The COVID Chronicles, #1: The Two Red Lines on the Reddest Day

Posted on by Astrid

Yesterday was February 22, 2022. In the European way of writing the date, it was a palindrome: 22-02-2022. Not only that, but we won’t get any more twos (or the same numbers at all, for that matter) in a date in our lifetime. The number two is red in my synesthetic perception. How ironic that, on this day, I got the two red lines on my COVID test. Oh well, I got the PCR test, not the self-administered lateral flow test, so no red lines at all, but you get the idea. Yes, you read that right: I’m positive for COVID now.

I had the PCR test at around 11AM. Before then, I was feeling mostly fine. Well, I wasn’t feeling 100%, but I hadn’t since Thursday and my two lateral flow tests had been negative. I trusted those, sort of. Then, I started having teary eyes, but both the staff and I attributed that to the test. I still had a headache, but no more severe than I’d had since Thursday.

By mid-afternoon, I was having trouble not sniffing a lot, but was still in denial. After all, the thought of my staff having to wear PPE, my inability to be in close physical contact and my need for five more days in self-isolation triggered me.

By 4PM, my assigned home staff came on. She had had COVID a week ago and we started joking that she wanted me in the positive camp. By this time, I was truly experiencing significant sniffiness, so if it wasn’t COVID, it certainly was a bad case of the common cold. I also had a bad headache and what I jokingly called COVID brain, ie. an inability to find words (I just had trouble finding the word “find”), etc. I think it’s an actual thing though.

The evening staff came by my room at 9:15PM, but I was too busy to notice she was wearing PPE. I finished what I was doing and turned to face her. She told me calmly that, sadly, I have COVID.

I didn’t sleep much at all last night despite taking paracetamol before bedtime. In fact, I awoke at 3:15AM and couldn’t get back to sleep. Despite this, I’m not feeling very fatigued as of yet. As such, I consider myself really lucky that I seem to be having a mild case of the virus.

An Interesting Nightmare

Posted on by Astrid

I had an interesting nightmare last night. It wasn’t even really a nightmare in the traditional sense of the word. I mean, no violence or monsters were involved. Then again, most of my nightmares don’t involve that kind of scenario.

In my dream, the last client to contract COVID in our care home, came into my room and went straight to my bed while I was lying in it. I tried to crawl to one end to keep my distance, because of course getting out of bed would mean getting stuck touching her. I eventually managed to press the call button, but no-one came. Finally, this client left, but I was utterly distressed and tried to press the call button again, but to no avail. I then went out of my room and to the living room, even though I’d decided to stay in my room while more than half of my fellow clients are positive for COVID. Then, one of the care assistants, a woman I’ve only met briefly once or twice, came to my room to have breakfast with me (apparently it was morning), but I asked for the morning staff. The care assistant explained that the staff was busy and she was having breakfast with me instead. Then I woke up.

The nightmarish aspect of the dream was, in part, the fact that a client with COVID came into my room and my bed. This to me signifies how scared I am of contracting the virus, even though I keep saying there’s no surefire way to prevent it anyway and I’m not scared of getting very ill. I am, however, quite honestly, pretty scared of the consequences of room-based self-isolation should I be positive. I mean, I’m now basically in room-based self-isolation too, but my staff don’t have to wear PPE other than surgical masks and they can still be within a five-feet distance. I’m not sure about holding my hand or holding me in an embrace, as I’ve been cautious and haven’t asked, but I know from the times I had to self-isolate with suspected COVID last year and in 2020 that those are big no-nos should I be positive. At least, my staff wouldn’t even get within a five-feet distance even while wearing PPE then.

Another aspect that was nightmarish to me, was the fact that the unfamiliar care assistant ended up helping me rather than my trusted staff. This to me signifies how I’m experiencing attachment to this staff, and she wasn’t even my assigned home support worker or another of my favorite staff. I guess this counts as a win!

Lastly, a nightmare aspect was the fact that the care assistant told me that the staff was busy. I am forever frustrated with staff being overworked and busy and at the same time, I’m trying to accommodate them as much as I can. For example, yesterday the staff (same one who was supposed to come in my dream) forgot to come by my room at 3:15PM when she had finished handover. At 3:45, fifteen minutes before my one-on-one time would start, I’d had enough and pressed the call button. I was really frustrated, thinking that I’d be left to my own resources now that over half of the clients have COVID. That would make sense, rationally speaking, since I’m not sick or whatever. Not that the other clients are very sick, but oh well. As it turned out, the staff had forgotten to show up because she hardly ever works late shifts. This, plus my nightmare, does show how easily I think that I’m being abandoned.

Sharing this post with Scott’s Daily Prompt from last Saturday on the topic of nightmares.

#WeekendCoffeeShare (February 19, 2022)

Posted on by Astrid

Hi everyone on this gloomy Saturday evening. I’m joining #WeekendCoffeeShare today. I’m right between my dinner and my evening coffee and I cannot offer you a drink other than water right now, as my staff is busy and I don’t want to leave my room. I’ll get to that bit later. So, can I get you a drink of water? Otherwise you’ll have to wait until my staff returns. Anyway, let’s have a chat.

If we were having coffee (or water, in this case), I’d share that we’re quarantining right now, as four or five of my fellow clients are positive for COVID. Four are confirmed and the fifth one can’t be tested but is treated as having COVID too. I took a lateral flow test right after dinner this evening and so far I’m still negative, as are the four other clients supported by the same staff as me outside of my one-on-one hours.

This is the reason the staff are busy, with the staff who care for the COVID-positive clients having to wear PPE and the other staff having to remain out of these clients’ way. It is all rather chaotic.

If we were having coffee, I’d share some of my new clay creations with you too. Like I think I said yesterday, I finally created a cactus on Monday evening.

Polymer Clay Cactus

Then on Wednesday, I created my second-ever polymer clay cane. This one I did using a heart-shaped cutter for the image. I managed to do the reducing all by myself! Then I had my staff cut it into slices, which we then made into beads.

I also created several possible charms to go with these beads. One is a heart which I do kind of like. The other was a unicorn, but I threw that one away. I now only need to make more beads, because, even though I have more than just the four beads shown in the picture above, I don’t have enough for a necklace.

If we were having coffee, I’d share that, this afternoon, I have been experimenting with photo editing and meme making again. I didn’t have any success, of course. I mean, I found a photo editing app called Snapseed, which is relatively accessible with VoiceOver, but the one thing I wanted to do, ie. add text to an image, was not. That is, I couldn’t for the life of me figure out how to enter the text I wanted to add onto the image.

The result of all my experimenting is that now I have eight apps in my Photography folder on my iPhone rather than the four I used to have. And those four already seemed excessive, being that, besides the camera and default photos app, I only use one out of the two image recognition apps I have. Oh well.

If we were having coffee, I’d share about my nurse practitioner’s appointment on Thursday. I am so thankful we were still allowed to leave the home back then, because the appt was really productive. With respect to my new medication, the pregabalin, my nurse practitioner recommended I wait and see another two weeks before concluding it’s ineffective for my anxiety. We discussed my anxiety in a little more depth and also for the first time in a long while went into my diagnosis. He actually said he believes my diagnosis is DID (dissociative identity disorder) or at least some variation of it (ie. other specified dissociative disorder). I quickly talked over it saying it doesn’t really matter, as I know firstly he can’t diagnose me (but then again the psychiatrist can) and secondly I still haven’t had the extensive assessment required for a DID diagnosis in most places here in the Netherlands. That being said, it felt so good to be validated like this! My nurse practitioner also finally will make room for us to discuss my flashbacks at a later appt. He said the reason he didn’t go into it right then was the limited time left in our appt, but he’d definitely like to discuss it with me. That feels kind of weird, but in a good way.

If we were having coffee, lastly I’d share that I’m so glad the storms are finally over. Last Wednesday night, I hardly slept at all due to the high winds. Thankfully, last night and the night before that were better. My husband’s and my house did suffer some damage to the roof though. Hopefully insurance will be able to cover the cost of getting it repaired.

How have you been?

Gratitude List (February 18, 2022) #TToT

Posted on by Astrid

Hi all again. I am feeling in the mood for a gratitude post. It doesn’t mean I’m necessarily feeling upbeat – not too downcast either, thankfully. Oh wait, I hadn’t started my gratitude list yet. I’m just inspired to write one. As usual, I’m joining in with Ten Things of Thankful. Here goes.

1. I am grateful I’m negative for COVID so far. The virus finally reached my care home, as several clients tested positive yesterday. Thankfully though, my lateral flow test was negative yesterday and I’m not having symptoms suggestive of COVID at this point.

2. I am grateful for a great essential oil blend in my diffuser right now. I put lemon, tangerine, orange and spearmint in it and it smells truly delicious.

3. I am grateful for a good nurse practitioner’s appt yesterday. I was still allowed to leave the home yesterday to go to my appointment and it was really productive. My nurse practitioner validated my experience of dissociation and we were able to talk some about my anxiety too. We will discuss my flashbacks separately later.

4. I am grateful to be indoors. It’s storming outside and I’m so happy I don’t have to leave the home. Not that I’m allowed to now that the official positive PCR test results are in for my fellow clients, but oh well.

5. I am grateful for relatively cheap quark. I usually have that with my muesli for breakfast now, but yesterday used up the last few spoonfuls. However, a staff offered to buy new quark at her local supermarket. She got 1kg for €1,28. At the supermarket my care facility order from, they only have the 500g cans for €1,09. Not that I personally have to pay for my quark, but I don’t want the facility to have to pay €1,09 on a can I cannot even get three breakfasts out of.

6. I am grateful to have been able to be very crafty lately. I think I already mentioned creating the polymer clay narwhal last week. This week, I created another couple of things. Can you guess what this is supposed to be? About half my staff guessed it correctly and the others didn’t.

7. I am grateful for bananas, plums and grapes. Somehow, the staff had forgotten to order bananas last week, but thankfully, the care home next to mine was able to give us two on Wednesday. Yum! Then on my way home from my nurse practitioner’s appt yesterday, we stopped by the supermarket for some more fruit. We got plums and grapes. The plums were surprisingly sweet.

8. I am grateful for free audiobooks. Or one free audiobook, at least. I haven’t started listening to it yet, but the first book in one of Blake Pierce’s series is free even as an audiobook. I loved reading the first book in the Riley Paige Mystery series, even though I haven’t read any of his other books. This is the first installment in another series. Free stuff is always great and, now that iOS is giving me a headache working with my Braille display, I’d love to give audiobooks a try.

9. I am grateful for peach yogurt. It is the only type of fruit yogurt I really like and I’m so grateful we’ve been having it all week.

10. I am grateful to be alive. After writing my poem this afternoon, I’d just like to say this.

What are you grateful for?

2021: The Year in Review

Posted on by Astrid

Each year at the end of the year, I look back at the past year and do a review. Today, I’m doing one for 2021.

At the beginning of the year, we were all cautiously optimistic about the vaccine being the ticket out of the coronavirus pandemic. It wasn’t. I got my first shot in early February and my second shot a month later. In early December, I had my (first) booster shot. I’m pretty sure more are still to come.

At the end of 2020, I first had my one-on-one support approved. It took some time to figure out how the staff should best fill in the allocated hours. Initially, the manager wanted my husband to be clear on when he was going to have me home with him, so that my one-on-one hours could be canceled then. This wasn’t doable for my husband or me, so finally it was agreed that my hours would be filled in regardless.

For most of 2021, we had day activities at the home due to the pandemic. Thankfully, by September, the day center opened and the clients were mostly back to their pre-pandemic groups. I, however, was not. Thanks to my one-on-one, I was provided day activities in the home and this continues to be the case so far. There has been talk of me starting in a small group, but this isn’t doable for me right now or within the foreseeable future.

For the first half of the year, I struggled a lot with the battle inside my head between wanting to live more independently and wanting even more support. This led to a climax in mid-June, when the manager told me that more support is really not possible. I was in a crisis for about two weeks. Then I started my new medication, topiramate, which calmed some of the inner conflict. It, of course, helped that I was reassured that, regardless of my attempts to push staff away, I was going to keep my allocated one-on-one support hours at least until the end of December. And of course now they have been approved until December 2023.

Over the summer, when my topiramate started to kick in, I was able to be more creative than I’d been in a long while. I started polymer clay once again and have been able to enjoy this hobby ever since. Like I mentioned when I wrote down my hopes for 2021, I didn’t intend on doing it all independently and that’s still not one of my hopes.

Looking back at my hopes, I did pretty well on them for this year. See, I think it helps that I don’t call them resolutions or goals, ha.

Overall, this year was a pretty good one for me personally. Even in terms of COVID, it’s been as good as possible, in that I haven’t contracted the virus and neither has anyone else in my home. One of my staff tested positive recently and originally we were supposed to all get tested today. After conferring with the care agency’s pandemic team, this got canceled though. I may still get a lateral flow test later today just to be sure. Let’s hope I won’t end the year with COVID.

How has your 2021 been?

#WeekendCoffeeShare (November 28, 2021)

Posted on by Astrid

Hi everyone on this Sunday afternoon. It’s a little less rainy today than it was yesterday, but it’s still cold outside. Today, I’m joining #WeekendCoffeeShare again. As I type this, I am right between my lunch and my afternoon coffee. I can probably offer you a coffee before I finish this post, ha. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week was better than the previous one. Like I said yesterday, my appointment with my nurse practitioner went pretty well and we were able to get to some agreements that will hopefully lead to better treatment for me. For example, I’d struggled to convey in an E-mail how I was struggling two weeks prior and he had asked me to wait for our appt to discuss the matter. That hadn’t sat well with me, so now we agreed that next time he’ll try to call me to further assess the situation.

We also agreed that he would try not to stop me or change the subject if I’m struggling or getting emotional while trying to communicate something. I gave as an example one time when I felt unable to speak and he, possibly not wanting to push me, said: “We don’t have to discuss anything if you don’t want to.” Overall, I feel slightly optimistic about my treatment going forward and I consider that a major win given the desperate state I was in last week.

If we were having coffee, I’d also share that I got some insight into the near-hallucinatory, dysregulated states I occasionally go into at night. My nurse practitioner thinks they might be related to the phase between being fully awake and being asleep. Unfortunately, there’s little to nothing to be done about them, but it feels comforting to know I’m not really “losing my mind”. It also seems, from this idea, unlikely that I’m going to experience these states during the day and really “going crazy”.

If we were having coffee, I’d tell you that, unfortunately, I did experience nightmares last night. It’s probably to do with the flashbacks and memories I experienced yesterday. I am so grateful though that the nightmares aren’t affecting me too much now that I’m awake.

If we were having coffee, I’d tell you that, thankfully, I’ve also been a little more active lately than I was before. Like I mentioned yesterday, I made a polymer clay unicorn on Thursday. My husband wants to have it. I’ve also been reading more lately. I won’t at all reach my reading goal for the year or even come close to how many books I read last year, but at least I finished another book.

If we were having coffee, lastly I’d ramble a bit about how scared I am because of the rapid rise in COVID cases here in the Netherlands. Today, we’re entering an evening lockdown. Stay-at-home orders have also been extended to recommending people work from home unless it’s not possible, like during the first lockdown in March of last year. I’m scared this will mean the day center closes again. More so though, I’m scared of contracting the virus or even a cold and needing to quarantine in my room. Let’s hope I won’t.

How have you been?

A Good Enough Tuesday

Posted on by Astrid

Today is November 2. It’s a Tuesday. A good enough Tuesday, mind you. I didn’t dwell too much on it being the anniversary of my crisis in 2007.

I didn’t really get stressed out about the prime minister delivering another press conference, one in which he’d be announcing new COVID-related restrictions, either. If I’m correct, the press conference is happening right now or has just finished. When I passed by the living room, where the television is, I heard the prime minister say something about “strongly recommending” us to social distance again. Well, whatever. If it’s just a “strong recommendation”, it’s a suggestion, so no-one will do it. Masks are similarly “strongly recommended”.

I didn’t do too much today. Had my blood pressure taken this morning, which was within the normal range (112 over 77) even though I had already been up for a bit. I normally ask that staff check my blood pressure first thing in the morning, because it’s usually up a little when I’ve been active. Not this time though.

I also went to Action, a budget store, to buy some Christmas decorations. I won’t be putting them up till early December, but I wanted to be early buying them to make sure I still had a wide selection to choose from.

I have been wanting to craft too, but that will have to wait till tomorrow. After all, then one of my more creative one-on-one staff will be there for my day activities shift. I will finish the polymer clay owl I’ve been working on.

I did struggle a bit with attachment issues and emotional flashbacks today, but both were manageable. Overall, like I said, it was a good enough day. And that’s totally okay.

#WeekendCoffeeShare (July 31, 2021)

Posted on by Astrid

Hi all on this rainy Saturday. I’m joining #WeekendCoffeeShare again, although yet again it’s a bit late for coffee at 8:30PM. It’s odd in this respect that I start my coffee share paragraphs with “If we were having coffee…” even though I rarely offer you coffee. Oh well. Let’s have a drink anyway and let’s catch up.

If we were having coffee (or any other drink, but it feels off to have to repeat that every paragraph), I’d share that I haven’t been doing as well in the walking department this week as I did last week. I reached my goal of 10K steps only once this week and on a few other days, struggled to get beyond 5K steps. My foot hasn’t been cooperating and neither has the weather. It’s been quite rainy most days, although I managed to get a walk in between showers almost everyday.

If we were having coffee, I would share that I have the kindest yet weirdest mother-in-law. Earlier in the week, I asked her to be on the lookout for fine sanding paper to use to sand and buff my polymer clay ornaments. Not only did she drive by three different hardware stores in search for it, but she eventually ordered it online at Bol.com, even though I could as easily have ordered it there. I’m so grateful but I also feel a bit off now.

If we were having coffee, I would share that I have a slight cold, so I didn’t go to Lobith yet again. The self-administered antigen test for coronavirus I took was negative. Still, I want to avoid giving my husband whatever virus I do have, especially with him just having been vaccinated and this meaning he can’t be reliably tested for COVID.

If we were having coffee, I would tell you that I made the most delicious chicken, curry and fruit salad with my one-on-one staff yesterday. It was great having this for lunch.

If we were having coffee, I’d use the rest of this post to blather on about polymer clay, I guess. This evening, I have been practising making ornaments as independently as possible. I can roll out pretty even bases to cut shapes out of now, as well as cut out the shapes. I am however not able to remove the clay ornament from my cutting board workspace without damaging it yet. However, I’m confident that I’ll learn.

What have you been up to?

Tanka: These Weird Times

Posted on by Astrid 
Stay silent, listen
Hear the birds’ cheerful chirping
Hear the wind blowing
Hear the music of nature
Despite these times of crisis

I am pretty sure I already published this poem somewhere, but I can’t find it on here and I don’t post my poetry anywhere else. I found it in my Drafts app, which I sometimes use for creative writing. I originally wasn’t sure I wanted to post it to my blog and as I write this, still am not 100% sure.

It may not even be the most appropriate time for this poem. Most people are probably, understandably, tired of the pandemic and want it to end, not be at a crisis point. And honestly, I’m not sure where it is currently. I mean, I saw a headline today saying COVID is being fought well, but the virus fights back. Something like this. Let’s all hope this crisis is over with quickly.

I am using this as an attempt at working the block editor too, as on my iPhone I can of course no longer use the classic editor and the Drafts app works only with Apple devices. I was going to find a workaround, but then decided I would need to get acquainted with the block editor one day anyway. So, well… whatever.

I’m submitting this poem to dVerse’s Open Link Night.

Gratitude List (July 18, 2021) #TToT

Posted on by Astrid

Hi all on this beautiful Sunday. I used to have this rule that I had to write my gratitude posts on Friday or they didn’t “count”. Then I would allow myself to post on Saturdays too. Now it’s Sunday. I think it shows I’m pretty rigid with my rules of what is the “right time” for a certain post. I mean, the Ten Things of Thankful (#TToT) linky is open till Tuesday and even if it wasn’t, that wouldn’t be a reason not to publish a gratitude post. Gratitude is always useful, so…

1. I am grateful my family and friends are still healthy and haven’t contracted COVID. Many are fully vaccinated by now too.

2. I am grateful I don’t live in the flooded area of the country, let alone in Germany or Belgium, where the flooding has been much worse. There’s been a lot of outrage at the way the Dutch handle the flood, but I think they’re handling it as well as they can. I am grateful we’ve not had any deaths due to it so far.

3. I am grateful for a sunny day here. Several, in fact. Since last Friday, the rain is pretty much gone out of this area of the country and we’re having warm summer weather.

4. I am grateful my GP took my abdominal issues seriously. Like I mentioned on Friday, I am back on a higher dose of magnesium. Here’s hoping this will work.

5. I am grateful I am still pretty motivated for creative endeavors. I’ve been making some jewelry, lip balm, as well as a melt and pour soap this evening.

6. I am grateful for the ability to online window shop without actually buying anything. I have so much I want to buy once my benefits arrive, but I’m glad I’ve restrained myself from spending any more money until then at least.

7. I am grateful for grilled hamburgers with cheddar cheese. We had those for lunch on Thursday.

8. I am grateful for a short chat with a woman from the care home a few doors next to mine. I mentioned her before, we used to talk a lot at day activities and she’s even had coffee in my room one time. Now due to COVID, we can only meet outside. I am however grateful I got to chat to her again and she’s well.

9. I am grateful my husband came by today. I hadn’t seen him in two weeks, as he had to work last week Saturday. Today, we went to Subway to have lunch.

10. I am grateful I found the Bible reading plan I’m currently following. It’s called “Hope Heals in the Midst of Suffering”. I can totally relate to the plan’s author’s experiences and they are so validating!

What are you grateful for?