Five Things I Take for Granted #5Things

Posted on by Astrid

Yesterday, DrTanya’s topic for the #5Things challenge was things you (sometimes) take for granted. I realize I take a lot of things for granted that I really shouldn’t. Here are just five.

1. My intelligence. I don’t take it as much for granted as I used to when in school, but i still feel that I pretty much consider my high IQ a given. Not only that, but I usually find that I’m surprised when others aren’t as intellectually capable as I am. Of course, I don’t mean my fellow clients at the care facility. In fact, they have taught me quite a lesson in humility.

2. My access to medical care. I don’t take my access to long-term care for granted, because that was a fight, but my basic health insurance coverage, I certainly do take for granted. Of course, it is mandatory here in the Netherlands and even those who don’t pay their premiums can’t be refused insurance for at least six months while the insurance company tries to sort things out with them.

3. A roof over my head. I’ve never been without shelter, although in a sense I’ve often felt “homeless”. In the psychiatric hospital, I knew several ppatients who had no home other than the hospital and who were regularly suspended from the ward into the homeless shelter. In this sense, it is really surprising that I never even considered this would happen to me, since I too for several years had no home other than the hospital. I think this signals how secure I felt, in a sense, at the ward I resided at back then.

4. Electricity. I never had to pay my own electricity bills, at least not directly. I mean, even when my husband and I lived together, my husband paid the electricity bills. As a result, I’m hardly aware of how much energy really costs. My husband did tell me how well we did compared to other households and we were always relatively frugal. Even so, it all seems a bit abstract to me.

5. Access to a computer. I don’t take Internet access for granted, but access to a computer, I certainly do. Even in my early days at the locked psychiatric ward, I had my laptop with me and there was no way anyone could take it from me, regardless of what the rules said about only certain electronics being permitted. Thankfully, my nursing staff did understand.

What things do you take for granted?

Reasons I Think I Want to Stay in My Current Care Home

Posted on by Astrid

Last week, I was discussing my insecurity about living in my current care home with my assigned home staff. I still keep searching for another place to live, even though staff keep reassuring me that I don’t have to leave. Part of the reason for this is probably habit, in that I feel I ought to be looking for another place because that’s always been the case. However, my assigned staff also challenged me to write down a list of reasons I want to stay in my current care home and a list of reasons I may want to leave. Today, I’m going to share my list of reasons I think I want to stay. I’m pretty sure I won’t be sharing my list of reasons I may want to leave, as these are more like things I am hoping to find a solution to within my current care situation. Anyway, here are the reasons I probably want to stay in my current care home.

1. My one-on-one support. Of course, this is government-funded and may be transferable to another care facility, but I do like the fact that my current care team really think my care is important, in that staff shortages won’t easily mean my care will be cut.

2. The fact that I have gotten to know most of my staff. Of course, no-one can guarantee they’ll remain part of my team for the foreseeable future, but if I leave, the whole team will be new at least at first.

3. The fact that my staff help me with activities of daily living. This is a bit of an uncertain thing, as I sort of feel I ought to be able to do more of them independently.

4. The fact that I get day activities in the home and am the only one who does for now. Even though it may be possible to get day activities in my room at another care facility, I might not be the only one. I like the peace and quiet during the day as it is now.

5. The fact that fellow clients hardly make an appeal on me. Most leave me alone most of the time. This is a good thing, but I did put in my other list that I wish to interact with other clients somewhat more than I currently do.

6. My own room with my private bathroom, kitchenette and balcony. Thankfully, shared rooms are no longer in existence within disability services as far as I’m aware, but shared bathrooms definitely are.

7. The weighted blanket the care facility paid for me to sleep under. I mean, seriously, if I were to transfer to a different care agency, I’d lose that too.

8. The Internet access. Pretty much unrestricted, mind you. At least, I haven’t run into any sites that are blocked by the care facility’s WiFi. At least social media and games are allowed. I’m not particularly interested in anything adult content, so haven’t checked that. I can also use the Internet whenever I please, including at 3AM should I so desire (which I occasionally do). I am pretty sure some other care homes would be more restrictive about this.

Overall, looking over this list, I think that, while things aren’t perfect, my care home is pretty good. Actually, I am quite sure it’s pretty much the best I can get.

loopyloulaura

Ten Things I Love About Spring

Posted on by Astrid

Hi everyone. It’s the first day of spring, so what better day than today to share my favorite things about spring? Granted, I didn’t come up with this idea myself, but found it in a list of journaling prompts. Here goes.

1. The flowers. Yesterday, I came across a spring snowflake (Leucojum vernum). I love the many other spring flowers, including daffodils, hyacinths, crocuses, etc.

Spring Snowflake

2. The sunshine. When it’s sunny on a spring day, it’s not so sunny that I will get very easily sunburned. Not that I get sunburned easily anyway, and I do make sure to use a facial cream with sunscreen when going out in spring too. However, I really like the spring sunshine more than winter’s or summer’s sunshine.

3. The temperatures. This week, we get really great spring weather, with temperatures rising to about 18°C. I love this. It usually gets like this even more often in April and May and may even get warmer, which I like more. My ideal daytime temperature is about 22°C.

4. The birdsong. I really love to hear the birds sing in spring! I of course can listen to birdsong on Spotify too, but the real thing is much better.

5. My mood usually being better. I know that spring fatigue is a form of seasonal affective disorder, but I don’t suffer from it. In fact, my mood tends to improve in spring.

6. The smells. Of course, this is related to the flowers, as most spring-related scents are floral. I really love the smell of hyacinths in particular.

7. The fact that sunset is still early enough that I can go outside close to it to take pictures. I recently learned that taking pictures outdoors at midday will make the pictures look bad due to overexposure to sunlight, so I instead decided to go out to take pictures closer to sunset. (Sunrise, as regular readers of my blog will know, is way too early for my liking even in the middle of winter.) Now that it’s early spring, the sun sets at around 6:45PM, but when daylight saving time sets in this Sunday, that will be an hour later. In the middle of summer, I won’t be able to go out close to sunset because my one-on-one will have left, but in spring, I will still be able to.

8. Daylight saving time. This means longer days (for me). I already talked about the advantages of it for photography, but it also means I can have the curtains open longer and get daylight in.

9. Baby animals being born. And the cows at the nearby farm being released from their barn. It’s awesoome to watch farm animals in spring.

10. Extra money in May. For whatever weird reason, people on disability benefits, like those in regular employment, get holiday pay. This is deposited into my bank account in May. I usually have something in mind to spend it on (other than a vacation) months in advance. This year, I’m still undecided, but I really look forward to it.

What are your favorite things about spring?

Ways in Which My Life Has Improved Over the Past Few Months

Posted on by Astrid

Lately, as I’ve been recovering from COVID and as the news of the war in Ukraine has been intensely scaring me, I’ve focused more than I would like to on how my life has seemed to have spiraled out of control. Staff changes at my care home also contribute to my feeling of insecurity. This combined leads me to feel that I am worse off than I was a few months ago and getting worse by the day. For this reason, a prompt that I came across in one of my journal writing books, is particularly compelling to me right now. It asks me to describe in what ways my life has improved over the past couple of months. Here goes.

1. I sleep better. I am pretty sure this isn’t entirely due to the lingering effects of COVID, though they do play a role. I am pretty sure the new medication, pregabalin (Lyrica), also helps. I feel a lot more rested when waking up, have fewer nightmares, etc.

2. I am less anxious. Though I still experience night-time anxiety, it has significantly decreased particularly over the past couple of weeks. I am pretty sure this is thanks to the pregabalin too.

3. I have been able to be more creative. I have truly discovered my artsy side over the past couple of months. I do still stay somewhat in my comfort zone, but am exploring ways to step outside of it just a little bit too.

4. I have started on a healthier food plan. This is hard, but it is more doable than I initially expected it’d be. Though I let things go a little when I had COVID, I only gained like 0.2kg from before I got sick. Overall, I’m not disappointed.

5. I have developed some more trust in some of my staff. This is still fragile and it is even more so with the staff changes. For this reason, we have let go of the word “trust” for the most part when referring to my relation to the staff and called it “acceptance”. I feel proud of myself for admitting that I am beginning to trust a couple of staff members rather than just accept them.

Though some of these things seem to be outside of my control, they really aren’t. I mean, I have to thank the pregabalin for my decreased anxiety, but I also do practise relatively good self-care by sleeping with my music pillow when stressed, for instance. I think, by the way, that it helps to hold the view that, though my life isn’t in my hands, my choices are within my control.

How has your life improved over the past couple of months?

Four Skills I Wish I Were Good At

Posted on by Astrid

Today, one of Mama Kat’s prompts is to write about something you wish you were good at. I can’t just name one thing, so instead, I’m going to make a list of skills I wish I possessed.

1. Creative writing. Like I said on Sunday, I don’t really have a vivid imagination at all and my works of creative writing aren’t all that original at all. Now of course Julia Cameron (from The Artist’s Way) and others say you really don’t have to have natural talent to be a creative. Maybe then, I wish I had the perseverance to actually sit down and write those tons of freewrites, raw drafts, etc. it takes to come up with a coherent story in the end.

2. Photography. Okay, I don’t really mean the ability to point the camera correctly, set the right filters, etc. That’s a skill I will never possess due to being blind. I rather mean the ability to find picture-worthy things in my environment and then direct my staff to take pictures.

3. Language learning. This is a broad skill. Again, it is not something I wish I were good at per se – I already think I’m a decent language learner if I set my mind to it. Of course, I wish I were better at phonics in general, so that I could more easily develop decent-sounding speech in the languages I know (which currently is singular language, honestly, as I only know English as a second language). However, as with creative writing, I wish I had the perseverance to actually devote myself to learning a language rather than wanting to be able to write a blog post in said language immediately.

4. Distress tolerance. Ha, let’s share a skill that isn’t just useful for the fun of it. I really wish I were good at tolerating frustration. In dialectical behavior therapy, this is considered a skill that can be learned indeed, but I honestly am highly skeptical about it in my case at least.

What do you wish you were good at?

Mama’s Losin’ It

Gifts My Husband Gave Me

Posted on by Astrid

Today is Valentine’s day. Of course, my husband and I aren’t together now, as he had to work and I’m at the care facility, but I wanted to honor the occasion anyway by sharing something about my husband I appreciate. I looked to Lisa Shea’s collection of journaling prompts on love and romance. One of the prompts is to share a gift your lover gave or gives you that’s most precious to you. It can be a physical gift or an action or emotion. Instead, I am going to share a list of things my husband gifted me. Some of these things, I didn’t really appreciate in the sense that I liked the gifts themselves, but the gesture at the time was very much appreciated. And the story behind those gifts gives me and my husband a good laugh now.

1. A Planxty CD. This was the first gift my husband gave me when we were officially dating, for my 22nd birthday in 2008. I only listened to it probably once or twice when he came to visit. Then again, that same year, when he had his birthdday on November 12, I thought I’d gifted him a very well-thought-out present: a book of previously-unpublished philosophical texts by British Idealists. British Idealism was my profile research (high school graduation thesis) topic and he was a philosophy major at the time. He never read the book though.

2. Homemade apple pie. One year, I think it was 2010, my husband brought me a home-baked apple pie in the psych hospital. It was delicious!

3. A Tom Lehrer CD. This CD was much more appreciated than the Planxty one. In fact, I put the entire thing on my computer so that I can always listen to it, even now that I don’t have a CD player anymore (or the CD for that matter).

My husband had introduced me to Tom Lehrer’s song I Hold Your Hand in Mine back in 2008 and I loved it. From there on, I learned about most other songs. We still crack jokes about some of these songs.

4. Chocolate. It used to be kind of a tradition that my husband would buy me chocolate on Valentine’s and our wedding anniversary. Not that I’m a big chocolate fan, but I loved them nonetheless. One year, I bought my husband peanut rocks (chocolate filled with peanuts), but I’d bought him the milk chocolate ones when he preferred dark chocolate. Oopsie.

5. A bear soft toy. I can’t remember whether I showed this one on my blog yet, but last year, I got a gorgeous teddy bear holding a heart for Valentine’s day.

6. Winegums. I remember one day, my husband had been shopping at the wholesale store and he’d bought five bags of winegums (gummy candies) for me. He said he’d wanted to buy a prime number of bags and three seemed a little too few to him. You can imagine my delight, but, if you know me, you can also imagine I consumed them within a week.

7. A phone case. In 2020, when I’d bought my current iPhone, I’d asked my husband to set it up as a birthday gift and, if he wanted to give me a material gift anyway, he could give me a case. It turned out I could do the setting up mostly myself with some help from my staff, but I did get a pretty sturdy phone case.

I’m pretty sure I’m forgetting something really important my husband gave me. Of course, the most important thing he gave me, and continues to give me, is his love. I hope he feels I give him the same in return.

loopyloulaura

Also linking up with Senior Salon Pit Stop #200.

Things I Am Passionate About

Posted on by Astrid

In today’s Sunday Poser, Sadje asks us what we’re passionate about. Passions can be defined in various ways. They can be things we enjoy doing, but also societal issues we hold strong opinions about. In the below list, I am going to go into both, because I do enjoy talking about the issues I feel strongly about.

1. Writing. My greatest hobby is certainly writing. I’ve always enjoyed it. It is definitely something I do with a passion. I don’t talk about my writing that much though.

2. Crafts. Another of my hobbies is crafting. Unlike writing, I do talk about my crafting a lot. I love to infodump about my latest crafty hobby, be it soap making, polymer clay or whatever.

3. Autistic, mental health and disability activism. Back in the days of my first WordPress blog, most of my posts were opinionated and related to disability, neurodiversity or mental health. I no longer write as much about autistic advocacy, disability rights or the like, but that doesn’t mean I no longer feel passionate about these issues. I have always considered myself a moderate pro-neurodiversity activist, in that, though I side with autistics and the neurodiversity movement, I do feel that most neurotypicals are well-intentioned, though privileged.

4. Calendars and timekeeping. I just need to mention this. I used to love calendar calculation, ie. calculating what date March 25, 1955 was or the like (it was a Friday, by the way). Now, though I’m no longer as interested in or competent at it, I do still feel passionate about issues relating to it. Never tell me that because it was New Year’s yesterday, there were “really two Sundays” this week. No, New Year’s is a bank holiday and this year it was on a Saturday, not a Sunday.

There are probably other things I feel passionate about, but these are the things I can think of right now. What do you feel strongly about or what do you enjoy doing very much?

My Hopes for 2022

Posted on by Astrid

Hi everyone and a very happy 2022 to you all. Today, like each year, I am sharing some things I hope to achieve in the coming year. I don’t usually call them goals, let alone resolutions. I mean, I used to have a ton of New Year’s resolutions when I was a teen, but these went out the window come Blue Monday. Not that I’d ever heard of that date at the time, but it was still what happened. So, hopes. Here are my hopes for 2022.

1. Get to a less stress-filled (I originally typed “less stress-free”), relatively healthy diet. I already eat relatively healthily at least if I look at my hopes for last year, in that I consistently eat two to three servings of fruit each day. I have also ditched the cookie with my morning coffee. My idea of experimenting with eating bread rather than crunchy muesli for breakfast, went out the window pretty soon and I’m not likely going to give it another try.

That being said, I could still improve on my lunches and make healthier snack choices. Besides, I would really like to stress less about food. For this reason, my staff got in touch with the dietitian, who is going to E-mail her a list of tips and recommendations based on my current food list this coming Tuesday.

2. Remain stable mentally. I am pretty stable mental health-wise already. I hope I will remain relatively sane as I adjust to my increased topiramate and later my decreased aripiprazole in particular. Of course, my aripiprazole taper might not be over with by the end of this year.

3. Keep writing consistently. I started a morning writing ritual today. Officially, I decided on Morning Pages, which dictates you have to write three pages. Then again, this is done by hand and I cannot do this anyway. I’ll be content if I can keep up the writing habit each morning even if I don’t make it to 750 words.

I did pretty great on my blogging over 2021, having written 303 posts over the year. I’d really like to write at least as many posts this year.

I would also like to broaden my horizons where it comes to my writing styles, writing more creatively.

4. Expand my creativity. Particularly, keep up with my creative hobbies. I did quite well on those over the past year too, having rediscovered polymer clay. I’d really like to improve my skill, but, like last year, don’t intend on doing the work all by myself.

I would especially like to discover some things to make myself rather than just copying from YouTube. Of course, I already select my own colors and do some things differently than in the tutorials, but I’d really like to expand on my creativity.

I will continue to do my own version of The Artist’s Way. I mean, I can’t take myself on artist’s dates completely solo because I can’t leave the house independently, but so what? My inner artist wants to be released just as much.

In line with the above, I’ll also experiment more with making my own essential oil blends and such rather than just copying recipes I find online.

5. Get back into the reading groove. This was a massive fail in 2021. One of my bookish resolutions for 2021 was to read 20 books. Well, I didn’t even reach half of that. See, I should’ve called them hopes rather than resolutions. Anyway, I’m not setting a number for myself right now, but I do hope to read some more than I did last year this year.

6. Socialize more, be it online or offline. COVID permitting, I’d like to go to the rescheduled Cerebral Palsy Day in April and to a regional Eye Cafe. This is a meeting of the Eye Association, which I joined in late November. I may also want to join the regional CP Cafe, which is held online on January 8. In addition, I’d really like to join online and hopefully at some point offline meetings related to my hobbies.

7. Deepen my faith. My faith really went in deep ebbs and flows over the past year and that’s not good. Thankfully, I didn’t lose my faith altogether. In fact, I signed up for an introductory course on Christian doctrine at BiblicalTraining.org last Thursday to get myself back in tune with what I believe. I really hope to be working on my relationship with God through Jesus Christ more this year.

What are your hopes for 2022?

Mama’s Losin’ It

Also linking up with #LifeThisWeek.

Hobbies I Could Turn Into Christmas Gifts

Posted on by Astrid

Hi everyone. As regular readers of this blog know, I have a lot of eBooks on journaling. One of them is a collection of 31 Christmas-related journaling prompts and one of its prompts is about turning hobbies into Christmas gifts. The prompt asks us to think of ten hobbies that could be turned into Christmas presents. They don’t have to be physical presents. In fact, the explanation behind the prompt was about a little boy coming to greet Jesus and, rather than bringing riches like gold or myrrh, he brought his drums and played little Jesus a song. Today, I am going to share some of my passions that I could turn into Christmas gifts. I am pretty sure I won’t make it to ten, but that’s okay.

1. Storytelling. Some kind words can mean the world to someone. I am not too much of a wordsmith in terms of poetry or fiction, but I can definitely share some of my positive thoughts with someone I care about this holiday season.

2. Soap making. Okay, I can’t find my Christmas tree mold as I write this, but I could still create a soap in festive colors. After all, I do have gold and red mica powders.

3. Aromatherapy. Related to the above one, I could obviously add a Christmassy scent to my soap or other DIY bath and body care product. I have a ton of seasonal essential oils, including white fir, cinnamon and orange. I also am pretty sure I have a Christmas tree fragrance oil.

4. Polymer clay. Of course. I recently created a polymer clay Christmas tree and am going to buy white Fimo soon so that I can create a snowman too. I have a few Christmas-related cutters, but I prefer creating sculptures.

5. Jewelry-making. I don’t have that many Christmas-colored jewelry-making supplies on hand right now, but if I wanted to, I could purchase them. I can definitely make a holiday-themed keychain or bracelet. If I am going to use my polymer clay to make jewelry with, I do have Christmassy colors.

6. Reading. I could read my fellow clients a Christmas-related children’s story.

7. Baking and cooking. I am not a great cook or baker, but I could with some help from the staff definitely whip up some seasonal treat. I love looking up recipes.

Well, I can’t think of anything else right now, but I am pretty content with how I did on this list.

How could you turn a hobby of yours into a Christmas gift?

Keep Calm and Carry On Linking Sunday

Five Activities to Do on Rainy Days #5Things

Posted on by Astrid

Hi everyone on this cloudy and chilly but dry Tuesday evening. Today’s prompt for the #5Things challenge is to share our favorite activities for rainy days. It hasn’t been raining much here at all lately – I guess we’re making up for a rather wet summer. However, the fall and winter usually are our rainy seasons here. I thought I’d participate and share some activities I love to do when it’s raining outside.

1. Listen to music. Contrary to some of the other participants in the challenge, I don’t like watching or listening to the rain. In fact, the sound of heavy rainstorms scares me. To drown out this noise, I like to listen to music, particularly upbeat songs.

Interestingly, I do occasionally love to listen to water sounds on my iPhone, but not specifically rain.

2. Read. When I can’t go outside because of the rain, it’s the perfect time to pick up a book and read. I read a wide variety of books, but, as regular readers of my blog will know, I mostly enjoy memoirs and realistic young adult fiction.

3. Craft. Rainy days are also the perfect time for crafting. Now that it’s not raining as much anymore, I can totally see my creative juices drying up a bit.

4. Chill out. I look forward to relaxing in my recliner, which my husband cleared of most of the stuffed animals and other things that were cluttering it last Sunday. I also love to take extra naps or just chill out under my weighted blanket. Since the day center reopened, lastly, the snoezelen® room is also now available to me at times. All of these activities are especially great for rainy days.

5. Enjoy a hot drink. Particularly hot cocoa, but coffee or green tea will do as well.

What do you like to do when it’s raining?