#WeekendCoffeeShare (March 1, 2025)

Hi everyone on this first day of March. I’m joining #WeekendCoffeeShare again. I’ve just had my last cup of coffee for the day, but if you’re quick, you may be able to enjoy a soft drink. We usually get chips with our soft drinks on weekends, but if I’m correct, the staff ordered meatballs. Let’s have a drink (and a snack) and let’s catch up.

If we were having coffee, first I’d talk about the weather. Most days, it was chilly but not rainy. We got the most rain on Thursday, but even then I managed to go out.

If we were having coffee, then I’d tell you that I did achieve the perfect month on my Apple Watch in February. My March challenge is incredibly easy: get in at least 3.63km of walking/running on at least fourteen days this month. I always thought the challenges were based on the previous month’s achievements, but I’m pretty sure I got a lot more steps in during February.

If we were having coffee, I’d report that I’ve been struggling again. This led to a number of arguments between me and the staff. Particularly, it frustrates me to no end that some staff are much more likely to react angrily to my irritability than others. As a result, I don’t accept gestures indicating they support me from these staff. Like, if you’ve first been telling me off, I won’t accept it when you offer me comfort. Unfortunately, my assigned staff claims this differing treatment is just how it is and she says it’s because I don’t accept the same treatment from everyone. This came across as if she was holding me responsible for the different approaches.

If we were having coffee, I’d also share that I’ve been frustrated with my day schedule and particularly the lack of clarity in it. I particularly don’t like the fact that, each time, I’ll have to choose an activity out of fifteen or so options. Thankfully, I was able to turn my frustration around today and decide that, on Monday, I’m going to the next town to buy groceries and, on Tuesday, I’m going to cook dinner for the home.

If we were having coffee, I’d share that part of my struggle is the extreme discrepancy between my intelligence and my emotional functioning. I’m said to function emotionally at a level comparable to a child under 18 months of age in most respects, but my IQ is above-average. Moreover, I happen to have an interest in psychology and social work. As a result, I, for example, know more about the theory of care and support than most of my staff, but I can’t apply it to my own situation and not just because I’m the client.

Like, when I’m in a good place mentally, I sometimes find myself pointing out ways staff are asking too much of me emotionally, but precisely because I can say so, I’m judged not to need the support I need.

If we were having coffee, I would however also share that I still experience moments of joy. For example, on Monday, a new student staff was being introduced to my activities and we created a unicorn (of course) out of polymer clay. This time, because the unicorn was rather fat and the staff had placed the front legs far apart, I chose to add a heart to its belly. I also decorated its back with rhinestones. Two pictures below, because my staff couldn’t capture both the heart and the rhinestones in one.


If we were having coffee, lastly I’d tell you that I struggle with self-criticism and this also leads me towards less creativity. I, however, overcame the feeling that I “should be better” sometime on Tuesday when I created a rather simple bracelet. It was just beads stringed onto elastic wire. However, looking at my comment about emotional development, I sincerely believe I did a pretty awesome job, since a toddler can’t do this at all.

Sorry for the rambly post. I’m still feeling hazy after another meltdown. By the way, no meatballs for our evening treat, as somehow they’d disappeared.

#WeekendCoffeeShare (September 23, 2023)

Hi everyone. I’m joining #WeekendCoffeeShare. I’ve long had my last cup of coffee for the day, as it’s 9PM. In fact, most people here at my new care home are in bed already. I guess I’ll have just water to offer you now, sorry. Let’s catch up anyway.

If we were having coffee, I’d start out by moaning about the weather. Fall has well and truly set in here. The temperature hardly got above 20°C at all this week and most days it didn’t get above like 17°C. Moreover, unlike the heating in my old care home apartment, which was set to an uncomfortably warm setting all year round, this room’s heating seems to be stuck on the cold side.

If we were having coffee, then I’d post another petting zoo picture. This one is of the birds once again. Did I mention that my new care home is like a two-minute walk from the petting zoo?

If we were having coffee, then I’d share that I’m adjusting better to living in this care home than I was to living in my previous one. Like I mentioned on Thursday, I started working with polymer clay, in fact. I haven’t put anything into the oven yet, as I first need to test the oven temperature before subjecting my precious projects to it. However, I’m happy to report I already finished two simple pieces: the planet charm I mentioned on Thursday and a flower.

In addition to working with polymer clay, I have created a shower gel (from just a base and essential oils) and made a bracelet. I did play card and dice games too. I didn’t walk as much as I used to at my old care home, but that’s okay.

I am still struggling with mornings and early afternoons, but I’m giving it a chance to work out. For example, yesterday I came up with the idea of watching children’s stories on YouTube when I have my group activity time. I normally watch those in English, which of course the other clients can’t make sense of, but I could definitely find Dutch children’s stories on YouTube too.

If we were having coffee, lastly I’d share that I bought another collection of journaling prompts that I’d really been looking forward to on Tuesday, only to find out that the actual prompts are probably handwritten or something inside the Kindle book and I can’t access them using my screen reader. This is a relatively common occurrence with Kindle books and I honestly feel that Amazon shouldn’t claim screen readers are supported in that case. Oh well, I have tons of other prompts to choose from.

July 2023 Reflections #WBOYC

Hi everyone. It’s the last day of the month and this means it’s time for my monthly reflections. As usual, I’m joining in with What’s Been on Your Calendar? (or #WBOYC for short).

This month was a toughie once again. All I had to keep me going was an E-mail from the behavior specialist at the end of June saying that they were still investigating a possible new home for me, so I hadn’t been forgotten. This didn’t do much to perk me up, honestly. At the beginning of the second week of the month, my mother-in-law E-mailed her to request extra supports. We had been discussing her asking the behavior specialist to come round to talk to me every once in a while to keep me from spiraling further into crisis before, and in fact my mother-in-law had requested it before, but that message had not been responded to. This time around, it turned out the behavior specialist was on vacation till the end of the month. I’m pretty sure given her work schedule, she should be back tomorrow, but even though our E-mail was sent pretty early in her leave, I’m skeptical that she’ll respond then.

Of course, I did find out on the 23rd that a new home has been found for me. Like I mentioned last week, the way I found out about it was rather weird and I don’t know anything about the home other than what my care agency has on its website about it. A moving date hasn’t been set either as far as I’m aware and I won’t be informed till about two weeks in advance. My assigned staff asked me today whether I keep wondering when I’ll be moving. Yep, of course.

In other news, my support coordinator did leave the agency a few weeks ago. I can’t say I miss her, as I can talk to my new one much more easily. Still, I’m glad I’m leaving this place in the hopefully not too distant future.

I haven’t really been crafting much over this past month. The only thing I finished, in fact, is a bracelet with the glass beads I got from my mother-in-law for my birthday. Today, I did finally get round to claying once again. And got my hands all blue from handling alcohol inks without gloves.

I also didn’t walk as much as I did last month over this past month. I honestly don’t really care though.

Since iOS 16.6 resolved the Braille display bug that caused me to be unable to read books on my iPhone, I have been reading more over the past week. I also finally bought a blender, so yay for smoothies!

Here’s hoping August will be a better month than the past few months have been.

The Wednesday HodgePodge (November 2, 2022)

Hi everyone. Wow, I don’t think I’ve gone this long without blogging since I started this blog! Over the past week and a half, I didn’t have much to share except for how depressing and frustrating my new care home situation was, something I don’t really want to bother you all with. It seems it might be improving slightly, so I’m back on the blog. I don’t really want to share details though, so instead I’m joining in with the Wednesday HodgePodge. Here goes.

1. What about your upbringing are you most grateful for?
Hmmm, this is a hard one, since I endured quite a lot of childhood trauma. I’m going to say the fact that my parents, particularly my father, taught me a lot of academic skills.

2. What are two or three things that bring you comfort?
Essential oils, my weighted blanket, soothing music.

3. Something beautiful you saw today? (or yesterday depending on when it is you’re answering this question)
I am blind, so I don’t technically see anything, but something beautiful I got to experience today was to feel a cosmea flower.

4. Have you ever used a typewriter? Tell us a memory associated with that.
Yes I have. In the fourth grade, I started learning to touch type and we started out on a typewriter even though computers existed back then (1995). The reasoning was, or so I remember, that you can’t correct typeos on a typewriter. I hated learning to type, whether it was on a typewriter or computer.

5. Something you are grateful for today.
Another long walk with a fellow client and staff much like the one we went on two weeks ago. This time, just one staff went with us. This was a little scary for me, especially because the other client can talk triggering topics at times, but the staff cut her off when she did. This walk was also when the staff picked the cosmea flower for me.

6. Insert your own random thought here.
On Monday and yesterday again, I finally was able to be crafty again for the first time since getting into the new care home. Not polymer clay – that for now takes too long -, but I made a bracelet for the staff who were with me those evenings. I unfortunately forgot to take pictures.

The Wednesday HodgePodge (August 31, 2022)

Okay guys, it’s Wednesday again and this means it’s time to join Joyce for the Wednesday HodgePodge. This week, several of Joyce’s questions are related to Labor Day, which is, what, this coming Monday? Time certainly flies. Here are Joyce’s questions.

1. Something you’ve labored over recently?
Nothing really. I don’t have any large projects I’m currently working on, even though I do need to start thinking about what to create for my husband in honor of our wedding anniversary on September 19. I’m in a crafting rut, honestly. I am, however, working hard on my physical fitness. Does that count?

2. How will you rest on Labor Day?
I probably won’t. It’s a regular Monday here in the Netherlands, so I do have my usual day activities. That being said, if I want to rest, I can do so every single day.

3. Margaret Mead is quoted as saying, “I learned the value of hard work by working hard.” Would you agree? Where and how did you learn the value of hard work?
I don’t think I agree. I worked quite hard in school and college, to the point of autistic burnout, but I wouldn’t necessarily say I value hard work all that much. If anything, by working this hard and subsequently suffering burnout, I learned the value of self-care and rest. Then again, I do realize I’m privileged in this respect, in that I got on disability benefits without any trouble as soon as I turned eighteen and sailed through every re-assessment without any difficulty too.

4. It’s National Eat Outside Day (August 31st). Will you? Do you enjoy dining “al fresco” or do you prefer indoor seating?
I had no idea it was eat outside day in the U.S. and it’s past my dinnertime now, so no, I didn’t. I don’t like eating outside anyway.

5. Somehow it’s the end of August. What was the best day of the month for you and tell us what made it so?
The best day of the month was probably the day my husband took me for a drive to Enkhuizen, 100km away, just for some fish. Either that or last Monday, the day I scored 200% on my Apple Watch’s Movement goal, 300% on my exercise goal (but somehow there’s no medal for that) and received reassuring news on my latest health scare. You see, over the weekend when I was in Lobith, my husband noted a large mole on my back and told me to see my doctor about it. Thankfully, it was nothing to worry about at this point and my staff suggested we keep the picture they took for reference should the mole change.

6. Insert your own random thought here.
Today was the last shift for last year’s student staff here. She treated us to French fries and snacks, strawberry cake and she gave me two bars of chocolate. And not just any chocolate, they were stroopwafel chocolate bars. Stroopwafels are my favorite type of cookies, so this is truly awesome. I gifted her a handmade bracelet. She did joke that, since I have money to buy myself an Apple Watch, I should’ve bought her a new phone. After all, her old iPhone was in horrible condition and I’d been nagging her to buy a new one for months, which she finally did a few weeks ago (well, a refurbished one, which I personally would never do). I think she’s happy with the bracelet though.

#WeekendCoffeeShare (July 24, 2021)

Hi everyone on this late Saturday evening. I’m joining #WeekendCoffeeShare even though it’s rather late for coffee here at nearly 9PM. Besides, I had green tea this evening. I can of course still make you a Senseo, although with the amount of coffee stains in and on my coffee maker I wouldn’t recommend it. So I guess a glass of water or a soft drink should suffice. I hope that’s alright. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d share that I’m so grateful the weather has been much milder over the past week than it was the week before. Of course, we here in Raalte weren’t personally affected by the floods either and damage control down in Limburg is still ongoing. However, the weather here has been truly beautiful.

If we were having coffee, I’d share that, thanks to the weather as well as my feet cooperating, I have been able to get in a lot of walking lately. I got in over 11K steps each day of the week so far.

I am still not sure I’ll sign up for Steptember, the annual fundraiser for the cerebral palsy charity this coming September. The aim is to raise funds while aiming for 10K steps each day, regardless of whether this is done while walking, wheeling, biking, etc. Last year, I did participate, but I didn’t really like the pressure I put onto myself by signing up.

If we were having coffee, I would tell you that I’ve been really crafty over the past week. I have been making some new bracelets. One of them, I sent to my mother. She received it in the post today and was happy with it.

I also picked up trying to do latch hooking again. This is a yarn craft for making rugs etc. I learned this at the blindness rehabilitation center back in 2005 and tried to pick it up again briefly in the psych hospital, but was too easily frustrated for it back then. So far, I am not 100% sure I understand the technique again yet, but I’m confident that ultimately I’ll learn.

If we were having coffee, I’d share that I’m truly grateful for all the comments on my blog over the past few days. It makes me feel so happy to see that others read and appreciate my writing.

If we were having coffee, lastly I would announce that tomorrow is my third blogiversary! That is, it’s the third anniversary of my having (re)started this blog. I say “re” because I used this domain (or the WordPress.com subdomain at least) back in 2011 too. I have been on WordPress for over fourteen years and have had an online diary ever since 2002. I still keep learning and growing everyday. I am so, so grateful that, contrary to what some “influencers” say, blogging isn’t dead at all. I hope it never dies.

How have you been?

Jewelry-Making #WotW

Hi everyone. Today I’m once again joining Word of the Week. I already shared some of my experiences from the week with you all on Friday. Today, I want to focus on an important positive aspect of the week: jewelry-making. Like I said last week, I got a lot of supplies from my parents for my birthday. I also bought some new supplies later this week.

The actual jewelry-making process is still sometimes hard for me due to my being blind and having mild cerebral palsy. I am making progress though in figuring out what works for me.

First, on Wednesday, I made a bracelet for my day activities staff. She had her birthday that day so was off, but my assigned support staff from the home came to sub. I did all the threading by myself and tried to tie the knot too.

On Thursday and Friday, I was even busier making jewelry. I made my first necklace in a long time. It didn’t turn out as good as I’d hoped and I don’t have a photo, but it is nice enough.

I also made a football bracelet for a fellow client. I originally wanted to make something in the colors of his favorite club, but I didn’t have red and white beads. Instead, I chose green for the grass and added a football charm. This client has his birthday next month I think, so I already decided to make him something in the club colors then.

Lastly, I enthusiastically decided to make a necklace for my niece. She is 21-months-old and I had no idea what the appropriate age for wearing jewelry is. I also added acrylic charms that I later realized she might pull off and put into her mouth.

I texted my sister and she said two to three years is the recommended age for necklaces. I thought of keeping the necklace for my niece’s birthday, but eventually decided to give it anyway when my sister and her family visited me yesterday. I’m confident my sister will be able to keep it safe until my niece is ready for it.

How would you sum up your week?

Word of the Week linky

Creating Lately: A Bracelet, Body Butter and Lip Scrub

After a difficult week two weeks ago and lots of frustration at not finding meaning in my activities lately, last week I finally found my creative mojo again. I’ve been pretty busy crafting and DIY’ing over the week.

First, I want to show you all this bracelet I created last Friday. It is simple and I didn’t even do all the work by myself. I mean, I struggled a lot putting the purple beads onto the wire, because my left hand kept spasming and I needed my right hand to keep the wire straight. I tried reversing my hands and letting my staff hold the wire, but it wouldn’t work. Still, I managed to thread some of the purple beads and all of the roses anyway.

I also have been doing a lot of body care creating lately. Last Monday, I made a basic body butter. I used coconut oil, sweet almond oil and cocoa butter. I added in a few drops of coconut fragrance oil for the scent.

I am considering getting a talking kitchen scale, so that I can weigh out my ingredients myself. Not that we used a scale this time – we just guessed how much we’d need.

Lastly, on Thursday, I made a lip scrub. I used coconut oil and cocoa butter for the base and added plain white sugar, honey and vanilla extract. This time, I did most of the measuring myself, even though I still mostly had to guess how much we’d need.

I had made a lip scrub once before, but that one didn’t turn out as thick as we’d wanted. This one is still thinner than most lip balms I’m used to making, but then again it’s a lip scrub, not a lip balm.

I am really loving looking at bath and body product recipes. I am not as good with them yet as I’d like to be, but I like to think I’m improving.

With respect to jewelry, I don’t look up tutorials, as they’re usually far too difficult for me to follow. I just create what I think I can.

What have you been crafting lately?