Share Your World (December 29, 2025)

Posted on by Astrid

Hi everyone. I have a lot of thoughts floating through my mind, but none that I can easily type down. To get my fingers started on something, I’m taking part in Share Your World. Here are Di’s final questions for 2025.

1. Do you stay up to toast in the New Year?
Whether I’ll stay up until midnight depends on my mood. I’ll however most certainly not be toasting in the New Year. The staff here leave at 10:30PM as usual and I’m pretty sure the night staff are extremely busy by midnight with all the clients who are afraid of fireworks.

2.  Have you ever kept any New Year Resolutions made in the past?
I doubt it. I used to make extensive lists of New Year’s resolutions as a teen but I’m pretty sure that if I ever kept one, it was by chance. Now I call them hopes to keep the pressure off.

3. Do you have any plans for 2026?
I have hopes, like I said, although I haven’t penned them down yet. No definite plans at all. Oh wait, I’ll most likely continue to attend the monthly local brain injury meet-up, which has its first meeting of 2026 on January 19. I’m also intending to go to at least one real-life meeting for adults who spent time in the NICU and will attend the mild cerebral palsy meet-up if I don’t contract COVID again.

4. What was the highlight/s of 2025 for you.
There weren’t any high highs this year, but I did have some good moments, such as my cooking activities.

Gratitude

Di always includes an optional gratitude section at the end of her Share Your World posts. For mine, I’m going to include a favorite affirmation from the Gratitude app.

I like how this affirmation compares human life to nature (or rather, the rest of nature). Indeed, I am allowed to go through seasons and each of the seasons prepares me for what’s ahead.

#WeekendCoffeeShare (December 27, 2025)

Posted on by Astrid

Hi all! Can you believe 2025 will be over with in less than a week? I honestly can’t. I’m joining #WeekendCoffeeShare again. It’s past 8:30PM, so no more coffee for me. My favorite soft drink wasn’t cold, so I had water with my evening medication today. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. We had a frigid Christmas with a daytime high of -1°C. Today, the daytime high is 4°C. That’s still below-average for this time of year though and it’s still freezing at night.

If we were having coffee, next I’d tell you I finally let go of my movement streak on my Apple Watch. That is, like I said before, I was cheating all the while because I’d paused my rings when sick last September. On Christmas day, it was freezing cold, so I didn’t care for a walk. I could’ve cheated again, but didn’t.

If we were having coffee, next I’d share about my Christmas. I was at my and my wife’s house for the night. Christmas is often stressful with family issues and forced cheerfulness, but this year it was genuinely okay. Then again it was just the two of us (plus my wife’s cat, who was in hiding from me almost all the time).

The best part was my Bastogne cookie dessert. It was my idea to make this and I helped crumble the cookies and lended my wife my hand mixer. The recipe though was for eight servings. We made half of that, but of course it’s still a lot for just two people. The rest of the meal was good too.

If we were having coffee, then I’d tell you that I decided to give the staff who’s retiring next week her polymer clay “cheer up frog” on Sunday rather than wait for her last shift. She was very pleased with it.

If we were having coffee, finally I’d share that, yesterday, I decided to download yet another self-care app on my iPhone. I already used to have a ton of them, like I’ve had a ton of different apps for all kinds of things over the years. This one, I downloaded because I read on another blog about affirmations and wanted to do these again. The app this blogger uses, Labyrinthos, isn’t all that accessible with VoiceOver and its paid plan is a little outside of my budget. Besides, much as I love to dabble in tarot (which this app is mainly about), the cards are still mainly visual. This got me looking for other apps for affirmations and gratitude etc. The app I downloaded is simply called Gratitude. So far, I really like it. I’m really hoping to make positivity a bigger part of my life in 2026.

I Don’t Owe Anyone a Grateful Heart

Posted on by Astrid

Hi all. Today’s prompt for Reena’s Xploration Challenge is quite fitting. Reena asks us to ponder the paradox of gratitude and resistance.

Sometimes, by being grateful, we can bring about change. I am reminded of a story in one of the Chicken Soup for the Soul books in which nurses on one floor were irritated with another floor’s nurses for their constant negativity. Instead of fueling the conflict by becoming negative themselves, the nurses wrote a lengthy gratitude letter to their colleagues. I am not sure whether this was exactly what the story was about, but this was at least the message I took from it. The fact that the one group of nurses focused on the positive rather than giving in to the other group’s toxicity, turned the situation around for the better.

At other times though, particularly when there’s a power difference between two people or groups of people, gratitude becomes passive resignation. In this case, while it can be helpful in the short term to the oppressed person to keep a positive outlook, if the oppressor takes gratitude as acceptance, in the long run nothing will change.

I will give an example from my own life. Regular readers of my blog know that I’ve been accused of having a negative attitude by many people in positions of power, such as my care staff and treatment providers in various care settings. An example is being told I ought to be happy that anybody wants to work here at all. Well, no. While it’d be easier for me in the short term if I could just accept the umpteenth random stranger for my one-on-one care, in the long run it’d mean I’d always get assigned the random temp worker because regular staff would rather support the others and chill out with other regular staff while they can. Besides, even if it’d cost me less effort to resign than it costs me to rebel, I don’t owe my staff a positive attitude. If there’s anyone for whose sake I should have a grateful attitude, it’s myself.

It doesn’t mean I don’t struggle with this whole idea. I feel intense guilt whenever a staff throws some variation of “be happy anyone wants to work here” at me. I am also constantly reminded in my head of my assigned staff at the intensive support home, who was disappointed in me for never having a perfect day even when they’d followed my day schedule completely and had always assigned me regular staff. Which, for the record, never happened.

I, for clarity’s sake, don’t think violent resistance is the answer. When I have a meltdown over some rule I disagree with, being aggressive will always end in me being restrained. However, there’s a whole world between aggression and passivity. And sometimes, unfortunately, the people in positions of power are so caught up in their reality of being the ones to decide, that they (either willfully or not) ignore my less obvious attempts at resistance.

For example, last week I was trying to resist the “one chance” rule about orienting new staff. I tried going along with what the staff wanted, but this only led to further abuses of the rule. I tried talking sense into the staff, but this didn’t work either. Finally, on Saturday, I had the most massive meltdown. I am not proud of my behavior at all. In fact, I really wish I could’ve solved the issue without being aggressive, if for no other reason, then because the staff are far stronger than me and I ended up being restrained. In the end, I thankfully finally got a meeting with the behavior specialist on Monday and the rule got ditched. Now all I can hope for is that my main message, that I have to consent to every individual rule or agreement affecting me unless the behavior specialist uses the Care and Force Act, got through to everyone.

Gratitude List (August 24, 2025) #TToT

Posted on by Astrid

Hi everyone. It’s been a while since I last joined Ten Things of Thankful (#TToT), but today, I feel like it. Here are my gratefuls for the past week.

1. Baking a cake. Earlier this week, I decided to use up the second of three cake mixes I’d gotten from my parents for my birthday. It was raspberry cake. Unfortunately, I found out today that the third mix had an expiration date in April, so I threw it away. Now I do think the other mixes probably had their expiration dates at the same time, as they came in one package, but oh well.

2. A long bike ride. On Wednesday, the staff and I rode the side-by-side bike to the nearby town to get groceries, only for me to realize then that I didn’t know what groceries I’d wanted to buy, so we decided to just bike around. It turned out I’ve broken my record for the longest bike ride at 19.3km.

3. The night staff. I’ve been needing their support a few times lately and often feel like a burden. The night staff used to make that feeling worse by telling me to “just try to sleep”. Thankfully, recently they’re telling me that I am not a burden and they’re there for me as much as they are there for everyone else. Even if they don’t fully mean this, it helps me feel more comfortable.

4. The staff having cooked chicken and noodles for us on Wednesday.

5. An institution cafeteria sandwich on Thursday.

6. Green tea. Always, green tea. I’ve been requesting it in the evening more often lately and that’s been feeling good.

7. My having been allowed to play DJ again with the home’s large Bluetooth speaker. I mostly played ABBA songs, but did one MARINA song too, realizing only when it’d started that it was rather explicit. Oh well, most of the residents don’t know English and the few who do, just chuckled at it.

8. Mini candy bars. A fellow resident’s parents brought them yesterday and they are yum! I only found out that they were from Aldi today. If I’d known earlier, I’d have asked my spouse to drive by there on the way from Apeldoorn to the institution so that I could pick up a bag myself.

9. Diarium, a diary app. Recently, there was a discussion on Reddit about journaling and I decided to give this app, which is available on both Windows and iOS, another try. It has a lot fewer features than Day One, but Day One’s web-based interface (there’s no PC app) honestly sucks.

10. The weather. We’ve been having lower temps this week than last week and I’ve had to wear my jeans again and even put on a jacket some of the time. Still, it’s been warm and sunny enough.

#WeekendCoffeeShare (July 5, 2025)

Posted on by Astrid

Hi everyone. I’m once again joining #WeekendCoffeeShare. I just had my last cup of coffee for the day and probably won’t finish this post before I have my evening soft drink, but I might be able to get my staff to prepare me a cup of green tea at around 9PM. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. Oh my, has it been hot! On Tuesday and Wednesday, we had daytime temps of 36°C. The weather has been more bearable later in the week and tomorrow, we’re finally supposed to get rain. We were supposed to get a few thunderstorms on Thursday too, but thankfully not.

If we were having coffee, then I’d tell you that I did manage to meet my movement goal on my Apple Watch each day this week. Not by walking on those hot days, of course. That is, on Wednesday evening I did go for a short walk. On Tuesday, I stayed indoors all day and got my exercise by dancing. I did walk on every other day.

If we were having coffee, I’d share that I talked about exercise with the movement therapist on Wednesday. Next week, she’s going to come up with some exercises that I can do on my fitness mat.

If we were having coffee, then I’d tell you that my best friend and I went out for dinner yesterday at the Thai restaurant we took my parents to for my birthday two years ago. I had chicken with black pepper, garlic and vegetables and of course rice that was enough to feed a family of four. I loved the food, but I did feel pretty overloaded afterwards.

If we were having coffee, next I’d moan about my day schedule. It’s still frustratingly unclear. This got me to have an outburst on Wednesday, because of course it was too hot to go for a walk and the staff assigned to me couldn’t do dice games. It all boils down to the fact that I feel overwhelmed by all the activity options and then I end up doing nothing. I’m really unsure as to how to solve this issue and sometimes I feel like a nagger.

If we were having coffee, finally I’d tell you that, thankfully, I’m still able to appreciate the little things in life. Like the green tea I mentioned above. On Wednesday, I was talking to my best friend, who was having a cup of tea at the time, and this got me thinking that even though it was 9PM, no-one said I couldn’t at least ask for a cup of tea myself. I prefer plain green tea, so I went to the living room and asked the staff for a cup of green tea. She was okay with this, so the next day, when she worked again, I decided to ask her for green tea at 9PM again. I’m seeing this as a treat. Same with my extra cup of coffee this morning when I woke up. Of course, people living independently might take their tea or coffee at the time they wish for it for granted, but I don’t.

Thankful Thursday (May 15, 2025): An Active and Creative Day

Posted on by Astrid

Hi everyone. Today is Thursday. I used to join in with (now angel) Brian’s Thankful Thursday occasionally a long time ago, but mostly pet bloggers joined in there. Recently, I discovered another Thankful Thursday blog hop. I’m joining in with both just because I can. 🙂

Today I had a really productive day in both the physical activity department and the creativity department.

In the morning, I went for a walk on institution grounds. Then, in the afternoon, my staff and I rode the side-by-side bike to the next town, where another staff lives who is currently on leave for family-related reasons. I went there to bring her a polymer cay “(op)kikker” (frog).

The staff invited us in for coffee, which was lovely. She really appreciated my little gift, which in turn made me grateful.

Later, I went for another walk on grounds and, in the evening, I crafted a unicorn out of polymer clay. My staff asked whether it was for yet another staff member, but I think I’m keeping this one myself. 😊

The staff, who had been doing all my support from 1PM on, also asked me whether I want to ride the side-by-side bike again tomorrow. Well, of course! I want to go to the market!

I am intensely grateful for a productive day. Here are some things I especially appreciated about today:


  • Coffee at the staff’s house.

  • Minimal pain even though I was quite physically active.

  • Being able to create again (I’ve been exceptionally crafty lately).

  • Excitement for tomorrow’s visit to the market.

  • And finally, the fact that I figured out how to use emojis on the computer! 🤣

March Memories

Posted on by Astrid

Hi all! Can you believe we’re already halfway through March? I honestly feel that time flies. Today, I want to share some random memories from Marches (is that a word?) gone by.

First, a year ago, I had just recovered from second-degree burns that I sustained in a crisis. Looking back, my life is much better now than it was a year ago, when we were in the midst of a weird idea from the staff that said I had to compensate for every minute I needed support outside of my designated one-on-one hours because of distress. I sort of understand the reasoning, because, at the end of February, I had shared with my behavior specialist and some therapists that, in an ideal world, I’d be able to rely on staff all the time. What I didn’t realize at the time, thanks to all the words about “unsupported time” in my day schedule, is that this is basically already the situation in 24-hour care. Of course, I can’t always expect a staff to show up in no time when I need one, but it isn’t like I’m ever truly supposed to be self-reliant. That’s until that crazy idea about compensating came to be, because, as one of my staff said it, my “unsupported time” was supposedly my structure. Let’s just say I disagree and am so happy that, after a month, the system was abandoned at the end of March again. Now, it’s actually in my day schedule that I can rely on the staff for support when in distress during my times of doing my activities by myself.

Two years ago, I finally had a meeting to discuss my leaving the intensive support home. I’m so very happy I insisted. I remember the intensive support home’s behavior specialist was a bit critical, because, well, I apparently hadn’t left the care facility in Raalte in 2022 completely voluntarily. As it turned out, some staff had been more happy that I’d finally gone than they had admitted. This is somewhat understandable, given that all other clients there had severe to profound intellectual disability and no or minimal challenging behavior.

I can’t believe I’ve been at my current home for eighteen months already. As I share these two snippets, one from 2024 and the other from 2023, I am intensely grateful. I am still struggling at times, but then again I was even at the best of times in Raalte.

Sharing this post with RDP, for which the prompt today is “March”.

Share Your World (March 3, 2025)

Posted on by Astrid

Hi everyone. Today, I’m joining in with Share Your World. I love the gratitude section at the bottom of Di’s original post. In fact, I may use it as a jumping point for another post later. For now though, let’s move on to Di’s questions.

1. Which of the following could you NOT do without?
Automatic washing machine, TV/cable, Microwave oven.
I don’t need any of these just for myself and don’t personally use any, although we have all three in the home. If I had to choose which of these to keep in my care home, it’d be the automatic washing machine. Not because I have to do my own laundry, but because the staff are busy enough with it now that they don’t have to do it by hand.

Life without a TV would be so relaxing, as the TV is blaring all day long in the living room that’s adjacent to my room and with the TV directly attached to the shared wall.

2. Which would be your priority of these:
a warm coat or a comfortable pair of shoes.
Comfortable pair of shoes. Simply because, without the right shoes, I just can’t be outside because it’d mean constantly falling.

3. Would you rather have a hot cup of tea/coffee or hot soup?
Hot coffee all the way! I don’t like the feel of soup in my mouth.

4. If you had the choice rather than necessity/cost effectiveness, would you rather rent a property, buy with a mortgage, or share with family/friends and split the cost?
I have no idea. My spouse and I currently own a house (with a mortgage) and it’s stressful with all that we have to do by ourselves (that is, just my spouse) in terms of renovations.

Then again, our rented house was stressful because we were dependent on the housing corporation. In fact, I’ve had more stressful situations with them than I’d like to share.

Sharing with family/friends would also be quite stressful though, as I can’t get along with my parents or sister.

Let’s just end this by saying I’d stay where I am.

Today’s Small Joys (March 2, 2025)

Posted on by Astrid

Hi everyone. I’m struggling intensely today. I often say that these days are the best for gratitude lists, but I don’t feel capable of doing an entire ten things of thankful. Instead, I’m going to list some small pleasures from today. I’m joining Sunny Sunday.

1. Coffee. My staff brought me an extra cup of coffee when waking me up.

2. Crunchy muesli. I treated myself today.

3. Earning some top commenter achievements on Reddit. Don’t ask me how.

4. Beautiful weather: it was quite sunny and mild with a daytime high of 10°C.

5. A delicious burger at McDonald’s.

6. A hug from my spouse. In fact, the entire visit was good. Having my spouse on my side genuinely helps.

This was easier than I thought. In fact, the E-mail newsletter I got this idea from, suggested listing only one to three things and I made it to six.

Gratitude List (December 29, 2024) #TToT

Posted on by Astrid

Hi everyone. I’m doing a gratitude list again. As usual, I’m linking it up with Ten Things of Thankful. Here goes.

1. A nice Christmas-themed walk around institution grounds on Tuesday. We were able to see lights, listen to a barrel organ playing festive jingles and at the end of the walk, we could do some crafty things like decorate a clementine with cloves and create a paper rose.

2. The fact that the labeling tape I ordered online early in the week, actually arrived on time for my visit to my in-laws on Christmas (where I’d had it delivered) and the tape also fit into my home’s label printer. I as a result was finally able to label my new clay.

3. Fries. I always have to include several food-theemd thankfuls, don’t I? On Tuesday, we had French fries.

4. Seeing my spouse and in-laws on Christmas.

5. Making salad on Boxing Day. A student staff’s mother had made homemade Turkish-style meatballs called köfte.

6. Being able to play DJ at the home’s dance party on Friday. Another student staff had brought his large Bluetooth-enabled speaker and I asked him if I’d be allowed to connect it to my iPhone and be the DJ. That was so cool! At first, I played ABBA like I’d requested the staff do the previous time we had a party. Then I put on a random EDM playlist, but that wasn’t well-received, so I switched to my own personal playlist of Dutch and dialect songs.

7. Getting in lots of exercise minutes today. I took three longer walks.

8. The fact that my support coordinator reassured me that, pending my one-on-one renewal request, things will stay the same for now and no hours will be cut. Officially, my one-on-one needs renewing by January 1 and we haven’t heard anything yet. I’m still struggling with my current hours particularly in the evenings, so I really hope that things won’t get worse. We’ll see.

9. Meeting up with my spouse again yesterday. And looking forward to going to our house over New Year’s.

10. The fact that the festive season is almost over. I can’t stand all the chaos.