#WeekendCoffeeShare (April 2, 2022)

Posted on by Astrid

Hi everyone on this cold Saturday evening. I am joining #WeekendCoffeeShare today. I’m afraid I just have water or maybe the staff has put some soft drinks in the fridge by now. My favorite soft drink, Dubbelfrisss, wasn’t cold when I had my evening drink about an hour ago. Anyway, let’s have a chat.

If we were having coffee, I’d tell you that I finally have been crafting again today after a week of just watching crafty videos and doing nothing creative at all. That is, I’ve been blogging, which counts too, of course, but I haven’t touched my polymer clay or jewelry-making supplies or macrame cords or anything.

Today, I finally did a couple of pieces for the mobile for the baby my sister is expecting. I also finished the polymer clay hedgehog I’d started on about a month ago. At first, I was disappointed, because I’d used up all of a particular color for its body and now it was nowhere to be found, so I couldn’t do the ears in the same color. Turns out real hedgehogs also have slightly differently colored ears than their bodies. Besides, I never really meant to be doing a fully realistic sculpture anyway (I can’t).

If we were having coffee, I’d share that the rest of the week was quite meh. I’ve been having tons of plans in my head, but no ability to actually put them into action. Today, I also experienced a ton of flashbacks and internal chaos. Seriously, the discrepancy between my intellectual ability and my emotional immaturity is really getting at me. I find that I can intellectually think of a lot of things that emotionally I cannot handle at all. I’m not sure if this makes sense.

If we were having coffee, I’d tell you that I may want to research an autism support method by Colette de Bruin. My assigned home support staff pointed it out to me and said she’s pretty much using the method on me already, but I may benefit from learning about it myself.

If we were having coffee, I’d share that I am very happy with the latest iOS update. I finally was able to do some reading again on my iPhone yesterday, since the update fixed a bug that caused my Braille display to become pretty unresponsive. I usually read with just my Braille display, as I don’t like VoiceOver’s synthetic speech for that.

If we were having coffee, lastly I’d tell you that I have a quiet weekend, because my husband isn’t coming over and I have no other plans. Next week though is going to be busy, especially the weekend. I am going to the nationwide cerebral palsy day with my mother-in-law. I will be attending a workshop on aging with CP in the morning, which I am really looking forward to. In the afternoon, I’ll be attending a yoga class. I may not be able to write a coffee share post then, especially since I’m also supposed to stay up-to-date with the #AtoZChallenge. I’ll be certain to write about it though.

How have you been?

Yet Another Goodbye

Posted on by Astrid

One of Mama Kat’s Writer’s Workshop prompts this week is to show your readers your most recent photo and to let it inspire your blog post. This might not be an easy prompt for other people to be doing without cheating, but I rarely take random pictures. As such, I do have a clear story behind my most recent picture.

This picture shows a necklace I made this morning for a staff who’s leaving. Yes, yet another staff is leaving my care home. It’s the fifth or so within the past four or five months. At least as many people have looked around at my home to see if they might want to work here, but none do. Thankfully though, my care home has managed to attract a few new staff from internships and the other care homes that are part of my care facility. Overall, it all still makes me intensely sad.

This staff who’s leaving now had only been working here for six months, but I did kind of trust her already. Some staff say this means I can build trust in new staff too, seeing that I could develop a kind of attachment to this staff within six months. The reality is though, I don’t think I want to build trust in another staff, knowing that the reality of the current employment climate is they can leave when they feel like it and no-one can guarantee me they won’t leave within a certain timeframe. After all, originally this staff planned on working here for at least several years too.

I did feel kind of like I had to make something for this staff, so I made this necklace. The round-looking beads are actually hearts. The story behind the beads is also interesting: another staff found them while clearing out a fellow client’s cupboard and had no idea whose they are. They most likely aren’t hers or at least she isn’t able to use them because the holes in the beads are far too narrow. Ultimately, the staff decided to give them to me. I at one point thought I might be able to use them for macrame, but the holes are far too narrow for that too.

The staff who is leaving is the staff who got me Indonesian takeaway food, the best Asian food I’d ever had, last week. She said that, on Monday, when it’s her last shift here, she’s bringing me another meal. I think that’s really kind of her.

Mama’s Losin’ It

#WeekendCoffeeShare (March 18, 2022)

Posted on by Astrid

Hi everyone. I’ve been neglecting my blog a bit as other creative passions take over. I really need to remedy that. Today, I’m once again late writing a post, as it’s nearly 9PM. At least I’m writing something. I’m joining in with #WeekendCoffeeShare. As you can imagine, it’s rather late for coffee for my liking, but I bet we still got soft drinks in the fridge. I allowed myself a Dubbelfrisss this evening. I normally skip them, as they’re not 100% sugar-free and I’d rather have an extra piece of candy than this. Today though, I gave myself permission for both some licorice and the Dubbelfrisss. Anyway, Dubbelfrisss is only slightly carbonated, but we might have coke too or even alcohol-free beer (alcohol isn’t allowed here). Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that I had a good appt with my psychiatric nurse practitioner on Monday. Last week Friday, I had had a panic attack. It was related to the war in Ukraine and fear of what might happen, which I realized at my appt is different from a flashback to a traumatic experience I really did go through in the past. Not that it really mattered in that moment, as the feeling was just as overwhelming.

I also linked the panic attack to the staff who had triggered me and, since this staff is new, I felt really anxious about the whole situation of allowing him to work with me one-on-one. Thankfully, once it got to this point, we were able to talk through the issue and let it go that way. And indeed, this staff’s first time working one-on-one with me went pretty well if you ask me.

If we were having coffee, I’d tell you that, on Wednesday, I cooked the best chicken pilav! I did most of the cutting of the vegetables myself (the chicken was pre-cut) and also most of the cooking. We had my favorite rice with the pilav too!

Chicken Pilav

If we were having coffee, I’d also tell you that I’ve been taking more flower photos. I finally started actually snapping the pictures myself most of the time rather than letting my staff do most of the actual photographing. Of course, my staff still have to tell me where to point the camera. It’s cool that I can make use of my knowledge of photography, gathered from photography blogs of course, to help the staff figure out ways to help me take better pictures.

I’ve also been running a few of my photos through a plant identification app called PictureThis. The one below is a Chaenomeles Japonica.

Chaenomeles Japonica

If we were having coffee, lastly I’d tell you that yesterday, I decided semi-impulsively to go to Action to try to find macrame cords. Obviously, experienced macrame artists would say I should get high-quality cords, but I’m just trying to get a hang on the knots. The lark’s head knot, square knot and spiral knot are relatively doable after some practice, but I keep getting stuck on the half hitch knot (and don’t even get me started on its variations). I mean, when I saw a beginner tutorial with pictures, it sounded a lot easier than I thought it should be. That tutorial was doing the half hitch knot with just two cords, which all other tutorials show isn’t possible. I’m pretty sure I spent some significant time tying just plain ordinary “old bitch knots”, as my husband would likely call them.

With respect to my shopping spree at Action, I also ended up buying a lot of felt stickers that I now don’t know what to use them for, a new organizing box that I may not even be able to use yet, deodorant, butterscotch candies and probably more. I spent less than €10, but that’s also because my staff paid for the macrame cord and the felt stickers from day center budget.

How have you been?

A Sunday With the Theme of Self-Esteem

Posted on by Astrid

Hi all. The past 24 hours have truly been a mixed bag of emotions. I started obsessing over wanting to start another new craft. Yes, another! Somehow, I decided on macrame and got all obsessed about learning its techniques before even having any cords. Then I decided to ask in a Facebook group whether you need to be coordinated in both hands in order to be able to do macrame. The first commenter basically said not only that, but you also most likely won’t be able to feel your way around the knots.

This was late last night, past midnight actually. I went to bed feeling awful about myself. After all, the reason I wanted a new craft is not that there’s nothing more to learn about polymer clay, but that I’m somehow convinced that I’ve reached my full potential.

By morning, I found that other people had been more encouraging of me trying macrame or even card making. You know, remember I’d said I tried that back in 2013? These people said so what if my work doesn’t look good, if I enjoyed the craft. That’s not entirely my kind of attitude, since I do want to be able to share what I make here or on my personal Facebook page at least without feeling like I have to be ashamed of myself.

I have been trying to work on some polymer clay projects in progress again later today by sanding some beads and charms. It felt kind of okay. I also watched some more YouTube videos on polymer clay, but they made me feel like I’ll be taking forever to understand the concepts. Then again, this is even more the case if I start another craft entirely. Guess I’ll just stick with polymer clay and try to be more patient with myself.

As a side note, one person did say that, if I can tie my shoelaces, I can do macrame. That kind of discouraged me at first, since I can’t tie my shoes. Make that couldn’t. At least, after three tries, I was successful at tying my shoelaces while my shoes were in front of me on the table. Then I tried several more times, more or less successfully. I don’t think I want to really be able to tie my own shoes, but it was an interesting boost to my self-confidence.

#WeekendCoffeeShare (March 11, 2022)

Posted on by Astrid

Hi everyone on this late Friday evening. It’s too late for coffee for my liking, but I’m joining #WeekendCoffeeShare regardless. I’m pretty sure there are still some soft drinks in the fridge, so if you’d like a drink, you can have one of those. Or you can just have water. Let’s have a drink and let’s catch up.

If we were having coffee, I’d ask you about your weather. The weather here has been truly beautiful all week. Yesterday, the temperature rose to about 16°C. Today, it was slightly cooler, but still about 14°C and mostly sunny. Over the weekend, we’re supposed to get slightly cloudier weather and we may get rain on Monday and Tuesday. Oh well, I guess that’s a welcome change for the farmers.

If we were having coffee, I’d tell you all about the new creative projects I’ve been busy with lately. First, early in the week, I finished yet another polymer clay unicorn. This one, for those who can’t see, is teal with purple legs, tail, mane and ears. The purple color is the color I’d been mixing myself a few weeks ago. Its horn is Pacific blue and the unicorn stands on a heart-shaped surface of the same color as its horn.

I’ve also been creating a mobile for my sister’s new baby. The baby isn’t due until May, but I don’t want to put myself under pressure.

Finally, I’ve had a bunch of ideas in my head. I got a lot of rings similar to the one I put my polymer clay owl on. One is for the mobile, but I want to use one for an Easter bunny too and maybe I can think of others too. I also thought of combining a slice of wood from a tree with polymer clay and my staff gave me a slice. I really look forward to crafting with all of this material!

If we were having coffee, I’d tell you that I’ve also been loving experimenting with photography and photo editing. Of course, my staff does most of the work in this case, but I tell them what I want them to do and I suggest ways of improving the pictures based on the tips I get on photography blogs. For example, when I took Wednesday’s flower pic, I didn’t realize it might look burned out due to excess sunlight. Then when I went out to take some more pictures on Thursday, I made sure to take them later in the day and to make shade with my body while my staff took the picture.

At the suggestion of one of my staff, I also downloaded an app that is really cool for collage making and such.

If we were having coffee, I’d share that I had a haircut this morning. I had my hair cut in layers, so that my wavy hair comes out even more than it normally does.

If we were having coffee, lastly I’d tell you that the dietitian came by this morning too. We did an exercise in mindful eating. It was really quite interesting. We got a slice of a tangerine and had to listen to a story and, midway through, we had to look at the slice (my staff at least) and describe it without saying what it was. Then we could feel it, smell it, lay it on our lips and finally take a tiny bite, all the while describing the sensations without mentioning what we were eating. We then chewed onto the tiny bite as long as we could and then, once we’d swallowed it, had to wait until the taste disappeared. The idea is that, if I want a treat, such as a piece of licorice, I can do the same (well, except for taking tiny bites) and not take another one until the taste has truly left my mouth. I have been trying with licorice, but not been successful yet.

How have you been?

A Walk on Wednesday

Posted on by Astrid

Hi all on this beautiful Wednesday. It was sunny all day and the temperature reached 13°C in the afternoon. For this reason, I decided to go for a nice walk again. I’m still not fully recovered from COVID, but I was able to walk for about 15 minutes without feeling very tired. I really enjoyed my walk!

I took my phone with me on my walk, so that I could hopefully snap a picture of some flowers in bloom. I was really surprised when my staff said that the daffodils were in bloom in a garden we passed by. I mean, I’d been of the impression that they don’t blossom until sometime in mid-April at the earliest. I did feel a little self-conscious, taking a picture of some random person’s flowers, but oh well, we weren’t taking the flowers away.

Like I may’ve said before, VoiceOver Recognition no longer automatically describes images when I tap on them. However, contrary to what I used to think, image recognition isn’t completely gone; it was just moved to being its own separate function. This does allow for more detail to be added into the descriptions. In this case, VoiceOver clearly recognized that there are daffodils in this picture both on the lower right and lower left side of the image. I love this!

I’m linking this post with Cee’s Flower of the Day.

#WeekendCoffeeShare (March 5, 2022)

Posted on by Astrid

Hi everyone on this beautiful Saturday afternoon. I’m joining #WeekendCoffeeShare again today. Sorry I missed out on it last week. I just finished my afternoon coffee and I’m pretty sure there’s still some left, so let’s have a cup of coffee (or tea) and let’s catch up.

If we were having coffee, firstly I’d share with the #WeekendCoffeeShare community that I caught COVID after all. Thankfully, I’m out of quarantine as of last Tuesday. I’m still horribly exhausted and easily out of breath. Things are slowly improving though. I mean, today I had an easier time of it walking around the day center than I did on Thursday.

If we were having coffee, I’d tell you that the weather here is truly beautiful. It’s cold. Okay, when will I stop saying that? Probably when it’s 25°C. Seriously though, in the morning, the temperature can easily get below zero. All that being said, it’s sunny and it doesn’t even feel as cold as it used to in the middle of winter when it was as cold as it is now.

If we were having coffee, I’d say that I’m looking forward to sitting on my balcony again. Unfortunately, the door won’t open. We discovered this yesterday when some men came to repair the blinds and they wanted to go see them from outside. The door to my balcony is locked, but the staff do have a key. It wouldn’t give way though. I’m hoping it can be repaired soon, because, while it is too cold to sit on my balcony right now, it won’t be for long.

If we were having coffee, I’d share that quarantine meant I haven’t been as crafty as I would’ve wanted to be, but I made up for it over this week. I haven’t finished most of the things I’ve created. However, I did finish one piece of polymer clay work and VoiceOver guessed correctly what it’s supposed to be: a sea shell.

Polymer Clay Shell

I used dolphin gray Fimo for the shell itself and colored it using chalk pastels in dark brown (if I remember correctly) for the hole and an orangey brown for the shell itself. I am so disappointed that my chalk pastel set doesn’t come with a list of what the colors are supposed to be called. I mean, I saw one on the site I purchased it from, but then I can’t pair the names with the actual colors.

If we were having coffee, lastly I’d tell you that I’ll be getting a new one-on-one support staff soon. He’s been orienting a few times already. Because he’s a man, I felt kind of distrustful of him at first. That’s in part my prejudice talking. I’m hopeful it’s going to work out though.

How have you been?

The COVID Chronicles, #2: Just a Bad Cold (In My Case)?

Posted on by Astrid

I didn’t write a blog post yesterday, because I was too tired. Other than that though, COVID seems to be treating me relatively well. On Wednesday and yesterday, I was horribly sneezy and, by yesterday evening, I started coughing and having a sore throat. That seems to be gone now though. I’m still a little sneezy and sniffy, but other than that, I feel okay. It’s still morning, of course, and my symptoms tend to worsen by mid-afternoon and into the evening.

Yesterday afternoon, I was going to have a lie down, but couldn’t really give in to the need for rest. I still have this weird thought, instilled in me since childhood, that, if you have a fever, you’re sick and if you don’t run a fever, you’re not sick. My staff took my temperature yesterday and I didn’t even have a slightly elevated temp.

Of course, I am lucky that I don’t have a fever. My sense of smell and taste are also mostly still normal. Or almost as normal as they would be with an ordinary case of the common cold anyway. Water did taste slightly bitter yesterday, which sucks, since I do of course need to stay hydrated. Now, it’s back to tasting okay. I can even have coffee and enjoy it, something my staff who had COVID recently said took a while for her. Overall, I’m pretty confident that, if I do get enough sleep, I’ll be symptom-free enough to get out of isolation by Monday when the five-day required quarantine is up.

As for my fellow clients, four out of the original five who contracted COVID last week, went back to the day center on Wednesday. The fifth one is still rather poorly. I’m praying he’ll make a speedy recovery too. One client, the one I had the nightmare about earlier, will be out of quarantine tomorrow or so I think. Another is supposed to be quarantining till Monday like me. Two are still negative. I’m praying they’ll stay that way.

The COVID Chronicles, #1: The Two Red Lines on the Reddest Day

Posted on by Astrid

Yesterday was February 22, 2022. In the European way of writing the date, it was a palindrome: 22-02-2022. Not only that, but we won’t get any more twos (or the same numbers at all, for that matter) in a date in our lifetime. The number two is red in my synesthetic perception. How ironic that, on this day, I got the two red lines on my COVID test. Oh well, I got the PCR test, not the self-administered lateral flow test, so no red lines at all, but you get the idea. Yes, you read that right: I’m positive for COVID now.

I had the PCR test at around 11AM. Before then, I was feeling mostly fine. Well, I wasn’t feeling 100%, but I hadn’t since Thursday and my two lateral flow tests had been negative. I trusted those, sort of. Then, I started having teary eyes, but both the staff and I attributed that to the test. I still had a headache, but no more severe than I’d had since Thursday.

By mid-afternoon, I was having trouble not sniffing a lot, but was still in denial. After all, the thought of my staff having to wear PPE, my inability to be in close physical contact and my need for five more days in self-isolation triggered me.

By 4PM, my assigned home staff came on. She had had COVID a week ago and we started joking that she wanted me in the positive camp. By this time, I was truly experiencing significant sniffiness, so if it wasn’t COVID, it certainly was a bad case of the common cold. I also had a bad headache and what I jokingly called COVID brain, ie. an inability to find words (I just had trouble finding the word “find”), etc. I think it’s an actual thing though.

The evening staff came by my room at 9:15PM, but I was too busy to notice she was wearing PPE. I finished what I was doing and turned to face her. She told me calmly that, sadly, I have COVID.

I didn’t sleep much at all last night despite taking paracetamol before bedtime. In fact, I awoke at 3:15AM and couldn’t get back to sleep. Despite this, I’m not feeling very fatigued as of yet. As such, I consider myself really lucky that I seem to be having a mild case of the virus.

An Interesting Nightmare

Posted on by Astrid

I had an interesting nightmare last night. It wasn’t even really a nightmare in the traditional sense of the word. I mean, no violence or monsters were involved. Then again, most of my nightmares don’t involve that kind of scenario.

In my dream, the last client to contract COVID in our care home, came into my room and went straight to my bed while I was lying in it. I tried to crawl to one end to keep my distance, because of course getting out of bed would mean getting stuck touching her. I eventually managed to press the call button, but no-one came. Finally, this client left, but I was utterly distressed and tried to press the call button again, but to no avail. I then went out of my room and to the living room, even though I’d decided to stay in my room while more than half of my fellow clients are positive for COVID. Then, one of the care assistants, a woman I’ve only met briefly once or twice, came to my room to have breakfast with me (apparently it was morning), but I asked for the morning staff. The care assistant explained that the staff was busy and she was having breakfast with me instead. Then I woke up.

The nightmarish aspect of the dream was, in part, the fact that a client with COVID came into my room and my bed. This to me signifies how scared I am of contracting the virus, even though I keep saying there’s no surefire way to prevent it anyway and I’m not scared of getting very ill. I am, however, quite honestly, pretty scared of the consequences of room-based self-isolation should I be positive. I mean, I’m now basically in room-based self-isolation too, but my staff don’t have to wear PPE other than surgical masks and they can still be within a five-feet distance. I’m not sure about holding my hand or holding me in an embrace, as I’ve been cautious and haven’t asked, but I know from the times I had to self-isolate with suspected COVID last year and in 2020 that those are big no-nos should I be positive. At least, my staff wouldn’t even get within a five-feet distance even while wearing PPE then.

Another aspect that was nightmarish to me, was the fact that the unfamiliar care assistant ended up helping me rather than my trusted staff. This to me signifies how I’m experiencing attachment to this staff, and she wasn’t even my assigned home support worker or another of my favorite staff. I guess this counts as a win!

Lastly, a nightmare aspect was the fact that the care assistant told me that the staff was busy. I am forever frustrated with staff being overworked and busy and at the same time, I’m trying to accommodate them as much as I can. For example, yesterday the staff (same one who was supposed to come in my dream) forgot to come by my room at 3:15PM when she had finished handover. At 3:45, fifteen minutes before my one-on-one time would start, I’d had enough and pressed the call button. I was really frustrated, thinking that I’d be left to my own resources now that over half of the clients have COVID. That would make sense, rationally speaking, since I’m not sick or whatever. Not that the other clients are very sick, but oh well. As it turned out, the staff had forgotten to show up because she hardly ever works late shifts. This, plus my nightmare, does show how easily I think that I’m being abandoned.

Sharing this post with Scott’s Daily Prompt from last Saturday on the topic of nightmares.