#WeekendCoffeeShare (September 4, 2021)

Posted on by Astrid

Oh my, it’s September already! I at first was going to type “July” in this post’s title, then thought that it was August, only to realize that month too has passed. The weather is still pretty nice for late summer/early fall: sunny and about 20°C.

Today, I’m joining #WeekendCoffeeShare. I already had all my coffee for the day, so a soft drink or water will have to do. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week has been a true rollercoaster emotionally. It started with my vision screening by the blindness agency. I really want to share more about my feelings of grief and denial about having lost all my vision. In fact, I still always want to put in a caveat about that tiny bit of light perception I still have left whenever I’m saying I’m now totally blind. But I guess that’s what I am: totally blind.

Then again, I don’t want to wallow in my sadness and would quickly move on to demonstrate VoiceOver Recognition and celebrate the powers of technology.

If we were having coffee, I’d also share that the day center is reopening on Monday after eighteen months of being more or less closed due to COVID. My day activities will largely remain in the home with my own one-on-one staff though.

That being said, I did hyperfocus a lot on the details of my activity program and the times staff aren’t directly available for me. This caused some major distress, but I eventually managed to put things into perspective.

If we were having coffee, I would tell you that I finally surpassed my Mom with respect to step count in the Fitbit app. For a while, I myself had been last among my Fitbit friends. I however did get in over 10K steps two days this past week. That’s a big win, considering I struggled to even get to 5K most days last week.

If we were having coffee, I would vent my frustration about my pasta machine, which I use for polymer clay, not working correctly. The thing I use to attach it to the table, won’t work. Thankfully though, the staff who gave the machine to me has a son who may be able to fix it.

If we were having coffee, lastly I would tell you that I’ve been doing a lot of inner work lately relating to my life as a dissociative (multiple personality) system. After some conversations with my assigned home staff, I finally decided to do a system mapping again. Like I mentioned on Thursday, I used to have a list of all of us here on the blog, but removed that as it was less relevant. My staff though do find it useful.

I also downloaded an app called Simply Plural, in which systems can keep track of who’s “in front” (the alter you see on the outside) and can do system polls on decisions too. I will probably write the developer about some bugs in its usability with VoiceOver and some suggestions, but so far, it seems quite cool.

I also finally decided to download some more books exploring trauma and stuff from Bookshare. I might explore the subject more, be it in my personal journal or here.

How have you been?

Dropping Those Extra Pounds

Posted on by Astrid

One of Mama Kat’s writing prompts this week asks us what’s sabotaging us in dropping those extra pounds. I remember about six years ago responding to a similar prompt on my old blog. At the time, the prompt asked us specifically about those first five pounds. That would be somewhat fitting for today too, as my weight currently is about five pounds into the obese range.

It hasn’t always been that way. Back in 2015, losing five pounds wouldn’t even get my BMI under 30. In 2017, I had a BMI close to 35. I managed to turn that around and lose almost 10kg or 20lbs in six months, crossing the line back to just plain overweight for the first time in many years.

Now I’ve been back within the obese range for several years already, but my weight has been more or less stable for about two years now. I would really like to lose those first five pounds, but something’s sabotaging me. And that something isn’t binge eating anymore.

In fact, back in 2015, I admitted that the problem wasn’t most likely my emotional overeating either. I’m not sure that’s true, as I considered it a win that I hadn’t had a binge in a few weeks. Now, I haven’t had one in months.

However, I was probably right that it was more my habitual snacking and lack of exercise. Currently, I do try to get in enough exercise at least with my walking, but I still eat just a little too many cookies and chips.

The fact that I get in enough walking, probably keeps me stable, but I could be doing so much better if I just resisted the urge to have a cookie or two with each coffee break. Like my husband once said, if I removed just one cookie from my diet and didn’t make it up with anything else, I would have lost those first five pounds within six months to a year.

Mama’s Losin’ It

Dissociative Identity

Posted on by Astrid

The person in the mirror is not me. The person who carries this body’s name, doesn’t really exist as its own identity. We, as in, me and about 40 other insiders (also known as alters, parts or headmates depending on your perspective), share the body. We each have our own names; none of us claim the body’s given name, even though we’ve never felt comfortable claiming a collective name for ourselves other than Astridetal. We all have our own ages and more or less age-appropriate abilities too.

This evening, I was talking with our assigned staff after another small crisis in which one of the more emotionally immature insiders came forward. I was talking about the fact that we switch between alters more than I’d like to admit on a daily basis. I mean, Annemiek is our crafty insider. When we do polymer clay or jewelry-making, she’s out in the body. She, however, can see in the inner world, even though the body is completely blind. So when she gets frustrated with the intricate aspects of crafting, she shoves someone else forward.

Deborah was out this evening. She is 22-years-old, but very emotionally immature and very mistrusting of others. She is one of the ones claiming to need even more one-on-one support than we already get.

Our staff knows about our existence, but she didn’t know how we juggle the frequent switches on a daily basis. Some of these switches are not as overt as Deborah’s coming forward this evening. For example, when Annemiek is crafting and everything goes to plan, she can be pretty well-collected.

At one point, the staff suggested we create a list of insiders. We used to have one here on the blog, but deleted it as this blog evolved from a mental health blog to a more eclectic blog. Sadly, it turned out I hadn’t saved the file anywhere, but I had created a list some nine years ago for a former therapist. That one was quite eye-opening, as not only have a lot of insiders emerged since then, but some old ones have changed roles. It was very interesting looking at and updating the list.

Sometimes, it hurts that I’ve lived with these strangers for so long. I know for certain that some of us emerged as early as 2001. That’s twenty years ago. Even so, I suspect some of us have been inside this body for far longer, as is commonly the case with people with dissociative identity disorder (a diagnosis we do not currently have, by the way, but used to). I cannot at least remember a time without alters.

This post was written for Reena’s Xploration Challenge #197.

#IWSG: Success As a Writer

Posted on by Astrid

IWSG

It’s the first Wednesday of the month once again and this means it’s time for the Insecure Writer’s Support Group (#IWSG) to meet. I don’t really have much to share with respect to how well I did in the area of writing. I mean, I did okay, having written 21 blog posts over the month of August. I didn’t really broaden my writing horizons at all, but that’s okay. Other creative outlets (ie. polymer clay) have taken priority.

So, with no further ado, let’s get to this month’s question. This month, the optional question is how we define success as a writer.

As someone who has only had one short piece published so far, I can’t really define success by how well-accepted my works are in the area of publishing. At least not unless I want to consider myself a massive failure. This doesn’t mean I don’t define success by external standards though.

When I first started writing for an audience with my online diary in 2002, I hardly had that audience in mind at all. The service I used didn’t have a comment feature or stats, so there was no way of knowing who’d read my writings except if they’d E-mail me about them.

When I transferred to WordPress in 2007, I still didn’t care about or even pay attention to my stats. I was delighted when my blog posts got featured on a popular-in-my-niche blog, but that’s about it.

Then when I started what I refer to as “my old blog” on this blog in 2013, I did understand more about blogging and WordPress, so I did pay attention to how many comments I got. That’s usually how I defined success at the time. I also checked my stats more regularly, but still didn’t really know what they meant.

I still to this day usually define success by the engagement I get on my blog. Since starting this blog in 2018, it has been steadily improving.

I do try not to obsess over my stats though. I mean, back in the days of my old blog, I would hardly ever respond to people’s comments because those comments would distort my stats. I have learned since that it is not just morally expected but good for your engagement too to reply to each comment you receive.

Besides the number of comments I receive, I would like to add that it helps boost my sense of success as a writer to see that people are genuinely touched by or interested in my writings. I feel therefore that the content of comments also matters.

How do you define success as a writer?

Why I Write What I Write #OpenBook

Posted on by Astrid

“I write because I don’t know what I think until I read what I say.” – Flannery O’Connor

Yesterday, I read Stevie Turner’s post for the Open Book Blog Hop and the topic really struck a chord, as did the accompanying quote, which I copied above. The question Stevie poses for this week’s hop is why we write what we write.

I mostly write personal essays, journal entries and other works of autobiographical nonfiction. It may surprise you that I didn’t start out this way. As a child, I wrote fiction more than I wrote diaries. I wasn’t too imaginative, but I tried my best and my parents and teachers were pretty impressed. I always wanted to be a writer.

I started writing a regular diary when I was thirteen. About nine months later, I read Anne Frank’s diary and pretty quickly decided I wanted my diaries published when I’d grow up. That never happened and isn’t going to happen either, not even here, since my crazy ramblings of the time are none of my current day readers’ business. It was 2000 at the time, so online diaries already existed, but I was unaware of their existence.

I continued to write some fiction on a semi-regular basis and aspire to get at least some pieces of fiction published at some point until my late teens or early twenties. Now, I don’t have any aspirations for getting any fiction published.

As for why I write what I write, there are two main reasons. The first is to express myself. I revived this specific blog in 2018 in an attempt to allow myself to write more from the heart than I was permitting myself to do on my old blog.

As an offshoot from the wish to express myself comes the wish to find likeminded individuals. I blog in English because the English-language blogosphere on WordPress and Blogger is much larger and by extension more diverse than the Dutch one, which consists primarily of wannabe “influencers”. Through my writing, I aim to connect to people who share similar experiences to mine.

With respect to my fiction, this has always been the goal of my writing, really, too. My fiction always had very strong autobiographical components and I was looking to diversify young adult fiction. I am sometimes surprised at how well-represented people in minority positions, including multiple minorities, are in fiction nowadays. As a teen, my goal was to be part of that movement. I guess by merely writing openly about my experiences online, even though I’m no longer engaged in activism, I may be doing this.

Things That Made Me Smile (August 30, 2021) #WeeklySmile

Posted on by Astrid

Hi everyone on this beautiful Monday evening. I was feeling a bit down in the dumps earlier today. The reason is the fact that I had a vision screening by the blindness agency this morning. The result was more or less as I expected: I only have a tiny bit of light perception in the central visual field of my left eye. It however was a bit of a bummer too, in that I’d hoped to perform slightly better.

To cheer myself up, I thought I’d join The Weekly Smile and share how amazingly far assistive technology has come. It may not replace actual vision, but, combined with my imagination, it can go a long way.

What I mean by assistive tech specifically is VoiceOver Recognition, the iPhone’s built-in image description functionality that was released first in iOS 14 not even a year ago. Last month, I already mentioned that it can recognize some basic shapes and colors (such as my pink, heart-shaped polymer clay ornament.

on Wednesday though, my father-in-law posted a picture of a statue to the family’s WhatsApp group and asked us to guess who it was. Without VoiceOver Recognition or similar third-party apps, I would have lost out on the fun. VoiceOver Recognition though immediately described the image as a statue of a bear on a water fountain. I replied with this answer in the group and was asked to name the bear. A little Googling revealed that it was “Berend Botje” from the nursery rhyme by that name.

My husband told me that, from the picture, he hadn’t made out that the statue was of a bear. I ran the image through VoiceOver Recognition and Seeing AI, one of the more commonly-used third-party apps for image description, just now and neither recognized it as a bear specifically this time. However, the fact that I “won” my family’s very visual riddle despite being totally blind, definitely makes me smile.

I’m also joining in with #LifeThisWeek and #SeniSal.

#WeekendCoffeeShare (August 29, 2021)

Posted on by Astrid

Hi everyone, how are you? I’m a bit late joining #WeekendCoffeeShare, as it’s already Sunday. I just had my afternoon coffee and, like I said last week, my Senseo is with my husband now. Now I’m assuming he won’t use it much, as not only is he more of a freshly-brewed coffee person, but he’s trying to cut back on his caffeine intake. That’s his decision though. Let’s have a cup of coffee (or pretend to) and let’s catch up.

If we were having coffee, I’d share that I had a good week overall. The weather’s been okay. Not as warm as I’d like it and a little windy for my liking too, but at least it’s been mostly dry.

If we were having coffee, I would share that I decided not to join Steptember, the annual cerebral palsy fundraiser, this year. I participated last year, but the pressure of having to get in 10K steps each day (or as many as I could) and raise money, was a bit too much for me.

If we were having coffee, I’d also moan about my AFO. Yes, it’s been a while, but if you’d thought that no news is good news, you would be wrong. My AFO had been with the orthopedic instrument maker, whom I’ll call AFO guy, for a few weeks, but upon return, we found out that it’s still not working well in combination with my orthopedic shoes. Now AFO guy and shoe guy were both contacted by the physical therapist and it’s up to them to figure out how to solve the issue.

If we were having coffee, I’d also whine a little about my foot pain. The physical therapist hasn’t gotten back to me about that, so I’m not sure what’s causing it. Could be my shoes, since they’re really old (the non-adaptive ones I now wear). Please pray AFO guy and shoe guy will figure out the issue with my adaptive footwear soon.

If we were having coffee, I’d ask you to pray for my niece. I didn’t ask my sister permission to share her hip dysplasia diagnosis last time, which I think now is wrong, so I won’t be sharing any more details. However, she is definitely in need of continued prayers.

If we were having coffee, lastly I’d share that I’ve been really crafty over the past week again. I created some lovely polymer clay ornaments, as well as a hand cream and keychain for one of my fellow clients, who had his birthday on Wednesday. Yesterday, I encountered a lot of frustration with one of my Fimo Professional clays being very crumbly and hard. I eventually managed to restore it to health though.

How have you been?

Gratitude List (August 27, 2021) #TToT

Posted on by Astrid

Hi all! Can you believe August is almost over with already? I certainly can’t. Today I thought I’d do a gratitude list. I’m joining Ten Things of Thankful (#TToT), as well as Thankful Thursday (a day late) again.

1. I am grateful for French fries. On Sunday, the staff decided to get those delivered to the care home. Of course, I had a very spicy snack called mexicano with it.

2. I am grateful the volunteer handymen came over to my room on Monday to put together the new desk I bought at Ikea two weeks ago. At first, it was a little too high (the legs are adjustable in length), but the handymen had been struggling to get the legs to cooperate. For this reason, I was hesitant to ask them to adjust them. However, once they’d figured out how to work the mechanism, it was pretty easy. I am so grateful to have my new desk now.

3. I am grateful both my assigned day activities staff and home staff are back from vacation as of this week.

4. I am grateful my CPN is back from vacation. I am glad I had a good discussion with her on Wednesday.

5. I am grateful to be making progress in my creative endeavors. I am quite perfectionistic, so have thrown a few of my polymer clay pieces in the bin, but without failing, one doesn’t learn, right? I am also grateful for all the constructive feedback I receiv in Facebook groups.

6. I am grateful my polymer clay alphabet stamping set arrived. I had had it on my wishlist for a while, ordered it on Monday and it arrived yesterday. Unfortunately, a part of it was missing. One of my staff went after it and the store just replied that they’ll send the part that is missing.

7. I am grateful for summer fruit. My day activities staff, who lives near the supermarket my care facility normally buys from, was asked to get some stuff (buttermilk, I think, yikes!) on Thursday and she asked me what else I wanted her to buy now that she was going to go get groceries for us anyway. She bought peaches and strawberries and they were delicious!

8. I am grateful to be able to put a smile onto people’s face with my handmade gifts. Like I may have mentioned, my day activities staff got a present from me. So did a fellow client, who had his birthday on Wednesday. He had the hugest smile on his face when I gave him his hand cream.

9. I am grateful to live in a free, developed country. All the news about the Taliban having taken over Afghanistan makes me so grateful that I’m not and have never been in a war zone.

10. I am grateful the government are so far not putting the country into lockdown or tightening any measures despite COVID case numbers being on the rise again.

What are you grateful for?

Riding the Train

Posted on by Astrid

Back when I still lived on my own in 2007, I would frequently ride the train. Or go to the train station planning to go on a train somewhere but melt down once at the platform. Then, people would often call the police.

I shared my experiences of riding the train, or wanting to do so, as an autistic and blind person on a public transportation users forum in 2008. I shared pretty much every little detail up till my crisis on November 2, which happened at a train station too. The person who had asked me to share, then pointed out that it might be a little TMI, but that’s how I am.

This piece was written for the Six Sentence Story blog hop, for which the prompt this week is “Train”.

My Very First Polymer Clay Earrings

Posted on by Astrid

Oh my, I’m really losing my blogging mojo or so it seems. Thankfully, I’m finding other creative outlets, like polymer clay.

Yesterday, I was watching a YouTube video in which the creator made some polymer clay earrings with the image of daisies on them. I wanted to recreate those, but really was pretty much clueless.

Like her, I started out with blue (well, Fimo Soft #39, “peppermint”, the closest to blue polymer clay I have). I then added little yellow dots. I still don’t have white, so used porcelain for the petals. The YouTuber hadn’t created individual petals, so neither did I. Rather, I extruded a strand of clay to go around the little dots. That was hard enough. I didn’t flatten my slab, because I feared I’d distort the design if I did. I also really liked the texture in my design.

Unfortunately, when I baked these, they stuck to the tile and got a hole in them when I pulled them off. I threw them straight into the bin, so no pics of these.

Yesterday evening though, I did create some earring pieces that were more or less a success. I used purple as the background color this time and again, yellow dots and white strands to go around them for the daisies. This time, I tried to flatten my slab using my acrylic roller, but that didn’t create an even surface. Then, I ran my slab through the pasta machine, which of course distorted the design a little. Or a lot.

I decided to bake my earring pieces anyway. I had four of them and this morning, had my staff pick the best two to be glued to the earring posts. That worked surprisingly well considering I didn’t use super glue. I had to let them dry for about three to four hours and they look and feel pretty sturdy now.

Polymer Clay “Daisy” Earstuds

VoiceOver Recognition does say they look like boiled eggs rather than daisies. I guess it has a point.

For the photo, I attached them to a piece of blue cardstock. That will do okay as an earring card for keeping my earstuds safe while waiting for me to actually get my ears pierced.

What do you think of these?

Linking up with Party in Your PJ’s.