The Could-Be COVID Chronicles, September 2025 Edition

Posted on by Astrid

Hi everyone. It’s been over a week since I last wrote a post for my blog. I’ve had some ideas on my mind, but I’ve been battling what I believe could be COVID since Wednesday. Here in the Netherlands, all official precautions and regulations were ended in early 2023 and replaced with a recommendation to “use common sense”. Now my institution has always been rather careless when it comes to quarantining people suspected of having COVID and I myself am not the most sensible either when there are no rules.

On Wednesday, in fact, I was cooking burgers for the entire home when this whole thing started. I blame myself for several other clients and half the staff being sick now, but the staff say they would probably have caught it somewhere anyway, just like I probably caught it from a staff coming to work sick on Monday last week.

On Thursday, I was in bed all day, but I felt better on Friday, so I decided to go for several walks and a dance. Not a good idea if I indeed do have COVID, as not resting well enough can contribute to having long-term symptoms.

Saturday, I was in bed again for most of the day but dancing at 11PM in my room again in order to meet my movement goal on my Apple Watch. I then decided I really had to rest, so lowered my movement goal for that day and paused my rings altogether on Sunday until tomorrow.

I’m now feeling okay, but not nearly back to normal. Tomorrow, the Center for Consultation and Expertise consultant is coming. There are no longer any rules prohibiting them to visit me and several other staff are working while having symptoms now too. Besides, I didn’t have a say in inviting them, so I don’t feel in a position to cancel.

I do feel guilty for basically doing what everyone else is here, ie. living my life as if COVID is no longer a threat. I know, I don’t know whether I actually have COVID since testing is no longer a thing here either, but I definitely feel this is more than just a very nasty cold.

August 2025 In My Kitchen

Posted on by Astrid

Hi everyone on this last day of August. We had rain in the weather forecast for the last few days, but it wasn’t more than a drizzle. Hopefully tomorrow there’ll be more.

I’m joining In My Kitchen again even though August wasn’t all that exciting with respect to kitchen-based or other food-related activities. I have a few plans for the first week of September. Here’s hoping I can be more involved in the kitchen over the rest of the month too.

I didn’t cook dinner at all in August, but I did create a few little treats for myself and sometimes my fellow residents. Like, on August 4, I made a mascarpone-based dessert with raspberries and blueberries on top.

I also prepared overnight oats again. The next morning, I added the toppings and enjoyed my healthy’ish breakfast. Now I doubt that it’s actually healthier than my regular breakfast, but who cares?

I made a few smoothies too. In one of them, I put pineapple, spinach and almond milk. My idea was to prove to one of the staff, who didn’t like spinach, that you won’t taste spinach in smoothies. Guess what? We didn’t taste the spinach, but we didn’t taste much of anything else either. I eventually added a banana and some honey, but it still was one of the blandest smoothies I’ve had.

Like I said on Friday, I also have been making coffees with foaming milk on top. The truth is I don’t really like them, but my milk frother was €70 and now it feels less like a waste of money. Besides, my fellow residents like the coffees.

Lastly, yesterday I spent the day with my spouse in our house. We had originally planned to cook dinner together, but ultimately my spouse ended up doing everything. We had an easy broccoli and chicken stir-fry with hot sauce and noodles. My spouse asked me whether it was as good as the meal delivery service meals. 😉 It was a lot better!

Speaking of which, the meal delivery service now has “2.0” written on many of its foods. I get Siam sauce 2.0, for example. Once, I even got “cauliflower 2.0”. Well, what can be improved or changed about just cauliflower? The brown rice doesn’t have 2.0 written on it, but it’s been horribly undercooked lately. I am of the opinion that the higher-ups deciding which meal delivery service to contract, or that the institution even has to contract one rather than operating its own kitchen, should be forced to consume a meal delivery service dinner once a week.

July 2025 In My Kitchen

Posted on by Astrid

Hi everyone. It’s been a few months since I last participated in the In My Kitchen linky, because I didn’t do much of note in the kitchen. This month I finally got active in the kitchen again, so I’m participating in the linky again.

First, I got some cake mixes for my birthday last month, so on July 3, I set out to bake one of the cakes. I got strawberry, raspberry and lemon-flavored cake mixes and selected the one with strawberry. To be honest, I had expected there to be more strawberries in it. It in fact looks like a plain yellow cake and that’s what it tasted like too.


Over the next few weeks, I was greatly struggling and didn’t do anything in the kitchen. That is, maybe I created a smoothie once, but I’m not even sure about that.

Speaking of smoothies though, I did create several that I loved over the past month. One, I made yesterday. I used frozen cherries, vanilla-flavored soy milk, cacao powder, instant coffee, a little honey and a dash of sea salt to make the flavors pop.

About two weeks ago, I finally got the idea again to whip something up and I decided to make overnight oats.

I made overnight oats once again this week, topping them with a tropical dried fruit mix that has an E Nutriscore, meaning it is about the least healthy food choice in its category. No photo this time.

A staff who is on sick leave and occasionally pops round as an extra, offered to help me cook a meal for my side of the home the next Tuesday. I cooked curried rice with chicken, bell peppers and bok choy. I hadn’t had bok choy since childhood and incorrectly assumed its green leaves can’t be eaten. The meal doesn’t look as thin as I believe a curry should be, but it was delicious.

The same staff came over here this Tuesday again and I was again allowed to choose a meal and cook it with her help. I chose a vegetarian pasta bake with peppers, onions, garlic, canned tomato chunks and topped with mozzarella. One of my fellow clients said she didn’t like the mozzarella, but I think it was because she didn’t recognize it and I believe she did eat it after all. Everyone else loved my meal. Next time, however, I’m going to leave some of the seeds of the peppers in, because I’d have loved it even more than I did now with a little more spice.



Since I have been cooking more lately, I decided to look for an app to organize my recipes. After trying many apps, I settled on Recipe Keeper. Like I mentioned in my coffee share last week, one of its drawbacks is the fact that I can’t have my password manager save the password. This makes me a little suspicious, but I try not to care.

#WeekendCoffeeShare (July 26, 2025)

Posted on by Astrid

Hi everyone. I’m once again joining #WeekendCoffeeShare. It’s 9:45PM, so all I’ll have to drink before going to bed is water. I don’t mind though and hope you don’t either. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. It’s been raining all week, but temperature-wise, it’s been nice. We had daytime highs in the low 20s Celsius most days. Today, the temperature rose to 25°C. I hadn’t expected it to rain, so didn’t take a jacket with me when driving to Apeldoorn with my spouse. Thankfully, it only rained when we were in the car or somewhere else inside.

If we were having coffee, next I’d share that my spouse and I may not be divorcing after all. It’s a long story that is too personal to share on a public blog. The short version is that I sent an impulsive text last week asking my spouse to finally make arrangements, because I wanted to live independently. The reason for the text had nothing to do with my spouse, but it did get things set in motion. As it turns out though, it’s probably not practically in our best interest to divorce.

If we were having coffee, I’d go into the reason for said text: one of my “favorites” among the staff is leaving and this is at a time when I’m struggling significantly with most other staff seeming at once not to agree on any way to support me but somehow agreeing that I’m a pain in the neck. At least on a weekly basis, I hear stuff like “You can’t go anywhere anyway” or “Your spouse doesn’t want you in this state” when I’m being restrained or otherwise having my autonomy taken away.

Furthermore, it looks like my staff have decided that neither I myself nor my spouse have my best interest in mind, while in that order, we’re the ones most adamantly advocating for me. However, I saw impulsive comments my spouse made after we found out divorce may not be an option cited in my report. This wouldn’t have been such a big deal, had staff also objectively reported their own comments, like all the “You can’t go anywhere anyway” stuff. The way it sounds now, my spouse sounds like the bad one.

One of my assigned staff even got me to agree on getting more information about guardianship because she somehow feels that a person who doesn’t know me but knows the law is better able to make decisions for me. I have yet to tell my staff no on this one.

If we were having coffee, I’d share that I did finally work with polymer clay again. I made a parrot for the staff who’s leaving, because this staff has two parrots. We have plans for making her other one out of polymer clay sometime this coming week.

If we were having coffee, lastly I’d share that I’ve been obsessing over recipes and cooking again. Like I said yesterday, I made a curry for myself and my fellow residents on Tuesday. The staff who helped me with it, proposed we do cooking again this coming Tuesday. This time, I chose a pasta bake. I’ve also been making smoothies and overnight oats recently.

I have an app on both my PC and iPhone to organize my recipes. It’s called Recipe Keeper and I’m half convinced it’s spyware like TikTok. Other than that, its only drawback is the fact that somehow I can’t have my password manager remember the password. This has me paranoid too. However, it’s the only app that’s available on both iOS and Windows that is remotely useable for me.

Quality of Life #SoCS

Posted on by Astrid

Hi all. I haven’t written a blog post in nearly two weeks, since I’ve been struggling quite badly. However, I saw the prompt for Stream of Consciousness Saturday, which is “starts with Q”. Immediately, the word “quality” and, derived from that, “quality of life” came to mind.

I regularly write about this concept when discussing myself as a former preemie living with multiple disabilities. That’s not what I mean this time though. This time, I mean real, day-to-day quality of life. I’ve seriously been on a quest for a more meaningful life.

You might remember me talking about the cup of green tea I was allowed to have one evening. I said back then that it’s normal to choose when you want tea, so most people will not be appreciative of it. I was. However, as I spiraled further into depression, this cup of tea became the metaphor for how bleak my life is, actually.

It could be a lot worse. It was, back in the mental hospital, where, though I could grab food whenever I wanted (or at least I did), I spent most of my days lying in bed or surfing the Internet. Most of my fellow residents also have even less autonomy than I do. And yes, I know they’re severely intellectually disabled, but quite frankly that’s not an excuse. Just because you’re used to well-intentioned others making every single decision for you (and they are used to it as well!), doesn’t mean that’s how it’s always supposed to be. Or how it should be. Like I was at the time very grateful for the cup of tea at 9PM, that’s not how it always should be. That is, of course it’d be good if I remained grateful for a cup of tea, but in real life, I should be able to make the decision whether I want a cup of tea myself.

Unfortunately, I have a ton of ideas to improve my quality of life and gain more autonomy, but these don’t get to fruition. The reason is in part the fact that an idea has to be put into practice and executive functioning isn’t my best quality. Another reason is resistance from staff, either overt or covert.

I could write a book on all the ways staff have verbally, physically and in other ways hurt me under the guise of being human and having emotions too. Or conversely under the guise of safety for the group or that being the reality of staff-client relationships. But I won’t.

I’ll end by saying that, at least, on Tuesday I had a good day cooking curry for my side of the home. That’s what I mean by day-to-day quality of life: having the ability to prepare my own food, for example, or choosing what I’ll have for dinner. Of course, the other residents didn’t have a say in my choice to make curry, but they did appreciate it. We’re a long way from people in long-term care actually having meaningful lives, but this felt like a tiny contribution.

#WeekendCoffeeShare (May 31, 2025)

Posted on by Astrid

Hi everyone. Today I’m joining #WeekendCoffeeShare. I originally wanted to write another post first, but got distracted by a dozen other ideas. It’s 9PM here, so no more coffee for me. I need to drink plenty of water because I have some extra fluid in my right leg. Let’s have a glass of water and let’s chat. Or if you’d like coffee, fine by me too.

If we were having coffee, first I’d talk about the weather. For most of the week, it’s been quite rainy and too chilly for my liking, even though the daytime temperature was probably still higher than it should be. Today though, we have sunshine and a daytime high of 25°C.

If we were having coffee, then I’d share that I haven’t been as physically active as I’d have wanted to be. Like I said above, I have some unwanted fluid in my right leg. My leg also hurts from muscle knots. I had a dry needling treatment at the physical therapist’s on Tuesday and am having another one next Wednesday. I am not 100% sure it’s working, as on Thursday my pain was worse and besides, I don’t know which pain or limitation is from the muscle knots and which is from the fluid build-up.

Today was a good day in the walking department though. Next week is the institution’s four-day walking event. I’m going to take part in the 3km walk, but I’ll be allowed to sit in a wheelchair as needed (thankfully, this event isn’t as strict on walking as some others are). That way, I can take part in the festivities and enjoy the experience but don’t need to overexert myself.

If we were having coffee, then I’d tell you about my creative endeavors over the past week. I finished two unicorns for the home’s volunteers on Monday.

That day, I also found out that one of the student staff would be leaving. He didn’t work with me, but I know him because he used to be a student staff at the care facility in Raalte before coming here. Back then, we used to go on walks together, taking his camera with us and snapping pictures which my image description app could then describe. The app wasn’t nearly as advanced as it is now, so I might want to look up some of these pictures and run them through Be My Eyes now.

Anyway, I wanted to craft something for him but didn’t know what until my best friend asked me what his hobbies are. I initially said that I don’t know, then remembered our photographing adventures back in Raalte and said “photography”. My best friend immediately suggested I craft a camera. I had never done so, but my best friend gave me some suggestions. Here’s the result. Be My Eyes recognized it immediately and even said that the photo of the back I took might be of a miniature camera.


If we were having coffee, then I’d share that I cooked pasta for my fellow residents on Thursday. It wasn’t as good as it could’ve been, because the veg had been overcooked and generally speaking the meal was a bit bland. Better luck next time.

If we were having coffee, lastly I’d share that yesterday, on the student staff’s last shift, I played DJ again at the other side of the home. I initially played some Dutch-language songs that were apparently not well-known, but finally I chose “Oerend hard” by Normaal and that had my fellow residents loudly singing along.

Overall, this week was a good one except for the pain.

March 2025 In My Kitchen

Posted on by Astrid

Hi everyone. I enjoyed the linky last month, so am participating in In My Kitchen again.

As regular readers of my blog will know, I don’t have my own kitchen because I live in an institution. We also usually get our dinners from a meal delivery service. Last month, I shared that I was hoping to do some more cooking in March. Guess what? I cooked dinner for myself and my fellow residents twice this past month.

First, on March 5, I cooked pasta with pesto, chicken and broccoli. My spouse joked after seeing the picture that the pine nuts were on sale. In reality, I hadn’t originally planned to sprinkle the pasta with pine nuts but my staff had loads of them, originally intended for her parrots, who don’t even really like them or that’s what she said.

A little over a week later, I cooked pasta again. This time, I included shrimp, lots of garlic, peppers, a few packages of mixed veg and, because according to me this was too little for ten people, a few bell peppers too. I needn’t have worried, because everyone had enough to eat and there were still a few servings left to go in the freezer.

I also made a few smoothies using my blender. Unfortunately, last week I found out that, somehow, the ring-shaped thingy that keeps the blades in place, had broken. I erroneously thought this meant the entire blender should be discarded. Yesterday, my spouse and I went to the electronics store and bought a new one, actually I believe it’s the same one I had. I also recently learned that I can actually make more smoothie with my blender than I used to think. After all, when you fill up the blender with fruit, veg or whatever you’re blending, you shouldn’t fill it up fully. Until recently, I however thought that this means you’re left with only, say, half the blender’s content of smoothie and that’s it. I never realized that you can add more food once the blender has finished blending some of its contents. Stupid, I know, but oh well.

In other kitchen-related news, my assigned staff has told me that she’ll add a weekly cooking activity into my day schedule. I don’t yet know when this is going to happen, but I did hear that my one-on-one support has been approved until the end of 2026 again. Yay!

#WeekendCoffeeShare (March 1, 2025)

Posted on by Astrid

Hi everyone on this first day of March. I’m joining #WeekendCoffeeShare again. I’ve just had my last cup of coffee for the day, but if you’re quick, you may be able to enjoy a soft drink. We usually get chips with our soft drinks on weekends, but if I’m correct, the staff ordered meatballs. Let’s have a drink (and a snack) and let’s catch up.

If we were having coffee, first I’d talk about the weather. Most days, it was chilly but not rainy. We got the most rain on Thursday, but even then I managed to go out.

If we were having coffee, then I’d tell you that I did achieve the perfect month on my Apple Watch in February. My March challenge is incredibly easy: get in at least 3.63km of walking/running on at least fourteen days this month. I always thought the challenges were based on the previous month’s achievements, but I’m pretty sure I got a lot more steps in during February.

If we were having coffee, I’d report that I’ve been struggling again. This led to a number of arguments between me and the staff. Particularly, it frustrates me to no end that some staff are much more likely to react angrily to my irritability than others. As a result, I don’t accept gestures indicating they support me from these staff. Like, if you’ve first been telling me off, I won’t accept it when you offer me comfort. Unfortunately, my assigned staff claims this differing treatment is just how it is and she says it’s because I don’t accept the same treatment from everyone. This came across as if she was holding me responsible for the different approaches.

If we were having coffee, I’d also share that I’ve been frustrated with my day schedule and particularly the lack of clarity in it. I particularly don’t like the fact that, each time, I’ll have to choose an activity out of fifteen or so options. Thankfully, I was able to turn my frustration around today and decide that, on Monday, I’m going to the next town to buy groceries and, on Tuesday, I’m going to cook dinner for the home.

If we were having coffee, I’d share that part of my struggle is the extreme discrepancy between my intelligence and my emotional functioning. I’m said to function emotionally at a level comparable to a child under 18 months of age in most respects, but my IQ is above-average. Moreover, I happen to have an interest in psychology and social work. As a result, I, for example, know more about the theory of care and support than most of my staff, but I can’t apply it to my own situation and not just because I’m the client.

Like, when I’m in a good place mentally, I sometimes find myself pointing out ways staff are asking too much of me emotionally, but precisely because I can say so, I’m judged not to need the support I need.

If we were having coffee, I would however also share that I still experience moments of joy. For example, on Monday, a new student staff was being introduced to my activities and we created a unicorn (of course) out of polymer clay. This time, because the unicorn was rather fat and the staff had placed the front legs far apart, I chose to add a heart to its belly. I also decorated its back with rhinestones. Two pictures below, because my staff couldn’t capture both the heart and the rhinestones in one.


If we were having coffee, lastly I’d tell you that I struggle with self-criticism and this also leads me towards less creativity. I, however, overcame the feeling that I “should be better” sometime on Tuesday when I created a rather simple bracelet. It was just beads stringed onto elastic wire. However, looking at my comment about emotional development, I sincerely believe I did a pretty awesome job, since a toddler can’t do this at all.

Sorry for the rambly post. I’m still feeling hazy after another meltdown. By the way, no meatballs for our evening treat, as somehow they’d disappeared.

February 2025 In My Kitchen

Posted on by Astrid

Hi everyone! A while ago, I discovered Sherry’s In My Kitchen linky. As most of you know, I don’t have a kitchen, but of course my care home does. I’m using this opportunity to share some thoughts about the foods I’ve prepared and/or consumed lately. Do polymer clay-related musings count too, since polymer clay is cured in an oven? Just kidding (a bit).

Last week, like I think I shared, I visited the next town’s market and bought olives, fried chicken and peppers. I also bought arugula at the supermarket. My staff whipped up the most delicious salad out of these and some carrots that were in our fridge. I had some the next day as well. Sadly, I was under the impression that the staff had used up all peppers, only to be told yesterday that there were still peppers in the fridge. Those had by then gone bad.

I also bought blueberries and have been adding those to my muesli and quark that I eat for breakfast almost each day.

I’ve also been making smoothies lately. For example, a few weeks ago, we had lots of bananas that were on the ripe side, so we chose to whip up a smoothie with them. My current blender has only a 1 liter container, so at first I used to make only about four cups of smoothie and share them with my fellow residents who also stay up later.

Yesterday, a staff offered to help me prepare a smoothie for the entire home that we could use in place of our evening soft drink. Looking back, creating more smoothie than my container can hold is as simple as pouring the smoothie into cups then reloading the blender. The staff peeled and cored the apples and pears, something I think I could’ve helped with too, but oh well. I chose to add cinnamon, cardamom and clove, as well as soy milk as a liquid. The smoothie was absolutely delicious!

For the upcoming month, I’m really hoping to do more in the care home kitchen. Honestly, I feel I could easily be whipping up my own salads and do more in the smoothie-making process. I’ve also been looking at treats and even main meals to cook. I mean, I have the two-hour supported activity time slot in the afternoon and this often is currently spent on nothing more than a walk. I have been nagging my staff for a more structured activity schedule for months, but this seems to be rather difficult. One can always hope though.

Gratitude List (April 26, 2024) #TToT

Posted on by Astrid

Hi everyone. How have you been? I’m participating in Ten Things of Thankful with a gratitude post once again. It’s been a while. I however have quite a few thankfuls to share, I think, so let’s go.

1. I’m grateful for homemade pizza. My spouse, mother-in-law and I made it together at my in-laws’ house (my father-in-law wasn’t there) last Saturday after the CP conference.

2. I’m grateful for a side-by-side bike ride on Sunday. I was assigned an extremely tall staff member for my one-on-one and, for those not aware, I am short myself. This makes walking with him quite a challenge, as we haven’t yet figured out a way for him to guide me that doesn’t cause me pain. However, I came up with the idea of biking instead.

3. I am grateful for the fact that my attempt at making overnight oats on Monday turned out to be a success! Last time I made them, I added way too much milk.

4. I am grateful because, on Tuesday, I was able to cook köfte for my fellow residents and staff. It took me quite some time, but that’s not a problem.

5. I am grateful for French fries on Wednesday. Oh, I’m making more than half of this list about food, but okay.

6. I am grateful for an opportunity to go swimming yesterday. I had gone swimming twice last week, once with my own home’s residents and once with a small group. I hadn’t expected to be able to join the small group this week again and swimming for my home was canceled because most residents were on the annual trip. However, I was able to join the small group anyway.

7. I am grateful for a trip to the institution museum this afternoon. It’s a really small museum, but it was interesting to learn about the history of the institution. Plus, we got free mini pancakes! Oh wait, that’s another food-related thankful…

8. I’m grateful for a day without rain today. We had rain most of the week and, though I could go on walks everyday inbetween showers, I couldn’t go out nearly as much as I’d have liked. Today though was a rain-free day and we even had a bit of sunshine.

9. I am grateful for an appointment with the nurse practitioner who works at my local GP practice re my decreasing mobility. I’ll have a physical therapy appt soon too but I’d really like to know what’s causing my mobility impairment (CP or something else) and whether a decrease in mobility is to be expected or what can be done about it.

10. Last but not least, I am so grateful I seem to be slowly crawling out of the pit of depression I was in.