coffee, I would share that I finally gave in (or up) with respect to the adaptive footwear situation and had my husband order new walking shoes for me. After all, the old ones will probably have a large enough to get my socks wet hole in them within a week or two at most. I am so grateful my husband found almost the exact same shoes. They arrived in the post today. I am still hoping I will eventually get used to my orthopedic footwear, but it will need some further adjustments for that to happen first.

If we were having coffee, I would share that I am looking forward but also stressing about the national cerebral palsy day in three weeks’ time. I went to the event on my own three years ago, but this is quite hard this time. I can’t afford for a staff member to go with me to the entire event even with my one-on-one being covered by the care facility. After all, I have one-on-one only part of the day and would need to pay like €45 an hour for individual support for the rest of the day. I might go on my own after all, or I might skip the event, like I skipped the online regional meeting today. I was seriously planning on going to that one, but just couldn’t get myself to do it after all.

If we were having coffee, lastly I’d proudly announce that I’m going to be an aunt again in May. I’m pretty sure my sister is fine with me sharing this on my blog now that she’s past three months and all tests so far are fine. My sister’s other child, my niece, is also doing well. I shared a few months back that she was diagnosed with hip dysplasia. She had surgery in September and is currently wearing some type of cast. We are all hopeful that once this will be removed in a month or so and once she’s relearned to walk after that, she’ll be completely fine.

How have you been?

Thieves!

Posted on by Astrid

When I was little, my parents would store their sweets (usually licorice but sometimes other sweets too) on a shelf just within my and my sister’s reach in their pantry. I’m pretty sure they’d tried putting them in higher places but we’d just climb up stairs or other furniture to reach them.

Invariably, on Saturday and Sunday mornings, when my parents slept in, I’d lead my sister to the pantry and we’d steal some sweets. Yes, I am pretty sure I took the lead.

I obviously thought they were unaware. That is, until one day when I was five and had just learned to read. There it was, on the sweets shelf, a paper that read “BOEVEN” in large print. This is Dutch for “crooks” or “thieves”. My parents never actually confronted us about grabbing their candy except on this one playful occasion.

In reality though, I still wasn’t truly aware that my parents knew. In fact, I remember one day when I was about fifteen, my parents had left like eight hamburgers on a plate in the kitchen and I sneaked into it to eat one at a time. My parents never confronted me and it wasn’t until a few years ago that I realized they must’ve known. That is when the shame at having eaten this many hamburgers caught up with me.

This post was written for Friday Writings, for which the optional prompt this week is food. It is a an autobiographical piece.

Too Many Toys

Posted on by Astrid

Today’s topic for Throwback Thursday is toys and pastimes. The first question Maggie asks in her post is: “Did you have a lot of toys?” The short answer would be that yes, I was privileged to have quite many toys, but I must say I wasn’t so spoiled that I always got the latest trendy toy.

I probably shared this story before, but I played with toys quite a lot until I was at least eleven. By that time, my parents and teachers were looking into options for secondary schools and their opinions couldn’t have been any different: while my parents wanted me to go to mainstream grammar school, my teachers felt special education at their low-level secondary school for the blind, preferably residential, was in my best interest. My mother one day took me for a “mother-daughter walk” explaining the school’s stance and said that the reason they felt I needed residential special ed, was my behavior. That, in turn, she attributed to my having too many toys. The logic, I never quite understood, but it must’ve been something like my being so spoiled that I somehow felt entitled to display challenging behavior.

She went on to explain that, at the residential school, I would only be allowed one doll and one soft toy. She had given me a Barbie doll for my birthday earlier that summer, but told me she regretted it as soon as she received the school’s report. Needless to say, I always felt weird about playing with dolls from that age on, even though I continued to play with toys and dolls and everything until I was at least fifteen.

Fast forward some ten to fifteen years. When I was in my mid-twenties and diagnosed with dissociative identity disorder, I felt it might help my littles (child alters) if we had toys again. I first bought a box of old Barbies for €70 on a marketplace site. That wasn’t a wise decision as, though the box did arrive, the Barbie dolls were in such bad condition I eventually threw them away. I then decided to buy a couple of new ones at a toy store, but the littles hardly played with them. They prefer soft toys.

Speaking of which, one of Maggie’s questions is whether you still have any toys from your childhood. I don’t, as they’re probably all at my parents’. However, I do still have my stuffed whale Wally, whom I got when I left the NICU at three-months-old. I still sometimes sleep with it.

Wally

Did you have many toys growing up?

#IWSG: A Good Enough Writing Month?

Posted on by Astrid

IWSG

It’s Wednesday again. Specifically, it’s the first Wednesday of the month and this means it’s time for the Insecure Writer’s Support Group (#IWSG) to meet. Last month, I set myself a single goal for the month, which was to publish a blog post each day for the month of October. Originally, I planned to be participating in the 31-day writing challenge too, which is prompt-based, but I quickly gave up on that. I also didn’t set myself a goal of broadening my writing horizons in any specific way. I just wanted to hit that “Publish” button everyday for 31 days. And I didn’t reach that goal.

For this reason, I’m not sure how I feel about my writing over the past month. I mean, I know when I said in my September IWSG post that having published 21 posts in August made it an “okay” month, people responded that they felt this was a huge achievement. I know at one point I struggled to publish one blog post a week too. But I want to keep challenging myself. Then again, maybe I’ve reached my potential.

So, in keeping with yesterday’s post, I’m going to say this past month was good enough with respect to my writing. Not perfect – far from it. But it was good enough.

Now on to this month’s optional question. This month, the question is: what’s harder to do: coming up with your book title or writing the blurb? Now I must say I haven’t attempted to write books since my teens and had no idea authors had to come up with the blurb themselves. I’ve tried writing book blurbs and titles before even writing a single chapter – sort of like pitching a movie idea to Hollywood or whatever.

I honestly didn’t find coming up with titles particularly hard when I still wrote short stories or book manuscripts. That being said, my one published piece – yes, the one I got published in 2015 – is untitled. I also struggle sometimes with coming up with original titles for my blog posts. I mean, for memes like #WeekendCoffeeShare, I’ve gotten used to going with a predetermined format. With other diary-style posts though, I really struggle. And it doesn’t help that I have a weird idea that no two blog posts on my blog can ever have the exact same title.

How was your writing month?

A Good Enough Tuesday

Posted on by Astrid

Today is November 2. It’s a Tuesday. A good enough Tuesday, mind you. I didn’t dwell too much on it being the anniversary of my crisis in 2007.

I didn’t really get stressed out about the prime minister delivering another press conference, one in which he’d be announcing new COVID-related restrictions, either. If I’m correct, the press conference is happening right now or has just finished. When I passed by the living room, where the television is, I heard the prime minister say something about “strongly recommending” us to social distance again. Well, whatever. If it’s just a “strong recommendation”, it’s a suggestion, so no-one will do it. Masks are similarly “strongly recommended”.

I didn’t do too much today. Had my blood pressure taken this morning, which was within the normal range (112 over 77) even though I had already been up for a bit. I normally ask that staff check my blood pressure first thing in the morning, because it’s usually up a little when I’ve been active. Not this time though.

I also went to Action, a budget store, to buy some Christmas decorations. I won’t be putting them up till early December, but I wanted to be early buying them to make sure I still had a wide selection to choose from.

I have been wanting to craft too, but that will have to wait till tomorrow. After all, then one of my more creative one-on-one staff will be there for my day activities shift. I will finish the polymer clay owl I’ve been working on.

I did struggle a bit with attachment issues and emotional flashbacks today, but both were manageable. Overall, like I said, it was a good enough day. And that’s totally okay.

Appreciating the Five Senses

Posted on by Astrid

In Journaling with Lisa Shea, Lisa asks in one of her journaling prompts on gratitude to name our favorite sense and describe in detail what we appreciate about it. I couldn’t possibly pick one sense, so instead, I’m going to describe what I appreciate about each of my five senses. Yes, five, since I am including sight. Here goes.

Sight

First of all, I obviously appreciate the fact that I could once see colors. I am no longer able to see those, but thanks to my sight and my imagination, I am still able to perceive them synesthetically in my mind’s eye.

I also still appreciate the tiny bit of light perception I still have left. Thanks to it, I can see the sunshine, though I can no longer perceive the beauty of a sunrise or sunset.

Hearing

I appreciate my sense of hearing, because it allows me to listen to music. I love all kinds of music, from upbeat songs to dance to, to quiet instrumentals.

My hearing also allows me to hear the sounds of nature, both in real life and as soundscapes on my phone. I particularly love water sounds, such as streams and waves (not rain!), as well as birdsong.

Touch

I’ve covered most of the reasons I appreciate my sense of touch when I wrote about my hands. However, other than my hands, I also love the sense of touch on the rest of my body. I am a true lover of deep pressure, which is why I have a weighted blanket.

I realize now I should’ve included a separate heading for the vestibular sense. However, it is mostly the sense of touch I appreciate about it when I am on a swing or waterbed or the like.

Smell

Well, do I really need to explain? I’m going to mention essential oils of course! When another blogger asked us which sense we’d let go of if we had to choose one, after taste (which I’ll get to in a bit), most people said smell, but I said hearing. After all, I really can’t imagine having to let go of my beloved essential oil scents.

Taste

The reason most people chose taste to let go of first, is that in essence what we perceive as taste is mostly smell. However, for the sake of this post, I am going to assume that my food tasting is an actual sense of its own. I really appreciate it, though to be fair I’m more of a food texture lover. In terms of both taste and texture, I am undersensitive, in that I need a lot of stimulation to feel satisfied. This is one reason I can’t stand mash. But I love tasting good, spicy food.

What do you appreciate most about your senses?

Linking up with #LifeThisWeek.

Reclaiming November

Posted on by Astrid

Tomorrow is November 1. November is the hardest month of the year, since it is the month in which I ended in crisis in 2007.

Thirteen years later, it was also the month in which I finally broke down and admitted I needed more support than just the care facility’s group home support. On November 8 of last year, I broke down when a staff (the same staff who is now my assigned home staff) asked me to either calm down or go to my room when I was acting irritated at the other clients’ noises. My reaction wasn’t pretty: I hit the staff, screamed I hated her and cried out that indeed, as I’d been saying all along, if I showed who I truly was, she’d abandon me. She didn’t.

During the days that followed, I experienced significant dysregulation, including some near-psychotic symptoms and a lot of sadness. One day, I was crying my eyes out in my room when another staff came in and said she was going to spend her entire two-hour shift with me. We talked and she asked me whether I’d ever heard of one-on-one support. I had, but asked her to elaborate anyway. She did and asked me whether I wanted that. “Yes,” I said. The next day, the staff I’d hit and my then assigned home staff made the paperwork in order, because I had to sign a letter to the manager formally asking for more support. By mid-November, the wheels were set in motion for me to get one-on-one support and my one-on-one was pretty soon effectively started.

Now, as we’re approaching another November, I’m reclaiming the month. I don’t want this to be the month I landed in crisis so many years ago for the rest of my life. Instead, I want it to be the month I chose to get the support I need. I am choosing to stand up for myself, not just because crisis states force me, but because I have a right to do so.

Joining My Vivid Blog’s prompt: “Tomorrow”.

#WeekendCoffeeShare (October 30, 2021)

Posted on by Astrid

Hi everyone. It’s almost 8PM here so I already had my last cup of coffee. Still, I’m joining #WeekendCoffeeShare. Or Weekend Soft Drink Share for me maybe, although I didn’t have a soft drink this evening either. Instead, I decided to have water with my chips. We have Pringles, the original flavor, so if you’d like some, here you go. Let’s have a drink and a snack and let’s catch up.

If we were having coffee, I’d share that, like I said yesterday, the weather was good most of the week. Partly cloudy, partly sunny with maximum temperatures between 13°C and even a rare 18°C on Thursday. Today though, it was raining most of the day. By early evening though, the rain stopped for a bit.

If we were having coffee, I’d tell you that, yesterday, I got in over 14K steps thanks to the great weather. Today, I only managed about 6K steps, but I did get in over 250 steps an hour during seven out of the nine hours between 9AM and 6PM. I consider that quite an achievement!

If we were having coffee, I would ask you all to pray for wisdom for both me and my GP with respect to our upcoming appointment regarding my abdominal discomfort. Like I said yesterday, I am grateful my X-ray was normal, but my discomfort is all but gone.

If we were having coffee, I would share that I ended up not pursuing the issue I mentioned yesterday with the €90 software I bought via PayPal from some shady vendor. I did reach the vendor, but he claimed the problem I was experiencing wasn’t on their side, so there’s no way I’ll get my money back. Oh well, I hadn’t had my hopes up too high.

If we were having coffee, I’d share that I finally did start crafting again. The project my staff saw that she brought the supplies in for today, was a polymer clay owl crafted around a metal ring. She also brought a finished owl she’d borrowed from the storekeeper who had inspired her, so that I had an idea what it should look like. It looked very different from how I’d expected it to look. I started working on the project today.

If we were having coffee, lastly I would tell you that my assigned staff, the one who was on sick leave but is slowly recovering, came to the care home for a few hours again today. Remember how I said a few weeks ago that I worried that I caused her burnout by sucking up her energy? Well, she went out of her way to reassure me that I didn’t make her sick.

She also cooked a meal for dinner with another client. It was a potato, leek and mince casserole. At first, I wasn’t sure I’d like it, but I did.

How have you been?

Gratitude List (October 29, 2021) #TToT

Posted on by Astrid

Hi everyone on this Friday evening. I’m doing a gratitude list again today. As usual, I’m joining Ten Things of Thankful (#TToT). Here goes.

1. I am grateful my abdominal X-ray came back all normal. There’s no constipation or excess gas. Of course, this does mean we still don’t have answers as to what is causing my abdominal discomfort and how to deal with it. I have another appt with the GP to discuss further steps.

2. I am grateful my staff, the one who was on sick leave, is slowly returning to work. She came by for a quick visit yesterday.

3. I am grateful for nice weather. Most of the week, the temperature’s been above-average for this time of year, with today it going as high as 17°C. It’s been pretty clear and sunny with no rain too. The weekend is supposed to be different, but oh well, that’s okay.

4. I am grateful for interesting conversations. I’ve been exploring the enneagram again and engaged both my husband and several staff in discussions about it. I got one staff to take a test and, assuming the test typed her right, so did I.

5. I am grateful my creativity seems to slowly be returning. I’m not yet actually creating anything, but I’m exploring polymer clay again. One of my staff is going to bring me some supplies for creating something she saw online or in a book tomorrow and I’m really looking forward to it.

6. I am grateful I had the guts to finally press the “report a problem” button on one of my most recent PayPal purchases. I spent €90 on what looks in theory like pretty amazing software. Turns out though that the license information I was given doesn’t work. I tried to contact the vendor via their website but got an “undelivered” E-mail response. I saw that their PayPal contact info was different, so before proceeding to actually report the problem to PayPal, I decided to try one more time to contact them via that E-mail address. Fingers crossed this will work.

7. I am grateful for yet more newly-discovered essential oil blends. I still haven’t bought more oils in part due to said €90 I might’ve thrown down the drain, but I love learning new ways I can use the oils I do have on hand. I currently have a blend of cinnamon, ginger and ylang ylang in my diffuser.

8. I am grateful for salad again. My day activities staff and I made this for lunch (well, she did the actual making) on Wednesday and there was still some left on Thursday.

9. I am grateful for all the sensory equipment I have right here in my room. On a Messenger chat, we were discussing ways to cope with anxiety and I mentioned my essential oil diffuser, weighted blanket and music pillow. These things make me so privileged.

10. I am grateful I am safe in the care facility. I find it hard to say this, but it’s true.

What are you grateful for?