Dealing with Anxious Attachment and Attachment Loss

Okay, I’m probably giving up on the 31-day writing challenge. I love the prompts, but right now, they just don’t seem to inspire me. I’m not feeling well at all right now. Haven’t for about a week or more. Like I shared in my post on Sunday, I have been feeling triggered by my staff being on sick leave. It’s not just that, of course. The change of seasons with all its triggers to my time in crisis back in 2007, doesn’t help either. The emotional flashbacks are so bad I’m considering asking my nurse practitioner to temporarily up my topiramate. For now though, I’ll write a little about attachment loss and abandonment issues.

When I was first diagnosed with complex PTSD and dissociative identity disorder in 2010, part of the consultation that led to this diagnosis involved an attachment styles questionnaire. I scored highest on the anxious/preoccupied attachment style. This means that I tend to depend heavily on others. I struggle to admit this, but it is true.

As such, I fear attachment loss or abandonment a lot. Most anxiously attached people tend to seek another relationship right away when one ends. I don’t have any exes, since my husband was also my first boyfriend, but I do notice it in other areas. For example, now that my assigned staff is on sick leave, I’ve already been thinking about who will become my assigned staff if she ends up not returning. Which, in fact, is something I cannot get out of my head for whatever reason.

Anxiously attached people also tend to cling to dysfunctional attachment figures far too long. Again, I don’t experience this in my marriage, but I did experience it in the psych hospital. I had an assigned staff who was rather adamant that I become more independent than I could be, but I accepted her as an authority for far too long. Same with my psychologist.

I, thankfully, left that place. However, I do find that something I read while researching attachment loss for this post, makes a lot of sense: the idea that leaving a relationship on paper doesn’t mean being emotionally detached from that attachment figure. Again, not my marriage, but with respect to my care situation, yes, that’s so me! I still experience vivid dreams (not necessarily nightmares!) about the psych hospital. I also still look up things about my former care agencies, thinking maybe I should go back. I still find myself being influenced by what my past care providers said about me, no matter how harmful and wrong. This may be one reason I don’t generally meet the avoidance criterion of classic PTSD, but am rather the opposite: I find myself drawn to things that trigger me. Now if only I could find a way to truly let go of the emotional baggage I’m carrying with me.

What It Was Like Being a Patient on a Psychiatric Ward #31Days2021 #Blogtober21

I’m still not too inspired to write. Today’s optional prompt for #31Days2021 is “patient”. Obviously, most people will write about “patient” as in the adjective derived from patience. I won’t. I want instead to share what it was like being a patient in a psych hospital.

As regular readers of this blog will know, I spent 9 1/2 years in a mental hospital between 2007 and 2017. I spent my first sixteen months on the locked ward. This is pretty much as I imagined it before I entered the psych system myself: floridly psychotic patients screaming and exhibiting other erratic behavior, staff running around trying to control it. Like I said yesterday, I witnessed people being secluded and being forcibly medicated several times. I was an informally admitted patient, so I couldn’t be subjected to any form of restraint. This isn’t to say it didn’t happen, as I said.

The staff/patient ratio at my ward was around 1:5 during the day. This means there’s not much time for staff to keep regular tabs on what patients are up to if they aren’t kicking up a fuss. I, in fact, at one point got told I would be put into time-out if I “needed more care than we can provide”.

After those sixteen months, I transferred to an open resocialization unit and later another open ward. The staff/patient ratio there was around 1:10, sometimes even less. As a result, patients had to help one another out sometimes.

On the locked ward, I had treatment plan reviews once every six weeks. This was because the ward was basically a crisis intervention/stabilization unit, where officially you could stay a maximum of six months. I must say there wasn’t much in the way of therapy. Of course, most patients admitted to this unit, suffered with psychotic disorders, for which the main treatment is medication. For me, it was decided I just had to figure out a place to go after pulling myself out of the worst crisis and, for this reason, I had mostly contact with the social worker.

On the resocialization unit, I did get psychotherapy. This was where I was diagnosed with (complex) PTSD and dissociative identity disorder in addition to autism. Thing is, once I moved to the other ward, these diagnoses were all removed. It was decided I was just care seeking and dependent and needed to be kicked out of the hospital.

We did have day activities most days on each psych unit. However, not all patients were able to participate. I, for one, usually was not.

In summary, my entire psychiatric hospital stay was one lengthy journey of changing diagnoses, social workers who tried to find me a place to live but had a very narrow view of what I needed, limited nursing support and hardly any day activities. I did start two of my three current daily psych meds while in the hospital. However, I must say, looking back, I hardly made any progress during those 9 1/2 years.

#WeekendCoffeeShare (October 3, 2021)

Hi everyone on this rainy Sunday. I’m joining #WeekendCoffeeShare this afternoon. I may add another post for Blogtober and the 31-day writing challenge, though neither challenge requires you to follow a topic or prompts. In this sense, this post could count as my daily post for October 3. We’ll see if I can still find time to write a post on today’s optional prompt too.

As usual, I just had my afternoon coffee, but I’m pretty sure the other clients are still having theirs. Let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that this week is a bit meh. It seems it’s the beginning of fall that’s causing me to feel more depressed and less inspired than usual. I have been going for a few walks over the week, but not many due to the rain. I also hardly did anything crafty. Today, I spent a lot of the morning and early afternoon in bed.

If we were having coffee, I’d share about my care plan review last Thursday. Like I said in my previous posts, it went mostly as expected. It did create some stress in me related to the upcoming reassessment of my one-on-one care. The behavior specialist also told me at this meeting that she’s going to work at another care facility that’s part of this agency, so she will no longer be assigned to my case. It’s not yet decided who her successor will be, but that should become clear pretty soon.

If we were having coffee, I’d tell you that, the evening after the care plan review, my assigned home support staff left her shift early due to being sick. Everyone else is telling me she just has the flu, but I somehow got it in my had that she is suffering burnout and it’s my fault for having sucked up her energy too much.

This situation led to a bit of a crisis Friday night. I left my room initially looking for the late shift, but she’d already left the building. However, my room-leaving detector didn’t alert the night staff yet, probably because it was just before 10:30PM. The people who would receive my alerts at night, are at the main institution in another village and they are then supposed to call the night shift here. In other words, there is no way I can alert the night shift here directly. I went looking for help, but the outside door of the home was already locked.

This led to a bit of a panic and I went into dissociative mode. I grabbed a chair and climbed over the half-door into the kitchen (the kitchen is locked at night to prevent me entering it and self-harming). I tried to self-harm in several ways, but thankfully didn’t really get hurt. When the night staff came to get another client to bed, she saw me and helped me to my room.

If we were having coffee, I’d tell you that, despite all the troubles, the week will likely end on a positive note. Several of us clients have not received meal delivery service meals this entire week because we were supposed to be emptying out the freezer. This did mean I got a lot of the same meals this past week and today I said, if I got noodles again, I’d ask my one-on-one to drive me to the supermarket so I could buy a salad or something. Turned out one of the other clients whose freezer was supposed to be emptied, didn’t fancy his meal for today either, so the staff agreed to order food from the local Italian restaurant. I will be getting a tuna pizza.

How have you been?

Why I’m Content in My Current Care Facility #31Days2021 #Blogtober21

Last Thursday, like I mentioned before, I had my care plan review here at the long-term care facility. It was my first one, even though I’ve been living here for two years, because last year’s got canceled due to COVID. As we were discussing my progress over the past two years and my wishes for the future, I said that I’m about 95% sure I want to stay here. That’s huge for me, as I’ve been constantly on the lookout for another place to move to particularly over the past year.

This brings me to today’s prompt in the 31-day writing challenge: content. I at first wasn’t sure what to write about on this word. I mean, I wanted to write why I’m content living here, but somehow it felt kind of off. Then I read Lesley’s contribution to the challenge, Contentment Without Complacency, and realized that being content where you are doesn’t mean there’s no ground for improvement. So, with no further ado, I’m going to share why I’m content living in my current care facility.

First of all, I love the way my staff support me. As regular readers of this blog will know, I’ve had quite the journey through the care system. I resided in a mental hospital for 9 1/2 years, where there was constant pressure on meeting goals and getting better. Before that, I lived on my own and, before that, in a training home. As the name suggests, it was heavily focused on independence training.

For those not aware, my current care facility primarily caters to people with an intellectual disability. All other clients in my specific home have severe to profound intellectual disabilities. For this reason, my staff are used to helping them with everyday activities such as mealtimes, personal care, etc.

They are also used to clients needing staff to realize that correcting challenging behavior will not be effective. Whereas in the mental hospital, I used to be often left to my own resources if I’d done something self-destructive, now my staff provide me with affectionate care. This might be seen as reinforcing the behavior, but in my experience, quite the opposite is true.

In addition to liking my staff’s care approach, I like my fellow clients’ lack of social expectations of me. One of my fellow clients will occasionally come to my room asking me to wish him goodnight, but other than that, the clients hardly interact with me. One wish for the future that I voiced at my care plan review, is more interaction with other people, particularly those of higher intellectual level. I do have a couple of friends in other care homes that are part of the complex, whom I talk to when going to the day center or when outside. I however am grateful that I don’t live with these people 24/7.

I also like my room. Some staff call it an apartment, since I have my own bathroom and small kitchenette. I also have my own balcony. I honestly haven’t had a better room in any of my previous places in the healthcare system.

Overall, the reason I’m not 100% sure I want to stay here, doesn’t seem to have to do with my facility itself. It is rather related to my own anxieties and insecurities. Of course, things could always be better, but that doesn’t mean I’m not content exactly where I am right now.

Grateful For the Right Care

Today’s prompt for Five Minute Friday (#FMF) is “Care”. Most writers, I’m assuming, are writing about how God takes care of them, how they should not be distracted by the cares of this world, how important it is to care for others and other spiritual meanings of the word “care”. I do find these important too, of course, but was particularly impressed with the timing of this prompt. After all, yesterday marked my two years being in the long-term care facility.

I cannot keep from thinking that God put the people and circumstances in my life that led to me being here now. He did, as He has a plan for all of us. However, since I didn’t become a Christian till late last year, before then it was easy to consider these circumstances, these people, all working together to get me the right care, just chance.

I want to use this space to give thanks for the blessing that is my being in long-term care, with my current support team and my current care plan. I also want to give thanks to all the people God put into my life who worked and in many cases continue to work so tirelessly to keep it this way. My support coordinator and support workers from when I lived with my husband. My psychiatric nurse practitioner at the time. The Center for Consultation and Expertise coordinator and the consultant she hired to help get me the right care. My staff at my old day center. My staff, the manager and behavior specialist here at the long-term care facility. The people in authority who decided whether to grant me long-term care funding at all and eventually decided to grant me the one-on-one I get now. Last but not least, my husband, who sticks by me through it all.

Looking back at all the time I’ve been busy fighting for the care I get now, I realize some of the events are nothing short of miraculous. I am so intensely grateful for this!

An Eventful Wednesday

Hi everyone on this Wednesday evening. The weather was beautiful today. It was cold in the morning, but sunny and about 21°C in the afternoon.

This morning, I had an appointment with my community psychiatric nurse. I hadn’t seen her in four weeks, as two weeks ago she had had to cancel due to a crisis situation. This time, I was able to talk through some of my struggles. I vented some of my grief with respect to my blindness. I ended on a positive note though, sharing the wonders of VoiceOver Recognition.

At 1PM, I had a quick dental check-up. The dentist comes to our day center four times a year for these, so I didn’t have to travel. Thankfully, all was well and I was literally gone within minutes.

Then I had a talk with my support coordinator about my upcoming care plan review. We had to discuss my risk inventory. This is a long list of possible risks someone can experience, such as of choking, falling, epileptic seizures, aggression, etc. With each box, the staff have to tick of “Yes” or “No” and if yes, elaborate on the risk. I disagreed with several “No” answers, but then my support coordinator explained that this is within the current care situation. For example, there is no risk to my personal hygiene because my staff are there to help me with this.

I did get my coordinator to add a “Yes” to risks re social media use because my Internet use can often trigger me and lead to meltdowns. I did ascertain that these risk assessments are not necessarily associated with restrictive measures. In other words, just because there’s a risk associated with my Internet use, doesn’t mean they need to restrict my online activity.

Later, I realized there really needs to be a “Yes” in the box on risks associated with overweight too. I had said this at the meeting but my coordinator had said that since I don’t suffer with sores due to fat or the like, there’s no risk. I do feel there is, given that my BMI is above 30 and I need support in maintaining a healthy’ish diet.

I went on three walks this afternoon and evening. On my way back from one of them, my one-on-one asked me whether I wanted to photograph the chickens near the day center. A client at another care home here has always wanted to have chickens and he finally got his wish granted a few weeks ago.

Unfortunately, only one of them lays eggs so far. The guy whose chickens these are says the other one’s crest needs to get redder before she will lay eggs. My husband said it might actually be a rooster though. I hope not.

Dissociative Identity

The person in the mirror is not me. The person who carries this body’s name, doesn’t really exist as its own identity. We, as in, me and about 40 other insiders (also known as alters, parts or headmates depending on your perspective), share the body. We each have our own names; none of us claim the body’s given name, even though we’ve never felt comfortable claiming a collective name for ourselves other than Astridetal. We all have our own ages and more or less age-appropriate abilities too.

This evening, I was talking with our assigned staff after another small crisis in which one of the more emotionally immature insiders came forward. I was talking about the fact that we switch between alters more than I’d like to admit on a daily basis. I mean, Annemiek is our crafty insider. When we do polymer clay or jewelry-making, she’s out in the body. She, however, can see in the inner world, even though the body is completely blind. So when she gets frustrated with the intricate aspects of crafting, she shoves someone else forward.

Deborah was out this evening. She is 22-years-old, but very emotionally immature and very mistrusting of others. She is one of the ones claiming to need even more one-on-one support than we already get.

Our staff knows about our existence, but she didn’t know how we juggle the frequent switches on a daily basis. Some of these switches are not as overt as Deborah’s coming forward this evening. For example, when Annemiek is crafting and everything goes to plan, she can be pretty well-collected.

At one point, the staff suggested we create a list of insiders. We used to have one here on the blog, but deleted it as this blog evolved from a mental health blog to a more eclectic blog. Sadly, it turned out I hadn’t saved the file anywhere, but I had created a list some nine years ago for a former therapist. That one was quite eye-opening, as not only have a lot of insiders emerged since then, but some old ones have changed roles. It was very interesting looking at and updating the list.

Sometimes, it hurts that I’ve lived with these strangers for so long. I know for certain that some of us emerged as early as 2001. That’s twenty years ago. Even so, I suspect some of us have been inside this body for far longer, as is commonly the case with people with dissociative identity disorder (a diagnosis we do not currently have, by the way, but used to). I cannot at least remember a time without alters.

This post was written for Reena’s Xploration Challenge #197.

Gratitude List (August 27, 2021) #TToT

Hi all! Can you believe August is almost over with already? I certainly can’t. Today I thought I’d do a gratitude list. I’m joining Ten Things of Thankful (#TToT), as well as Thankful Thursday (a day late) again.

1. I am grateful for French fries. On Sunday, the staff decided to get those delivered to the care home. Of course, I had a very spicy snack called mexicano with it.

2. I am grateful the volunteer handymen came over to my room on Monday to put together the new desk I bought at Ikea two weeks ago. At first, it was a little too high (the legs are adjustable in length), but the handymen had been struggling to get the legs to cooperate. For this reason, I was hesitant to ask them to adjust them. However, once they’d figured out how to work the mechanism, it was pretty easy. I am so grateful to have my new desk now.

3. I am grateful both my assigned day activities staff and home staff are back from vacation as of this week.

4. I am grateful my CPN is back from vacation. I am glad I had a good discussion with her on Wednesday.

5. I am grateful to be making progress in my creative endeavors. I am quite perfectionistic, so have thrown a few of my polymer clay pieces in the bin, but without failing, one doesn’t learn, right? I am also grateful for all the constructive feedback I receiv in Facebook groups.

6. I am grateful my polymer clay alphabet stamping set arrived. I had had it on my wishlist for a while, ordered it on Monday and it arrived yesterday. Unfortunately, a part of it was missing. One of my staff went after it and the store just replied that they’ll send the part that is missing.

7. I am grateful for summer fruit. My day activities staff, who lives near the supermarket my care facility normally buys from, was asked to get some stuff (buttermilk, I think, yikes!) on Thursday and she asked me what else I wanted her to buy now that she was going to go get groceries for us anyway. She bought peaches and strawberries and they were delicious!

8. I am grateful to be able to put a smile onto people’s face with my handmade gifts. Like I may have mentioned, my day activities staff got a present from me. So did a fellow client, who had his birthday on Wednesday. He had the hugest smile on his face when I gave him his hand cream.

9. I am grateful to live in a free, developed country. All the news about the Taliban having taken over Afghanistan makes me so grateful that I’m not and have never been in a war zone.

10. I am grateful the government are so far not putting the country into lockdown or tightening any measures despite COVID case numbers being on the rise again.

What are you grateful for?

Gratitude List (August 13, 2021) #TToT

Hi everyone on this beautiful Friday the thirteenth. I am not particularly superstitious about this date, even though I used to have really bad superstitions related to other dates.

This day is going quite well, so I thought I’d do a gratitude list. Of course, it doesn’t have to go well to do one, but well. As usual, I’m joining in with Ten Things of Thankful (#TToT). I am also joining Thankful Thursday a day late, since the linky is still open.

1. I am grateful to have been able to see my husband again over the weekend. I was finally able to go to Lobith after over a month of not going there for various reasons.

2. I am grateful for pizza. My husband and I went to New York Pizza, which appears to be a Dutch-only pizza company that supposedly serves NY-style pizzas. I am pretty sure people from New York would laugh at it, but I loved my Tex Mex chicken pizza. Oh, I guess people from Texas and Mexico would laugh at that one too.

3. I am grateful for a proper delivery of the polymer clay things I ordered from someone on Facebook last Friday. I have so far only used the cookie cutters, but they’re great.

4. I am grateful the package from Facebook contained black and dolphin grey clay. With luck, I may be able to combine these to make an actual tabby cat, like Barry, my husband’s and my cat.

5. I am grateful for my staff’s Atlas pasta machine. The staff gave it to me at least to use for as long as I want. I did tell her she won’t be able to make pasta with it anymore now that I’ve used it for polymer clay, but that was okay. The thing works pretty well. She already gave it to me last week, but I am so grateful I got to properly work it this past week.

6. I am grateful I ordered five different sizes of ziploc bags in one package rather than several separately, because I never considered that I’d in fact need the largest size for my bigger packages of polymer clay. I am still able to use the smaller sizes for jewelry-making supplies.

7. I am grateful my creative juices are still flowing steadily. I haven’t actually finished any projects in the past week, but I am making progress. That’s a win and something to be thankful for as well. Oh, now that I’m thinking of it, I did finish a soap, but that was an easy-peasy one.

8. I am grateful the weather has been quite good over the past week. It’s been mostly dry, warm and sunny with a few clouds. I am so thankful it is still summer clothes weather.

9. I am grateful my foot is allowing me to go on slightly longer walks again. It still hurts, but not as bad as it used to.

10. I am grateful for a holiday greeting card from my day activities staff. So thoughtful!

What have you been grateful for?

PoCoLo

Gratitude List (July 30, 2021) #TToT

Hi all, happy Friday! I’m joining Ten Things of Thankful (#TToT) today with a gratitude post. Let’s get started.

1. I am so grateful my benefits arrived. Oh well, I spent a significant amount of money already on crafting supplies and my yearly premium subscription to Day One, a diary app. I have once again resolved not to make unnecessary expenses for at least a week. I am however grateful that, even if I do end up spending some money, I won’t go broke anytime within the foreseeable future.

2. I am grateful my staff try to find me things I need or want for free or at a heavily discounted price. For example, one staff was able to get a music pillow for just €1. Another staff gave me some cookie cutters and ziploc bags she didn’t use and her daughter’s old duvet cover. Oh, it feels off to say this right after I’ve told you about my spending my benefits money on crafting supplies.

3. I am grateful to retain my creative mojo. I have really been loving doing some crafts lately, particularly polymer clay and some jewelry-making too.

4. I am grateful that my creative juices flowing means I have something else to talk about online besides my disabilities and health conditions. I am truly loving perseverating on polymer clay in particular.

5. I am grateful for organized storage shelves. Okay, I think I decluttered them a month or so ago already, but with my new crafting supplies, I had to do it again. I’m really satisfied with the space I created without even too much throwing out.

6. I am grateful for pasta salad. My day activities staff and I made this for lunch on Tuesday and there was still some left on Wednesday.

7. I am grateful I haven’t gained any weight in the past week despite not walking as much and despite the pasta salad and other treats. In fact, I lost 200 grams.

8. I am grateful for a nice fill-in community psychiatric nurse. My regular CPN will be on vacation when I was originally next supposed to see her in two weeks, so the other one will fill in. She joined me and my regular CPN for our appointment on Wednesday and she seems nice.

9. I am grateful for a nice new student staff. She is already older, so it’s easier for me to trust her than the young interns.

10. I am grateful my husband is now fully vaccinated. He got his second shot yesterday and he seems to be doing okay.

What are you grateful for?