Neurodivergence and Emotional Dysregulation

Posted on by Astrid

Hi everyone. On Monday, I listened to an episode of the Navigating Adult ADHD podcast. It was on emotional dysregulation and it’s been on my mind ever since.

I don’t have a diagnosis of ADHD, but have wondered for years whether my emotion regulation issues are “just” autistic meltdowns, whether I have borderline personality disorder like my psychologist in the psychiatric hospital used to believe, or whether something else is going on. So far, I haven’t found a satisfactory answer and, with that, I have not found something that helps.

I tried a ton of medications but none truly helped me, except for maybe my antidepressant. That is, obviously my antipsychotic did lessen my emotional outbursts, but it didn’t do so in a pleasant way. In fact, I only felt irritability or I felt nothing. That’s not emotion regulation but being numbed down too much.

I tried dialectical behavior therapy, which I still believe could’ve been helpful if the clinician hadn’t been so horribly invalidating. I mean, there’s quite a world between going along with every single emotion I describe without question (which I realize could be counterproductive) and telling me, albeit implicitly, that my entire way of experiencing things is invalid. I haven’t been involved with DBT for long enough to know whether it in itself is invalidating or whether it was just the clinician being judgmental.

In the podcast, the speaker described six ways in which emotional dysregulation can show up. I related to all of them, though some more than others. For example, my low frustration tolerance is truly debilitating. So is my inability to calm down. I literally still fret over things that happened at the intensive support home and these influence how I react to my current staff. My spouse and I also regularly fight over both of our (but more so my) inability to let go.

The things I relate less to, interestingly, are things I see as relatively “positive”. For example, I do get slightly over-excited at times, but not to an extreme degree. Then again, the fact that I don’t experience it to an extreme degree, is probably why I see it as “positive”: after mulling over negative things for weeks, I’d love something to get overly enthusiastic about. In reality though, finding a new hobby and buying all the “needed” supplies within hours, isn’t actually good for me financially. I just wish I’d experience that rush of excitement. Then again, when, rarely, I do, it often leads to even lower lows afterwards.

I’m joining in with #WWWhimsy.

Being a Snob

Posted on by Astrid

Hi everyone. Today, Sadje’s Sunday Poser is all about snobbery. I’ve always thought of being a snob as something negative, but being proud of your culture or an aspect of it can be a good thing too. So am I a snob?

In the positive sense, no, not at all. I don’t have a fine taste in art or food whatsoever. I actually love going to all-you-can-eat restaurants and hardly notice that the food isn’t good quality.

With respect to art or literature, my bestie and I have this inside joke about people not having read “Multituli”. We got the joke after a semi-famous Dutch writer having said that people outside of Amsterdam never read “Multituli” and are as such quite backwards. The actual pen name of the author is “Multatuli” and I actually did read his work, Max Havelaar back in high school, but other than a few random quotes, I hardly remember the story.

This brings me to my attitude and, yes, I can be a bit snobbish about my intelligence. I remember at one point talking to my assigned staff, the one who is still a student. She told me she was learning about attachment theory in school and, even though my comment wasn’t meant as bragging at all, it did come across as such to her. I told her I probably knew more about this topic than her. I probably do and this isn’t an advantage at all, hence my not having meant it as bragging. In fact, the fact that I know more about emotional development, attachment styles etc. than most of my staff, is quite a problem for me, as I cannot apply it to my actual life.

As a teen, I was quite a horrible snob, taking pride in my intelligence and my education. Now I realize I’m truthfully quite average. In other words, mediocre. This realization does often lead me to making self-deprecating comments. Yesterday, when my bestie and I were discussing Meta AI, I said that of course I’d objected to my data being used. My bestie commented that it makes sense that I don’t want AI to steal my pictures of my polymer clay. I immediately thought this was sarcasm and explained that, while most of my works are indeed based on tutorials and not all that good, that doesn’t mean I want AI to use them. It was only later that I realized my bestie may’ve been sincere.

“Paper No Longer Exists.”

Posted on by Astrid

Hi everyone. Today I’m once again participating in Esther’s Writing Prompt, which this week is “paper”. I could be writing about my rather disastrous attempts at paper crafting, but did so already in 2022. I could also write about my first diary, which I kept on Braille notes stuck into a handmade notebook. That would be a short post, as the diary was short-lived. I only regularly kept a diary once I got a computer.

Instead, a phrase I read in a teen magazine back in 2006, comes to mind. The magazine interviewed a futurologist, a person who scientifically tries to predict the future. They asked whether the teen magazine would still exist in 2020. The futurologist said it would not be in the same form, because “paper no longer exists in 2020”.

He probably meant paper tabloids and magazines, not paper in general. More generally, he probably meant that our digital age would’ve progressed so far that people would no longer read traditional paper media. That isn’t entirely true even in 2025, though I wish it were (because that’d make media much more accessible to me).

In other ways, the futurologist was spot on about life in 2020, though not in a good way. He predicted we’d have found a cure for cancer and AIDS by this time. This was what soothed my mind each time I had a health anxiety attack and worried about cancer: if I just made it to 2020, it’d be cureable. As we all know, it isn’t and most likely won’t be anytime soon. That being said, the flip side of the cure the futurologist predicted, did turn out to happen, ie. a global pandemic. And actually exactly in 2020.

Back to paper. I just reread the article and it said that digital paper, which the futurologist claimed would completely replace regular paper, would look just like traditional paper but be wirelessly refreshable. I know some people have digital photo frames, but I haven’t heard of refreshable paper that’s as thin as the regular kind.

Oh, and in case you were wondering: the magazine I got the article out of, no longer exists.

IQ Tests and Final Exams and Psychological Assessments, Oh My!

Posted on by Astrid

Hi all! Today, Esther’s weekly writing prompt is “tests”. Oh my! This made me think of so many things. IQ tests: I’ve had half a dozen or more during my life. Final exams: so glad they’re over with and it’s been twenty years since I graduated high school. Psychological assessments: I still have a love-hate relationship with those. And that goes for tests in general, I guess.

After all, as a child, I didn’t mind taking IQ tests. When I was twelve, I got the infamous Wechsler IQ test, well, the verbal part of it, since I’m blind and the performance part isn’t accessible. I got a score of 154, which, according to the psychologist, indicated giftedness. I’m pretty sure there were all sorts of things wrong with that assessment though.

When I was 30, I got another IQ test, Wechsler again but the adult version and now they removed the clear distinction between verbal and performance IQ so the report just said I got “parts” of the test. My overall IQ score had dropped to 119 I believe. That’s still above-average and I’m pretty sure that’s correct. However, I wish there were a performance IQ test for blind people, because I am pretty sure that’d show where my real limits are. Not that I’m proud of being disabled, but I am and if it could be proven on a test, that’d be much better than an ever-changing psychiatric diagnosis.

Final exams. Like I said, I’m glad it’s been twenty years since I graduated high school. My final exams were quite frustrating, as not only was I horribly nervous, but my computer crashed once in the middle of the test. I graduated from what in the UK is called grammar school and honestly I have no clue how I did it. I mean, well, I know, sort of: the same way I “passed” my IQ tests, ie. being a pretty above-average memorizer. Too bad that a good memory and decent academic skills don’t get me far in life. It takes more than test-taking abilities to be successful, after all.

How Blogging Has Changed Me

Posted on by Astrid

Hi everyone. Today in her Sunday Poser, Sadje asks us how blogging has changed us and specifically our thinking.

This is a really tough one. I started keeping an online journal that gradually morphed into a blog at age 16 in 2002. Starting that journal wasn’t a surprise: I’ve always been a bit in your face with my issues, especially to strangers. Back then, I wasn’t ashamed to put my thoughts out there for the entire world to read. My English, though it was readable, wasn’t nearly at the level it is now and I had no concept of privacy either for myself or others. I honestly can’t say I don’t regret any posts I’ve put out there. I actually regret having posted some of the writings on my current blog.

As such, having written stuff online for 23 years helped me be slightly more aware of my own and other people’s boundaries. I still probably should be more careful. In fact, I considered starting a new, anonymous blog earlier this year, but I doubt how much that’d help me be truly unidentifiable. I, after all, share so much online about myself that I’m pretty sure my nicknames are easy to connect.

In other respects, blogging has helped me become a better writer. That is, before my days on WP, I did share the stories I’d written as a teen online too. However, these were written in Dutch. Blogging has certainly helped me improve my English.

I still rarely express myself through creative writing, such as poetry or short fiction. That’s a goal I have had for years, but somehow it feels embarrassing to do. That’s weird, isn’t it? I don’t feel ashamed of blabbering about my life, but creative writing scares me.

With respect to connections, WP has helped me immensely. As soon as I moved my diary to WP in 2007, I learned about the blogging community and have started making connections. Some of these people, like carol anne from Therapy Bits, I still talk to more than 15 years on. Blogging isn’t like real life for me, in that hardly any deep friendships have formed out of it. Oh wait, I only have one friend IRL too. 🤣 Maybe this means I’m too superficial for deep connections.

One last thing I learned from blogging is to keep my mouth shut when I have nothing nice to say. That doesn’t mean I can always do so in real life, but I learned early on that particularly when commenting on other people’s posts, you should always include something positive or encouraging. I was harshly criticized back in my early days online for honestly saying that some product wasn’t for me. Turned out the post was sponsored. Let me just say I will never do that kind of thing.

I did occasionally try to be a “lifestyle blogger” in Dutch, but it isn’t my thing and will never be. I’ll, after all, always be authentically me. As such, when I say something nice, I do mean it (it isn’t like I comment positively just because I need to).

That’s a good thing about WP as opposed to self-hosted blogging: there’s less pressure to become an “influencer”. That doesn’t mean you can’t be more or less popular, but I trust those on WP, including those who get a zillion comments, to be authentic.

Devotion to Polymer Clay

Posted on by Astrid

Hi everyone. Today I’m joining John Holton’s Writer’s Workshop. I’m choosing to write on the prompt about devoting your life to art. What type of art would I devote my life to?

The question here is, are we to choose just one particular form of art that we’d devote our entire life to, or are we allowed to pick more than one form? After all, many art forms are interconnected and I would not enjoy one without the other.

For instance, I would probably not enjoy polymer clay as much if I didn’t take photos of my work and didn’t write about the craft on here. Also, if I make jewelry out of polymer clay or use polymer clay beads in a necklace or bracelet, that’s basically combining two crafts.

So, let me say I cannot choose just one art form, because, though my photographs aren’t all that artistic, I’d still have to choose between polymer clay and writing. I flat out refuse.

After all, though writing comes easiest to me, polymer clay is what brings me the most joy. I just love the fact that, even though I’m now totally blind, I still have some insight into colors. I also still, four years into the craft, love creating unicorns.

I made three unicorns in the past week. The latest, I haven’t baked yet because I just made it this evening. The other two I made late last week. One is probably going to be a gift to a staff who gave birth last week. I loved working with the two colors for the mane, tail and horn, but its horn is a little crooked.

The other one, which I myself like best, is for me. After all, you can never have too many unicorns.

A few years ago, I talked to my then staff about possibly creating unicorns to go into the care agency’s shop. That idea never materialized, but I’ve brought it up a few more times. I’d just love to have polymer clay as my “job”. Here, I chose anyway. And I also wrote on another prompt, because creating the unicorns is the main thing that made me smile recently.

Some Might Say It’s Wrong to Be Angry

Posted on by Astrid

Some might say it’s wrong to be angry. I was actually told when I was in fourth grade that I was “angry too quickly”. What my parents and the professionals meant is that my expression of my emotions, whether I was actually feeling angry or not, was wrong given the situation.

That’s not the same. An emotional expression isn’t the same as the emotion that someone is actually feeling.

Besides, I strongly disagree with the idea that emotions can be “right” or “wrong” even given the circumstances. I have always felt that the idea behind dialectical behavior therapy of deciphering whether an emotion you’re feeling is justified in that situation or not, and, if not, acting opposite, is incredibly invalidating.

It’s never wrong to feel angry. Or sad. Or happy for that matter. Yes, it can be wrong to express your emotions in a certain way, such as when you become disproportionately aggressive. Even then, your emotions aren’t wrong. And, at least in my case, the emotion I’m actually feeling isn’t usually anger.

Like, when, last week, I became physically aggressive towards a staff by trying to hit him, I wasn’t angry. I was panicking because the staff was restraining me for the relatively minor offense of trying to grab a small object that he thought I was going to throw to the ground. That assumption may’ve been correct, but that doesn’t mean my feeling of utter panic when grabbed by both arms, was wrong. For what it’s worth, I feel that restraining someone for fear of them damaging an easily replacable object, is out of proportion.

It’s easy to say that people are wrong for being angry, when in reality you can’t know what’s in their minds, so whether they actually feel anger at all. It’s also easy to think that a person trying to throw objects is disturbing the peace for the other people around so you, as a staff member, are justified to do whatever it takes to prevent them. However, just because it’s easy doesn’t mean it’s right.

I’m sharing this post with Missy’s MAD Challenge for this week. The prompt is the phrase “Some might say it’s wrong to…”.

Share Our Lives (May 2025): How I Celebrate My Birthday

Posted on by Astrid

Hi all! It’s the second Monday of the month and this means the Share Our Lives linky goes live. This month, the theme is how we usually spend or celebrate our birthdays.

My birthday is at the end of June, so the weather’s usually pretty good. That is, my parents used to joke that my sister, whose birthday is tomorrow, always got better weather on her birthday than I got. It isn’t true and, quite frankly, now that I have more insight into our family dynamics, it feels like one of their endless comparison games rather than a joke. But I digress.

My birthday and the time around it usually are quite stressful, since it’s the only time a year I ever see my parents and that’s with good reason. Over the past few years, my parents, my best friend and I have often been going out for dinner. It’s always awkward but was more so last year. I haven’t made plans with my parents this year yet.

My sister and her family will also visit me. Last year, this was a bit hard, as my oldest niece was tired and, being four at the time, easily bored. This led to her being cranky and me being cranky from being overloaded as a result. For my birthday this year, we’ve planned a relatively short visit.

All this being said, I do like to have somewhat of a birthday party at the care home. Even at the intensive support home, I treated the entire group to fries and a snack. Last year, I made a cheesecake and also treated the home to home-cooked burgers and salad.

I think gift-receiving is also a fun part of my birthday. The best gift I ever received was my music pillow, which my best friend gave me last year. My parents usually buy me a small gift plus some thrift store items. It may seem stupid, but I do like not knowing what I’ll get even though chances are I won’t be using it much. Besides, I haven’t bought my parents gifts in years.

Now that I look over this post, I realize I honestly don’t know why I usually say I like my birthday, as now that I’m an adult I could easily be buying my own gifts and I don’t like most of the company I get. I think part of it is childlike excitement.

To Speak Out or Not to Speak Out

Posted on by Astrid

Hi everyone. Today’s Sunday Poser is an intriguing one. Sadje asks whether I’m the one who will speak up when I see a wrong being done or whether I’ll keep quiet. I’m going to interpret this more broadly and share how I tend to react to injustice in the world in general.

And the truth is, shameful as it is, I no longer speak up. This didn’t use to be the case. When I first started out blogging on WordPress in 2007 and especially between 2009 and 2011, I frequently wrote about injustices to groups I didn’t even belong to, like trans people. Now though, I struggle to speak up and I’m not even certain this is out of fear of speaking over marginalized groups. Well, that is, I’m quite certain that it isn’t that. It’s fear of being targeted myself.

Don’t get me wrong, I still speak out in real life against injustices being done to other people, especially those I love.

I struggle with this when it’s microaggressions like “jokes” and I actually regularly catch myself making hurtful comments towards people in minority groups I’m not part of.

This is, actually, more problematic than it might seem. I mean, I could say I’m not trans, not an immigrant, not [insert the latest scapegoat of fascism], but in reality everyone has privilege and almost everyone is marginalized in some way. Besides, like my best friend recently said, fascism’s goal is to destroy society.

I am, however, often too scared of being the next target to speak out openly. This is why I’m more gentle than I’d wish I were when pointing out transphobic or racist or otherwise oppressive comments in real life and especially why I’m no longer as vocal as I used to be on my blog. The world just isn’t as safe anymore.

This does also mean I can no longer be fully myself online. It’s just too easy to track me (and my loved ones) down from my blog. It was even easier back in the early days of my being on the Internet, when I’d almost always use my full name everywhere. However, either I was the lucky one back then for not having been attacked in real life, or the world’s become a harsher place. Probably a little of both.

School Reunions

Posted on by Astrid

Hi everyone. One of this week’s Writer’s Workshop prompts is to write a post based on the word reunion. This reminded me of two reunions, one I actually attended and one I didn’t.

The reunion I did attend was for the school for the blind I had been a student at for my last three years of elementary school in the late 1990s. The reunion took place in 2008 and it was on school grounds. The reason the reunion was held, was the fact that many buildings would be reconstructed in the next couple of years, so as to give former students and staff one last chance to see school grounds in the form they’d remembered them.

The school included buildings for both elementary and secondary school, as well as homes for the residential students and a place for leisure activities where the non-residential students had lunch too. I was a non-residential student and only attended elementary school, like I said.

There were two reasons why I wanted to attend the reunion. One was to meet former fellow students and staff. That was a success. I met my best friend from school, with whom I hadn’t been in contact since leaving this school in 1998. I also briefly talked to my fourth grade teacher. That was awkward, as I didn’t feel comfortable disclosing to him that I resided in a psychiatric hospital at the time.

The other reason I wanted to attend the reunion, was to see the school in the form I remembered. That, unfortunately, wasn’t a success, because part of the elementary school, including the classrooms, had been destroyed in a fire in 2006. Part of the building was still standing, but it was no longer useable.

I was on grounds a few more times attending smartphone use training in 2017. On May 24, I believe, there’s going to be another reunion for this school, but it isn’t on grounds and I know no-one who will be attending, so I won’t either.

This brings me to my other reunion story. IN 2013, my high school celebrated 100 years of existence. I for a while considered attending, but was still in the psych hospital at the time and besides, my entire high school experience had been quite bad. So I didn’t go.

A few years later, I got an E-mail from a former teacher there. She had been my Dutch teacher and tutor for the first year and part of the second year of my attending this school, until she went on sick leave and finally found another job. She had been at the reunion and had wondered about me. Having read part of my website, she now understood why I hadn’t been at the reunion.

This, as it turned out, would also have been my last chance of meeting the teacher who’d become my tutor after the Dutch teacher left. He got cancer about a year after I’d graduated high school in 2005 and died in 2016. I am pretty sure it was for the better that he didn’t know that I was still in the psych hospital then.